To see the other types of publications on this topic, follow the link: Patient and Person Centered Care.
Journal articles on the topic 'Patient and Person Centered Care'
Create a spot-on reference in APA, MLA, Chicago, Harvard, and other styles
Consult the top 50 journal articles for your research on the topic 'Patient and Person Centered Care.'
Next to every source in the list of references, there is an 'Add to bibliography' button. Press on it, and we will generate automatically the bibliographic reference to the chosen work in the citation style you need: APA, MLA, Harvard, Chicago, Vancouver, etc.
You can also download the full text of the academic publication as pdf and read online its abstract whenever available in the metadata.
Browse journal articles on a wide variety of disciplines and organise your bibliography correctly.
1
Lines, Lisa M., Michael Lepore, and Joshua M. Wiener. "Patient-centered, Person-centered, and Person-directed Care." Medical Care 53, no. 7 (July 2015): 561–63. http://dx.doi.org/10.1097/mlr.0000000000000387.
Full text
2
Marcum, James, Jackson Griggs, and Lauren Barron. "Operationalizing person-centered medicine." European Journal for Person Centered Healthcare 2, no. 1 (February 10, 2014): 98. http://dx.doi.org/10.5750/ejpch.v2i1.712.
Full textAbstract:
To recapture medicine’s “soul” for the “care” of patients, Miles and Mezzich propose a version of person-centered medicine in which they “coalesce” both evidence-based medicine and patient-centered care. To that end, they identify 5 key principles from which they formulate a 4-part working definition of person-centered medicine. In this paper, we first analyze philosophically -ontologically, epistemologically and ethically - both their principles and definition and we then present a clinical case to operationalize their notion of person-centered medicine. We conclude with a brief comment on its feasibility for modern clinical practice.
3
Morton, Rachael L., and Marcus Sellars. "From Patient-Centered to Person-Centered Care for Kidney Diseases." Clinical Journal of the American Society of Nephrology 14, no. 4 (February 27, 2019): 623–25. http://dx.doi.org/10.2215/cjn.10380818.
Full text
4
Utarini, Adi. "Person-Patient-Family-Community Centered Care Semakin Penting." Journal of Hospital Accreditation 2, no. 02 (August 17, 2020): 30–31. http://dx.doi.org/10.35727/jha.v2i02.72.
Full textAbstract:
Situasi pandemi memberikan ancaman serius dalam pemberian pelayanan individual, terutama bagi pasien dengan infeksi virus Corona yang dirawat inap di rumah sakit. Aspek medis (diagnosis dan pengobatan) yang merupakan subtansi utama pelayanan masih menimbulkan tantangan dalam penatalaksanaan pasien dengan infeksi virus Corona. Namun pada situasi yang kompleks ini, pemberian pelayanan kesehatan yang berorientasi pada kebutuhan individual setiap manusia-pasien justru menjadi semakin penting. Setiap orang (termasuk pasien) membutuhkan dukungan yang lebih besar dan berarti dari keluarga dan masyarakat, serta tenaga kesehatan.
Beberapa istilah sering digunakan dan memiliki makna, prinsip dan aktivitas yang berbeda, namun tumpang tindih atau merupakan suatu kontinum: person-centered care, patient-centered care dan family-centered care.
5
Glick, Michael. "Precision-, patient-, and person-centered care, oh my." Journal of the American Dental Association 150, no. 3 (March 2019): 161–62. http://dx.doi.org/10.1016/j.adaj.2019.01.008.
Full text
6
Zhao, Junqiang, Shangqian Gao, Jinfang Wang, Xinjuan Liu, and Yufang Hao. "Differentiation between two healthcare concepts: Person-centered and patient-centered care." International Journal of Nursing Sciences 3, no. 4 (December 2016): 398–402. http://dx.doi.org/10.1016/j.ijnss.2016.08.009.
Full text
7
Ekman, Inger, Karl Swedberg, Charles Taft, Anders Lindseth, Astrid Norberg, Eva Brink, Jane Carlsson, et al. "Person-Centered Care — Ready for Prime Time." European Journal of Cardiovascular Nursing 10, no. 4 (December 2011): 248–51. http://dx.doi.org/10.1016/j.ejcnurse.2011.06.008.
Full textAbstract:
Long-term diseases are today the leading cause of mortality worldwide and are estimated to be the leading cause of disability by 2020. Person-centered care (PCC) has been shown to advance concordance between care provider and patient on treatment plans, improve health outcomes and increase patient satisfaction. Yet, despite these and other documented benefits, there are a variety of significant challenges to putting PCC into clinical practice. Although care providers today broadly acknowledge PCC to be an important part of care, in our experience we must establish routines that initiate, integrate, and safeguard PCC in daily clinical practice to ensure that PCC is systematically and consistently practiced, i.e. not just when we feel we have time for it. In this paper, we propose a few simple routines to facilitate and safeguard the transition to PCC. We believe that if conscientiously and systematically applied, they will help to make PCC the focus and mainstay of care in long-term illness.
8
Garneau, Kevin, Thomas Hutchinson, Qinyi Zhao, and Patricia Dobkin. "Cultivating person-centered medicine in future physicians." European Journal for Person Centered Healthcare 1, no. 2 (November 18, 2013): 468. http://dx.doi.org/10.5750/ejpch.v1i2.688.
Full textAbstract:
Person-centered medicine, while valued implicitly, is not always taught explicitly in medical schools or during residency programs. Threats to educating and practicing person-centered medicine include perceived lack of time, stress, burnout and a paucity of mentors with a systematic approach to modeling and teaching students how to relate to patients in a way that addresses them as whole persons. Herein we review how trainee stress and burnout negatively impact patient care and outline a program designed to teach mindful medical practice that may be an antidote to these problems. Moreover, we present quantitative data and a student’s narrative to highlight how to cultivate person-centered medicine in trainees.Fifty-eight 4th year medical students completed questionnaires pertaining to: depression, burnout, stress, wellbeing, self-compassion and mindfulness before and after taking a 4-week elective entitled, Mindful Medical Practice. Statistically significant improvements were found on emotional exhaustion, depression, self-compassion and mindfulness. One student’s experiences highlighted how what he learned in the elective guided him during his family medicine residency. We conclude with a discussion of how the culture of medicine and the training of future physicians in particular, need to take the whole persons of both the physician and patient into account in order for all to be satisfied with and benefit from medical care.
9
Mandal, Debashish, Robert J. McQueen, Owen Doody, and Ita Richardson. "Role of social media to support person-centered care in small healthcare practices." European Journal for Person Centered Healthcare 5, no. 2 (July 6, 2017): 170. http://dx.doi.org/10.5750/ejpch.v5i2.1258.
Full textAbstract:
Rationale, aims and objectives: Healthcare practitioners use social media to receive feedback from patients to deliver better person-centered care. The aim of this research was to investigate the ability of social media to support person-centered healthcare in small practices. The objectives of this study were to: (a) diagnose their existing patient care processes; (b) introduce social media to them as an additional channel for communication and feedback with their patients & (c) examine the effectiveness of social media to support delivery of person-centered healthcare.Method: The study used an action research method to train 20 healthcare practitioners in small practices in the use of social media. Data were collected through unstructured interviews and analysis of social media scripts. Thematic analysis of the source data was undertaken, supported by Nvivo software.Results: Practitioners reported that social media assisted and supported delivery of person-centered healthcare if suitable training and implementation processes were used. The introduction of social media increased healthcare practitioners’ socialising and personalising capabilities, which enhanced their capability to empathise with patients. Socialising increased because of improved 2-way communication and trust between practitioner and patient and improved a practitioner’s capability to personalise care for patients. Through building trust and additional communication, practitioners were better able to motivate patients to undertake behavioural changes.Conclusions: Social media use can enhance person-centered care by bridging social, economic and demographic differences between practitioner and patient. Small healthcare practitioners need suitable training in social media to support person-centered healthcare.
10
Qidwai, Waris, Kashmira Nanji, Tawfik Khoja, Salman Rawaf, Nabil Yasin Al Kurashi, Faisal Alnasir, Mohammed Ali Al Shafaee, et al. "Are we ready for a person-centered care model for patient-physician consultation? A survey from family physicians of East Mediterranean Region." European Journal for Person Centered Healthcare 1, no. 2 (November 18, 2013): 394. http://dx.doi.org/10.5750/ejpch.v1i2.679.
Full textAbstract:
Background: Person-centered care has long been identified as a key component of health systems and one of the six domains of quality. This study aimed to identify the perceptions of patients and physicians regarding person-centered care in the Eastern Mediterranean Region (EMR).Methods: A multicountry, cross-sectional study was conducted in 6 countries of EMR during July 2012 to September 2012. From each country, an expert Family Physician (FP) was identified and invited for the study. During the first phase, 190 FPs practicing for at least 6 months were recruited. In the second phase, the recruited FPs approached 300 patients aged > 18 years with 1 or more recurring problems. Data analysis was conducted using SPSS version 19.Results: Of a total of 360 patients, 53% were between 25-40 years of age and the majority 55.7% were females. Among physicians, 66.8% were females and 72.1% had undergone specialization in Family Medicine from EMR. About 36% of the patients, while 62.6% of the physicians, preferred a person-centered care model of care. Among physicians, field of specialization (AOR= 0.7; 95% C.I: 0.3-0.9) and regularity in continuing medical education sessions (AOR= 0.3; 95% C.I: 0.1-0.5) were significant factors for preferring a person-centered care model. Educational status (AOR= 3.0; 95% C.I: 1.1-7.9) was associated with a preference for person-centered care among patients.Conclusion: The results of the study highlight that a majority of physicians prefer person-centered care, while patients prefer a mix of both patient- and physician-centered care. Strategies should be developed that will help physicians and patients to embrace person-centered care practices.
11
Assenova, Radost, Levena Kireva, and Gergana Foreva. "PRELIMINARY ASSESSMENT OF GPS' KNOWLEDGE AND ATTITUDE ABOUT PERSON CENTRED CARE." Knowledge International Journal 28, no. 2 (December 10, 2018): 567–70. http://dx.doi.org/10.35120/kij2802567a.
Full textAbstract:
Introduction: The European definition of WONCA of general practice introduces the determinant elements of person-centered care regarding four important, interrelated characteristics: continuity of care, patient "empowerment", patient-centred approach, and doctor-patient relationship. The application of person-centred care in general practice refers to the GP's ability to master the patient-centered approach when working with patients and their problems in the respective context; use the general practice consultation to develop an effective doctor–patient relationship, with respect to patient’s autonomy; communicate, set priorities and establish a partnership when solving health problems; provide long-lasting care tailored to the needs of the patient and coordinate overall patient care. This means that GPs are expected to develop their knowledge and skills to use this key competence. Aim: The aim of this study is to make a preliminary assessment of the knowledge and attitudes of general practitioners regarding person-centered care. Material and methods: The opinion of 54 GPs was investigated through an original questionnaire, including closed questions, with more than one answer. The study involved each GP who has agreed to take part in organised training in person-centered care. The results were processed through the SPSS 17.0 version using descriptive statistics. Results: The distribution of respondents according to their sex is predominantly female - 34 (62.9%). It was found that GPs investigated by us highly appreciate the patient's ability to take responsibility, noting that it is important for them to communicate and establish a partnership with the patient - 37 (68.5%). One third of the respondents 34 (62.9%) stated the need to use the GP consultation to establish an effective doctor-patient relationship. The adoption of the patient-centered approach at work is important to 24 (44.4%) GPs. Provision of long-term care has been considered by 19 (35,2%). From the possible benefits of implementing person-centered care, GPs have indicated achieving more effective health outcomes in the first place - 46 (85.2%). Conclusion: Family doctors are aware of the elements of person-centered care, but in order to validate and fully implement this competence model, targeted GP training is required.
12
Silsand, Line, Gro-Hilde Severinsen, and Gro Berntsen. "Preservation of Person-Centered Care Through Videoconferencing for Patient Follow-up During the COVID-19 Pandemic: Case Study of a Multidisciplinary Care Team." JMIR Formative Research 5, no. 3 (March 5, 2021): e25220. http://dx.doi.org/10.2196/25220.
Full textAbstract:
Background The Patient-Centered Team (PACT) focuses on the transitional phase between hospital and primary care for older patients in Northern Norway with complex and long-term needs. PACT emphasizes a person-centered care approach whereby the sharing of power and the patient’s response to “What matters to you?” drive care decisions. However, during the COVID-19 pandemic, videoconferencing was the only option for assessing, planning, coordinating, and performing treatment and care. Objective The aim of this study is to report the experience of the PACT multidisciplinary health care team in shifting rapidly from face-to-face care to using videoconferencing for clinical and collaborative services during the initial phase of the COVID-19 pandemic. This study explores how PACT managed to maintain person-centered care under these conditions. Methods This case study takes a qualitative approach based on four semistructured focus group interviews carried out in May and June 2020 with 19 PACT members and leaders. Results The case study illustrates that videoconferencing is a good solution for many persons with complex and long-term needs and generates new opportunities for interaction between patients and health care personnel. Persons with complex and long-term needs are a heterogeneous group, and for many patients with reduced cognitive capacity or hearing and vision impairment, the use of videoconferencing was challenging and required support from relatives or health care personnel. The study shows that using videoconferencing offered an opportunity to use health care personnel more efficiently, reduce travelling time for patients, and improve the information exchange between health care levels. This suggests that the integration of videoconferencing contributed to the preservation of the person-centered focus on care during the COVID-19 pandemic. There was an overall agreement in PACT that face-to-face care needed to be at the core of the person-centered care approach; the main use of videoconferencing was to support follow-up and coordination. Conclusions The COVID-19 pandemic and the rapid adoption of digital care have generated a unique opportunity to continue developing a health service to both preserve and improve the person-centered care approach for persons with complex and long-term needs. This creates demand for overall agreements, including guidelines and procedures for how and when to use videoconferencing to supplement face-to-face treatment and care. Implementing videoconferencing in clinical practice generates a need for systematic training and familiarization with the equipment and technology as well as for an extensive support organization. Videoconferencing can then contribute to better preparing health care services for future scenarios.
13
Pinho, Lara Guedes de, Manuel José Lopes, Tânia Correia, Francisco Sampaio, Helena Reis do Arco, Artur Mendes, Maria do Céu Marques, and César Fonseca. "Patient-Centered Care for Patients with Depression or Anxiety Disorder: An Integrative Review." Journal of Personalized Medicine 11, no. 8 (August 10, 2021): 776. http://dx.doi.org/10.3390/jpm11080776.
Full textAbstract:
People have specific and unique individual and contextual characteristics, so healthcare should increasingly opt for person-centered care models. Thus, this review aimed to identify and synthesize the indicators for the care process of the person with depression and/or anxiety disorders, based on patient-centered care, going through the stages of diagnostic assessment and care planning, including intervention. An integrative literature review with research in seven scientific databases and a narrative analysis were carried out. Twenty articles were included, with indicators for diagnostic evaluation and care/intervention planning being extracted. Care planning focused on people with depression and/or anxiety disorder must be individualized, dynamic, flexible, andparticipatory. It must respond to the specific needs of the person, contemplating the identification of problems, the establishment of individual objectives, shared decision making, information and education, systematic feedback, and case management, and it should meet the patient’s preferences and satisfaction with care and involve the family and therapeutic management in care. The existence of comorbidities reinforces the importance of flexible and individualized care planning in order to respond to the specific health conditions of each person.
14
Puchalski, Christina M. "Integrating spirituality into patient care: an essential element of person‑centered care." Polish Archives of Internal Medicine 123, no. 9 (September 30, 2013): 491–97. http://dx.doi.org/10.20452/pamw.1893.
Full text
15
Fuller, Jonathan, and Ross Upshur. "Logos, ethos and pathos in balance - the care of the patient and the soul of the clinic: person-centered medicine as an emergent model of modern clinical practice." European Journal for Person Centered Healthcare 2, no. 1 (February 10, 2014): 22. http://dx.doi.org/10.5750/ejpch.v2i1.690.
Full textAbstract:
In a recent discussion paper, Miles and Mezzich described person-centered medicine (PCM) as a model of modern medical practice that has emerged from the intellectual currents of the past century. In this commentary, we consider what PCM has to offer as a model for the clinical encounter and for clinical judgement. The doctor-patient relationship is an important thread in a person-centered medicine that visualizes the clinical encounter as a dialogue between 2 persons. Person-centered clinical judgement is concerned with the individual clinical case and as such is integrative, context-sensitive, interpretive and circumstantial. A care model incorporating these elements of dialogue and individualized judgement is ideal for older patients, for whom population-level guidelines are often inapplicable, who are often dependent on other persons and who are heterogeneous in their needs. As such a model, PCM is the dialectic synthesis arising out of decades of conflict between patient-centered medicine, and its antithesis, evidence-based medicine. If PCM is to progress from a prescriptive model to a descriptive model of modern medicine, its proponents must claim its philosophical commitments, keeping in mind that a model is fundamentally instrumental and not necessarily always literal. Medicine should look to a care model that is person-centered in the ways described here and that keeps the rational, virtuous and humane elements of practice in balance.
16
Annoni, Marco, and Charlotte Blease. "Persons over models: shared decision-making for person-centered medicine." European Journal for Person Centered Healthcare 8, no. 3 (October 21, 2020): 355. http://dx.doi.org/10.5750/ejpch.v8i3.1864.
Full textAbstract:
In the last decades “shared decision-making” has been hailed as the new paradigm for the doctor-patient relationship. However, different models of clinical decision-making appear to be compatible with the core tenets of “shared decision-making”. Reconsidering Emanuel and Emanuel (1992) classic analysis, in this paper we distinguish five possible models of clinical decision-making: (i) the ‘instrumental’; (ii) the ‘paternalistic’; (iii) the ‘informative’; (iv) the ‘interpretative’; and (v) the ‘persuasive’ models. For each model we present its fundamental assumptions as well as the role that patients and doctors are expected to play with respect to value-laden dilemmas. We argue that, with the exception of the instrumental model, each of the other four models may be appropriate depending on the circumstances. We conclude by highlighting the importance of structuring clinical care around actual persons - and their unique lives and philosophies - rather than around abstract frameworks.
17
Chattu, VijayKumar, and Raman Kumar. "What is in the name? Understanding terminologies of patient-centered, person-centered, and patient-directed care!" Journal of Family Medicine and Primary Care 7, no. 3 (2018): 487. http://dx.doi.org/10.4103/jfmpc.jfmpc_61_18.
Full text
18
Munthe, Christian, Leila El-Alti, Thomas Hartvigsson, and Niels Nijsingh. "Disputing with patients in person-centered care." Journal of Argumentation in Context 7, no. 2 (October 12, 2018): 231–44. http://dx.doi.org/10.1075/jaic.18022.mun.
Full textAbstract:
Abstract This article explores ethical aspects of using open argumentation in person-centered care (PCC), where health professionals (HPs) openly criticize or contradict factual claims, assumptions, preferences, or value commitments of patients. We argue that such disputing may be claimed to have an important place in advanced versions of PCC, but that it actualizes important clinical ethical aspects of doing such disputation well. This may prompt caution in the implementation of PCC, but also inspire educational and organizational reform. We also probe the notion of openly disputing with patients when PCC is applied in less standard settings (where it is nevertheless advocated), using the cases of children, psychiatry, and public health interventions, such as antibiotic stewardship programs, as examples. These contexts offer new reasons for why PCC may or should include open disputing with patients, but also introduce new ethical complications. Some of these may transform either to arguments against PCC implementation in these areas, or to a more open view of the extent a HP may seek to dominate patients in a PCC setting. We are especially skeptical of the meaningfulness of applying advanced PCC in areas of psychiatry with high levels of compulsory elements, such as forensic psychiatric detention.
19
Hooper, Gwendolyn L. "Person-Centered Care for Patients with Pessaries." Nursing Clinics of North America 53, no. 2 (June 2018): 289–301. http://dx.doi.org/10.1016/j.cnur.2018.01.006.
Full text
20
Gethin, Georgina, Sebastian Probst, Jan Stryja, Natalia Christiansen, and Patricia Price. "Evidence for person-centred care in chronic wound care: A systematic review and recommendations for practice." Journal of Wound Care 29, Sup9b (September 1, 2020): S1—S22. http://dx.doi.org/10.12968/jowc.2020.29.sup9b.s1.
Full textAbstract:
Background Chronic wounds affect an estimated 2.21 per 1000 population. They are a significant source of morbidity and affect individuals physically, psychologically, socially and financially. Person-centered care is one approach to improve patient outcomes in wound care as it values patients' perspectives, beliefs and autonomy and considers the person as a whole within the cultural context in which care is provided. Aim We aimed to review the evidence on the use of person-centered care (PCC) in chronic wound care management and provide recommendations for practice and future research. Method Using a systematic review methodology, we searched six databases for full-text papers from 2009–2019 published in peer-reviewed journals with no limits on language. Results Eighteen articles on studies involving 3149 patients from nine countries were identified. Studies were conducted under three broad intervention categories: healthcare professional education (n=1); patient education (n=14) and telemedicine (n=3). Studies were equally focused on prevention and treatment of chronic wounds. Significant improvements were reported in patient knowledge, pain and self-care behaviours. Only two studies evaluated the impact on wound healing and one study estimated the cost of implementing person-centered care. Conclusions The evidence base to support PCC in wound management is developing and based on our review has shown improved outcomes in areas of pressure ulcer prevention, patient satisfaction, patient knowledge and quality of life, but clinical outcomes such as wound healing were less well explored. Further research with more objective outcome measures are required.
21
Lydahl, Doris. "'It is not a pill'." Nordic Journal of Science and Technology Studies 7, no. 2 (December 18, 2019): 4–14. http://dx.doi.org/10.5324/njsts.v7i2.3067.
Full textAbstract:
Person-centered care seeks to improve health care by recognizing the individual patient’s unique experience and by acknowledging the patient as an active and responsible participant in their own care. It is also conceptualized as a reaction to evidence-based medicine, opposing its alleged reductionist and exclusionary tendencies.
Therefore, person-centered care is often conceived as different from evidence-based medicine, taking into account the combined biological, psychological and social identity of the patient which evidence-based medicine reduces to a set of signs and symptoms. In this article, I analyze a paradoxical case in which a randomized controlled trial was used to evaluate person-centered care. Drawing on five interviews with researchers involved in this trial and on research documents and articles, I examine the entanglement of person-centered-care and evidence-based medicine from an STS perspective of standardization, uncertainties and promises.
I first discuss the uncertainties and promises that emerge when trying to follow a research protocol. Second, the article illustrates the uncertainties and possibilities in knowing exactly what one measures. Finally, the article discuss the creation of a standard person. The article concludes that while the relation between person-centered care and evidence-based medicine is more complex than we might assume, the randomized controlled trial also transformed person-centered care in the process of evaluating it.
22
Basara, Latinka, T. Jalucic Gluncic, O. Maletic, D. Pelicaric, S. Popovic Grle, M. Samarzija, and M. Jakopovic. "Person-centered approach in pulmonary rehabilitation." International Journal of Person Centered Medicine 4, no. 2 (January 19, 2015): 126–30. http://dx.doi.org/10.5750/ijpcm.v4i2.430.
Full textAbstract:
Background. Holistic scope in treating persons with chronic respiratory diseases is one of the main features of pulmonary rehabilitation program (PRP) at Zagreb University. Interventions are provided by a team made of physicians and other health care professionals - physiotherapists, respiratory therapists, nurses, psychologists, occupational therapists, social workers, behavioral specialists, among others. The program itself is tailored to attend to each person's specific needs through careful interdisciplinary examination and treatment planning, establishing commom ground to address disease severity, respiratory symptoms, comorbidities, psychological manifestations and specific limitations a person has in everyday activities. The focus of PRP is the whole person rather than just a person's disease.Aim. To show the impact of PRP's person-centered approach on patient's quality of life (QoL), anxiety, depression and stress levels.Method. Questionnaires designed to measure quality of life (single question scale), anxiety, depression and stress (DASS21) were administred to 54 patients at the beginning and at the end of a three-week pulmonary rehabilitation program. Each patient underwent an individualized program of education, respiratory exercises, nutrition consultation, and psychosocial/behavioral support and intervention.Results. Results showed significant improvement in all measured parameters – higher overall QoL (p<0.01), and lowered anxiety (p< 0.01), depression (p<0.01) and stress levels (p< 0.01).Conclusions. Pulmonary rehabilitation with a person-centered approach as one of its main features appears to improve quality of life and reduce levels of anxiety, depression and stress in persons with chronic respiratory diseases.
23
Price, Amy, Rakesh Biswas, and Akshay Anand. "Person-centered healthcare and integrated public health." Integrative Medicine Case Reports 1, no. 1 (2020): 3. http://dx.doi.org/10.38205/imcr.010103.
Full textAbstract:
The public brings to the table valuable perspectives learned from living with the health problems research works to solve. Patients as research partners in the clinic, at home, and in the lab can provide the fine details for a successful implementation that differentiate a research finding that sits expensive and unused from primary care that improves quality of life. Life experiences can reveal practical wisdom for prioritizing the health questions that matter to patients . It is possible that contributions by patient research partners may go unreported, and this can be compounded by role confusion where the terms “public involvement”, “community engagement”, “citizen support”, and “quantified self-groups” are used interchangeably . We know from a multiplicity of research that priorities recorded by researchers on behalf of patients may not be the same as those that are important to patients.
24
Ottwell, Ryan, Benjamin Heigle, Arjun K. Reddy, Nicholas Sajjadi, Alexis Wirtz, Courtney Cook, Hannah Howard, Micah Hartwell, and Matt Vassar. "The Use of Person-Centered Language in Medical Research Journals Focusing on Psoriasis: Cross-sectional Analysis." JMIR Dermatology 4, no. 1 (June 11, 2021): e28415. http://dx.doi.org/10.2196/28415.
Full textAbstract:
Background Person-centered language places a person’s identity before any disability or medical condition they may have. Using person-centered language reduces stigma and improves the patient-physician relationship, potentially optimizing health outcomes. Patients with psoriasis often feel stigmatized due to their chronic skin condition. Objective We seek to evaluate the use of person-centered language in psoriasis literature and to explore whether certain article characteristics were associated with non–person-centered language. Methods We performed a systematic search on PubMed for recently published articles in journals that regularly publish psoriasis studies. After article reduction procedures, randomization, and screening, we reached our target sample of 400 articles. The following non–person-centered language terms were extracted from each article: “Psoriasis Patient,” “Psoriasis subject,” “Affected with,” “Sufferer,” “Suffering from,” “Burdened with,” “Afflicted with,” and “Problems with.” Screening and data extraction occurred in a masked duplicate fashion. Results Of the 400 included articles, 272 (68%) were not adherent to person-centered language guidelines according to the American Medical Association Manual of Style. The most frequent non–person-centered language term was “Psoriasis Patient,” found in 174 (43.5%) articles. The stigmatizing language was associated with the type of article and funding status, with original investigations and funded studies having higher rates of stigmatizing language. Conclusions Articles about psoriasis commonly use non–person-centered language terms. It is important to shift away from using stigmatizing language about patients with psoriasis to avoid potential untoward influences. We recommend using “patients with psoriasis” or “patient living with psoriasis” to emphasize the importance of person-centered care.
25
D'Arro, Carmelina F. "A Model for the Formation of the Person-centered Dental Care Provider." International Journal of Whole Person Care 7, no. 1 (January 15, 2020): 48. http://dx.doi.org/10.26443/ijwpc.v7i1.235.
Full textAbstract:
Dental education continues to emphasize scientific knowledge and technical skills, yet research reveals that what matters most to patients is how we communicate and relate to them. How do we teach trainees communication and relational skills and continue to cultivate these skills throughout clinical practice? A comprehensive model for the formation of the patient-centered dental provider is proposed and is represented by the metaphor of a tree. The model is the fruit of interviews with dental patients, observation of dental professionals, and review of literature on patient-centered care, patient satisfaction and malpractice trends. Six core relational skills include: Introduce, Solicit, Listen, Empathize, Explain, and Power of the patient (ISLEEP) and are represented by the branches of the tree. Discerning how to respond to a patient, how to apply the ISLEEP skills, moment by moment, requires being present with a kind intention, the definition of mindfulness. Mindfulness practices, represented by water, cultivate the roots of the tree which are the four aspects of mindfulness: Equanimity, Attentiveness, Self-awareness, and Empathy (E.A.S.E). Rooted in mindfulness, the dental care provider responds with intelligent and kind action, or whole person care, enriching both patient and provider.
26
Van Dulmen, Sandra. "Person Centered Communication in Healthcare: A Matter of Reaching Out." International Journal of Person Centered Medicine 6, no. 1 (April 26, 2016): 30–31. http://dx.doi.org/10.5750/ijpcm.v6i1.565.
Full textAbstract:
Treating patients as persons, by considering, a.o., their individual level of understanding, self-management skills, concerns and care preferences, is only logical, at least from an ethical point of view. Yet, in medical practice, such an approach does not come easy, as many other obligations and formalities have to be taken care of which distract attention from the person behind the patient. As a consequence, many patients continue to experience barriers while communicating with their healthcare provider [1]. For this reason, numerous interventions have been developed and implemented to either increase healthcare professionals’ attitudes and communication skills to really engage with a patient, or to strengthen a patient's communication skills in order to be heard and understood. For patients with malignant lymphoma, for example, a tailored online intervention has been developed to increase their participation [2], and medical students learn to listen by using open questions in soliciting patient problems [3]. The three papers that together form a special section on communication in healthcare in this issue of the IJPCM each describe a different study aimed to enhance a patient's personhood.
27
Appleyard, James. "Narratives in Clinical Practice: The essence of person centered care?" International Journal of Person Centered Medicine 3, no. 2 (December 12, 2013): 123–26. http://dx.doi.org/10.5750/ijpcm.v3i2.403.
Full textAbstract:
From earliest times listening to a person’s story has been the essence of the patient-physician consultation. Evidence from the literature suggests that it is the core clinical skills of communication through questioning, delineating, interpreting, explaining and discerning meaning that provide a way of bringing together the very different perspectives of patients and health professionals.These narrative skills facilitate an awareness of both health and disease and take into consideration the biological, social psychological, spiritual and pathophysiological dimensions. In this context the science of objective measurements can be successfully integrated with the art of clinical experience and judgment.
28
Mezzich, Juan E., Michel Botbol, and Ihsan M. Salloum. "Mental Health in Person Centered Medicine." International Journal of Person Centered Medicine 5, no. 1 (June 25, 2015): 1–8. http://dx.doi.org/10.5750/ijpcm.v5i1.510.
Full textAbstract:
Person Centered Medicine is fundamentally aimed at promoting the health and well-being of the totality of the person. Here the person is the key concept as the center and goal of health care. An important implication is that the focus of contemporary medicine should be shifted from disease to patient to person. In the clinical arena, Iona Heath has spoken critically of “promotion of disease and distortion of medicine” and concerning public health, WHO’s definition of health as “a state of complete physical, emotional and social wellbeing and not merely the absence of disease” is compelling
29
Blake, Peter G., and Edwina A. Brown. "Person-centered peritoneal dialysis prescription and the role of shared decision-making." Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis 40, no. 3 (January 21, 2020): 302–9. http://dx.doi.org/10.1177/0896860819893803.
Full textAbstract:
Person-centered care has become a dominant paradigm in modern health care. It needs to be applied to people with end-stage kidney disease considering the initiation of dialysis and to peritoneal dialysis (PD) prescription and care delivery. It is relevant to their decisions about goals of care, transplantation, palliative care, and discontinuation of dialysis. It is also relevant to decisions about how PD is delivered, including options such as incremental PD. Shared decision-making is the essence of this process and needs to become a standard principle of care. It requires engagement, education, and empowerment of patients. Patient-reported outcomes and patient-reported experience are also central to person-centered care in PD.
30
Westgård, Theresa, Katarina Wilhelmson, Synneve Dahlin-Ivanoff, and Isabelle Ottenvall Hammar. "Feeling Respected as a Person: a Qualitative Analysis of Frail Older People’s Experiences on an Acute Geriatric Ward Practicing a Comprehensive Geriatric Assessment." Geriatrics 4, no. 1 (January 25, 2019): 16. http://dx.doi.org/10.3390/geriatrics4010016.
Full textAbstract:
Comprehensive geriatric assessment (CGA) practices multidimensional, interdisciplinary, and diagnostic processes as a means to identify care needs, plan care, and improve outcomes of frail older people. Conventional content analysis was used to analyze frail older people’s experiences of receiving CGA. Through a secondary analysis, interviews and transcripts were revisited in an attempt to discover the meaning behind the participants’ implied, ambiguous, and verbalized thoughts that were not illuminated in the primary study. Feeling “respected as a person” is the phenomenon participants described on a CGA acute geriatric ward, achieved by having a reciprocal relationship with the ward staff, enabling their participation in decisions when engaged in communication and understanding. However, when a person was too ill to participate, then care was person-supportive care. CGA, when delivered by staff practicing person-centered care, can keep the frail older person in focus despite them being a patient. If a person-centered care approach does not work because the person is too ill, then person-supportive care is delivered. However, when staff and/or organizational practices do not implement a person-centered care approach, this can hinder patients feeling “respected as a person”.
31
Sukhanova, Ekaterina. "Introduction to Art and Literature as Components of Person-Centered Care." International Journal of Person Centered Medicine 7, no. 3 (July 31, 2018): 165–69. http://dx.doi.org/10.5750/ijpcm.v7i3.646.
Full textAbstract:
The article brings the attention of mental health professionals to the theoretical framework underpinning the contemporary understanding of the dynamics of psychiatric art. Using the semiotics approach to art production and perception, the article makes the connection between the dialogical mechanisms of art and the potential uses of art to counteract stigma, including self-stigmatization. Creative works by patients have long been acknowledged a key source of information in the clinical diagnostic process. Furthermore, because all artistic activity is a communicative act, working with patient art aids the clinician to gain a better understanding of the preserved aspects of a patients’ personality, beyond the pathological syndromes, and build a better rapport, resulting in more successful therapeutic approaches. Gaining an insight into patient art allows the clinician to be more effective in planning specific medical and social rehabilitation strategies. At the community level, outsider art is a powerful tool in anti-stigma campaigns because the dialogic potential inherent in art is conducive to stopping the “vicious cycle” of stigmatization.
32
Kim, Myoungsuk. "Factors Influencing Nursing Students’ Person-Centered Care." Medicina 56, no. 8 (August 16, 2020): 414. http://dx.doi.org/10.3390/medicina56080414.
Full textAbstract:
Background and objectives: Numerous theoretical and clinical advances have been made through research on person-centered care (PCC). Nevertheless, care is still focused on the medical aspects of treating patients’ diseases in Korea, and thus providing individualized PCC to patients tends to be neglected. This study aimed to investigate the relationship between PCC competence, empathic competence, interpersonal competence, and perceived stress to identify the factors that impact PCC competence for developing programs that foster PCC competence in nursing students. Materials and Methods: Data were collected from 149 participants, which comprised third- and fourth-year nursing students from two universities in Korea who have experienced clinical training. PCC competence, empathic competence, interpersonal competence, and perceived stress were measured using structured self-reported questionnaires. Results: PCC competence was positively correlated with empathic competence (p < 0.001) and interpersonal competence (p < 0.001), and negatively correlated with perceived stress (p < 0.001). Empathic competence, perceived stress, interpersonal competence, and satisfaction with the participants’ nursing major were identified as factors that influenced the PCC competence (adjusted R2 = 0.570). Conclusions: To enhance PCC competence in nursing students, empathic competence, interpersonal competence, and satisfaction with the participants’ nursing major need to be improved and perceived stress needs to be reduced.
33
Jousset, David. "An Ethical Analysis of Person Centered Psychiatry." International Journal of Person Centered Medicine 4, no. 4 (May 20, 2015): 228–33. http://dx.doi.org/10.5750/ijpcm.v4i4.483.
Full textAbstract:
Dealing with Person Centered Psychiatry (PCP) allows the meta-ethical foundations for person-centered medicine to be questioned. First, we will analyze the ethics inherent to PCP, arguing that they are a necessary break with some of the risks associated with the current development of ‘mental health medicine’, and a significant shift from the major contemporary ethical theories that moves away from a subject-centered approach to caring towards an interpersonal one. Then, we will address the PCP ethics that still need to be formulated. Addressing ethical requirements that have been enriched by practice leads to problematizing the main features of PCP: the integrative approach, dialogue with patients, patient participation, humanism and personalism as philosophical foundations, and the epistemological and ethical functioning of the concept of ‘person’. The theoretical proximity and discrepancy with value-based psychiatry will also be specifically discussed. Finally, this paper argues that PCP needs to go beyond the simple reversal of an illness-centred approach to a patient-centred approach in order to achieve an interpersonal relationship approach, which is the core principle of health care as a ‘remediation’ of humanity.
34
Kuntsevska, A. "MODELS OF SOCIAL RECOVERY WITHIN THE CONTEXT OF PERSONAL-ORIENTED PARADIGM." Bulletin of Taras Shevchenko National University of Kyiv. Social work, no. 5 (2019): 47–51. http://dx.doi.org/10.17721/2616-7786.2019/5-1/10.
Full textAbstract:
This paper analyzes main features of social recovery models, developed within the frameworks of Person-centered paradigm. Person- centeredness is an increasingly common public health and social care concept, that is used to describe a standard of care that ensures that the patient / client is at the center of care delivery. There is no single definition of person-centered care, rather we can find such terms as patient- centered, family-centered, user-centered, individualized. But irrespective of the terms used, a lot of research has looked at what matters to patients and how to provide personalized care to ensure that people have a good experience. Person-centered recovery depends on a number of aspects, in particular: the values of people and placing people at the center of care, taking into account the desires of people and the needs they have chosen, ensuring that people are emotionally comfortable and secure with family and friends, ensuring that people have access to the appropriate care they need, when and where they need to ensure that people receive all the care they need. Main principles of person-centered approach are: recognizing dignity, giving respect and compassion to service users and providers; collaboration with the individual, their family and staff in care planning and assessment; enabling systems and services to help people recognize and build on their own strengths, preferences and objectives in order to realize their full potential. One of the strongest and most methodologically grounded models built in the person-oriented framework is the Comprehensive Rehabilitation Approach (CARe), developed by Dirk den Hollander and Jean Pierre Wilken. The model is based on psychological rehabilitation, recovery and empowerment principles, and is intended to support individuals in their personal development. CARe works with the client in three domains: meeting quality of life wishes and objectives; overcoming insecurity and increasing strength; gaining access to ideal environments and optimizing the quality of life of living environments and social networks.
35
Jakobsson, Sofie, Daniel S. Olsson, Eva Andersson, Tobias Hallén, David Krabbe, Ann-Charlotte Olofsson, Oskar Ragnarsson, Thomas Skoglund, Gudmundur Johannsson, and Eva Jakobsson Ung. "Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study." JMIR Research Protocols 9, no. 7 (July 21, 2020): e17697. http://dx.doi.org/10.2196/17697.
Full textAbstract:
Background Patients with pituitary tumors often live with lifelong consequences of their disease. Treatment options include surgery, radiotherapy, and medical therapy. Symptoms associated with the tumor or its treatment affect several areas of life. Patients need to adhere to long-term contact with both specialist and general health care providers due to the disease, complex treatments, and associated morbidity. The first year after pituitary surgery constitutes an important time period, with medical evaluations after surgery and decisions on hormonal substitution. The development and evaluation of extended patient support during this time are limited. Objective The aim of this study is to evaluate whether support within a person-centered care practice increases wellbeing for patients with pituitary tumors. Our main hypothesis is that the extended support will result in increased psychological wellbeing compared with the support given within standard of care. Secondary objectives are to evaluate whether the extended support, compared with standard care, will result in (1) better health status, (2) less fatigue, (3) higher satisfaction with care, (4) higher self-efficacy, (5) increased person-centered content in care documentation, and (6) sustained patient safety. Methods Within a quasiexperimental design, patients diagnosed with a pituitary tumor planned for neurosurgery are consecutively included in a pretest-posttest study performed at a specialist endocrine clinic. The control group receives standard of care after surgery, and the interventional group receives structured patient support for 1 year after surgery based on person-centeredness covering self-management support, accessibility, and continuity. A total of 90 patients are targeted for each group. Results Recruitment into the control group was performed between Q3 2015 and Q4 2017. Recruitment into the intervention group started in Q4 2017 and is ongoing until Q4 2020. The study is conducted according to the Declaration of Helsinki, and the protocol has received approval from a regional ethical review board. Conclusions This study entails an extensive intervention constructed in collaboration between clinicians, patients, and researchers that acknowledges accessibility, continuity, and self-management support within person-centeredness. The study has the potential to compare standard care to person-centered practice adapted specifically for patients with pituitary tumors and evaluated with a combination of patient-reported outcomes and patient-reported experience measures. Following the results, the person-centered practice may also become a useful model to further develop and explore person-centered care for patients with other rare, lifelong conditions. Trial Registration Researchweb.org. https://www.researchweb.org/is/sverige/project/161671 International Registered Report Identifier (IRRID) DERR1-10.2196/17697
36
Kildea, John, Tarek Hijal, and Laurie Hendren. "Development of a person-centered patient portal in oncology using stakeholder co-design." Journal of Clinical Oncology 36, no. 30_suppl (October 20, 2018): 221. http://dx.doi.org/10.1200/jco.2018.36.30_suppl.221.
Full textAbstract:
221 Background: Patient portals are software products that provide care recipients (patients) with access to some or all of their personal health information (PHI) within a healthcare institution’s electronic medical record (EMR). Most patient portals are just that–windows into an EMR. However, in today’s connected world, a patient portal can offer much more than just access to PHI. By exploiting modern technology and by recognizing that care recipients are people with complex needs that extend beyond just the delivery of care, patient portals can be person-centered. Such person-centered needs include: the ability to plan ahead and know one’s position in a waiting list, to feel in control of one’s own care, to understand one’s treatment options, and to share in all decision-making about one’s care. Methods: We used stakeholder co-design, involving care recipients, care providers (clinicians) and technical experts at all levels, to design and develop a person-centered patient portal from within the healthcare system. Results: Our mobile-friendly patient portal, known as Opal (opalmedapps.com), contains the following: One-stop multi-speciality and multi-institutional operation; Appointment schedule with personalized appointment preparation guidelines; Appointment check-in and waiting room management tools; Monitoring of step-by-step radiotherapy treatment planning; Access to PHI contextualized with explanatory information; Access to personalized educational materials; Patient-reported outcomes questionnaires with response visualizations; An automated rules-based system to minimize clinician workload; Triggered notifications to alert patients and clinicians to actionable events. Conclusions: Opal is currently in beta release involving a small number of oncology patients at our centre who are providing feedback about its use and usefulness. Their initial feedback is very positive and enthusiastic. A full pilot study is starting by July 2018.
37
Madden, Paul. "Patient-centered care at Joslin: Reflections of a mirror." Journal of Social Health and Diabetes 02, no. 01 (June 2014): 045–47. http://dx.doi.org/10.4103/2321-0656.120276.
Full textAbstract:
AbstractThis personal communication describes the practical aspects of patient-centered care (PCC), as viewed by a person with diabetes, who is also a diabetes educator. He describes his encounters with two leading diabetologists, who practiced the real essence of PCC. The author also explains the impact these patient-centered doctors had on him, and how it has shaped his personal as well as professional life, over the past half century.
38
Håkansson Eklund, Jakob, Inger K. Holmström, Tomas Kumlin, Elenor Kaminsky, Karin Skoglund, Jessica Höglander, Annelie J. Sundler, Emelie Condén, and Martina Summer Meranius. "“Same same or different?” A review of reviews of person-centered and patient-centered care." Patient Education and Counseling 102, no. 1 (January 2019): 3–11. http://dx.doi.org/10.1016/j.pec.2018.08.029.
Full text
39
Dorough, Adeline, Derek Forfang, Shannon L. Murphy, James W. Mold, Abhijit V. Kshirsagar, Darren A. DeWalt, and Jennifer E. Flythe. "Development of a person-centered interdisciplinary plan-of-care program for dialysis." Nephrology Dialysis Transplantation 35, no. 8 (February 21, 2020): 1426–35. http://dx.doi.org/10.1093/ndt/gfaa018.
Full textAbstract:
Abstract Background Dialysis care often focuses on outcomes that are of lesser importance to patients than to clinicians. There is growing international interest in individualizing care based on patient priorities, but evidence-based approaches are lacking. The objective of this study was to develop a person-centered dialysis care planning program. To achieve this objective we performed qualitative interviews, responsively developed a novel care planning program and then assessed program content and burden. Methods We conducted 25 concept elicitation interviews with US hemodialysis patients, care partners and care providers, using thematic analysis to analyze transcripts. Interview findings and interdisciplinary stakeholder panel input informed the development of a new care planning program, My Dialysis Plan. We then conducted 19 cognitive debriefing interviews with patients, care partners and care providers to assess the program’s content and face validities, comprehensibility and burden. Results We identified five themes in concept elicitation interviews: feeling boxed in by the system, navigating dual lives, acknowledging an evolving identity, respecting the individual as a whole person and increasing individualization to enhance care. We then developed a person-centered care planning program and supporting materials that underwent 32 stakeholder-informed iterations. Data from subsequent cognitive interviews led to program revisions intended to improve contextualization and understanding, decrease burden and facilitate implementation. Conclusions My Dialysis Plan is a content-valid, person-centered dialysis care planning program that aims to promote care individualization. Investigation of the program’s capacity to improve patient experiences and outcomes is needed.
40
Sullivan, Jennifer L., Dana Beth Weinburg, Stefanie Gidmark, Ryann L. Engle, Victoria A. Parker, and Denise A. Tyler. "Collaborative capacity and patient-centered care in the Veterans’ Health Administration Community Living Centers." International Journal of Care Coordination 22, no. 2 (June 2019): 90–99. http://dx.doi.org/10.1177/2053434519858028.
Full textAbstract:
Introduction Previous research in acute care settings has shown that collaborative capacity, defined as the way providers collaborate as equal team members, can be improved by the ways in which an organization supports its staff and teams. This observational cross-sectional study examines the association between collaborative capacity and supportive organizational context, supervisory support, and person-centered care in nursing homes to determine if similar relationships exist. Methods We adapted the Care Coordination Survey for nursing homes and administered it to clinical staff in 20 VA Community Living Centers. We used random effects models to examine the associations between supportive organizational context, supervisory support, and person-centered care with collaborative capacity outcomes including quality of staff interactions, task independence, and collaborative influence. Results A total of 723 Community Living Center clinical staff participated in the Care Coordination Survey resulting in a response rate of 29%. We found that teamwork and collaboration—measured as task interdependence, quality of interactions and collaborative influence—did not differ significantly between Community Living Centers but did differ significantly across occupational groups. Moreover, staff members’ experiences of teamwork and collaboration were positively associated with supportive organizational context and person-centered care. Discussion Our findings suggest that elements of organizational context are important to facilitating collaborative capacity. Additionally, investing in staffing, rewards, and person-centered care may improve teamwork.
41
SULLIVAN, MICHELE G. "Person-Centered Care Reduced Agitation in Dementia Patients." Caring for the Ages 10, no. 9 (September 2009): 18. http://dx.doi.org/10.1016/s1526-4114(09)60243-2.
Full text
42
Metersky, Kateryna, and Jasna K. Schwind. "Interprofessional Care: Patient Experience Stories." International Journal of Person Centered Medicine 5, no. 2 (November 9, 2015): 78–87. http://dx.doi.org/10.5750/ijpcm.v5i2.528.
Full textAbstract:
Interprofessional care (IPC) has been discussed in the literature as having the ability to lower health care expenditures, decrease wait times, enhance patient health outcomes and increase healthcare provider (HCP) satisfaction with care-delivery. To date, limited research has been conducted on patients’ experiences of receiving IPC. Using Connelly and Clandinin’s Narrative Inquiry qualitative research approach, three participants were invited to engage in a modified version of Schwind’s Narrative Reflective Process, a creative self-expression tool that utilizes storytelling, metaphor selection, drawing, creative writing and reflective dialogue. Participants shared their stories, and selected and drew metaphors that best represent for them their experiences of receiving IPC. They were also asked whether or not they believe person-centered care was delivered to them. Collected stories were analyzed as per the three common places of Narrative Inquiry: temporality, sociality and place, as well as the three levels of justification: personal, practical and social. Told stories were examined through the theoretical lens of the National Canadian Interprofessional Competency Framework. Three narrative threads emerged within this study: communication, interprofessional team composition, and patient within interprofessional team. The findings appear helpful to inform educators, HCP, policy makers, and researchers, as they strive to enhance person-centered interprofessional care practice. For patients, a clear opportunity for their voices to be heard has been outlined.
43
Lavoie, Mireille, Danielle Blondeau, and Isabelle Martineau. "The integration of a person-centered approach in palliative care." Palliative and Supportive Care 11, no. 6 (February 7, 2013): 453–64. http://dx.doi.org/10.1017/s1478951512000855.
Full textAbstract:
AbstractObjective:The philosophy underlying palliative care places the respect of patients and their autonomy at the heart of clinical practice. A study was conducted at a palliative care facility to document changes that occurred after the integration of a person-centered approach focusing on human freedom (which is linked to autonomy): the humanbecoming school of thought. It aimed to describe changes observed in the beliefs and practices of healthcare providers, the concept and respect of autonomy by healthcare providers, care and respect of autonomy experienced by patients' relatives, and consideration of patients' wishes through their documentation.Method:The method adopted consisted of a pre-project – process – post-project descriptive qualitative design and was inspired by teaching-learning and mentoring models. Data were collected from 51 healthcare providers and 10 relatives through semistructured interviews and from the medical records of 30 patients during the pre- and post-project phases. They were analyzed and compared at the end of the study. The process phase consisted of offering training sessions and mentoring, encouraging the involvement of healthcare providers, and cocreating integration and care tools.Results:While the analysis exposed some discrepancies with the language of the approach and differences between nurses and other healthcare providers, it revealed, above all, similarities in the changes observed between the different sources of data. The focus moved from being task-centered to being person-centered; the affirmation of the priority of respecting patients' choices, desires, and needs; a presence shifting from being available to true listening; the affirmation of following the ever-changing rhythm of the patient; and a notion of respect of autonomy now including the other.Significance of results:In line with the philosophy of palliative care, the project demonstrated that the integration of the humanbecoming approach can result in changes that contribute to the development of a more person-centered practice.
44
Schellinger, Sandra Ellen, Eric Worden Anderson, Monica Schmitz Frazer, and Cindy Lynn Cain. "Patient Self-Defined Goals: Essentials of Person-Centered Care for Serious Illness." American Journal of Hospice and Palliative Medicine® 35, no. 1 (March 23, 2017): 159–65. http://dx.doi.org/10.1177/1049909117699600.
Full textAbstract:
This research, a descriptive qualitative analysis of self-defined serious illness goals, expands the knowledge of what goals are important beyond the physical—making existing disease-specific guidelines more holistic. Integration of goals of care discussions and documentation is standard for quality palliative care but not consistently executed into general and specialty practice. Over 14 months, lay health-care workers (care guides) provided monthly supportive visits for 160 patients with advanced heart failure, cancer, and dementia expected to die in 2 to 3 years. Care guides explored what was most important to patients and documented their self-defined goals on a medical record flow sheet. Using definitions of an expanded set of whole-person domains adapted from the National Consensus Project (NCP) Clinical Practice Guidelines for Quality Palliative Care, 999 goals and their associated plans were deductively coded and examined. Four themes were identified—medical, nonmedical, multiple, and global. Forty percent of goals were coded into the medical domain; 40% were coded to nonmedical domains—social (9%), ethical (7%), family (6%), financial/legal (5%), psychological (5%), housing (3%), legacy/bereavement (3%), spiritual (1%), and end-of-life care (1%). Sixteen percent of the goals were complex and reflected a mix of medical and nonmedical domains, “multiple” goals. The remaining goals (4%) were too global to attribute to an NCP domain. Self-defined serious illness goals express experiences beyond physical health and extend into all aspects of whole person. It is feasible to elicit and record serious illness goals. This approach to goals can support meaningful person-centered care, decision-making, and planning that accords with individual preferences of late life.
45
Alcocer Alkureishi, Maria, Gena Lenti, Zi-Yi Choo, Jason Castaneda, George Weyer, Julie Oyler, and Wei Wei Lee. "Teaching Telemedicine: The Next Frontier for Medical Educators." JMIR Medical Education 7, no. 2 (April 29, 2021): e29099. http://dx.doi.org/10.2196/29099.
Full textAbstract:
The COVID-19 pandemic has pushed telemedicine to the forefront of health care delivery, and for many clinicians, virtual visits are the new normal. Although telemedicine has allowed clinicians to safely care for patients from a distance during the current pandemic, its rapid adoption has outpaced clinician training and development of best practices. Additionally, telemedicine has pulled trainees into a new virtual education environment that finds them oftentimes physically separated from their preceptors. Medical educators are challenged with figuring out how to integrate learners into virtual workflows while teaching and providing patient-centered virtual care. In this viewpoint, we review principles of patient-centered care in the in-person setting, explore the concept of patient-centered virtual care, and advocate for the development and implementation of patient-centered telemedicine competencies. We also recommend strategies for teaching patient-centered virtual care, integrating trainees into virtual workflows, and developing telemedicine curricula for graduate medical education trainees by using our TELEMEDS framework as a model.
46
Rutten, Guy E. H. M., Heidi Van Vugt, and Eelco de Koning. "Person-centered diabetes care and patient activation in people with type 2 diabetes." BMJ Open Diabetes Research & Care 8, no. 2 (December 2020): e001926. http://dx.doi.org/10.1136/bmjdrc-2020-001926.
Full textAbstract:
IntroductionThe American Diabetes Association and the European Association for the Study of Diabetes advocate a person-centered approach to enhance patient engagement in self-care activities. To that purpose, people with diabetes need adequate diabetes knowledge, motivation, skills and confidence. These prerequisites are captured by the concept ‘patient activation’. The Dutch Diabetes Federation implemented a person-centered consultation model for the annual diabetes review. To assess its relationship with patient activation, we measured the change in patient activation, and in person and disease-related factors in people with type 2 diabetes after their second person-centered annual review.Research design and methodsObservational study in 47 primary care practices and six outpatient hospital clinics. Follow-up: 1 year. From 2.617 people with diabetes and capable of completing questionnaires (no additional exclusion criteria) 1.487 (56.8%) participated, 1366 with type 2 diabetes. Main outcome: patient activation (13-item Patient Activation Measure, score 0–100). Before the first and after the second review, participants completed questionnaires. Medical data were retrieved from electronic records. We performed a repeated measure analysis using a linear mixed model in 1299 participants, who completed the first set of questionnaires.ResultsIn 1299 participants (41.6% female, mean age 66 years, median diabetes duration 10 years, median glycated hemoglobin (HbA1c) 6.8%/51 mmol/mol), the mean baseline activation level was 58.9 (SD 11.7). Independent of actual diabetes care, activation levels increased 1.53 units (95% CI 0.67 to 2.39, p=0.001). Several diabetes perceptions improved significantly; diabetes distress level decreased significantly. Body mass index (−0.22, 95% CI −0.33 to −0.10, p<0.001) and low-density lipoprotein cholesterol (−2.71 mg/dL, 95% CI −4.64 to −0.77, p=0.004) decreased, HbA1c increased 0.08% (95% CI 0.03 to 0.12) (p=0.001).ConclusionsPerson-centered diabetes care was associated with a slightly higher patient activation level, improved diabetes perception and small improvements in clinical outcomes. Person-centered care may enhance patient engagement, but one should not expect substantial improvement in patient outcomes in the short term.
47
Tanenbaum, Sandra. "Person-centered medicine: currents and crosscurrents in the United States." European Journal for Person Centered Healthcare 2, no. 2 (April 8, 2014): 141. http://dx.doi.org/10.5750/ejpch.v2i2.691.
Full textAbstract:
In their editorial introduction to an earlier issue of the International Journal of Person-Centered Medicine, Miles and Mezzich cite positive developments in the United States and United Kingdom. The creation, in the U.S., of the Patient-Centered Outcomes Research Institute (PCORI) is rightly portrayed by these authors as focusing serious attention on the needs of patients for meaningful information about their medical care. PCORI is in some ways--for example, in its apparent commitment to stakeholder engagement and methodological innovation - a departure from earlier public and private efforts to create an evidence base for medical practice. On the other hand, PCORI’s roots and much of the current discourse about its future reflect a residual hold by evidence-based medicine (EBM) on healthcare research and policy-making. First, PCORI was established primarily to promote the conduct of CER, the appetite for which derived from the demand for effectiveness research generally. Second, the patient-centeredness of PCORI is manifest primarily in the conduct of research rather than the process of care. Third, patient-centeredness is commonly taken to refer to patients as a group - as opposed to, say, physicians or researchers as a group -rather than to individual patients. Fourth, it will be difficult and expensive for PCORI to attend to heterogeneity of treatment effects. Fifth and perhaps most important, the creation of PCORI is contemporaneous with other, countervailing, developments in the U.S. healthcare system.
48
Rakusic, Zoran, Ana Misir Krpan, Vesna Bisof, and Kristina Ruza Samardjic. "Croatian Perspectives for Person Centered Care in Oncology." International Journal of Person Centered Medicine 4, no. 1 (October 14, 2014): 19–22. http://dx.doi.org/10.5750/ijpcm.v4i1.419.
Full textAbstract:
In the last decade there has been a strong development and new discoveries in the field of oncology. Molecular biology has undergone the greatest evolution and this makes difficult for clinicians to follow closely. In fact, among thousands of new discoveries, only few have truly led to clear benefit for patients. When studying a person on a molecular level, we must never forget the person as a whole.There are more treatment options that should be tailored to each patients’ characteristics and wishes. Therefore, in developing person cantered care we should be attentive to the critical features of person centered medicine, i.e., ethical commitment, cultural sensitivity, holistic scope, relational focus, individualized care, common ground for diagnosis and care, people-centered organization of services, and person-centered health education and research. This paper summarized Croatian efforts to develop person-centered care for oncological conditions.
49
Goldenberg, Maya. "Is “scientifically informed, yet humanistic medicine” the solution to the crisis of modern medicine? A friendly corrective to the emergent model of Person-Centered Medicine." European Journal for Person Centered Healthcare 2, no. 1 (February 10, 2014): 106. http://dx.doi.org/10.5750/ejpch.v2i1.713.
Full textAbstract:
In Miles and Mezzich’s programmatic paper “The care of the patient and the soul of the clinic: person-centered medicine as an emergent model of modern clinical practice”, the authors draw from a wide variety of sources to frame a theoretical underpinning for the emerging concept of “person-centered medicine” as a model of clinical practice. The sources include humanistic and phenomenological medicine, the biopsychosocial model, evidence-based medicine, critics of evidence-based medicine and patient-centered care. Each offer commendable desiderata, which Miles and Mezzich selectively integrate into their burgeoning theoretical framework. My concern is that the selective uptake of desirably qualities from such diverse resources in order to progress person-centered medicine’s developing vision of “medicine for the person, by the person and with the person” obscures important theoretical differences among these sources that will likely result in difficulty for the concept of person-centered medicine. These diverse theoretical resources offer competing correctives to the problems with medicine. Some of these differences are irreconcilable and need to be highlighted in order to avoid creating conceptual confusion and allegiance to unproductive theoretical commitments at this critical point of framing and developing this emergent model of modern clinical practice.
50
Talen, Mary R., Jeffrey Rosenblatt, Christina Durchholtz, and Geraldine Malana. "Turning the tables: Using resident physicians’ experiences as patients for leveraging patient-centered care." International Journal of Psychiatry in Medicine 53, no. 5-6 (September 25, 2018): 405–14. http://dx.doi.org/10.1177/0091217418802163.
Full textAbstract:
Training physicians to become person-centered is a primary goal of behavioral health curriculum. We have curriculum on doctor–patient communication skills and patient narratives to help physicians relate to the patient’s experiences. However, there is nothing more effective than actually being the patient that gives providers an “aha” experience of the patient’s perspective. In this article, we will share personal resident physician-patient stories based on their experiences within acute urgent care, chronic disease management, and routine well health care. In each narrative, the physician-patient will describe how their experiences had an impact in three areas: (1) their professional identity, (2) their connection with patients, and (3) their experience of the health-care system and teams. Drawing from the key emotional and cognitive experiences from these stories, we will identify training strategies that can bridge the personal to professional experiences as a way to enhance person-centered care. Our goal is to use the physician’s insider perspective on the patient experience as a means to augment the awareness of professional physician role, team-based care, and navigating the health-care system.