Relevant bibliographies by topics / Meaning in caregiving

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  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters
  5. Conference papers

Academic literature on the topic 'Meaning in caregiving'

Author: Grafiati
Published: 4 June 2021
Last updated: 6 February 2022

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Journal articles on the topic "Meaning in caregiving"

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Zhang, Jingjun, and Diana Tze Fan Lee. "Meaning in Stroke Family Caregiving in China: A Phenomenological Study." Journal of Family Nursing 25, no. 2 (April 17, 2019): 260–86. http://dx.doi.org/10.1177/1074840719841359.

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Meaning in caregiving plays an influential role in stroke family caregiver’s perception and adaptation to caregiving. Although the role meaning plays in stroke family caregiving has been recognized, knowledge about this subject among the Chinese population is fragmented and sparse. Therefore, a hermeneutic phenomenological study was conducted as a first step in a program of research focused on Chinese caregivers utilizing a purposive sample of five stroke family caregivers living in China to explore the meaning of the lived caregiving experience. Data were collected through in-depth interviews and analyzed by a phenomenological hermeneutic interpretation. Meaning in stroke family caregiving was interpreted as suffering, an obligation, a personal choice, a meaningful opportunity, and a natural part of living. These meanings were dynamic and interconnected and were affected deeply by the Chinese culture in how caregivers experience, interpret, and cope with caregiving. Findings highlight the need to understand the culture-shaped meanings in caregiving to better support family caregivers and develop culturally tailored interventions.
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Wood, Felecia Grier. "The Meaning of Caregiving." Rehabilitation Nursing 16, no. 4 (July 8, 1991): 195–98. http://dx.doi.org/10.1002/j.2048-7940.1991.tb01212.x.

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Silva, Neuza, Carlos Carona, Carla Crespo, and Cristina Canavarro. "PARENTAL POSITIVE MEANING-MAKING WHEN CAREGIVING FOR CHILDREN WITH ASTHMA." Psicologia, Saúde & Doenças 15, no. 01 (March 2014): 155–69. http://dx.doi.org/10.15309/14psd150113.

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Quinn, Catherine, Linda Clare, Ted McGuinness, and Robert T. Woods. "The impact of relationships, motivations, and meanings on dementia caregiving outcomes." International Psychogeriatrics 24, no. 11 (June 1, 2012): 1816–26. http://dx.doi.org/10.1017/s1041610212000889.

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ABSTRACTBackground: Numerous theoretical models have been developed to explore how caregiving can impact on caregiving outcomes. However, limited attention has been given to the effects of caregivers’ motivations for providing care, the meaning they find in caregiving, and the nature of their relationship with the care-recipient. The current study explored the associations between intrinsic and extrinsic motivations, ability to find meaning in caregiving, and pre-caregiving and current relationship quality, and the way in which these variables interact to influence caregiving outcomes.Methods: This was a cross-sectional questionnaire study, in which the respondents were 447 caregivers of people with dementia who were in receipt of a specialist nursing service.Results: The results showed that intrinsic motivations, meaning, and pre-caregiving and current relationship quality were significantly related to each other, while extrinsic motivations were only related to intrinsic motivations and meaning. All these factors were significantly related to caregiving outcomes as measured by caregiver burden, role captivity, and competence.Conclusions: Based on these findings, it is recommended that interventions aimed at reducing caregiving stress should take into account the impact of the quality of the relationship and the caregivers’ motivations for providing care. More longitudinal research is needed to explore how meanings, motivations, and relationship quality change over the caregiving career.
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Teo, Irene, Drishti Baid, Semra Ozdemir, Chetna Malhotra, Ratna Singh, Richard Harding, Rahul Malhotra, et al. "Family caregivers of advanced cancer patients: self-perceived competency and meaning-making." BMJ Supportive & Palliative Care 10, no. 4 (December 5, 2019): 435–42. http://dx.doi.org/10.1136/bmjspcare-2019-001979.

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BackgroundFamily caregivers of patients with advanced cancer have been reported to provide long hours of care and be at risk for poor psychological outcomes. Although research has focused on the nature of caregiving burden, little attention has been paid to identifying protective factors that improve caregiver psychological outcomes.AimWe examined the relationship between caregivers’ time spent caregiving and the following psychological outcomes: anxiety, depression and caregiving esteem. Subsequently, we explored the main and moderating effects of caregiver-perceived self-competency and sense of meaning on caregiver psychological outcomes.Design/participantsCross-sectional analysis was conducted using the baseline data from an ongoing cohort study. Family caregivers of advanced cancer patients (n=287) were recruited from two tertiary hospitals in Singapore.ResultsTime spent caregiving was not significantly associated with caregiver anxiety, depression or caregiving esteem. However, significant main effects of self-competency on anxiety and caregiving esteem; and sense of meaning on anxiety, depression and caregiving esteem were observed. Moderator analyses further indicated that self-competency attenuated the positive relationship between time spent caregiving and anxiety, while sense of meaning attenuated the negative relationship between time spent caregiving and caregiving esteem.ConclusionGreater perceived self-competency and sense of meaning are related to better caregiver psychological outcomes, and protect caregivers from worsening outcomes as caregiving hours increase. Our findings suggest that screening caregivers for distress is an important part of care, and that supportive interventions for caregivers should aim to enhance their perceived caregiving competencies and the ability to make meaning of their caregiving role.
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Ferrell, Betty R., and Pamela Baird. "Deriving Meaning and Faith in Caregiving." Seminars in Oncology Nursing 28, no. 4 (November 2012): 256–61. http://dx.doi.org/10.1016/j.soncn.2012.09.008.

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Reimer, Kevin S. "The Political Meaning of Christian Caregiving." Journal of Psychology and Theology 40, no. 2 (June 2012): 127–30. http://dx.doi.org/10.1177/009164711204000208.

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Rubinstein, Robert L. "Themes in the meaning of caregiving." Journal of Aging Studies 3, no. 2 (June 1989): 119–38. http://dx.doi.org/10.1016/0890-4065(89)90012-1.

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Lou, Vivian, Daniel W. L. Lai, Daniel Fu-Keung Wong, Doris Yu, Shuangzhou Chen, and Reynold Leung. "The Generational Impact on Meaning Making and Well-being of Adult Children Caregivers in Dementia Caregiving." Innovation in Aging 4, Supplement_1 (December 1, 2020): 908. http://dx.doi.org/10.1093/geroni/igaa057.3341.

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Abstract Children caregivers contributed significantly to care and support dementia parents globally. In the caregiving journey, making sense of providing care plays significant role in their caregiving journey. In an ageing society such as Hong Kong, different generations of children caregivers take up dementia caregiver roles. We hypothesized that from studying baby boomers (BB, born in 1946-1964) and generation X (GX, born in 1965-1980), generations have impacts on their meaning making and well-being outcomes. 601 Caregivers completed a paper or online battery of questionnaires on burden (ZBI-4), mental well-being (PHQ-9), caregiving factors (ADL, IADL, caregiving hours, Positive Aspect of Caregiving; PAC) and the meaning making factors (Finding Meaning Through Caregiving; FMTC). Results showed that significant difference between caregivers from two generations. GX have significantly lower meaning made, measured by PAC affirming self and enriching life, as well as FMTC provisional meaning. While they spent less caregiving hours for the more independent care recipients, they suffered from higher burden, higher FMTC loss/powerless and worse psychological well-being (PHQ). The findings demonstrated generation X caregiver suffered from lower level of the meaning made and worse psychological wellbeing outcomes than BB caregivers. Future caregiver studies should take generational effect into account and services shall be provided in a generation-responsive approach.
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Hasson-Ohayon, Ilanit, Gil Goldzweig, Tal Sela-Oren, Noam Pizem, Gil Bar-Sela, and Ido Wolf. "Attachment style, social support and finding meaning among spouses of colorectal cancer patients: Gender differences." Palliative and Supportive Care 13, no. 3 (August 8, 2013): 527–35. http://dx.doi.org/10.1017/s1478951513000242.

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AbstractObjectives:The current study explores the relationship between attachment styles, social support, gender and finding meaning in caregiving among spousal caregivers of colorectal cancer patients.Methods:Sixty caregivers (30 men and 30 women) were administered questionnaires assessing attachment styles, social support and finding meaning in caregiving, using a cross-sectional design.Results:For male caregivers avoidance attachment is associated with their finding meaning, whereas for female caregivers social support is associated with their finding meaning.Significance of results:Psychological interventions for caregivers should take into consideration gender differences and might benefit from addressing the process of finding meaning in caregiving.
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Dissertations / Theses on the topic "Meaning in caregiving"

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Clarke, Charlotte Laura. "Who needs problems? : Finding meaning in caregiving for people with dementia." Thesis, Northumbria University, 1995. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.364045.

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Moore, Karen Mary. "Conceptualising the experience of loss and meaning-making in caregiving in dementia." Thesis, University of Warwick, 2001. http://wrap.warwick.ac.uk/3098/.

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An initial review of the literature concerning anticipatory grief was executed to foreground a qualitative study focusing on the experience and conceptualisation of loss by adult daughter caregivers in dementia. A chronological overview was presented and key studies and major developments identified. Inconsistencies in empirical findings were summarised; and preceded a consideration of methodological issues including: problematic research design and definitional confusion regarding conceptual underpinnings. Key recommendations for further research were made. The main study adopted a grounded theory methodology and sought to explore the nature and process of losses experienced by daughters providing care for a mother with dementia. Open, in-depth interviews (N=10) functioned as the primary data source for analysis. Further data included: participant notes and letters; demographic details; researcher's notebooks and reflective and analytical memos. Concurrent data collection and analysis proceeded, in three phases, and the resulting, emergent, theoretical model was presented using Strauss and Corbin's (1990) framework. A full explication of the model followed and its relationship to relevant literature elucidated. Implications for clinical practice and further research were addressed. In the course of analysis it was noted that caregivers made reference to existential themes in their accounts of caregiving. This precipitated a further study in which Reker and Wong's (1988) dimensional model was used to guide the content analysis of the existing transcribed interview data. Findings indicated that participants expressed existential themes at both an implicit and explicit level. Considerable breadth, depth and diversity was observed in relation to caregiving experienced. Caregiving appears to pose both existential challenges and opportunities for growth. Implications for clinical practice and further research were identified.
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Leith, Jaclyn E. "Personal Loss in Well Siblings of Adults with Serious Mental Illness: Implications for Caregiving, Growth, and Sibling Needs." Bowling Green State University / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1308104801.

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Robertson, Jane M. "Making sense and finding meaning : comparing narratives of older people with dementia and carers about the quality of an ordinary life." Thesis, University of Stirling, 2010. http://hdl.handle.net/1893/2530.

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This research examines narratives about the quality of everyday life with dementia. The aim of the study is to compare and contrast differing perspectives about the impact of ageing and dementia upon the lives of older people with dementia. A total of 50 interviews with six older people with dementia and ten family and paid carers were conducted over a two-year period. Narrative analysis was used to examine the content and structure of their accounts to understand their perspectives on what matters most to people living with dementia. This in-depth analysis enabled an exploration of different social concepts and narrative constructions that people draw upon in making sense of their experiences of caring and living with dementia. The analysis demonstrated that older people incorporate ageing and dementia into a continuing sense of self. Positive constructions of living with dementia involve the ability to lead a meaningful life that supports pre-existing social roles and relationships and active engagement within the family and community. The emphasis is on living an ordinary life while responding to the challenges associated with cognitive impairment and social stigma. For family and paid carers, perceptions of a meaningful life depend on how the identity of the older person with dementia is positioned relative to past social roles and relationships. Positive constructions assume continuity as opposed to focusing on disruption in the person’s identity and life. Carer perspectives are also influenced by how the person is perceived to conform to social standards of normality. The narratives of older people with dementia reflect their active struggle to find meaning in terms of realising their sense of self within a social world that largely defines them as different and out of the ordinary. The narratives of carers resonate with emotional difficulty, reflecting their struggle to make sense of a life that is not represented as essentially normal. These findings show that, for all, finding meaning in everyday life depends upon making sense of that life as normal and ordinary.
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Quinn, Catherine. "Relationships, motivations and meanings in informal caregiving for people with dementia." Thesis, Bangor University, 2009. https://research.bangor.ac.uk/portal/en/theses/relationships-motivations-and-meanings-in-informal-caregiving-for-people-with-dementia(24e4dc0f-43f1-4de5-b84f-9febf626f83d).html.

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Numerous theoretical models have been developed to explore how caregiving can impact on caregivers' wellbeing. However, less attention has been given to caregivers' motivations for providing care, the meaning they find in caregiving and their relationship with the care-recipient. The aim of this thesis was to explore the role of relationships, motivations, and meanings in dementia caregiving. This thesis utilised a mixed methods approach. Two systematic reviews suggested that relationship quality, motivations, and meanings could individually impact on caregivers' wellbeing. The reviews indicated that the interrelationships between caregiving motivations, the quality of the relationship with the care-recipient, and ability to find meaning in caregiving, and the relative contributions of these factors to caregiver wellbeing, have not previously been examined. Based on the findings of the reviews, a qualitative study with twelve caregivers explored their subjective experience in relation to motivations, meanings and relationships, and found that they were engaging in a process of 'balancing needs', in which they constantly struggled to balance their needs with the care-recipient, creating dilemmas which had to be managed as part of everyday life. A second qualitative study incorporated the perspectives of caregivers, care-recipients and Admiral Nurses into six case studies. These members were engaged in a process of 'negotiating the balance', which describes their ongoing struggle to balance the views of the other members against their own needs. Building on the findings of these studies a cross-sectional questionnaire study assessed associations between relationships, motivations, and meanings, and the impact of these factors on caregiver wellbeing. The questionnaires were completed by 447 caregivers. This study found a positive association between motivations, meanings, and relationship quality. These factors could also influence caregivers' wellbeing. Predictors of finding meaning were also discussed. The findings suggest that a greater understanding of meanings, motivations, and relationships could aid the development of more effective interventions for caregivers.
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Shim, Bomin. "Finding Meaning in the Dementia Caregiving Relationship." Diss., 2011. http://hdl.handle.net/10161/3834.

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Caregivers of individuals with dementia describe a wide spectrum of caregiving experiences, ranging from very negative to very positive. Previous literature acknowledges these differing experiences, but how and why they differ has rarely been investigated. Dementia caregiving can be burdensome with many psychological, physical, social and financial challenges. However, it can also be an opportunity for growth and transcendence as caregivers find meaning in caregiving. High levels of mutuality (the perception that the quality of the care relationship is positive), reportedly ameliorates negative caregiver outcomes. Thus, this dissertation consists of three studies that explore aspects of the caregiver-care recipient relationship that may enhance positive caregiving experiences.

The first study was a secondary analysis of factors related to caregivers' perceptions of care relationship mutuality over a 12 month period. Caregivers who reported high mutuality were less likely to be depressed and more likely to provide care for longer periods before deciding to institutionalize the care recipient. The second study was a secondary analysis of caregiver interviews. It revealed that caregivers who reported a positive caregiving experience described both their past and present relationship in loving terms and reported that they understood their care recipient could not reciprocate. These caregivers focused on aspects of the relationship that still existed, rather than on what they had lost. They expressed satisfaction with caregiving, were other-focused, and reported little caregiving burden. The third study was a qualitative descriptive study. Caregivers who reported finding meaning in caregiving were interviewed to explore how they were able to do so. These caregivers used strategies such as accepting the situation, deciding to care, choosing a positive attitude, focusing on the blessings of caregiving, and actively seeking care resources. They demonstrated altruistic values and the determination and discipline to live those values. They also possessed strong faith, love, and social support, and said they had derived strength from past challenges.

Clinicians and researchers should explore the quality of the caregiving relationship as a critical factor in caregiver and care recipient outcomes. Caregiver interventions should include relationship-building skills and empathy building techniques to offset adverse caregiver outcomes and enhance understanding and acceptance of changes that occur in the care recipient over time.


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Fraser, Michael Robert. "The meaning of care: Social support, informal caregiving and HIV disease." 1999. https://scholarworks.umass.edu/dissertations/AAI9932313.

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This study explores the meaning of informal caregiving for individuals living with HIV disease. As the number of individuals living with HIV disease continues to increase, there is a need for research on both the structure of caregiving networks and the meaning these networks have for individuals living with chronic illness. This study is continuous with prior research on social support and the illness experience, but departs from past work by addressing both the objective features of social support relationships and the way that they are subjectively interpreted by people living with HIV disease. Fifty-four (n = 54) individuals living with HIV disease participated in in-depth, qualitative interviews (31 women, 23 men). Participants were recruited from local AIDS service organizations and healthcare facilities in Western New England. Interview data were analyzed using cluster analysis and content analysis techniques. Respondents' informal caregiving networks are summarized using five categories developed using cluster analysis. Content analysis of interview transcriptions illustrate the diverse way respondents interpreted the care they received from network members and the way in which their illness experience was shaped by the different contexts in which they received care. The way in which caregiving networks and respondents interpretations of them varied by gender, race and ethnicity, sexual identity and other self-identifications is discussed. This research furthers the literature on social support and chronic illness. As an exploratory project, the aim of the research was to describe how individuals living with HIV disease make sense of the care they do and do not receive from family members, friends and other informal caregivers. This study contributes to the literature on social support and HIV disease by focusing on low-income individuals, living in small towns and cities and two urban areas that have not been the focus of a great deal of HIV/AIDS research. The results of this study can be used to better understand and strengthen existing relationships within social support networks. This research also has direct implications for both formal and informal caregivers and programs and activities to support them.
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Esterhuizen, Estelle Leonie. "Making meaning in anticipatory mourning : reflections by caregiving spouses of cancer patients." Diss., 2009. http://hdl.handle.net/10500/3384.

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This insider research journey explores the meaning-making processes of female spousal caregivers in anticipatory mourning and the knowledges which they have gained in retrospect. The research traces the social constructions of meaning and how they influence the process of meaning-making. A phenomenological study was undertaken in which unstructured interviews were conducted with five bereaved participants, highlighting the unique way in which each woman made meaning of loss in anticipatory mourning. The main phenomenological themes to emerge from their meaning-making were: a) the significance of time; b) challenges and gifts; c) witnessing the decline; d) paradoxes; e) the significance of the spousal relationship; and f) spirituality. The therapeutic effect of telling the life story is explored in this study and the need for contextual pastoral care that is specific to the state of anticipatory mourning is highlighted. Finally, possibilities for co-constructive pastoral care are raised in the light of the research findings.
Practical Theology
M. Th. ( Practical Theology, with Specialisation in Pastoral Therapy)
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Quinn, Catherine, and G. Toms. "Influence of positive aspects of dementia caregiving on caregivers' well-being: a systematic review." 2018. http://hdl.handle.net/10454/16843.

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Yes
Background and Objectives: There is a growing evidence base that informal caregivers can identify positive aspects of providing care and that this may have a beneficial influence on their well-being. The aim of this systematic review was to explore how positive aspects of caregiving (PAC) affects the well-being of caregivers of people with dementia. Research Design and Methods: We searched electronic databases for quantitative studies exploring the association between PAC and caregiver well-being. Studies were included if they involved informal (unpaid) caregivers of people with dementia, at least 75% of whom had to be residing in the community. A narrative synthesis was used to explore patterns within the data. Results: Fifty-three studies were included in the narrative synthesis. Most studies utilized a cross-sectional design. The majority of samples consisted primarily of spouses and female caregivers. Twenty different PAC measures were employed and studies referred to a variety of constructs, such as satisfactions, gains, meaning, and rewards. PAC was associated with lower depressive symptoms and burden. Conversely, PAC was associated with better mental health, quality of life, satisfaction with life, and competence/self-efficacy. PAC was not associated with self-rated health or personal strain/stress. Discussion and Implications: The findings suggest that identifying PAC is associated with better caregiver well-being, although further longitudinal studies are required to explore how this relationship changes over time. Interventions that enable caregivers to gain a more positive experience of caregiving could be beneficial for their well-being.
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Van, Rensburg Angelique Christina. "A social-ecological investigation of African youths' resilience processes / A.C. van Rensburg." Thesis, 2014. http://hdl.handle.net/10394/14065.

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Resilience is defined as doing well despite significant hardships. Based on four principles informing a social-ecological definition of resilience (that is, decentrality, complexity, a typicality, and cultural relativity), Ungar (2011, 2012) hypothesised an explanation of social-ecological resilience. Seen from this perspective, resilience involves active youthsocial-ecological transactions towards meaningful, resilience-promoting supports. Youths’ usage of these supports might differ due to, among others, specific lived experiences, contextual influences, and youths’ subjective perceptions. While Ungar’s explanation is both popular and plausible, it has not been quantitatively tested, also not in South Africa. Moreover, there is little quantitatively informed evidence about youths’ differential resource-use, particularly when youth share a context and culture, and how such knowledge might support social ecologies to facilitate resilience processes. The overall purpose of this study was, therefore, to investigate black South African youths’ resilience processes from a social-ecological perspective, using a sample of black South African youth. This purpose was operationalised as sub-aims (explained below) that addressed the aforementioned gaps in theory. Data to support this study were accessed via the Pathways to Resilience Research Project (see www.resilienceresearch.org), of which this study is part. The Pathways to Resilience Research Project investigates the social-ecological contributions to youths’ resilience across cultures. This study consists of three manuscripts. Using a systematic literature review, Manuscript 1 evaluated how well quantitative studies of South African youth resilience avoided the pitfalls made public in the international critiques of resilience studies. For the most part, quantitative studies of South African youth resilience did not mirror international developments of understanding resilience as a complex socio-ecologically facilitated process. The results identified aspects of quantitative studies of South African youth resilience that necessitated attention. In addition, the manuscript called for quantitative studies that would statistically explain the complex dynamic resilience-supporting transactions between South African youths and their contexts. Manuscript 2 answered the aforementioned call by grounding its research design in a theoretical framework that respected the sociocultural life-worlds of South African youth (that is, Ungar’s Social-Ecological Explanation of Resilience). Ungar’s Social-Ecological Explanation of Resilience was modelled using latent variable modelling in Mplus 7.2, with data gathered with the Pathways to Resilience Youth Measure by 730 black South African school-going youth. The results established that South African youths adjusted well to challenges associated with poverty and violence because of resilience processes that were co-facilitated by social ecologies. It was, furthermore, concluded that school engagement was a functional outcome of the resilience processes among black South African youth. Manuscript 2 also provided evidence that an apposite, necessary, and respectful education contributed towards schooling as a meaningful resource. Manuscript 3 provided deeper insight into aspects of black South African youths’ resilience processes. Manuscript 3 investigated youths’ self-reported perceptions of resilience-promoting resources by means of data gathered by the Pathways to Resilience Youth Measure. Consequently, two distinct groups of youth from the same social ecology made vulnerable by poverty were compared (that is, functionally resilient youth, n = 221; and formal service-using youth, n = 186). Measurement invariance, latent mean differences in Mplus 7.2, and analyses of variance in SPSS 22.0 were employed. What emerged was that positive perceptions of caregiving (that is, physical and psychological) were crucial to youths’ use of formal resilience-promoting resources and subsequent functional outcomes. The conclusions resulted in implications for both caregivers and practitioners.
PhD (Educational Psychology) North-West University, Vaal Triangle Campus 2015
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Books on the topic "Meaning in caregiving"

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Black, Helen K., John T. Groce, and Charles E. Harmon. Caregiving as Pilgrimage. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.003.0007.

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In this chapter, we explore the experience of an elder husband who was the primary informal caregiver for his wife of 60 years. We describe their encounters as caregiver and care recipient through the years as a pilgrimage. We do so because we believe this word has a revered connotation. Generally, two or more people travel together to a pilgrimage site for the sake of gaining spiritual insight or meaning. In a pilgrimage, the journey toward the site becomes an important part of the sacred quest. The husband who is the subject of this chapter cared for his wife for over 25 years. Through the years, his wife became increasingly impaired and incurred several serious illnesses at the same time that he, as caregiver, experienced his own illnesses and the declines of age.
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Finding Meaning with Charles: Caregiving with Love Through a Degenerative Disease. JME Enterprises, 2006.

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Clarke, C. L. Who needs problems?: Finding meaning in caregiving for people with dementia. c1995, 1995.

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Applebaum, Allison J. Meaning-Centered Psychotherapy for Cancer Caregivers. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199837229.003.0006.

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Existential distress among caregivers of patients with all sites and stages of cancer is common and may serve as a driving mechanism of caregiver burden. Concurrently, the caregiving experience is an opportunity for meaning-making and growth. To date, no empirically supported treatments specifically target meaning-making and existential distress among cancer caregivers. To address this critical gap in the literature, meaning-centered psychotherapy has been adapted for delivery to cancer caregivers (meaning-centered psychotherapy for cancer caregivers (MCP-C)). This chapter presents the rationale and overview of MCP-C, and it highlight key elements of the intervention that uniquely target the specific existential needs of cancer caregivers. A case example of an MCP-C group member is presented to illustrate key MCP-C therapeutic techniques. It also discusses challenges of delivery of MCP-C to this vulnerable population and current MCP-C trials that address these barriers to delivery and utilization.
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Black, Helen K., John T. Groce, and Charles E. Harmon. The Hidden Among the Hidden. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.001.0001.

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The question of our research and our book is as follows: What is the experience of African-American elder male caregivers? Research and literature on African-American older males as informal, primary caregivers of demented or impaired family members, particularly spouses, are negligible. Male caregivers in general have been called “hidden” caregivers. Thus, we named the elderly African-American male caregivers we interviewed for this book “the hidden among the hidden.” We asked the experts—a group of 13 African-American male caregivers—to discuss the concrete and nonmaterial aspects of giving care to an impaired loved one. Our book addresses the knowledge gap about African-American male caregivers by revealing, in case-study form, their experiences of caregiving in the context of their personal biography and cohort history. Our focus is the practical and existential meaning of daily life as a caregiver. The men discussed in this book are over 60 years of age, most are long married, and they have been caregivers in their homes for at least 5 years and as long as 25 years. Their loved ones, particularly wives, suffered from a variety of illnesses and debilities that necessitated hands-on care. The book examines varied aspects of the caregiving experience, the unique generativity of men who give care, and the emotions and conflicts about decision making that emerge in day-to-day caregiving.
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Mong, Sherry N. Taking Care of Our Own. Cornell University Press, 2020. http://dx.doi.org/10.7591/cornell/9781501751448.001.0001.

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Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, this book introduces us to the hidden world of family caregivers. Using a multidimensional approach, the book seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. The book is based on sixty-two in-depth interviews with family caregivers, home and community health-care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, the book examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.
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Krasas, Jackie. Still a Mother. Cornell University Press, 2021. http://dx.doi.org/10.7591/cornell/9781501754296.001.0001.

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This book traces the trajectories of mothers who have lost or ceded custody to an ex-partner. The book argues that these noncustodial mothers' experiences should be understood within a greater web of gendered social institutions such as employment, education, health care, and legal systems that shapes the meanings of contemporary motherhood in the United States. If motherhood means “being there,” then noncustodial mothers, through their absence, are seen as nonmothers. They are anti-mothers to be reviled. At the very least, these mothers serve as cautionary tales. The book questions the existence of an objective method for determining custody of children and challenges the “best-interests standard” through a feminist, reproductive justice lens. The stories of noncustodial mothers that the book relates shed light on marriage and divorce, caregiving, gender violence, and family court. Unfortunately, much of the contemporary discussion of child-custody determination is dominated either by gender-neutral discussions or, at the opposite end of the spectrum, by the idea that fathers are severely disadvantaged in custody disputes. As a result, the idea that mothers always receive custody has taken on the status of common sense. If this was true, as the book's author affirms, there would be no book to write.
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Book chapters on the topic "Meaning in caregiving"

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Booth, Natalie. "Family constructions and caregiving practices." In Maternal Imprisonment and Family Life, 41–66. Policy Press, 2020. http://dx.doi.org/10.1332/policypress/9781447352297.003.0003.

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This chapter examines the nature and scope of caregiving practices within families to better understand how families can be constructed during maternal imprisonment. It discusses three distinct characteristics that were observed within families. First, the joint interviews and caregivers' descriptions show the meaning, nature, and value of collective caregiving practices within the families, facilitating nuanced insights into the families' shared responses to the mothers' imprisonments. Second, the findings indicate that during a mother's imprisonment, it is maternal kin who take on caregiving responsibilities. Third, one explanation for female relatives assuming the bulk of care may be the smaller uptake of care from the children's fathers. The chapter then considers the positionality of the children's fathers, as well as father–children relationships, from the perspectives of caregivers.
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Zaider, Talia I., and David W. Kissane. "Couple Therapy for Sexual Dysfunction." In Sexual Health, Fertility, and Relationships in Cancer Care, 139–58. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190934033.003.0007.

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Relational strain can be activated by cancer or the effects of its treatment, reducing couple communication and marital satisfaction over time, especially when sexual intimacy declines. Meta-analyses show a modest benefit from couple therapy, with some evidence suggesting better outcomes for couples where one or both partners have greater distress or cancer-related concerns. Presenting problems can include role or transition challenges, communication failure, loss of mutual consensus and conflict, boundary violations, fractures and frustration with sexuality or intimacy. Assessment of the couple includes understanding their experience of the oncology diagnosis and its treatment, their family-of-origin and relational background, coping styles, impact on communication, cohesion, and sexuality alongside any agendas they bring. Behavioral couple therapy strategies can facilitate constructive communication and problem solving to restore intimacy and connectedness during and after treatment. In the advanced cancer setting, existentially oriented models examine grief, death talk, caregiving, and preparation for dying. A search for continued meaning and purpose can empower the couple to live life out to the full, while also preparing for a good death and considering bereavement needs for the survivor.
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Torres, Sandra. "Literature on social relations and caregiving." In Ethnicity and Old Age, 123–44. Policy Press, 2019. http://dx.doi.org/10.1332/policypress/9781447328117.003.0006.

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This chapter is the third and last chapter in the book that is based on the scoping review of scholarship on the intersection of ethnicity/ race and ageing/ old age. This chapter brings attention to social relations, social support/ help and caregiving (receiving), which is the third theme that has received the most attention when it comes to the scholarship in question. Just as it is the case with the two previous chapters, this chapter exposes the trends observed, and the ways in which ethnicity and race are made sense of in this literature. By bringing attention on the angles of investigation that this literature most often relies on (e.g. relying on others’ identification instead of own identification and the meanings attach to that), this chapter shows not only which topics have received attention, but also which ones remain unexplored.
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Conference papers on the topic "Meaning in caregiving"

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Rosochacka-Gmitrzak, Magdalena. "I, THE WIFE’S CARER. MEN FROM THE TRADITIONALISTS/SILENT GENERATION ON THEIR (NEW) IDENTITY." In NORDSCI International Conference. SAIMA Consult Ltd, 2020. http://dx.doi.org/10.32008/nordsci2020/b1/v3/26.

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Despite transformations of culture of ageing taking place and pinpointing lesser trivialization of ageing, in many CEE countries and globally, further-reaching approach to ageing experiences and meanings attributed by individuals of either gender have not come of age. Neither has it gained enough attention to cause a significant change towards truly inclusive perspectives or practices. This problem applies to men remaining to a certain extent imperceptible as prime caregivers to their chronically ill wives or partners.. By desk research, own research interpretation and literature review, the paper addressed men caregivers identity. Findings suggest the identity to be shaped by a relationship, and its story, with caregiven wife, identity spoiling as a result of stigma associated with caregiving experience and low social recognition of it. The study recognizes matters to be further assessed and may lay foundations for new directions. It also translates onto gerontological practice by recognizing factors which may assist caregiving professionals and possibly policy makers in better addressing the needs of caregiving individuals.
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Journal articles
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