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Journal articles on the topic 'Maternal lived experiences'
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1
Raley, R. Kelly, Michelle L. Frisco, and Elizabeth Wildsmith. "Maternal Cohabitation and Educational Success." Sociology of Education 78, no. 2 (2005): 144–64. http://dx.doi.org/10.1177/003804070507800203.
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Despite the dramatic increase in children's experiences in cohabiting families, little is known about how living in such families affects children's academic success. Extrapolating from two theoretical frameworks that have been commonly used to explain the association between parental divorce and educational outcomes, the authors constructed competing hypotheses about the effect of maternal cohabitation on educational expectations, achievement, and attainment. The analysis of data from the National Survey of Families and Households shows that children who lived with cohabiting mothers fared exceptionally poorly and sometimes were significantly worse off than were children who lived with divorced or remarried mothers. The authors conclude that studies that have ignored cohabitation have probably overestimated the negative effects of divorce on educational outcomes. High levels of family instability that are associated with cohabitation may be one reason why children whose mothers cohabit do less well than do children with other types of family experiences.
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Evans, Adam B., Jacquelyn Allen-Collinson, and Rachel Williams. "Risky bodies, risky spaces, maternal ‘instincts’: Swimming and motherhood." International Review for the Sociology of Sport 52, no. 8 (2016): 972–91. http://dx.doi.org/10.1177/1012690216633444.
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Swimming and aquatic activity are fields in which gendered, embodied identities are brought to the fore, and the co-presence of other bodies can have a significant impact upon lived experiences. To date, however, there has been little research on sport and physical cultures that investigates how meanings associated with space impact upon women’s embodied experiences of participating in swimming, specifically in the presence of their young children. Using semi-structured interviews and non-participant observations, this qualitative study employed a Foucauldian-feminist framework to explore self-perceptions and embodied experiences of aquatic activity amongst 20 women, who were swimming with children aged under four. Results highlight that through ‘felt’ maternal responsibilities, the co-presence of babies’ and children’s bodies shifted women’s intentionality away from the self towards their child. Mothers’ embodied experiences were grounded in perceptions of space-specific ‘maternal instincts’ and focused upon disciplining their children’s bodies in the lived-space of the swimming pool. Key findings cohere around mothers’ felt concerns about hygiene, water temperature and safety, and elements of intercorporeality and ‘somatic empathy’.
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Johnson, Nicole, and Janice Pascal. "Relational Distressed and Maternal Absence: Young Women's Lived Experience of Familial Breast Cancer." Illness, Crisis & Loss 26, no. 3 (2016): 200–222. http://dx.doi.org/10.1177/1054137316659419.
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Young women growing up within the context of familial breast cancer are faced with significant psychosocial challenges. The most profound of these are the temporary absence, and permanent loss, of their mothers. Eighteen young women (aged 18–34) from rural Victoria (Australia), with family histories of breast cancer, were interviewed for this study. The data were analyzed using hermeneutic Heideggerian phenomenology to explore their lived experiences. Our findings reveal the long term and pervasive consequences of relational distress associated with the temporary and permanent loss of mothers. This distress is experienced through disruptions to developmental attachment and embodied and biographical identity. We highlight how familial breast cancer extends beyond genetic inheritance to encompass the relational distress of loss and grief. We conclude by highlighting the importance of considering the ways in which temporality, self-identity, and daughters' ways of seeing themselves are significantly altered by their mothers' cancer experience.
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Brakman, Sarah-Vaughan, and Sally J. Scholz. "Adoption, ART, and a Re-Conception of the Maternal Body: Toward Embodied Maternity." Hypatia 21, no. 1 (2006): 54–73. http://dx.doi.org/10.1111/j.1527-2001.2006.tb00964.x.
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We criticize a view of maternity that equates the natural with the genetic and biological and show how such a practice overdetermines the maternal body and the maternal experience for women who are mothers through adoption and ART (Assisted Reproductive Technologies). As an alternative, we propose a new framework designed to rethink maternal bodies through the lens of feminist embodiment. Feminist embodied maternity, as we call it, stresses the particularity of experience through subjective embodiment. A feminist embodied maternity emphasizes the physical relations of the subjective lived-body rather than the genetic or biological connections. Instead of universalizing claims about the maternal body, embodied maternity looks to communicable experiences and empathetic understanding.
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Hull, Kimmelin, Kristen S. Montgomery, Pamela Vireday, and Kathleen Kendall-Tackett. "Maternal Obesity From All Sides." Journal of Perinatal Education 20, no. 4 (2011): 226–32. http://dx.doi.org/10.1891/1058-1243.20.4.226.
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This column features excerpts from a recent series of articles from the Lamaze International research blog, Science & Sensibility. The eight-part series examined the issue of maternal obesity from various perspectives, incorporating writings from Kimmelin Hull, a physician assistant, a Lamaze Certified Childbirth Educator, and the community manager of Science & Sensibility; Kristen Montgomery, a nursing professor at the University of North Carolina‐Charlotte; Pamela Vireday, a childbirth educator and blogger; and Kathleen Kendall-Tackett, a health psychologist, lactation consultant, and writer/speaker. The authors of the blog series, titled “Maternal Obesity from All Sides,” reviewed current research about risks associated with maternal obesity as well as the humanistic issues and lived experiences of pregnant women of size.
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Clifford, Gayle, Gill Craig, and Christine McCourt. "Mothering at a distance and disclosure of maternal HIV to children in Kingston, Jamaica." Population Horizons 15, no. 2 (2018): 55–65. http://dx.doi.org/10.1515/pophzn-2018-0004.
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Abstract Existing guidelines (WHO, 2011) advise caretakers and professionals to disclose children’s and their caretakers’ HIV status to children, despite a lack of evidence concerning the potential implications in resource-constrained settings. Our research uses feminist Interpretative Phenomenological Analysis (IPA) to explore the experiences of HIV positive mothers in Kingston, Jamaica, focusing on their lived experiences of talking to their children about maternal HIV. This paper will focus on the concept of mothering at a distance and how this presents additional challenges for HIV positive mothers who are trying to establish emotional closeness in relation to talking to their children about their HIV. Using Hochschild’s concept of emotion work and examples from the interviews, we highlight the difficult contexts informing women’s decisions when negotiating discussions about their HIV. Women may choose full, partial or differential disclosure or children may be told their mother’s HIV status by others. Disclosure policy, we argue, reflects Anglo-Northern constructions of the family and parenting which may not adequately reflect the experiences of poor urban mothers in low and middle income countries. We argue that policy needs to recognise culturally-specific family formations, which, in Jamaica includes absent fathers, mothering at a distance and mothering non-biological children. This article reflects on the experiences of an under-researched group, poor urban Jamaican women practising mothering at a distance, using a novel methodological approach (IPA) to bring into relief unique insights into their lived experiences and will contribute to the global policy and research literature on HIV disclosure.
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Larner, Lisa, and Claire Hooks. "Against the grain: midwives' experiences of facilitating home birth outside of guidelines." British Journal of Midwifery 28, no. 6 (2020): 370–76. http://dx.doi.org/10.12968/bjom.2020.28.6.370.
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Background Midwifery standards promote autonomous decision-making and informed choice, resulting in maternal home birth choices which may contravene guidelines. There is a paucity of evidence exploring midwives' experiences of managing these choices. Aims To explore the lived experiences of midwives facilitating home birth outside of guidelines. Methods A qualitative design using an interpretive hermeneutic cycle to analyse semi-structured interviews. Findings Participants reported confidence in supporting maternal choices, identifying barriers including other birth supporters. Perceived levels of risk, previous experience and safety concerns impacted on confidence. Peer, unit and professional midwifery advocate (PMA) support were identified as being beneficial to midwives. Recommendations Expansion of birth choices clinics; implementation of dedicated home birth teams; guideline review for midwife led birthing units; expansion of the PMA role; implementation of a structured debriefing service and further research looking at women's choices, and the impact of the loss of midwifery supervision.
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You, Sun Young, and Ah Rim Kim. "South Korean nurses’ lived experiences supporting maternal postpartum bonding in the neonatal intensive care unit." International Journal of Qualitative Studies on Health and Well-being 15, no. 1 (2020): 1831221. http://dx.doi.org/10.1080/17482631.2020.1831221.
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Corrado, Ann Marie. "The detrimental effects of obstetric evacuation on Aboriginal women’s health." University of Western Ontario Medical Journal 86, no. 2 (2017): 28–29. http://dx.doi.org/10.5206/uwomj.v86i2.2000.
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In Western society, many colonial practices, such as the removal of Aboriginal women from their communities prior to birth, still detrimentally affects Aboriginal peoples’ lives. Health Canada’s evacuation policy for pregnant Aboriginal women living in rural and remote areas involves nurses, who are employed by the federal government, coordinating the transfer of all pregnant women to urban cities at 36-38 weeks gestational age to await the birth of their baby.1 The policy states that it is founded on concerns for the wellbeing of Aboriginal women, in an attempt to “curb First Nations’ child and maternal mortality rates”.1 However, there is a need to problematize the practice of obstetric evacuation given its colonial roots and its impact on Aboriginal women. The objective of this review paper is to explore and bring awareness to some of the consequences of Canada’s evacuation policy for pregnant Aboriginal women who live in rural and remote regions. Morespecifically, this paper, drawing on ethnographic research previously conducted with Canadian Aboriginal women on their lived experiences of prenatal care and birth, will examine the lack of social support, loss of control, and lack of culturally competent care that Aboriginal women face. The findings demonstrate an urgent need for policy makers to also consider the lived experience of Aboriginal women when making decisions that impact their health.
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BARTLETT, VIRGINIA L., and MARK J. BLITON. "Retrieving the Moral in the Ethics of Maternal-Fetal Surgery." Cambridge Quarterly of Healthcare Ethics 29, no. 3 (2020): 480–93. http://dx.doi.org/10.1017/s0963180120000225.
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Open-uterine surgery to repair spina bifida, or ‘fetal surgery of open neural tube defects,’ has generated questions throughout its history—and continues to do so in a variety of contexts. As clinical ethics consultants who worked (Mark J. Bliton) and trained (Virginia L. Bartlett) at Vanderbilt University—where the first successful cases of open-uterine repair of spina bifida were carried out—we lived with these questions for nearly two decades. We worked with clinicians as they were developing and offering the procedure, with researchers in refining and studying the procedure, and with pregnant women and their partners as they considered whether to undergo the procedure. From this experience in the early studies at Vanderbilt, we learned that pregnant women and their partners approach the clinical uncertainty of such a risky procedure with a curious and unique combination of practicality, self-reflection, fear, and overwhelming hope. These early experiences were a major contributing factor to the inclusion of an ethics-focused interview in the informed consent process for the Management of Myelomeningocele Study (MOMS) trial study design.
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Henning, Margaret J., Joseph M. Zulu, Charles Michelo, Stephanie Simmons Zuilkowski, and Candace Hubner. "Adolescent Mothers’ Experiences With Community Health Assistants in Rural Zambia." International Quarterly of Community Health Education 40, no. 4 (2019): 353–61. http://dx.doi.org/10.1177/0272684x19896737.
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Adolescent health demands specific attention because adolescents have the lowest levels of health-care coverage of any age-group globally. The main objective as addressed in this article was to explore the lived experience of adolescent mothers and the services provided to them by community health assistants (CHAs) in rural Zambia. Because the number of adolescent mothers in rural Zambia is so high, it is even more critical to describe the lived experiences of health care among these young women with particular emphasis on primary health care as delivered by CHAs in rural Zambia. We used a mixed-methods design to address our research questions. Data were collected from nine focus groups, which were conducted with young mothers from four provinces and 10 districts ( n = 60). To support our effort to better understand the delivery of maternal and child health care in rural Zambia, key informant interviews were conducted with adolescent mothers ( n = 12). We also conducted surveys ( n = 44) and one-on-one interviews ( n = 22) with CHAs. To the best of our knowledge, this is the largest study focused on the intersection of adolescents, maternal child health, and CHA delivery of care in Zambia. The results of our study suggest opportunities for change to operational practices within the rural health-care setting and the need to develop structured and age-appropriate services that focus on adolescents. This work addresses the gap in research for adolescents in health care in rural Zambia and brings attention to the unique health-care needs of adolescent mothers within the rural health-care setting.
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Papadopoulos, Dimitrios. "Mothers’ Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study." Brain Sciences 11, no. 3 (2021): 309. http://dx.doi.org/10.3390/brainsci11030309.
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Although the study of autism is burgeoning with important implications both for public health and society, there is little research exploring the experiences of raising a child with autism spectrum disorder (ASD) from the maternal perspective. The aim of this study was to investigate the lived experiences of mothers of children with ASD in Greece. Nine mothers of children with ASD were recruited and engaged in semistructured interviews. Transcripts of the interviews were analyzed using interpretative phenomenological analysis. Three interconnected themes were identified in the analysis: (a) emotional burden, (b) family burden, and (c) social burden. A key finding in the themes was the sense of burden, distress, and vulnerability experienced by the mothers. The findings provide valuable understanding of the experiences of mothers raising children with ASD in one of Europe’s medium-income countries. Further, results can be used by researchers, clinicians, mental health providers, and policy makers to address the unique needs of families caring for and supporting children with ASD.
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Llewellyn, Dawn. "Maternal Silences: Motherhood and Voluntary Childlessness in Contemporary Christianity." Religion and Gender 6, no. 1 (2016): 64–79. http://dx.doi.org/10.18352/rg.10131.
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In Christianity, there is an ideology of motherhood that pervades scripture, ritual, and doctrine, yet there is an academic silence that means relatively little space has been given to motherhood and mothering, and even less to voluntary childlessness, from a faith perspective. By drawing on qualitative in-depth interviews with Christian women living in Britain, narrating their experiences of motherhood and voluntary childlessness, I suggest there are also lived maternal silences encountered by women in contemporary Christianity. There is a maternal expectation produced through church teaching, liturgy and culture that constructs women as ‘maternal bodies’ (Gatrell 2008); this silences and marginalises women from articulating their complex relationship with religion, motherhood, and childlessness in ways that challenge their spiritual development. However, this article also introduces the everyday and intentional tactics women employ to disrupt the maternal expectation, and hereby interrupt the maternal silence.
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Chemutai, Violet, Julius Nteziyaremye, and Gabriel Julius Wandabwa. "Lived Experiences of Adolescent Mothers Attending Mbale Regional Referral Hospital: A Phenomenological Study." Obstetrics and Gynecology International 2020 (November 23, 2020): 1–11. http://dx.doi.org/10.1155/2020/8897709.
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Background. Adolescence is a period of transition from childhood to adulthood, and is a critical stage in ones’ development. It is characterized by immense opportunities and risks. By 2016, 16% of the world’s population was of adolescents, with 82% residing in developing countries. About 12 million births were in 15–19 year olds. Sub-Saharan Africa, particularly East Africa, has high adolescent pregnancy rates, as high as 35.8% in eastern Uganda. Maternal mortality ratio (MMR) attributable to 15–19 years olds is significant with 17.1% of Uganda’s MMR 336/100.000 live births being in this age group. Whereas research is awash with contributing factors to such pregnancies, little is known about lived experiences during early motherhood. This study reports the lived experiences of adolescent mothers attending Mbale Hospital. Materials and Methods. A phenomenological study design was used in which adolescent mothers that were attending Young Child Clinic were identified from the register and simple random sampling was used to select participants. We called these mothers by way of phone numbers and asked them to come for focus group discussions that were limited to 9 mothers per group and lasting about 45 minutes–1 hour. Ethical approval was sought and informed written consent obtained from participants. At every focus group discussion, the data which had largely been taken in local languages was transcribed and translated verbatim into English. Results. The research revealed that adolescent mothers go through hard times especially with the changes of pregnancy and fear of unknown during intrapartum and immediate postpartum period and are largely treated negatively by family and other community members in addition to experiencing extreme hardships during parenting. However, these early mothers’ stress is alleviated by the joy of seeing their own babies. Conclusion. Adolescent motherhood presents a high risk group and efforts to support them during antenatal care with special adolescent ANC clinics and continuous counseling together with their household should be emphasized to optimize outcome not only during pregnancy but also thereafter. Involving these mothers in technical courses to equip them with skills that can foster self-employment and providing support to enable them pursue further education should be explored.
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Lorenze, Donna Lee. "Women's Lived Experiences of Giving Birth in Ghana: A Metasynthesis of the Literature." International Journal of Childbirth 10, no. 3 (2020): 126–39. http://dx.doi.org/10.1891/ijcbirth-d-20-00015.
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BACKGROUNDThe purpose of this metasynthesis is to analyze women's lived experiences of giving birth in Ghana during and after the Millennium Development Goals (MDGs), when health policy in Ghana was changed to urge women to birth in health services with skilled attendants.METHODAn interpretive phenomenological framework guided the review of the literature. Three electronic databases were searched as well as reference lists and author searches. Articles that met the screening criteria for inclusion were coded and thematically analyzed, then drawn together to construct the essence of women's experiences of giving birth in Ghana.RESULTSSeven themes were constructed from the data and these were poor quality health services, maltreatment by midwives, mixed emotions about pregnancy and childbirth, supernatural fears, women wanting safe births with skilled birth attendants, uncertainty about reaching a health facility, and decision-making hierarchy. There were three counter themes and these were women wanting a home birth with a traditional midwife, defiance against dominant decision-makers by some women, and a belief that “not all nurses are bad.”CONCLUSIONGhanaian women have heeded the MDGs and health policy messages to birth with skilled attendants, but in reality, they are not always accessible, available, appropriate, or of high quality. Maternal health services still need much improvement including more resources such as staff, essential services, medicines, and quality assurance standards.
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Butean, Silvia. "Reflected Bodies: Women’s Perspectives on the Marital Experience and the Transformation of the Maternal Body. A Case Study of Middle-Class Women in Suburban Romania." Studia Universitatis Babes-Bolyai Sociologia 6, no. 2 (2015): 21–38. http://dx.doi.org/10.1515/subbs-2015-0008.
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Abstract Even if concepts of marriage and motherhood are subject to continuous changes and reinterpretations, women and men still marry and have children following more traditional or more unconventional patterns. My major interest in this research was to unveil Romanian middle-class women’s narratives regarding their perceptions over their own bodies and identities, by focusing my analysis on lived experiences, intimate scenes, daily practices and activities within marriage and motherhood. Qualitative empirical work was conducted in 2012 and 2015 in a post-socialist suburban neighbourhood, known as a place mostly inhabited by young, middle-class families. The analysis unfolds women’s class affinities and dispositions, their perception of the marital experience, identity and corporeal transformations, and their reflections on maternity as a transformative stage in terms of subjectivity, agency and body.
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Zall, Donald s. "The Long Term Effects of Childhood Bereavement: Impact on Roles as Mothers." OMEGA - Journal of Death and Dying 29, no. 3 (1994): 219–30. http://dx.doi.org/10.2190/b93c-ndxk-5n6b-kfe6.
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This study explored the effects of early maternal bereavement on future maternal functioning by comparing life experiences of twenty-eight mothers whose mother died in childhood or adolescence with twenty-three women who lived with both parents through adolescence. The bereaved participants showed more severe symptoms of depression, including suicidality, in adolescence. Given this level of depression, expectations were that they would have difficulty as parents. The bereaved women worried more about their own death, were overprotective, and pushed harder to be perfect, but there were no significant differences between the groups on three measures of parental functioning. It is hypothesized that parenting presented an opportunity for resolution of earlier developmental deficits and provided an impetus for mourning to proceed.
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Park, Seungmi, and Soo-Young Yu. "Breastfeeding experiences of women with gestational diabetes." Journal of Korean Academic Society of Nursing Education 27, no. 3 (2021): 274–86. http://dx.doi.org/10.5977/jkasne.2021.27.3.274.
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Purpose: This study aimed to explore the lived experiences of breastfeeding women with gestational diabetes and to understand the meaning of breastfeeding for them and its encompassing context. Methods: Qualitative data were collected by interviewing 15 mothers with gestational diabetes. The transcript data from 5 focus group interviews and 2 individual interviews were analyzed using thematic analysis. Results: A core theme and 10 sub-themes emerged. The core theme that emerged was "the maternal commitment enabled for a limited time a way to compensate for guilt." Because mothers had to control their blood sugar levels before childbirth, they were worried about whether it would harm the newborn baby and thus searched for dietary information. After the babies were born and separated from their mothers, they were free from gestational diabetes. Mothers then felt guilty about their unhealthy bodies when they were pregnant. This regret provides a motivational context for breastfeeding. However, the mothers realized that breastfeeding requires commitment and dedication and that they need breastfeeding support, such as being provided practical help. Conclusion: The results showed that the breastfeeding intention of women with gestational diabetes might originate from their feelings of guilt. Therefore, an integrated breastfeeding program that combines the empathetic support of women with similar experiences and that shares practical information from experts should be implemented in a structured and systematic way.
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Jidong, Dung Ezekiel, Nusrat Husain, Christopher Francis, et al. "Mental health experiences of mothers in Jos, Nigeria: An interpretative phenomenological analysis." SAGE Open Medicine 9 (January 2021): 205031212097071. http://dx.doi.org/10.1177/2050312120970714.
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Objectives: There is an increasing mental health disease burden in mothers with infants and young children, especially in low- and middle-income countries such as Nigeria. Children of distressed mothers suffer early-life exposure from the effects of maternal distress which contributes to the risk of physical and mental health problems in their childhood and beyond. This study explored mental health lived experiences of mothers in Jos, Nigeria. Methods: Purposive and Snowball sampling techniques were adopted, and a total of 40 mothers participated with 8 to 11 participants in one of the four focus group discussions. Participants were between the ages of 18 and 43 years, self-identified as mothers with each having a child between the ages of 3 and 48 months. Each focus group lasted approximately 60 minutes and was audio-recorded. Interviews were transcribed verbatim and analysed using interpretative phenomenological analysis. Results: Three overarching themes emerged from the data set such as (1) experience of persisting psychological distress from the time of labour/birth; (2) cultural practices that influence feelings; and (3) anxiety due to limited knowledge about childcare, access to support and healthy food. Conclusion: Maternal mental health in Nigeria is under-researched and distressed mothers have limited knowledge about evidence-based early child development. The study recommends developing and testing culturally appropriate parenting interventions in Jos, Nigeria. This is likely to be beneficial for the mother and may also improve child health outcomes.
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Athavale, Priyanka, Nehaa Khadka, Shampa Roy, et al. "Early Childhood Junk Food Consumption, Severe Dental Caries, and Undernutrition: A Mixed-Methods Study from Mumbai, India." International Journal of Environmental Research and Public Health 17, no. 22 (2020): 8629. http://dx.doi.org/10.3390/ijerph17228629.
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In India, globalization has caused a nutrition transition from home-cooked foods to processed sugary snacks and drinks, contributing to increased early childhood caries (ECC). This mixed-methods study describes risk factors for ECC and associations with undernutrition in low-income communities in Mumbai. Interviews with mothers of 959 children, ages six-months through six-years, addressed maternal-child nutrition and oral health, and children received dental exams and anthropometric assessments. Focus groups with community health workers and mothers explored experiences and perceptions of oral health, nutrition, and ECC. Descriptive and logistic regression analyses of quantitative data, and content analysis of qualitative data were performed. Eighty percent of children lived 5 min from a junk-food store, over 50% consumed junk-food and sugary tea daily, 50% experienced ECC, 19% had severe deep tooth decay, 27% experienced mouth pain, and 56% experienced chronic and/or acute malnutrition. In children ages 3–6, each additional tooth with deep decay was associated with increased odds of undernutrition (Odds Ratio [OR] 1.10, Confidence Interval [CI] 1.02–1.21). Focus groups identified the junk-food environment, busy family life, and limited dental care as contributors to ECC. Policy interventions include limits on junk-food marketing and incorporating oral health services and counseling on junk-food/sugary drinks into maternal–child health programs.
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Dixon, Lesley, Eva Neely, Alison Eddy, Briony Raven, and Carol Bartle. "Maternal socio-economic disadvantage in Aotearoa New Zealand and the impact on midwifery care." New Zealand College of Midwives Journal 56 (December 1, 2020): 26–34. http://dx.doi.org/10.12784/nzcomjnl56.2020.4.26-34.
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Background: Maternal socio-economic disadvantage affects the short- and long-term health of women and their babies, with pregnancy being a particularly vulnerable time. Aim: The aim of this study was to identify the key factors that relate to poverty for women during pregnancy and childbirth (as identified by midwives), the effects on women during maternity care and the subsequent impact on the midwives providing that care. Method: Survey methodology was used to identify Aotearoa New Zealand midwives’ experiences of working with women living with socio-economic disadvantage. Findings: A total of 436 midwives (16.3%) who were members of the New Zealand College of Midwives responded to the survey, with 55% working in the community as Lead Maternity Care midwives, or caseloading midwives, and the remainder mostly working in maternity facilities. The survey results found that 70% of the cohort of midwives had worked with women living with whānau (family) /friends; 69% with women who had moved house during pregnancy due to the unaffordability of housing; 66% with women who lived in overcrowded homes; and 56.6% with women who lived in emergency housing, in garages (31.6%), in cars (16.5%) or on the streets (11%). The cohort of midwives identified that women’s non-attendance of appointments was due to lack of transport and lack of money for phones, resulting in a limited ability to communicate. In these circumstances these midwives reported going to women’s homes to provide midwifery care to optimise the chances of making contact. The midwives reported needing to spend more time than usual referring and liaising with other services and agencies, to ensure that the woman and her baby/ family had the necessities of life and health. This cohort of midwives identified that women’s insufficient income meant that midwives needed to find ways to support them to access prescriptions and transport for hospital appointments. The midwives also indicated there was a range of social issues, such as family violence, drugs, alcohol, and care and protection concerns, that directly affected their work. Conclusion: Recognising the impact of socio-economic disadvantage on maternal health and wellbeing is important to improving both maternal and child health. This cohort of midwives identified that they are frequently working with women living with disadvantage; they see the reality of women’s lives and the difficulties and issues they may face in relation to accessing physical and social support during childbirth.
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Ierardi, Janet A., Heidi Collins Fantasia, Barbara Mawn, and Jeanne Watson Driscoll. "The Experience of Men Whose Partners Have Postpartum Depression." Journal of the American Psychiatric Nurses Association 25, no. 6 (2019): 434–44. http://dx.doi.org/10.1177/1078390319849102.
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BACKGROUND: The correlation of paternal depressive symptomatology to maternal postpartum depression can approach 50%. Paternal depression during a female partner’s postpartum time period can include feelings of fear, confusion, frustration, anger, helplessness, and lack of support. There are only a few published studies that address the interaction between paternal and maternal mental health during the postpartum period. AIMS: The purpose of this study was to gain insight into the experiences of men whose partners had postpartum depression as a foundation for intervention and program development. METHOD: This qualitative study used a descriptive phenomenological approach. A purposive sample of 10 men who lived with a partner diagnosed with postpartum depression was recruited via flier postings in mental health clinics, a perinatal mental health email listserv, and word-of-mouth. Single, audiotape-recorded interviews were completed. Qualitative data analysis was used to reduce initial coding to final themes that described participant experiences. RESULTS: The participants described efforts to provide support and care for their families; their efforts not to make things worse; their fears, anxieties, and physical responses; and the isolation associated with not knowing how to ask for help. The five themes included needing to support partners, maintaining stability, experiencing mutual symptoms, feeling isolated, and providing insight for others. CONCLUSIONS: Depression is known to have a negative effect on all members of a family. It is imperative that fathers’ experiences are understood in order to fill this gap in caring for families.
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Williams, Mai’a. "Radical Mothering as a Pathway to Liberation." Millennium: Journal of International Studies 47, no. 3 (2019): 497–512. http://dx.doi.org/10.1177/0305829819852418.
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I weave several threads in this essay, including the history of obstetrics and traditional Black midwifery, the devastating statistics of Black infant and maternal mortality rates, the experiences of eastern Congolese mama activists, the written and lived testimonies of Black North American mama activists, and my personal narratives to illustrate that the practice of mothering is fundamental to creating co-liberatory revolutionary movements and societies. This essay shows how mama activists, in particular Black mama activists, are taking great risks to their lives in the face of white patriarchal structures and in the midst of the ‘afterlife of slavery’ in order to honour the fallen and create a more just future. It also questions scholar-activists as to how they, whose scholarship is built off of the work of these mama activists, redistribute the life and death risk that mama activists shoulder to create the just world scholar-activists claim to desire.
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Lee, Youjung, and Sok An. "GRANDPARENTS RAISING GRANDCHILDREN IN KOREA: CULTURAL UNDERSTANDING OF MULTIGENERATIONAL CAREGIVING." Innovation in Aging 3, Supplement_1 (2019): S486. http://dx.doi.org/10.1093/geroni/igz038.1804.
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Abstract Korean grandparents raising their grandchildren play significant roles as social and family resources in Korea. They experience caregiving stress that negatively influences their mental health while struggling with limited social support from peers, and minimal respite care and community resources. Despite a need for resources and information concerning this growing population, there is limited knowledge on Korean custodial grandparents, especially the distinctive cultural factors influencing their multigenerational caregiving experiences. This qualitative study explored Korean custodial grandparents’ experiences of raising grandchildren and cultural meanings of multigenerational caregiving. Using a phenomenological approach, semi-structured interviews with 23 custodial grandparents were conducted from December 2018- January 2019 in two urban and three rural places in Korea. Among the grandparents, five were grandfathers. The mean age of the grandparents was 72 years old (range: 61-82), and the mean age of their grandchildren was 13 years old (range: 1-21). On average, the grandparents had raised 1.5 grandchildren (range: 1-3) for 11 years (range: 1.5-20). Four key themes emerged from the general structure of the lived experiences of Korean grandparents: a) intensive child care support from the grandchildren’s uncle and aunt; (b) stigma of a child’s divorce and custodial grandparenting; (c) different social expectations toward maternal grandparents; and (d) increased needs on financial educational support for grandchildren. The finding reinforces the significant function of collectivistic and family-based Asian culture in understanding experiences of Korean custodial grandparents. It also highlights society’s view of only men carrying forward family lineage and its implications on grandparents’ perceptions about multigenerational caregiving.
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González, Melva Patricia Ocampo, and Edelmira Castillo Espitia. "Caring for a premature child at home: from fear and doubt to trust." Texto & Contexto - Enfermagem 23, no. 4 (2014): 828–35. http://dx.doi.org/10.1590/0104-07072014003280013.
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Being a mother is the result of a process that involves the development of a strong maternal identity, begins during pregnancy, and includes the child's first months of life. This process thrives on the constant mother-child interaction. In order to know the lived experiences of mothers of previously hospitalized premature infants while assuming the child's care at home, a phenomenological study involving ten mothers was conducted. Findings indicate that the separation of the dyad during hospitalization imposes limitations, which prevent women from taking on the new role with confidence and joy. It is important to empower the nursing staff in neonatal units toward implementing strategies for early and continuous mother-child contact that will support women in the process of becoming mothers.
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Kinser, Patricia, Nancy Jallo, Leroy Thacker, Christine Aubry, and Saba Masho. "Enhancing Accessibility of Physical Activity During Pregnancy: A Pilot Study on Women’s Experiences With Integrating Yoga Into Group Prenatal Care." Health Services Research and Managerial Epidemiology 6 (January 1, 2019): 233339281983488. http://dx.doi.org/10.1177/2333392819834886.
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Introduction: Health guidelines suggest that pregnant women should participate in daily physical activity, yet rarely do they meet these guidelines. Means to enhance accessibility of physical activity for pregnant women are required, and yoga has been suggested as a possible method to enhance women’s sense of confidence and competence with physical activity. In this pilot study, our primary aim is to evaluate pregnant women’s perceptions about their lived experience of an intervention which integrates a low-intensity form of physical activity, yoga, into prenatal care; our secondary aim is to evaluate changes in participants’ self-efficacy for physical activity and time spent in physical activity over time. Methods: Held in an outpatient obstetrics department of an urban hospital system in the United States, this pilot study enrolled 16 pregnant women to participate in the intervention throughout their pregnancy. We explored participants’ lived experience of the intervention using qualitative methods (phenomenology). Means, variances, and covariances were calculated for the 2 measures (self-efficacy and time spent in physical activity) over the intervention period. Results: Qualitative findings from focus groups suggest that it is acceptable for prenatal yoga to be integrated into group prenatal care classes and women reported increased confidence with physical activity during pregnancy. Participants did not consider the intervention to fit within the traditional definition of exercise. Women reported increased amounts of time spent in physical activity from baseline to the end of pregnancy, but there were no statistically significant changes in self-efficacy over time. Discussion: The integration of gentle physical activity into the group prenatal care model warrants further attention for potential benefits with regard to maternal physical and mental wellness.
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Nyashanu, Mathew, Thamary Karonga, and Fungisai Mushawa. "Exploring the lived experiences of first-time mothers and their partners affected by post-natal depression in rural Sanyati district, Zimbabwe." International Journal of Reproduction, Contraception, Obstetrics and Gynecology 9, no. 7 (2020): 2759. http://dx.doi.org/10.18203/2320-1770.ijrcog20202704.
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Background: First time mothers and their partners are faced with a number of challenges including learning new skills and changing roles to meet the baby’s needs. support the new baby. Although an exciting time, the early days of first-time parents is filled with excitement as well as challenges in adapting their lifestyle resulting in pressure and anxiety to look after the baby. The objective of this study was to explore the lived experiences of first-time mothers and their partners affected by post-natal depression (PND) among rural communities.Methods: A collaborative exploratory qualitative approach underpinned by interpretive phenomenological analysis (IPA) was employed. Semi-structured interviews were conducted on ten (10) first time mothers and their partners who came for six-week post-natal care and for growth monitoring up to 6 months post-delivery at Sanyati Baptist hospital. Data were analysed using a thematic approach and guided by the four stages of data analysis in interpretive phenomenological analysis (IPA). N-vivo was used to organize the data to enhance management during analysis.Results: The study showed that first time parents from rural communities felt trapped with childbirth, overwhelmed by changes, resultant disruptive relationships, lack of support and bouts of depression.Conclusions: There is need to improve maternal support for first time mothers in rural communities. First time fathers need to learn new skills and adapt in supporting the baby and mother to prevent depression and marital breakdown.
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Zivot, Chloe, Cate Dewey, Cole Heasley, Sharada Srinivasan, and Matthew Little. "Exploring the State of Gender-Centered Health Research in the Context of Refugee Resettlement in Canada: A Scoping Review." International Journal of Environmental Research and Public Health 17, no. 20 (2020): 7511. http://dx.doi.org/10.3390/ijerph17207511.
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Interdisciplinary health research that investigates gender as a relational process is necessary to facilitate a safe and healthy resettlement process for refugees in Canada. This scoping review explores the range, nature, and extent of published research examining gender in relation to refugee health during resettlement in Canada. An initial search of six databases yielded 7325 articles published before June 2019. A total of 34 articles published between 1988 and 2019 were included for in-depth review. Articles meeting inclusion criteria primarily focused on refugee women. Categories of focus included maternal health, social and emotional health, health impacts of sexual and gender-based violence and torture, access to health and social services, decision-making and health-seeking behavior, mental health, and sexual and reproductive health. Our thematic analysis identified connections between gender roles, expectations, ideals, and health through interactions and lived experiences within the family, community, and healthcare system. Review findings suggest that many refugee women are influenced by pervasive gender roles and expectations as well as exposed to gendered health systems and practices that may pose risks to health, particularly mental health and access to services. Further efforts should be made to understand processes and experiences of resilience and community building in countering negative impacts of gendered beliefs and practices on health during resettlement.
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Andrews, Molly. "Memories of mother." Narrative Inquiry 12, no. 1 (2002): 7–27. http://dx.doi.org/10.1075/ni.12.1.04and.
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One of the most dominant cultural narratives is ‘the story of mothering’ but as many researchers have documented, there is a large chasm between this cultural product and individuals’ lived experiences of mothering and being mothered. When individuals talk about their relationships with their mothers, they locate themselves knowingly or not politically, economically, and historically. This article analyses data based on in-depth interviews with four men and women between the ages of seventy-five and ninety, and explores the stories they tell about the role of their mothers in relation to the children they were and the adults they became. Of the four cases presented, two involve child beating, in one the mother is absent from the time of the speaker’s early childhood, and one is an account of maternal depression. However, as these individuals recount their early memories of their mothers, they do so as people who have developed significantly since that time. Implicitly challenging the deterministic mother-blaming which lies at the heart of key cultural narratives, these men and women reveal a deep level of understanding both personal and political of the difficult circumstances which form the context of many peoples’ experiences of mothering and being mothered.
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Sousa, Cindy, Mona el-Zuhairi, and Manahil Siddiqi. "“The utmost strength I can bear”: Strategies and psychological costs of mothering within political violence." Feminism & Psychology 30, no. 2 (2020): 227–47. http://dx.doi.org/10.1177/0959353520912971.
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Though certainly not women's only site of identity or set of responsibilities in conflict settings, motherhood represents a distinct challenge within political violence. Yet, given the paucity of research on the topic, we still are operating without a clear understanding of how political violence jeopardizes maternal well-being and care-taking practices. Drawing on feminist perspectives on mothering, in the analyses presented here, the authors use content analysis to explore mothering and political violence from five focus groups with women in Palestine. Results demonstrate the considerable suffering mothers and children endure in war; the work mothers do to promote children’s well-being in this context; and how these efforts exhaust the psychological resources of mothers. Findings enhance a relatively small body of knowledge about the lived experiences of mothers within conflict settings, and point to the importance of tending to the strategies and needs of mothers who navigate political violence with and for their children.
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Nguyen-Truong, Connie Kim Yen, Jacqueline Leung, and Kapiolani Micky. "Cultural Narratives of Micronesian Islander Parent Leaders: Maternal and Children's Health, the School System, and the Role of Culture." Asian/Pacific Island Nursing Journal 4, no. 4 (2020): 173–82. http://dx.doi.org/10.31372//20190404.1078.
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Background: In Oregon in the United States’ Pacific Northwest, Native Hawaiians/ Pacific Islanders including Micronesian Islanders (MI) substantially grew by 68%; however, research is sparse. This is often due to data aggregation as Asian and Pacific Islanders and community members’ reluctance and wariness to participate in research due to a history of unethical research in the Pacific. The MI community experienced miscarriages, stillbirths, and mental intellectual and developmental disabilities. Organizational MI community leaders expressed a need to explore the voices of MI parent leaders. The purpose of the qualitative descriptive pilot study was to explore the perceptions and experiences of Micronesian Islander parent leaders (MIPL) with maternal and children’s health, the school system, and the influence of culture. Methods: A trained MI community health worker recruited eight MIPL from an urban area of the Pacific northwest in the U.S. A group level assessment included illustrative storytelling and is a participant-driven qualitative method that guided data collection and analysis in real-time with MIPL. The discussions lasted for 90 minutes. MIPL shared stories by writing and drawing pictures onto the flip chart papers, transcribed main points, and analyzed the data with researchers. Researchers recorded field notes of the interactions. Researchers debriefed with MIPL to assure trustworthiness and credibility of the findings. Findings: MIPL are Compact of Free Association citizens. Their age ranged from 26 to 42 years, have lived in the U.S. an average of 12.63 years, and most reported having less than $15,000 total household income before taxes. Four main themes were identified: MI cultural identity, English language and MI culture disharmony, zero or delayed prenatal care, and uncertainty for the future of MI children who have disabilities or developmentally delayed as they progress through the school system. Conclusion: Health care providers including nurses and school officials need to have a culturally specific understanding of the MI community and must consider their needs, culture, and language barriers.
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Castillo-Cedeño, Rocío, Patricia Ramírez-Abrahams, and Lilian Susana Ruíz-Guevara. "Necesidades de formación profesional en el ámbito de la primera infancia: Percepción y aportes del estudiantado." Revista Electrónica Educare 21, no. 1 (2016): 1. http://dx.doi.org/10.15359/ree.21-1.9.
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The analysis and information presented in this article are part of an experience developed in the research project Primera infancia: hacia una propuesta de formación contextualizada y pertinente [Early Childhood: Toward a Proposal of a Professional, Contextualized, and Pertinent Formation] of the Basic Education Division at the National University of Costa Rica. The information was collected with the purpose of identifying the needs for professional formation on the field of early childhood, through the perception and contributions of students in levels V and VII of their undergraduate degree in the Pedagogy career with a concentration in preschool education. This is an exploratory-type investigation aiming to know the opinions and perceptions of the students in relation with the process they go through at the university. For it, we used a questionnaire of seven open questions related to the needs of formation and concrete experiences lived during this process. As a result from this study, the analysis had a descriptive conclusion when exploring the main needs of the students. The information collected was complemented with the theory of investigation known, the contributions for the review of the whole preschool study plan, and all the knowledge built during the research project aforementioned. One of the main findings is that most of the students expressed that their formation lacks of the professional instrumentation to work with children aged zero to four years. They also said that it is very important to start working in a similar process on the earlier stages Pedagogy covers like maternal cycle and early stimulation. This systematization and analysis of the students’ perception is an effort to support the review of the study plan for the Pedagogy career with concentration in preschool education. The help of the students’ perceptions and experiences is a fundamental contribution in order to build a contextualized and relevant proposal; this is the main part of the research project aforementioned.
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Abbott, Pamela. "Cultural Trauma and Social Quality in Post—Soviet Moldova and Belarus." East European Politics and Societies: and Cultures 21, no. 2 (2007): 219–58. http://dx.doi.org/10.1177/0888325407299774.
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This article looks at influences on the social quality of the lives of the citizens of Belarus and Moldova in the context of the traumatic shock—economic, political, and social—experienced after 1991. It argues that lived experience— how people evaluate their condition—is as significant an influence on their welfare as the actual circumstances in which they live. The majority of respondents perceive the post-1991 economic and political changes negatively, and levels of general satisfaction and happiness are comparatively low. The findings suggest that objective economic factors, health status, and social context influence well-being, but also personal control and satisfaction with material circumstances, with health having a greater influence on happiness, while material circumstances and the evaluation of them have a greater influence on general satisfaction.
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Thorshaug, Ragne Øwre, and Cathrine Brun. "Temporal injustice and asylum reception centres in Norway: towards a critical geographies of architecture in the institution." Fennia - International Journal of Geography 197, no. 2 (2019): 232–48. http://dx.doi.org/10.11143/fennia.84758.
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A temporal injustice is inherently built into the asylum-seeking system. Asylum seekers lack control over their biographical and their everyday time. In Norway, most asylum seekers live in reception centres while their applications are processed. This article develops a conceptual framework for understanding the asylum centre by drawing on geographical literature on architecture and contributions from migration studies on temporality. It analyses the ways in which the reception centre becomes a focal point in the asylum seekers’ lives and how people’s lived experiences, the asylum institution and the materiality of the buildings housing the centres come together in the particular temporalities produced by the asylum-seeking process. People’s agentic capacities within institutional and material structures are conceptualised as ‘orientations’. The paper analyses the lived experience of residents in three different reception centres in Norway. The temporal frames operating in the reception centres are expressions of power that produce blurred, uncertain and clashing temporalities. In this context, the reception centre operates as a material disorientation device where institutional durability, temporary dwelling and decaying as well as sub-standard materialities are significant aspects of the asylum seekers’ experience. However, some residents are able to re-orient their perspective and find ways of coping with the uncertainty and waiting. These strategies are identified as ‘reorientations’ to show how the governance and the inhabitation in the centres come together and how people engage with the reception centre through stubborn everyday strategies of inhabiting the centre. In conclusion, the paper reflects on the limited possibility that improving the material conditions may have for a better experience of the asylum-seeking process: it is the interaction between the material, the institution and the lived experience that creates the temporal injustice.
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Thornham, Helen. "Algorithmic vulnerabilities and the datalogical: Early motherhood and tracking-as-care regimes." Convergence: The International Journal of Research into New Media Technologies 25, no. 2 (2019): 171–85. http://dx.doi.org/10.1177/1354856519835772.
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This article draws on work from a 6-month project with 12 young mothers in which we mapped and tracked ourselves and our infants. The project employed a range of methods including digital ethnographies, walk-along methods, hacking and playful experimentations. We explored, broke and tested a range of wearables and phone-based tracking apps, meeting regularly to discuss and compare our experiences and interrogate the sociotechnical systems of postnatal healthcare alongside the particular politics of certain apps and their connective affordances. In this article, I use the project as a springboard to explore what I call algorithmic vulnerabilities: the ways that the contemporary datalogical anthropocene is exposing and positioning subjects in ways that not only rarely match their own lived senses of identity but are also increasingly difficult to interrupt or disrupt. While this is not necessarily a new phenomenon (see Clough et al., 2015; Hayles, 2017), I argue that the particular algorithmic vulnerabilities within this context, which are forged in part through the ideological enmeshing of the long-running atomization of maternal and infant bodies within the healthcare systems (Crowe, 1987; Shaw, 2012; Wajcman, 1991) and the new and emergent tracking apps (Greenfield, 2016; Lupton, 2016; O’Riordan, 2017) create momentary stabilizations of sociotechnical systems in which maternal subjectivity and female embodiment become algorithmically vulnerable in affective and profound ways. These stabilizations become increasingly and problematically normative, partly because they feed and perpetuate a wider ‘taken-for granted’ sensibility of gendered neoliberalism (Gill, 2017: 609) which, as I argue, is coming to encapsulate the contemporary datalogical anthropocene. Secondly, the sociotechnical politics of the apps and the healthcare systems are revealed as co-dependent, raising a number of questions about long-term algorithmic vulnerabilities and normativities which predate the contemporary datalogical ‘turn’ and impact both practices and methods.
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Parashar, Rakesh, Nilesh Gawde, Anadi Gupt, and Lucy Gilson. "Unpacking the implementation blackbox using 'actor interface analysis': how did actor relations and practices of power influence delivery of a free entitlement health policy in India?" Health Policy and Planning 35, Supplement_2 (2020): ii74—ii83. http://dx.doi.org/10.1093/heapol/czaa125.
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Abstract Exploring the implementation blackbox from a perspective that considers embedded practices of power is critical to understand the policy process. However, the literature is scarce on this subject. To address the paucity of explicit analyses of everyday politics and power in health policy implementation, this article presents the experience of implementing a flagship health policy in India. Janani Shishu Suraksha Karyakram (JSSK), launched in the year 2011, has not been able to fully deliver its promises of providing free maternal and child health services in public hospitals. To examine how power practices, influence implementation, we undertook a qualitative analysis of JSSK implementation in one state of India. We drew on an actor-oriented perspective of development and used ‘actor interface analysis’ to guide the study design and analysis. Data collection included in-depth interviews of implementing actors and JSSK service recipients, document review and observations of actor interactions. A framework analysis method was used for analysing data, and the framework used was founded on the constructs of actor lifeworlds, which help understand the often neglected and lived realities of policy actors. The findings illustrate that implementation was both strengthened and constrained by practices of power at various interface encounters. The implementation decisions and actions were influenced by power struggles such as domination, control, resistance, contestation, facilitation and collaboration. Such practices were rooted in: Social and organizational power relationships like organizational hierarchies and social positions; personal concerns or characteristics like interests, attitudes and previous experiences and the worldviews of actors constructed by social and ideological paradigms like their values and beliefs. Application of ‘actor interface analysis’ and further nuancing of the concept of ‘actor lifeworlds’ to understand the origin of practices of power can be useful for understanding the influence of everyday power and politics on the policy process.
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Atuhaire, Shallon, Akin-Tunde A. Odukogbe, John F. Mugisha, and Oladosu A. Ojengbede. "Association of socio-demographic and obstetric factors with obstetric fistula patients’ perceptions towards life fulfillment in Kitovu Hospital, Uganda." International Journal Of Community Medicine And Public Health 7, no. 4 (2020): 1220. http://dx.doi.org/10.18203/2394-6040.ijcmph20201423.
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Background: To date, obstetric fistula is one of the major public health challenges among the poorest, young women and girls in rural communities in low and middle-income countries. There is scarce information on the association of socio-demographic and obstetric factors with the obstetric fistula patients’ perceptions towards life fulfillment which compelled this study.Methods: A cross-sectional survey using a semi-structured questionnaire was done among 390 obstetric fistula patients registered within the past two years to the time of data collection at Kitovu Hospital, Masaka, Uganda. Pearson’s Chi square correlation was used to determine the association of socio-demographic and obstetric factors with perceptions towards life fulfillment using SPSS 25.0.Results: A larger proportion of obstetric fistula patients 226 (57.9%) had negative perceptions while 164 (42.1%) had positive perceptions. Maternal age, repair status, outcome of repair, self-perceived level of incontinence, and number of living children were statistically associated with patients’ perceptions towards life fulfillment at a P-value less than 0.001, marital status, p value of 0.005, and overall duration lived with fistula, p value of 0.009. A greater number of patients with tertiary education, 5 (83.3%) had positive perception, however, the association was not significant with a p value of 0.059. Fistula type, region of residence, and number of repairs were not statistically significant.Conclusions: Thus, socio-demographic and obstetric factors influence patients’ perceptions towards life a great deal. Efforts should focus on fistula prevention and timely repair so as to minimize probable experiences likely to result in negative perception that would eventually impede life fulfillment.
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Eklund-Jürgensen, Lene. "“Da bedstefar var dreng og Danmark var i krig”. Almindelige danskeres erindringer og selvbiografier om Besættelsen 1940-45." Fund og Forskning i Det Kongelige Biblioteks Samlinger 53 (March 2, 2014): 405. http://dx.doi.org/10.7146/fof.v53i0.118856.
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Lene Eklund-Jürgensen: “Da bedstefar var dreng og Danmark var i krig” (When grandfather was a boy and Denmark was at war). Memories and autobiographies of ordinary Danish people concerning the Occupation 1940–45
 In the last few years, the Dansk Historisk Bibliografi (Danish Historical Bibliography) database has included a number of autobiographies covering the period 1940–45. These collections of accounts provide a voice for ordinary Danes, describing how they as children experienced the occupation and how since then, they have reflected over that period of their lives. The authors’ autobiographies build up a narrative about the occupation, drawing on both personal experiences and memories and events the authors have been witness to, as well as the memories and experiences of other people that they have heard about or read about. It can often be difficult to separate the memories of these personal experiences from more general reported experiences that many Danes experienced. Autobiographies’ memories from periods other than 1940–45, are strongly egocentric and focus on private experiences, in contrast to the memories about the occupation which focus on the period as a collective experience. This narrative provides a personal angle, where the author’s own experiences are added as a supplement to the overall Danish experience. Most often what is described is the how the authors’ families lived during the war and especially, what their parents did during the war and what they experienced during the war. Often, the authors were too young to remember more than voices and scattered dramatic episodes from the occupation. In general, many of the authors personally remember the military planes that flew overhead and episodes relating to the air battles above Denmark. In addition, the authors describe everyday life, the Germans and the first and last day of the occupation. The episodes, experiences and events that the authors draw on in their autobiographies have been described many times before, but the autobiographies provide a double perspective of the occupation, where the authors both recount their childhood memories and at the same time reflect upon these memories many years later. The autobiographies are excellent source material to study the culture of reminiscing and the use of history.
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Wenham, Aniela. "Struggles and Silences: Young People and the ‘Troubled Families Programme’." Social Policy and Society 16, no. 1 (2016): 143–53. http://dx.doi.org/10.1017/s1474746416000464.
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Despite ‘troubled lives’ increasingly coming under the gaze of (powerful) others, our understanding of the issues at hand seems somewhat detached from the experiences of those subject to policy intervention. Due to the deficit model that presents ‘problem families’ as pathological, the voices of those that experience multiple disadvantages and severe material hardship are rarely heard, or, at worst, silenced. Within the context of hardening public attitudes that increasingly vilify the poor, understanding the connection between the personal and public is both timely and valuable. Drawing upon qualitative research, this paper seeks to listen to the voices of young people who currently reside within a ‘troubled family’. Through an exploration of how young people perceive their biographies, their status as ‘troubled’ or troublesome’, their relationships with significant others and their thoughts and feelings towards the future, we are able to recapture and reclaim contemporary depictions of ‘troubled lives’. Uncovering such lived experiences can also act as a springboard through which to explore how young lives (are likely to) unfold when interpreted against the background of restricted opportunities and social censure.
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Abrams, Laura S., and Laura Curran. "“And You're Telling Me Not to Stress?” a Grounded Theory Study of Postpartum Depression Symptoms among Low-Income Mothers." Psychology of Women Quarterly 33, no. 3 (2009): 351–62. http://dx.doi.org/10.1177/036168430903300309.
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Low-income mothers in the U.S. are more likely to experience postpartum depression (PPD) and less likely to seek treatment than their middle-class counterparts. Despite this knowledge, prior research has not provided an in-depth understanding of PPD symptoms as they are experienced by low-income mothers. Through in-depth interviews, this study investigated low-income mothers' ( n = 19) experiences and explanatory frameworks for their PPD symptoms. Grounded theory analysis uncovered five main categories that linked the participants' PPD symptoms to their lived experiences of mothering in poverty, including: (1) ambivalence, (2) caregiving overload, (3) juggling, (4) mothering alone, and (5) real-life worry. The analysis further located the core experience of PPD for low-income mothers as “feeling overwhelmed” due to mothering in materially and socially stressful conditions. These findings challenge the prevailing biomedical discourse surrounding PPD and situate mothers' symptoms in the context of the material hardships associated with living in poverty.
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Hagen, Niclas. "The lived experience of Huntington’s disease: A phenomenological perspective on genes, the body and the lived experience of a genetic disease." Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 22, no. 1 (2017): 72–86. http://dx.doi.org/10.1177/1363459316688516.
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The purpose of this article is to explore the intersections between genes, the body and the lived experience of a genetic disease. This article is based on empirical material from a study on how individuals affected by Huntington’s disease experience their everyday life. This study identified two themes that represent and capture the experience of the affected individuals. The themes are (1) noticing symptoms in everyday life and (2) neither health nor disease. The analysis of the empirical material was performed by employing a theoretical framework based on phenomenology. The findings of this study showed that the lived experiences among individuals affected by Huntington’s disease were both fluid and dynamic in their nature. Furthermore, the analysis of the empirical material suggests that this fluid and dynamic character can be linked to a dimension that revolves around the intersections between genetics and the body. Following phenomenologist Drew Leder’s outline of the divergence between the invisible and the visible features of the body, the analysis of the empirical material suggests that the mutated gene that causes Huntington’s disease can be seen as a phenomenological nullpoint. It is important that the healthcare system acknowledges and addresses the lived experiences that are discussed in this article, particularly, as the use of genetics and genetic testing becomes more widespread usage within medicine.
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Abdollahpour, Sedigheh, Abbas Heydari, Hosein Ebrahimipour, Farhad Faridhosseini, and Talat Khadivzadeh. "Understanding the Meaning of Lived Experience "Maternal Near Miss": A Qualitative Study Protocol." Journal of Caring Sciences 10, no. 1 (2021): 43–48. http://dx.doi.org/10.34172/jcs.2021.008.
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Abstract Introduction:Maternal near-miss (MNM) is defined as "a woman who almost died but survived a serious maternal complication during pregnancy, childbirth, or within 42 days of completion of pregnancy". Despite the long-term physical and psychological burden of this event on the mother’s life, the meaning of MNM is not clear. In addition, the mother’s role complicates the understanding of this phenomenon. Therefore, this study aimed to understand lived experience of Iranian "near-miss" mothers in the postpartum period. Methods:In this Heideggerian phenomenological study, we used Souza and colleagues’ theoretical framework to understand the meaning of the lived experience of near-miss mothers in-depth. The participants had experienced MNM at least one year ago by World Health Organization (WHO)approach in multicenter, academic, tertiary care hospitals in Mashhad, Iran. Taking into account reflexivity and after obtaining ethical approval, participants were purposively sampled using semi-structured interviews, and data analysis was conducted by Diekelmann and colleagues up to data saturation. Data collection and analysis has been argued by Lincoln and Guba. Discussion:Our findings resulted in updating the existing knowledge about the meaning of MNM and its implication. Given the different needs and challenges of near-miss mothers, it is necessary to design a supportive program of primary care for them. Policymakers and managers should consider the lived experience of these mothers when planning and taking decisions.
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Dos Santos, Bianca, and Vanessa Beavan. "Qualitatively exploring hearing voices network support groups." Journal of Mental Health Training, Education and Practice 10, no. 1 (2015): 26–38. http://dx.doi.org/10.1108/jmhtep-07-2014-0017.
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Purpose – The distress that is associated with auditory hallucinations, or voices, is well documented. However, increasingly research into this phenomenon is also capturing those who cope with their voices, and live meaningful lives. Peer support is a popular and useful way in which to learn to manage the distress for voice-hearers. The Hearing Voices Network (HVN) acts as an umbrella organisation for which research, training and peer support groups exist (www.intervoiceonline.org). Despite the growing amount of peer support groups established, there is to date no published material on these groups. The purpose of this paper is to discuss these issue. Design/methodology/approach – The present study used Interpretive Phenomenological Analysis to explore the experiences of four informants across three New South Wales HVN groups. Findings – Results suggest that the social connections, value of sharing and desire for more group members are all important within the group. Beyond the group, informants described the increased willingness to talk to others about their voice experiences, improvements in sense of self and a positive change in their relationship with their voices. Originality/value – The study demonstrates the importance of peer participation in the mental health workforce and the provision of safe spaces for those with lived experience to share and learn from each other in meaningful ways. Research implications include the need for further research measuring outcomes on a larger scale for these support groups.
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Laranjeira, Carlos António, Paula Ponce Leão, and Isabel Leal. "The “Silenced” Voices of Women Cancer Survivors: Bodily Experiences From an Existential Perspective." Research and Theory for Nursing Practice 27, no. 3 (2013): 173–92. http://dx.doi.org/10.1891/1541-6577.27.3.173.
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This study explores women’s embodiment from an existential–phenomenological approach. Gynecological cancer was chosen as the condition of interest to understand socially formed gender via female bodies as a lived experience of socially and historically situated women. This empirical material is based on individual interviews with 10 Portuguese cancer survivors. A phenomenological–hermeneutical method, inspired by Ricoeur (1976), was used to extract the meaningful content from the women’s experiences. These narratives include life changes and recovery transitions in and through the lived body. By seeing cancer survival in terms of the lived body, this study opens the possibility of articulating a deeper and clearer understanding of people’s experience of cancer trauma with gender-sensitive health services.
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Lian, Olaug S., and Geir Fagerjord Lorem. "“I Do Not Really Belong Out There Anymore”." Qualitative Health Research 27, no. 4 (2016): 474–86. http://dx.doi.org/10.1177/1049732316629103.
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In this article, we explore relations between health, being, belonging and place through an interpretive thematic analysis of autobiographic text and photographs about the everyday lives of 10 women and men living with medically unexplained long-term fatigue in Norway. While interpreting their place-related illness experiences, we ask: How do they experience their being in the world, where do they experience a sense of belonging/not belonging, and why do places become places of belonging/not belonging? The participants describe experiences of (a) being socially detached and alienated, (b) being imprisoned, (c) being spectators who observe the world, and (d) senses of belonging. They describe senses of being and belonging/not belonging as closely attached to physical and symbolic aspects of places in which they reside, and they wistfully reflect on the question of “why.” The study illustrates the influence of experienced place—material as well as immaterial—on health and illness.
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SIMCOCK, PETER. "Ageing with a unique impairment: a systematically conducted review of older deafblind people's experiences." Ageing and Society 37, no. 8 (2016): 1703–42. http://dx.doi.org/10.1017/s0144686x16000520.
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ABSTRACTLittle is known about the experiences of people ageing with impairments; social gerontology has largely focused on those ageing into disability rather than those ageing with disability. This paper synthesises existing knowledge to determine what is known about the experiences of those ageing with deafblindness. A comprehensive literature search was undertaken between April 2013 and May 2014. The review method was informed by systematic review principles. A total of 24 references were identified for inclusion. No studies examining deafblind people's experience of ageing and old age specifically were found, suggesting that those ageing with deafblindness are an under-studied sub-group within the deafblind population. However, deafblind people describe ageing experiences in studies exploring their lives generally, and in personal accounts of living with the impairment. Practitioner-authored material also explores the topic. Similarities in experience were identified between those ageing with deafblindness and those ageing with other impairments: ongoing change and consequent need for adaptation; a particular relationship between ageing and impairment; a sense that whilst one can learn adaptive strategies having lived with impairment for many years, it does not necessarily get easier; and a particular relationship with care and support services. These experiences illustrate the unique nature of ageing with impairment, and challenge gerontologists to engage in further research and theorising in the field of disability in later life.
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Cardell, Kylie, and Kate Douglas. "Why literature students should practise life writing." Arts and Humanities in Higher Education 17, no. 2 (2016): 204–21. http://dx.doi.org/10.1177/1474022216635825.
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This article considers our experiences teaching a hybrid literature/creative writing subject called “Life Writing.” We consider the value of literature students engaging in creative writing practice—in this instance, the nonfiction subgenre of life writing—as part of their critical literary studies. We argue that in practicing life writing, our literature students are exposed to and gain wider perspective on the practical, critical, creative, and ethical issues that arise from working with literary texts. Such an approach is not with risk. As we discuss in this article, life writing texts can often narrate difficult or traumatic material. However, we want to show how life writing, with its particular focus on actual lives and lived experience, creates a particularly conducive ethical, intellectual, and creative space for learning about and practicing writing.
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Valentine, Keri D., and Johnna Bolyard. "Lived Moments of Shift in Prospective Elementary Teachers' Mathematical Learning." Journal for Research in Mathematics Education 50, no. 4 (2019): 436–63. http://dx.doi.org/10.5951/jresematheduc.50.4.0436.
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Past experiences as mathematics learners play a critical role in the way mathematics teachers consider what it means to know, do, and teach mathematics. Thus, understanding past experiences and ways to work with them in teacher education is a critical concern. Using phenomenological inquiry, we investigated moments of shift that occur along one's mathematics journey. The study draws on 30 prospective teachers' experiences in the form of lived-experience writing and interview data. Findings show that prospective teachers' shifts manifest in relations with others, across different time frames, and through material relations with mathematics. Most salient was the tentative and mutable nature of shifts, showing that shift might be better viewed as a possibility rather than a single event.
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Patch, Holly, and Tomke König. "Trans* Vocality: lived experience, singing bodies, and joyful politics." Freiburger Zeitschrift für GeschlechterStudien 24, no. 1-2018 (2018): 31–53. http://dx.doi.org/10.3224/fzg.v24i1.03.
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In this article, we argue that with critical feminist materialisms, it is possible to develop what we have already learned so far from poststructural gender deconstructivism while also asking what can yet be learned from bodies, experience, and materiality. We continue to reject essentialist understandings of gender but maintain that there is a need to emphasize the material dimension of lived experiences. ‘Voice’ is ‘material relationality’ that has not yet received enough attention despite its centrality to political pursuits. In tracing the voice and its relation to materialisms, phenomenology, and poststructuralism, we frame ‘vocality’ as an embodied and lived phenomenon, developing a theoretical lens for the purpose of investigating the enactment of agency of trans* vocality. This phenomenological, materialist approach turns to the lived experiences of transgender and non-binary singers to both ground theory on gender and understand what is political about trans*vocality in singing. Using material from an ongoing research project, we seek to show how the constitution of singing subjects is political and, additionally, how through singing – a kind of ‘sensuous knowledge’ – trans* vocal expression can be a joyful resource for politicism and social change.
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Latham, Kiersten F., and Jodi Kearns. "OKF-Ref: using the object knowledge framework to understand the reference experience." Reference Reviews 30, no. 2 (2016): 1–7. http://dx.doi.org/10.1108/rr-05-2015-0119.
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Purpose – The aim of this paper is to offer a platform for thinking about the reference interaction experience by borrowing from museum studies literature, particularly from a holistic understanding of the museum visitor’s experience. Design/methodology/approach – The goal of this paper is to offer a platform for thinking about the reference interaction experience by borrowing from museum studies literature, particularly from a holistic understanding of the museum visitor’s experience. Findings – Object knowledge framework-reference (OKF-Ref) enables reference staff to connect patrons with resources to enable deeper thinking and research. Practical implications – OKF-Ref seeks to permit reference transactions as experiences rooted in synchronous individual, group and material potential connections made between resources and information seekers. Originality/value – New considerations in lived reference experience encourages reference librarians to think about the whole experience of reference interactions, allowing intermediaries to be proactive toward the goal of unified experiences for patrons.