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1

Johnson, Diann. Medical records: Getting yours : a consumer's guide to obtaining and understanding medical records. Washington, D.C: Public Citizen's Health Research Group, 1995.

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2

Moe Levine on advocacy. Portland, OR: Trial Guides, 2009.

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3

Advocacy in health care. Osney Mead, Oxford, OX: Blackwell Science, 1998.

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4

Drukpa, Zangley. Along the health trail: Insights, reflections & advocacy 2008-2013. [Thimphu]: Ministy of Health, Royal Government of Bhutan, 2013.

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5

A patient's right to know: Information disclosure, the doctor and the law. Aldershot, Hants, England: Dartmouth, 1989.

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6

Gross, Dominik, and Michael Rosentreter. Der Patient und sein Behandler: Die Perspektive der Medical Humanities. Berlin: Lit, 2011.

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7

Health care advocacy: A guide for busy clinicians. New York: Springer, 2011.

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8

From advocacy to allocation: The evolving American health care system. New York: Free Press, 1986.

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9

Clément, Jean-Marie. Droits des malades et bioéthique. Paris: Berger-Levrault, 1996.

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10

Pediatrics, American Academy of, ed. Global child health advocacy: On the front lines. Elk Grove Village, Ill.]: American Academy of Pediatrics, 2014.

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11

The public shaping of medical research: Patient associations, health movements and biomedicine. London: Routledge, Taylor & Francis Group, 2015.

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12

Deborah, Lupton, ed. The fight for public health: Principles and practice of media advocacy. London: BMJ Publ. Group, 1994.

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13

D'Alessandro, Alex. Patient advocacy strategies for managed care: A continuing education home study course and work-in-progress manual for the certified managed care ombudsman program. Clearwater, FL: Of Course Publications, 1998.

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14

Health, Nigeria Federal Ministry of. Strategic alliance for sector wide reform and development: Advocacy and operations research for people-centered development. [Lagos, Nigeria]: Federal Ministry of Health, 1998.

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15

Brennan, Troyen. Just doctoring: Medical ethics in the liberal state. Berkeley: University of California Press, 1991.

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16

Gitnick, Gary. Getting Well: What Every Patient Ought to Know to Get the Best Medical Treatment. S.l: Phoenix Books Incorporated, 2008.

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17

Towards the emancipation of patients: Patients' experiences and the patient movement. Bristol, UK: Policy Press, 2010.

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18

Costello-Nickitas, Donna M. Policy and politics for nurses and other health professions: Advocacy and action. Sudbury, Mass: Jones and Bartlett Publishers, 2011.

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19

Grogan, Colleen M. Healthy voices, unhealthy silence: Advocacy and health policy for the poor. Washington, DC: Georgetown University Press, 2008.

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20

Kelly, Diann Cameron. Treating young veterans: Promoting resilience through practice and advocacy. New York, NY: Springer Pub. Co., 2011.

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21

The life you save: Nine steps to finding the best medical care and avoiding the worst. Camabridge, MA: Da Capo Press, 2009.

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22

Möntmann, Hans Georg. Achtung, Arzt!: Erstklassige Medizin : drittklassige Behandlung. München: Droemer, 2000.

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23

Zakarian, Beverly. The activist cancer patient: How to take charge of your treatment. New York: Wiley, 1996.

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24

The activist cancerpatient: How to take charge of your treatment. New York: Wiley, 1996.

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25

Widdershoven, Guy. Ethiek in de kliniek: Hedendaagse benaderingen in de gezondheidsethiek. Maastricht: Boom, 2000.

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26

Protections for foster children enrolled in clinical trials: Hearing before the Subcommittee on Human Resources of the Committee on Ways and Means, U.S. House of Representatives, One Hundred Ninth Congress, first session, May 18, 2005. Washington: U.S. G.P.O., 2007.

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27

Patients as policy actors. New Brunswick, N.J: Rutgers University Press, 2011.

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28

John, Billings, and Roscoe Pound Foundation, eds. Medical quality and the law: Final report of the 1989 Chief Justice Earl Warren Conference on Advocacy in the United States. Washington, D.C: The Foundation, 1990.

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29

Gibbons, Michael Christopher. Impact of consumer health informatics applications. Rockville, Md: U.S. Dept. of Health and Human Services, Public Health Service, Agency for Healthcare Research and Quality, 2009.

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30

Hilton, Bruce. First, do no harm: Wrestling with the new medicine's life & death dilemmas. Nashville: Abingdon Press, 1991.

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31

Johns Hopkins University. Evidence-based Practice Center and United States. Agency for Healthcare Research and Quality, eds. Impact of consumer health informatics applications. Rockville, Md: U.S. Dept. of Health and Human Services, Public Health Service, Agency for Healthcare Research and Quality, 2009.

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32

K, Nathaniel Alvita, ed. Ethics & issues in contemporary nursing. 2nd ed. Australia: Delmar/Thomson Learning, 2002.

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33

Rozovsky, Lorne Elkin. The Canadian patient's book of rights: A consumer's guide to Canadian health law. Toronto: Doubleday Canada, 1994.

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34

Rozovsky, Lorne Elkin. The Canadian patient's book of rights: A consumer's guide to Canadian health law. Toronto: Doubleday Canada, 1994.

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35

Rights, risks and responsibilities: Interprofessional working in health and social care. Basingstoke: Palgrave Macmillan, 2012.

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36

Marilou, McPhedran, ed. What about accountability to the patient?: Final report of the Special Task Force on Sexual Abuse of Patients. [Toronto]: The Task Force, 2000.

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37

Funding health advocacy. Washington, DC: Grantmakers in Health, 2005.

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38

American Psychological Association. Committee on Professional Practice., ed. Hospital practice: Advocacy issues. Washington, DC: American Psychological Association, 1988.

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39

Art of Advocacy: Cross Examination of Non-medical Experts (Art of Advocacy). Matthew Bender and Company Inc, 1997.

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40

M, Harney David, Wolfson Warren D, and Matthew Bender (Firm), eds. Successful advocacy in medical malpractice cases: Cross examination. New York, N.Y. (235 E. 45th St., New York 10017): Matthew Bender, 1985.

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41

Fred, Peters, Wolfson Warren D, and Matthew Bender (Firm), eds. Successful advocacy in medical malpractice cases: Direct examination. New York, N.Y. (235 E. 45th St., New York 10017): M. Bender, 1985.

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42

Levine, Moe. Moe Levine on Advocacy II. Trial Guides, 2012.

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43

Bhattacharya, Dhrubajyoti. Public Health Policy: Issues, Theories, and Advocacy. Wiley & Sons, Incorporated, John, 2013.

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44

Bhattacharya, Dhrubajyoti. Public Health Policy: Issues, Theories, and Advocacy. Wiley & Sons, Incorporated, John, 2013.

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45

Rose, Stephen M., and Bruce L. Black. Advocacy and Empowerment. Routledge, 1985.

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46

Advocacy and Empowerment. Taylor & Francis Group, 2020.

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47

Grisold, Wolfgang, Walter Struhal, and Thomas Grisold, eds. Advocacy in Neurology. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780198796039.001.0001.

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The concept of advocacy literally means to speak for someone. Rooted in law, the term has been increasingly used in medical and patient-related contexts in the past years. This book focuses on advocacy activities in the field of neurology. Neurology deals with heterogeneous and diverse populations of patients, who suffer from disability, chronic, and often progressive diseases. The complex characteristics of neurological diseases yield exceptional challenges to plan for and implement advocacy activities on all levels. All stakeholders are challenged to provide the support patients need; advocacy facilitates this process and bundles efforts to reach the objective of the advocacy task. Building on the premise that advocacy goes beyond merely theoretical claims, this book collects and organizes advocacy approaches in practice. Thereby, we draw on different dimensions of ‘advocacy in neurological practice’ and discuss implications for management, healthcare, planning, and policymaking. We place special emphasis on what advocacy means for several different diseases, such as amyotrophic lateral sclerosis (ALS), brain tumours, MS, epilepsy among others. Contributions include best practices, lessons learnt, and tools to be used. The main goal of this book is to raise awareness for advocacy in neurology and empower readers to plan for and implement appropriate activities. In advocacy, anyone can be both an advocate and an advocatee. This book offers a seminal contribution for anyone who is pursuing or intending to pursue advocacy in neurology and related fields.
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48

M, Lauria Marie, and Association of Oncology Social Work., eds. Oncology social work toolbox: Building advocacy skills. Glenview, IL: Association of Oncology Social Work, 2001.

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49

Smith, Seoirse, and Laurie M. Savage. Patient support and advocacy. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198734444.003.0027.

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Patient advocacy groups grew out of a need to provide support to and education for patients and to fuel research to better understand diseases and their diagnosis, and treatment options for patients. These organizations have become integral partners with the medical community in developing healthcare policy, patient education, patient support, and scientific research. The Ankylosing Spondylitis International Federation (ASIF) of patient advocacy and support groups and the Spondylitis Association of America (SAA) are two of the leading patient advocacy organizations for millions of people affected by axial spondyloarthritis, increasing awareness of the disease, disseminating knowledge, sponsoring research, and influencing public policy.
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50

Silvera, Mike, and Rukshana Kapasi. Health Advocacy for Minority Ethnic Londoners: Putting Services on the Map. King's Fund, 2000.

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