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Journal articles on the topic 'Male caregivers'

Author: Grafiati

Published: 4 June 2021

Last updated: 29 July 2024

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1

Deskins, Barbara Pollard, Susan Letvak, Laurie Kennedy-Malone, Pamela Johnson Rowsey, Leandra Bedini, and Denise Rhew. "The Experiences of African American Male Caregivers." Healthcare 10, no. 2 (January 28, 2022): 252. http://dx.doi.org/10.3390/healthcare10020252.

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Aging of the population has led to an increasing number of caregivers. While research has been conducted on caregiver experiences, less is known about the experiences of African American males in the U.S. This qualitative descriptive study describes the experiences of 13 African American men who acted as caregivers to adult chronically ill or debilitated loved ones, the majority of whom provided care during the COVID-19 pandemic. The revised Sociocultural Stress and Coping Model (R-SSCM) guided this study. Individual interviews were conducted via the Zoom application. Content analysis revealed

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Opara, Józef, and W. Brola. "Quality of Life and Burden in caregivers of Multiple Sclerosis patients." Physiotherapy and Health Activity 25, no. 1 (March 1, 2018): 9–16. http://dx.doi.org/10.1515/pha-2017-0002.

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Abstract Multiple sclerosis (MS) is one of the most disabling disorders of the central nervous system. Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. This places women in the position of being care recipients rather than caregivers. Some results also supported hypothesis that female caregivers reported a higher need for emotional support than male caregivers. As with female caregivers, decreased emotional support pred

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Ruisoto, Pablo, Marina Ramírez, Belén Paladines-Costa, Silvia Vaca, and Vicente Javier Clemente-Suárez. "Predicting Caregiver Burden in Informal Caregivers for the Elderly in Ecuador." International Journal of Environmental Research and Public Health 17, no. 19 (October 8, 2020): 7338. http://dx.doi.org/10.3390/ijerph17197338.

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Informal caregivers are the main providers of care for the elderly. The aim of this study is to examine the predictive value of different variables regarding caregivers and their elderly patients with respect to the caregiver’s burden. A convenience sample of 688 informal caregivers and 688 elderly people from Ecuador was surveyed. Only households with one caregiver and one elderly person were considered for the study. For informal caregivers, the following standardized measures were obtained: burden (Zarit Burden Interview), neuroticism (Eysenck Personality Questionnaire Revised-Abbreviated,

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Frias, Cindy E., Esther Cabrera, and Adelaida Zabalegui. "Informal Caregivers’ Roles in Dementia: The Impact on Their Quality of Life." Life 10, no. 11 (October 23, 2020): 251. http://dx.doi.org/10.3390/life10110251.

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The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the

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Weinland, Jo Ann. "The Lived Experience of Informal African American Male Caregivers." American Journal of Men's Health 3, no. 1 (November 7, 2007): 16–24. http://dx.doi.org/10.1177/1557988307305916.

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Informal caregivers play a major role in providing care to loved ones within the home and demands for dependent care are likely to increase. Informal caregivers are likely to continue to be responsible for the majority of care for loved ones living well into late stages of life. This article describes the lived experience of African American men providing care to a relative within the home and explores their definition of caregiver distress. The phenomenological study was conducted using face-to-face interviews with 10 Christian African American men. Demographic data about the caregiver and th

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Savitri, Wenny, and Suwarno. "Kualitas Hidup Family Caregiver Pasien Kanker dan Faktor-Faktor yang Mempengaruhinya." MEDIA ILMU KESEHATAN 11, no. 1 (January 2, 2023): 46–55. http://dx.doi.org/10.30989/mik.v11i1.667.

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Background: The increase of cancer diagnosis in Indonesia needs special attention because cancer causes crisis not only in patient’s life but also to family caregivers. Studies depict that a family caregiver’s quality of life (QOL) influences patient’s. Therefore, it is necessary to pay special attention to the caregiver’s QOL to generate a holistic approach for cancer patients.Objective: This study aimed to portray family caregivers of cancer patients’ QOL and its associated factors.Methods: In this analytical crossectional study, 60 family caregivers of cancer patients were recruited. The Ca

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Smith, Matthew, Chung Lin Kew, Tiffany Washington, Caroline Bergeron, Ashley Merianos, Ledric Sherman, and Kirby Goidel. "CAREGIVER STRAIN AMONG AFRICAN AMERICAN AND HISPANIC MALE CAREGIVERS WITH CHRONIC CONDITIONS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 100. http://dx.doi.org/10.1093/geroni/igac059.398.

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Abstract Caregiving strain often stems from caregivers’ unmet needs and is a risk factor for physical and psychological ill-health. This study aims to identify factors associated with caregiver strain among middle-aged and older African American and Hispanic male caregivers living with one or more chronic conditions. Data were collected from 431 male caregivers using a web-based survey (55% African American, 45% Hispanic). Linear regression models were fitted to assess factors associated with caregiver strain, which was measured using caregiving difficulty items from Behavioral Risk Factor Sur

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Buchanan, Robert J., Dagmar Radin, and Chunfeng Huang. "Caregiver Burden Among Informal Caregivers Assisting People with Multiple Sclerosis." International Journal of MS Care 13, no. 2 (July 1, 2011): 76–83. http://dx.doi.org/10.7224/1537-2073-13.2.76.

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Multiple sclerosis (MS) burdens not only patients but also their informal or family caregivers. This study was conducted to identify characteristics of caregivers, caregiving, and MS patients receiving informal care that are associated with caregiving burden. Data were collected through a national survey of informal MS caregivers and analyzed using an ordered logistic regression model to identify factors associated with burden. Burden was found to be significantly greater among male caregivers than among female caregivers. Moreover, greater burden was associated with more frequent patient blad

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Pribadi, Dimas Ria Angga, and Hung Ru Lin. "Lived Experience’s on Male Spouse of Patients with Lung Cancer in Indonesia." South East Asia Nursing Research 4, no. 3 (September 28, 2022): 6. http://dx.doi.org/10.26714/seanr.4.3.2022.6-13.

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Patients with advanced lung cancer might have a higher number of supportive care needs, when a married, middle-aged woman is diagnosed with this disease, her spouses most often become the primary caregiver. However few studies have explored the lived experiences of Male Spouses. This study aimed to explore the lived experience of male caregivers among lung cancer patients. The phenomenological method is adopted to obtain the male lived experiences of caregivers.” In-depth face-to-face interviews with the caregivers were the main source of data for this study. Five male caregivers completed the

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Leung, Lai Ching, Kam Wah Chan, and Kin Yuen Tam. "Reconstruction of Masculine Identities Through Caring Practices: The Experiences of Male Caregivers in Hong Kong." Journal of Family Issues 40, no. 6 (January 7, 2019): 764–84. http://dx.doi.org/10.1177/0192513x18823820.

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The purpose of this study was to explore from a gender perspective how masculinities might be reworked into identities of care through men taking on the role of family caregiver. A qualitative method was adopted for this research. Twenty Chinese men in Hong Kong who were the main caregivers in their families were invited for in-depth interviews to understand their views on caring and their experiences as caregivers. We identified four types of male caregiver: (a) conforming caregivers, (b) traditional caregivers, (c) transitional caregivers, and (d) transforming caregivers. Based on our findin

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Silva, Elton Gomes da, Karina Cuziol, Maura Aparecida Viana, and Elizabeth Maria Aparecida Barasnevicius. "Quality of life in patients with Parkinson’s Disease and their caregivers’ stress levels." Revista Neurociências 16, no. 2 (April 30, 1999): 113–17. http://dx.doi.org/10.34024/rnc.2008.v16.8647.

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Introduction. The quality of life in patients with Parkinson’s disease (PD) is related to the disease level, which also indicates the caregiver’s quality of life. Methods. This study comprised 43 patients with PD (31 male) and their respective caregivers (35 female) in order to evaluate if these disease symptoms may change their quality of life. Results. There was a statistically significant correlation between quality of life and the disease level and caregiver stress. The higher the score of disease level, the worse the patients and caregivers’ quality of life. Conclusion. The disease contro

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Unson, Christine, Anuli Njoku, Stanley Bernard, and Martin Agbalenyo. "Racial and Ethnic Disparities in Chronic Stress among Male Caregivers." International Journal of Environmental Research and Public Health 20, no. 12 (June 20, 2023): 6188. http://dx.doi.org/10.3390/ijerph20126188.

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Whereas research on caregiving is well documented, less is known about gender inequalities in caregiver stress, coping mechanisms, and health outcomes, all of which may vary by race, ethnicity, and socioeconomic status. This scoping review investigated racial and ethnic disparities using the Stress Process Model among male caregivers. Several databases were searched including Academic Search Premier, Medline Complete, APA PsycInfo, CINHAL, Google, ProQuest, and Web of Science. Included were peer-reviewed articles in English, published from 1990 to 2022. A total of nine articles fulfilled inclu

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Molitor, Fred, and Celeste Doerr. "Dietary Behaviors, Diet Quality, and Obesity among Children from Low-Income Households by Gender of Caregiver and Child: Results from the 2018 California Family Health Study." Current Developments in Nutrition 4, Supplement_2 (May 29, 2020): 245. http://dx.doi.org/10.1093/cdn/nzaa043_096.

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Abstract Objectives To examine dietary behaviors, diet quality, and childhood obesity by caregiver and child gender. Methods Permission to interview 2242 children (5–12 y) from randomly-sampled low-income (≤185% of the federal poverty level) households across California was obtained from male or female caregivers screened as the person who “assumes the responsibility in caring for the health and well-being of the child(ren).” A caregiver was further defined as “the male (or female) who prepares the meals or buys food for the child(ren).” Bilingual interviewers administered a 24-hour dietary re

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Rosario-Ramos, Lianel, Cristina Peña-Vargas, and Normarie Torres-Blasco. "Acceptance of Caregiver–Patient Support to Latinx Coping with Advanced Cancer (CASA) Intervention: A Caregiver Case Study." International Journal of Environmental Research and Public Health 20, no. 6 (March 12, 2023): 4996. http://dx.doi.org/10.3390/ijerph20064996.

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Latinos frequently assume caregiver roles when the need arises in their social nucleus. Because of their active role, caregivers are heavily involved in their family member’s cancer trajectory. Therefore, there is a need for culturally adapted interventions that integrate the caregiver and cancer patient. The objective is to present a case study of a former caregiver’s experience and acceptance of the cultural adaptation of Caregiver–Patient Support to Latinx Coping with Advanced Cancer (CASA) intervention. We conducted a case study with a male caregiver between the ages of 20 and 30. A male c

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Handi, Andrew, Dapot Parulian Gultom, Muhammad Surya Husada, Bahagia Loebis, Elmeida Effendy, Mustafa Mahmud Amin, Vita Camellia, and Nazli Mahdinasari Nasution. "The Comparison of Hospital Anxiety and Depression Scale-Anxiety Scores between Female Caregivers of People with Schizophrenia According to Gender Difference." Open Access Macedonian Journal of Medical Sciences 7, no. 16 (August 25, 2019): 2630–33. http://dx.doi.org/10.3889/oamjms.2019.472.

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BACKGROUND: Caregiver plays an important role for a better outcome in people with schizophrenia, although it usually causes emotional distress for the caregiver. Anxiety is one of the emotional distress. Gender of schizophrenic patients is associated with the emotional distress of caregiver. The differences in HADS-A scores between female caregivers of people with schizophrenia according to gender in Indonesia remain unclear. AIM: To determine whether HADS-A scores are higher in a male group compare with the female group. METHODS: This study was an analytical study with a cross-sec

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Wong, Ting-Hway, Timothy Xin Zhong Tan, Lynette Ma Loo, Wei Chong Chua, Philip Tsau Choong Iau, Arron Seng Hock Ang, Jerry Tiong Thye Goo, et al. "Negative and positive experiences of caregiving among family caregivers of older blunt trauma patients." PLOS ONE 17, no. 10 (October 10, 2022): e0275169. http://dx.doi.org/10.1371/journal.pone.0275169.

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Objectives Family caregivers play a fundamental role in the care of the older blunt trauma patient. We aim to identify risk factors for negative and positive experiences of caregiving among family caregivers. Design Prospective, nationwide, multi-center cohort study. Setting and participants 110 family caregivers of Singaporeans aged≥55 admitted for unintentional blunt trauma with an Injury Severity Score (ISS) or New Injury Severity Score (NISS)≥10 were assessed for caregiving-related negative (disturbed schedule and poor health, lack of family support, lack of finances) and positive (esteem)

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Matolia, Riddhi R., Khadija Anandwala, and Neha Verma. "A Study to Measure Caregiver Stress in Stroke Patients using Caregiver Strain Index." International Journal of Health Sciences and Research 12, no. 4 (April 19, 2022): 276–82. http://dx.doi.org/10.52403/ijhsr.20220432.

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Introduction: Stroke survivors have moderate to severe disability that limits their employment status and social mobility. Family members are usually not prepared to deal with the consequences of a stroke. The care of stroke patients usually leads to stress and burden among the caregivers. Aim: To assess the strain among the caregivers of stroke patients with the Caregiver Strain Index (CSI) and find the correlation between their age and duration of stroke with that of the caregiver strain. Materials and Methods: A cross-sectional study was done at various hospitals in the South Gujarat region

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Wilkes, Chelsey M., Karla T. Washington, William M. Palmer, Debra Parker Oliver, George Demiris, and Kevin Craig. "Differential effects of patient symptom subtypes on informal hospice caregiver depression." Palliative and Supportive Care 16, no. 2 (January 31, 2017): 127–36. http://dx.doi.org/10.1017/s1478951516001152.

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ABSTRACTObjective:Researchers sought to determine the extent to which burden related to patients' symptom subtypes could predict informal hospice caregiver depression, and to illustrate the differences between caregivers who experience suicidal ideation and those who do not.Method:Informal caregivers recruited from a not-for-profit community-based hospice agency participated in a cross-sectional survey. Self-report questionnaires assessed caregiver burden associated with patient symptomatology (via a modified version of the Memorial Symptom Assessment Scale–Short Form) and caregiver depressive

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Raymond, Martha, and Margaret-Ann Simonetta. "The cancer caregiver lived experience: Supporting and advocating for patients with cancer throughout the care continuum." JCO Oncology Practice 19, no. 11_suppl (November 2023): 222. http://dx.doi.org/10.1200/op.2023.19.11_suppl.222.

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222 Background: Data from the National Cancer Institute’s Surveillance, Epidemiology & End Results Program (SEER 2022) estimates there are currently over 18.1 million cancer survivors in the United States who rely on family and friends to provide caregiver support. Family and volunteer caregivers fulfill a vital and essential role for cancer patients throughout the care continuum and are at the forefront of advocating and navigating the health care system for the patients under their care. Recognizing the caregiver’s lived experience and the demands and obstacles caregivers endure has a di

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Lopez–Anuarbe, Monika, and Priya Kohli. "Understanding Male Caregivers’ Emotional, Financial, and Physical Burden in the United States." Healthcare 7, no. 2 (May 22, 2019): 72. http://dx.doi.org/10.3390/healthcare7020072.

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Men caregivers face caregiving burden, have weak support networks and are less likely to seek out programs which increase their caregiving capabilities and help them cope with this burden. Using the 2011 and 2015 National Study of Caregiving (NSOC) database and hierarchical regressions, we studied the emotional, financial, and physical burden of male caregivers as spouses, sons, and other caregivers by assessing the impact of caregiver characteristics, tasks and resources for each subgroup. We highlighted the importance of using a nationally representative database for men caregivers only and

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Swinkels, Joukje C., Marjolein I. Broese van Groenou, Alice de Boer, and Theo G. van Tilburg. "Male and Female Partner-Caregivers’ Burden: Does It Get Worse Over Time?" Gerontologist 59, no. 6 (October 12, 2018): 1103–11. http://dx.doi.org/10.1093/geront/gny132.

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Abstract Background and Objectives The general view is that partner-caregiver burden increases over time but findings are inconsistent. Moreover, the pathways underlying caregiver burden may differ between men and women. This study examines to what degree and why partner-caregiver burden changes over time. It adopts Pearlin’s Caregiver Stress Process Model, as it is expected that higher primary and secondary stressors will increase burden and larger amounts of resources will lower burden. Yet, the impact of stressors and resources may change over time. The wear-and-tear model predicts an incre

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Welsh, Allie, Sarah Hanson, Klaus Pfeiffer, Reema Khoury, Allan Clark, Polly-Anna Ashford, Sally Hopewell, et al. "Perspectives of informal caregivers who support people following hip fracture surgery: a qualitative study embedded within the HIP HELPER feasibility trial." BMJ Open 13, no. 11 (November 2023): e074095. http://dx.doi.org/10.1136/bmjopen-2023-074095.

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ObjectivesThis study aims to illuminate the perspectives of informal caregivers who support people following hip fracture surgery.DesignA qualitative study embedded within a now completed multicentre, feasibility randomised controlled trial (HIP HELPER).SettingFive English National Health Service hospitals.ParticipantsWe interviewed 20 participants (10 informal caregivers and 10 people with hip fracture), following hip fracture surgery. This included one male and nine females who experienced a hip fracture; and seven male and three female informal caregivers. The median age was 72.5 years (ran

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Bjørge, Heidi, Kari Kvaal, and Ingun Ulstein. "309 - Quality of life in caregiver in a gender perspective." International Psychogeriatrics 32, S1 (October 2020): 67. http://dx.doi.org/10.1017/s1041610220002094.

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Background and aimPeople with dementia depend on a relative to be able to stay at home longer However, being a caregiver has shown to influence on their quality of life (QoL). Depression is the most common factor associated with low caregiver QoL, while relational factors have shown to be a protective factor. Less is known about how female and male caregivers approve to the caregiving demands, and thus how these demands influence their QoL. In this study, we aimed at investigating what factors influenced on QoL related to gender and how these fluctuated with time.MethodIn this longitudinal des

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Warapornmongkholkul, Anchalee, Nopporn Howteerakul, Nawarat Suwannapong, and Nopadol Soparattanapaisarn. "Self-efficacy, social support, and quality of life among primary family-member caregivers of patients with cancer in Thailand." Journal of Health Research 32, no. 2 (March 12, 2018): 111–22. http://dx.doi.org/10.1108/jhr-01-2018-012.

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Purpose In Thailand, most patients with cancer primarily receive in-home care from their family members. However, information regarding the quality of life (QoL) of the primary family-member caregivers is scarce. The purpose of this paper is to assess primary family-member caregivers’ QoL and its association with self-efficacy and social support using a Thai version of the Caregiver Quality of Life Index-Cancer (CQOLC). Design/methodology/approach This hospital-based cross-sectional study was performed at a teaching hospital in Bangkok. Questionnaires were administered to 178 primary family-me

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Faqi-Rahid, Farida, and Shukir Hasan. "Caregiver’s Knowledge regarding Homecare Management of Spastic Cerebral Palsy Children Under 12 Years Old in Rapareen Province." Erbil Journal of Nursing and Midwifery 5, no. 2 (November 30, 2022): 61–71. http://dx.doi.org/10.15218/ejnm.2022.07.

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Background and objectives: Spasticity, sometimes called hypertonia, makes movement difficult or even impossible. Spastic children with Cerebral Palsy face many health problems that need significant attention at home. This study aimed to assess caregivers’ knowledge about home care management of spastic CP children in the Rapareen Region. Methods: A quantitative, descriptive cross-sectional study was carried out in the Rapareen Region of Sulaimani city. The period started from October 1st, 2020, to October 1st, 2021. Purposive (non-probability) sampling techniques of 115 caregivers, who attend

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Robinson, Carole A., Joan L. Bottorff, Barbara Pesut, John L. Oliffe, and Jamie Tomlinson. "The Male Face of Caregiving." American Journal of Men's Health 8, no. 5 (January 9, 2014): 409–26. http://dx.doi.org/10.1177/1557988313519671.

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The purpose of this scoping review was to examine the empirical evidence published since 2007 on men as family caregivers of persons with dementia. Searches were conducted on Academic Search Complete, Ageline, CINAHL, Embase, Medline, PsychINFO, Social Work Abstracts, and Web of Science using database-specific controlled (i.e., MeSH terms) vocabulary related to dementia, men, and caregiving. Studies published in English between 2007 and 2012 that provided evidence of the experiences of male family caregivers of persons with dementia were included in the review. A total of 30 articles were sele

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Bozkurt Zincir, Selma, Murat Sunbul, Serkan Zincir, Esra Aydin Sunbul, Mustafa Oguz, Fatma Feriha Cengiz, Erdal Durmus, Tarik Kivrak, and Ibrahim Sari. "Burden and Depressive Symptoms Associated with Adult-Child Caregiving for Individuals with Heart Failure." Scientific World Journal 2014 (2014): 1–6. http://dx.doi.org/10.1155/2014/641817.

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Background. The primary purpose of this study was to investigate adult-child caregiver burden in heart failure (HF) patients. Secondary purpose of the study was to identify the possible influencing factors for caregiver burden and depressive symptoms in a young adult-child caregiver group.Methods. A total of 138 adult-child caregivers and 138 patients with HF participated in this study. Caregivers’ burden, depressive symptoms, and anxiety levels were assessed by using Zarit Caregiver Burden Scale (ZCBS), Beck Depression Inventory, and State-Trait Anxiety Inventory, respectively.Results. The me

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Esezobor, Christopher I., Adaobi U. Solarin, and Andrew T. Olagunju. "Significant Burden and Psychological Distress Among Caregivers of Children With Nephrotic Syndrome: A Cross-Sectional Study." Canadian Journal of Kidney Health and Disease 7 (January 2020): 205435811989801. http://dx.doi.org/10.1177/2054358119898016.

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Background: Childhood nephrotic syndrome (NS) follows a chronic course in most children. However, little is known about the psychosocial burden of NS on the caregivers despite evidence that caregiver burden or impairment in their well-being may alter the outcome of chronic childhood illnesses. Objectives: To determine the frequency and predictors of significant caregiver burden and psychological distress among caregivers of children with NS. Design: A cross-sectional study. Setting: Two pediatric nephrology clinics in Lagos, Nigeria. Patients: We included primary caregivers of children with id

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Kenning, Heather, Yunjia Yang, Lisa O'Neill, Mindy Fain, Mark Wager, and Amanda Sokan. "Caregiver Challenges of Older University Employees During the COVID-19 Pandemic." Innovation in Aging 5, Supplement_1 (December 1, 2021): 65. http://dx.doi.org/10.1093/geroni/igab046.250.

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Abstract The COVID-19 pandemic has created numerous challenges for older employees who are also caregivers. Some challenges are associated with disruptions in community-based support services leading to the intensification of caregiver responsibilities. Other challenges are related to caregivers’ concerns about their health or the risk of bringing the virus to the care recipient. This study investigated the impacts of those challenges on older (age 55+) working caregivers, from a major university, with a sample that included 57 male and 80 female caregivers. The investigation explored the asso

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Au, Trang H., Hillevi Bauer, Jyothi Menon, Connor Willis, Eli Iacob, Junjie Ma, Alexandre Watanabe, et al. "Impact of glioblastoma (GBM)-related cognitive dysfunction (CD) on caregiver burden: Preliminary results from multi-site study in the U.S." Journal of Clinical Oncology 36, no. 34_suppl (December 1, 2018): 16. http://dx.doi.org/10.1200/jco.2018.36.34_suppl.16.

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16 Background: GBM is a largely incurable, highly aggressive cancer with high incidence of CD. Caregivers face heightened stress with loved one’s limited life expectancy and additional duties. To better understand this unique group, a survey tool was developed to examine effect of CD on caregiver burden. Methods: Four of 10 planned academic centers are enrolling towards achieving 200+ completed surveys. The survey was developed step-wise: 1) literature review of primary brain tumors, Alzheimer’s disease, and dementia to identify domains; 2) focus groups with neurooncologists and American Brain

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Vrettos, Ioannis, Konstantinos Kamposioras, Nick Kontodimopoulos, Evelina Pappa, Elissavet Georgiadou, Dionysios Haritos, Angelos A. Papadopoulos, and Dimitris Niakas. "Comparing Health-Related Quality of Life of Cancer Patients under Chemotherapy and of Their Caregivers." Scientific World Journal 2012 (2012): 1–9. http://dx.doi.org/10.1100/2012/135283.

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Introduction. Cancer is a major disorder physically and psychologically affecting both patients and their caregivers. In this study, health-related quality of life (HRQoL) of patient-caregiver dyads during the period of chemotherapy was assessed.Material and Methods. Two hundred twenty-two cancer patient-caregiver dyads were enrolled in the study, which was conducted from October 2008 to March 2009. HRQoL was evaluated with EQ-5D.Results. The mean age of the sample was 57.4 and 48.9 for patients and caregivers, respectively. The EQ-5D descriptive system indicates that female patients more freq

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Kochhann, Renata, Ericksen Borba, Maria Otília Cerveira, Diego Onyszko, Alyne de Jesus, Letícia Forster, Luisa Franciscatto, Cláudia Godinho, Ana Luiza Camozzato, and Márcia Lorena F. Chaves. "Neuropsychiatric symptoms as the main determinant of caregiver burden in Alzheimer's disease." Dementia & Neuropsychologia 5, no. 3 (September 2011): 203–8. http://dx.doi.org/10.1590/s1980-57642011dn05030008.

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Abstract Caregiver burden is common in Alzheimer's disease (AD), decreasing the quality of life among caregivers and patients. Projections of aging and aging-related diseases such as AD in developing countries justify additional data about this issue because people living in these countries have shown similarly high levels of caregiver strain as in the developed world. Objective: The aim of this study was to analyze the association of AD caregivers' burden with patients' neuropsychiatric symptoms (NPS), cognitive status, severity of dementia, functional capacity, caregiver sociodemographic cha

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Fu, Wenhao, and Jiajia Li. "Explaining Gender Differences in Depressive Symptoms Among Caregivers of Older Patients With Critical Illness." Innovation in Aging 5, Supplement_1 (December 1, 2021): 379. http://dx.doi.org/10.1093/geroni/igab046.1471.

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Abstract The aging of baby boomers makes caring for the elderly an increasingly important topic. As rising cost of health care, the care for seriously ill patients has gradually shifted from hospitals to families, particularly in the countryside. Along with growing demand for informal care, informal caregivers are at increased risk of depression. The aim of this study was to explore the potential protective factors or risk factors associated with depressive symptoms of caregivers for patients with critical illness (45 to 93 years of age) across gender groups, explain their different pathways o

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Tolea, Magdalena, Iris Cohen, Simone Camacho, and James Galvin. "MINDFULNESS AND CAREGIVING EXPERIENCE IN ADRD CAREGIVERS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 454–55. http://dx.doi.org/10.1093/geroni/igac059.1772.

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Abstract Mindfulness (being present in the moment without judgement) has been linked to greater caregiver emotional health. Recent mindfulness-based interventions report improved coping skills, mood, and reduced stress in dementia caregivers. In this cross-sectional study of 141 ADRD caregivers, we assessed whether the relationship between caregiver mindfulness and caregiver experience varies by caregiver gender, relationship to patient (spouse-vs-child), etiology (AD-vs-LBD), or stage (MCI-vs-dementia). A stratified univariate analytic approach was used. Four mindfulness parameters (AMPS scal

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Accius, J. "BREAKING STEREOTYPES: MALE FAMILY CAREGIVERS." Innovation in Aging 2, suppl_1 (November 1, 2018): 240. http://dx.doi.org/10.1093/geroni/igy023.894.

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Geiger, Jennifer R., Scott E. Wilks, Lauren L. Lovelace, Zibei Chen, and Christina A. Spivey. "Burden Among Male Alzheimer’s Caregivers." American Journal of Alzheimer's Disease & Other Dementiasr 30, no. 3 (September 28, 2014): 238–46. http://dx.doi.org/10.1177/1533317514552666.

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Hendricks-Lalla, Abeedah, and Chrisma Pretorius. "The male familial caregiver experience of caring for persons with Alzheimer’s disease from low socio-economic status: A South African perspective." Dementia 19, no. 3 (June 18, 2018): 618–39. http://dx.doi.org/10.1177/1471301218781372.

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The aim of this study was to explore the experiences of male familial caregivers of persons with Alzheimer’s disease from low socio-economic status using the ecological systems theory perspective. The data were obtained from 11 semi-structured interviews that were conducted with the familial caregivers of persons with Alzheimer’s disease. Data were analyzed using thematic analysis, where four main themes emerged, namely, relationship difficulties, understanding Alzheimer’s disease, support networks, and finding meaning and satisfaction in the caregiving role. Behavioral problems, erosion of th

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Sajeev, Anjala V., and Cyril John. "Informal caregiver burden among carers of bedridden elderly: a cross sectional study in North Kerala." International Journal Of Community Medicine And Public Health 11, no. 7 (June 28, 2024): 2780–86. http://dx.doi.org/10.18203/2394-6040.ijcmph20241838.

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Background: In the cultural context of India, informal caregiving stands as the foremost form of support to the elderly. This study investigates the status of caregiver burden and it’s psychological impact on informal caregivers of bedridden elderly in rural north Kerala, India. The study also delves into the socio-demographic factors associated with caregiver burden as well as psychological distress among family caregivers. Methods: A cross-sectional descriptive study. The data was collected from (n=120) caregivers using the burden assessment scale and psychological distress assessment scale.

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Raymond, Martha, and Margaret-Ann Simonetta. "The caregiver perspective: Advancing the understanding of cancer caregiving in the palliative care setting." Journal of Clinical Oncology 36, no. 34_suppl (December 1, 2018): 17. http://dx.doi.org/10.1200/jco.2018.36.34_suppl.17.

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17 Background: 2018 data from the National Cancer Institute’s Surveillance, Epidemiology & End Results (SEER) Program estimates there are 15.5 million cancer survivors in the U.S. Throughout the care continuum, cancer caregivers provide invaluable support which greatly impacts and improves patient quality of life. In the palliative care setting caregiver support is vitally important, but many caregivers struggle to take care of their own needs and are not aware of supportive services. Our study explores the unmet needs of cancer caregivers in the palliative care setting. Methods: Over a tw

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Schaffler-Schaden, Dagmar, Simon Krutter, Alexander Seymer, Roland Eßl-Maurer, Maria Flamm, and Jürgen Osterbrink. "Caring for a Relative with Dementia: Determinants and Gender Differences of Caregiver Burden in the Rural Setting." Brain Sciences 11, no. 11 (November 15, 2021): 1511. http://dx.doi.org/10.3390/brainsci11111511.

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Dementia is a progressive disease that puts substantial strain on caregivers. Many persons with dementia (PwDs) receive care from a relative. Since male and female caregivers experience different issues related to stress, it is important to meet their different needs to prevent the early nursing home placement of PwDs. This study investigated the multifactorial aspects of caregiver burden and explored gender differences in caregiver burden in a rural setting. This was a cross sectional study that administered anonymous questionnaires to family caregivers of PwDs. Caregiver burden was assessed

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Prado, Lia, Rebecca Hadley, and Dawn Rose. "Taking Time: A Mixed Methods Study of Parkinson’s Disease Caregiver Participation in Activities in Relation to Their Wellbeing." Parkinson's Disease 2020 (April 9, 2020): 1–18. http://dx.doi.org/10.1155/2020/7370810.

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Objectives. Although many studies have shown that psychosocial interventions, such as dance classes, can improve quality of life for people with Parkinson’s disease (PD): few have addressed the role of, and potential benefits to, the caregivers in such activities. This mixed methods study explored the reasons for caregiver participation in a variety of activities and considered whether participation in, or abstention from these, affected the wellbeing of the caregivers. Method. Transcriptions of a focus group (two people with PD, two caregivers) and eight semistructured interviews (caregivers)

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Jabłoński, Marcin J., Francisco García-Torres, Paulina Zielińska, Alicja Bułat, and Piotr Brandys. "Emotional Burden and Perceived Social Support in Male Partners of Women with Cancer." International Journal of Environmental Research and Public Health 17, no. 12 (June 12, 2020): 4188. http://dx.doi.org/10.3390/ijerph17124188.

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Background: The aim of this study was to describe the correlations between the psychosocial burden on male caregivers and their perception of social support, as well as distress, anxiety, and depression among their partners in the first six months after a cancer diagnosis. Methods: A cross-sectional, longitudinal and observational study was conducted on a group of 61 couples, with the use of Zarit Burden Interview (ZBI), Caregiver Burden Scale (CBS), Berlín Social Support Scales (BSSS), Hospital Anxiety and Depression Scale (HADS) and Distress Thermometer (DT). Statistical analysis was perform

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Bueno, Michael, and Jo-Ana Chase. "A DUTY TO CARE: MALE PERSPECTIVES ON THE CAREGIVER ROLE FOR PERSONS WITH ALZHEIMER’S OR RELATED DEMENTIA." Innovation in Aging 6, Supplement_1 (November 1, 2022): 100. http://dx.doi.org/10.1093/geroni/igac059.397.

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Abstract The population of family caregivers (FCGs) of persons with Alzheimer's Disease and related Dementias (ADRD) is growing, as is the proportion of males taking on this traditionally female role. Most caregiving research has mainly focused on females. Although female caregivers have reported more negative outcomes, men still report significant levels of burden. With the aging population and increased need for caregivers, there is a gap in knowledge exploring the male caregiving experience. Understanding male caregiving experiences can inform clinicians on developing future strategies to t

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Fulton Picot, Sandra J., JoAnne Youngblut, and Richard Zeller. "Development and Testing of a Measure of Perceived Caregiver Rewards in Adults." Journal of Nursing Measurement 5, no. 1 (January 1997): 33–52. http://dx.doi.org/10.1891/1061-3749.5.1.33.

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Assessment of the rewards of caregiving is pertinent to a holistic view of the caregiving experience and design of health promotion interventions for caregivers. Few measures of caregiver positive appraisals exist. This paper describes the development and pilot testing of the Picot Caregiver Rewards Scale (PCRS) for adult caregivers. Derived from the choice and social exchange theory, caregiver interviews, and literature, 25 items compose the scale. Psychometric testings of the PCRS were conducted in a nonrandom sample of 83 Black female caregivers and a random sample of 256 Black and White fe

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Nogueira, Douglas José, Ruth Minamisava, Sheila Araujo Teles, Sandra Maria Brunini de Souza, Jacqueline Andréia Bernardes Leão Cordeiro, Denise Soares de Cirqueira, Virginia Visconde Brasil, et al. "Factors Associated with Marital Satisfaction and Quality of Life in Family Caregivers of Patients with Mental Disorders." International Journal of Environmental Research and Public Health 16, no. 16 (August 8, 2019): 2825. http://dx.doi.org/10.3390/ijerph16162825.

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(1) Background: The aim of this research was to analyze factors associated with quality of life (QoL) and marital satisfaction in married family caregivers of patients with mental disorders. (2) Methods: A cross-sectional study was conducted in all community mental health services in Goiania municipality, Brazil, in 2016–2017. Married family caregivers of patients with severe and persistent mental disorders were recruited and their QoL and marital satisfaction was assessed by using the World Health Organization Quality of Life Instrument Abbreviated version (WHOQOL-BREF) and Marital Satisfacti

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Mirzaei, Abasat, Rasoul Raesi, Sam Saghari, and Mehdi Raei. "Evaluation of Family Caregiver Burden among COVID-19 Patients." Open Public Health Journal 13, no. 1 (December 31, 2020): 808–14. http://dx.doi.org/10.2174/1874944502013010808.

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Background: Coronaviruses are a large group of viruses from the Coronaviridae family. Not only do the coronaviruses disrupt patients' lives, but they also affect caregivers. This study aimed to assess the burden of family caregivers of COVID-19 patients discharged from a hospital in eastern Iran. Materials and Methods: A descriptive cross-sectional study was conducted with 210 family caregivers of COVID-19 inpatients and outpatients. A total of 210 COVID-19 patients referred to 22nd-Bahman Hospital of Khaf from March 2020 to June 2020 were selected via simple randomization. Data were collected

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Su, Jian-An, and Chih-Cheng Chang. "Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia." International Journal of Environmental Research and Public Health 17, no. 8 (April 17, 2020): 2772. http://dx.doi.org/10.3390/ijerph17082772.

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Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relev

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Liang, Jiaming, and Maria Aranda. "The Role of Secondary Care Networks, Gender, and Race on Primary Caregiver Burden." Innovation in Aging 5, Supplement_1 (December 1, 2021): 490–91. http://dx.doi.org/10.1093/geroni/igab046.1893.

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Abstract In addition to primary caregivers, many older adults receive care from secondary care networks (SCN), which include family members and friends. Literature rarely considers support that SCN provided to primary caregivers. This study examines: (a) the association between SCN support and primary caregiver burden, and (b) the intersectional effects of gender (male/female)-race (White/Black) identities of primary caregivers on the association. A cross-sectional study using data from 2015 National Health and Aging Trend Study (NHATS) and National Study of Caregiving (NSOC) was conducted. A

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Kovaleva, Mariya A., Melinda Higgins, Bonnie M. Jennings, Mi-Kyung Song, Carolyn Clevenger, Patricia C. Griffiths, and Ken Hepburn. "PREDICTORS OF CHANGES IN WELL-BEING AMONG THE INTEGRATED MEMORY CARE CLINIC CLIENTS." Innovation in Aging 3, Supplement_1 (November 2019): S115. http://dx.doi.org/10.1093/geroni/igz038.425.

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Abstract The Integrated Memory Care Clinic (IMCC) at Emory Healthcare is a patient-centered medical home led by advanced practice registered nurses who seamlessly provide dementia care and primary care. This analysis explored predictors of significant changes in clients’ well-being and symptoms in clients’ first-year experience at the IMCC (N=42 caregivers, three assessments over nine months). The significant changes were decreases in caregivers’ distress regarding PLWDs’ delusions (Delusions-Distress) and PLWDs’ anxiety (Anxiety-Distress), and in PLWDs’ severity of delusions, depression, and

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Kahn, Phoebe V., Heather A. Wishart, Jennifer S. Randolph, and Robert B. Santulli. "Caregiver Stigma and Burden in Memory Disorders: An Evaluation of the Effects of Caregiver Type and Gender." Current Gerontology and Geriatrics Research 2016 (2016): 1–5. http://dx.doi.org/10.1155/2016/8316045.

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Despite considerable gains in public awareness of dementia, dementia patients and their caregivers continue to be stigmatized. Previous work has explored stigma and burden among adult children of persons with dementia in Israel, but no similar data exist for spousal caregivers or caregivers in general in the United States. This study examines the differences in stigma and burden experienced by spousal and adult child caregivers and male and female caregivers of persons with dementia. Eighty-two caregivers were given the Zarit Burden Inventory Short Form (ZBI) and the Caregiver Section of the F

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