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Journal articles on the topic 'Hospice Care Architecture of Dying'

Author: Grafiati

Published: 4 June 2021

Last updated: 1 February 2022

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1

Bellamy, Annie. "4 Designing dying well: toward a new architectural approach of in-patient palliative care environments." BMJ Supportive & Palliative Care 8, no. 3 (2018): 361.1–361. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.4.

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Neither a ‘hospital’ nor a ‘home’; the in-patient hospice has a unique architectural identity remaining largely undocumented. There is a plethora of architectural research regarding more common-place healthcare buildings such as hospitals and care-homes. (RIBA n.d) However the architecture of in-patient hospices is misunderstood in the role it can play in supporting the holistic principles of palliative care as backdrops for ‘not just a good death but a good life to the very end’ (Gawande 2014, pg. 245).Reconciling the social and spatial this research aims to establish an authentic identity fo

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2

CORLESS, INGE B. "Dying Well: Symptom Control Within Hospice Care." Annual Review of Nursing Research 12, no. 1 (1994): 125–46. http://dx.doi.org/10.1891/0739-6686.12.1.125.

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3

Montana, Bridget J. "Is hospice care dying in the USA?" International Journal of Palliative Nursing 19, no. 7 (2013): 316–17. http://dx.doi.org/10.12968/ijpn.2013.19.7.316.

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4

Franco, Vincent W. "The hospice: Humane care for the dying." Journal of Religion & Health 24, no. 1 (1985): 79–89. http://dx.doi.org/10.1007/bf01533262.

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5

Ashton, Joyce Marsden. "Bereavement Care in Home Care and Hospice." Home Health Care Management & Practice 20, no. 5 (2008): 394–99. http://dx.doi.org/10.1177/1084822307311840.

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The diagnosis of a chronic or terminal illness causes a variety of emotions for the patient and the care giver. Often bereavement and grief are not addressed by health care professionals. This article seeks to assist the health care provider in understanding the grief process and in offering interventions to aid the ill and dying.

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6

Clark, Peter A. "Palliative Care and Hospice: A Paradigm for End-of-Life Care in Developing Nations." Journal of Advances in Internal Medicine 6, no. 2 (2017): 38–44. http://dx.doi.org/10.3126/jaim.v6i2.18541.

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Traditionally, medical care has had two mutually exclusive goals: either to cure disease and to prolong life or to provide comfort care. Given this dichotomy, the decision to focus on reducing suffering is made usually only after life-prolonging treatment has been ineffectual and death is imminent, usually by days or hours. As a result, one of the best kept secrets in a hospital today in the United States is palliative care and hospice care. We estimate that of the 2.4 million Americans that die each year, about 80% end their lives in hospitals attached to the latest advances in technology; 30

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7

Boquet, Jaime R., Debra Parker Oliver, Elaine Wittenberg-Lyles, Ardith Z. Doorenbos, and George Demiris. "Taking Care of a Dying Grandparent." American Journal of Hospice and Palliative Medicine® 28, no. 8 (2011): 564–68. http://dx.doi.org/10.1177/1049909111405644.

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This study aims to provide insight into the role of grandchildren as informal hospice caregivers. It presents 4 cases that highlight the challenges and perceptions of grandchildren who care for a grandparent at the end of life. A researcher met regularly with family caregivers to discuss the problems or challenges during hospice caregiving. Although each caregiver presented unique individual experiences, several themes are common among the family caregivers including fatigue, stress, guilt, and loss of the “grandchild” identity. Grandchildren caregivers often take care of 3 generations (grandp

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8

Broom, Alex. "On Euthanasia, Resistance, and Redemption." Qualitative Health Research 22, no. 2 (2011): 226–37. http://dx.doi.org/10.1177/1049732311421181.

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Euthanasia/assisted dying, the desire to hasten death, and religious supportive care at the end of life are controversial issues that have been heavily debated within the academic and medical communities. Little research has been done on hospice patients’ views, despite hospices being political spaces, espousing a range of perspectives on assisted dying, religiosity, and “good deaths.” In this article I document the presence, articulation, and significance of these issues as perceived and experienced by 20 hospice inpatients in the last 4 weeks of their lives. Key themes to emerge included pol

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9

Morrow, Barbara R., J. Maier, and Walter Kelley. "Dying with Dignity: Hospice Care on the Unit." Journal of Psychosocial Nursing and Mental Health Services 27, no. 11 (1989): 10–13. http://dx.doi.org/10.3928/0279-3695-19891101-09.

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10

Rutland-Wallis, Martha Ann. "When Dying is Living: Hospice Pastoral Care and Education." Journal of Pastoral Care 50, no. 1 (1996): 41–48. http://dx.doi.org/10.1177/002234099605000105.

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Explores the relevance of Robert Kegan's concepts to the practice of pastoral care in a hospice context and illustrates the explanatory power of the concepts through the use of case histories. Outlines the implications of Kegan's theory for supervision in Clinical Pastoral Education within a hospice environment.

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11

Radbruch, Lukas, Helmut Hoffmann-Menzel, Martina Kern, and Roman Rolke. "Hospice pharmaceutical care: the care for the dying: Table 1." European Journal of Hospital Pharmacy 19, no. 1 (2012): 45–48. http://dx.doi.org/10.1136/ejhpharm-2011-000016.

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12

Bonavita, Anthony, Oksana Yakushko, Melissa L. Morgan Consoli, Steve Jacobsen, and Rev Laura L. Mancuso. "Receiving Spiritual Care: Experiences of Dying and Grieving Individuals." OMEGA - Journal of Death and Dying 76, no. 4 (2017): 373–94. http://dx.doi.org/10.1177/0030222817693142.

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The study examines the perceptions of interfaith spiritual care, received through a volunteer hospice organization, by 10 individuals facing death and dying. Qualitative methodology based on the Interpretive Phenomenological Analysis was used to collect and analyze the data. Four superordinate themes reflected meanings ascribed to spirituality and spiritual care in facing end of life: Vital Role of Spirituality in the End-of-Life Care, Definitions and Parameters of Spirituality and Interfaith Spiritual Care, Distinct Aspects of Interfaith Spiritual Care, and Unmet Spiritual Needs. The results

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13

Luth, Elizabeth, and Holly Prigerson. "Home Hospice Versus Other Places of Death and Caregiver Stresses." Innovation in Aging 4, Supplement_1 (2020): 418. http://dx.doi.org/10.1093/geroni/igaa057.1349.

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Abstract As of 2017, more individuals in the U.S. die at home than in any other location. Hospice care was designed to provide support for people who are dying and their families. However, dying persons may have rapidly emerging needs that home hospice does not immediately meet, thereby, exposing family members to be “first responders.” Thus, home death may result in distress and burden for dying individuals’ family members, even when hospice is involved. This study uses multivariable regression analysis to explore the relationship between place of death and stressful end-of-life experiences i

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14

Seo, Kawoun. "Moderating Effect of Nurse’s Character on the Relationship between Attitudes toward Nursing Care of the Dying and Performance of Terminal Care in South Korea." Healthcare 9, no. 9 (2021): 1195. http://dx.doi.org/10.3390/healthcare9091195.

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This study aimed to investigate the moderating effect of nurses’ characteristics on the relationship between attitudes toward nursing care and terminal care performance of hospice nurses. The participants included nurses working in hospice care units in general hospitals in South Korea. Data collected from August 1 to 31, 2020 were analyzed using t-test, ANOVA, Pearson′s correlation coefficients, and hierarchical multiple regression. The performance of terminal care was positively correlated with attitudes toward nursing care of the dying (r = 0.45, p < 0.001) and nurses’ characteristics (r

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15

Carr, Michelle, and Melanie Pratt Merriman. "Comparison of Death Attitudes among Hospice Workers and Health Care Professionals in other Settings." OMEGA - Journal of Death and Dying 32, no. 4 (1996): 287–301. http://dx.doi.org/10.2190/r4t6-d1kv-m37d-1p47.

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Since most health care professionals are trained in acute care settings where all efforts are employed to prolong life, they may not be comfortable caring for dying patients. Hospice professionals have a lot of experience dealing with dying patients. The purpose of this study was to compare and contrast the death attitudes of hospice and hospital-based health care professionals. The construct theory for the study was that comfort in dealing with dying patients is based on 1) personal beliefs about death and 2) experience dealing with dying patients. Seventy-six hospital and 106 hospice workers

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16

McCarthy, Ellen P., Risa B. Burns, Roger B. Davis, and Russell S. Phillips. "Barriers to Hospice Care Among Older Patients Dying With Lung and Colorectal Cancer." Journal of Clinical Oncology 21, no. 4 (2003): 728–35. http://dx.doi.org/10.1200/jco.2003.06.142.

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Purpose: To identify factors associated with hospice enrollment and length of stay in hospice among patients dying with lung or colorectal cancer. Methods: We used the Linked Medicare-Tumor Registry Database to conduct a retrospective analysis of the last year of life among Medicare beneficiaries diagnosed with lung or colorectal cancer at age ≥ 66 years between January 1, 1973, and December 31, 1996, in the Surveillance, Epidemiology, and End Results Program who died between January 1, 1988, and December 31, 1998. Our outcomes of interest were time from cancer diagnosis to hospice enrollment

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Lorenz, Karl A., Kenneth E. Rosenfeld, Steven M. Asch, and Susan L. Ettner. "Charity for the Dying: Who Receives Unreimbursed Hospice Care?" Journal of Palliative Medicine 6, no. 4 (2003): 585–91. http://dx.doi.org/10.1089/109662103768253696.

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18

Parker-Oliver, Debra. "The Social Construction of the “Dying Role” and the Hospice Drama." OMEGA - Journal of Death and Dying 40, no. 4 (2000): 493–512. http://dx.doi.org/10.2190/yt9d-12y2-54ly-tcmn.

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The social construction of a “dying role” is emerging in response to terminal illness for which the “sick role” is no longer functional. When people are in the process of dying, in the absence of a “dying role,” they take on the rights and responsibilities of the “sick role” to which they have been socialized. This is problematic for the individual who will not get well no matter how hard the effort. Hospice, a professional community with a central purpose of bringing the drama of dying to an appropriate close, marks the transition from a sick role to a dying role. This article looks at how th

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19

Renzenbrink, Irene. "The Shadow Side of Hospice Care." Illness, Crisis & Loss 15, no. 3 (2007): 245–59. http://dx.doi.org/10.1177/105413730701500306.

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The subject of this article is the dark or “shadow” side of working with dying and bereaved people in hospice and palliative care services, and the interplay of complex personal, professional, and organizational issues that can influence both the quality of patient care and the well-being of staff. Examples of how support needs have been identified and managed are drawn from the author's extensive experience as a social worker, educator, and consultant. It is argued that current understandings of staff stress lack insight into the dark side of hospice care and fail to appreciate the depth of e

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20

CARLSSON, MARIA E., and BRITTA ROLLISON. "A comparison of patients dying at home and patients dying at a hospice: Sociodemographic factors and caregivers' experiences." Palliative and Supportive Care 1, no. 1 (2003): 33–39. http://dx.doi.org/10.1017/s1478951503030098.

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Objective:The aim of this study was to investigate whether there were any differences between patients who died at home and patients who died at a hospice, that is, sociodemographic variables, the family caregivers' experiences of burden, and their opinion of reasons for hospice care.Methods:The study comprises a consecutive sample of family caregivers to adult patients: (I) who were cared for by the advanced palliative home care team (APHCT) and died at home, (II) who were cared for by the APHCT and died at the Hospice, (III) who were cared for and died at the Hospice in Uppsala during a peri

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21

Paris, Julia, and R. Sean Morrison. "Evaluating the Effects of Inpatient Palliative Care Consultations on Subsequent Hospice Use and Place of Death in Patients With Advanced GI Cancers." Journal of Oncology Practice 10, no. 3 (2014): 174–77. http://dx.doi.org/10.1200/jop.2014.001429.

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22

Davidoff, Amy J., Maureen Canavan, Shi-Yi Wang, Elizabeth Horn Prsic, Maureen Saphire, and Carolyn J. Presley. "End-of-life (EOL) trajectories among older adults dying with lung cancer (LC)." Journal of Clinical Oncology 38, no. 15_suppl (2020): e24008-e24008. http://dx.doi.org/10.1200/jco.2020.38.15_suppl.e24008.

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e24008 Background: Medicare decedents often receive intensive care during the last month (mth) of life. There is little information on longer (6-mth) EOL trajectories of care intensity. Area hospice use rates may reflect supply and/or patient and physician preferences, and may influence patterns for individual decedents. Methods: Using SEER-Medicare linked registry and claims data, we selected decedents diagnosed with LC between 2008-2013 who survived ≥6-mths and died between 2008-2014. We linked Dartmouth Atlas data on hospital referral region (HRR) % cancer decedents with hospice use. Each m

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23

Kuberowa, Helena, and Maria Sidorowa. "The role of nurses in palliative and hospice care." Medical Science Pulse 7, no. 4 (2013): 10–17. http://dx.doi.org/10.5604/01.3001.0003.3145.

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Introduction: The role of nurses in palliative and hospice care especially with the terminally ill and dying patients in hospice.Aim of the study: To show the importance and irreplaceable role of nurses in meeting the needs of a patient.Material and methods: The survey was performed among nurses working with terminally ill and dying people in hospices in the Czech Republic and Slovakia.Results: Obtained results were analyzed by means of questionnaires, where there are opinions and attitudes of nurses who take care of patients in the terminal stages of various diseases.Conclusions: Although the

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EISENBERGER, ANDREW, and JOMARIE ZELEZNIK. "Care planning for pressure ulcers in hospice: The team effect." Palliative and Supportive Care 2, no. 3 (2004): 283–89. http://dx.doi.org/10.1017/s1478951504040374.

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Objective: The standards of care for patients at risk for or with a pressure ulcer in hospitals and nursing homes focus on prevention and ulcer healing using an interdisciplinary approach. Although not a primary hospice condition, pressure ulcers are not uncommon in dying patients. Their management in hospices, particularly the involvement of family caregivers, has not been studied. The objective of this study is to identify the factors that influence care planning for the prevention and treatment of pressure ulcers in hospice patients and develop a taxonomy to use for further study.Methods: A

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Raudonis, Barbara M., and Jane Marie Kirschling. "Family Caregivers’ Perspectives on Hospice Nursing Care." Journal of Palliative Care 12, no. 2 (1996): 14–19. http://dx.doi.org/10.1177/082585979601200204.

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In hospice nursing, dying persons and their families are the unit of care and the focus of nursing interventions which are provided within the context of interdisciplinary care. The key component of hospice nursing is the interaction between the nurse, the terminally ill person, and the family. This naturalistic study was designed to describe the family caregiver's relationships between the hospice patient, the nurse, and themselves. The intent was to determine if family caregivers would develop empathic relationships with the hospice nurses. Nine bereaved family caregivers participated in the

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26

Hayslip, Bert. "The Measurement of Communication Apprehension regarding the Terminally Ill." OMEGA - Journal of Death and Dying 17, no. 3 (1987): 251–61. http://dx.doi.org/10.2190/w4hk-wln6-lpla-lyta.

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In order to establish the reliability and validity of a scale assessing communication apprehension regarding the dying, measures of generalized communication apprehension (CA), communication apprehension regarding the dying (CA-Dying), and death anxiety were administered to fifty-nine individuals, twenty-nine of whom had enrolled in an eight-week hospice volunteer training program, and thirty of whom were on the hospice mailing list. Results suggested that the CA-Dying scale possessed more than adequate reliability (internal consistency, test-retest) and validity (correlations with death fear,

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27

Catlin, A. "Care of the dying newborn: perinatal hospice, research, and practice." Obstetrics & Gynecology 97, no. 5 (2001): S55. http://dx.doi.org/10.1016/s0029-7844(01)01276-5.

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28

Naďová, Monika, and Veronika Likavčanová. "Hospice - alternative taking care of terminally diseased and dying people." Kontakt 10, no. 1 (2008): 52–61. http://dx.doi.org/10.32725/kont.2008.007.

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29

Levy, Kathryn, Pei C. Grant, Christopher W. Kerr, David J. Byrwa, and Rachel M. Depner. "Hospice Patient Care Goals and Medical Students’ Perceptions: Evidence of a Generation Gap?" American Journal of Hospice and Palliative Medicine® 38, no. 2 (2020): 114–22. http://dx.doi.org/10.1177/1049909120934737.

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Background: The ability to perceive care goals of the dying may be an indicator of future quality patient-centered care. Research conducted on end-of-life goals indicates discrepancies between patients and physicians. Objective: The aim of this study is to compare end-of-life care goals of hospice patients and medical student perceptions of patient care goals. Design: Hospice patients and medical students were surveyed on their care goals and perceptions, respectively, using an 11-item survey of goals previously identified in palliative care literature. Medical student empathy was measured usi

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Glicken, Anita, and Gerald Merenstein. "A Neonatal End-of-Life Palliative Protocol— An Evolving New Standard of Care?" Neonatal Network 21, no. 4 (2002): 35–36. http://dx.doi.org/10.1891/0730-0832.21.4.35.

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IN 1979 THE CHILDREN’ S Hospital, Denver began to address the needs of the unfortunate group of infants who exhibit evidence of poor prognosis and for whom the question is raised whether any more should be done to prolong their lives.1 This program for the NICU was based on concepts first introduced and popularized by the hospice movement.2,3 It was recognized that generally NICU staff are concerned with neonatal survival—a rescue mode of care. Staff are often ill-equipped to provide adequate care to the family of the dying infant. This program proposed a new approach to the very difficult iss

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TANG, SIEW TZUH, RUTH MCCORKLE, and ELIZABETH H. BRADLEY ph.d. "Determinants of death in an inpatient hospice for terminally ill cancer patients." Palliative and Supportive Care 2, no. 4 (2004): 361–70. http://dx.doi.org/10.1017/s1478951504040489.

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Objective:Despite the strong emphasis on home-based end-of-life care in the United States and the recognition of dying at home as a gold standard of quality of care, hospice home care is not a panacea and death at home may not be feasible for every terminally ill cancer patient. Admission to an inpatient hospice and dying there may become a necessary and appropriate solution to distressing patients or exhausted families. However, the factors associated with death in an inpatient hospice have not been examined in previous studies.Methods:A prospective cohort study was conducted to investigate t

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Castle, Nicholas G. "Innovations in Dying in the Nursing Home: The Impact of Market Characteristics." OMEGA - Journal of Death and Dying 36, no. 3 (1997): 227–40. http://dx.doi.org/10.2190/lkgl-517d-mbna-ux9d.

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During the 1980s nursing homes emerged as a dominant site of death for the elderly. This may precipitate more innovative approaches to death and dying in the nursing home and may account for the recent emergence of hospice care and pain management programs in nursing homes. However, the provision of hospice care and pain management in nursing homes are trends about which we have virtually no information. As a first step in examining these phenomena we provide a descriptive analysis of nursing homes that provide hospice care or pain management programs and an analysis of the impact of market ch

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Lackan, Nuha A., Jean L. Freeman, and James S. Goodwin. "Hospice Use by Older Women Dying with Breast Cancer between 1991 and 1996." Journal of Palliative Care 19, no. 1 (2003): 49–53. http://dx.doi.org/10.1177/082585970301900109.

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The purpose of this study was to assess the use of hospice by women dying with breast cancer as a function of time period, geographic area, and patient characteristics. We used data from the linked Surveillance, Epidemiology, and End Results (SEER)-Medicare database to study hospice care use in the United States in women aged 65 and older, diagnosed with breast cancer from 1986 to 1996, who died from 1991 to 1996. Of the 25,161 women who met those criteria, 5,198 (20.7%) were enrolled in hospice before they died. The rate of hospice use in this population increased from 11.5% in 1991 to 27.1%

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34

Powell, Jason L. "The Social Philosophical Dimensions of Hospice Care." International Letters of Social and Humanistic Sciences 52 (May 2015): 76–80. http://dx.doi.org/10.18052/www.scipress.com/ilshs.52.76.

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Hospice care is a type of care and philosophy of care that focuses on the palliation of a terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs (Powell 2014). The concept of hospice has been evolving since the 11th century. Then, and for centuries thereafter, hospices were places of hospitality for the sick, wounded, or dying, as well as those for travellers and pilgrims (Dossey 1999). The modern concept of hospice includes palliative care for the incurably ill given in such institutions as hospitals or nursing homes, but also care pr

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Hoffmann, Diane E., and Anita J. Tarzian. "Dying in America — An Examination of Policies that Deter Adequate End-of-life Care in Nursing Homes." Journal of Law, Medicine & Ethics 33, no. 2 (2005): 294–309. http://dx.doi.org/10.1111/j.1748-720x.2005.tb00495.x.

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The quality of end-of-life care in this country is often poor. There is abundant literature indicating that dying individuals do not receive adequate pain medication or palliative care, are tethered to machines and tubes in a way that challenges their dignity and autonomy, and are not helped to deal with the emotional grief and psychological angst that may accompany the dying process. While this is true for individuals in many settings, it seems to be especially true for individuals in nursing homes. This is somewhat puzzling given that (1) considerable resources have been devoted to bringing

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Goddard, Maria K. "The Importance of Assessing the Effectiveness of Care: The Case of Hospices." Journal of Social Policy 22, no. 1 (1993): 1–17. http://dx.doi.org/10.1017/s0047279400019085.

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ABSTRACTThe hospice sector has expanded and diversified rapidly in recent years and has become associated with the provision of highly specialised, good quality care for the dying. However, as resources for health and social care are increasingly stretched, it will become necessary to demonstrate, rather than to assert, that the hospice sector provides superior care. This paper considers critically the methodology that has been used in the evaluation of the effectiveness of hospice care, focusing on the design of evaluations, what is measured, who measures it and how it has been measured in pr

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Miller, Margaret A. "Presencing: Nurses Commitment to Caring for Dying Persons." International Journal of Human Caring 2, no. 3 (1998): 24–31. http://dx.doi.org/10.20467/1091-5710.2.3.24.

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This article is based in the authors’ interpretive study of hospice and home care nurses which uncovered shared meanings and common practices of how the nurses remained faithful to caring for dying persons who had refused artificially administered nutrition and /or hydration. Despite knowledge of and agreement with ethical and professional positions that supported the client’s decision, caregivers frequently experienced emotional discomfort when dying persons refused food or fluids. Without the option of offering the sustenance of food and fluids as a caring, comforting practice, nurses sought

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Paris, Julia, Qingling Du, and R. Sean Morrison. "Evaluating the role of palliative care consultations in patients with advanced gastrointestinal cancers." Journal of Clinical Oncology 31, no. 31_suppl (2013): 6. http://dx.doi.org/10.1200/jco.2013.31.31_suppl.6.

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6 Background: Though research shows that patients with terminal illnesses prefer to die at home, over 60% of patients with advanced cancer are hospitalized in the last month of life. Additionally, less than half of these patients receive any form of hospice care at the end of life, despite its demonstrated potential to improve quality of care. Inpatient palliative care (PC) consultations may serve as a bridge from hospitalization to receiving the kind of end-of-life care that patients prefer. Tumors of the gastrointestinal (GI) system include some of the most common and deadliest cancers and t

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Kinzbrunner, Barry M. "Hospice: 15 Years and Beyond in the Care of the Dying." Journal of Palliative Medicine 1, no. 2 (1998): 127–37. http://dx.doi.org/10.1089/jpm.1998.1.127.

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40

Cheng, Benjamin Hon Wai, Michael Mau Kwong Sham, Kwok Ying Chan, Cho Wing Li, and Ho Yan Au. "Intensive Palliative Care for Patients With Hematological Cancer Dying in Hospice." American Journal of Hospice and Palliative Medicine® 32, no. 2 (2013): 221–25. http://dx.doi.org/10.1177/1049909113512412.

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41

Fairfield, Kathleen M., Kimberly M. Murray, Heidi R. Wierman, et al. "Disparities in hospice care among older women dying with ovarian cancer." Gynecologic Oncology 125, no. 1 (2012): 14–18. http://dx.doi.org/10.1016/j.ygyno.2011.11.041.

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Teno, Joan M., Pedro L. Gozalo, Ian C. Lee, et al. "Does Hospice Improve Quality of Care for Persons Dying from Dementia?" Journal of the American Geriatrics Society 59, no. 8 (2011): 1531–36. http://dx.doi.org/10.1111/j.1532-5415.2011.03505.x.

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Schrader, Susan L., Margot L. Nelson, and LuAnn M. Eidsness. "Dying to Know: A Community Survey about Dying and End-of-Life Care." OMEGA - Journal of Death and Dying 60, no. 1 (2010): 33–50. http://dx.doi.org/10.2190/om.60.1.b.

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A community survey of Sioux Falls, South Dakota was conducted in 2004 to understand knowledge, attitudes, and preferences about end-of-life (EOL) care and to generate conversations about these topics. Questionnaires were sent to 5,000 randomly selected households, with a return of 1,042 (21%). Most respondents said preparation for EOL is very important, yet far fewer had taken steps to ensure their EOL wishes would be known or met. These disparities are examined, with recommendations for future research and public policy. Bivariate analyses revealed significant differences by age, sex, educati

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Hillier, Richard. "Hospice U.K. – 2000 AD." Journal of Palliative Care 1, no. 1 (1985): 9–15. http://dx.doi.org/10.1177/082585978500100103.

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This paper examines the possible shape of the hospice movement in the year 2000 AD. The number of patients dying from cancer will be similar to today, and cancer will remain the most common disease referred to hospices. After reviewing the key developments during the past fifteen years, the effects of national policy and financial constraint on future developments are examined. Most advances will stem from better organization and more realistically staffed hospices and hospice care teams. This will encourage greater flexibility and imaginative development. Advances will be made in rehabilitati

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Conant, Loring, and Arlene Lowney. "The Role of Hospice Philosophy of Care in Nonhospice Settings." Journal of Law, Medicine & Ethics 24, no. 4 (1996): 365–68. http://dx.doi.org/10.1111/j.1748-720x.1996.tb01880.x.

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Many advances in public health and medical technology have contributed to the improved wellbeing and overall longevity of Americans. Such benefits, however, have been offset by a change in the nature and prolongation of the dying process. Daniel Callahan offers a challenge to caregivers in his observation of violent death by technological attenuation, and he sets an agenda to identify a more appropriate approach to the needs of the dying.Over the past quarter century, hospice has increasingly been used as a resource for care at the end of life. However, according to 1995 estimates by the Natio

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ROKACH, AMI, RAAN MATALON, ARTEM SAFAROV, and MICHAELA BERCOVITCH. "The loneliness experience of the dying and of those who care for them." Palliative and Supportive Care 5, no. 2 (2007): 153–59. http://dx.doi.org/10.1017/s1478951507070228.

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Objective: The study compared the qualitative aspects of the loneliness experience of the dying, their caregivers, and the general population.Method: The patients were recruited in an oncological hospice in Israel, and, despite being on their deathbed, agreed to participate in the study. Thirty-seven cancer-stricken patients, 78 caregivers, and 128 participants from the general population volunteered to partake in the study. They answered, anonymously, a 30-item questionnaire and were asked to endorse those items that described their experience of loneliness.Results: Results suggested that the

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Thomas, Diane M., and Brenda Moretta Guerrero. "Terminal Restlessness in the Dying: Hospice Attitudes and Practice." OMEGA - Journal of Death and Dying 46, no. 1 (2003): 77–90. http://dx.doi.org/10.2190/n2yb-104b-hke0-4rv8.

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An exploratory study was conducted to ascertain hospice attitudes and practices related to terminal restlessness, a syndrome found in an estimated 1 to 2 percent of dying patients (Kaye, 1997). Three hundred two participating hospices responded to survey questions. Chi-square analyses were conducted to explore frequency differences between the independent variable, utilization of a terminal restlessness tool, and each of the dependent variables: location, census, utilization of a treatment protocol, and number of cases of terminal restlessness reported. Chi-square analysis was also conducted t

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GRUMANN, MAREILE M., and DAVID SPIEGEL. "Living in the face of death: Interviews with 12 terminally ill women on home hospice care." Palliative and Supportive Care 1, no. 1 (2003): 23–32. http://dx.doi.org/10.1017/s1478951503030116.

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Objective:To determine how home hospice patients deal with their impending death and whether there is a need for greater involvement of mental health professionals in the care of patients dying at home.Method:In a pilot study, 12 female home hospice patients with advanced cancer and a median survival time of 42 days were assessed using structured interviews and brief questionnaires. Topics of inquiry included facing death, fear of death, pain, fatigue, depression, and anxiety. Three key themes were extracted from the information reported by the women: (1) confronting the issue of death, (2) fe

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Mulville, Andrew K., Nancy N. Widick, and Neeharika Srivastava Makani. "Timely Referral to Hospice Care for Oncology Patients: A Retrospective Review." American Journal of Hospice and Palliative Medicine® 36, no. 6 (2018): 466–71. http://dx.doi.org/10.1177/1049909118820494.

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Hospice care is medical care provided to terminally ill patients with a life expectancy of 6 months or less. Hospice services include symptom control, pain management, palliative care, and other supportive services such as providing for home equipment or oxygen; however, it does not provide for life-prolonging therapies such as chemotherapy. Although oncologic benchmarks suggest patients should be enrolled in hospice 3 months prior to death, studies show that most hospice referrals are being made too late. These shorter stays in hospice result in increased cost of care especially at the end of

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Perry, Joshua E., and Robert C. Stone. "In the Business of Dying: Questioning the Commercialization of Hospice." Journal of Law, Medicine & Ethics 39, no. 2 (2011): 224–34. http://dx.doi.org/10.1111/j.1748-720x.2011.00591.x.

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In our society, some aspects of life are off-limits to commerce. We prohibit the selling of children and the buying of wives, juries, and kidneys. Tainted blood is an inevitable consequence of paying blood donors; even sophisticated laboratory tests cannot supplant the gift-giving relationship as a safeguard of the purity of blood. Like blood, health care is too precious, intimate, and corruptible to entrust to the market.The hospice movement in the United States is approximately 40 years old. During these past four decades, the concept of holistic, multidisciplinary care for patients (and the

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