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1

Cooper, David B., and Jo Cooper, eds. Palliative Care Within Mental Health. New York, NY: Routledge, 2018.: Routledge, 2018. http://dx.doi.org/10.4324/9780429465666.

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2

Sue, Read, ed. Palliative care for people with learning disabilities. London: Quay Books, 2006.

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3

1951-, Breitbart William, and Holland Jimmie C, eds. Psychiatric aspects of symptom management in cancer patients. Washington, DC: American Psychiatric Press, 1993.

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4

Palliative Care within Mental Health. Routledge, 2018.

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5

Cooper, David, and Jo Cooper. Palliative Care Within Mental Health. CRC Press, 2018. http://dx.doi.org/10.1201/9781315121932.

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6

Palliative Care Within Mental Health Care and Practice. Taylor & Francis Group, 2014.

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7

Cooper, Jo, and David Cooper. Palliative Care Within Mental Health: Care and Practice. Taylor & Francis Group, 2018.

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8

Cooper, Jo, and David Cooper. Palliative Care Within Mental Health: Care and Practice. Taylor & Francis Group, 2018.

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9

Cooper, Jo, and David Cooper. Palliative Care Within Mental Health: Care and Practice. Taylor & Francis Group, 2014.

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10

Cooper, Jo, and David Cooper. Palliative Care Within Mental Health: Care and Practice. Taylor & Francis Group, 2018.

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11

Cooper, Jo, and David Cooper. Palliative Care Within Mental Health: Care and Practice. Taylor & Francis Group, 2018.

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12

Cooper, Jo, and David B. Cooper. Palliative Care Within Mental Health: Ethical Practice. Taylor & Francis Group, 2018.

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13

Cooper, Jo, and David B. Cooper. Palliative Care Within Mental Health: Ethical Practice. Taylor & Francis Group, 2018.

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14

Cooper, Jo, and David B. Cooper. Palliative Care Within Mental Health: Ethical Practice. Taylor & Francis Group, 2018.

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15

Cooper, Jo, and David B. Cooper. Palliative Care Within Mental Health: Ethical Practice. Taylor & Francis Group, 2018.

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16

Palliative Care Within Mental Health: Ethical Practice. Taylor & Francis Group, 2018.

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17

Palliative Care Within Mental Health Principles And Philosophy. Radcliffe Publishing Ltd, 2012.

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18

Hester, Joan. Opioids in palliative care. Edited by Paul Farquhar-Smith, Pierre Beaulieu, and Sian Jagger. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198834359.003.0018.

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Before Twycross published the paper discussed in this chapter, the use of opioids in palliative care was more folkloric than evidence based, relying on the wisdom of the ages rather than being observation based: patients with advanced cancer received little or no narcotic (opioid) analgesics because of fears of addiction, of rapid escalation in dose, and of impairment of mental faculties. This paper, published in 1975, was instrumental in questioning some of the myths that had surrounded the dark art of opioid use, and expounding a rational and practical treatise for their use in palliative care. Although it describes an era over 40 years ago, when practice was markedly different from that used today, it also introduced concepts that were ahead of their time, such as the psychosocial aspects of pain.
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19

Psychiatry of Palliative Medicine: The Dying Mind. Taylor & Francis Group, 2011.

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20

Sampson, Elizabeth, and Karen Harrison Dening. Palliative care and end of life care. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199644957.003.0028.

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Our ageing population and changes in cause of death, mean that increasing number of people will die in old age. Older people have, in many countries, had poor access to good quality end of life care. Many will develop multiple co-morbidities associated with age; dementia, mental health problems and general frailty. Palliative care is an approach which aims to relieve suffering and take account of a person’s physical, psychosocial and spiritual needs as they near the end of life. Advanced dementia is now being perceived as a “terminal illness”. Interventions such as antibiotics and enteral tube feeding remain in use despite little evidence that they improve quality of life or other outcomes. A person-centred approach from a multidisciplinary team is vital in providing good quality end of life care in a range of settings The acknowledgement of anticipatory grief and provision of bereavement support are vital for some family carers.
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21

(Editor), Jane Higgs, Gill Wakley (Editor), Ruth Chambers (Editor), and Clare Gerada (Editor), eds. Demonstrating Your Clinical Competence in Depression, Dementia, Alcoholism, Palliative Care And Osteoporosis (Primary Care Nursing). Radcliffe Publishing Ltd, 2005.

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22

Ian, M.D. Maddocks (Foreword), ed. The Psychiatry of Palliative Medicine: The Dying Mind. Radcliffe Publishing, 2007.

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23

Masterson, Melissa, Barry Rosenfeld, Hayley Pessin, and Natalie Fenn. Adapting Meaning-Centered Psychotherapy in the Palliative Care Setting. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199837229.003.0009.

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Meaning-centered psychotherapy (MCP) has demonstrated effectiveness in aiding patients with advanced cancer search for and attain a sense of meaning in life despite serious illness. Work with MCP and decades of research focused on the mental health needs of palliative care patients led to the development of an abbreviated version of MCP specifically tailored to palliative care patients. This chapter describes the development of a three-session adaptation of MCP called meaning-centered psychotherapy—palliative care (MCP-PC), along with an overview of the session content. Session transcripts and case vignettes are used to highlight results from the initial pilot study. These preliminary results provide support for the feasibility, acceptability, and effectiveness of this intervention in helping terminally ill patients in hospice or palliative care settings better cope with the challenges inherent in confronting death and dying.
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24

Barraclough, Jennifer. Integrated Cancer Care: Holistic, Complementary, and Creative Approaches. Oxford University Press, USA, 2001.

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25

Jennifer, Barraclough, ed. Integrated cancer care: Holistic, complementary and creative approaches. Oxford: Oxford University Press, 2001.

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26

End-of-life Care: Bridging Disability And Aging With Person-Centered Care. Haworth Pastoral Press, 2006.

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27

C, Gaventa William, and Coulter David L, eds. End-of-life care: Bridging disability and aging with person-centered care. Binghamton, NY: Haworth Pastoral Press, 2005.

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28

End-of-life Care: Bridging Disability And Aging With Person Centered Care. Haworth Pastoral Press, 2006.

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29

Max, Chochinov Harvey, and Breitbart William 1951-, eds. Handbook of psychiatry in palliative medicine. 2nd ed. New York: Oxford University Press, 2009.

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30

Chochinov, Harvey Max, and William Breitbart. Handbook of Psychiatry in Palliative Medicine. Oxford University Press, Incorporated, 2011.

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31

Chochinov, Harvey M., and William Breitbart. Handbook of Psychiatry in Palliative Medicine. Oxford University Press, 2000.

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32

Chochinov, Harvey Max, and William Breitbart. Handbook of Psychiatry in Palliative Medicine: Psychosocial Care of the Terminally Ill. Oxford University Press, Incorporated, 2023.

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33

Hospice and Palliative Nurses Association Staff. Terminal Restlessness. Kendall/Hunt Publishing Company, 1999.

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34

Care for Dying People with Learning Disabilities. Worth Publishing, 2005.

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35

Cobbs, Elizabeth L., Amanda Hull, and Alyssa Adams. Person-Directed Health Care Across the Lifespan: The Veterans Affairs Health Care System. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190466268.003.0027.

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The VA is the largest and most comprehensive health care system in the United States today. It aims to provide integrated, seamless continuum of person-directed care blending healing approaches across the lifespan. This chapter reviews the VA elements that support this highly sophisticated and effective system, including primary care, mental health, geriatrics, extended care and palliative care, integrative health, and education. The chapter also provides an overview of the philosophical transformation occurring within the VA where disease care is shifting to a whole-health system where the veteran, not the disease, is at the center of care. The Integrative Health and Wellness Program at the Washington DC VA is highlighted as a program that exemplifies this transformation.
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36

Markus, Hugh, Anthony Pereira, and Geoffrey Cloud. Ethical issues in stroke care. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198737889.003.0017.

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The chapter on ethical issues in stroke care sets out an ethical framework incorporating patient autonomy, beneficence, non-maleficence, and justice to inform patient-centred stroke care. It covers a broad range of legal information as relevant to stroke care in the United Kingdom such as the European Law of Human Rights, The Human Rights Act 1998, The Mental Capacity Act (MCA) 2007, and Deprivation of Liberty safeguards (DoLS). It covers widely applicable guidance around consent, cardiopulmonary resuscitation, artificial nutrition and hydration, and withholding treatment and withdrawing medical treatment. A section is included to review the various types of Prolonged Disorders of Consciousness which are rare but devastating complication of stroke. An approach to end of life or palliative care in the stroke patient is also discussed.
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37

Weiner, Stephen, and Susanne Petermann. Stephen Weiner, Patient in the Mental Health System. Edited by John Z. Sadler, K. W. M. Fulford, and Cornelius Werendly van Staden. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780198732365.013.4.

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Excerpts from an interview with Stephen Weiner, who recounts his experience in the mental health care system from being told he had an emotional disturbance as a child (1957–1958) to his work with a psychiatrist on strengthening his more rational self. As a child, he was not given a diagnosis, making it difficult to know how “objectively” to evaluate his condition. Probably little was known about the phenomenology of derealization and solipsism then. After college he decided to seek treatment for his growing depression and alcohol abuse under a method known as Rolfing. He describes his skepticism toward psychiatrists and allied professionals unwilling to explain the scientific basis of their treatment. He suggests that the switch to the biological model of mental illness, while mostly good, brought about new difficulties for patients. After seeing three different doctors, Weiner settled with a psychiatrist who offered relief and palliative care.
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38

Wood, Michèle J. M. The contribution of art therapy to palliative medicine. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0411.

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In the United Kingdom, and several other European countries, Canada, Australia, and the United States, art therapy is a state-registered health-care profession and its practitioners complete a postgraduate training for 2 years full-time or equivalent. The training encompasses models of psychotherapy, psychiatry, psychology, and the role and function of aesthetics and creativity in health care. Art therapy training consists of three core elements: the theoretical underpinnings of the practice, experiential engagement in artistic and interpersonal activities (so that trainees develop their capacity for self-reflection and insight and continue to engage in their own art-making) and clinical placements. Clinical placements are central to the training of art therapists, and in this way practitioners also learn about the roles of other health professionals, the function of interdisciplinary teamwork, and art therapy’s contribution to this. Professional registration of art therapists ensures that practitioners continue to maintain the standards of proficiency and professional practice established on qualification. In the United Kingdom, art therapy had its beginnings in the tuberculosis sanatoria of the 1940s but quickly developed within psychiatric and educational settings. Integrated with other care, it has since been widely incorporated into the fields of mental health and learning disabilities. However, there is a growing interest in art therapy with the medically and terminally ill. One recent survey in the UK found over 50% of art therapists in adult cancer care working with people in the palliative phase.
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39

Jr, Werth James L. Counseling Clients near the End of Life: A Practical Guide for Mental Health Professionals. Springer Publishing Company, Incorporated, 2012.

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40

Kristjanson, Linda Joan. FAMILY SATISFACTION WITH PALLIATIVE CARE: A TEST OF FOUR ALTERNATIVE THEORIES. 1991.

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41

Battino, Rubin. Using Guided Imagery and Hypnosis in Brief Therapy and Palliative Care. Taylor & Francis Group, 2020.

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42

Battino, Rubin. Using Guided Imagery and Hypnosis in Brief Therapy and Palliative Care. Taylor & Francis Group, 2020.

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43

Hodgkiss, Andrew. Further clinical issues. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198759911.003.0012.

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The clinical challenges arising when a person with a severe mental illness, such as schizophrenia or bipolar disorder, develops a cancer are surveyed. Delayed diagnosis and access to oncological treatment, factors contributing to reduced adherence, and the interruption of specialist community psychiatric care are discussed. Long-term psychotropic medication may complicate end-of-life care, and access to palliative care is usually limited for those in secure mental health inpatient units. The striking inverse relationship between neurodegenerative disorders (Alzheimer-type dementia) and proliferative disorders (cancers) is considered.Psychiatric aspects of haematopoietic stem cell transplantation (HSCT) are reviewed, including psychopathology arising from drugs used to prevent graft-versus-host disease and from infections complicating chronic immunosuppression. Cognitive impairment and suicide after HSCT are considered.
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44

Goodhart, William Howard Goodhart, and Great Britain: Parliament: Delegated Powers and Regulatory Reform Committee. 4th report of Session 2006-07 : Bailiffs Bill ; Corruption Bill ; Energy Efficiency and Microgeneration Bill ; Government Spending Bill ; Palliative Care Bill ; Piped Music etc. Bill ; Victims of Overseas Terrorism Bill , Government amendments : Tribunal, Courts and Enforcement Bill ; Government response: Mental Health Bill. Stationery Office, The, 2007.

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45

Dening, Tom, and Alan Thomas, eds. Oxford Textbook of Old Age Psychiatry. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199644957.001.0001.

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Taking a global approach by highlighting both the common burdens and the differences in management from country to country, The Oxford Textbook of Old Age Psychiatry, Second Edition includes information on all the latest improvements and changes in the field. New chapters are included to reflect the development of old age care; covering palliative care, the ethics of caring, and living and dying with dementia. Existing chapters have also been revised and updated throughout and additional information is included on brain stimulation therapies, memory clinics and services, and capacity, which now includes all mental capacity and decision making.
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46

Resnik, David B. Dying Declarations: Notes From A Hospice Volunteer (Haworth Pastoral Press Religion and Mental Health) (Haworth Pastoral Press Religion and Mental Health). Haworth Press, 2005.

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47

Resnik, David B. Dying Declarations: Notes From A Hospice Volunteer (Haworth Pastoral Press Religion and Mental Health) (Haworth Pastoral Press Religion and Mental Health). Haworth Press, 2005.

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48

Simon, Chantal, Hazel Everitt, Francoise van Dorp, Nazia Hussain, Emma Nash, and Danielle Peet. Oxford Handbook of General Practice. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780198808183.001.0001.

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The Oxford Handbook of General Practice offers hands-on advice to help with any day-to-day problems that might arise in general practice, and covers the entire breadth and depth of general practice in concise, quick-reference topics. It starts by exploring the definition of general practice, and moves on to practical advice on practice management, consulting with patients, social aspects of primary care, and prescribing and managing medicines. It gives practical advice on all clinical areas of general practice, including minor surgery, healthy living, chronic disease and elderly care, cardiology and vascular disease, respiratory medicine, endocrinology, gastrointestinal medicine, renal medicine and urology, musculoskeletal problems, neurology, dermatology, infectious disease, haematology and immunology, breast disease, gynaecology, sexual health and contraception, pregnancy, child health, ear, nose, and throat medicine, ophthalmology, mental health, cancer care, palliative care, and emergencies in general practice. It is written for general practitioners (GP), GPs in training, medical students, and allied health professionals working in the community.
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49

Lim, Renee, and Stewart Dunn. Journeys to the centre of empathy. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198736134.003.0002.

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As a species, we appear to be programmed to respond to the situations and emotions of others. However, there is wide variation in the ways doctors and other health professionals experience and express this capacity, and there is a need for effective training to enhance these skills. Unfortunately, systematic reviews suggest that many of our current training programmes do not improve the quality of communication in cancer and palliative care so as to limit the burden of professional burnout, and to improve patients’ mental or physical health and satisfaction. Our attempts to produce a generation of empathic clinical communicators are inconsistent and reviews of patient complaints reveal an increasing discontent with professional communication. So what is missing? How do we develop, sustain, and teach empathic communication? The answer, according to Lim and Dunn, is to shift the focus from empathy to authenticity.
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50

Kissane, David W., and Matthew Doolittle. Depression, demoralization, and suicidality. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0173.

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The development of clinical depression is common during palliative care, adversely affects quality of life and adherence to medical treatments, yet regrettably can pass unrecognized. Screening for distress as the sixth vital sign is therefore highly recommended. Demoralization is another form of distress where the apparent pointlessness of continued life may lead to suicidal thinking. As the mental condition deteriorates, co-morbid states of anxiety, depression, and demoralization become more likely. Rates of suicide are increased with advanced cancer and poor symptom control. Fortunately, combined treatment with medication and counselling is effective in ameliorating depression, demoralization, and suicidality. Meta-analyses of psychotherapy trials confirm clear benefits, with behavioural activation, supportive, interpersonal, and cognitive behavioural therapies all making contributions. Group, couple, and family therapies optimize support for all involved. All members of the multidisciplinary team contribute to the active treatment of depression, demoralization, and the prevention of suicide.
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