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1

Linda, Anderson. Long-term cancer survivors can have healthy children. [Bethesda, Md.]: National Cancer Institute, Office of Cancer Communications, 1987.

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2

Linda, Anderson. Long-term cancer survivors can have healthy children. [Bethesda, Md.]: National Cancer Institute, Office of Cancer Communications, 1987.

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3

Anderson, Linda. Long-term cancer survivors can have healthy children. [Bethesda, Md.]: National Cancer Institute, Office of Cancer Communications, 1987.

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4

Linda, Anderson. Long-term cancer survivors can have healthy children. [Bethesda, Md.]: National Cancer Institute, Office of Cancer Communications, 1987.

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5

Mucci, Grace A., and Lilibeth R. Torno, eds. Handbook of Long Term Care of The Childhood Cancer Survivor. Boston, MA: Springer US, 2015. http://dx.doi.org/10.1007/978-1-4899-7584-3.

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6

Kaplan, D. W. Long-term Survivors of Childhood Cancer (Pediatrician). S Karger AG, 1990.

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7

Cancer in offspring of long-term survivors of childhood and adolescent cancer. [Bethesda, Md.?: National Cancer Institute], 1988.

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8

Attitudes, perceptions and coping skills of long-term breast cancer survivors. 1989.

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9

Attitudes, perceptions and coping skills of long-term breast cancer survivors. 1992.

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10

Wilke, Derek R. Preferences for short- versus long-term androgen deprivation in prostate cancer survivors. 2005.

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11

Wilke, Derek R. Preferences for short- versus long term androgen deprivation in prostate cancer survivors. 2005.

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12

Rosoff, Philip M., Melissa Hudson, and Kevin Oeffinger. Long-Term Survivors of Childhood Cancer: A Primer for Follow-Up and Management. Cambridge University Press, 2004.

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13

Carpenter, Kristen M., and Lora L. Black. Sexuality, Fertility, and Cancer. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190655617.003.0009.

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Abstract: Advances in screening and treatment have improved long-term survival for individuals diagnosed with cancer, necessitating an increased focus on issues of survivorship. Sexual function can be impacted by anatomical and hormonal changes, psychological concerns, and body image disruption following cancer treatments. In addition, cancer treatments and their sequelae can have devastating impact on fertility for individuals who have not yet completed planned childbearing. While some of these problems are acute, others are chronic and outlast many of the most common survivorship concerns (e.g., fatigue, psychological distress, insomnia). Although these problems are common and distressing, discussions of these concerns are rarely initiated by survivors or their providers. This chapter reviews common concerns related to sexuality and fertility among male and female cancer survivors, as well as special considerations for pediatric cancer survivors. It also provides a review of evidence-based interventions for sexual problems and fertility preservation.
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14

Chasen, Martin, and Gordon Giddings. Management issues in chronic pain following cancer therapy. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0135.

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With improved surveillance, diagnoses, and treatment of patients with cancer, an increased life expectancy, and specifically an increased number of ‘cancer cured’ patients, is noted. However, the long-term effects of the disease and treatment have a bearing on obtaining optimal physical, psychological, and cognitive functioning for cancer survivors. Pain impacts on all dimensions of quality of life and is one of the most distressing symptoms for patients. Patients often under-recognize pain and are unsure if optimum pain control is achievable. In addition, members of the interdisciplinary team often fail to assess the patient’s pain adequately, due to a lack of knowledge of the principles of pain relief and side effect management. Treatment requires an interprofessional approach that details a comprehensive assessment, with ongoing reassessment, utilizing both pharmacological and non-pharmacological measures. Empowerment of the cancer survivor, respect for survivors’ individuality and collaboration among team members are key elements of any successful strategy to optimize a patient’s quality of life.
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15

Carlson, Linda E., Janine Giese-Davis, and Barry D. Bultz. Communication about coping as a survivor. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198736134.003.0019.

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With improvements in early detection and cancer treatments, a growing cohort of cancer survivors is emerging. Maintaining communication with survivors poses a host of new challenges to care providers that have not received ample attention in the literature. This chapter covers a number of areas relevant to enhancing communication with survivors, including various definitions of who is considered a cancer survivor (including caregivers); the ever-increasing prevalence of survivors; key issues faced by cancer survivors such as late and long-term effects and transition back to primary care; coping strategies including the use of care plans and clinical practice guidelines; communication challenges with cancer survivors and among medical professionals taking care of survivors; models for survivorship care; and details about communication techniques in the survivorship consultation.
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16

The Mascc Textbook Of Cancer Supportive Care And Survivorship. Springer, 2010.

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17

Cassidy, Jim, Donald Bissett, Roy A. J. Spence OBE, Miranda Payne, and Gareth Morris-Stiff. Hormone therapy. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199689842.003.0008.

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There are growing numbers of long-term survivors of increasingly complex anti-cancer treatments. This chapter summarises some of the complex, often multi-organ, late effects of modern cancer treatments.
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18

Ferguson, Robert, and Karen Gillock. Memory and Attention Adaptation Training. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780197521526.001.0001.

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Memory and Attention Adaptation Training (MAAT) is a cognitive-behavioral therapy (CBT) designed to help cancer survivors self-manage and mitigate the late and long-term effects of cancer and cancer therapy on memory function. Cancer-related cognitive impairment (CRCI) is a set of mild to moderate memory and attention impairments that can have an adverse influence on quality of life. CRCI symptoms tend to present during active treatment, but for some individuals cognitive changes can persist for years. While the exact prevalence of CRCI is unknown, review of the literature estimates that nearly half of all survivors may experience some form of CRCI. Causes of CRCI are multiple and are the subject of continued research. Chemotherapy, genetic vulnerability, neurovascular damage, inflammation, and hormonal/endocrine disruption have all been identified as candidate mechanisms of persistent cognitive change. Given the multiple causal mechanisms, finding a biomedical treatment for CRCI remains elusive. MAAT was developed as a CBT to help cancer survivors make adaptive behavioral and cognitive changes to improve performance in the valued activities that CRCI hinders. MAAT consists of eight visits and has been designed for administration through telehealth technology, improving access to the survivorship care that so many cancer survivors may lack after the time and expense of cancer treatment. Survivors can use this workbook to reinforce their in-session learning and continue to build adaptive coping.
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19

Mucci, Grace A., and Lilibeth R. Torno. Handbook of Long Term Care of The Childhood Cancer Survivor. Springer, 2016.

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20

Ferguson, Robert, and Karen Gillock. Memory and Attention Adaptation Training. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780197521571.001.0001.

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Memory and Attention Adaptation Training (MAAT) is a cognitive-behavioral therapy (CBT) designed to help cancer survivors self-manage and mitigate the late and long-term effects of cancer and cancer therapy on memory function. Cancer-related cognitive impairment (CRCI) is a set of mild to moderate memory and attention impairments that can have an adverse influence on quality of life. CRCI symptoms tend to present during active treatment, but for some individuals cognitive changes can persist for years. While the exact prevalence of CRCI is unknown, review of the literature estimates that nearly half of all survivors may experience some form of CRCI. Causes of CRCI are multiple and are the subject of continued research. Chemotherapy, genetic vulnerability, neurovascular damage, inflammation, and hormonal/endocrine disruption have all been identified as candidate mechanisms of persistent cognitive change. Given the multiple causal mechanisms, finding a biomedical treatment for CRCI remains elusive. MAAT was developed as a CBT to help cancer survivors make adaptive behavioral and cognitive changes to improve performance in the valued activities that CRCI hinders. MAAT consists of eight visits and has been designed for administration through telehealth technology, improving access to survivorship care that so many cancer survivors may lack after the time and expense of cancer treatment. Survivors are provided a workbook they can use to work with their clinician and to reinforce learning and adaptive coping. This clinician manual guides the clinician step by step on MAAT administration and provides background on the theoretical underpinnings of CRCI and MAAT.
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21

Baldwin, Matthew, and Hannah Wunsch. Mortality after Critical Illness. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0003.

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Many critically ill patients now survive what were previously fatal illnesses, but long-term mortality after critical illness remains high. While study populations vary by country, age, intervention, or specific diagnosis, investigations demonstrate that the majority of additional deaths occur in the first 6 to 12 months after hospital discharge. Patients with diagnoses of cancer, respiratory failure, and neurological disorders leading to the need for intensive care have the highest long-term mortality, while those with trauma and cardiovascular diseases have much lower long-term mortality. Use of mechanical ventilation, older age, and a need for care in a facility after the acute hospitalization are associated with particularly high 1-year mortality among survivors of critical illnesses. Due to challenges of follow-up, less is known about causes of delayed mortality following critical illness. Longitudinal studies of survivors of pneumonia, stroke, and patients who require prolonged mechanical ventilation suggest that most debilitated survivors die from recurrent infections and sepsis. Potential biologic mechanisms for increased risk of death after a critical illness include sepsis-induced immunoparalysis, intensive care unit-acquired weakness, neuroendocrine changes, poor nutrition, and genetic variance. Studies are needed to fully understand how the severity of the acute critical illness interacts with comorbid disease, pre-illness disability, and pre-existing and acquired frailty to affect long-term mortality. Such studies will be fundamental to improve targeting of rehabilitative, therapeutic, and palliative interventions to improve both survival and quality of life after critical illness.
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22

Wark, Chris. Beat Cancer Daily: 365 Days of Inspiration, Encouragement, and Action Steps from a Long-Term Survivor. Hay House, Incorporated, 2020.

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