Journal articles: 'Meaning in caregiving'

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Zhang, Jingjun, and Diana Tze Fan Lee. "Meaning in Stroke Family Caregiving in China: A Phenomenological Study." Journal of Family Nursing 25, no. 2 (April 17, 2019): 260–86. http://dx.doi.org/10.1177/1074840719841359.

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Meaning in caregiving plays an influential role in stroke family caregiver’s perception and adaptation to caregiving. Although the role meaning plays in stroke family caregiving has been recognized, knowledge about this subject among the Chinese population is fragmented and sparse. Therefore, a hermeneutic phenomenological study was conducted as a first step in a program of research focused on Chinese caregivers utilizing a purposive sample of five stroke family caregivers living in China to explore the meaning of the lived caregiving experience. Data were collected through in-depth interviews and analyzed by a phenomenological hermeneutic interpretation. Meaning in stroke family caregiving was interpreted as suffering, an obligation, a personal choice, a meaningful opportunity, and a natural part of living. These meanings were dynamic and interconnected and were affected deeply by the Chinese culture in how caregivers experience, interpret, and cope with caregiving. Findings highlight the need to understand the culture-shaped meanings in caregiving to better support family caregivers and develop culturally tailored interventions.

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Wood, Felecia Grier. "The Meaning of Caregiving." Rehabilitation Nursing 16, no. 4 (July 8, 1991): 195–98. http://dx.doi.org/10.1002/j.2048-7940.1991.tb01212.x.

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Silva, Neuza, Carlos Carona, Carla Crespo, and Cristina Canavarro. "PARENTAL POSITIVE MEANING-MAKING WHEN CAREGIVING FOR CHILDREN WITH ASTHMA." Psicologia, Saúde & Doenças 15, no. 01 (March 2014): 155–69. http://dx.doi.org/10.15309/14psd150113.

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Quinn, Catherine, Linda Clare, Ted McGuinness, and Robert T. Woods. "The impact of relationships, motivations, and meanings on dementia caregiving outcomes." International Psychogeriatrics 24, no. 11 (June 1, 2012): 1816–26. http://dx.doi.org/10.1017/s1041610212000889.

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ABSTRACTBackground: Numerous theoretical models have been developed to explore how caregiving can impact on caregiving outcomes. However, limited attention has been given to the effects of caregivers’ motivations for providing care, the meaning they find in caregiving, and the nature of their relationship with the care-recipient. The current study explored the associations between intrinsic and extrinsic motivations, ability to find meaning in caregiving, and pre-caregiving and current relationship quality, and the way in which these variables interact to influence caregiving outcomes.Methods: This was a cross-sectional questionnaire study, in which the respondents were 447 caregivers of people with dementia who were in receipt of a specialist nursing service.Results: The results showed that intrinsic motivations, meaning, and pre-caregiving and current relationship quality were significantly related to each other, while extrinsic motivations were only related to intrinsic motivations and meaning. All these factors were significantly related to caregiving outcomes as measured by caregiver burden, role captivity, and competence.Conclusions: Based on these findings, it is recommended that interventions aimed at reducing caregiving stress should take into account the impact of the quality of the relationship and the caregivers’ motivations for providing care. More longitudinal research is needed to explore how meanings, motivations, and relationship quality change over the caregiving career.

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Teo, Irene, Drishti Baid, Semra Ozdemir, Chetna Malhotra, Ratna Singh, Richard Harding, Rahul Malhotra, et al. "Family caregivers of advanced cancer patients: self-perceived competency and meaning-making." BMJ Supportive & Palliative Care 10, no. 4 (December 5, 2019): 435–42. http://dx.doi.org/10.1136/bmjspcare-2019-001979.

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BackgroundFamily caregivers of patients with advanced cancer have been reported to provide long hours of care and be at risk for poor psychological outcomes. Although research has focused on the nature of caregiving burden, little attention has been paid to identifying protective factors that improve caregiver psychological outcomes.AimWe examined the relationship between caregivers’ time spent caregiving and the following psychological outcomes: anxiety, depression and caregiving esteem. Subsequently, we explored the main and moderating effects of caregiver-perceived self-competency and sense of meaning on caregiver psychological outcomes.Design/participantsCross-sectional analysis was conducted using the baseline data from an ongoing cohort study. Family caregivers of advanced cancer patients (n=287) were recruited from two tertiary hospitals in Singapore.ResultsTime spent caregiving was not significantly associated with caregiver anxiety, depression or caregiving esteem. However, significant main effects of self-competency on anxiety and caregiving esteem; and sense of meaning on anxiety, depression and caregiving esteem were observed. Moderator analyses further indicated that self-competency attenuated the positive relationship between time spent caregiving and anxiety, while sense of meaning attenuated the negative relationship between time spent caregiving and caregiving esteem.ConclusionGreater perceived self-competency and sense of meaning are related to better caregiver psychological outcomes, and protect caregivers from worsening outcomes as caregiving hours increase. Our findings suggest that screening caregivers for distress is an important part of care, and that supportive interventions for caregivers should aim to enhance their perceived caregiving competencies and the ability to make meaning of their caregiving role.

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Ferrell, Betty R., and Pamela Baird. "Deriving Meaning and Faith in Caregiving." Seminars in Oncology Nursing 28, no. 4 (November 2012): 256–61. http://dx.doi.org/10.1016/j.soncn.2012.09.008.

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Reimer, Kevin S. "The Political Meaning of Christian Caregiving." Journal of Psychology and Theology 40, no. 2 (June 2012): 127–30. http://dx.doi.org/10.1177/009164711204000208.

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Rubinstein, Robert L. "Themes in the meaning of caregiving." Journal of Aging Studies 3, no. 2 (June 1989): 119–38. http://dx.doi.org/10.1016/0890-4065(89)90012-1.

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Lou, Vivian, Daniel W. L. Lai, Daniel Fu-Keung Wong, Doris Yu, Shuangzhou Chen, and Reynold Leung. "The Generational Impact on Meaning Making and Well-being of Adult Children Caregivers in Dementia Caregiving." Innovation in Aging 4, Supplement_1 (December 1, 2020): 908. http://dx.doi.org/10.1093/geroni/igaa057.3341.

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Abstract Children caregivers contributed significantly to care and support dementia parents globally. In the caregiving journey, making sense of providing care plays significant role in their caregiving journey. In an ageing society such as Hong Kong, different generations of children caregivers take up dementia caregiver roles. We hypothesized that from studying baby boomers (BB, born in 1946-1964) and generation X (GX, born in 1965-1980), generations have impacts on their meaning making and well-being outcomes. 601 Caregivers completed a paper or online battery of questionnaires on burden (ZBI-4), mental well-being (PHQ-9), caregiving factors (ADL, IADL, caregiving hours, Positive Aspect of Caregiving; PAC) and the meaning making factors (Finding Meaning Through Caregiving; FMTC). Results showed that significant difference between caregivers from two generations. GX have significantly lower meaning made, measured by PAC affirming self and enriching life, as well as FMTC provisional meaning. While they spent less caregiving hours for the more independent care recipients, they suffered from higher burden, higher FMTC loss/powerless and worse psychological well-being (PHQ). The findings demonstrated generation X caregiver suffered from lower level of the meaning made and worse psychological wellbeing outcomes than BB caregivers. Future caregiver studies should take generational effect into account and services shall be provided in a generation-responsive approach.

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Hasson-Ohayon, Ilanit, Gil Goldzweig, Tal Sela-Oren, Noam Pizem, Gil Bar-Sela, and Ido Wolf. "Attachment style, social support and finding meaning among spouses of colorectal cancer patients: Gender differences." Palliative and Supportive Care 13, no. 3 (August 8, 2013): 527–35. http://dx.doi.org/10.1017/s1478951513000242.

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AbstractObjectives:The current study explores the relationship between attachment styles, social support, gender and finding meaning in caregiving among spousal caregivers of colorectal cancer patients.Methods:Sixty caregivers (30 men and 30 women) were administered questionnaires assessing attachment styles, social support and finding meaning in caregiving, using a cross-sectional design.Results:For male caregivers avoidance attachment is associated with their finding meaning, whereas for female caregivers social support is associated with their finding meaning.Significance of results:Psychological interventions for caregivers should take into consideration gender differences and might benefit from addressing the process of finding meaning in caregiving.

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Binstock, R. H., and J. F. Cubrium. "Meaning, Context, and Voice in Caregiving Research." Gerontologist 32, no. 4 (August 1, 1992): 567–70. http://dx.doi.org/10.1093/geront/32.4.567.

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Quinn, Catherine, Linda Clare, and Robert T. Woods. "The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review." International Psychogeriatrics 22, no. 1 (September 22, 2009): 43–55. http://dx.doi.org/10.1017/s1041610209990810.

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ABSTRACTBackground: The majority of people in the early and middle stages of dementia are cared for at home by non-paid caregivers, the majority of whom will be family members. Two factors which could have an impact on the quality of care provided to the care-recipient are the caregiver's motivations for providing care and the meaning s/he finds in caregiving. The aim of this review is to explore the potential impact of both meaning and motivation on the wellbeing of caregivers of people with dementia. The review also explores individual differences in motivations to provide care.Methods: This was a systematic review of peer-reviewed empirical studies exploring motivations and meanings in informal caregivers of people with dementia. Four studies were identified which examined the caregiver's motivations to provide care. Six studies were identified which examined the meaning that caregivers found in dementia caregiving.Results: Caregivers' wellbeing could be influenced by the nature of their motivations to care. In addition, cultural norms and caregivers’ kin-relationship to the care-recipient impacted on motivations to provide care. Finding meaning had a positive impact on caregiver wellbeing.Conclusions: The limited evidence currently available indicates that both the caregiver's motivations to provide care and the meaning s/he finds in caregiving can have implications for the caregiver's wellbeing. More research is needed to explore the role of motivations and meaning in dementia caregiving.

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Baba, Ayako. "Difference in Parent-Child Care Experience by Demographic Characteristics: Focusing on Stress, Needs, and Meaning." Innovation in Aging 4, Supplement_1 (December 1, 2020): 907. http://dx.doi.org/10.1093/geroni/igaa057.3338.

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Abstract OBJECTIVE: In super aging society, unpaid caregivers play important roles. Therefore, they should be supported to realize the lives they want. However, it is unclear what caregivers’ particular needs are under different conditions. This study aimed to explore the difference in forms of stress and needs of caregivers by demographic characteristics. METHOD: Adult children who were caring for or had cared for their parents at home under the Japanese long-term care insurance system (n=653) completed the three open-ended questions concerning caregiving stress, unmet needs, and meaning, combined with a demographic survey. Data were analyzed using text mining approaches such as correspondence analysis and co-occurrence network analysis, which illustrated differences in description according to demographic variables. RESULT: 1) Caregivers of fathers felt stressed when rebuked by care-recipients, whereas daughter caregivers of mothers felt stressed in coping with care-recipient dementia and complaint, and balancing caregiving with parenting. 2) Caregivers in economic difficulty needed instrumental and financial support, whereas others needed flexible support and accessible consultation services. 3) Caregivers living with care-recipients found meaning in experience and repaying parents for raising them, whereas caregivers living away found meaning in improved parent-child relationships and images of care-recipients. Caregivers of persons with dementia found meanings in sharing time of tranquility with care-recipients. CONCLUSION: The study revealed differences in caregiving experience by care dyads, economic situation, living arrangement, and dementia etc. These results suggest that family caregivers should be provided with services to help find meanings in work and reduce stress levels, according to caregiving conditions.

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Arkles, Rachelle, Claire Jankelson, Kylie Radford, and Lisa Jackson Pulver. "Family caregiving for older Aboriginal people in urban Australia: Disclosing worlds of meaning in the dementia experience." Dementia 19, no. 2 (June 7, 2018): 397–415. http://dx.doi.org/10.1177/1471301218776761.

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Dementia in Australia’s Aboriginal and Torres Strait Islander population is an area of significant health and community concern. In this article, we use a hermeneutic mode of interpretation to deepen understanding of experience and meaning in dementia for family carers of older Aboriginal people in urban Australia. Specifically, we draw from the hermeneutic concept of “world disclosure” to illuminate the dementia experience in three ways: through an artwork of the brain and dementia; through concrete description of the lived relation of caregiving; and through an epochal perspective on the significance of contemporary caregiving in dementia. Using narrative and visual knowledge, this three-fold approach brings to the forefront the importance of ontological and existential meanings which resonate for Aboriginal families in the dementia caregiving experience.

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Chan, Chak K., Tom Vickers, and Adam Barnard. "Meaning Through Caregiving: A Qualitative Study of the Experiences of Informal Carers." British Journal of Social Work 50, no. 3 (April 21, 2019): 682–700. http://dx.doi.org/10.1093/bjsw/bcz039.

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Abstract This article reports the findings of a qualitative investigation of the way people find meaning through caregiving. It draws on the results of in-depth interviews with 37 informal carers and 11 stakeholders in Nottinghamshire, the United Kingdom. For most respondents caregiving involved looking after family members—for example, husband or wife, father or mother, young or adult children and mother-in-law. The meaning that respondents found through caregiving motivated them to cope with the difficulties associated with looking after a person in need. This research found that most informal carers operate with long-standing, gender-based understandings of their role, creating a potential risk that using gender-neutral terminology when referring to family members may obscure the subjective values that carers attach to informal caregiving and lead to role confusion. Moreover, although informal carers typically feel obliged to take care of family members in need and may value this role, they often require additional support from the state to reduce the pressures associated with caregiving and to enable them to continue to lead a meaningful life both within and beyond their caring role.

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Zhang, Jingjun, and Diana T. F. Lee. "Meaning in stroke family caregiving: A literature review." Geriatric Nursing 38, no. 1 (January 2017): 48–56. http://dx.doi.org/10.1016/j.gerinurse.2016.07.005.

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Yu, Doris, and Sheung Tak cheng. "WHAT DETERMINES THE USE OF MEANING FOCUSED COPING IN DEMENTIA CAREGIVING?" Innovation in Aging 3, Supplement_1 (November 2019): S809. http://dx.doi.org/10.1093/geroni/igz038.2981.

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Abstract Meaning-focused coping has been identified as an important factor contributing to more positive adjustment and health outcomes for family caregivers of persons with dementia. Yet, there is less evidence about what determines the use of this coping strategy. Based on the Meaning Making Model, this quantitative exploratory study identified the relationship between meaning focused coping and intrinsic motivation towards caregiving, quality of relationship between the care dyads and level of religiosity. Two hundreds and five family caregivers of PWD were recruited from a geriatric clinic from March 2018 – Feb 2019. A battery of questionnaires including the Meaning-Focused Coping Scale, Relationship Quality Scale, the Duke University Religion Index and Intrinsic Motivations to Care was administered in face-to-face interview. By using hierarchical regression analysis to control the effects of caregivers’ demographic profile, caregiving history, clinical severity of dementia, and level of neuro-psychiatric symptoms, the results indicated that a higher intrinsic motivation to caregiving (β = 1.457, p = 0.044), better dyadic relationship quality (β = 0.768, p = 0.004) and a higher level of religiosity (β = 0.969, p = 0.001) are independently related to a higher likelihood of using meaning-focused coping. The findings shift the paradigm of caregiver support from a deficit model to helping them to appraise the meaning of caregiving in dyadic relational, spiritual and motivational perspectives. The application of strength-based and person-centered approach to caregiver supportive program will be discussed.

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O'Connor, Deborah L. "Supporting Spousal Caregivers: Exploring the Meaning of Service Use." Families in Society: The Journal of Contemporary Social Services 76, no. 5 (May 1995): 296–305. http://dx.doi.org/10.1177/104438949507600503.

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The stress associated with caring for an impaired elderly family member has been well documented. Spousal caregivers in particular may jeopardize their own health while attempting to meet the demands of caregiving. Formal support services have been developed and are aimed at reducing the stress associated with caregiving. However, simply providing services does not ensure utilization. Research documents the low utilization of services by the elderly, particularly spousal caregivers, but fails to explain it adequately. The author explores the gaps in current understanding of the issues and identifies the subjective meaning associated with service use as an important but overlooked determinant of service utilization. Selected case studies demonstrate the importance of this understanding for effective intervention.

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Pang, R., and D. Lee. "FINDING MEANING IN DEMENTIA FAMILY CAREGIVING: A PILOT STUDY." Innovation in Aging 1, suppl_1 (June 30, 2017): 463–64. http://dx.doi.org/10.1093/geroni/igx004.1652.

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Zhang, J., and D. Lee. "MEANING IN STROKE FAMILY CAREGIVING: A PILOT PHENOMENOLOGICAL STUDY." Innovation in Aging 1, suppl_1 (June 30, 2017): 806–7. http://dx.doi.org/10.1093/geroni/igx004.2914.

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Hasselkus, B. R. "Meaning in Family Caregiving: Perspectives on Caregiver/Professional Relationships." Gerontologist 28, no. 5 (October 1, 1988): 686–91. http://dx.doi.org/10.1093/geront/28.5.686.

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Mayes, Rachel, Rosemary Cant, and Lindy Clemson. "The Home and Caregiving: Rethinking Space and its Meaning." OTJR: Occupation, Participation and Health 31, no. 1 (January 25, 2010): 15–22. http://dx.doi.org/10.3928/15394492-20100122-01.

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Ayres, Lioness. "Narratives of family caregiving: The process of making meaning." Research in Nursing & Health 23, no. 6 (December 2000): 424–34. http://dx.doi.org/10.1002/1098-240x(200012)23:6<424::aid-nur2>3.0.co;2-w.

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Van Esterik, Penny. "Care, Caregiving, and Caregivers." Food and Nutrition Bulletin 16, no. 4 (December 1995): 1–11. http://dx.doi.org/10.1177/156482659501600411.

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Research and common knowledge maintain that women are the primary caregivers of children and thus are crucial to explaining care. Yet most conceptual paradigms guiding the analysis of care allow little room for examining who is caring for the caregiver. A consideration of care must include a deconstruction of what constitutes care, the process of caregiving that influences child survival, the way caring acts are divided in a society, and how such acts are integrated into a matrix of other supportive activities. This paper reviews the meaning of care cross-culturally and the context in which care takes place, and focuses on child care and child-feeding as key activities. It concludes with action strategies and policy challenges following from a gender analysis of care.

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Noonan, A. E., and S. L. Tennstedt. "Meaning in Caregiving and Its Contribution to Caregiver Well-Being." Gerontologist 37, no. 6 (December 1, 1997): 785–94. http://dx.doi.org/10.1093/geront/37.6.785.

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Haywood, Carol, Elizabeth Pyatak, Natalie Leland, Benjamin Henwood, and Mary C. Lawlor. "A Qualitative Study of Caregiving for Adolescents and Young Adults With Spinal Cord Injuries: Lessons From Lived Experiences." Topics in Spinal Cord Injury Rehabilitation 25, no. 4 (September 2019): 281–89. http://dx.doi.org/10.1310/sci2504-281.

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Objective: To examine characteristics of caregiving from the perspectives of adolescents and young adults (AYAs) with spinal cord injuries (SCIs) and their informal caregivers to address outstanding gaps in knowledge relating to definitions of caregiving and its associated practices for this population. Methods: A multiphase qualitative design was applied, using phenomenological and narrative methods to capture data in participants' homes and communities. Participants were recruited from rehabilitation hospitals and community organizations throughout Los Angeles County, California. Inclusion criteria for AYAs included being 15–22 years old, having acquired an SCI within the previous 5 years, and using a wheelchair for mobility. The AYAs nominated persons they identified as primary caregivers to also participate. Data were collected through individual and group interviews as well as activity observations. Results: Data from the 17 participants (9 AYAs and 8 informal, primary caregivers) revealed ways in which the meaning of caregiving varied among dyads. Caregiving practices extended beyond physical assistance to include support for a range of day-to-day activities spanning from practical needs to facilitating developmental trajectories. Although AYAs expressed ideas about preferred caregiver characteristics, care partnerships appeared to be guided more by availability than preference. Conclusion: Phenomenological analysis revealed that the meaning of “caregiving” and its associated practices are highly individualized for AYAs with SCIs. Caregiving is rooted in personal needs related to effects of SCI and developmental goals. Everyday practices are shaped by individual relationships and the beliefs of AYAs and their caregivers. Addressing influences of caregiving on long-term health and function may require attention to developmental processes, caregiver “fit,” and ways care is, or can be, distributed throughout broader networks according to personal needs and preferences.

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Cao, Yanchun, and Fan Yang. "Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support." International Journal of Environmental Research and Public Health 17, no. 2 (January 10, 2020): 455. http://dx.doi.org/10.3390/ijerph17020455.

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Caregiving burden significantly effects the physical and mental health of family dementia caregivers. While the association between objective caregiving burden (OCB) and subjective caregiving burden (SCB) of family dementia caregivers is well documented, little is known as with how the association is moderated by the configuration of intrapersonal resource (e.g., immanent justice reasoning) and interpersonal resource (e.g., social support). The present study collected cross-sectional data on 157 major family caregivers of non-institutionalized persons with dementia in an urbanizing region of Western China’s Sichuan Province. They responded to questions on daily time spent on caregiving, the short version of Zarit Burden Interview (ZBI), a sub-scale of a caregiver meaning scale, Social Support Rating Scale (SSRS), and demographic questions. Controlling for the demographic variables of the caregivers, this study found that the objective and subjective dementia caregiving burden were significantly associated (p < 0.001), and immanent justice reasoning was positively correlated with subjective burden (p < 0.01). Moreover, the association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both high (p < 0.001), but neutral when social support was high and immanent justice reasoning was low. The association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both low (p < 0.05), but neutral when social support was low and immanent justice reasoning was high. This research suggests the importance of developing intervention programs that consider the configuration of the external supporting resources and internal meaning-making of caregiving of the family dementia caregivers.

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Gorawara-Bhat, Rita, Jeffrey Graupner, Jason Molony, and Katherine Thompson. "Informal Caregiving in a Medically Underserved Community: Challenges, Construction of Meaning, and the Caregiver–Recipient Dyad." SAGE Open Nursing 5 (January 2019): 237796081984467. http://dx.doi.org/10.1177/2377960819844670.

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Little is known about informal caregivers' challenges in medically underserved communities. This qualitative study explores their perceptions/experiences of caregiving in a medically underserved community in Midwest United States. Two focus groups ( n = 12) were conducted and themes were extracted and analyzed. Theme 1 included perceived barriers/unmet needs; most prevalent of which were lack of informational resources and support groups. A second unsolicited and unanticipated theme highlighted how caregivers constructed meaning through reappraising challenges to create enriching experiences for themselves, reinforcing their evolving dyadic relationship with care-recipient. Challenging and enriching aspects of caregiving coexisted and were rooted in caregiver–care-recipient dyad. Caregivers used meaning-making as a coping strategy for challenges. Prior research corroborates caregivers' challenges and meaning-making; this study contributes by delineating how both become interrelated. Policy makers can (a) alleviate challenges by increasing informational resources and support groups and (b) provide training to optimize caregivers' meaning-making, thus enhancing their positive experiences.

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Hendricks-Lalla, Abeedah, and Chrisma Pretorius. "The male familial caregiver experience of caring for persons with Alzheimer’s disease from low socio-economic status: A South African perspective." Dementia 19, no. 3 (June 18, 2018): 618–39. http://dx.doi.org/10.1177/1471301218781372.

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The aim of this study was to explore the experiences of male familial caregivers of persons with Alzheimer’s disease from low socio-economic status using the ecological systems theory perspective. The data were obtained from 11 semi-structured interviews that were conducted with the familial caregivers of persons with Alzheimer’s disease. Data were analyzed using thematic analysis, where four main themes emerged, namely, relationship difficulties, understanding Alzheimer’s disease, support networks, and finding meaning and satisfaction in the caregiving role. Behavioral problems, erosion of the relationship with the significant other, familial conflict, experience of diagnosis, lack of information, lack of free time, and financial concerns were identified challenges facing caregivers. Provision of information, support groups, social support, community-based support, and finding meaning and satisfaction in the caregiving role were reported as resources that assist in caregiver coping. Men seem to be capable of providing effective care and are able to successfully manage in their caregiving role. Culture seems to play a significant role in help-seeking behavior and the approach to caregiving. The findings provide the basis for the specific needs of male caregivers that should be focused on in order to provide culturally appropriate services to enhance caregiver coping amongst male caregivers in similar settings.

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Hasselkus, B. R. "The Meaning of Daily Activity in Family Caregiving for the Elderly." American Journal of Occupational Therapy 43, no. 10 (October 1, 1989): 649–56. http://dx.doi.org/10.5014/ajot.43.10.649.

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Ling, Gigi C. C., and Amy Y. M. Chow. "When Cancer Meets Dementia: The End-of-Life Caregiving Experience for Older Adults With Comorbid Dementia and Cancer." Innovation in Aging 4, Supplement_1 (December 1, 2020): 472. http://dx.doi.org/10.1093/geroni/igaa057.1529.

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Abstract Older adults with comorbid dementia and cancer is an increasing phenomenon with the aging population worldwide. Caregivers of these older adults might have a totally different and unique end-of-life caregiving experience. This is because all physical and behavioral signs and symptoms of dementia and cancer may interact with each other and complicate the caregiving experience. The aims of this study was to understand and examine the end-of-life caregiving experiences for older adults with comorbid dementia and terminal cancer from the perspective of family caregivers. Twenty-one caregivers were invited to participate in a semi-structured interview that examined the end-of-life caregiving experiences, its impact and how they coped with the challenges they faced. The interviews were transcribed and analyzed using interpretative phenomenological analysis. The essential meaning of the phenomenon is understood as “grieving thrice, suffering dually and becoming one”, characterized by how caregivers understood the meaning of togetherness after going through the time of recurring losses from dementia through cancer to death and experiencing ambiguous sufferings dually with their loved one. Ambiguous sufferings were not “there” before the diagnosis of cancer but emerge in the context of comorbid dementia and cancer and in the connection with the caregivers making interpretation and appraisal of their internal and external resources. These important findings fill in the knowledge gap in the literature related to end-of-life caregiving experience for older adults with comorbid dementia and cancer; and may guide the development of appropriate interventions to support the older adults and their caregivers in a holistic approach.

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Tarter, Robin, Dena Hassouneh, Allison Lindauer, and Nathan Dieckmann. "CHOICE MODERATES RELATIONSHIPS BETWEEN LEVEL AND DURATION OF CARE AND THE HEALTH IMPACT OF CARING FOR AN OLDER PARENT." Innovation in Aging 3, Supplement_1 (November 2019): S109. http://dx.doi.org/10.1093/geroni/igz038.405.

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Abstract The perception of choice in the caregiving role has emerged as a key theme in qualitative gerontological caregiving research but few studies have examined choice quantitatively. The aim of our study was to test whether perceived choice moderated the relation between level and duration of care and the health impact of caring for a parent over the age of 65. We tested these questions in a series of structural equation models using existing data from the National Alliance for Caregiving, Caregiving in the U.S. 2015 Survey. We found that for adult-child caregivers of parents who reported a lack of choice in taking on the caregiving role, greater responsibilities for assistance with activities of daily living (ADLs) (p<0.01) and instrumental ADLS (p<0.01), and greater time providing care (p<0.05) predicted the negative impact of caregiving on caregiver health. The number of ADLs performed also predicted the emotional stress of caregiving for parents (p<0.01). Conversely, for caregivers who reported that they did have a choice in taking on the caregiving role, level and duration of care were not significantly related to the impact of caregiving on caregiver health, or the emotional stress of caregiving. Women were significantly more likely to report a lack of choice than men (p<0.05). Additional research is needed to explore the meaning of choice, and the ways in which choice may be especially constrained for daughters who care for older adults, in order to develop interventions to ameliorate the potentially deleterious health effects of caregiving on adult-children.

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King, Barbara J., and Stuart Shanker. "Beyond prosody and infant-directed speech: Affective, social construction of meaning in the origins of language." Behavioral and Brain Sciences 27, no. 4 (August 2004): 515. http://dx.doi.org/10.1017/s0140525x04350119.

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Our starting point for the origins of language goes beyond prosody or infant-directed speech to highlight the affective, multimodal, and co-constructed nature of meaning-making that was likely present before the split between African great apes and hominins. Analysis of vocal and gestural caregiving practices in hominins, and of meaning-making via gestural interaction in African great apes, supports our thesis.

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Lee, Eunice E., Carol J. Farran, Toni Tripp-Reimer, and Georgia Robins Sadler. "Assessing the Cultural Appropriateness of the Finding Meaning Through Caregiving Scale for Korean Caregivers." Journal of Nursing Measurement 11, no. 1 (March 2003): 19–28. http://dx.doi.org/10.1891/jnum.11.1.19.52060.

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Before psychometric instruments can be used for populations other than those for whom they were originally developed, validation of cultural appropriateness is essential. This article describes the assessment of the cultural appropriateness of the Finding Meaning Through Caregiving Scale (FMTCS) with Korean female family caregivers. The FMTCS measures finding meaning among caregivers from an existential perspective and has three subscales: Loss/Powerlessness, Provisional Meaning, and Ultimate Meaning. The instrument’s cultural appropriateness was examined through semistructured interviews with ten Korean-born female family caregivers, five caregivers living in Korea, and five living in the United States. The interview data are reported according to the three dimensions described by Flaherty and colleagues (1988): content, semantic, and conceptual equivalence. Although the majority of items of the FMTCS appeared applicable to Korean caregivers, items on the Loss/Powerlessness and Provisional Meaning subscales asking caregivers about feelings related to missing their past relationships or communications appeared inappropriate for many Korean daughters-in-law. Of equal importance, a unique source of meaning among Korean caregivers that is not assessed in the FMTCS is an interpersonal context, including the importance caregivers place on teaching children and feeling proud of one’s caregiving accomplishments in the eyes of other relatives. The addition of new items that address the interpersonal context is warranted to improve the instrument’s cultural appropriateness for Korean caregivers.

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Sheehan, Nancy W., and Laura M. Donorfio. "Efforts to create meaning in the relationship between aging mothers and their caregiving daughters: A qualitative study of caregiving." Journal of Aging Studies 13, no. 2 (June 1999): 161–76. http://dx.doi.org/10.1016/s0890-4065(99)80049-8.

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Priest,, Helena M. "The Phenomenology of Psychological Caregiving in Nursing." International Journal of Human Caring 6, no. 3 (April 2002): 8–14. http://dx.doi.org/10.20467/1091-5710.6.3.8.

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In the context of holistic nursing care, psychological care for physically ill people is a central element. Yet nurses often find it difficult to elucidate the precise meaning of the concept. Evidence from the literature confirms that, although there is some consensus, there is a general lack of clarity regarding the nature and experience of providing psychological care. This phenomenological study aimed to illuminate both the nature of the concept and the experience for nurses in caring for their patients’ psychological needs. It culminates in a phenomenological description of psychological care that may provide a platform for future research.

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Van Ranst, Nancy, Karine Verschueren, and Alfons Marcoen. "The Meaning of Grandparents as Viewed by Adolescent Grandchildren: An Empirical Study in Belgium." International Journal of Aging and Human Development 41, no. 4 (December 1995): 311–24. http://dx.doi.org/10.2190/pplv-dwg7-hv9r-6lvb.

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Why do adolescents value their grandparents? This was the leading question of an investigation among 563 adolescents and young adults in Flanders (Belgium). The Grandparent Meaning Scale which probes eleven a priori dimensions of meaning, was completed by 147 early adolescents ( M = 12.5 years), 175 middle adolescents ( M = 15.7 years), and 241 late adolescents ( M = 18.9 years). Results show that adolescents generally find their grandparents important and feel close to them. Grandparents are valued primarily because they provide affection, reassurance of worth, and reliable alliance. Relational-affective and caregiving meanings were assigned more often to grandmothers whereas advising, teaching, and narrative roles were ascribed more frequently to grandfathers. Maternal grandparents were generally perceived as more important and closer than paternal grandparents. Early adolescents assigned more importance and meaning to their grandparents than middle and late adolescents. There were no differences between grandsons and granddaughters.

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Tottenham, Nim. "Neural meaning making, prediction, and prefrontal–subcortical development following early adverse caregiving." Development and Psychopathology 32, no. 5 (December 2020): 1563–78. http://dx.doi.org/10.1017/s0954579420001169.

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AbstractEarly adversities that are caregiving-related (crEAs) are associated with a significantly increased risk for mental health problems. Recent neuroscientific advances have revealed alterations in medial prefrontal cortex (mPFC)-subcortical circuitry following crEAs. While this work has identified alterations in affective operations (e.g., perceiving, reacting, controlling, learning) associated with mPFC–subcortical circuitry, this circuitry has a much broader function extending beyond operations. It plays a primary role in affective meaning making, involving conceptual-level, schematized knowledge to generate predictions about the current environment. This function of mPFC–subcortical circuitry motivates asking whether mPFC–subcortical phenotypes following crEAs support semanticized knowledge content (or the concept-level knowledge) and generate predictive models. I present a hypothesis motivated by research findings across four different lines of work that converge on mPFC–subcortical neuroanatomy, including (a) the neurobiology supporting emotion regulation processes in adulthood, (b) the neurobiology that is activated by caregiving cues during development, (c) the neurobiology that is altered by crEAs, and (d) the neurobiology of semantic-based meaning making. I hypothesize that the affective behaviors following crEAs result in part from affective semantic memory processes supported by mPFC–subcortical circuitry that over the course of development, construct affective schemas that generate meaning making and guide predictions. I use this opportunity to review some of the literature on mPFC–subcortical circuit development following crEAs to illustrate the motivation behind this hypothesis. Long recognized by clinical science and cognitive neuroscience, studying schema-based processes may be particularly helpful for understanding how affective meaning making arises from developmental trajectories of mPFC–subcortical circuitry.

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Rasmussen, HEGE, and OVE Hellzen. "The meaning of long-term caregiving for patients with frontal lobe dementia." International Journal of Qualitative Studies on Health and Well-being 8, no. 1 (January 2013): 19860. http://dx.doi.org/10.3402/qhw.v8i0.19860.

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Márquez-González, María, Javier López, Rosa Romero-Moreno, and Andrés Losada. "Anger, Spiritual Meaning and Support from the Religious Community in Dementia Caregiving." Journal of Religion and Health 51, no. 1 (May 14, 2010): 179–86. http://dx.doi.org/10.1007/s10943-010-9362-7.

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Yu, Doris. "Unraveling the Health-Protective Effects of Sense of Coherence in Dementia Caregiving." Innovation in Aging 4, Supplement_1 (December 1, 2020): 355. http://dx.doi.org/10.1093/geroni/igaa057.1143.

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Abstract The health protective effects of sense of coherence in a stressful encounter is well recognized. Representing the extent an individual can comprehend, manage and make meaning out of a caregiving situation, little is known about how SOC shapes the dementia caregiving process in a way to benefit the carers’ health outcomes. This exploratory study recruited 401 family cares of dementia in Hong Kong. Over 30% of them reported moderate to severe depression, and those with low sense of coherence were most affected. Further analysis indicated that the health protective effects of SOC was mainly mediated through a higher level of perceived gain and more effective coping. In particular, those who can make meaning out of the caregiving situation were most benefited by such a mechanism. The study provides direction on ways to strengthen the health risk identification for family carers and enhance their role adaptation. After this presentation, the participants are able to: 1) Understand the role of sense of coherence in shaping the health of dementia family caregivers. 2) Understand the mediating pathways which explain the health benefit of sense of coherence for dementia family caregivers. □ Gain critical insights for developing health risk identification strategies and tailored interventions to protect the dementia family caregivers from depression.

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Setiyani, Rahmi, Carol Windsor, and Clint Douglas. "Filial Piety: From the Perspective of Indonesian Young Adults." Nurse Media Journal of Nursing 9, no. 1 (June 26, 2019): 46. http://dx.doi.org/10.14710/nmjn.v9i1.21170.

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Background: Filial piety refers to expectations for children to respect parents and fulfill care responsibility, including provide direct care and support them in their old age. However, socio-demographic changes might shape how young generation would see and practice the value of filial responsibility in parent’s old age.Purpose: This study aimed to explore the meaning of filial responsibility among young adults within the social context of Indonesia.Methods: Symbolic interactionism formed the framework for this study. The constructivist grounded theory method guided the analysis of the data obtained from in-depth interviews with eight university students. The participants were selected using a purposive and snowball sampling technique with the following criteria: 18 years old or over, currently enrolled as a student and had living parents. Results: The result showed that redefining the meaning of filial responsibility was obtained as the main theme which linked all four categories: ‘I am the one’, ‘not institutional care’, ‘the gendering of caregiving’, and ‘it is okay to do so’. The findings revealed that the value of filial responsibility was still upheld by Indonesian young people. However, their views had been changed somewhat from the traditional practices which were family oriented and highly gendered to a more contemporary form where caregiving was extended to non-family caregivers and supposed to be less gendered in the practice.Conclusion: This study offers an insight into the shifting patterns in elderly caregiving and support in Indonesia. The findings also indicate the need to further promote gender equality in elderly caregiving.

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Grey, Ben, Rudi Dallos, and Rebecca Stancer. "Feeling ‘like you’re on … a prison ship’ – Understanding the caregiving and attachment narratives of parents of autistic children." Human Systems: Therapy, Culture and Attachments 1, no. 1 (February 2021): 96–114. http://dx.doi.org/10.1177/26344041211000202.

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This study explored the caregiving and attachment relationships of parents of autistic children, analysing 16 Parent Development Interviews conducted as part of a larger project. The interviews were analysed using attachment theory–driven discourse analysis, namely, the Adult Attachment Interview and Meaning of the Child Interview methods of evaluating relational discourse for transformations of meaning with a self-protective function. A multiple case-study approach was used to build an explanatory model of the caregiving and parent–child relationships of the whole sample. The study found a high level of trauma in the parents’ early childhood that shaped the way they interpreted their child and the parent–child relationship, often undermining these parents’ intentions to form more positive relationships with their own children. An interpersonal understanding of the problems of these families is suggested, seeing difficulties as residing in relationships, maintained by a circular process of ruptures, as parent and child seek to protect themselves from the pain and shame inherent in the experience of ‘disconnection’, and the apparent failure of the parents’ hope for a better relationship with their children than they experienced as children. This may be exacerbated by commonly available autism narratives, which tend to essentialise problems, mechanise parental understanding of their children and encourage parents to experience their child as fundamentally separate, challenging the caregiving system. Clinicians supporting families with autistic children may be assisted by attending to this meaning-making process, seeking creative alternatives to help these parents realise their positive intentions that do not support a shame-based cycle.

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Pang, Rebecca CK, and Diana TF Lee. "Finding positives in caregiving: The unique experiences of Chinese spousal caregivers of persons with young-onset dementia." Dementia 18, no. 5 (August 23, 2017): 1615–28. http://dx.doi.org/10.1177/1471301217724026.

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The experience of taking care of spouses with young-onset dementia has been identified as unique and merits considerations. However, current knowledge about this area in Chinese spousal caregivers is scarce. A qualitative descriptive study was therefore conducted to explore the experience of spousal caregivers of persons with young-onset dementia in Hong Kong. A total of six spousal caregivers of persons diagnosed with dementia before the age of 65 participated in this study. Three major categories were identified: coming to terms with an unexpected diagnosis; multiple unanticipated and ‘early’ losses and finding positives and meaning. This study has highlighted the influence of sociocultural values on the spousal caregiving experience in young-onset dementia caregiving. The findings also have significant implications for the development of interventions to facilitate the spousal caregivers to accept and sustain their caregiving role.

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Ganzer, Carol. "Using Literature as an Aid to Practice." Families in Society: The Journal of Contemporary Social Services 75, no. 10 (December 1994): 616–23. http://dx.doi.org/10.1177/104438949407501003.

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Literature, both fiction and autobiography, can be used by practitioners to understand clients' moral imperatives, constructions of meaning, and subjective dimensions of caregiving. Clients' stories contain conflicts, life histories, and family traditions that influence decisions and attitudes and are not easily perceived in empirical studies.

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Wermuth, Laurie. "Caregiving to Family Members with Dementia." Californian Journal of Health Promotion 9, no. 1 (May 1, 2011): 86–98. http://dx.doi.org/10.32398/cjhp.v9i1.2061.

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The emotional and physical stress experienced by family caregivers of individuals with dementia is well known (Vitaliano, Jianping, Young, Caswell, Scanlan, Echeverria, 2009). Pearlin and colleagues (1990) noted that caregiving is complex, involving a variety of resources and strategies. The purpose of this qualitative study was to better understand careproviders‟ situations in context, including the resources they had available, the meaning of their care, and the strategies they employed to cope. Sixteen family care providers of adults with dementia were recruited through an adult services agency in northern California. Participants were interviewed using open-ended questions and the Center for Epidemiologic Studies–Depression scale (CES-D; Radloff, 1977). Field notes and interview transcripts for participants were interpreted, and compared with CES-D scores. Eleven out of sixteen care providers had scores indicating risk for clinical depression. Two groups are described: those with low distress scores, and those with high distress scores, highlighting some of the patterns associated with each. A list of coping strategies is provided from respondents‟ interviews. Based on the findings, community-based supports are needed to care for the increasing numbers of elderly individuals in the coming decades.

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Rasmussen, Susan. "A Little to One Side: Caregiving, Spatial Seclusion, and Spiritual Border-Crossing in Frail Old Age among the Tuareg (Kel Tamajaq)." Anthropology & Aging 33, no. 4 (December 1, 2012): 130–41. http://dx.doi.org/10.5195/aa.2012.30.

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This essay examines the meanings of the seclusion of frail elders and the roles of small children who act as their primary caregivers in rural Tuareg communities of northern Niger, and explores the implications of these arrangements for intergenerational relationships. Data suggests that both cosmological and socioeconomic forces shape the seclusion and caregiving of frail elders. It is argued that, despite some physical decline and social withdrawal in these circumstances, particularly on approaching death, nonetheless there is enhanced spiritual power in which these elders and their small caregivers cross thresholds toward new sources of meaning. More broadly, the essay contributes to debates over the meanings of disengagement over the life course and the semiotics of peripheral and secluded spaces.

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Angel, Jaqueline L. "LATE-LIFE CAREGIVING IN MEXICAN AMERICAN FAMILIES." Innovation in Aging 3, Supplement_1 (November 2019): S187. http://dx.doi.org/10.1093/geroni/igz038.670.

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Abstract This study explores how sociological triangulation can be used to examine Mexican-American families in late-life caregiving. We examine the importance of household structure in providing dementia care. The movement away from traditional residential arrangements that result from neoliberal market reforms and international migration means that intergenerational relationship norms and exchanges will inevitably change and affect Mexican-American families caring for their elders. For many aging Mexican-Americans, a severe lack of resources and health limitations introduce major uncertainties about their futures. We employ the H-EPESE and Sacramento Area Longitudinal Study of Aging to document the nature, extent, and quality of dementia caregiving in the Southwestern United States. Qualitative results uncover how the changing meaning of social relationships impacts family life for older parents with dementia. Multivariate analyses reveal that the late-life migration (after 50yrs) undermines resources and opportunities for community-based care. Implications of the findings for informal and formal support are discussed.

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Baba, Ayako, Kei Dazai, Kota Mori, Ai Sato, and Kana Hashimoto. "The meaning of the caregiving for the family from the viewpoint of grandchildren." Proceedings of the Annual Convention of the Japanese Psychological Association 83 (September 11, 2019): 2B—027–2B—027. http://dx.doi.org/10.4992/pacjpa.83.0_2b-027.

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Strang, Vicki R., Priscilla M. Koop, and Jacqueline Peden. "The Experience of Respite during Home-Based Family Caregiving for Persons with Advanced Cancer." Journal of Palliative Care 18, no. 2 (June 2002): 97–104. http://dx.doi.org/10.1177/082585970201800205.

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The purpose of this qualitative interpretive study was to explore the experience of respite during home-based family caregiving for persons with advanced cancer. Fifteen caregivers were interviewed twice after the death of their family member. Three main themes emerged from the data analysis. First, caring for a dying family member at home is an emotionally intense, exhausting, and singular experience, set in a world apart from everyday life patterns. Second, the caregivers differentiated between cognitive breaks and physical (getting away from) breaks of respite. To achieve a cognitive break and yet remain within the caregiving environment was viewed as important, whereas the physical separation from it was significant only if it contributed in some meaningful way to the caregiving. Third, the meaning of respite is rooted in the desire to bring a measure of quality and normalcy to the life of the dying person. Respite means staying engaged in living life with the dying family member.

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Journal articles on the topic 'Meaning in caregiving'

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