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Books on the topic 'Multiple chronic illnesses'

Author: Grafiati

Published: 10 December 2022

Last updated: 28 January 2023

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1

Explaining 'unexplained illnesses': Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, Gulf War Syndrome and Others. Harrington Park Press, 2007.

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2

Invisible illnesses: Multiple chemical sensitivities, fibromyalgia, allergic/inflammatory arthritis, chronic fatigue, chemically induced immune system disorders, leaky gut/irritable bowel/colon disorders, prescription drug withdrawal syndrome. Freedom Press, 2002.

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3

Multiple voices and stories: Narratives of health and illness. Orient Blackswan, 2013.

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4

MacFarlane, Ellen Burstein. Legwork: An inspiring journey through a chronic illness. Charles Scribner's Sons, 1994.

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5

1936-, Bennett Hal Zina, ed. You are not your illness: Seven principles for meeting the challenge. Simon & Schuster, 1995.

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6

M, Cohen Richard. Blindsided: Lifting a life above illness : a reluctant memoir. HarperCollins, 2004.

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7

Walker, Martin. Skewed: Psychiatric hegemony and manufacture of mental illness in multiple chemical sensitivity, Gulf War syndrome, myalgic encephalomyelitis and chronic fatigue syndrome. Slingshot, 2003.

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8

Taylor, Renée R. A Clinician's Guide to Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities. Professional Resource Press, 2001.

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9

Tartasky, Donna Sue. THE RELATIONSHIPS AMONG COPING, HARDINESS AND OUTCOMES OF MULTIPLE CHRONIC ILLNESSES IN THE ELDERLY (ILLNESS OUTCOMES). 1990.

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10

Pall, Martin. Explaining Unexplained Illnesses: Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, Gulf War Syndrome and Others. Taylor & Francis Group, 2013.

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11

Pall, Martin L. Explaining 'Unexplained Illnesses': Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, and Gulf War Syndrome. Haworth Medical Pr, 2007.

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12

Pall, Martin L. Explaining 'Unexplained Illnesses': Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, and Gulf War Syndrome. Harrington Park Press, 2007.

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13

Fischer, Kevin M., and Shannon S. Carson. Chronic Multiple Organ Dysfunction. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0013.

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This chapter reviews the clinical syndrome of chronic multiple organ dysfunction (MOD) following acute critical illness. Chronic MOD, also referred to as chronic critical illness, occurs in patients who have survived the acute phase of their illness or injury but remain dependent on life support for weeks or months. This condition presents unique physiologic and metabolic abnormalities distinct from those encountered in the acute illness. These include neuroendocrine and immune dysregulation, ICU-acquired weakness, persistent respiratory failure, and brain dysfunction. The symptom burden for these patients is high, and long-term survival is limited for elderly patients and those for whom MOD persists for weeks. Comprehensive and systematic programmes will need to be designed and implemented involving bundled best-practice interventions in order to reduce the incidence and treat the consequences of chronic MOD.

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14

Lunsford, Beverly, and Terry A. Mikovich. Interprofessional Team-Based Care. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190466268.003.0029.

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As older adults live longer, they experience a concomitant increase in chronic illness, which may be associated with a more frequent need for health care and intermittent or progressive functional decline. There is an increased need for regular health care monitoring as well as treatment and coordination of care among multiple providers and across settings to prevent, delay, or minimize decline in health and quality of life. Interprofessional collaboration is critical for safe coordination of care, reduction of duplication in services, and cost containment. Health care professionals who serve older adults are developing new models of collaboration to provide more integrated and person-centered approaches to maintaining the quality of life for older adults, especially those with multiple chronic illnesses. These models include health-oriented teams, home and community-based services, Acute Care for Elders (ACE), home-based primary care, Program of All-Inclusive Care for the Elderly (PACE), comprehensive geriatric assessment, and palliative care teams.

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15

Burstein, Patricia, and Ellen Burstein Macfarlane. Legwork: An Inspiring Journey Through a Chronic Illness. Simon & Schuster, 1994.

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16

Burstein, Patricia, and Ellen Burstein Macfarlane. Legwork: An Inspiring Journey Through a Chronic Illness. Simon & Schuster, 1994.

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17

Keeping Balance: A psychologist's experience of chronic illness and Disability. Troubador Publishing Limited, 2010.

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18

Chronic Progressive. Plain View Press, 2010.

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19

M, Publishing S. Chronic Pain and Symptom Tracker: Chronic Pain and Symptom Tracker Journal for Men, Multiple Sclerosis Symptom Tracker, Chronic Law Pain, Chronic Illness Planner, Chronic Pain and the Posture Pandemic,. Independently Published, 2021.

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20

Bevilacqua, Patrica Kaye. Renegotiating identity: Exploring the impact of chronic illness on the identities of three high school teachers. 2005.

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21

Toxic: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness. Victory Belt Publishing, 2018.

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22

Medically Unexplained Illness: Gender and Biopsychosocial Implications. American Psychological Association (APA), 2007.

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23

Burns, Aine, and Fliss E. M. Murtagh. Conservative care in advanced chronic kidney disease. Edited by David J. Goldsmith. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199592548.003.0145.

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Increasing numbers of those with stage 5 chronic kidney disease are older, with multiple co-morbid conditions. There is growing awareness that, while dialysis may provide some survival advantage in this population, there is major disease and treatment burden associated with dialysis, and considerable impact on quality of life. Conservative (non-dialysis) management pathways are therefore increasingly being developed and studied, and more is known about the best ways to optimize quality of life for those managed without dialysis. In low- and middle-income countries, the resources for dialysis are frequently limited and conservative management is often imposed rather than chosen. However, in high-income countries, dialysis is more widely available, and the decision whether to follow a conservative management pathway or not needs to be carefully weighed. This will include the context of the ageing kidney, the overall prognosis, and the trajectory of illness, to inform the best individual decisions. Management of those following a conservative management pathway includes detailed communication and advance care planning, actively managing the kidney disease and minimizing complications, and detailed assessment and proactive management of symptoms.

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24

E Cox, Christopher. Costs and Resource Utilization in Prolonged Critical Illness. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0008.

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Patients who have chronic critical illness, operationally defined as those requiring prolonged mechanical ventilation, are markedly increasing in number and commonly experience profound, persistent physical and psychological debilitation. This patient population consumes an extraordinary amount of health care resources attributed to both the acute hospitalization as well as complex post-discharge treatments provided across multiple post-acute care facilities. Currently, the US health care system incentivizes these patient flow dynamics. Health care policy changes addressing post-acute care payment are inevitable. This chapter highlights potential patient, family, physician, and systems targets for current and future interventions, designed to improve quality and reduce costs for this patient population.

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25

Cooper, Laura D. Legal Planning Issues. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199341016.003.0030.

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As is the case with any chronic illness, multiple sclerosis can have dramatic financial and psychosocial consequences for affected individuals and their families. This chapter provides detailed information on regulations regarding the Americans with Disabilities Act and disability insurance. It outlines a practical approach to financial planning for persons with multiple sclerosis. Health care policy changes related to the Affordable Care Act are also reviewed. A section on advanced health directives is included.

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26

Harber, Mark. Upper urinary tract infection. Edited by Neil Sheerin. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199592548.003.0177.

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Pyelonephritis is a suppurative infection of the kidney most commonly due to bacterial infection that may be either acute or chronic. Acute pyelonephritis is usefully subdivided into uncomplicated and complicated. The term complicated pyelonephritis is associated with an abnormal urinary tract, obstruction, stones, immunocompromise, diabetes, pregnancy, or in practical terms any pyelonephritis resulting in severe illness. The distinction is important principally in terms of type, duration, and place of treatment.The clinical spectrum of acute pyelonephritis ranges from relatively mild illness to pyonephrosis and emphysematous pyelonephritis with a fulminant course and high mortality.The term chronic pyelonephritis has been used to describe kidneys damaged from multiple, recurrent, or partially treated episodes of infection, but for many of these examples ‘reflux nephropathy’ is a better description as the role of infection is not always clear. However chronic or very recurrent infections may be associated with diabetes, abnormal urinary tracts, and any cause of obstructed drainage. Chronic pyelonephritis is also an accurate description for the progressive ongoing destruction of the kidney that occurs in xanthogranulomatous pyelonephritis or malakoplakia.

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27

Smedley, Julia, Finlay Dick, and Steven Sadhra. Medically unexplained occupational disorders. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199651627.003.0016.

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Post-conflict illness in military personnel 332Sick building syndrome 334Karoshi: death from overwork 336In the aftermath of every major conflict over the past century, some returning personnel have complained of ill health. Some have symptoms of physical origin, others psychiatric disorder including post-traumatic stress disorder (PTSD). However, there is a third group characterized by vague and non-specific symptoms, for which (despite extensive investigation) no cause is found. Different names have been ascribed to this third group, including Agent Orange syndrome and Gulf War illness. These syndromes share many common features. There are also similarities with other medically unexplained symptoms, including chronic fatigue syndrome, multiple chemical sensitivity syndrome and neurasthenia. All groups have definitive health care needs....

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28

Poehlmann-Tynan, Julie, Hilary Runion, Lindsay A. Weymouth, and Cynthia Burnson. Children With Incarcerated Parents. Edited by Thomas H. Ollendick, Susan W. White, and Bradley A. White. Oxford University Press, 2018. http://dx.doi.org/10.1093/oxfordhb/9780190634841.013.33.

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More than 5 million US children have experienced a co-resident parent leaving for jail or prison. When parents are arrested, jailed, or sentenced to incarceration in jail or prison and released back into the community, their children experience changes at multiple levels. Children with incarcerated parents are more likely than their peers to experience multiple risk factors and stress exposures, including chronic poverty, parental unemployment, domestic violence, neighborhood violence, homelessness, and parental mental illness and substance abuse. Some risks occur prior to incarceration, whereas others occur during or following incarceration. This chapter provides a statistical portrait of children with incarcerated parents; reviews of risks commonly experienced by these children and research findings focusing on the well-being of children with incarcerated parents; a summary of incarceration-related experiences commonly encountered by affected children; and a discussion of implications for policy and practice.

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29

Tamura, Manjula Kurella, Mark L. Unruh, and Ea Wha Kang. Cognitive function, depression, and psychosocial adaptation. Edited by Jonathan Himmelfarb. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199592548.003.0272.

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Psychiatric complications of end-stage renal disease are common, often debilitating, and potentially preventable. Patients with end-stage renal disease are at higher risk for psychiatric disorders compared to patients with other chronic health conditions, and those who suffer from psychiatric complications are at higher risk for death and dialysis withdrawal. Both dementia and depression also reduce quality of life and impair adherence to prescribed therapies. In addition, patients with end-stage renal disease are confronted with multiple stressors related to their illness and treatment. This chapter reviews the clinical approach to cognitive impairment, depression, and psychosocial adaptation among patients with end-stage renal disease.

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30

Boss, Renee D. Death at the Beginning. Edited by Stuart J. Youngner and Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.2.

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Medical and technological advances permit the survival of many infants born prematurely or with congenital anomalies. Prenatal diagnosis of a life-threatening fetal condition can give families the time to prepare for a sick infant and to consider treatment options ranging from pregnancy termination to fetal surgery. Despite the successes in perinatal and neonatal care, there remain a group of infants whose neonatal complications result in chronic illness, serious disability, and a foreshortened life span. It remains unclear how clinicians can best guide families who wish to make decisions based on their infant’s predicted quality of life. Multiple legal and policy restrictions attempt to limit the scope of parent–clinician decision making for these infants.

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31

Prah, Efua, and Susan Levine, eds. Bodies of Knowledge: Children and Childhoods in Health and Affliction. African Sun Media, 2021. http://dx.doi.org/10.52779/9781991201331.

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Spanning the countries of South Africa, Swaziland, and Ghana, this collection of work brings into focus child and youth experience together as a collage of anthropology, creative writing, poetry, and the fine arts. Woven together by questions related to the political economy of child and youth well-being, identity formation, and the multiple layers through which children articulate their health-narrative, this volume considers living in and coping with chronic illness, spirit-possession, and death. The growth in critical health humanities and the arts globally, suggests the desire for blended efforts to draw in a wider breadth of knowledge that cuts across the divided worlds of critical social science and the arts. This book, set in an African context, offers myriad possibilities for cross-disciplinary synergies as learning sites. It is a critical contribution to the field of children and childhood studies.

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32

Shaibani, Aziz. Pseudoneurologic Syndromes. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190661304.003.0022.

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The term functional has almost replaced psychogenic in the neuromuscular literature for two reasons. It implies a disturbance of function, not structural damage; therefore, it defies laboratory testing such as MRIS, electromyography (EMG), and nerve conduction study (NCS). It is convenient to draw a parallel to the patients between migraine and brain tumors, as both cause headache, but brain MRI is negative in the former without minimizing the suffering of the patient. It is a “software” and not a “hardware” problem. It avoids irritating the patient by misunderstanding the word psychogenic which to many means “madness.”The cause of this functional impairment may fall into one of the following categories:• Conversion reaction: conversion of psychological stress to physical symptoms. This may include paralysis, hemisensory or distal sensory loss, or conversion spasms. It affects younger age groups.• Somatization: chronic multiple physical and cognitive symptoms due to chronic stress. It affects older age groups.• Factions disorder: induced real physical symptoms due to the need to be cared for, such as injecting oneself with insulin to produce hypoglycemia.• Hypochondriasis: overconcern about body functions such as suspicion of ALS due to the presence of rare fasciclutations that are normal during stress and after ingestion of a large amount of coffee. Medical students in particular are targets for this disorder.The following points are to be made on this topic. FNMD should be diagnosed by neuromuscular specialists who are trained to recognize actual syndrome whether typical or atypical. Presentations that fall out of the recognition pattern of a neuromuscular specialist, after the investigations are negative, they should be considered as FNMDs. Sometimes serial examinations are useful to confirm this suspicion. Psychatrists or psychologists are to be consulted to formulate a plan to discover the underlying stress and to treat any associated psychiatric disorder or psychological aberration. Most patients think that they are stressed due to the illness and they fail to connect the neuromuscular manifestations and the underlying stress. They offer shop around due to lack of satisfaction, especially those with somatization disorders. Some patients learn how to imitate certain conditions well, and they can deceive health care professionals. EMG and NCS are invaluable in revealing FNMD. A normal needle EMG of a weak muscles mostly indicates a central etiology (organic or functional). Normal sensory responses of a severely numb limb mean that a lesion is preganglionic (like roots avulsion, CISP, etc.) or the cause is central (a doral column lesion or functional). Management of FNMD is difficult, and many patients end up being chronic cases that wander into clinics and hospitals seeking solutions and exhausting the health care system with unnecessary expenses.It is time for these disorders to be studied in detail and be classified and have criteria set for their diagnosis so that they will not remain diagnosed only by exclusion. This chapter will describe some examples of these disorders. A video clip can tell the story better than many pages of writing. Improvement of digital cameras and electronic media has improved the diagnosis of these conditions, and it is advisable that patients record some of their symptoms when they happen. It is not uncommon for some Neuromuscular disorders (NMDs), such as myasthenia gravis (MG), small fiber neuropathy, and CISP, to be diagnosed as functional due to the lack of solid physical findings during the time of the examination. Therefore, a neuromuscular evaluation is important before these disorders are labeled as such. Some patients have genuine NMDs, but the majority of their symptoms are related to what Joseph Marsden called “sickness behavior.” A patient with carpal tunnel syndrome (CTS) may unconsciously develop numbness of the entire side of the body because he thinks that he may have a stroke.

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