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Relevant bibliographies by topics / Life care communities

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Academic literature on the topic 'Life care communities'

Author: Grafiati

Published: 4 June 2021

Last updated: 30 July 2024

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Journal articles on the topic "Life care communities"

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Winklevoss, Howard A. "Continuing Care Retirement Communities:." Journal of Housing For the Elderly 3, no. 1-2 (January 20, 1986): 57–64. http://dx.doi.org/10.1300/j081v03n01_06.

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Simson, Sharon. "Educational Affiliations of Life Care Communities." Gerontology & Geriatrics Education 7, no. 2 (November 13, 1987): 9–20. http://dx.doi.org/10.1300/j021v07n02_02.

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Schaffer, Talia. "Care Communities." South Atlantic Quarterly 118, no. 3 (July 1, 2019): 521–42. http://dx.doi.org/10.1215/00382876-7616139.

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The feminist philosophy of “ethics of care” has been important for disability studies inasmuch as it helps us see caregiving as widespread and admirable, rather than as a failure of autonomy. Care ethicists usually imagine care as either an institutional situation or an intimate dyad. However, in “Critical Care,” I add a third case in a midrange scale: the care community. The care community is a voluntary social formation, composed of friends, family, and neighbors, that coalesces around someone in need. It is my contention that by exploring the care community, we can make important aspects of care visible and rethink care relationships. What we see in care communities is a process, rather than a preset care structure, and that fluidity allows us to interrogate the conditions under which care can develop and the dynamics of extended care. I use Victorian fiction to showcase care communities, since novels of this period are marked by ubiquitous spontaneous small groups forming around people who are ill or hurt, but I also make a case that care communities continue to exist today, particularly among queer communities and people of color, performing a vital function in our ordinary lives. Finally, I argue that care communities can help us fundamentally rethink disability as a need like any other need rather than an inherent identity. Eva Feder Kittay has argued that care relations are the foundation of civic society; in that case, disability and the care community that arises in response to it are not marginalized cases but are what, profoundly, makes social life possible.

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Abel, Julian. "Compassionate communities and end-of-life care." Clinical Medicine 18, no. 1 (February 2018): 6–8. http://dx.doi.org/10.7861/clinmedicine.18-1-6.

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Anonymous. "Life Care Communities Offer an Array of Alternatives." Journal of Gerontological Nursing 16, no. 5 (May 1990): 44. http://dx.doi.org/10.3928/0098-9134-19900501-18.

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Benner, P. "Breathing new life into practice communities." American Journal of Critical Care 10, no. 3 (May 1, 2001): 188–90. http://dx.doi.org/10.4037/ajcc2001.10.3.188.

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Holmes, Sarah, and Kirsten Corazzini. "PROVIDING DEMENTIA CARE ACROSS LOW-RESOURCE COMMUNITIES." Innovation in Aging 7, Supplement_1 (December 1, 2023): 580. http://dx.doi.org/10.1093/geroni/igad104.1897.

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Abstract The growing number of persons living with dementia (PLWD) require ongoing care and supportive services, but dementia care access and quality are more limited in communities with fewer health resources and these limitations are exacerbated by current dementia care workforce shortages. Across low-resource communities—including poorer urban and rural settings—health resources tend to be limited and PLWD are predominantly socioeconomically disadvantaged and have few personal financial resources to contribute to care provision. Although there is growing evidence about the consequences of care inequities for PLWD, less is known about key issues and opportunities for improving dementia care in low-resource communities. This symposium features presentations that highlight unique social and economic challenges and opportunities for providing dementia care in low-resource communities. The first presenter reports results from a community-based, participatory research study in four long-term care settings in federally designated medically underserved areas (two rural, two urban) that highlights strategies used by long-term care providers to recruit and retain dementia care staff and describes their perspectives on quality dementia care. The second presenter shares findings from an innovative pilot program of case management services to address challenges of PLWD who are living alone in the community through collaboration with local paramedicine services. The third presenter provides an overview of the Person-Centered Options Counseling Certification program with a discussion on strategies for implementing person-centered dementia care initiatives in low-resource communities. This symposium reveals complexities in providing care for PLWD in diverse low-resource communities and generates directions for addressing dementia care inequities.

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Bishop, Christine E. "Features of Lower-Cost Continuing Care Retirement Communities." Journal of Housing For the Elderly 7, no. 1 (January 11, 1991): 55–78. http://dx.doi.org/10.1300/j081v07n01_05.

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Koltz, Daniel, and Rebecca Koltz. "SUCCESSFUL TRANSITIONS TO LONG-TERM CARE COMMUNITIES." Innovation in Aging 6, Supplement_1 (November 1, 2022): 701. http://dx.doi.org/10.1093/geroni/igac059.2566.

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Abstract Older adults who transition to independent and assisted-living communities perceive their transition experience differently. This research focused on understanding what factors were predominant for a successful transition from a long-time home to a dependent living community. A constructivist grounded theory method was used to explore the experiences of 18 older adults who had relocated within the past year. The participants of this study were aged 65-95 years and are equally represented by gender. Equal numbers of respondents transitioned into independent and assisted-living accommodations. Five factors related to a central concept of behavioral attitude were found to be key for a successful transition. When an older adult reported a successful transition, their behavioral attitude was positive about their new living environment. The five factors that contributed to their positive attitude are creating a new place, increased community integration, sense of safety and security, independence while dependent, and accepting a new life stage. The theory that emerged from the research emphasizes that when an older adult has increased awareness about the five factors associated with adapting to a dependent living community, this awareness will promote a positive behavioral attitude and increase the opportunity for success during and after a transition. Family members, LTC community administrators and social workers could all benefit from understanding these factors for a successful transition. Enhancing a positive experience for an older adult and improving their behavioral attitude toward the new transition.

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Nyman, John A. "Continuing Care Retirement Communities and Efficiency in the Financing of Long-Term Care." Journal of Aging & Social Policy 11, no. 2-3 (September 11, 2000): 89–98. http://dx.doi.org/10.1300/j031v11n02_10.

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Dissertations / Theses on the topic "Life care communities"

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Harper, Gillian Jane. "Stress and adaptation among elders in life-care communities /." The Ohio State University, 1998. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487949150070604.

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Forrester, Margaret Vivienne. "Communities of practice for end of life care workplace settings : a case study." Thesis, University of Wolverhampton, 2017. http://hdl.handle.net/2436/620644.

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Communities of practice have been used as a way of sharing practice and developing knowledge. The End of Life Care Education Consortium was formed by three hospice education departments in the West Midlands, United Kingdom, with the support of the Strategic Health Authority, to provide education programmes for healthcare professionals in palliative care. As the Consortium worked collaboratively, I wanted to explore whether there was potential for it to evolve into a community of practice and whether there was scope for communities of practice being utilised in end of life care settings to share and develop practice. The literature review revealed there were no articles written on communities of practice in palliative care settings and demonstrated that the workplace is an important area for learning as new staff learn from more experienced members of the workforce. Communities of practice can be used for experienced staff to learn from each other and share practice with others from outside the community. Case study research was used to explore whether the Consortium had the potential to evolve into a community of practice and if its members learnt from each other. Members of the Consortium were interviewed using semi-structured interviews, documents including my research diary, reports and notes from meetings were also used as data. Although the findings showed that the Consortium was not functioning as a community of practice it did have the key characteristics of one and there is potential for hospices to form communities of practice to enable staff to share practice and support each other. The findings demonstrated that for a community of practice to be successful it requires the support of management to allow staff to take part in community activities, seen as an important part of the organisation’s culture and there needs to be leadership to enable the community to develop. Journal clubs, clinical supervision and multidisciplinary meetings are already in place and these could be ways of healthcare professionals sharing knowledge and learning together. The Nursing and Midwifery Council (2015) state that all nurses and midwives are required to revalidate every three years to enable them to practise as registered nurses; one of my recommendations is that communities of practice could be used to keep staff updated. Inviting healthcare professionals from outside the hospice to take part in community activities would enable knowledge to flow in and out therefore enhancing patient care.

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Sallnow, Elizabeth Sian. "Collective social capital : a study of new public health and end-of-life care." Thesis, University of Edinburgh, 2018. http://hdl.handle.net/1842/33037.

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Background: An appreciation of the broader social determinants of health and wellbeing has led to the inclusion of new public health principles and practice within health and social care. End-of-life care has been no exception and there exists a favourable policy context, significant body of theoretical work, substantial practitioner interest and numerous practice examples. Despite this context, there has been little empirical exploration and the approaches remain poorly characterised. Aims and objectives: The aim of this study was to understand the impact a new public health approach to end-of-life care project can have when initiated through a hospice. Specifically this study sought to explore how a compassionate community project is experienced, what tensions exist, what processes support or impede the work, what specific challenges such a project developed from within this sector presents and what learning exists for the wider field. Methods: A mixed methods study employing multiple methods of data collection was performed. Data collection methods included: interviews; focus groups; participant observation; documentary analysis and service records. Ethics approval was obtained. Data were analysed according to modified grounded theory and using online software tool Dedoose. Results: Twenty-one interviews, two focus groups and 19 episodes of participant observation were conducted, 11 documents and service data on 180 Compassionate Neighbours and 173 Community Members were also included. Six key actions facilitated integration of new public health approaches with service provision approaches. Impacts from the work were wide ranging and included a reduction in loneliness, improvements in wellbeing and changes to hospice practice. Further to this, three underlying drivers emerged that underpinned the work as a whole. They were seen to translate the observed actions of the project into the impacts and included: altered power dynamics, expression of reciprocity in relationships and the development of agency. Discussion: The three drivers allow a deeper appreciation of the factors involved in the development of a compassionate community. The redressing of power dynamics within traditional provider-recipient relationships allowed for more equity, and created a space for reciprocal and mutual relations to emerge. Not only were these reciprocal relations observed between those at the end of life and those visiting them, but also between participants in the project and the hospice. In order to adequately capture these new perspectives offered through this study, a new term collective social capital is introduced. This moves beyond existing conceptualisations of social capital in end-of-life care to provide novel perspectives on the role of reciprocity and interdependency between the lay and professional worlds. Conclusion: This study provides a reflexive and critical account of the processes and impacts of compassionate communities work in practice. It situates reciprocal relationships as its foundation and forces an assessment of the nature of power and agency in all interactions. Through the presentation of the new concept of collective social capital, it presents a collaborative and interdependent path forward for new public health and end-of-life care in the future.

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Leung, Chun-sing Anthony. "Old People's community : care home /." Hong Kong : University of Hong Kong, 2001. http://sunzi.lib.hku.hk/hkuto/record.jsp?B25950368.

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Harvey, Nicholas Keller James M. "Estimation and tracking of elder activity levels for health event prediction." Diss., Columbia, Mo. : University of Missouri--Columbia, 2009. http://hdl.handle.net/10355/6657.

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Title from PDF of title page (University of Missouri--Columbia, viewed on March 10, 2010). The entire thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file; a non-technical public abstract appears in the public.pdf file. Thesis advisor: Dr. James Keller. Includes bibliographical references.

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Liu, Qiaoming. "Social support for the frail elderly at two kinds of retirement communities." PDXScholar, 1990. https://pdxscholar.library.pdx.edu/open_access_etds/4098.

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As few studies focus explicitly on social support for residents by residents in retirement communities which have staff, this thesis is designed to explore the nature of informal social support among residents at planned, non-subsidized retirement care facilities: the types, the amount, the impact, the limitation and the appropriateness of such support. Our focus is to explore whether different organization of a retirement community affects social support among residents, so we compare two retirement care facilities. One provides single-level care for its residents and the other provides multiple-level care. We chose our two sites from retirement care facilities in the City of Portland, Oregon. We generated our data by interviewing residents who live independently in the two retirement communities.

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Mason, Jay Roger. "An elder care community." Thesis, Virginia Polytechnic Institute and State University, 1992. http://hdl.handle.net/10919/52122.

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The following exploration represents a search for clarity and meaning in the formative work of a young architectural designer. Solving the design problem to create a viable community of elders integrated into the chosen site was merely the ostensible goal. The deeper task was to become more literate with the materials and tools of the architect's trade and develop a confidence with the language and grammar of architecture. I wanted to develop an understanding of not just a single building type or a particular site condition, but to grow in more fundamental terms toward learning a way of building. This desire may be inherent in every good design, but I wanted to bring the idea of it to the surface and focus on the principles behind the architectural decisions. I believe the confidence and vitality which the architect combines with the philosophical, technical and pragmatic constraints of a project to make great architecture are products of a thorough understanding of one's personal beliefs. My own attempt to organize thoughts and attitudes into a body of reference toward an understanding of that belief structure follows on the remaining pages. In the process as well as in the final result I have moved closer to a literacy in architecture, if only by gaining insight into the motivations which have guided my hand.
Master of Architecture

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Scott, Jacqueline L. "Role strain and employed mothers in rural communities /." free to MU campus, to others for purchase, 1998. http://wwwlib.umi.com/cr/mo/fullcit?p9924954.

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Fan, HaiYan (LingLing), and University of Lethbridge Faculty of Arts and Science. "Medical encounters in "closed religious communities" : palliative care for Low German-Speaking Mennonite people." Thesis, Lethbridge, Alta. : University of Lethbridge, Dept. of Anthropology and Health Sciences, 2011, 2011. http://hdl.handle.net/10133/3079.

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This multi-sited ethnography focuses on beliefs and practices associated with death, dying, and palliative care among the Low German-Speaking (LGS) Mennonites. The qualitative data, collected through participant-observation fieldwork and interviews conducted in three LGS Mennonite communities in Mexico and Canada, show a gap between official definitions of palliative care and its practice in real life. The LGS Mennonites’ care for their dying members, in reality, is integrated into their community lives that emphasize or reinforce discipleship by promoting the practices of mutual aid, social networks, and brotherhood/sisterhood among community members. This study also offers ethnographic insights into some difficulties that healthcare providers face while delivering the “holistic” palliative care services to their patients in general, and to the LGS Mennonites in particular. Finally, it provides some suggestions that may aid healthcare providers in developing culturally safe and competent health care services for the LGS Mennonite people living in Canada.
xi, 231 leaves ; 29 cm

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Hall, Kenneth B. "Fitness trails for continuing care retirement community residents: motivational cues to participation." Thesis, Virginia Polytechnic Institute and State University, 1989. http://hdl.handle.net/10919/51912.

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The motivational elements necessary to encourage use of fitness trails by residents of Continuing Care Retirement Communities (CCRCs) was investigated. Previous research suggested that both the walking and exercise parts of these fitness trails are being used by only a small percentage of' the residents. A checklist was used to identify the number of motivational elements that were present in the design of the fitness trails at three CCRCs. A staff questionnaire was used to determine management involvement and fitness program specifics. This research investigates the extent to which Jane Jacobs’ (1961) work with sidewalks in cities can be applied to the fitness trail within the CCRC. The research questions generated for this study were: To what extent is the success of the fitness trail dependent on the intricate mutual support given it by its surrounding elements? Does a single activity or amenity contribute to the success of a fitness trail or is a variety of choices necessary for potential users to experience? Is this aspect of choice essential to participant satisfaction? The analysis identified several elements that may contribute to the use of a fitness trail by older adults. The use of the concept of tangible rewards by one of the CCRCs contributed to a significantly greater percentage of resident use.
Master of Landscape Architecture

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Books on the topic "Life care communities"

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Massachusetts. Executive Office of Elder Affairs. Continuing care retirement communities. Boston, Mass: Executive Office of Elder Affairs, 2000.

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Chapman, Elwood N. Life care: The inside story. Menlo Park, Calif: Crisp Publications, 1994.

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Rector, Rebecca. Continuing care retirement communities and the life care industry: An annotated bibliography. Monticello, Ill., USA: Vance Bibliographies, 1988.

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Ford, Wall and, ed. The Blue book of continuing care/life care retirement communities. Princeton, N.J: Wall and Ford, 1991.

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Chellis, Robert D., and Paul John Grayson. Life care: A long-term solution? Lexington, Mass: Lexington Books, 1990.

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Foster, Levin Wilson. Our path to life care at Samarkand. Santa Barbara: Fithian Press, 1987.

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Health, New York (State) Legislature Assembly Committee on. Continuing care retirement communities: [hearing]. Albany, N.Y: Associated Reporters International, Inc., 2005.

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Feinstein, Jonathan S. An economic analysis of life care. Cambridge, MA: National Bureau of Economic Research, 1992.

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Tetlow, Robin. Continuing care retirement communities: A guide to planning. York: Joseph Rowntree Foundation in association with the Planning Officers Society, 2006.

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Hunt, Bernice Kohn. Continuing care retirement communities: An insider's guide. [Philadelphia, Pa.]: Xlibris, 2003.

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Book chapters on the topic "Life care communities"

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Fagan, Abigail A., and J. David Hawkins. "Preventing Substance Use, Delinquency, Violence, and Other Problem Behaviors over the Life-Course Using the Communities That Care System." In Handbook of Life-Course Criminology, 277–96. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5113-6_16.

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Ahmed, Anya, and Lorna Chesterton. "Reflecting on the challenges and inequalities facing Black and minoritized communities in accessing substance use services, palliative and end-of-life care." In Substance Use, End-of-Life Care and Multiple Deprivation, 152–66. London: Routledge, 2022. http://dx.doi.org/10.4324/9781003187882-14.

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Oberauner, Lisa, Alexander Mahnert, Anastasia Bragina, and Gabriele Berg. "Complex Indoor Communities: Bacterial Life Under Extreme Conditions in Clean Rooms and Intensive Care Units." In Encyclopedia of Metagenomics, 102–8. Boston, MA: Springer US, 2015. http://dx.doi.org/10.1007/978-1-4899-7475-4_322.

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Ingram, David. "9. Creating and Sustaining the Care Information Utility." In Health Care in the Information Society, 395–526. Cambridge, UK: Open Book Publishers, 2023. http://dx.doi.org/10.11647/obp.0384.05.

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We come now to the most challenging questions concerning the care information utility: how, where and by whom will it be created and sustained, and under what governance arrangements? This chapter looks to the wider and future scene, to consider how the work described in Chapters Eight and Eight and a Half can be extended and sustained, in the context of greater opportunity and need for individual self-management of care and supportive services that move from a fragmenting culture of ‘What is the matter with you?’ to an integrative culture of ‘What matters to you?’ We must embrace an iterative and incremental approach here, where we learn by doing. The chapter is thus not prescriptive; it rather reflects on the nature of the challenges faced and what we should have in mind in framing our policy and practice in tackling them. Central to this will be the approach and method adopted for implementation of a coherent and trusted information utility that every citizen can feel part of and contribute to, which helps and supports them along the way as they seek health and wellbeing in their own lives, and the lives of those they care for. The chapter highlights the importance of the Creative Commons and public domain governance that bridges with and preserves the non-exclusive relationship with private enterprise. The story of common land and its appropriation to private interests through the eighteenth-century Enclosure Acts in the UK, is visited as a parable of common ground in the Information Age. It discusses the harm that restriction of intellectual property does in blocking innovation that tackles intractable ‘wicked problems’, which require connection and collaboration on common ground, within diversely connected communities of practice. The chapter then focuses on the work of implementing and sustaining the care information utility and the environments, teams and communities whereby it is enabled and supported. It looks at the different qualities of leadership that such pioneering endeavours require and exemplify, and playfully compares them with the principles outlined in The Art of War, the classic text of Sun Tzu, which is much used in elite management courses on leadership. With its focus on people and environments, this part of the chapter draws a great deal on people I have known and worked with, and environments we worked in and created together, and is thus especially personal and autobiographical. Trust in and recognition of individual and communal roles and responsibilities must unite citizens with the multiple professions and communities of health care practice, around shared goals for the care information utility. Governance arrangements will thus constitute a third major component of implementation of a utility that is coherent, effective, efficient, equitable, stable and life-enhancing, in support of health care services for the Information Society of tomorrow. These threefold challenges of implementation will require strong alliances—the theme I reflect on, in parenthesis, at the end of the chapter.

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Steger, Michael F., Maeve B. O’Donnell, and Jessica L. Morse. "Helping Students Find Their Way to Meaning: Meaning and Purpose in Education." In The Palgrave Handbook of Positive Education, 551–79. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-64537-3_22.

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AbstractMeaning in life is a cornerstone of wellbeing and flourishing. Emerging generations express intense interest, and even anxiety, about living and working in a meaningful way, yet contemporary society seems ill-equipped to provide them with constructive pathways to meaning. In this chapter, we place meaning in life theory and research in the context of positive education, and suggest a number of simple activities and tools, as well as a broader perspective on meaning and purpose, that both can be integrated into positive education programs and also may be used as the very basis for integrating such programs. Meaning in life captures our universal desire for life to be significant, coherent, and purposeful. By helping students begin and continue to take steps on pathways to meaning, positive educational institutions may profoundly assist the flourishing of students in their care and the communities in which those institutions and students thrive.

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Kambanaros, Maria. "Chapter 10. Raising awareness of stroke, stroke survivor-perspectives, and stroke–carer research." In Studies in Bilingualism, 254–67. Amsterdam: John Benjamins Publishing Company, 2024. http://dx.doi.org/10.1075/sibil.66.10kam.

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The aim of this chapter is to propose a research agenda that will promote awareness of stroke warning signs and risk for stroke in culturally and linguistically diverse (CALD) communities. The targeted community in this case, is the Greek immigrant community in Australia. The research agenda also advocates a better understanding of CALD stroke survivors and carers needs to enable capacity-building to encourage wellbeing by supporting unmet needs. This will have a positive impact on health, care and psychosocial outcomes for people living with stroke deficits from CALD backgrounds and their carers and families who support them in everyday life.

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de Oliveira Ramos, Paulo Ricardo, and Marcelo Calegare. "Assembly of the Knowledge Landscape: A Social Technology for Health Care and the Enhancement of the Way of Life in Amazonian Riverine Communities." In Psychology and Rural Contexts, 293–309. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-82996-4_19.

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Poto, Margherita Paola, and Giulia Parola. "The Foundations: ECO_CARE." In Building Bridges for Effective Environmental Participation: The Path of Law Co-Creation, 1–10. Cham: Springer Nature Switzerland, 2024. http://dx.doi.org/10.1007/978-3-031-52791-3_1.

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AbstractThis chapter outlines the primary objective of the ECO_CARE project: establishing a cooperative governance framework that legally recognizes water and communities as living entities with inherent rights. The chapter underscores the crucial role of water in sustaining life and argues for an ecologically integrated approach to water sustainability and governance, critically analysing the inadequacies of top-down approaches in meeting global environmental goals. Water-related challenges such as scarcity, contamination, and unequal distribution are identified, leading to environmental stress that adversely impacts community and biodiversity rights. The project proposes a water-centric legal response grounded in environmental law, advocating for an integral understanding of water value, interconnectedness, and the necessity of protective actions. The methodological approach of the project relies on legal research and ecological ethics, emphasizing empathy, compassion, and care to foster thoughtful relations within and between ecological communities. The chapter details the project's initial step in remodelling water governance by expanding participatory environmental rights from procedural to substantive positions. This transformative shift aims to amplify the voices of nature defenders and acknowledge nature’s intrinsic value, challenging Euro and Western-centric perspectives.

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"Intentional Communities Care." In Encyclopedia of Quality of Life and Well-Being Research, 3295. Dordrecht: Springer Netherlands, 2014. http://dx.doi.org/10.1007/978-94-007-0753-5_102048.

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Barnes, Marian. "Friends, neighbours and communities." In Care in everyday life, 85–104. Policy Press, 2012. http://dx.doi.org/10.1332/policypress/9781847428233.003.0005.

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Conference papers on the topic "Life care communities"

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McEvoy, Peter. "P-45 Leeds compassionate communities – improving end of life care for all." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.72.

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Siebert, Nicole, Hannes Wenner, Tim Kuball, Florian Kiel, Matthias Beggiato, Stefan Oer, and Georg Jahn. "Digital Support Requirements for the Care Community QuartierPflege." In 14th International Conference on Applied Human Factors and Ergonomics (AHFE 2023). AHFE International, 2023. http://dx.doi.org/10.54941/ahfe1003665.

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The integration of informal caregiving into everyday life can lead to burdens that negatively affect health and psychological well-being of family caregivers. Care communities consisting of a dynamic network of informal and professional actors can offer a solution to reduce family caregiver burden. Close cooperation in such care communities gives rise to the immediate need for efficient coordination tools including digital support. Existing Apps for family caregivers do not always provide sufficient support to improve health and quality of life. Currently, there is no App holistically supporting daily work in care communities consisting of informal and professional actors. To fill this gap, specific App requirements for coordinating daily work in such care communities were identified in a user-centric approach. Therefore, structured personal interviews were conducted with N = 16 potential actors of care communities. Audio-recorded interviews were literally transcribed and analyzed in MaxQDA by structured qualitative content analysis. App requirements were divided into four major categories: operational planning (e.g., submission of care needs, handover books, calendar, synchronization of family caregivers’ and care recipients’ profiles), information (e.g., an information section per care recipient), communication (e.g., internal chat, speech-to-text-function) and human resources (e.g., administration of staff, working time and payment). In addition, privacy aspects (e.g., providing most important physical limitations of care recipients, but no medical diagnosis), usability and user experience (e.g., intuitive usage, logical structure, visually appealing design) as well as backend App requirements (e.g., implementation of different horizontal and vertical App permissions) were addressed. The target group of future App users could be wide with different roles in coordinating the daily work in care communities, which results in complex software requirements. Usability and user experience of a future App need to be evaluated with the target group. Furthermore, it should be evaluated whether digital support of care communities of informal and professional caregivers offers a holistic approach and a sustainable improvement of the quality of life and health of family caregivers.

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Shen, Xiaolin. "A systemic perspective on designing for well-being in dementia care: learning from the case of Dementia Friendly Communities." In IASDR 2023: Life-Changing Design. Design Research Society, 2023. http://dx.doi.org/10.21606/iasdr.2023.774.

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"The improvement of the quality of life for elderly and relatives through two tele-assistance services: the Tele-CARE approach." In 1st International Workshop on Tele-Care and Collaborative Virtual Communities in Elderly. SciTePress - Science and and Technology Publications, 2004. http://dx.doi.org/10.5220/0002678500730085.

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Hudson, Sharon. "P-15 Bosnian communities: understanding and supporting the refugee experience of end of life care." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.39.

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Yip, Winnie, Alison Llewellyn, Anna Robertson, and Candida McCabe. "46 Understanding local communities’ needs for palliative and end of life care and bereavement support." In The Marie Curie Research Conference Improving End of Life for All Sunday 30 January – Friday 4 February 2022. British Medical Journal Publishing Group, 2022. http://dx.doi.org/10.1136/spcare-2021-mcrc.46.

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Kirsi, Lappalainen. "90 Supporting preparedness for work life among the unemployed – focus on health care and network communities." In 32nd Triennial Congress of the International Commission on Occupational Health (ICOH), Dublin, Ireland, 29th April to 4th May 2018. BMJ Publishing Group Ltd, 2018. http://dx.doi.org/10.1136/oemed-2018-icohabstracts.1020.

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Llewellyn, Alison, Anna Robertson, Wing Yee Yip, Claire Prendergast, and Candy McCabe. "P-183 Understanding local communities’ needs for palliative and end of life care and bereavement support." In Finding a Way Forward, Hospice UK National Conference, 22–24 November 2022, Glasgow. British Medical Journal Publishing Group, 2022. http://dx.doi.org/10.1136/spcare-2022-hunc.199.

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Srinivasan, Aparajith, Nithya Natarajan, Raj Vignesh Karunakaran, Ramya Elangovan, Abirami Shankar, Padmanaaban M. Sabharish, B. S. Sreeja, and S. Radha. "Elder Care System using IoT and Machine Learning in AWS Cloud." In 2020 IEEE 17th International Conference on Smart Communities: Improving Quality of Life Using ICT, IoT and AI (HONET). IEEE, 2020. http://dx.doi.org/10.1109/honet50430.2020.9322834.

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Andjelic, Stefan, Callum Doyle, and Gahangir Hossain. "Cybersecurity Risk with Wearable Technology in Sports: Why Should We Care?" In 2022 IEEE 19th International Conference on Smart Communities: Improving Quality of Life Using ICT, IoT and AI (HONET). IEEE, 2022. http://dx.doi.org/10.1109/honet56683.2022.10019146.

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Reports on the topic "Life care communities"

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Hall, Sarah, Mark Vincent Aranas, and Amber Parkes. Making Care Count: An Overview of the Women’s Economic Empowerment and Care Initiative. Oxfam, November 2020. http://dx.doi.org/10.21201/2020.6881.

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Across the globe, unpaid care and domestic work (UCDW) sustains communities and economies, provides essential care for children, sick and elderly people and those living with disabilities, and keeps households clean and families fed. Without unpaid care, the global economy as we know it would grind to a halt. Yet this work falls disproportionately on women and girls, limiting their opportunities to participate in decent paid employment, education, leisure and political life. Heavy and unequal UCDW traps women and girls in cycles of poverty and stops them from being part of solutions. To help address this, Oxfam, together with a number of partners, has been working in over 25 countries to deliver the Women’s Economic Empowerment and Care (WE-Care) programme since 2013. WE-Care aims to reignite progress on gender equality by addressing heavy and unequal UCDW. By recognizing, reducing and redistributing UCDW, WE-Care is promoting a just and inclusive society where women and girls have more choice at every stage of their lives, more opportunities to take part in economic, social and political activities, and where carers’ voices are heard in decision making about policies and budgets at all levels. This overview document aims to highlight the approaches taken and lessons learned on unpaid care that Oxfam has implemented in collaboration with partners in sub-Saharan Africa and Asia.

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Svynarenko, Radion, Theresa L. Profant, and Lisa C. Lindley. Effectiveness of concurrent care to improve pediatric and family outcomes at the end of life: An analytic codebook. Pediatric End-of-Life (PedEOL) Care Research Group, College of Nursing, University of Tennessee, Knoxville, 2022. http://dx.doi.org/10.7290/m5fbbq.

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Implementation of the section 2302 of the 2010 Patient Protection and Affordable Care Act (ACA) enabled children enrolled in Medicaid/Children's Health Insurance Program with a prognosis of 6 months to live to use hospice care while continuing treatment for their terminal illness. Although concurrent hospice care became available more than a decade ago, little is known about the socio-demographic and health characteristics of children who received concurrent care; health care services they received while enrolled in concurrent care, their continuity, management, intensity, fragmentation; and the costs of care. The purpose of this study was to answer these questions using national data from the Centers of Medicare and Medicaid Services (CMS), which covered the first three years of ACA – from January 1, 2011, to December 31, 2013.The database included records of 18,152 children younger than the age of 20, who were enrolled in Medicaid hospice care in the sampling time frame. Children in the database also had a total number of 42,764 hospice episodes. Observations were excluded if the date of birth or death was missing or participants were older than 21 years. To create this database CMS data were merged with three other complementary databases: the National Death Index (NDI) that provided information on death certificates of children; the U.S. Census Bureau American Community Survey that provided information on characteristics of communities where children resided; CMS Hospice Provider of Services files and CMS Hospice Utilization and Payment files were used for data on hospice providers, and with a database of rural areas created by the Health Resources and Services Administration (HRSA). In total, 130 variables were created, measuring demographics and health characteristics of children, characteristics of health providers, community characteristics, clinical characteristics, costs of care, and other variables.

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Drapak, Mykhailo. ECMI Minorities Blog. Indigenous Peoples and National Minorities in the Temporarily Occupied Territories of Ukraine. European Centre for Minority Issues, May 2022. http://dx.doi.org/10.53779/mnup4223.

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On February 24, 2022, Russia launched an offensive against Ukraine simultaneously in the north, east and south of the country. Thus, Russian troops expanded their temporary occupation of Ukrainian territories, which began in 2014. Millions of Ukrainian citizens, including indigenous peoples and national minorities, found themselves in the temporarily occupied territories. Residents of those regions are suffering a lack of food, utilities and medical care, and live under the pressure of the Russian troops, namely are deprived of the right to express their opposition to the invasion by detaining, intimidating, torturing and executing. Under such conditions, the usual policy of diversity management is reduced to the struggle for the life of every citizen. This blog piece is dedicated to the current situation in the temporarily occupied regions of Ukraine inhabited by the communities of indigenous peoples and national minorities.

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Jung, Carina, Matthew Carr, Denise Lindsay, Eric Fleischman, and Chandler Roesch. Microbiome perturbations during domestication of the green June beetle (Cotinis nitida). Engineer Research and Development Center (U.S.), February 2022. http://dx.doi.org/10.21079/11681/43342.

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Animal-associated microbiomes are critical to the well-being and proper functioning of the animal host, but only limited studies have examined in-sect microbiomes across different developmental stages. These studies revealed large shifts in microbiome communities, often because of significant shifts in diet during insects’ life cycle. Establishing insect colonies as model laboratory organisms and understanding how to properly feed and care for animals with complex and dynamic life cycles requires improved data. This study examined laboratory raised green June beetles (Cotinis nitida) captured from the field upon emergence from pupae. Starting with wild-caught adults, two generations of beetles were reared in the laboratory, ending with an entirely laboratory raised generation of larvae. The study compared the microbiomes of each generation and the microbiomes of larvae to adults. This study suggests that a diet of commercial, washed fruit for adults and commercial, packaged, organic alfalfa meal for larvae resulted in depauperate gut microbiome communities. Fermentative yeasts were completely absent in the laboratory-raised adults, and major bacterial population shifts occurred from one generation to the next, coupled with high morbidity and mortality in the laboratory-raised generation. Providing laboratory-raised beetles fresh-collected fruit and the larvae field-harvested detritus may therefore vastly improve their health and survival.

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Stall, Nathan M., Kevin A. Brown, Antonina Maltsev, Aaron Jones, Andrew P. Costa, Vanessa Allen, Adalsteinn D. Brown, et al. COVID-19 and Ontario’s Long-Term Care Homes. Ontario COVID-19 Science Advisory Table, January 2021. http://dx.doi.org/10.47326/ocsat.2021.02.07.1.0.

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Key Message Ontario long-term care (LTC) home residents have experienced disproportionately high morbidity and mortality, both from COVID-19 and from the conditions associated with the COVID-19 pandemic. There are several measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes, if implemented. First, temporary staffing could be minimized by improving staff working conditions. Second, homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Third, the risk of SARS-CoV-2 infection in staff could be minimized by approaches that reduce the risk of transmission in communities with a high burden of COVID-19. Summary Background The Province of Ontario has 626 licensed LTC homes and 77,257 long-stay beds; 58% of homes are privately owned, 24% are non-profit/charitable, 16% are municipal. LTC homes were strongly affected during Ontario’s first and second waves of the COVID-19 pandemic. Questions What do we know about the first and second waves of COVID-19 in Ontario LTC homes? Which risk factors are associated with COVID-19 outbreaks in Ontario LTC homes and the extent and death rates associated with outbreaks? What has been the impact of the COVID-19 pandemic on the general health and wellbeing of LTC residents? How has the existing Ontario evidence on COVID-19 in LTC settings been used to support public health interventions and policy changes in these settings? What are the further measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes? Findings As of January 14, 2021, a total of 3,211 Ontario LTC home residents have died of COVID-19, totaling 60.7% of all 5,289 COVID-19 deaths in Ontario to date. There have now been more cumulative LTC home outbreaks during the second wave as compared with the first wave. The infection and death rates among LTC residents have been lower during the second wave, as compared with the first wave, and a greater number of LTC outbreaks have involved only staff infections. The growth rate of SARS-CoV-2 infections among LTC residents was slower during the first two months of the second wave in September and October 2020, as compared with the first wave. However, the growth rate after the two-month mark is comparatively faster during the second wave. The majority of second wave infections and deaths in LTC homes have occurred between December 1, 2020, and January 14, 2021 (most recent date of data extraction prior to publication). This highlights the recent intensification of the COVID-19 pandemic in LTC homes that has mirrored the recent increase in community transmission of SARS-CoV-2 across Ontario. Evidence from Ontario demonstrates that the risk factors for SARS-CoV-2 outbreaks and subsequent deaths in LTC are distinct from the risk factors for outbreaks and deaths in the community (Figure 1). The most important risk factors for whether a LTC home will experience an outbreak is the daily incidence of SARS-CoV-2 infections in the communities surrounding the home and the occurrence of staff infections. The most important risk factors for the magnitude of an outbreak and the number of resulting resident deaths are older design, chain ownership, and crowding. Figure 1. Anatomy of Outbreaks and Spread of COVID-19 in LTC Homes and Among Residents Figure from Peter Hamilton, personal communication. Many Ontario LTC home residents have experienced severe and potentially irreversible physical, cognitive, psychological, and functional declines as a result of precautionary public health interventions imposed on homes, such as limiting access to general visitors and essential caregivers, resident absences, and group activities. There has also been an increase in the prescribing of psychoactive drugs to Ontario LTC residents. The accumulating evidence on COVID-19 in Ontario’s LTC homes has been leveraged in several ways to support public health interventions and policy during the pandemic. Ontario evidence showed that SARS-CoV-2 infections among LTC staff was associated with subsequent COVID-19 deaths among LTC residents, which motivated a public order to restrict LTC staff from working in more than one LTC home in the first wave. Emerging Ontario evidence on risk factors for LTC home outbreaks and deaths has been incorporated into provincial pandemic surveillance tools. Public health directives now attempt to limit crowding in LTC homes by restricting occupancy to two residents per room. The LTC visitor policy was also revised to designate a maximum of two essential caregivers who can visit residents without time limits, including when a home is experiencing an outbreak. Several further measures could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes. First, temporary staffing could be minimized by improving staff working conditions. Second, the risk of SARS-CoV-2 infection in staff could be minimized by measures that reduce the risk of transmission in communities with a high burden of COVID-19. Third, LTC homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Other important issues include improved prevention and detection of SARS-CoV-2 infection in LTC staff, enhanced infection prevention and control (IPAC) capacity within the LTC homes, a more balanced and nuanced approach to public health measures and IPAC strategies in LTC homes, strategies to promote vaccine acceptance amongst residents and staff, and further improving data collection on LTC homes, residents, staff, visitors and essential caregivers for the duration of the COVID-19 pandemic. Interpretation Comparisons of the first and second waves of the COVID-19 pandemic in the LTC setting reveal improvement in some but not all epidemiological indicators. Despite this, the second wave is now intensifying within LTC homes and without action we will likely experience a substantial additional loss of life before the widespread administration and time-dependent maximal effectiveness of COVID-19 vaccines. The predictors of outbreaks, the spread of infection, and deaths in Ontario’s LTC homes are well documented and have remained unchanged between the first and the second wave. Some of the evidence on COVID-19 in Ontario’s LTC homes has been effectively leveraged to support public health interventions and policies. Several further measures, if implemented, have the potential to prevent additional LTC home COVID-19 outbreaks and deaths.

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Rast, Jessica E., Kaitlin H. Koffer Miller, Julianna Rava, Jonas C. Ventimiglia, Sha Tao, Jennifer Bromberg, Jennifer L. Ames, Lisa A. Croen, Alice Kuo, and Lindsay L. Shea. National Autism Indicators Report: Health and the COVID-19 Pandemic: July 2023. A.J. Drexel Autism Institute, 2023. http://dx.doi.org/10.17918/covidnair2023.

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The COVID-19 pandemic changed how autistic people accessed services and engaged in their communities, ultimately impacting their quality of life. Access to appropriate services and accommodations help autistic individuals in maintaining employment, pursuing education, caring for their health, and establishing independence. Changes in access to services result in long-term consequences, which can be dire for autistic people. In an effort to improve policies and programs for autistic individuals, documentation of disruptions in accessing services during the COVID-19 pandemic informs better evidence-based practices for future public health emergencies. This report examines the impact of the COVID-19 pandemic on health and healthcare among autistic children and adults. To build a comprehensive picture, we included various data sources, including health care claims and administrative records. We explored the availability of services for autistic children based on caregiver report from the National Survey of Children’s Health (NSCH). To understand hospitalization covered by both private and public health insurance, we used national emergency hospitalization records (via the National Emergency Department Sample [NEDS]) and hospital admissions data (via the National Inpatient Sample [NIS]). Finally, we used patient medical records from Kaiser Permanente Northern California (KPNC) to look at service utilization among adult autistic patients from Northern California over the same period. These data sources cover various populations, some of which provide nationally representative pictures of autistic children and adults, others cover specific or regional populations but cover diverse populations in terms of income and race and ethnicity.

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Takyiakwaa, Dorothy, Prince S. K. Tetteh, and Kofi Takyi Asante. Explaining the Weakness of Associational Life in Oil Palm Growing Communities in Southwestern Ghana. Institute of Development Studies (IDS), October 2021. http://dx.doi.org/10.19088/apra.2021.028.

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As the second most important industrial crop in Ghana, oil palm holds the potential of improving farmers’ livelihoods and alleviating rural poverty. For smallholder farmers, collective action through farmer-based organisations (FBOs) could provide a pathway to inclusive participation in agricultural commercialisation. There is ample evidence in the literature that collective action can help smallholders gain access to credit, improved inputs, or even networks of social support. Thus, collective action is widely recognised as a viable pathway out of poverty for the agrarian poor. However, our findings show that FBOs were either weak or non-existent. Indeed, we find that economic relations between farmers tend to be more individualised than one would expect to find in rural communities. This paper presents these findings, and explores why this is the case.

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Aslam, Saba, and Megan Schmidt-Sane. Evidence Review: COVID-19 Recovery in South Asian Urban Informal Settlements. SSHAP, June 2022. http://dx.doi.org/10.19088/sshap.2022.012.

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The global pandemic has brought renewed attention toward the everyday challenges in informal settlements. COVID-19 reminds us that southern urban life is rooted in ‘collective’ experiences where toilets and kitchens are shared by multiple families; where the categories of work and home, private and public space overlap; and where the majority live in vulnerable conditions. Despite these challenges, some of the most innovative and collective responses to COVID-19 have emerged from these areas. While informal settlements did face a host of risks and vulnerabilities during the pandemic, local responses have highlighted the resilience of informal settlement communities. However, few informal settlements are actually ‘resilient’ and any local responses must be robustly supported by system-wide change including support from local and national governments, improvements to built infrastructure, and improved access to health care services, among other priorities. The category of ‘informal settlements’ also captures a wide range of settlement types, from a legal slum to an informal settlement with no legal status, with many other types in between. This underscores the need to address fundamental issues that ‘perpetuate conditions of inequity, exclusion and vulnerability’ while also recognising the needs and contexts of different kinds of informal settlements. Whether COVID-19 helps governments recognise conditions of insecurity and vulnerability to address safe and secure housing and infrastructures remains to be seen. This is an update to the previous SSHAP brief on ‘COVID-19 in Informal Urban Settlements’ (March 2020). This evidence review highlights local responses, grassroots efforts, and challenges around COVID-19 recovery within urban informal settlements in South Asia. It focuses on specific examples from Karachi, Pakistan and Mumbai, India to inform policy responses for COVID-19 recovery and future epidemic preparedness and response. We show how local level responses are shaped in these cities where national and international responses have not reached communities at municipal and sub-municipal levels. This brief was written by Saba Aslam (IDS Alumni) and Megan Schmidt-Sane (IDS), with reviews from Professor Amita Bhide (Tata Institute of Social Sciences, India), Dr Asad Sayeed (Collective for Social Science Research, Pakistan), Annie Wilkinson (IDS), and contributions from Swati Mishra (LSHTM), Prerana Somani (LSHTM), Saleemullah Odho (Deputy Commissioner, Korangi district Karachi), Dr Noman Ahmed (NED University, Karachi), Tahera Hasan (Imkaan Foundation, Karachi), Atif Khan (District Health Officer, Korangi district Karachi), Dr Harris (District Focal person, Korangi), Aneeta Pasha (Interactive for Research and Development, Karachi), Yasmeen Shah (Pakistan Fisherfolk Forum), Ghulam Mustafa (HANDS Pakistan), and Dr Shehrin Shaila Mahmood (icddr,b). This brief is the responsibility of SSHAP.

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Toney, Autumn, and Emelia Probasco. Who Cares About Trust? Center for Security and Emerging Technology, July 2023. http://dx.doi.org/10.51593/20230014b.

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Artificial intelligence-enabled systems are transforming society and driving an intense focus on what policy and technical communities can do to ensure that those systems are trustworthy and used responsibly. This analysis draws on prior work about the use of trustworthy AI terms to identify 18 clusters of research papers that contribute to the development of trustworthy AI. In identifying these clusters, the analysis also reveals that some concepts, like "explainability," are forming distinct research areas, whereas other concepts, like "reliability," appear to be accepted as metrics and broadly applied.

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Moncrieffe, Joy M. Tracer Study of Beneficiaries of Youth-targeted Social Prevention Programs: The Case of RISE in Jamaica. Inter-American Development Bank, June 2013. http://dx.doi.org/10.18235/0006970.

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The Inter-American Development Bank's (IDB) Office of Evaluation and Oversight Office (OVE) is conducting comparative assessments of citizen security in Central America and the Caribbean to better understand what has worked more and less well during project implementation, as well as the reasons for variations in outcomes. Jamaica's Citizen Security and Justice Program (CSJP) is included in the comparative study. In order to improve understanding of CSJP's youth targeted interventions, the OVE commissioned a tracer study of participants in one of these programmes; that is, one administered by Rise Life Management. The objective of the tracer study is to assess to what extent the social services provided by RISE to the youth in volatile communities in Kingston have made a difference in the lives of beneficiaries in terms of employment and satisfaction with life. The outcome will be compared with a control group of youth from the same communities who enrolled in the program but dropped out shortly after joining. The study will differentiate outcomes in terms of duration of participation in the activities so as to evaluate if permanence in the program makes a significant difference in outcome.

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