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1

Radford, Inge. Action for MS care: A survey of multiple sclerosis sufferers and their carers in Northern Ireland. Belfast: Multiple Sclerosis Action Group (Action MS) (for) Department of Psychology, Queen's University of Belfast, 1987.

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2

Jones, Christian. MS: My story. St. Austell: Artshare South West (Cornwall) in conjunction with The Multiple Sclerosis Society of Great Britain and Northern Ireland (Mid-Cornwall Branch), 1989.

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3

Harrold, Kimberly. Sometimes MS is yucky. Chesterfield, Mo: Science & Humanities Press, 2005.

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4

McLaughlin, Chris. Multiple sclerosis: A positive approach to living with MS. London: Bloomsbury, 1997.

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5

Buh bye, MS: A true story. Santa Ana, Calif: Iridescent Orange Press, 2012.

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6

T, Fraser Robert, ed. The MS workbook: Living fully with multiple sclerosis. Oakland, CA: New Harbinger Publications, 2005.

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7

Devine, Monique. How to talk about ms with your children: A guide for parents. Dublin: Multiple Sclerosis Society of Ireland, 2003.

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8

Eerdekens, Jeanine. Chronische ziekte en rolverandering: Een sociologisch onderzoek bij MS-patiënten. Leuven: Acco, 1989.

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9

Romberg, Anders. MS ja liikunta: Iloa, elämänlaatua, toimintakykyä. Helsinki: Edita, 2005.

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10

Reed, Sue. Journey of a soul: In an MS body. Chicago, IL: Adams Press, 1990.

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11

Weiner, Howard L. Curing MS: How science is solving the mysteries of multiple sclerosis. New York: Crown Publishers, 2004.

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12

Solving the MS mystery. Colorado Springs, CO: Dragon Slayer Publications, 2002.

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13

Sahraian, M. A. (Mohammad Ali) and SpringerLink (Online service), eds. MRI Atlas of MS Lesions. Berlin, Heidelberg: Springer-Verlag, 2008.

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14

David, Carroll. Living well with MS: A guide for patient, caregiver, and family. New York, NY: HarperPerennial, 1993.

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15

Multiple sclerosis: Theory and practice for nurses : an interdisciplinary approach to providing patient-centred care for people with MS and their families. London: Whurr, 2002.

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16

Graham, Judy. Managing multiple sclerosis naturally: A self-help guide to living with MS. Rochester, Vt: Healing Arts Press, 2010.

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17

Managing multiple sclerosis naturally: A self-help guide to living with MS. Rochester, Vt: Healing Arts Press, 2010.

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18

illustrator, Jensen Nate, ed. My MS and E. St. Petersburg, FL: Booklocker.com Inc, 2016.

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19

The complete MS body manual: A handbook of effective treatment for people with multiple sclerosis and those who care for them. Chelmsford: Under Pressure Publications, 1996.

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20

Rosner, Louis J. Multiple sclerosis: New hope and practical advice for people with MS and their families. New York: Fireside Book, 2008.

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21

Shelley, Ross, ed. Multiple sclerosis: New hope and practical advice for people with MS and their families. New York: Simon & Schuster, 1992.

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22

The life program for MS: Lifestyle, independence, fitness, and energy. New York: Oxford University Press, 2009.

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23

Spence, Regina E. Mutley's great adventure: What I've learned living with MS. Boston: Branden Books, 2015.

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24

Phillips, Patricia Anne. Treading waters: A woman living with MS: a novel based on a true story. Playa del Rey, Calif: P.A. Phillips Books, 2009.

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25

MS - living symptom free: The true story of an MS patient. [Place of publication not identified]: [publisher not identified], 2011.

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26

Shenkman, Martin M. Funding the cure: Helping a loved with MS through charitable giving to the National Multiple Sclerosis Society. New York: Demos Medical Pub., 2008.

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27

New Developments for MS Sufferers (By Appointment Only). Mainstream Publishing, 2002.

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28

Hommes, Daniels. All about Multiple Sclerosis: A Powerful Natural Treatment for MS Every Sufferer Need to Know. Independently Published, 2018.

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29

Bates, E. J. Please, Cut the Crap and Find a Cure for Multiple Sclerosis!: Two Act Play Ideas to Emulate MS for Non-Sufferers and Aversion Therapy for Those with MS. Independently Published, 2018.

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30

Canton, Chamein. Ms. Doesn't Stand for Multiple Sclerosis. Writers Club Press, 2001.

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31

Ironside, Linda, Julie Zuby, and Flora MacLeod. Sharing Ms: Multiple Sclerosis (Remarkable Women). White Knight Publications, 2003.

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32

Hancock, Laura M., Jared M. Bruce, and Sharon G. Lynch. Multiple Sclerosis. Edited by C. Steven Richards and Michael W. O'Hara. Oxford University Press, 2013. http://dx.doi.org/10.1093/oxfordhb/9780199797004.013.020.

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Multiple sclerosis (MS) is a chronic disease that affects the central nervous system and can cause a wide variety of both physical and cognitive deficits. Mood disturbances are common, with as many as 50% of patients receiving a diagnosis of major depression during their lifetime. The risk of suicide is high and leaving depression untreated is associated with a host of additional MS symptoms. Depression in MS presents clinicians with unique challenges, as it is often difficult to distinguish from common neurological symptoms. The authors discuss recommended screening tools and therapeutic methods that can assist the clinician in successfully identifying and treating depression in MS.
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33

Miller, Aaron E., and Teresa M. DeAngelis. Multiple Sclerosis. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199732920.003.0001.

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Multiple sclerosis (MS), the most common cause of disability due to a neurological disease in young adults, can pose a challenging diagnosis. In this chapter, we summarize the typical symptomatology and the radiographic and paraclinical findings in MS. In addition, we briefly review candidate differential diagnostic entities, the current diagnostic criteria, and therapeutic options.
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34

Kaplan, Tamara B., and Marcelo Matiello. Multiple Sclerosis. Edited by Angela O’Neal. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190609917.003.0026.

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Multiple sclerosis (MS) often affects women of childbearing age. There are many issues to consider when counseling women about their disease and treatment during this time. The Pregnancy in Multiple Sclerosis (PRIMS) study, published in 1998, is the best large-scale prospective study published to date. Based on this trial, and those that followed, it is recognized that the rate of relapse in MS decreases during pregnancy, especially during the third trimester, but there is a significant increase in relapse rate in the first three months postpartum. If relapses do occur during pregnancy, women are often treated with methylprednisolone, but this is generally avoided in the first trimester. Disease-modifying therapies (DMTs) are usually discontinued during preconception, pregnancy, and while breast-feeding. DMTs are classified under different FDA pregnancy categories based on human and animal data. Breast-feeding may influence postpartum relapse rate, but the true effect continues to be debated.
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35

Steinbert, Kate. Meet MS: Explaining Multiple Sclerosis to Children. BookBaby, 2020.

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36

Polevoy, Cary J., and Chris Bogard-Reynolds. MS Toolkit. Lulu.com, 2006.

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37

Tillema, Jan-Mendelt, J. Graves, L. A. Benson, G. S. Aaen, A. Belman, J. Parrish, B. Weinstock-Guttman, L. Krupp, T. Chitnis, and E. Wauban. Pediatric Multiple Sclerosis. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199341016.003.0022.

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Increased interest in pediatric-onset multiple sclerosis (MS) has contributed to improved knowledge of the presentation and evolution of central nervous system demyelinating diseases in childhood. This chapter reviews the unique features and challenges related to pediatric MS. The close proximity of pediatric MS to the biological onset of the disease provides a unique window into disease pathogenesis at stages of life when innate and adaptive immune pathways are still maturing. It is expected that the interplay between genetics, epigenetics, environmental exposures, and the maturing central nervous system in children with MS will provide important insights into the earliest phases of the disease. This chapter reviews the unique features that distinguish pediatric patients with MS from their adult counterparts. Specific emphasis is placed on the work-up and management of these patients in the context of current knowledge.
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38

Nygren, Kirstin, and Gail Hartley. Multiple Sclerosis Nursing. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199341016.003.0024.

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At each point across the disease spectrum, the MS nurse plays a pivotal role in the symptom management and comprehensive care of patients with multiple sclerosis. Multiple sclerosis most often affects young adults in the prime of life, derailing and interrupting goals and plans for the future. Whereas a neurologist might look at the disease burden of the brain, the MS nurse looks at the burden on a patient’s life. This nursing approach enables the MS nurse to help patients adjust and adapt to changes and symptoms as disease progression occurs and to empower them to live with the highest quality of life possible. As patients adjust to major life changes or advancing levels of disability, MS nurses can offer support and instill a sense of hope. This support is also important in promoting empowerment and wellness for persons with MS.
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39

People With MS With the Courage to Give. Red Wheel/Weiser, 2003.

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40

Waldman, Jackie. People with MS with the Courage to Give. Mango Media, 2003.

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41

Popescu, Bogdan Florin Gh, Yong Guo, and Claudia Francesca Lucchinetti. Multiple Sclerosis: Pathology. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199937837.003.0081.

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The pathology of MS consists of areas of focal demyelination, known as plaques or lesions, characterized by inflammation, gliosis, and relative axonal preservation. Recent neuropathological studies have established that white matter lesions are heterogenous with respect to the targets of injury and mechanisms of demyelination, highlighting the need for the identification of surrogate clinical and/or paraclinical markers that would correlate with immunopatterns in the general MS population and for the design of novel therapeutic strategies specifically tailored to each immunopattern. Recent neuropathological studies have also shown the cortex is an early target of the MS disease process, and that inflammatory cortical demyelination may be driven by meningeal inflammation.
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42

MS: Immunological, Diagnostic and Therapeutic Aspects (Current Problems in Neurology). Demos Medical Publishing, 1987.

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43

Merone, Lisa. Re-evaluating stigma: An exploratory study of multiple sclerosis sufferers. 1997.

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44

George H., M.D. Kraft, Dawn M., Ph.D. Ehde, and Kurt L., Ph.D. Johnson. The MS Workbook: Living Fully With Multiple Sclerosis. New Harbinger Publications, 2006.

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45

Esch, Megan, and Nancy L. Sicotte. Neuroimaging in Multiple Sclerosis. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199341016.003.0007.

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Magnetic resonance imaging (MRI) of the brain and spinal cord plays an integral role in establishing the diagnosis of multiple sclerosis (MS). The use of MRI leads to earlier recognition of MS, allowing for earlier treatment initiation and more efficient monitoring of disease treatment and progress. This chapter outlines conventional MRI imaging sequences that are used to evaluate MS white matter lesions in the central nervous system. It also addresses the incorporation of new imaging techniques that have increased understanding of clinically definite MS, its variants, and how various diseases can mimic traditional MS. Finally, it examines novel imaging protocols that have been implemented in MS research, which have elucidated radiographic and pathophysiologic nuances and involvement of deeper central nervous system structures and tracts that play a role in MS progression.
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46

Mental Disorders...MS. Demos Medical Publishing, 1988.

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47

Hebert, Jeffrey R. Exercise and Multiple Sclerosis. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199937837.003.0086.

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The Centers for Disease Control and Prevention has stated that significant health benefits are obtainable for persons with disability who engage in physical activity, recommending 30 to 40 minutes of daily, moderately intense activity. However, persons with MS are frequently physically inactive, with findings of a 6-month activity reduction rate of 6%. This progressive lessoning of physical activity over time is a major contributor to worsening of symptoms and ancillary medical complications such as cardiovascular disease, obesity, and impaired bone health, underpinning the importance of exercise and physical activity by persons with MS. In addition to its effect on endurance and body composition, exercise may also reduce disease activity in MS. A regular exercise program combining exercise and physical activity that is tailored to the patient’s individual condition should be an important part of the plan of care for patients with MS.
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48

Namerow, Norman S. Multiple Sclerosis and Pain. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199341016.003.0019.

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Pain is one of the most prevalent symptoms in persons with MS, and may also complicate other symptoms due to MS such as fatigue, impaired mobility and sleep disturbances. Thus, diagnosis and treatment of pain has become an increasingly important aspect in MS management. The epidemiology of pain in patients with multiple sclerosis is reviewed in this chapter, and a pain classification is presented. Pain syndromes are also reviewed, and appropriate treatments are described. Neuropathic pain in particular is discussed, including current views on the pathophysiology of pain production. An algorithm for medication use is presented that illustrates the utility of pharmacology with multiple agents in treating this condition.
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49

Absinta, Martina, and Daniel S. Reich. Multiple Sclerosis: MRI and Other Imaging Approaches in MS. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199937837.003.0082.

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Aside from its paramount diagnostic role, imaging techniques, particularly magnetic resonance imaging (MRI), provide unparalleled insights into multiple sclerosis (MS) by assessing the spatiotemporal dynamics of the associated inflammation and neurodegeneration. This dynamical view, predicated on interrogation of individuals with MS at multiple time points, is impossible with pathology. The chapter approaches MRI in MS from this perspective, describing features related to lesion development and location, as well as assessment of global and regional damage. It summarizes current knowledge, addresses the limitations of that knowledge, and suggests ways in which imaging can advance future research.
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50

Costello, Kathleen, and Scott D. Newsome. Symptoms of Multiple Sclerosis. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199937837.003.0085.

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Symptoms of MS can be categorized as primary, secondary, or tertiary. Primary symptoms are those that are a direct result of CNS damage, such as fatigue, bladder dysfunction, visual disturbances, incoordination or imbalance, etc. Secondary symptoms are complications arising from these symptoms such as falls due to imbalance, spasticity or weakness, or UTI due to bladder retention. Tertiary symptoms are the social and vocational consequences of primary and secondary symptoms and can include divorce, job loss, financial hardship, and social isolation. Careful evaluation of these symptoms along with appropriate treatment and long-term follow-up can contribute to the quality of life for patients with MS.
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