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1

Khan, Wasim S. Regional outcome measure in hand surgery. Nova Science, 2010.

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Khan, Wasim S. Regional outcome measure in hand surgery. Nova Science, 2009.

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3

McConnell, Sara Gordon. The DASH outcome measure user's manual. Institute for Work & Health, 1999.

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4

Eugene, Washington A., University of California, San Francisco-Stanford Evidence-Based Practice Center., and United States. Agency for Healthcare Research and Quality., eds. The autopsy as an outcome and performance measure. Agency for Healthcare Research and Quality, 2002.

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5

Washington (State). Legislature. Joint Legislative Audit and Review Committee. Performance and outcome measure review: Employment Security Department. The Committee, 2004.

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6

Bennett, Robert John. Simulated negotiations: A measure of their effectiveness on negotiated outcome. Naval Postgraduate School, 1991.

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7

Washington (State). Legislature. Joint Legislative Audit and Review Committee. Performance and outcome measure review: Department of Ecology case study. The Committee, 2003.

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8

Brubaker, Larry. Performance and outcome measure review: Vocational rehabilitation services to injured workers. State of Washington, Joint Legislative Audit and Review Committee, 2003.

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9

Hodgson, Claire. Carer's checklist: An outcome measure for people with dementia and their carers. Mental Health Foundation, 1998.

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10

Washington (State). Legislature. Joint Legislative Audit and Review Committee. Performance and outcome measure review: Department of Community, Trade and Economic Development. The Committee, 2004.

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11

Hodgson, Claire. Carers' checklist: An outcome measure for people with dementia and their carers. Mental Health Foundation, 1998.

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12

Waag, Wayne L. Development of a composite measure for predicting engagement outcome during air combat maneuvering. Armstrong Laboratory, Air Force Systems Command, 1992.

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13

Committee, Washington (State) Legislature Joint Legislative Audit and Review. Follow up, 2003 performance and outcome measure review: Vocational rehabilitation services to injured workers. The Committee, 2005.

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14

Washington (State). Legislature. Joint Legislative Audit and Review Committee. Follow up: 2003 performance and outcome measure review : vocational rehabilitation services to injured workers. State of Washington Joint Legislative Audit and Review Committee (JLARC), 2005.

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15

Eakin, Pamela Anne Mounsey. Disability and community care: The development of an instrument to assess need and measure outcome. The Author], 1993.

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16

Spreadbury, Penny. Measuring the outcomes of individualised care: The Binary Individualised Outcome Measure, a tool for clinical audit, care planning and patient documentation. Nottingham City Hospital NHS Trust, 1995.

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17

Russell, Dianne Jennine. Measuring change in gross motor function in children with cerebral palsy using the gross motor function measure (GMFM). Neurodevelopmental Clinical Research Unit, Faculty of Health Sciences, McMaster University, Chedoke-McMaster Hospitals, 1991.

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18

Ashley, A. C. An evaluation of the SF-36 as a quality of life outcome measure in a walking scheme based in primary care. Oxford Brookes University, 2000.

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19

Bass, Rebecca. What is the evidence to evaluate the use of COPM as an assessment tool and outcome measure in a physical setting?. Oxford Brookes University, 2002.

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20

Stokes, Emma K. Rehabilitation outcome measures. Churchill Livingstone, 2011.

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21

Thornicroft, Graham, and Michele Tansella, eds. Mental Health Outcome Measures. Springer Berlin Heidelberg, 1996. http://dx.doi.org/10.1007/978-3-642-80202-7.

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22

1945-, Pynsent P. B., Fairbank, J. C. T., 1948-, and Carr A, eds. Outcome measures in orthopaedics. Butterworth-Heinemann, 1993.

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23

Graham, Thornicroft, and Tansella Michele, eds. Mental health outcome measures. Springer, 1996.

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24

Clinical Resource and Audit Group. Clinical Outcomes Working Group. Clinical outcome measures: Report. CRAG, 1993.

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25

Accreditation Council on Services for People with Disabilities. Outcome based performance measures. Accreditation Council on Services for People with Disabilities, 1993.

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26

Beverley, Cole, Canadian Physiotherapy Association, Canada. Department of Health and Welfare., and Canada Communication Group, eds. Physical rehabilitation outcome measures. Canadian Physiotherapy Association in cooperation with Health and Welfare Canada and the Canada Communications Group, 1994.

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27

1945-, Pynsent P. B., Fairbank, J. C. T., 1948-, and Carr A, eds. Outcome measures in trauma. Butterworth-Heinemann, 1994.

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28

G, McKeith I., and Cummings Jeffrey L. 1948-, eds. Outcome measures in Alzheimer's disease. Martin Dunitz, 1999.

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29

Derek, Doyle, Higginson Irene, Working Party on Clinical Guidelines in Palliative Care., and National Council for Hospice and Specialist Palliative Care Services., eds. Outcome measures in palliative care. National Council for Hospice and Specialist Palliative Care Services, 1995.

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30

T, Rinke Lynn, Wilson Alexis A, and National League for Nursing, eds. Outcome measures in home care. National League for Nursing, 1987.

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31

Enderby, Pamela M. Therapy outcome measures: Speech-language pathology. Singular Pub. Group, 1997.

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32

Canada. Health Services and Promotion Branch. and Canadian Association of Occupational Therapists., eds. Toward outcome measures in occupational therapy. Health and Welfare Canada, 1987.

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33

Md.) Council on Quality and Leadership in Supports for People with Disabilities (Towson. Personal outcome measures for children & youth. 2nd ed. Council on Quality and Leadership in Supports for People with Disabilities, 2000.

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34

Enderby, Pamela M. Therapy Outcome Measures for Rehabilitation Professionals. John Wiley & Sons, Ltd., 2006.

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35

Enderby, Pamela M. Therapy outcome measures: Speech-language pathology. Singular Pub. Group, 1997.

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36

Suk, Michael. Musculoskeletal outcomes measures and instruments. 2nd ed. Thieme, 2009.

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37

Enderby, Pamela. Therapy outcome measures (TOM): Speech-language pathology. Singular, 1997.

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38

El Miedany, Yasser, ed. Patient Reported Outcome Measures in Rheumatic Diseases. Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-32851-5.

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39

Enderby, Pamela M., and Alexandra John. Therapy Outcome Measure: Theoretical Underpinning and Case Studies. J & R Press Limited, 2020.

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40

Kazis, Lewis, William Rogers, James Rothendler, et al. Outcome Performance Measure Development for Persons with Multiple Chronic Conditions. RAND Corporation, 2017. http://dx.doi.org/10.7249/rr1844.

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41

Parker-Bello, Brook. S + C X M = O: Space + Capacity X Measure = Outcome. Independently Published, 2019.

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42

Bamford, Vivia. Use of the SF36 as an outcome measure in podiatry. 1999.

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43

van Tubergen, Astrid, and Robert Landewé. Clinical outcomes. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198734444.003.0012.

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In general, axial spondyloarthritis (axSpA) follows a chronic course, requiring regular medical care and monitoring. The outcome of axSpA may vary substantially due to heterogenic presentation. For both research and clinical practice, it is important to have relevant, reliable, validated instruments for measuring outcome, to evaluate patients in a standardized way and capture all disease aspects. The Assessment in SpondyloArthritis international Society has developed core sets and instruments to measure these domains, and recommends only the most important domains being measured with best avai
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44

Solomon, Karen Elaine. Design and validation of a scale to measure outcome expectancy in alcoholics. 1987.

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45

Videbeck, Sheila Lea. CRITICAL THINKING AS AN OUTCOME MEASURE IN BACCALAUREATE SCHOOLS OF NURSING (NURSING EDUCATION). 1995.

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46

Stanev, Roger. Inductive Risk and Values in Composite Outcome Measures. Oxford University Press, 2017. http://dx.doi.org/10.1093/acprof:oso/9780190467715.003.0009.

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Composite outcomes are becoming widespread in clinical trials. By combining individual outcome measures (e.g., death, non-fatal heart attack, non-fatal stroke, re-hospitalization) as a single composite measure, composites can increase statistical precision and trial efficiency, consequently enabling researchers to answer questions that could not otherwise be answered and providing more patient-relevant information. Critics, however, argue that a composite threatens the scientific objectivity of the trial by introducing new risks. This chapter examines common use of composites in cardiovascular
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47

Berger, Petra Shane. VALIDATION OF THE TREATMENT RISK FACTOR INVENTORY AS AN OUTCOME MEASURE IN PSYCHIATRY (RISK). 1990.

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48

Jokovic, Aleksandra. Development of an oral health outcome measure for children aged 6 to 14 years. 2003.

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49

McWilliams, Anne Elaine. Development of a questionnaire to measure perceived support during pregnancy, and its relation to coping strategies and outcome. 2000.

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50

Kaasa, Stein, and Jon Håvard Loge. Quality of life in palliative care: principles and practice. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0197.

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To improve or sustain patients’ health-related quality of life (HRQOL) is the main goal of palliative care. In health care, HRQOL encompasses a range of components that are measurable and related to health, disease, illness, and medical interventions. Another term, patient-reported outcome (PRO), is used and understood as any measure that collects responses directly from the patients and measures any aspect of patients’ health status that is reported by the patients without any interpretation by health-care providers or family members. The selection of PRO-instruments (questionnaires) is recom
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