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Books on the topic 'Palliative Care Units'

Author: Grafiati

Published: 4 September 2021

Last updated: 29 July 2025

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1

Romanò, Massimo, ed. Palliative Care in Cardiac Intensive Care Units. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-80112-0.

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Graeme, Rocker, ed. End of life care in the ICU. Oxford University Press, 2009.

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3

Rocker, Graeme. End of life care in the ICU: From advanced disease to bereavement. Oxford University Press, 2010.

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4

Booth, Sara. Palliative care in the acute hospital setting: A practical guide. Oxford University Press, 2010.

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5

Booth, Sara. Palliative care in the acute hospital setting: A practical guide. Oxford University Press, 2010.

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Sara, Booth. Palliative care in the acute hospital setting: A practical guide. Oxford University Press, 2010.

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7

Abiven, Maurice. Pour une mort plus humaine: Expérience d'une unité hospitalière en soins palliatifs. 3rd ed. Masson, 2004.

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8

Royal College of Physicians of London. Research Unit. and Association for Palliative Medicine, eds. Palliative care: Guidelines for good practice and audit measures : a report of a working group of the Research Unit of the Royal College ofPhysicians and the Association for Palliative Medicine. Royal College of Physicians of London, 1991.

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9

Romanò, Massimo. Palliative Care in Cardiac Intensive Care Units. Springer International Publishing AG, 2021.

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10

Romanò, Massimo. Palliative Care in Cardiac Intensive Care Units. Springer International Publishing AG, 2022.

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11

Higginson, Irene J. Palliative care delivery models. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0012.

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Palliative care is not integrated into health care in many countries, with a network of services, a medical speciality or sub-speciality, and academic departments. A common distinction exists between generalist and specialist palliative care. Specialist service are dedicated to palliative care, have staff trained in it, and in addition to providing clinical care, engage in education, research, and the measurement of outcomes. Moreover, the patients they care for have more complex needs. Models of service delivery include inpatient palliative care units and hospices, consultation teams (at home

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12

Puntillo, Kathleen, and Graeme Rocker. End of Life Care in the ICU: From Advanced Disease to Bereavement. Oxford University Press, 2011.

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13

End of life care in the ICU: From advanced disease to bereavement. Oxford University Press, 2010.

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14

Booth, Sara, and Polly Edmonds. Palliative Care in the Acute Hospital Setting: A Practical Guide. Oxford University Press, 2014.

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15

Kendall, Margaret, Sara Booth, and Polly Edmonds. Palliative Care in the Acute Hospital Setting: A Practical Guide. Oxford University Press, Incorporated, 2009.

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16

Yoong, Jaclyn, and Peter Poon. The Optimal Delivery of Palliative Care (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0005.

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This study aimed to compare the effect of palliative care consultation teams with that of dedicated palliative care units on the quality of end-of-life care. This was a telephone-base survey conducted in 77 Veterans Affairs medical centers that had provided both models of care. Deceased patients from July 2008 to December 2009 were identified. A family member of the decedent was invited to participate in the survey which consisted of one global rating item and nine core items pertaining to patient’s end-of-life care. Families of patients who received care in a palliative care unit were more li

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17

Whitehead, Phyllis B. Palliative Care of the Geriatric Patient. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190204709.003.0015.

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More than 50% of all deaths occur in medical and surgical units where the focus is on active, curative treatment, not on managing symptoms and establishing realistic goals of care. Many of these patients are older adults and are vulnerable to many condition. Often they develop end-stage renal disease dementia, hip fractures, and pulmonary conditions and their associated sequelae. Seriously ill, hospitalized patients represent a specialized patient population that greatly benefits from the expanded skills and knowledge of palliative advanced practice registered nurses (APRNs). This chapter revi

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18

Cherny, Nathan, Sharon Einav, and David Dahan. Palliative medicine in the intensive care unit. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0157.

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Despite best efforts, a substantial proportion of patients admitted to intensive care units die either during care or after a trial of intensive supportive therapy that fails to improve the patient’s well-being. The duality of hope and death challenges clinicians, family members of desperately ill patients, and sometimes the patients themselves. Given this high prevalence of mortality, it is incumbent upon intensive medicine units to develop the skills and therapeutic environment that can effectively deal with humane end-of-life care. This is reflected in a growing medical literature, the deve

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19

Goossensen, Anne, and Jos Somsen. Volunteering in hospice and palliative care in The Netherlands. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198788270.003.0005.

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This chapter describes the history and organization of palliative care volunteering in The Netherlands, volunteer roles in different settings, legislative and political influences on palliative care volunteering. Today 200 member organizations are part of the umbrella organization VPTZ Nederland. Together, these member organizations run 87 almost-like-home-houses where medical staff are not employed by the hospice, but visit and care for the patient and family when needed, just as in the home situation, in 18 high-care hospices (with medical staff) and nine palliative care units (units in nurs

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20

Mancini, Alexandra, and Paula Abramson. Communication and psychosocial issues within neonatal palliative care. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198806677.003.0002.

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This chapter introduces the fast-developing specialty of neonatal palliative care within the wider context of palliative care. It sets the scene for understanding the intricacies and challenges faced by families and health-care professionals alike. Good quality palliative care requires the health-care professional to not only possess specialist knowledge and skills, but enhanced attitudes and behaviours focussing on advanced and effective communication skills. The interdisciplinary team must collaborate effectively and work in partnership with the parents whilst considering the whole family’s

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21

Hesse, Michaela, and Lukas Radbruch. Volunteering in hospice and palliative care in Germany. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198788270.003.0006.

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German hospice care developed as a civil society movement in which volunteers were essential from the beginning. Palliative care was, however, led by a few pioneer physicians and started independently from hospices. This separate development is still visible with a clear distinction between palliative care units and inpatient hospices. Over the last two decades these two areas of care have moved more into the regular health care service. As a result volunteer services are increasingly subject to regulations. This also means that there is an increasing amount of competition and economic pressur

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22

Pelttari, Leena, and Anna H. Pissarek. Volunteering in hospice and palliative care in Austria. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198788270.003.0004.

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The development of hospice and palliative care in Austria started with dedicated volunteers in the 1980s and is strongly linked to the development of training for professionals. In 2015, volunteers in hospice and pailliative care (HPC) in Austria numbered 3,630 (87 per cent female) spending 257.510 hours in direct patient care taking care of 12.832 patients, 147.578 hours with activities like training, supervision and fundraising; activities as broard members. HPC volunteers are organized in teams, specially trained (national curriculum with 160 hours and 40 hours practice), and as hospice tea

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23

Pérez-Cruz, Pedro, and Alfredo Rodríguez-Núñez. Availability and Integration of Palliative Care at US Cancer Centers (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0006.

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The aim of this survey study was to characterize the availability and degree of integration of palliative care (PC) services in US cancer centers in 2010. Executives and PC program leaders from 71 National Cancer Institute (NCI)-designated cancer centers and a random sample of 71 out of 1,411 non-NCI-designated cancer centers were surveyed. Cancer center executives rated their current pain and PC services favorably and reported a significant improvement in the availability of these services between 2005 and 2010. The availability of PC programs was 98% for NCI and 78% for non-NCI cancer center

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24

Soins intensifs: La technique et l'humain. Presses universitaires de France, 2012.

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25

Wise, Matt, and Paul Frost. Terminal care in the intensive care unit. Edited by Patrick Davey and David Sprigings. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199568741.003.0153.

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In the UK, around 10%–20% of all patients admitted to the intensive care unit (ICU) do not survive while, in the United States, it has been estimated that 22% of all deaths occur in an ICU. Therefore, terminal or palliative care is as important as any of the life-saving interventions that occur in the ICU. The goal of palliative care is to achieve a good death. In the ICU, the switch from care with curative intent to palliation occurs when it becomes obvious that the patient is not responding to treatment. Typically, this is manifest by deteriorating physiology and escalating organ support in

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26

Watson, Max, Caroline Lucas, Andrew Hoy, and Jo Wells. Hospital liaison palliative care. Oxford University Press, 2010. http://dx.doi.org/10.1093/med/9780199234356.003.0048.

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This chapter covers the need for hospital liaison palliative care services, challenges in an acute hospital setting, aims and evaluation of the hospital specialist palliative care team, things to think about when considering a referral, urgent discharge of a dying patient who wants to die at home, dying in the intensive care unit (ICU), and using the Liverpool Care Pathway (LCP) in the hospital setting.

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27

Hain, Richard D. W., and Satbir Singh Jassal. Palliative care in intensive care environments. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198745457.003.0018.

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A significant proportion of deaths in childhood, even those from life-limiting conditions, happen in an intensive care environment. An effective interface between palliative care services and the neonatal or paediatric intensive care unit is important but also presents certain specific challenges. This chapter looks at some of these challenges. It covers advance emergency care planning and compassionate extubation, examining the practicalities, symptom management, and parallel planning involved in this stage of care. Significant attention is also given to the ethics of compassionate extubation

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28

Wood, Jayne, and Maureen Carruthers. Palliative care in the intensive cardiac care unit. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199687039.003.0078.

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Specialist palliative care services originally focused on improving the quality of life for patients with a diagnosis of cancer in the terminal phase of their illness. However, organizations, such as the World Health Organization, supported by recent national strategies, such as the End of Life Care Strategy (United Kingdom, 2008), promote the early integration of specialist palliative care into the management of patients with incurable disease, irrespective of the diagnosis. The primary goal of the intensive cardiac care unit is to help patients survive acute threats to their lives. However,

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29

Strada, E. Alessandra. The Fourth Domain of Palliative Care. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199798551.003.0005.

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This chapter proposes palliative psychology competencies in the fourth domain of palliative care, which addresses the social needs of the patient and the family. The unit of care in palliative care is represented by the patient and the family; thus, this chapter highlights the unique needs of family caregivers. The many challenges of caregiving are described by reviewing the literature and using clinical case scenarios. The risk factors and protective factors in caregiving are discussed and incorporated in assessment templates. Psychological and psychosocial interventions that can effectively

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30

Hain, Richard, and Satbir Jassal. Paediatric Palliative Medicine. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198745457.001.0001.

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Looking after children with life-limiting conditions can be very difficult for both parents and health-care professionals. This second edition of Paediatric Palliative Medicine is full of easily accessible, detailed information on medical conditions and symptoms, and includes specific management plans in order to guide the practising clinician through treatment of children requiring palliative care. Using the bestselling Oxford Specialist Handbook format to deliver practical and concise information, this handbook facilitates bedside delivery of effective palliative medicine. It includes detail

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31

Hannon, Breffni. Cost Savings Associated with Palliative Care (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0007.

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Although the clinical benefits associated with hospital-based palliative care (PC) consultation teams are well established, few studies address the potential economic impact of these services. This study aimed to examine the effect of hospital-based PC teams on hospital costs for patients who died in the hospital, as well as for those discharged alive. Eight diverse hospital settings with established PC teams were chosen, and administrative data relating to direct costs (including laboratory, diagnostic imaging, pharmacy, and intensive care unit [ICU] costs) were analyzed. Propensity scoring w

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32

Therese Vanier: Pioneer of l'Arche, Palliative Care and Spiritual Unity. Darton, Longman & Todd, Limited, 2016.

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33

Mori, Masanori. Clinical Signs of Impending Death in Cancer Patients (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0039.

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In this prospective, longitudinal, cohort study, the authors systematically characterized the frequency, onset, and diagnostic performance of 62 clinical signs for impending death in 357 advanced cancer patients admitted to two acute palliative care units. “Early signs” (e.g., Palliative Performance Scale <20%, Richmond Agitation Sedation Scale ≤–2) had a high frequency over the last 3 days but low positive predictive ratios (LRs) for impending death within 3 days. In contract, “late signs” (e.g., death rattle, respiration with mandibular movement, peripheral cyanosis) had a low frequency b

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34

Hodgkiss, Andrew. Further clinical issues. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198759911.003.0012.

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The clinical challenges arising when a person with a severe mental illness, such as schizophrenia or bipolar disorder, develops a cancer are surveyed. Delayed diagnosis and access to oncological treatment, factors contributing to reduced adherence, and the interruption of specialist community psychiatric care are discussed. Long-term psychotropic medication may complicate end-of-life care, and access to palliative care is usually limited for those in secure mental health inpatient units. The striking inverse relationship between neurodegenerative disorders (Alzheimer-type dementia) and prolife

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35

Scheunemann, Leslie P., and Robert M. Arnold. Communication with patients and families in the ICU. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199600830.003.0011.

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Regular, consistent communication with families of intensive care unit (ICU) patients is important for family satisfaction, patient-centred decision-making, and reducing the emotional burden of the ICU stay on family members. In fact, the family meeting can appropriately be considered a core procedure of intensive care practice. Good communication requirements include the appropriate clinicians and family members, providing a quiet and undisturbed setting, and choosing appropriate goals for each meeting. Clinicians should strive to develop skills for listening, observing family dynamics, and r

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36

Dalal, Shalini. Docusate and Sennosides for Constipation (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0024.

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This chapter describes a prospective study that ran from December 2005 to November 2010 using three hospital inpatient units of adding a stool softener, docusate versus placebo, to sennosides alone for the treatment of constipation among hospice patients. Patients were adults admitted to an inpatient hospice program with a Palliative Performance Status 20% or greater. The chapter describes the basics of the study, including funding, year study began, year study was published, study location, who was studied, who was excluded, how many patients, study design, study intervention, follow-up, endp

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37

Navaratnam, M., and C. Ramamoorthy. Hypoplastic Left Heart Syndrome. Edited by Kirk Lalwani, Ira Todd Cohen, Ellen Y. Choi, and Vidya T. Raman. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190685157.003.0009.

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Approximately 960 babies are born per year in the United States with hypoplastic left heart syndrome. Over the last 20 years, advances in surgical techniques, perioperative care, cardiopulmonary bypass, and intensive care unit management have converted this previously fatal condition to one with a neonatal survival rate of 90% to 92% for standard risk patients. Understanding the factors affecting the balance of pulmonary blood flow and systemic blood flow and ensuring adequate cardiac output and end-organ perfusion is critical to successful outcomes. Extracorporeal membrane oxygenation remains

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38

Andropoulos, Dean B. Management of Children with Congenital Heart Disease for Noncardiac Surgery. Edited by Erin S. Williams, Olutoyin A. Olutoye, Catherine P. Seipel, and Titilopemi A. O. Aina. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190678333.003.0025.

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Congenital heart disease (CHD) patients are increasingly presenting for noncardiac surgery, and the anesthesiologist must possess an understanding of the major classes of CHD and their pathophysiology, as well as surgical approaches for correction or palliation. A thorough preoperative evaluation and anesthetic plan, including invasive monitoring, inotropic support, blood transfusion, endocarditis prophylaxis, pacemaker/defibrillator functioning, and intensive care unit admission must be developed, and include a multidisciplinary team. Each patient has a unique pathophysiology and a systematic

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39

Hannon, Breffni. The Edmonton Symptom Assessment System (DRAFT). Edited by Nathan A. Gray and Thomas W. LeBlanc. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190658618.003.0009.

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The Edmonton Symptom Assessment System (ESAS) consists of eight common symptoms presented as visual analog scales ranging from 0 to 100mm. Patients score the ESAS independently where possible; the scores are summed to form an overall distress score and graphed to create a longitudinal visual representation of symptom burden. This study describes the use of the ESAS for patients with advanced cancer (n = 101) admitted to a palliative care unit in Edmonton, Canada. The ESAS was completed twice daily. In 84% of cases, patients completed the ESAS independently initially; 83% ultimately required nu

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40

Baldwin, Matthew, and Hannah Wunsch. Mortality after Critical Illness. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0003.

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Many critically ill patients now survive what were previously fatal illnesses, but long-term mortality after critical illness remains high. While study populations vary by country, age, intervention, or specific diagnosis, investigations demonstrate that the majority of additional deaths occur in the first 6 to 12 months after hospital discharge. Patients with diagnoses of cancer, respiratory failure, and neurological disorders leading to the need for intensive care have the highest long-term mortality, while those with trauma and cardiovascular diseases have much lower long-term mortality. Us

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