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Journal articles on the topic 'Multiple Sclerosis; Multidisciplinary Care; integrated care'

Author: Grafiati

Published: 5 June 2025

Last updated: 2 August 2025

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1

Rossiter, D. A., A. Edmondson, R. Al-Shahi, and A. J. Thompson. "Integrated care pathways in multiple sclerosis rehabilitation: completing the audit cycle." Multiple Sclerosis Journal 4, no. 2 (1998): 85–89. http://dx.doi.org/10.1177/135245859800400208.

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The rehabilitation of progressive neurological disorders, such as Multiple Sclerosis (MS) requires comprehensive, expert management which is demanding of both time and resources. Mechanisms to monitor and audit both process and outcome are therefore essential. Integrated care pathways (ICPs) which detail the expected interventions during a given episode of clinical care, provide such a mechanism. In this study three cohorts of patients (totalling 125 episodes) with clinically definite progressive MS underwent a rehabilitation programme audited through ICPs. The cohorts were similar in relation

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Papeix, Caroline, Laetitia Gambotti, Rana Assouad, et al. "Evaluation of an integrated multidisciplinary approach in multiple sclerosis care: A prospective, randomized, controlled study." Multiple Sclerosis Journal - Experimental, Translational and Clinical 1 (June 5, 2015): 205521731560886. http://dx.doi.org/10.1177/2055217315608864.

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Brooker, Christian, Myla Goldman, and Sharon Tingen. "Smoking Cessation Considerations for People with Multiple Sclerosis." INNOVATIONS in pharmacy 11, no. 2 (2020): 6. http://dx.doi.org/10.24926/iip.v11i2.3210.

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Background: Comprehensive care of people with multiple sclerosis integrates disease modifying therapy, symptom management and minimization of risk factors for disease progression. Cigarette smoking is a modifiable risk factor associated with development and progression of disease and increased disability. However, little is known about specific factors that affect smoking cessation in patients with multiple sclerosis or how to integrate smoking cessation into specialized multiple sclerosis care. Methods: Twenty-nine active smokers with multiple sclerosis were surveyed at the James Q. Mil

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Bozinov, Nina, Autumn Ramsrud, Jenelle H. Montgomery, Steven Merrill, Sarah N. Rajkovic, and Kavita V. Nair. "Integrating Clinical Pharmacy Services Into Comprehensive Multiple Sclerosis Care Teams: A Narrative Review of 4 Models." International Journal of MS Care 27, Q2 (2025): 117–24. https://doi.org/10.7224/1537-2073.2024-019.

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ABSTRACT BACKGROUND: Over the past 30 years, the treatment landscape for multiple sclerosis (MS) has become increasingly complex. All MS disease-modifying therapies (DMTs) and several symptomatic medications are designated specialty medications, and their financial coverage is subject to complicated insurance processes and a wide array of patient support programs. Many patients receiving MS DMTs need ongoing monitoring or enrollment in a Risk Evaluation and Mitigation Strategy program. Integrated pharmacy services can facilitate financial, technical, and educational aspects of providing specia

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Ronei, Diniz de Carvalho, Gonçalves e. Silva Vinicius, Ribeiro Verlage Gustavo, et al. "ATUAÇÃO MULTIDISCIPLINAR NA ESCLEROSE MÚLTIPLA." Revistaft 27, no. 121 (2023): 63. https://doi.org/10.5281/zenodo.7878863.

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A Esclerose Múltipla (EM) é uma doença autoimune crônica e desmielinizante que afeta o sistema nervoso central e pode levar a incapacidades progressivas. A abordagem multidisciplinar no tratamento da EM tem se mostrado eficaz em melhorar a qualidade de vida dos pacientes, porém, existem muitas dúvidas a respeito do papel exercido por cada profissional nos cuidados a estes pacientes, sendo necessário levantar evidências que justifiquem a importância e o direcionamento de suas intervenções. O objetivo deste estudo é

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Moyano, Nicolas, Christel Halleux, Lara Vigneron, Gaël Delrue, and Diamela Vicencio. "Creation of a telehealth application empowering patients with multiple sclerosis: MyApp4SEP." International Journal of Integrated Care 23, S1 (2023): 155. http://dx.doi.org/10.5334/ijic.icic23377.

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Introduction: Multiple sclerosis (MS) is a chronic autoimmune inflammatory disease of the central nervous system. International recommendations advocate multidisciplinary management in specialized centers, still not widely accessible at present. Moreover, this doesn’t fit to newly diagnosed or pauci-symptomatic patients that are still professionally active. Ultimately, the lack of recognition of invisible disorders still persists. The use of e-health as tool for care has been evaluated for many years and its growth is supported by various evidence of its effectiveness in MS. To our

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Bailey, Neil, Tenzin Tsomo, Jordan Briggs, et al. "Investigational Cell Therapy Beyond Oncology: Education, Communication, and Lessons Learned from Utilizing a Centralized Oncology Based Cell Therapy Program." Blood 144, Supplement 1 (2024): 7956. https://doi.org/10.1182/blood-2024-208076.

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Abstract: Scientific challenges of cell therapies are frequently published and discussed, but the operational challenges of supporting cellular therapy trials in non-oncology programs are not well documented. We reviewed study operational hurdles and methodologies to optimize communication and education for non-oncology caregivers and PIs participating in cellular therapy research. Additionally, we developed methods to promote research compliance and ensure patient safety when treating non-oncology patients with novel cell therapies by developing a centralized cell therapy team based in an onc

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8

Burks, Jack. "Multiple Sclerosis Care: An Integrated Disease-Management Model." Journal of Spinal Cord Medicine 21, no. 2 (1998): 113–16. http://dx.doi.org/10.1080/10790268.1998.11719517.

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Kokas, Zsófia, Dániel Sandi, Zsanett Fricska-Nagy, et al. "Do Hungarian multiple sclerosis care units fulfil international criteria?" PLOS ONE 17, no. 3 (2022): e0264328. http://dx.doi.org/10.1371/journal.pone.0264328.

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A patients Because of the past 3 decades’ extensive research, several disease modifying therapies became available, thus a paradigm change is multiple sclerosis care was necessary. In 2018 a therapeutic guideline was created recommending that treatment of persons with multiple sclerosis should take place in specified care units where the entire spectrum of disease modifying therapies is available, patient monitoring is ensured, and therapy side effects are detected and treated promptly. In 2019 multiple sclerosis care unit criteria were developed, emphasizing personnel and instrumental require

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Soelberg Sorensen, Per, Gavin Giovannoni, Xavier Montalban, Christoph Thalheim, Paola Zaratin, and Giancarlo Comi. "The Multiple Sclerosis Care Unit." Multiple Sclerosis Journal 25, no. 5 (2018): 627–36. http://dx.doi.org/10.1177/1352458518807082.

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Treatment of multiple sclerosis (MS) has become increasingly multifaceted and comprises not only a variety of disease-modifying drugs with different mechanism of action but also a wide range of symptomatic therapies. Today, it is not possible for the family physician or even many general neurologists to master the current treatment algorithm, and this calls for the establishment of multidisciplinary MS Care Units. The core of the MS Care Unit would, in addition to MS neurologists and nurses, typically comprise neuropsychologists, clinical psychologists, physiotherapists, occupational therapist

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Wallin, Mitchell T. "Integrated multiple sclerosis care: New approaches and paradigm shifts." Journal of Rehabilitation Research and Development 47, no. 5 (2010): ix. http://dx.doi.org/10.1682/jrrd.2010.03.0047.

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12

Cheng, Eric M., Carolyn J. Crandall, Christopher T. Bever, et al. "Quality indicators for multiple sclerosis." Multiple Sclerosis Journal 16, no. 8 (2010): 970–80. http://dx.doi.org/10.1177/1352458510372394.

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Determining whether persons with multiple sclerosis (MS) receive appropriate, comprehensive healthcare requires tools for measuring quality. The objective of this study was to develop quality indicators for the care of persons with MS. We used a modified version of the RAND/UCLA Appropriateness Method in a two-stage process to identify relevant MS care domains and to assess the validity of indicators within high-ranking care domains. Based on a literature review, interviews with persons with MS, and discussions with MS providers, 25 MS symptom domains and 14 general health domains of MS care w

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Rossiter, D. A., A. Edmondson, R. Al-Shahi, and A. J. Thompson. "Integrated care pathways in multiple sclerosis rehabilitation: completing the audit cycle." Multiple Sclerosis 4, no. 2 (1998): 85–89. http://dx.doi.org/10.1191/135245898678919519.

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Rae-Grant, Alexander, Sharon R. Kimmel, Nancy Eckert, Richard Schall, Maureen Beilman, and Deborah Kimmel. "Professional Education in Multiple Sclerosis Care Through a Multidisciplinary Program for Health Care Practitioners." International Journal of MS Care 9, no. 4 (2007): 148–53. http://dx.doi.org/10.7224/1537-2073-9.4.148.

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Multiple sclerosis (MS) is a common and long-term condition. It requires the intervention of various health care practitioners over a spectrum of care ranging from first diagnosis to end-of-life decisions. We developed a multispecialty program of education and worked with groups from a multisite community-based teaching hospital and a comprehensive rehabilitation network. We used a demographic questionnaire and pre- and postintervention testing. Participants consistently scored higher on the postsession (89.70 ± 8.09%) than on the presession (76.50 ± 17.61%) questionnaire (P &lt; .001). No

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Clavelou, Pierre. "Can we optimize our teams? Multidisciplinary care for multiple sclerosis." Expert Review of Neurotherapeutics 13, sup2 (2013): 39–44. http://dx.doi.org/10.1586/14737175.2013.865873.

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Healey, Kathleen, Rana Zabad, Lufei Young, et al. "Multiple Sclerosis at Home Access (MAHA)." International Journal of MS Care 21, no. 3 (2019): 101–12. http://dx.doi.org/10.7224/1537-2073.2018-006.

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Abstract Background: Caring for individuals with progressive, disabling forms of multiple sclerosis (MS) presents ongoing, complex challenges in health care delivery, especially access to care. Although mobility limitations represent a major hurdle to accessing comprehensive and coordinated care, fragmentation in current models of health care delivery magnify the problem. Importantly, individuals with disabling forms of MS are exceedingly likely to develop preventable secondary complications and to incur significant suffering and increased health care utilization and costs. Methods: A house ca

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Rossiter, DA, and AJ Thompson. "Integrated care pathways (ICP) in multiple sclerosis management: An ideal audit tool." Journal of Neuroimmunology 56-63 (1995): 53. http://dx.doi.org/10.1016/0165-5728(95)99037-j.

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Yeshokumar, Anusha K., and Brenda Banwell. "Management of Children with Multiple Sclerosis." US Neurology 13, no. 01 (2017): 42. http://dx.doi.org/10.17925/usn.2017.13.01.42.

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The care of children and adolescents with multiple sclerosis (MS) requires appreciation of the impact of the disease on the developing brain and, in particular, the risk for cognitive impairment and academic challenges. Relapse rates in the first three years from onset are high, with an average of 1.5 relapses per year, and often require hospitalization for acute corticosteroid therapy. Disease modulatory therapies are typically prescribed, although formal clinical trials in the pediatric MS population are only just now being realized. In this review, we discuss strategies to optimize therapy

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Pires, Sandra Bartolomeu, Dorit Kunkel, Christopher Kipps, Nick Goodwin, and MC Portillo. "Integrated care for people and families living with Parkinson's, Huntington's and Multiple Sclerosis: A systematic review." International Journal of Integrated Care 23, S1 (2023): 017. http://dx.doi.org/10.5334/ijic.icic23009.

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People living with long term neurological conditions have complex needs that demand coordination of care across different health and social care sectors, however there is uncertainty in how to deliver integrated care and its impact on people. Our research is focused on patients and caregivers living with long term neurological conditions, specifically with Parkinson’s disease (PD), Multiple Sclerosis (MS) and Huntington’s Disease (HD). We developed the review questions and interpreted the results of the review with a patient and public involvement group composed of people with live

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Falk-Kessler, Janet, J. Tamar Kalina, and Pamela Miller. "Influence of Occupational Therapy on Resilience in Individuals with Multiple Sclerosis." International Journal of MS Care 14, no. 3 (2012): 160–68. http://dx.doi.org/10.7224/1537-2073-14.3.160.

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This quasi-experimental pilot study examined the impact of multidisciplinary care, with a particular focus on occupational therapy (OT), on resilience in individuals with multiple sclerosis (MS). Individuals with a diagnosis of MS who were receiving multidisciplinary care including outpatient OT at an MS center were invited to participate. A total of 36 individuals agreed to enroll and were asked to complete a demographic questionnaire and the Resilience Scale (RS). After an 8-week period of multidisciplinary treatment, the 35 individuals who completed treatment were again asked to complete th

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Barker, Noreen, Concetta Brugaletta, Mhairi Coutts, et al. "Avoiding sliding doors: small changes, big difference in multiple sclerosis and neurogenic bladder and bowel." British Journal of Neuroscience Nursing 20, no. 5 (2024): 190–200. http://dx.doi.org/10.12968/bjnn.2024.0057.

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The aim of this article is to illustrate the experienced and optimal patient journeys of people with multiple sclerosis. A review of research published in the British Journal of Neuroscience Nursing in 2024 was conducted to build on the insights and provide guidance around each part of the patient journey, from diagnosis to care. A composite patient journey was created based on the experiences of the MS patients interviewed as part of the ALERT study. Many people with multiple sclerosis experience delayed diagnosis and management of bladder and bowel dysfunction, leading to significant physica

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Learmonth, Yvonne Charlotte, and Robert Wayne Motl. "Exercise Training for Multiple Sclerosis: A Narrative Review of History, Benefits, Safety, Guidelines, and Promotion." International Journal of Environmental Research and Public Health 18, no. 24 (2021): 13245. http://dx.doi.org/10.3390/ijerph182413245.

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Background: There have been significant advances in the medical treatment and management of multiple sclerosis pathogenesis, relapse and disease progression over the past 30 years. There have been advancements in the symptomatic treatment of multiple sclerosis, including management of secondary multiple sclerosis expressions such as walking, cognitive dysfunction, fatigue and depression. Scientific evidence and expert opinion suggest that exercise may be the single most effective non-pharmacological symptomatic treatment for multiple sclerosis. This article presents the historical context of e

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Barnhoorn-Bos, Anne Marie, Eline Heek, Eva A. Mulder, et al. "An Integrated Specialised Care Approach for Families with Multiple, Severe, and Enduring Problems: A Qualitative Evaluation." International Journal of Integrated Care 25 (April 30, 2025): 6. https://doi.org/10.5334/ijic.8576.

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Introduction: To realize an integrated specialised care approach for families with multiple, severe, and enduring problems, specialised teams providing integrated care are emerging. In this qualitative evaluation, we aimed to gain insight into the key elements promoting an integrated specialised care approach at the level of professionals by studying five Specialist Integrated care Teams (SITs). Methods: Perspectives of families, professionals, managers, and policymakers were gathered by conducting 52 semi-structured interviews. Additionally, 40 observations of case meetings were conducted. A

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Remington, Gina, Yolanda Rodriguez, Diana Logan, Caroline Williamson, and Katherine Treadaway. "Facilitating Medication Adherence in Patients with Multiple Sclerosis." International Journal of MS Care 15, no. 1 (2013): 36–45. http://dx.doi.org/10.7224/1537-2073.2011-038.

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This article reviews adherence to medication in multiple sclerosis (MS) patients from the perspective of nurse and social worker authors. It reviews data on patient adherence and offers practical, evidence-based strategies that health-care providers can use to facilitate adherence. In addition, it examines how emerging MS therapies may affect patient adherence and associated interventions. To promote adherence, interventions need to incorporate new and creative approaches. A proactive approach includes assessing patient needs and lifestyle before the start of medication and selecting the most

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Macaron, Gabrielle, Brandon P. Moss, Hong Li, et al. "Technology-enabled assessments to enhance multiple sclerosis clinical care and research." Neurology: Clinical Practice 10, no. 3 (2019): 222–31. http://dx.doi.org/10.1212/cpj.0000000000000710.

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BackgroundComprehensive and efficient assessments are necessary for clinical care and research in chronic diseases. Our objective was to assess the implementation of a technology-enabled tool in MS practice.MethodWe analyzed prospectively collected longitudinal data from routine multiple sclerosis (MS) visits between September 2015 and May 2018. The MS Performance Test, comprising patient-reported outcome measures (PROMs) and neuroperformance tests (NPTs) self-administered using a tablet, was integrated into routine care. Descriptive statistics, Spearman correlations, and linear mixed-effect m

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Marrie, Ruth Ann, Gary Cutter, Tuula Tyry, Denise Campagnolo, and Timothy Vollmer. "Differences in Bladder Care for Veterans with Multiple Sclerosis by Treatment Location." International Journal of MS Care 11, no. 2 (2009): 91–97. http://dx.doi.org/10.7224/1537-2073-11.2.91.

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Previous work suggested that veterans with multiple sclerosis (MS) treated through the Veterans Health Administration (VHA) had greater access to multidisciplinary care than veterans treated elsewhere. It is unknown whether other VHA-related differences in processes of MS care exist. Using the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry, we aimed to compare bladder management reported by veterans who receive care through the VHA (VHA veterans) and those who do not (non-VHA veterans). In 2005, NARCOMS participants completed the Urogenital Distress Inventory–6 (UDI

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Saposnik, Gustavo, Beatriz Del Río, Guillermo Bueno-Gil, et al. "Behavioral aspects of nurse practitioners associated with optimal multiple sclerosis care in Spain." PLOS ONE 16, no. 12 (2021): e0261050. http://dx.doi.org/10.1371/journal.pone.0261050.

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Background Nurse practitioners (NPs) play a critical role in the multidisciplinary management of patients with multiple sclerosis (MS). Neurologists´ behavioral characteristics have been associated with suboptimal clinical decisions. However, limited information is available on their impact among NPs involved in MS care. The aim of this study was to assess nurses´ therapeutic choices to understand behavioral factors influencing their decision making process. Methods A non-interventional, cross-sectional, web-based study was conducted. NPs actively involved in the care of patients with MS were

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Asano, Miho, Karli Hawken, Merrill Turpin, Abby Eitzen, and Marcia Finlayson. "The Lived Experience of Multiple Sclerosis Relapse: How Adults with Multiple Sclerosis Processed Their Relapse Experience and Evaluated Their Need for Postrelapse Care." Multiple Sclerosis International 2015 (2015): 1–8. http://dx.doi.org/10.1155/2015/351416.

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Background. Multiple sclerosis (MS) relapses can take a toll on individuals’ health and quality of life. Given such consequences of relapses, postrelapse care beyond pharmacological approaches may play an important role in recovery. Nevertheless, how individuals with MS process their relapse experience and manage the consequences is still uncertain.Purpose. We conducted a qualitative study to understand relapse experiences and postrelapse care need from perspectives of adults with MS and identify relapse management patterns.Methods. We interviewed 17 adults with MS.Results. By examining combin

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Sutliff, Matthew H. "Team Focus: Physical Therapist." International Journal of MS Care 10, no. 4 (2008): 127–32. http://dx.doi.org/10.7224/1537-2073-10.4.127.

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Multiple sclerosis (MS) is a complex neurological disease that requires comprehensive multidiscipli-nary care to maximize patient outcomes. A multidisciplinary health care team treating MS patients often consists of neurologists, physiatrists, nurses, physician assistants or nurse practitioners, and physical and occupational therapists, many of whom are specialists in MS. This article clarifies the role of the physical therapist in the care of patients within a multidisciplinary MS clinic.

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Wybitul, Maha, Harun Njago, Agata Luczkiewicz, and Hans Pihan. "Patient Satisfaction in a Multidisciplinary Multiple Sclerosis Care Unit: A Swiss Single-centre Study." US Neurology 18, no. 2 (2022): 142. http://dx.doi.org/10.17925/usn.2022.18.2.142.

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Introduction: Multiple sclerosis (MS) is an immune-mediated neurodegenerative disease. Patients are commonly diagnosed when they are between 20 to 50 years and require life-long treatment. Appropriate treatment is complex and involves a wide range of professional disciplines and expertise. This multifariousness highlights the need for multidisciplinary MS care units that offer a comprehensive and well-managed treatment approach. Such care units would enable (1) time-efficient organization and coordination, (2) better inter-, intradisciplinary and patient communication, (3) neurologists, nurses

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Alwan, Sura, Magdalena Dybalski, Irene M. Yee, et al. "Multiple Sclerosis and Pregnancy: A Comparison Study." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 40, no. 4 (2013): 590–96. http://dx.doi.org/10.1017/s0317167100014724.

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Abstract:Objective:To determine whether different health care systems may affect reproductive decision-making among patients with Multiple Sclerosis (MS), we describe the reproductive practices and attitudes of Canadian MS patients ascertained from the multidisciplinary MS Clinic at Hôpital Notre-Dame in Montreal, Quebec (NDMSC), in comparison to those of matched American selfregistrants from the database of the North American Research Committee on Multiple Sclerosis (NARCOMS).Methods:A total of 665 self-administered questionnaires on reproductive practices were sent out to eligible attendees

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Davies, Freya, Fiona Wood, Katherine E. Brain, et al. "The Transition to Secondary Progressive Multiple Sclerosis." International Journal of MS Care 18, no. 5 (2016): 257–64. http://dx.doi.org/10.7224/1537-2073.2015-062.

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Background: Identifying the transition from relapsing-remitting to secondary progressive multiple sclerosis (SPMS) can be challenging for clinicians. Little previous research has explored how professionals experience working with patients during this specific stage of the disease. We explored the experiences of a group of multidisciplinary professionals who support patients in the transition to SPMS to describe this stage from a professional perspective. Methods: This qualitative semistructured interview study included 11 professionals (medical, nursing, and allied health professionals; specia

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Van Hijfte, Liesbeth, Melissa Cambron, Brigitte Capron, et al. "Multiple Sclerosis Multidisciplinary Care: A National Survey and Lessons for the Global Community." Multiple Sclerosis and Related Disorders 85 (May 2024): 105540. http://dx.doi.org/10.1016/j.msard.2024.105540.

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Benini, Stefano, Erika Pellegrini, Carlo Descovich, and Alessandra Lugaresi. "Burden and resources in caregivers of people with multiple sclerosis: A qualitative study." PLOS ONE 18, no. 4 (2023): e0265297. http://dx.doi.org/10.1371/journal.pone.0265297.

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Background Caregivers of people with Multiple Sclerosis are required to provide ongoing assistance especially during the advanced stages of the disease. They have to manage interventions and assume responsibilities which significantly impact both their personal quality of life and family’s dynamics. Objective A qualitative phenomenological study was carried out to understand the experience of burden in caregivers and their resources to manage it. The study also explores how healthcare services involved in the Multiple Sclerosis Clinical Pathway respond to the needs of well-being of patients an

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Di Tella, Sonia, Chiara Pagliari, Valeria Blasi, Laura Mendozzi, Marco Rovaris, and Francesca Baglio. "Integrated telerehabilitation approach in multiple sclerosis: A systematic review and meta-analysis." Journal of Telemedicine and Telecare 26, no. 7-8 (2019): 385–99. http://dx.doi.org/10.1177/1357633x19850381.

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Introduction Multiple sclerosis (MS) is a chronic immune-mediated disease of the central nervous system and a major cause of disability in young adults. Recently, there has been a growing interest in the development of innovative ways to deliver rehabilitation care outside of a hospital setting. The aim was to conduct a systematic review and a meta-analysis of the efficacy of an integrated telerehabilitation approach (ITA) on motor, cognitive and participation outcomes delivered to people with MS (pwMS). Methods We systematically searched for original manuscripts regarding ITA in pwMS. Efficac

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Hua, Le H., Ahmed Z. Obeidat, Lilyana Amezcua, et al. "Consensus Curriculum for Fellowship Training in Multiple Sclerosis and Neuroimmunology." Neurology: Clinical Practice 11, no. 4 (2021): 352–57. http://dx.doi.org/10.1212/cpj.0000000000001040.

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Management of multiple sclerosis and neuroimmunologic disorders has become increasingly complex because of the expanding number of recognized neuroimmune disorders, increased number of therapeutic options, and multidisciplinary care management needs of people with multiple sclerosis and neuroimmunologic disorders. More subspecialists are needed to optimize care of these patients, and many fellowship programs have been created or expanded to increase the subspecialty workforce. Consequently, defining the scope and standardizing fellowship training is essential to ensure that trainees receive hi

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Rossiter, Deborah, and Alan J. Thompson. "Introduction of integrated care pathways for patients with multiple sclerosis in an inpatient neurorehabilitation setting." Disability and Rehabilitation 17, no. 8 (1995): 443–48. http://dx.doi.org/10.3109/09638289509166659.

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Halper, June. "Role of Advanced Practice Nurse in Management of Multiple Sclerosis." International Journal of MS Care 8, no. 2 (2006): 33–38. http://dx.doi.org/10.7224/1537-2073-8.2.33.

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The introduction of disease-modifying therapies and the realization that multiple sclerosis (MS) is a treatable disease has seen the emergence of an expanded role for advanced practice nurses (APNs) in the MS arena. Within MS centers, clinics, inpatient settings, and private practices, APNs may function as one or more of the following: administrator, consultant, researcher, advocate, and clinician. Because of the significant roles APNs play in the management of patients with MS, they must embody a core set of competencies delineated by domains specific to MS care. As MS care continues to evolv

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Mourad, Youssef W., and Martine A. Loius. "Calcinosis cutis in systemic sclerosis: a conundrum." International Surgery Journal 8, no. 9 (2021): 2765. http://dx.doi.org/10.18203/2349-2902.isj20213610.

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Calcinosis cutis (CC) is an autoimmune disorder that presents with a wide range of systemic manifestations. Respiratory and gastrointestinal tracts along with skin are affected. Skin manifestations can progress to significant deformities, causing discomfort to patients severely affecting quality of life. Management of patients with Scleroderma requires a multidisciplinary approach in order to attain the best possible outcomes. Wound care is not yet standardized and multiple approaches exist with varying degrees of success. Surgical approaches vary based on anatomical location along with the de

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Oh, Jiwon, Marie-Sarah Gagné-Brosseau, Melanie Guenette, et al. "Toward a Shared-Care Model of Relapsing-Remitting Multiple Sclerosis: Role of the Primary Care Practitioner." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 45, no. 3 (2018): 304–12. http://dx.doi.org/10.1017/cjn.2018.7.

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AbstractThe objective of this study was to develop a shared-care model to enable primary-care physicians to participate more fully in meeting the complex, multidisciplinary healthcare needs of patients with multiple sclerosis (MS).Design:The design consisted of development of consensus recommendations and a shared-care algorithm.Participants:A working group of 11 Canadian neurologists involved in the management of patients with MS were included in this study.Main message:The clinical management of patients with multiple sclerosis is increasing in complexity as new disease-modifying therapies (

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Sumowski, James F., Ralph Benedict, Christian Enzinger, et al. "Cognition in multiple sclerosis." Neurology 90, no. 6 (2018): 278–88. http://dx.doi.org/10.1212/wnl.0000000000004977.

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Cognitive decline is recognized as a prevalent and debilitating symptom of multiple sclerosis (MS), especially deficits in episodic memory and processing speed. The field aims to (1) incorporate cognitive assessment into standard clinical care and clinical trials, (2) utilize state-of-the-art neuroimaging to more thoroughly understand neural bases of cognitive deficits, and (3) develop effective, evidence-based, clinically feasible interventions to prevent or treat cognitive dysfunction, which are lacking. There are obstacles to these goals. Our group of MS researchers and clinicians with vari

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Hobart, Jeremy, Amy Bowen, George Pepper, et al. "International consensus on quality standards for brain health-focused care in multiple sclerosis." Multiple Sclerosis Journal 25, no. 13 (2018): 1809–18. http://dx.doi.org/10.1177/1352458518809326.

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Background: Time matters in multiple sclerosis (MS). Irreversible neural damage and cell loss occur from disease onset. The MS community has endorsed a management strategy of prompt diagnosis, timely intervention and regular proactive monitoring of treatment effectiveness and disease activity to improve outcomes in people with MS. Objectives: We sought to develop internationally applicable quality standards for timely, brain health–focused MS care. Methods: A panel of MS specialist neurologists participated in an iterative, online, modified Delphi process to define ‘core’, ‘achievable’ and ‘as

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Šimec, Mateja, Sabina Krsnik, and Karmen Erjavec. "Integrated Clinical Pathways: Communication and Participation in a Multidisciplinary Team." Open Access Macedonian Journal of Medical Sciences 9, B (2021): 1549–55. http://dx.doi.org/10.3889/oamjms.2021.7205.

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BACKGROUND: An integrated clinical pathway (ICP) is a key method for structuring or planning processes of care, enabling the modernization of health-care delivery and coordination of multiple roles, forming a complete, patient-centered multidisciplinary health-care team and establishing the sequence of activities, promoting individual and team communication, collaboration, networking, and transparency, and reducing the cost of care. AIM: As there is a research gap in the area of communication among members of a multidisciplinary team for the treatment of patients through an ICP, the aim of thi

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Weiner, Ruairí, Miriam Galvin, Gaye Stephens, Deirdre Murray, and Orla Hardiman. "A Social Network Analysis of Information Flow Between Specialists in a Multidisciplinary Motor Neurone Disease Clinic." International Journal of Integrated Care 25 (April 9, 2025): 585. https://doi.org/10.5334/ijic.icic24273.

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Background: Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative condition that negatively effects multiple domains of functioning including movement, speech, swallow, cognition and behaviour. The clinical phenotype is variable, and 70% of patients die within 3 years of their first symptom 1,2 . While there are no effective disease modifying therapies, access to centralised multidisciplinary care improves outcomes, quality of life, and is cost effective. There is evidence that the benefit of this care model is mediated through patient centric care with complex decision-making on site dur

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Gallagher, Lisa M., and Francois Bethoux. "Therapeutic use of the Arts for Patients with Multiple Sclerosis." US Endocrinology 13, no. 02 (2017): 82. http://dx.doi.org/10.17925/use.2017.13.02.82.

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People with multiple sclerosis (MS) face a wide variety of physical, emotional, and social challenges. A multidisciplinary comprehensive care approach is recommended for the management of MS and its consequences, and non-traditional treatments are increasingly considered by patients and health care providers, particularly for the promotion of wellness in the context of this chronic disease. Previous research has demonstrated the benefits of the therapeutic arts (art therapy, dance and movement therapy, and music therapy) in addressing some of the physiological, psychological, cognitive, social

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Gallagher, Lisa M., and Francois Bethoux. "Therapeutic use of the Arts for Patients with Multiple Sclerosis." US Neurology 13, no. 02 (2017): 82. http://dx.doi.org/10.17925/usn.2017.13.02.82.

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People with multiple sclerosis (MS) face a wide variety of physical, emotional, and social challenges. A multidisciplinary comprehensive care approach is recommended for the management of MS and its consequences, and non-traditional treatments are increasingly considered by patients and health care providers, particularly for the promotion of wellness in the context of this chronic disease. Previous research has demonstrated the benefits of the therapeutic arts (art therapy, dance and movement therapy, and music therapy) in addressing some of the physiological, psychological, cognitive, social

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Mounira Ashour Al-Zahrani. "Physiotherapy and Nursing in Managing Multiple Sclerosis." Power System Technology 48, no. 4 (2024): 5052–67. https://doi.org/10.52783/pst.1323.

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Multiple sclerosis (MS) is a chronic, progressive neurological condition that affects the central nervous system (CNS) and can lead to a wide range of physical, cognitive, and psychological symptoms. Managing MS requires a multidisciplinary approach, and physiotherapy and nursing play essential roles in improving the quality of life for patients. Physiotherapy helps patients with MS maintain mobility, strength, and function, while nursing provides crucial support in symptom management, medication administration, and patient education. This article explores the roles of physiotherapy and nursin

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Duff, Whitney R. D., Justin W. Andrushko, Doug W. Renshaw, et al. "Impact of Pilates Exercise in Multiple Sclerosis." International Journal of MS Care 20, no. 2 (2018): 92–100. http://dx.doi.org/10.7224/1537-2073.2017-066.

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CME/CNE Information Activity Available Online: To access the article, post-test, and evaluation online, go to http://www.cmscscholar.org Target Audience: The target audience for this activity is physicians, physician assistants, nursing professionals, and other health-care providers involved in the management of patients with multiple sclerosis (MS). Learning Objectives: Accreditation Statement: In support of improving patient care, this activity has been planned and implemented by the Consortium of Multiple Sclerosis Centers (CMSC) and Delaware Media Group. CMSC is jointly accredited by the A

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Giles, Rachel H., Koen Dreijerink, Rachel van Leeuwaarde, et al. "Patient quality criteria for a multidisciplinary integrated care pathway for von Hippel-Lindau syndrome." Journal of Clinical Oncology 39, no. 15_suppl (2021): e13534-e13534. http://dx.doi.org/10.1200/jco.2021.39.15_suppl.e13534.

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e13534 Background: The objective was to establish a comprehensive set of patient-driven recommendations for specialists and allied healthcare professionals for the care of individuals with the multiple neoplasia syndrome von Hippel-Lindau (VHL). VHL patients require multiple surgeries during the course of their lifetimes, due to cysts and tumors in various organs including the kidney, brain, eye, spine, pancreas, adrenal glands, and broad ligament/epididymis. Screening and care from multiple specialists form the backbone of their care, yet this is rarely coordinated in an optimal manner. Metho

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Asano, Miho, Rebecca Raszewski, and Marcia Finlayson. "Rehabilitation Interventions for the Management of Multiple Sclerosis Relapse." International Journal of MS Care 16, no. 2 (2014): 99–104. http://dx.doi.org/10.7224/1537-2073.2013-031.

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Background: This review was undertaken to identify and summarize the existing evidence regarding postrelapse rehabilitation interventions in people with multiple sclerosis (MS). Methods: Literature searches were conducted within the following databases: CINAHL Plus with Full Text, MEDLINE via Ovid, and PsycINFO via CSA Illumina. The following terms were searched as subject headings or keywords: choice behavior, counseling, decision making, disease management, health education, health promotion, patient education, patient participation, patient satisfaction, psychotherapy, rehabilitation, self-

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