Academic literature on the topic 'Maladies rares – Aspect psychologique'
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Journal articles on the topic "Maladies rares – Aspect psychologique":
Lahlou-Laforêt, K., R. Vibert, S. Richard, and A. P. Gimenez-Roqueplo. "Test génétique présymptomatique chez les mineurs à risque pour la maladie de von Hippel-Lindau et surveillance des porteurs de mutation — Aspects psychologiques et éthiques." Psycho-Oncologie 15, no. 4 (December 2021): 141–45. http://dx.doi.org/10.3166/pson-2022-0173.
Bonnot, O. "Formes organiques des pathologies psychiatriques : l’exemple des maladies neurométaboliques." European Psychiatry 28, S2 (November 2013): 14. http://dx.doi.org/10.1016/j.eurpsy.2013.09.033.
Thibaut, F. "Identité de genre : les transgenres contre l’ordre établi." European Psychiatry 29, S3 (November 2014): 637. http://dx.doi.org/10.1016/j.eurpsy.2014.09.153.
Leclerc, Véronique, Alexandre Tremblay, and Chani Bonventre. "Anthropologie médicale." Anthropen, 2020. http://dx.doi.org/10.17184/eac.anthropen.125.
Dissertations / Theses on the topic "Maladies rares – Aspect psychologique":
Burgevin, Melissa. "Évaluation neuropsychologique et médico-sociale des adolescents et adultes porteurs d’un syndrome de Silver-Russell." Thesis, Rennes 2, 2021. http://www.theses.fr/2021REN20049.
In France, rare diseases are a major public health issue with more than 3 million people affected by a rare disease. Because of their rare nature, these diseases generally suffer from limited knowledge. Silver-Russell syndrome (SRS), a rare (epi)genetic disease characterized by pre- and post-natal growth retardation, is no exception to this observation. Indeed, although many advances have been made in recent years concerning medical knowledge of SRS, there are still gaps in the cognitive and psychosocial phenotype of individuals with this syndrome. This thesis, which is at the crossroads of medicine and psychology, has a double objective: on the one hand, to study the cognitive, psychological and behavioral characteristics of adolescents and adults with SRS (e.g., intellectual efficiency, executive functions, self-esteem) and, on the other hand, to identify the factors associated with these different characteristics (e.g., age, molecular anomaly). A total of 19 participants with SRS (8 adolescents and 11 adults), and 19 control participants took part in this research. The results of our studies show that participants with SRS have intellectual abilities similar to those of the general population. Cognitive and psychological difficulties were observed in our participants with SRS. However, these difficulties were not expressed in the same way in adolescents and adults with SRS. Links between the phenotype and genotype of the participants were also observed. These results offer a better understanding of SRS and open perspectives on SRS management
Del, Volgo Marie-José. "L'instant de dire : historisation et roman de la maladie en milieu médical." Aix-Marseille 1, 1994. http://www.theses.fr/1996AIX10052.
Sounga, Dufeil Leyb Rodneil. "Stress et AVC : approche psychologique des patients en milieu hospitalier." Amiens, 2009. http://www.theses.fr/2009AMIE0021.
Lemoine, Pascal. "Le lien familial à l'épreuve du cancer : à propos du suivi de patients et de leurs familles en service d'onco-hématologie." Grenoble 2, 2000. http://www.theses.fr/2000GRE2A014.
Humphreys, Manterola Derek Andrew Robert. "Constitution d'un rapport de l'immunologie à la psychanalyse : l'approche du somatique." Paris 7, 2004. http://www.theses.fr/2004PA070037.
Our interest is on the first place the determination of the status of auto-immune diseases. This opens the question of the relationships between the biological individuality and the subjectivity. Are auto-immune diseases the manifestation of an unrecognizing-destructive SELF? Or are they just the result of a genetically determined dysfunction of integrative and communicational organic systems? The Self metaphor shows a certain historical utility, an epistemological tool. There is still a third possible reasoning: disease is always, in part, subjective; human nature is cultural. But the modern medicine's scientific quest of a diagnostic and therapeutic purity denies the subjective component of disease. Though an historical and epistemological approach, we established a splitting of individual aspects during the 2nd half of 19th century, moment of separation between "substantial" aspects that will become immunology, and "subjective" aspects, i. E. Psychoanalysis. The end of the 20th century will see a shift in the immunological speech. It will no longer be a matter of self organisation, protection against foreign, but a communication system within an integrated organism. However, this view won't be an answer to the auto-immune disease paradigm. Based on a clinical experience, we argue that a technological approach of modern medicine underestimates the disease concept. More than a psychosomatic clinic, we plea for a body in its whole, organic and subjective
Valas, Vincent. "De la maladie mortelle comme expérience ontologique." Paris 1, 1995. http://www.theses.fr/1995PA010573.
Renson, Jacques. "Odontostomatologie et psychiatrie." Bordeaux 2, 1992. http://www.theses.fr/1992BOR2OE01.
Argentin, Vicogne Sabine. "Maladie génétique chez l'enfant : fonctionnement psychique et relations familiales. Enfants et adolescents atteints de mucoviscidose : approche clinique et prévention psychopathologique." Rouen, 2000. http://www.theses.fr/2000ROUEL378.
Rolhion, Sophie. "Psoriasis et alexithymie : de l'atteinte chronique du cutané à la vulnérabilité émotionnelle." Bordeaux 2, 2004. http://www.theses.fr/2004BOR21117.
Psoriasis is a chronic skin disease which affects about 2% of the French population. Numerous parameters (genetics, climatic, infectious) may be involved in its onset. Many patients with psoriasis are resistant to most treatments. We know that complete remission is often not achieved and patients are left to deal with chronic, relapsing, visible lifelong disorder. Psoriasis still represents a therapeutic challenge. We wonder if there was a possible psychological explanation for the absence of effects of treatement in many patients. Psychological factors are involved in the beginning of the onset and relapse of psoriasis. Some studies suggest that alexithymia is very frequent in psoriatic patients. Alexithymia may influence illness behavior rather than leading to chronic organic diseases, such as psoriasis. We tried to explore if alexithymia was linked with psoriasis and was stable in the face of clinical improvement or aggravation. The a priori hypothesis was that psychological variables, mainly alexithymia, could be involved in insufficient healing of psoriatic lesions. Alexithymia could be associated with psychiatric disorders in many patients. These psychiatric disorders could be also involved in a bad response to treatment. Thus, we have undertaken this study (about 93 patients) to explore the importance of links between skin, emotions and schemes of therapeutic observance. It provides a better understanding of relationships between body, temporality and care. Finally, we allow to propose an original therapeutic project for psoriatic patients care
Beaumont-Gaudet, Sarah. "Le vécu de l'arthrite chez les femmes québécoises : une approche phénoménologique." Master's thesis, Université Laval, 2015. http://hdl.handle.net/20.500.11794/26241.
When pain imbeds itself in the body, when it takes over the daily life of the individual, it overwhelms “normalcy” and familiarity. The day-to-day standard experience of individuals stricken by arthritis is of a painful body that incapacitates and restricts. In the context where this chronic illness transforms the individual, perturbs the embodied and psychologi-cal experience of life, what are the aspects of daily life affected by the condition and the pain it entails? How do individuals manage this pain? What are the strategies and behav-iours adopted to live a fulfilling life despite the affliction? The objective of this project has been to identify the daily hurdles and issues with which individuals afflicted by arthritis are confronted, as well as seek to understand the process by which the illness is strategically managed by the adoption of appropriate behaviour. This project has allowed, by interview with individuals on their experience of the illness, to demonstrate that the repercussions of the illness and of pain are not limited to the body, but radiate to all spheres of the individu-al’s life.
Books on the topic "Maladies rares – Aspect psychologique":
Slama, Linda. L' adolescent et sa maladie: Étude psychopathologique de la maladie chronique à l'adolescence. Paris: C.T.N.E.R.H.I, 1987.
Fauré, Christophe. Vivre ensemble la maladie d'un proche: Aider l'autre et s'aider soi-même. Paris: Albin Michel, 2002.
Sourkes, Barbara M. La part de l'ombre: Les aspects psychologiques des maladies potentiellement mortelles. Paris: Éditions Frison-Roche, 2001.
Société de psychogériatrie de langue française. (19e 2003 Pau). Le sujet âgé, ses proches et ses soignants. Ramonville Saint-Agne: Éditions Érès, 2006.
Lloyd, Ruth. Explorations in psychoneuroimmunology. Edited by Solomon George Freeman and Dorf Martin E. 1944-. Orlando, Fla: Grune & Stratton, 1987.
Arboleda-Flórez, J. Maladie mentale et violence: Un lien démontré ou un stéréotype? Ottawa, Ont: Direction générale de la promotion et des programmes de santé, Santé Canada, 1996.
Pauzé, Robert. L' anorexie chez les adolescentes. Ramonville Saint-Agne: Érès, 2001.
Baker, Brian. A change of heart: Recovering from heart disease-- in body and mind. Toronto: Random House of Canada, 1998.
Gauthier, Bruno. Faire face à la maladie: De la révolte à la sérénité. Québec: Arion, 1999.
Fischer, Gustave-Nicolas. L'expérience du malade: L'épreuve intime. Paris: Dunod, 2008.