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Books on the topic 'Palliative help'

Author: Grafiati

Published: 4 June 2021

Last updated: 6 February 2022

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1

Anie, Kofi. Coping with sickle cell disease & pain: A self-help manual for children. Brent Sickle Cell & Thalassaemia Centre, 1998.

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2

After shock: From cancer diagnosis to healing, a step-by-step guide to help you navigate your way. Roots & Wings, 2007.

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3

Until there's a cure: How to help Alzheimer's patients and families now : forum before the Special Committee on Aging, United States Senate, One Hundred Eleventh Congress, second session, Washington, DC, December 8, 2010. U.S. G.P.O., 2011.

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4

What to do before & after someone dies: A practical guide to help you through the worst possible time for making important decisions. Little Moose Press, 2005.

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5

Help with hospice & palliative care. Health Journeys, 2016.

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6

Ragsdale, Lindsay B., and Elissa G. Miller, eds. Pediatric Palliative Care. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190051853.001.0001.

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What Do I Do Now: Pediatric Palliative Care succinctly describes the palliative care approach to children with serious illness and provides practical guidance to clinicians and trainees. This book address physical, emotional, social, cultural, and spiritual needs of ill children and their families. Many clinicians want to help children that are seriously ill but have not been taught the skills or practice guidelines to attend to their needs. This book walks a provider through a challenging clinical pediatric case and outlines how to think through clinical dilemmas and respond to the patient an

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7

Kaasa, Stein, and Karen Forbes. Research in palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0191.

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Research in palliative care is essential for maintaining standards and advancing knowledge and improving practice. It is challenging, sometimes daunting, often frustrating, but always exciting and rewarding when a study is successfully completed, whether the outcome is positive or negative. This chapter discusses a wide range of topics that will help those who are new to research to get started, to proceed and complete it, and contribute to improving outcomes for patients with advanced disease. Topics include, among others, collaborative and translational research, research governance, control

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8

Cooper, Jill, and Nina Kite. Occupational therapy in palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0046.

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Occupational therapy in palliative care aims to help patients achieve their optimum independence in activities that are important to them. The specific functional difficulties may include extreme fatigue, anxiety and shortness of breath due to advanced disease including metastatic spinal cord compression, fractures, or peripheral neuropathies. Patients may have problems with cognition and perception, body image, life role, and spiritual issues as well as physical disabilities. This chapter describes the broad range of areas in which the occupational therapist works in palliative care together

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9

O’Callaghan, Clare. Music therapy in palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0047.

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Music therapists are university-trained professionals who invite palliative care patients, and their significant family members and friends, to explore how creative music-based experiences in therapeutic relationships can address biopsychosocial needs and enhance spiritual well-being. The chapter illustrates how music therapists can extend music’s power to help patients across the lifespan live a quality life and support their families. Patients often choose familiar music to listen to, sing, or play that elicits people, places, emotions, and thoughts that they want to connect with. Through mu

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10

Fancourt, Daisy. Fact file 9: Palliative care. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780198792079.003.0022.

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Palliative care is support for seriously ill patients and their families. The aim of palliative care is to minimize pain and discomfort as much as possible and provide psychological, social, and spiritual support. An important part of palliative care is end-of-life care, which aims to improve quality of life as much as possible while patients are alive and then help them to die with dignity....

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11

Wittenberg, Elaine, Joy V. Goldsmith, Sandra L. Ragan, and Terri Ann Parnell. Communication in Palliative Nursing. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190061326.001.0001.

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Communication in Palliative Nursing presents the COMFORT Model, a theoretically-grounded and empirically-based model of palliative care communication. Built on over a decade of communication research with patients, families, and interdisciplinary providers, and reworked based on feedback from hundreds of nurses nationwide, the chapters outline a revised COMFORT curriculum: Connect, Options, Making Meaning, Family caregivers, Openings, Relating, and Team communication. Based on a narrative approach to communication, which addresses communication skill development, this volume teaches nurses to

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12

Edwards, Morry. Mindbody Cancer Wellness: A Self-Help Stress Management Manual. 2nd ed. Acorn Publishing, 2003.

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13

Fins, Joseph J., and Maria Masters. Disorders of Consciousness and Neuro-Palliative Care. Edited by Stuart J. Youngner and Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.15.

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This chapter explains how neuro-palliative care can be provided to patients with severe brain injury. Before arguing that the right to die must be preserved and that the right to care for patients who are minimally conscious must be supported, it defines and reviews brain states that constitute disorders of consciousness along with their differential biology. It then gives an overview of palliative care for patients with severe brain injury and the challenges involved in diagnosing the minimally conscious state. It proceeds by discussing advances in technology, particularly neuroimaging, that

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14

Laird, Barry J. A. Barriers to the delivery of palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0011.

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This chapter discusses several key barriers to the delivery of palliative care, firstly considering the definition of ‘palliative care’. It describes the World Health Organization (WHO) definition and notes that the ideology of palliative care being a concept with which to approach management of patients may still not be fully understood. Furthermore, the differences between generalist and specialist palliative care may also contribute to confusion. Although palliative care as a concept has largely been embraced throughout the world, its implementation into routine clinical care is lacking. Es

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15

Hope, Aluko A., and Judith E. Nelson. The Overlap of Palliative Care and Critical Illness. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0005.

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Palliative care focuses on control of symptom distress, communication about care goals, alignment of treatment with patients’ values and preferences, transitional planning, and support for both patient and family. Palliative care is a fundamental concept which is relevant throughout the trajectory of critical illness, even in those patients pursuing aggressive treatments to prolong life. This chapter discusses ways in which effective integration of the core elements of palliative care during acute treatment of critical illness may help ICU survivors and their families to prepare for challenges

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16

Kiyange, Fatia. Volunteering in hospice and palliative care in Africa. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198788270.003.0011.

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Volunteering in hospice and palliative care in Africa occurs in existing cultures of care for the sick by families and their communities. The high burden of Human immunodeficiency virus (HIV) in sub-Saharan Africa further accelerated the development and involvement of volunteers in the delivery of hospice and palliative care services, as well as other health services. Similar to the Alma Ata Declaration which recognizes the importance of community members in the provision of primary health care, the World Health Assembly resolution on palliative care recognizes the role of volunteers in servic

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17

MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Receiving Desired Help for Pain. RAND Corporation, 2021. http://dx.doi.org/10.7249/rra400-2.

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18

Noble, Simon, and Nicola Pease. The United Kingdom general practitioner and palliative care model. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198736134.003.0058.

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Within the United Kingdom, the general practitioner (GP) will manage the care of the majority of patients with life-limiting and terminal disease. The need for effective communication is recognized in the general practice curriculum and college examinations. The opportunity to review and critique one’s own communication skills allows considerable opportunity for self-directed learning and reflection. The development of a reflective portfolio of learning has been developed as a user-friendly and cost-effective way for the general practitioner to commit to lifelong learning in the context of com

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19

Wood, Jayne, and Maureen Carruthers. Palliative care in the intensive cardiac care unit. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199687039.003.0078.

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Specialist palliative care services originally focused on improving the quality of life for patients with a diagnosis of cancer in the terminal phase of their illness. However, organizations, such as the World Health Organization, supported by recent national strategies, such as the End of Life Care Strategy (United Kingdom, 2008), promote the early integration of specialist palliative care into the management of patients with incurable disease, irrespective of the diagnosis. The primary goal of the intensive cardiac care unit is to help patients survive acute threats to their lives. However,

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20

Scott, Ros, and Steven Howlett, eds. The Changing Face of Volunteering in Hospice and Palliative Care. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198788270.001.0001.

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Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognised that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering. This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures

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21

Lee, Judith. WHAT TO DO BEFORE & AFTER SOMEONE DIES: A practical guide to help you through the worse possible time for making important decisions. Little Moose Press, 2006.

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22

Jacobsen, Juliet, Vicki Jackson, Joseph Greer, and Jennifer Temel. What's in the Syringe? Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780197525173.001.0001.

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What’s in the Syringe? Principles of Early Integrated Palliative Care, a guide for clinicians, teaches the psychological skills of outpatient palliative care. It does so based on a framework that articulates five challenges faced by patients through the illness trajectory. Each challenge forms the focus of a chapter. By helping patients meet each challenge, clinicians help them cope with serious illness. Patients thereby experience better quality of life and develop prognostic awareness. From this awareness, they can make informed medical and personal decisions. Each chapter focuses on clinica

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23

LeBlanc, Thomas W., and James A. Tulsky. Communication with the patient and family. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0061.

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High-quality palliative medicine depends upon communication that is patient-centred, clear, and attends to the central role of emotion in the medical encounter. Good communication leads to a number of improved outcomes including greater adherence to therapy, higher patient satisfaction, decreased anxiety and depression, and care that is more consistent with patients’ goals. Unfortunately, in practice, communication frequently does not meet these standards and opportunities are lost to meet patients’ most basic needs. That said, good communication can be deconstructed and conceptualized as a se

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24

Currow, David C., and Stein Kaasa. Policy in palliative care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0004.

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Hospice and palliative care services have developed in very different ways around the world. Most have been built on the momentum of visionary clinicians and funders who have responded to perceived needs from health-care providers, patients, families, and communities rather than in response to well-formed national policies with an adequately funded planning and development phase. This chapter describes the work that is being done at pan-national, national, and sub-national levels to create effective policies that can further the key work of hospice/palliative care, often after a large number o

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25

Pahuja, Meera, Jessica S. Merlin, and Peter A. Selwyn. HIV/AIDS. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0151.

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In less than two decades, AIDS has been transformed from a rapidly fatal, untreatable illness to a manageable chronic disease. Early in the AIDS epidemic, HIV care and palliative care were inseparable; over time, these two treatment paradigms diverged. In the developed world, and to a lesser but increasing extent in the developing world, decreasing mortality rates have resulted in growing numbers of HIV-infected patients living with the disease for many years. As this long-surviving population increases, the challenges of chronic disease management, an expanding range of co-morbidities, and a

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26

Hain, Richard D. W., and Satbir Singh Jassal. Bereavement. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198745457.003.0021.

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Death generates different levels of grief in people, most often linked to our relationship with the individual and our social cultural upbringing. As paediatric palliative care professionals dealing with the family, we are looked towards by other health-care professionals and society to help deal with the bereavement and its associated grief. It is important to recognize that it is not our sole responsibility. This chapter approaches grief through the models of bereavement theory, in order to provide a deeper understanding of this stage. It examines bereavement issues experienced by the chroni

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27

Krist, Alex H., and Vivian Jiang. Provider-Level Factors Influencing Implementation. Edited by David A. Chambers, Wynne E. Norton, and Cynthia A. Vinson. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190647421.003.0016.

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Cancer treatment is increasingly complex. The tools for diagnosis, staging, and predicting prognosis are rapidly evolving, as are the therapies, treatment modalities, and treatment protocols. The complexity of care, the need for a multidisciplinary team across settings, and patient-level factors all present providers with a unique set of challenges. The three case studies presented in this chapter explore strategies that help providers by (1) ensuring low-income patients with breast cancer receive care consistent with guidelines through patient engagement and navigation, (2) promoting and inco

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28

Urban, A. Katalin, Josephine M. Clayton, and David W. Kissane. Introducing or transitioning patients to palliative care. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198736134.003.0021.

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Effective communication between patients, families, and healthcare professionals is critical to transitioning to a palliative approach and enables patients and their families to adjust to the life-limiting nature of the illness, avoid unnecessary and invasive treatments, accomplish remaining life goals, and prepare for death. The PREPARED acronym provides a framework to guide clinicians in discussing the transition to a palliative approach in a way that respects the patient’s preferences, provides empathy, and helps sustain realistic hope. Settings of steadily advancing disease burden, the nee

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29

Robinson, Louise. Caring for people with dementia towards and at the end of life. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198779803.003.0010.

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Research evidence confirms that people dying with dementia receive suboptimal care compared to those with terminal cancer. Good quality end-of-life care in dementia can be achieved. It requires good communication with open and sensitive discussions about future preferences for care; advice about power of attorney, and other practical issues including support services and technology; continuity of care through a named lead GP/care-home nurse; detailed observation for signs of distress once communication has been lost; and referral to specialist services such as old-age psychiatry for behavioura

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30

(Organisation), CONCAH, and Research for Ageing Trust, eds. Disability, dependency & palliative care 1995-2005: Workshop held at the Royal College of Physicians, London. Published for CONCAH by the Research for Ageing Trust, 1995.

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31

Hill, Douglas L., and Chris Feudnter. Hope in the Midst of Terminal Illness. Edited by Matthew W. Gallagher and Shane J. Lopez. Oxford University Press, 2017. http://dx.doi.org/10.1093/oxfordhb/9780199399314.013.19.

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Although palliative and hospice care services are increasingly available, many adults and children still die without this kind of support or receive it only in the last few days of life, as many patients, family members, and clinicians equate the initiation of these services with loss of hope. This chapter presents a model of how hopeful patterns of thinking and a balance of positive and negative affect may facilitate a regoaling process in which individuals transition from cure-seeking goals to other personally meaningful goals that are attainable at the end of life or while living with a ser

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32

Edwards, Jane, and Jeanette Kennelly. Music Therapy for Hospitalized Children. Edited by Jane Edwards. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199639755.013.28.

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This chapter provides information about music therapy practice with children receiving care in a hospital, including information about music therapy service development in new settings. Music therapy offers opportunities for children and their families to be supported while undergoing difficult experiences following an injury or during an illness. Children with life-limiting conditions, and with chronic illness are also treated in hospitals, and can benefit from specialized support and help to cope with their circumstances. Music therapy can be provided to address treatment goals relating to p

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33

Puntis, John. Nutritional problems in the child with neurodisability. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198759928.003.0021.

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Feeding problems occur in around 50% of children with neurological disability. Needing help with feeds, choking, prolonged meal times, and poor weight gain are common. Gastro-oesophageal reflux and constipation may further complicate management, and obesity is a risk particularly in those with low energy requirements. Assessment should include a detailed feeding history and anthropometry. Oromotor skills and safety of swallow can be gauged by a speech and language therapist, and appropriate seating and eating tools by an occupational therapist. The dietician advises on nutritional requirements

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34

Simon, Chantal, Hazel Everitt, Francoise van Dorp, Nazia Hussain, Emma Nash, and Danielle Peet. Oxford Handbook of General Practice. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780198808183.001.0001.

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The Oxford Handbook of General Practice offers hands-on advice to help with any day-to-day problems that might arise in general practice, and covers the entire breadth and depth of general practice in concise, quick-reference topics. It starts by exploring the definition of general practice, and moves on to practical advice on practice management, consulting with patients, social aspects of primary care, and prescribing and managing medicines. It gives practical advice on all clinical areas of general practice, including minor surgery, healthy living, chronic disease and elderly care, cardiolo

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35

Breitbart, William S., and Shannon R. Poppito. Meaning-Centered Group Psychotherapy for Patients with Advanced Cancer. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199837250.001.0001.

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The importance of spiritual well-being and the role of "meaning" in moderating depression, hopelessness and desire for death in terminally-ill cancer and AIDS patients has been well-supported by research, and has led many palliative clinicians to focus on the development of non-pharmacologic interventions that can help their patients address these issues. Individual Meaning-Centered Group Psychotherapy (IMCP), an intervention developed and rigorously tested by the Department of Psychiatry & Behavioral Sciences at Memorial Sloan-Kettering Cancer Center, is a seven-week program based around

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36

Jeremy, Stuparich, and Australian Federation of Right to Life Associations., eds. Euthanasia, palliative and hospice care and the terminally ill: A seminar held at John XXIII College Australian National University, Canberra 26 September, 1992. ACT Right to Life Association, 1992.

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37

John, Mount, and National Council for Hospice and Specialist Palliative Care Services., eds. Palliative care services for different ethnic groups: Proceedings of a seminar held in December 2000. National Council for Hospice and Specialist Palliative Care Services, 2001.

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38

Pereira, Araída Dias, Bárbara Paixão de Gois, and Jussara Maysa Silva Campos. Oncologia: uma visão interdisciplinar. Brazil Publishing, 2021. http://dx.doi.org/10.31012/978-65-5861-216-2.

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This book, comprising 24 chapters, proposes in an interdisciplinary way to present updated technical content from different areas such as nutrition, nursing, psychology, pharmacy and occupational therapy. The main objective of this work is to contribute to the clinical professional practice in oncology, as well as, to the training of students in the health field. The contents were carefully selected, compiled and approached in a didactic way, so that they provide an intuitive and pleasant reading. Starting from the molecular basis, risk and nutrition factors and cancer prevention, going throug

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39

Jane, Griffin, ed. Palliative care for all: Directions for the decade : papers from a conference held in London on 12 and 13 November 1992. Cancer Relief Macmillan Fund, 1992.

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40

Bonser, Tony. Advance care planning: a personal view and stories from the frontline. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198802136.003.0007.

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This chapter includes a personal view of advance care planning (ACP) from Tony Bonser, whose son, Neil died aged 35 and who now works for the National Council for Palliative Care, with examples from others. It describes the importance and impact of ACP on people nearing the end of life and their families, and recommends that ACP should be mainstreamed across health and social care as part of good practice, and become part of the public debate through movements like Dying Matters. It affirms that ACP: enables a dialogue to be started; must be centred on patients and enable the implementation of

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41

1959-, Robbins Margaret, and National Council for Hospice and Specialist Palliative Care Services., eds. Needs assessment for hospice and specialist palliative care services: From philosophy to contracts : papers presented at a conference sponsored by Janssen Pharmaceutical Ltd held in London on 19th April 1993. National Council for Hospice and Specialist Palliative Care Services, 1993.

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42

Palliative Medicine in the UK c. 1970-2010: The transcript of a Witness Seminar held by the History of Modern Biomedicine Research Group, Queen Mary, University of London, on 28 February 2012. Queen Mary, University of London, 2013.

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