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1

Early Hearing Detection and Intervention Program (Or.)., ed. Newborn hearing screening. Early Hearing Loss Detection & Intervention Program, Oregon Dept. of Human Services, Office of Family Health, 2002.

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2

G, Spivak Lynn, ed. Universal newborn hearing screening. Thieme, 1998.

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3

J, Driscoll Carlie, and McPherson Bradley, eds. Newborn screening systems: The complete perspective. Plural Pub., 2010.

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4

E, Fornoff J., Illinois. Division of Epidemiologic Studies., and Centers for Disease Control and Prevention (U.S.), eds. Newborn metabolic screening in Illinois, 2005. Ill.], 2007.

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5

T, Swigart Elca, ed. Neonatal hearing screening. Taylor & Francis, 1985.

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6

Division, Alberta Public Health. Newborn metabolic screening in Alberta 2002-2005. Public Health Division, Alberta Health and Wellness, 2006.

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7

Texas. Bureau of Children's Health. and Texas Bureau of Laboratories, eds. Texas newborn screening program: A practitioner's guide. The Bureau, 1999.

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8

Office, General Accounting. Newborn screening: Characteristics of state programs : report to congressional requesters. United States General Accounting Office, 2003.

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9

Bhatt, Suchetta. Expanded newborn screening possibilities: February 5, 2002 lecture. Senate Publications, 2002.

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10

1952-, Andrews Lori B., American Bar Foundation, United States. Bureau of Health Care Delivery and Assistance. Division of Maternal and Child Health., and Conference on Legal Liabilities in Newborn Screening (1984 : Chicago, Ill.), eds. Legal liability and quality assurance in newborn screening. American Bar Foundation, 1985.

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11

Mara, Buchbinder, ed. Saving babies?: The consequences of newborn genetic screening. The University of Chicago Press, 2013.

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12

E, Fornoff J., Illinois. Division of Epidemiologic Studies., and Centers for Disease Control and Prevention (U.S.), eds. Universal newborn hearing screening in Illinois, 2003-2004. Illinois Dept. of Public Health, Division of Epidemiologic Studies, 2006.

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13

Illinois. Department of Human Services. Newborn hearing screening in Illinois: Information for parents. Illinois Dept. of Human Services, 2000.

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14

1939-, Swigart Elca T., ed. Neonatal hearing screening. College-Hill Press, 1986.

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15

Workshop on Genetic Screening (1989 La Sapinière, Québec). Genetic screening: From newborns to DNA typing. Edited by Knoppers Bartha Maria, Laberge Claude M, Quebec Network of Genetic Medicine., New England Regional Screening Program., and Association Française de Prévention des Handicaps de l'Enfant. Excerpta Medica, 1990.

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16

L, Therrell Bradford, Texas. Dept. of Health., Association of State and Territorial Public Health Laboratory Directors (U.S.), and National Neonatal Screening Symposium (5th : 1986 : Austin, Tex.), eds. Advances in neonatal screening: Proceedings of the 6th International Neonatal Screening Symposium, Austin, Texas, 16-19 November 1986 and the 5th National Neonatal Screening Symposium, Austin, Texas, 20 November 1986. Excerpta Medica, 1987.

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17

Ann, Baily Mary, and Murray Thomas H. 1946-, eds. Ethics and newborn genetic screening: New technologies, new challenges. Johns Hopkins University Press, 2009.

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18

Patrias, Karen. Newborn screening, January 1980 through March 1987: 753 citations. National Library of Medicine, [U.S. Dept. of Health and Human Services, Public Health Service, National Institutes of Health], 1987.

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19

South Carolina. Division of Children's Health., ed. Newborn screening program: Law, regulations, and official departmental instructions. South Carolina Dept. of Health and Environmental Control, 1987.

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20

Ann, Baily Mary, and Murray Thomas H. 1946-, eds. Ethics and newborn genetic screening: New technologies, new challenges. Johns Hopkins University Press, 2009.

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21

A, Seymour C., and NHS R & D HTA Programme (Great Britain), eds. Newborn screening for inborn errors of metabolism: A systematic review. Core Research on behalf of the NCCHTA, 1997.

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22

1952-, Valverde Carlos, ed. Genetic screening of newborns: An ethical inquiry. Nova Science Publishers, 2009.

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23

J, Thureen Patti, ed. Assessment and care of the well newborn. W.B. Saunders, 1999.

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24

White, Karl. Implementing universal newborn hearing screening programs: Early identification of hearing loss. Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, U.S. Dept. of Health & Human Services, Public Health Service, Health Resources & Services Administration, 1999.

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25

United States. Maternal and Child Health Bureau. Division of Services for Children with Special Health Needs, United States. Health Resources and Services Administration., and United States. Maternal and Child Health Bureau., eds. Implementing universal newborn hearing screening programs: Early identification of hearing loss. Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, U.S. Dept. of Health & Human Services, Public Health Service, Health Resources & Services Administration, 1999.

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26

New Mexico. Dept. of Health. and New Mexico Commission for the Deaf and Hard of Hearing Persons., eds. Senate Joint Memorial 24, forty-fourth legislature: Newborn infant hearing screening. New Mexico Dept. of Health, 1999.

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27

White, Karl. Early identification of hearing loss: Implementing universal newborn hearing screening programs. Public Health Service, Health Resources and Services Administration, 1999.

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28

Wadsworth Center for Laboratories and Research. Newborn Screening Program, ed. Newborn screening in New York State: A guide for health professionals. Newborn Screening Program, Wadsworth Center for Laboratories and Research, New York State Dept. of Health, 1991.

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29

United States. Maternal and Child Health Bureau. Division of Services for Children with Special Health Needs. Implementing universal newborn hearing screening programs: Early identification of hearing loss. Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, U.S. Department of Health & Human Services, Public Health Service, Health Resources & Services Administration, 1999.

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30

Therrell, Bradford L. Screening of newborns for congenital hypothyroidism: Guidance for developing programmes. International Atomic Energy Agency, 2005.

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31

J, Schmidt Benjamin, Diament Aron J, Loghin-Grosso Nicole S, et al., eds. Current trends in infant screening: Proceedings of the 7th International Screening Symposium, Sao Paulo, Brazil, 6-9 November 1988. Excerpta Medica, 1989.

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32

Meeting, International Society for Neonatal Screening Asian Pacific Regional. Neonatal and perinatal screening: The Asian Pacific perspectives : proceedings of the Second Asian Pacific Regional Meeting of the International Society for Neonatal Screening, Hong Kong, 28 November to 1 December 1995. Chinese University of Hong Kong, 1996.

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33

Maria, Knoppers Bartha, Laberge Claude M, Quebec Network of Genetic Medicine., New England Regional Screening Program., and Association française de prévention des handicaps., eds. Genetic screening: From newborns to DNA typing : proceedings of the Workshop on Genetic Screening held at La Sapinière, Québec (Canada) 13th-14th October 1989 for the bi-annual meeting between the Quebec Network of Genetic Medicine and the New England Regional Screening Program, with a special invitation extended to l'Association française de prévention des handicaps de l'enfant. Excerpta Medica, 1990.

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34

A, Eyre J., ed. The Neurophysiological examination of the newborn infant. Mac Keith Press, 1992.

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35

United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Newborn screening saves lives: The past, present, and future of the newborn screening system : hearing before the Subcommittee on Children and Families of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Thirteenth Congress, first session on examining how newborn screening saves lives, focusing on the past, present, and future of the newborn screening system September 26, 2013. U.S. Government Printing Office, 2014.

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36

Seastone, Stern Karin, Davis Jessica G, Council of Regional Networks for Genetic Services., United States. Maternal and Child Health Bureau. Genetic Services Branch., and National Institutes of Health (U.S.). Sickle Cell Disease Branch., eds. Newborn Screening for Sickle Cell Disease: Issues and implications : proceedings of the conference held in Washington, D.C., June 1993. Council of Regional Networks for Genetic Services, Cornell University Medical College, Genetics, 1994.

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37

Pajak, Nancy. Report on the implementation of the Newborn Hearing Screening Program: To the Joint Labor, Health, and Social Services Interim Committee. Developmental Disabilities Division, Wyoming Dept. of Health, 2000.

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38

Institute of Medicine (U.S.). Roundtable on Translating Genomic-Based Research for Health, ed. Challenges and opportunities in using residual newborn screening samples for translational research: Workshop summary. National Academies Press, 2010.

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39

M, Hardy Leslie, and Institute of Medicine (U.S.). Committee on Prenatal and Newborn Screening for HIV Infection., eds. HIV screening of pregnant women and newborns. National Academy Press, 1991.

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40

United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Newborn screening: Increasing options and awareness : hearing before the Subcommittee on Children and Families of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Seventh Congress, second session ... June 14, 2002. U.S. G.P.O., 2002.

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41

Cuenca, Nuria Garrido. El cribado neonatal ampliado: Aspectos éticos y jurídicos para la revisión de los programas de análisis genético. EC, Editorial Comares, 2011.

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42

California. Legislature. Senate. Select Committee on Genetics, Genetic Technologies, and Public Policy. California tandem mass spectrometry pilot program results and follow-up: February 24, 2004 hearing. Senate Publications, 2004.

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43

United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Newborn screening: increasing options and awareness: Hearing before the Subcommittee on Children and Families of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Seventh Congress, second session on examining what new measures may be needed to enhance current options and awareness concerning the screening of newborns to improve detection of conditions that threaten the life and long-term health of infants, including expanding state newborn screening programs and improving information sharing among screening programs and state systems of care for children with special health care needs, June 14, 2002. U.S. G.P.O., 2002.

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44

International, Neonatal Screening Symposium (8th 1991 Leura N. S. W. ). Neonatal screening in the nineties: Proceedings of the 8th International Neonatal Screening Symposium, Leura, New South Wales, Australia, 12th-15th November, 1991, and the Arthur Veale Memorial Meeting, Auckland, New Zealand, 5th-9th November, 1991. The Symposium, 1991.

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45

New York (State). Subcommittee on Newborn HIV Screening. Report of the Subcommittee on Newborn HIV Screening of the New York State AIDS Advisory Council. The Council, 1994.

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46

United States. Agency for Health Care Policy and Research and Oregon Health & Science University. Evidence-based Practice Center, eds. Universal newborn hearing screening: Systematic review to update the 2001 U.S. Preventive Services Task Force recommendation. Agency for Healthcare Research and Quality, 2008.

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47

Salveson, Roberta. Expansion of the New York State Newborn Screening Panel and Krabbe Disease: A Systematic Program Evaluation. [publisher not identified], 2011.

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48

Botkin, Jeffrey R. Ethical Issues in Newborn Screening. Edited by Leslie Francis. Oxford University Press, 2016. http://dx.doi.org/10.1093/oxfordhb/9780199981878.013.12.

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Many new parents have little awareness of the battery of screening tests that are routinely conducted on newborns in the United States and the developed world. Newborn screening, one of the most significant achievements in public health over the past 50 years, invites ongoing debate over a number of ethical and legal issues that have been part of the newborn screening landscape since the inception of the programs in the 1960s. This chapter reviews the history of newborn screening, outlines some of the key ethical and legal issues raised by these programs, and offers a prediction about how new technology may change these systems over the next few decades.
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49

Newborn Screening in Japan. MDPI, 2022. http://dx.doi.org/10.3390/books978-3-0365-2925-7.

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50

National newborn screening report-1994. The Council, 1999.

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