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Journal articles on the topic 'Palliative care ; primary care ; access'

Author: Grafiati
Published: 4 June 2021
Last updated: 1 February 2022

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1

Arisanti, Nita, Dany Hilmanto, Elsa Pudji Setiawati, and Veranita Pandia. "The Need for Palliative Care in Primary Health Care." Review of Primary Care Practice and Education (Kajian Praktik dan Pendidikan Layanan Primer) 1, no. 3 (2018): 103. http://dx.doi.org/10.22146/rpcpe.41691.

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.................... The access to palliative care in ends of life is one of the patients’ rights. Therefore it should be delivered into every level of health care for patients and family members. In some countries, palliative care is more frequent delivered in hospitals compare to primary health care, even though primary health care has a significant role in providing palliative care. Most families prefer to care for patients at home rather than in the hospital................................... The implementation of palliative care in Indonesia is still very limited to certain hospitals, eve
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Taché, Stéphanie, Véronique Chapuis, Catherine Goehring, and Louis Loutan. "Access to palliative care in Bosnia-Herzegovina: a primary care issue." European Journal of General Practice 10, no. 1 (2004): 31–32. http://dx.doi.org/10.3109/13814780409094225.

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3

Cumming, M., F. Boreland, and D. Perkins. "Do rural primary health care nurses feel equipped for palliative care?" Australian Journal of Primary Health 18, no. 4 (2012): 274. http://dx.doi.org/10.1071/py11150.

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Community primary health care nurses in rural and remote settings are required to provide palliative care as part of their generalist role. They have limited access to specialist medical and nursing support and sometimes there are no resident GPs. A study consisting of a mailed survey and follow-up interviews was conducted to explore the experiences of these nurses and to determine how personally and professionally equipped they felt for palliative care service provision. Most participants were registered nurses experienced in nursing and in rural and remote settings, who juggled multiple gene
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Hoe, Deborah, Yu-Hsuan Wang, Kate Meyers, and Susan Enguidanos. "PALLIATIVE CARE... WHAT’S THAT? : MEDICAID PATIENT-IDENTIFIED BARRIERS TO PALLIATIVE CARE." Innovation in Aging 3, Supplement_1 (2019): S917. http://dx.doi.org/10.1093/geroni/igz038.3342.

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Abstract Multiple studies demonstrate most consumers do not know about palliative care. And, since January 2018, California’s Medi-Cal Managed Care patients have been eligible for palliative care services under Senate Bill 1004 (SB 1004). Yet, the uptake of palliative care services has been underwhelming. The purpose of this study is to explore patient-centered barriers to palliative care. We recruited 27 adult Medicaid patients suffering from advanced cancer, chronic obstructive pulmonary disease, congestive heart failure, or liver disease, from community-based sites in Los Angeles, and condu
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Edelen, Connie, and Nicole Koesel. "Integration of oncology palliative care in a regional health care system." Journal of Clinical Oncology 32, no. 31_suppl (2014): 34. http://dx.doi.org/10.1200/jco.2014.32.31_suppl.34.

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34 Background: Early incorporation of palliative medicine in cancer care has been shown to be associated with improved symptom control, quality of life, and patient and family satisfaction however integration in the outpatient setting remains deficient nationwide. Regional healthcare systems carry the additional challenge of providing consistent quality care across a diverse geographic area. We performed a retrospective review of oncology palliative care utilization in a regional healthcare system following the implementation of a fully integrated model of palliative care. Methods: In 2012, Le
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Kuruvilla, Lisha, Greg Weeks, Peter Eastman, and Johnson George. "Medication management for community palliative care patients and the role of a specialist palliative care pharmacist: A qualitative exploration of consumer and health care professional perspectives." Palliative Medicine 32, no. 8 (2018): 1369–77. http://dx.doi.org/10.1177/0269216318777390.

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Background: Pharmacists have a key role to play in optimisation of medication regimens and promotion of medication safety. The role of specialist pharmacists as part of the multidisciplinary palliative care team, especially in the primary care setting, is not widely recognised. Aim: To explore the perspectives of stakeholders about the gaps in the current model of community palliative care services in relation to medication management and to assess their opinions pertaining to the role of a specialist palliative care pharmacist in addressing some of those gaps. Design: Qualitative study utilis
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Lam, Daniel Y., Jennifer S. Scherer, Mark Brown, Vanessa Grubbs, and Jane O. Schell. "A Conceptual Framework of Palliative Care across the Continuum of Advanced Kidney Disease." Clinical Journal of the American Society of Nephrology 14, no. 4 (2019): 635–41. http://dx.doi.org/10.2215/cjn.09330818.

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Kidney palliative care is a growing discipline within nephrology. Kidney palliative care specifically addresses the stress and burden of advanced kidney disease through the provision of expert symptom management, caregiver support, and advance care planning with the goal of optimizing quality of life for patients and families. The integration of palliative care principles is necessary to address the multidimensional impact of advanced kidney disease on patients. In particular, patients with advanced kidney disease have a high symptom burden and experience greater intensity of care at the end o
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Pugh, Arlanna, Heather Castleden, Melissa Giesbrecht, Colleen Davison, and Valorie Crooks. "Awareness as a dimension of health care access: exploring the case of rural palliative care provision in Canada." Journal of Health Services Research & Policy 24, no. 2 (2019): 108–15. http://dx.doi.org/10.1177/1355819619829782.

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Objectives In Canada, the rural elderly population is increasing in size, as is their need for palliative care services in these settings. This analysis aims to identify awareness-associated barriers to delivering rural palliative care services, along with suggestions for improving service delivery from the perspective of local health care providers. Methods A total of 40 semi-structured interviews with various formal and informal health care providers were conducted in four rural and/or remote Canadian communities with limited palliative care resources. Interview data were thematically coded
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Beasley, Amy M., Marie A. Bakitas, Nataliya Ivankova, and Maria R. Shirey. "Evolution and Conceptual Foundations of Nonhospice Palliative Care." Western Journal of Nursing Research 41, no. 10 (2019): 1347–69. http://dx.doi.org/10.1177/0193945919853162.

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The term nonhospice palliative care was developed to describe and differentiate palliative care that is delivered prior to the end of life. The purpose of this article is to better define and clarify this concept using Rodgers’s evolutionary concept analysis method. Attributes of nonhospice palliative care include (a) patient- and family-centered care, (b) holistic care, (c) interdisciplinary team, (d) early intervention, (e) quality of life-enhancing, (f) advanced care planning, (g) any age of the patient, (h) at any stage in illness, (i) care coordination, (j) concurrent curative treatment o
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Kananga, A. Mubeneshayi. "Coordination of Care Within a Mobile Palliative Care Team and Organization of a Continuing Education Program for Health Professionals in Palliative Care." Journal of Global Oncology 4, Supplement 2 (2018): 62s. http://dx.doi.org/10.1200/jgo.18.36800.

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Background: In DR Congo (DRC), many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deterioration of the health system and the absence of a well-defined national policy on palliative care. Patients are for the most part abandoned to the care of inexperienced family members. Founded in 2009, Palliafamilli aims to improve the quality of life of patients requiring palliative care in the DRC by providing visits and care for patients, by striving to increase access to palliative care in the region and by inf
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Nakanishi, Miharu, Asao Ogawa, and Atsushi Nishida. "Availability of home palliative care services and dying at home in conditions needing palliative care: A population-based death certificate study." Palliative Medicine 34, no. 4 (2020): 504–12. http://dx.doi.org/10.1177/0269216319896517.

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Background: Avoiding inappropriate care transition and enabling people with chronic diseases to die at home have become important health policy issues. Availability of palliative home care services may be related to dying at home. Aim: After controlling for the presence of hospital beds and primary care physicians, we examined the association between availability of home palliative care services and dying at home in conditions requiring such services. Design: Death certificate data in Japan in 2016 were linked with regional healthcare statistics. Setting/participants: All adults (18 years or o
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Lafond, Deborah A., Sabrina Bowling, Justine Mize Fortkiewicz, Cheryl Reggio, and Pamela S. Hinds. "Integrating the Comfort Theory™ Into Pediatric Primary Palliative Care to Improve Access to Care." Journal of Hospice & Palliative Nursing 21, no. 5 (2019): 382–89. http://dx.doi.org/10.1097/njh.0000000000000538.

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13

ElMokhallalati, Yousuf, Stephen H. Bradley, Emma Chapman, et al. "Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care." Palliative Medicine 34, no. 8 (2020): 989–1005. http://dx.doi.org/10.1177/0269216320929552.

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Background: Despite increasing evidence of the benefits of early access to palliative care, many patients do not receive palliative care in a timely manner. A systematic approach in primary care can facilitate earlier identification of patients with potential palliative care needs and prompt further assessment. Aim: To identify existing screening tools for identification of patients with advanced progressive diseases who are likely to have palliative care needs in primary healthcare and evaluate their accuracy. Design: Systematic review (PROSPERO registration number CRD42019111568). Data sourc
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Johnston, Nikki, Clare Lovell, Wai-Man Liu, Michael Chapman, and Liz Forbat. "Normalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care intervention." BMJ Supportive & Palliative Care 9, no. 1 (2016): e12-e12. http://dx.doi.org/10.1136/bmjspcare-2016-001127.

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BackgroundImproving access to palliative care for older adults living in residential care is recognised internationally as a pressing clinical need. The integration of specialist palliative care in residential care for older adults is not yet standard practice.ObjectiveThis study aimed to understand the experience and impact of integrating a specialist palliative care model on residents, relatives and staff.MethodsFocus groups were held with staff (n=40) and relatives (n=17). Thematic analysis was applied to the data.ResultsThree major themes were identified. The intervention led to (1) normal
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Tribett, Erika Lauren, Jordan Chavez, and Alison Morris. "Utilizing design theory to create a patient-centered palliative care model in cancer survisorship care." Journal of Clinical Oncology 34, no. 3_suppl (2016): 164. http://dx.doi.org/10.1200/jco.2016.34.3_suppl.164.

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164 Background: Palliative medicine (PM) is an essential component of survivorship care from point of diagnosis. While PM is philosophically committed to supporting patient and family survivorship goals, very few programs incorporate patient and family input into the formation of a patient-centered model of care for symptom management and quality of life. We utilized design theory to develop novel interventions for primary and specialist PM delivery. Methods: Baseline data collected in Fall 2014 revealed a need for assistance navigating support services as well as barriers to PM integration in
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Tieman, J. J. "Filters and hubs: shortening the distance to palliative care evidence." Australian Journal of Primary Health 18, no. 4 (2012): 268. http://dx.doi.org/10.1071/py11103.

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Palliative care is an integral part of the care provided by GPs and other primary health care providers, and as Australia’s population ages and the palliative care needs of patients with end stage organ failure are recognised, this area of care is likely to increase. Using a knowledge translation framework, two strategies have been used to develop resources to support those providing palliative care in the community. PubMed searches on a range of common palliative care topics and incorporating a palliative care filter provide an easy and validated mechanism to retrieve relevant literature. A ‘
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Hui, David, and Eduardo Bruera. "Models of Palliative Care Delivery for Patients With Cancer." Journal of Clinical Oncology 38, no. 9 (2020): 852–65. http://dx.doi.org/10.1200/jco.18.02123.

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Palliative care has evolved over the past five decades as an interprofessional specialty to improve quality of life and quality of care for patients with cancer and their families. Existing evidence supports that timely involvement of specialist palliative care teams can enhance the care delivered by oncology teams. This review provides a state-of-the-science synopsis of the literature that supports each of the five clinical models of specialist palliative care delivery, including outpatient clinics, inpatient consultation teams, acute palliative care units, community-based palliative care, an
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Taylor, Johanna, Alison Booth, Bryony Beresford, Bob Phillips, Kath Wright, and Lorna Fraser. "Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review." Palliative Medicine 34, no. 6 (2020): 731–75. http://dx.doi.org/10.1177/0269216320908490.

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Background: Specialist paediatric palliative care services are promoted as an important component of palliative care provision, but there is uncertainty about their role for children with cancer. Aim: To examine the impact of specialist paediatric palliative care for children and young people with cancer and explore factors affecting access. Design: A mixed-methods systematic review and narrative synthesis (PROSPERO Registration No. CRD42017064874). Data sources: Database (CINAHL, Cochrane Database of Systematic Reviews, Embase, MEDLINE, PsycINFO) searches (2000–2019) identified primary studie
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de Nooijer, Kim, Yolanda WH Penders, Lara Pivodic, Nele J. Van Den Noortgate, Peter Pype, and Lieve Van den Block. "Specialist palliative care services for older people in primary care: A systematic review using narrative synthesis." Palliative Medicine 34, no. 1 (2019): 32–48. http://dx.doi.org/10.1177/0269216319874978.

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Background: There is recognition that older people with incurable conditions should have access to specialist palliative care services. However, it remains unclear which activities and outcomes these services entail for older people in primary care and to which patients they are provided. Aim: The aim of this review was to identify the criteria for referral to specialist services; who provides specialist palliative care; through which activities and with which frequency; which outcomes are reported; and which suggestions are made to improve services. Design: Systematic review of the literature
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Knaul, Felicia Marie, Virginia Townsend LeBaron, Mariana Calderon, et al. "Developing palliative care capacity in Colombia and Mexico." Journal of Clinical Oncology 32, no. 31_suppl (2014): 103. http://dx.doi.org/10.1200/jco.2014.32.31_suppl.103.

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103 Background: Access to pain relief and palliative care often is limited or absent in low-and-middle-income countries (LMICs). Consequently, millions of patients with cancer and other serious illnesses in LMICs suffer needlessly. Multiple stakeholders have joined efforts to enhance the delivery of palliative care, develop national plans, and advocate for improved policies and regulations in Colombia and Mexico with applications to other LMICs. Methods: In Mexico and Colombia, efforts to improve access to palliative care focus on regulatory frameworks, finance, delivery, research and capacity
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Tadipatri, Ramya, Amir Azadi, Madison Cowdrey, et al. "QOLP-03. NEURO-ONCOLOGY PALLIATIVE CARE SURVEY OF PHYSICIANS IN SUB-SAHARAN AFRICA." Neuro-Oncology 22, Supplement_2 (2020): ii175. http://dx.doi.org/10.1093/neuonc/noaa215.728.

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Abstract BACKGROUND Early access to palliative care is a critical component of treating patients with advanced cancer, particularly for glioblastoma patients who have low rates of survival despite optimal therapies. Additionally, there are unique considerations for primary brain tumor patients given the need for management of headaches, seizures, and focal neurological deficits. METHODS We conducted a survey of 109 physicians in Sub-Saharan Africa in order to determine level of understanding and skill in providing palliative care, types of palliative care therapies provided, role of cultural b
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Desai, Anjali V., Virginia M. Klimek, Kimberly Chow, et al. "1-2-3 Project: A Quality Improvement Initiative to Normalize and Systematize Palliative Care for All Patients With Cancer in the Outpatient Clinic Setting." Journal of Oncology Practice 14, no. 12 (2018): e775-e785. http://dx.doi.org/10.1200/jop.18.00346.

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Background: Prior work to integrate early palliative care in oncology has focused on patients with advanced cancer and primarily on palliative care consultation. We developed this outpatient clinic initiative for newly diagnosed patients at any stage, emphasizing primary (nonspecialist) palliative care by oncology teams, with enhanced access to palliative care specialists. Methods: We piloted the project in two medical oncology specialty clinics (for patients with myelodysplastic syndrome and GI cancer, respectively) to establish feasibility. On a visit-based schedule, patients systematically
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Martz, Kim, Jenny Alderden, Rick Bassett, and Dawn Swick. "Outcomes Associated With a Nurse-Driven Palliative Care Screening Tool in the Intensive Care Unit." Critical Care Nurse 40, no. 3 (2020): 23–29. http://dx.doi.org/10.4037/ccn2020702.

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Background Access to specialty palliative care delivery in the intensive care unit is inconsistent across institutions. The intensive care unit at the study institution uses a screening tool to identify patients likely to benefit from specialty palliative care, yet little is known about outcomes associated with the use of screening tools. Objective To identify outcomes associated with specialty palliative care referral among patients with critical illness. Methods Records of 112 patients with positive results on palliative care screening were retrospectively reviewed to compare outcomes betwee
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den Herder-van der Eerden, Marlieke, Benjamin Ewert, Farina Hodiamont, Michaela Hesse, Jeroen Hasselaar, and Lukas Radbruch. "Towards accessible integrated palliative care." Journal of Integrated Care 25, no. 3 (2017): 222–32. http://dx.doi.org/10.1108/jica-03-2017-0006.

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Purpose Literature suggests that integrated palliative care (IPC) increases the quality of care for palliative patients at lower costs. However, knowledge on models encompassing all integration levels for successfully implementing IPC is scarce. The purpose of this paper is to describe the experiences of IPC leaders in seven European countries regarding core elements, facilitators and barriers of IPC implementation and provides recommendations for future policy and practice. Design/methodology/approach A qualitative interview study was conducted between December 2013 and May 2014. In total, 34
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Flood, Nora, and Colleen Rivard. "Disparities in access to palliative care for patients treated for gynecologic oncology." Journal of Clinical Oncology 36, no. 34_suppl (2018): 136. http://dx.doi.org/10.1200/jco.2018.36.34_suppl.136.

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136 Background: Palliative care intends to improve quality of life for patients with life-threatening illness, but ethnic and linguistic minority patients have worse outcomes with palliative care. Methods: This is a single institution retrospective chart review of patients with an advanced stage or recurrent gynecologic malignancy who were seen in the clinic from 2010 to 2015. Women were defined as being from a minority group if they met one of the inclusion criteria including English not the primary language, race other than white, ethnically Hispanic/Latina, or their country of origin was no
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Bowlby, Lynn, Robin Turner, David Casarett, et al. "Integration and expansion of palliative care work force." Journal of Clinical Oncology 35, no. 31_suppl (2017): 126. http://dx.doi.org/10.1200/jco.2017.35.31_suppl.126.

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126 Background: The specialty of Hospice and Palliative Medicine has grown out of the need for care of patients who are living longer with cancer and other serious illness and struggle with symptoms, decisions and care. Cancer patients and others often do not have access to Palliative Care services due to availability or accessibility of PC services. Since 2012, fellowship training is required for board eligibility but available programs do not meet the workforce need. As described by Weissman and Meier, viewing Palliative care services in the context of a primary, secondary or tertiary focus
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Bickel, Kathleen E., Kristen McNiff, Mary K. Buss, et al. "Defining High-Quality Palliative Care in Oncology Practice: An American Society of Clinical Oncology/American Academy of Hospice and Palliative Medicine Guidance Statement." Journal of Oncology Practice 12, no. 9 (2016): e828-e838. http://dx.doi.org/10.1200/jop.2016.010686.

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Purpose: Integrated into routine oncology care, palliative care can improve symptom burden, quality of life, and patient and caregiver satisfaction. However, not all oncology practices have access to specialist palliative medicine. This project endeavored to define what constitutes high-quality primary palliative care as delivered by medical oncology practices. Methods: An expert steering committee outlined 966 palliative care service items, in nine domains, each describing a candidate element of primary palliative care delivery for patients with advanced cancer or high symptom burden. Using m
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Lobo, Hannabel Hyacinth, and J. Chandrika. "Interdisciplinary Approach to Palliative Care: A Survey of Tools and an Affordable Technique." Journal of Computational and Theoretical Nanoscience 17, no. 9 (2020): 3952–57. http://dx.doi.org/10.1166/jctn.2020.8995.

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Palliative care is a multidisciplinary approach to health care for individuals with life limiting illnesses. Its primary focus is to prevent and relive suffering from symptoms related to the illness through early identification, correct assessment and treatment of symptoms such as pain and other physical, psychosocial and spiritual problems. Researchers on palliative care have concluded that increased adaptation of tools enhances identification of patients who would benefit through palliative care and hence provide adequate care suitably. The two significant challenges are introduction of earl
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Perri, Giulia-Anna, Nada Abdel-Malek, Aysha Bandali, Haddas Grosbein, and Sandra Gardner. "Early integration of palliative care in a long-term care home: A telemedicine feasibility pilot study." Palliative and Supportive Care 18, no. 4 (2020): 460–67. http://dx.doi.org/10.1017/s1478951520000012.

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AbstractObjectivePalliative care plays an essential role in enhancing the quality of life and quality of death for residents in long-term care homes (LTCHs). Access to palliative care specialists is one barrier to providing palliative care to LTCHs. This project focused on palliative telemedicine, specifically evaluating whether integration of early palliative care specialist consultation into an LTCH would be feasible through the implementation of videoconferencing during routine interdisciplinary care conferences.MethodThis was a mixed-methods evaluation of a pilot program implementation ove
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Miller, Elizabeth M., Joanne E. Porter, and Rebecca Peel. "Palliative and End-of-Life Care in the Home in Regional/Rural Victoria, Australia: The Role and Lived Experience of Primary Carers." SAGE Open Nursing 7 (January 2021): 237796082110362. http://dx.doi.org/10.1177/23779608211036284.

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Introduction Palliative support services (generalist or specialist) can provide much-needed assistance to carers who are providing palliative and end-of-life care in their homes, but access to such services in regional and rural areas of Australia is poorly understood. Objectives This study aimed to explore the role and lived experience of primary carers who are providing palliative and end-of-life care in the home in regional/rural Victoria, Australia. Methods Nine female participants, of whom six were bereaved between 7 and 20 months were interviewed using a semistructured interview techniqu
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Clark, Joseph, Elvis Amoakwa, John Blenkinsopp, Florence Reedy, and Miriam Johnson. "What are the opportunities for cancer care and related research in primary care? A qualitative study of the views of patients, carers, and practice staff." British Journal of General Practice 69, suppl 1 (2019): bjgp19X703505. http://dx.doi.org/10.3399/bjgp19x703505.

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BackgroundResearch to identify the role of primary care in cancer care is important. However, trials in primary care are difficult.AimTo understand how patients, families, and primary care clinicians view their role in cancer care and identify opportunities for cancer primary care research.MethodQualitative study embedded within a feasibility cluster randomised controlled trial of a primary care based needs assessment intervention. The Supportive Cancer Needs Survey (SCNS) was the main outcome. In-depth interviews with patients/carers and focus groups with primary care staff explored views on
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Collins, Anna, Sue-Anne McLachlan, Mike Hill, Sue Collins, and Jennifer Philip. "A randomised phase II trial testing the acceptability and feasibility of a narrative approach to public health communication to increase community engagement with palliative care." Palliative Medicine 34, no. 8 (2020): 1108–17. http://dx.doi.org/10.1177/0269216320932766.

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Background: Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely access to these services. Aim: To test the acceptability (primary outcome), and feasibility of a narrative approach to public health communication seeking to improve attitudes to possible access to palliative care in the event of serious illness. Design: Randomised phase II trial
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Yang, Grace M., Siqin Zhou, Zhizhen Xu, et al. "Comparing the effect of a consult model versus an integrated palliative care and medical oncology co-rounding model on health care utilization in an acute hospital – an open-label stepped-wedge cluster-randomized trial." Palliative Medicine 35, no. 8 (2021): 1578–89. http://dx.doi.org/10.1177/02692163211022957.

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Background: The benefit of specialist palliative care for cancer inpatients is established, but the best method to deliver specialist palliative care is unknown. Aim: To compare a consult model versus a co-rounding model; both provide the same content of specialist palliative care to individual patients but differ in the level of integration between palliative care and oncology clinicians. Design: An open-label, cluster-randomized trial with stepped-wedge design. The primary outcome was hospital length of stay; secondary outcomes were 30-day readmissions and access to specialist palliative car
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Chumbley, K. "139 What are the Barriers and Facilitators to Effective Advance Care Planning (ACP) in Residential Care Settings for Older People?" Age and Ageing 50, Supplement_1 (2021): i12—i42. http://dx.doi.org/10.1093/ageing/afab030.100.

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Abstract Introduction ACP is recommended for all people approaching the end of life but there is an inequality in access to ACP for care home residents. In North East Essex there has been an Electronic Palliative Care Coordination system (EPaCCS) in place for 6 years, currently without care home staff access capability. The aim of this study was to investigate ACP within care homes within this context. Method A qualitative study, with semi-structured interviews with fourteen senior care home staff from ten care homes across North East Essex. The interview transcripts underwent thematic analysi
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Santhosh-Kumar, Cheruppolil R., Deborah Gray, Stephanie Struve, Carol Huibregtse, and Qiaofang Chen. "New primary palliative care (PC) model for community cancer clinics (CCC)." Journal of Clinical Oncology 34, no. 26_suppl (2016): 159. http://dx.doi.org/10.1200/jco.2016.34.26_suppl.159.

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159 Background: Our CCC serving a mixed rural/urban population is part of a large integrated healthcare system in Eastern WI. The closest PC specialist/team is 45 miles away at one of the tertiary care facilities. To fill this service gap we implemented a primary PC model. An initial outpatient palliative care family conference (OFC) and use of cancer nurse navigators (CNN)are hallmarks of this program. Methods: The VLCC, housed in a standalone facility is staffed by two medical oncologists and one radiation oncologist and has an infusion center and a full-fledged radiation oncology unit with
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Tribett, Erika Lauren, Kavitha Ramchandran, Joshua Fronk, et al. "Palliative Care Always as a massive open online course (MOOC) to build primary palliative care in a global audience." Journal of Clinical Oncology 34, no. 26_suppl (2016): 123. http://dx.doi.org/10.1200/jco.2016.34.26_suppl.123.

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123 Background: Primary palliative care (PC) is critical to improve access to PC from the point of diagnosis. Still, barriers exist to providing primary PC worldwide, including a lack of awareness, time, and training. Interactive online learning experiences can help overcome these. This project describes a massive open online course (MOOC)--Palliative Care Always--designed to build primary PC skills in a global audience. Methods: A team of PC providers and online instructional experts developed 12 modules that included: patient scenes, brief lectures, empathy exercises, and Google Hangout disc
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Jess, Mia, Helle Timm, and Karin B. Dieperink. "Video consultations in palliative care: A systematic integrative review." Palliative Medicine 33, no. 8 (2019): 942–58. http://dx.doi.org/10.1177/0269216319854938.

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Background: There is extensive need for palliative care worldwide, but access to care remains inadequate, especially for non-cancer patients. Video consultations are a promising tool in the provision of home-based palliative care, but an overview of evidence solely on video consultations in palliative care is lacking. Aim: To review and synthesize current evidence regarding the use of video consultations in general and specialized palliative care to various patient groups. Design: A systematic integrative review with a narrative synthesis was undertaken in accordance with PRISMA (2009) guideli
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Williams-Reade, Jackie, Angela L. Lamson, Sharon M. Knight, Mark B. White, Sharon M. Ballard, and Priti P. Desai. "The clinical, operational, and financial worlds of neonatal palliative care: A focused ethnography." Palliative and Supportive Care 13, no. 2 (2013): 179–86. http://dx.doi.org/10.1017/s1478951513000916.

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AbstractObjective:Due to multiple issues, integrated interdisciplinary palliative care teams in a neonatal intensive care unit (NICU) may be difficult to access, sometimes fail to be implemented, or provide inconsistent or poorly coordinated care. When implementing an effective institution-specific neonatal palliative care program, it is critical to include stakeholders from the clinical, operational, and financial worlds of healthcare. In this study, researchers sought to gain a multidisciplinary perspective into issues that may impact the implementation of a formal neonatal palliative care p
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Enguidanos, Susan, Anna Rahman, Deborah Hoe, and Kate Meyers. "PROVIDER-IDENTIFIED BARRIERS TO PALLIATIVE CARE FOR MEDICAID PATIENTS." Innovation in Aging 3, Supplement_1 (2019): S689. http://dx.doi.org/10.1093/geroni/igz038.2540.

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Abstract In January 2018, California enacted Senate Bill 1004, which requires Medicaid (or Medi-Cal in California) managed care providers to offer home-based palliative care (HBPC) to their seriously ill patients. Since then, enrollment in HBPC has been lower than projected, which means many across the state continue to suffer without the pain and symptom management and psychosocial support available from a palliative care team. This study elicited clinician-perceived barriers to access to HBPC by Medi-Cal patients. We conducted a qualitative study comprising 25 individual interviews with a ra
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Engel, A. "Cancer Council NSW - Policy and Advocacy: “I Care For Palliative Care” Campaign to Increase Government Investment in Specialist Palliative Care Services." Journal of Global Oncology 4, Supplement 2 (2018): 172s. http://dx.doi.org/10.1200/jgo.18.50500.

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Background and context: I Care for Palliative Care Campaign was developed and delivered by the Cancer Council NSW between November 2015 and July 2017. This advocacy campaign was developed in recognition of the fact that the state had fewer palliative physicians and palliative care nurses than were needed to meet the palliative care demands of the NSW community. This meant that some people with life-limiting cancer were being denied quality of life and were unable to die in the place of their choosing. Moreover, Aboriginal people remained disadvantaged by limited access to specialist palliative
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Bazargan, Mohsen, Sharon Cobb, Shervin Assari, and Lucy W. Kibe. "Awareness of Palliative Care, Hospice Care, and Advance Directives in a Racially and Ethnically Diverse Sample of California Adults." American Journal of Hospice and Palliative Medicine® 38, no. 6 (2021): 601–9. http://dx.doi.org/10.1177/1049909121991522.

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Background: Numerous studies have documented multilevel racial inequalities in health care utilization, medical treatment, and quality of care in minority populations in the United States. Palliative care for people with serious illness and hospice services for people approaching the end of life are no exception. It is also well established that Hispanics and non-Hispanic Blacks are more likely than non-Hispanic Whites to have less knowledge about advance care planning and directives, hospice, and palliative care. Both qualitative and quantitative research has identified lack of awareness of p
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Kaba, Mirgissa, Marlieke de Fouw, Kalkidan Solomon Deribe, Ephrem Abathun, Alexander Arnold Willem Peters, and Jogchum Jan Beltman. "Palliative care needs and preferences of female patients and their caregivers in Ethiopia: A rapid program evaluation in Addis Ababa and Sidama zone." PLOS ONE 16, no. 4 (2021): e0248738. http://dx.doi.org/10.1371/journal.pone.0248738.

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Introduction In Ethiopia there is an extensive unmet need for palliative care, while the burden of non-communicable diseases and cancer is increasing. This study aimed to explore palliative care needs and preferences of patients, their caregivers, and the perspective of stakeholders on service provision in palliative programs for women, mostly affected by cervical cancer and breast cancer. Methods A rapid program evaluation using a qualitative study approach was conducted in three home-based palliative care programs in Addis Ababa and Yirgalem town, Ethiopia. Female patients enrolled in the pr
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Mitchell, Sarah, Victoria Maynard, Victoria Lyons, Nicholas Jones, and Clare Gardiner. "The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics: A rapid review to inform practice and service delivery during the COVID-19 pandemic." Palliative Medicine 34, no. 9 (2020): 1182–92. http://dx.doi.org/10.1177/0269216320947623.

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Background: The increased number of deaths in the community happening as a result of COVID-19 has caused primary healthcare services to change their traditional service delivery in a short timeframe. Services are quickly adapting to new challenges in the practical delivery of end-of-life care to patients in the community including through virtual consultations and in the provision of timely symptom control. Aim: To synthesise existing evidence related to the delivery of palliative and end-of-life care by primary healthcare professionals in epidemics and pandemics. Design: Rapid systematic revi
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Kananga, A. Mubeneshayi. "The Integration of Palliative Care in DR Congo “A Model Of Sustainability”: A Field Study." Journal of Global Oncology 4, Supplement 2 (2018): 171s. http://dx.doi.org/10.1200/jgo.18.36900.

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Background and context: In DR Congo, many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deterioration of the health system and the absence of a well-defined national policy on palliative care. Patients are for the most part abandoned to the care of inexperienced family members. Driven by the fact that the number of palliative patients has been increasing steadily over the past five years, the Palliafamilli association and its partners have taken leadership in the fight for palliative care. The major i
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Szekendi, Marilyn K., Jocelyn Vaughn, Beth McLaughlin, et al. "Integrating Palliative Care to Promote Earlier Conversations and to Increase the Skill and Comfort of Nonpalliative Care Clinicians: Lessons Learned From an Interventional Field Trial." American Journal of Hospice and Palliative Medicine® 35, no. 1 (2017): 132–37. http://dx.doi.org/10.1177/1049909117696027.

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While the uptake of palliative care in the United States is steadily improving, there continues to be a gap in which many patients are not offered care that explicitly elicits and respects their personal wishes. This is due in part to a mismatch of supply and demand; the number of seriously ill individuals far exceeds the workload capacities of palliative care specialty providers. We conducted a field trial of an intervention designed to promote the identification of seriously ill patients appropriate for a discussion of their goals of care and to advance the role of nonpalliative care clinici
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Sampey, Libby, Anne M. Finucane, and Juliet Spiller. "Shared electronic care coordination systems following referral to hospice." British Journal of Community Nursing 26, no. 2 (2021): 58–62. http://dx.doi.org/10.12968/bjcn.2021.26.2.58.

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In Scotland, the Key Information Summary (KIS) enables health providers to access key patient information to guide decision-making out-of-hours. KISs are generated in primary care and rely on information from other teams, such as community specialist palliative care teams (CSPCTs), to keep them up-to-date. This study involved a service evaluation consisting of case note reviews of new referrals to a CSPCT and semi-structured interviews with palliative care community nurse specialists (CNSs) regarding their perspectives on KISs. Some 44 case notes were examined, and 77% of patients had a KIS on
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Gorey, Kevin M., Emma Bartfay, Sindu M. Kanjeekal, et al. "Palliative chemotherapy among people living in poverty with metastasised colon cancer: facilitation by primary care and health insurance." BMJ Supportive & Palliative Care 9, no. 3 (2016): e24-e24. http://dx.doi.org/10.1136/bmjspcare-2015-001035.

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BackgroundMany Americans with metastasised colon cancer do not receive indicated palliative chemotherapy. We examined the effects of health insurance and physician supplies on such chemotherapy in California.MethodsWe analysed registry data for 1199 people with metastasised colon cancer diagnosed between 1996 and 2000 and followed for 1 year. We obtained data on health insurance, census tract-based socioeconomic status and county-level physician supplies. Poor neighbourhoods were oversampled and the criterion was receipt of chemotherapy. Effects were described with rate ratios (RR) and tested
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Armstrong, Megan, Caroline Shulman, Briony Hudson, et al. "The benefits and challenges of embedding specialist palliative care teams within homeless hostels to enhance support and learning: Perspectives from palliative care teams and hostel staff." Palliative Medicine 35, no. 6 (2021): 1202–14. http://dx.doi.org/10.1177/02692163211006318.

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Background: People residing in UK homeless hostels experience extremely high rates of multi-morbidity, frailty and age-related conditions at a young age. However, they seldom receive palliative care with the burden of support falling to hostel staff. Aim: To evaluate a model embedding palliative specialists, trained as ‘homelessness champions’, into hostels for two half-days a month to provide support to staff and residents and facilitate a multidisciplinary approach to care. Design: An exploratory qualitative design. Setting/participants: Four homeless hostels in London, UK, including nine ho
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Bickel, Kathleen Elizabeth, Kristen K. McNiff, Mary K. Buss, et al. "Defining high-quality palliative care in oncology practice: An ASCO/AAHPM Guidance Statement." Journal of Clinical Oncology 33, no. 29_suppl (2015): 108. http://dx.doi.org/10.1200/jco.2015.33.29_suppl.108.

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108 Background: When integrated into routine oncology care, palliative care can improve symptom burden, quality of life, and patient and caregiver satisfaction. However, not all oncology practices have access to subspecialty palliative medicine for referral. This project endeavored to define what constitutes high-quality primary palliative care as delivered by medical oncology practices. Methods: An expert steering committee developed a list of 966 palliative care service items, divided into nine domains, each describing an aspect of palliative care delivery for patients with advanced cancer.
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Morris, Alison, Erika L. Tribett, Sandy Tun, Marcy Winget, Douglas W. Blayney, and Kavitha Ramchandran. "From PRO screening to improved wellness: A nurse-led intervention." Journal of Clinical Oncology 33, no. 29_suppl (2015): 72. http://dx.doi.org/10.1200/jco.2015.33.29_suppl.72.

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72 Background: Emotional and physical distress in cancer patients is underreported and undertreated. In effort to address this, the Quality Oncology Practice Initiative (QOPI) requires patients to be screened for emotional well-being and pain by their second oncology visit. This project details one cancer center’s quality improvement initiative to: (1) utilize patient reported outcomes (PRO) screening to identify patient distress, (2) develop adaptive nurse-led algorithms to assess and intervene for unmet needs. Methods: In June 2015, we launched electronic collection of PROs using the Patient
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