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1

Montana. Health Services Division. Primary Care Office. Montana primary care access plans and county-based health care delivery. Helena, Mont: Primary Care Office, 1994.

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2

Chavez, Gabriel D. Atlas of primary care access in New Mexico. Albuquerque, N.M: Primary Care/Rural Health Bureau, 2001.

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3

Thomas, Laura. Global state of pain treatment: Access to medicines and palliative care. New York, NY: Human Rights Watch, 2011.

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4

Utah. Primary Care Access Plan Committee. Utah 1994 primary care access plan: A working document. Salt Lake City, Utah: Utah Dept. of Health, Division of Health Systems Improvement, 1994.

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5

Care at the close of life: Evidence and experience. New York: McGraw-Hill, 2010.

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6

Deng, S. M. Bosnian refugees' access to optional community care: Dimensions of primary health care needs. Birmingham: University of Central England in Birmingham, 1997.

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7

Oldroyd, Linda. Access costs and the demand for primary health care. Aberdeen: Health Economics Research Unit, University of Aberdeen, 1986.

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8

Doyle, Derek. Domiciliary palliative care: A handbook for family doctors and community nurses. Oxford: Oxford University Press, 1996.

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9

Domiciliary palliative care: A handbook for family doctors and community nurses. Oxford: Oxford University Press, 1994.

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10

Rosano, Aldo, ed. Access to Primary Care and Preventative Health Services of Migrants. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-73630-3.

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11

Management, New Hampshire Bureau of Health Statistics and Data. Primary care access data report: Assessing New Hampshire's communities, 1993-1997. 4th ed. Concord, N.H: The Bureau, 1999.

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12

Oregon. Primary Care Planning Group. Strategies for improving access to primary health care services in Oregon. Portland, OR: Dept. of Human Resources, Oregon Health Division, Community Services, 1993.

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13

Diane, Cardwell, TransforMED, and Medical Group Management Association, eds. Patient-centered medical home: Access workbook. Englewood: Medical Group Management Association, 2010.

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14

Canfield, Maria D. Nevada state and county health profiles: The Nevada primary care access plan. Carson City, Nev: Dept. of Human Resources, Division of Health, Bureau of Health Planning, Primary Care Development Center, 1995.

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15

Iyengar, Shreekant. Access of the rural poor to primary healthcare in India. Ahmedabad: Indian Institute of Management, 2011.

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16

Martin, Kenneth E. The impact of managed care on rural providers: A focus on critical access primary care providers serving vulnerable rural populations. Harrisburg, PA: Center for Rural Pennsylvania, 1998.

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17

Rousseau, Nikki. Equity and access in rural primary care: An exploratory study in Northumberland and Cumbria. Newcastle: University of Newcastle upon Tyne, Centre for Health Services Research, 1997.

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18

Connecticut. Dept. of Public Health. Connecticut primary care access plan for HIV-infected persons: Submitted to Health Resources and Service[s] Administration, Bureau of Primary Health Care, Region 1, Boston, MA. Hartford, CT: The Department, 1996.

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19

Martin, D. M. Health gain through health checks: Improving access to primary health care for people with intellectual disability. Oxford: Blackwell for the Royal Society for Mentally Handicapped Children and Adults, 1997.

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20

Irene, Allison, ed. Stay, breathe with me: The gift of compassionate medicine. Berkeley, CA: She Writes Press, 2016.

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21

Office, General Accounting. VA community clinics: Networks' efforts to improve veterans' access to primary care vary : report to Congressional requesters. Washington, D.C. (P.O. Box 37050, Washington, D.C. 20013): The Office, 1998.

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22

Small, Claire. Reaching out: A study of black and minority ethnic single homeless people and access to primary care. London: Health Action for Homeless People, 1997.

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23

Hinton, Teresa. Health & homelessness in Hackney: A profile of the single homeless population and their access to primary health care. London): Medical Campaign Project, 1992.

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24

United States. Congress. Senate. Committee on Labor and Human Resources. Primary health care programs: Ensuring access to care in a changing health care delivery system : hearing of the Committee on Labor and Human Resources, United States Senate, One Hundred Fourth Congress, first session ... May 4, 1995. Washington: U.S. G.P.O., 1995.

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25

United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Primary Health and Aging. Dental crisis in America: The need to expand access : hearing before the Subcommittee on Primary Health and Aging of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Twelfth Congress, second session ... February 29, 2012. Washington: U.S. Government Printing Office, 2014.

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26

Baine, David P. VA health care: Efforts to improve veterans' access to primary care services : statement of David P. Baine, Director, Health Care Delivery and Quality Issues, Health, Education, and Human Services Division, before the Subcommittee on Hospitals and Health Care, Committee on Veterans' Affairs, House of Representatives. Washington, D.C: The Office, 1996.

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27

Primary health care access reform: Community health centers and the National Health Services Corps : hearing of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Eleventh Congress, first session, on examining primary health care access reform, focusing on community health centers and the National Health Service Corps, April 30, 2009. Washington: U.S. G.P.O., 2010.

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28

United States. Congress. Senate. Special Committee on Aging. Improving access to primary health care: Hearing before the Special Committee on Aging, United States Senate, One Hundred First Congress, second session, Albuquerque, NM, August 28, 1990. Washington: U.S. G.P.O., 1991.

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29

United States. Congress. Senate. Special Committee on Aging. Improving access to primary health care: Hearing before the Special Committee on Aging, United States Senate, One Hundred First Congress, second session, Albuquerque, NM, August 28, 1990. Washington: U.S. G.P.O., 1991.

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30

Rural veterans' access to primary care: Successes and challenges : field hearing before the Committee on Veterans' Affairs, House of Representatives, Subcommittee on Health, One Hundred Ninth Congress, first session, August 22, 2005, hearing held in Bangor, Maine. Washington: U.S. G.P.O., 2006.

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31

Healthcare in the District of Columbia: Access to primary care and affordable health insurance : hearing before the Committee on Appropriations, United States Senate, One Hundred Ninth Congress, second session, special hearing, April 6, 2006, Washington, DC. Washington: U.S. G.P.O., 2006.

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32

Coleman, Patricia. Access to complementary and alternative medicines (CAMs) via primary care in England in 2001, and changes since 1995: Report to the Department of Health. Sheffield: Medical Care Research Unit, University of Sheffield, 2003.

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33

West Virginia. Office of Rural Health Policy. The impact of the essential access community hospital/rural primary care hospital (EACH/RPCH) program on emergency medical services in the State of West Virginia. Charleston, W.Va. (1411 Virginia St., E., Charleston 25301-3103): The Office, 1996.

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34

Wright, George. Limited-service hospital pioneers: Challenges and successes of the essential access community hospital/rural primary care hospital (EACH-RPCH) program and medical assistance facility (MAF) demonstration. Washington, D.C: Mathematica Policy Research, Inc., 1995.

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35

Office, General Accounting. Medicare: Employer insurance primary payer for 11 percent of disabled beneficiaries : report to congressional committees. Washington, D.C: The Office, 1990.

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36

United States. Congress. House. A bill to amend XVIII of the Social Security Act to establish a Medicare demonstration project under which incentive payments are provided in certain areas in order to stabilize, maintain, or increase access to primary care services for individuals enrolled under part B of such title. [Washington, D.C.?]: [United States Government Printing Office], 2002.

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37

United States. Congress. Senate. A bill to amend title XVIII of the Social Security Act to establish a Medicare demonstration project under which incentive payments are provided in certain areas in order to stabilize, maintain, or increase access to primary care services for individuals enrolled under part B of such title. [Washington, D.C.?]: [United States Government Printing Office], 2002.

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38

Insurance, Maine Bureau of. Review and evaluation of proposed LD 857: An act to increase access to primary health care services : a report to the Joint Standing Committee on Banking and Insurance of the 119th Maine Legislature. [Augusta, Me.] (34 State House Station, Augusta 04333): Bureau of Insurance, 1999.

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39

De Lima, Liliana, Lukas Radbruch, and Eduardo Bruera. Essential medicines for palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0003.

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The essential medicines concept developed by the World Health Organization (WHO), states that there is a list of minimum medicines for a basic health-care system, including the most efficacious, safe, and cost-effective ones for priority conditions. According to the WHO, essential medicines are those that satisfy the primary health-care needs of the population. Thus, they should always be available, affordable, and cost-effective. However, the vast majority of the global population does not have access to essential medicines. Many organizations have called on governments to adopt policies to improve availability of these essential medicines and developed programmes and projects to increase awareness and knowledge. This chapter describes two such projects developed by the International Association for Hospice and Palliative Care (IAHPC), based on the essential medicines concept to improve access to medicines and appropriate palliative care: the IAHPC List of Essential Medicines in Palliative Care and the Opioid Essential Prescription Package.
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40

DeSandre, Paul L., and Karen May. Palliative care in the emergency department. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0013.

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The emergency department provides immediate access to medical care for patients and families in crisis. As the proportion of elderly in our populations increases, complications related to advanced illness will likely drive increasing numbers of patients with palliative care needs into emergency departments. In addition to immediately life-threatening situations, severe physical symptoms, psychological distress, social upheaval, or even an unrecognized spiritual crisis near death can overwhelm patients or their caregivers, who come to the emergency department hoping for relief from their suffering. Emergency clinicians must rapidly assess these complex needs while negotiating interventions with effective and efficient communications. This chapter addresses several of these essential clinician skills for effective primary palliative care in the emergency department. These include rapid assessment of patients with palliative care needs, titration of opioids for pain emergencies, efficiently establishing goals of care, skilful and empathic death disclosure, and a structured approach to involving family presence during cardiopulmonary resuscitation.
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41

Moller, David Wendell. The Life and Death of Lucille Angel from Primary Care, Chaplaincy, and Palliative Care Perspectives. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780199760145.003.0008.

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Palliative care physicians enjoy the opportunity to make a special kind of difference in the lives of patients, families, and communities. Through their experiences in the palliative care program at the safety-net hospital, many medical students and residents have learned to their surprise that the dying poor sometimes have access to better care than the dying rich. Today, the dying poor are not only receiving better care—as this story illustrates, they are also playing an important role in helping to illuminate what such care really looks like, and their experiences are helping to improve the care of dying patients in their community and throughout the world.
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42

Charlton, Rodger. Primary Palliative Care. Edited by Rodger Charlton. CRC Press, 2018. http://dx.doi.org/10.1201/9781315379180.

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43

MD, Serife Eti Karakas. Palliative Care, An Issue of Primary Care Clinics in Office Practice. Saunders, 2011.

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44

Lee, Angela, Stephanie Cheng, and Dale Lupu. Integrative Palliative Care. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190466268.003.0031.

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Integrative medicine and palliative medicine share many tenets. This chapter reviews integrative approaches to the most common symptoms needing palliation among geriatric patients at the end of life, including pain, nausea and vomiting, constipation, dyspnea, and fatigue. Several palliative care approaches to communication about patient goals and advance care planning for a time when the patient is unable to make decisions are described. Resources to support advance care planning are provided. Finally, issues that need to be addressed by either primary care geriatrics or in consultation with palliative care in the last weeks, days, and hours of life are described.
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45

Morrison, Rolfe Sean, and Bridget Tracy. Marketing Palliative Care. Edited by Stuart J. Youngner and Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.27.

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This article examines why palliative care remains inaccessible to most persons with serious illness, citing the lack of a successful social marketing platform directed to consumers as a primary reason. It argues that the growth of palliative care has been hindered by the failure of palliative care professionals to consider the basic principles of social marketing in early language and messaging. The article first provides a historical background on the development of modern hospice care and of palliative care before turning to a discussion of how palliative care has failed to generate widespread public support and engagement. It then considers how early messaging by palliative care professionals hindered referrals to palliative care by other health-care professionals and concludes by explaining how recent attempts to use principles of audience research and targeted social marketing have led to the rapid spread and uptake of palliative care services in the United States.
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46

Ragsdale, Lindsay B., and Elissa G. Miller, eds. Pediatric Palliative Care. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190051853.001.0001.

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What Do I Do Now: Pediatric Palliative Care succinctly describes the palliative care approach to children with serious illness and provides practical guidance to clinicians and trainees. This book address physical, emotional, social, cultural, and spiritual needs of ill children and their families. Many clinicians want to help children that are seriously ill but have not been taught the skills or practice guidelines to attend to their needs. This book walks a provider through a challenging clinical pediatric case and outlines how to think through clinical dilemmas and respond to the patient and family. Each clinical vignette introduces a topic and provides context to the practical, clinical content, including symptom management and communication strategies. This book equips providers with applicable skills and knowledge for frequently encountered challenges caring for seriously ill children from prenatal to adolescent ages. This book will be clinically relevant to primary care providers, inpatient pediatricians, palliative care and hospice providers that are not familiar with pediatric care, nurses, allied health practitioners, fellow and resident physicians, medical students, and advance practice providers. Pediatric Palliative Care is a growing field and this book offers condensed, case based learning. Palliative care is, by nature, an interdisciplinary practice and this book reflects that collaboration with contributors from nursing, chaplaincy, child life, social work, psychology and physicians.
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47

Owens, Michael R. Primary Care Issues for End-of-Life Care. Handbooks in Health Care, 2003.

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48

Rodger, Charlton, ed. Primary palliative care: Dying, death and bereavement in the community. Abingdon: Radcliffe Medical, 2002.

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49

Primary Palliative Care: Dying, Death And Bereavement in the Community. Not Avail, 2002.

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50

Kaasa, Stein, and Karen Forbes. Research in palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0191.

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Research in palliative care is essential for maintaining standards and advancing knowledge and improving practice. It is challenging, sometimes daunting, often frustrating, but always exciting and rewarding when a study is successfully completed, whether the outcome is positive or negative. This chapter discusses a wide range of topics that will help those who are new to research to get started, to proceed and complete it, and contribute to improving outcomes for patients with advanced disease. Topics include, among others, collaborative and translational research, research governance, controlled clinical trials, evidence-based palliative care, and trial planning (including methodology, randomization, statistical considerations, protocol, access to patients, finance, administration, monitoring, and publication).
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