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Journal articles on the topic 'Patient narrative'

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1

Antoszewska, Beata. "Patient in the Physician’s Perspective. Narrative Research." Seminare. Poszukiwania naukowe 2019(40), no. 4 (December 2019): 117–31. http://dx.doi.org/10.21852/sem.2019.4.09.

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Møller, Jane Ege, and Matilde Nisbeth Brøgger. "How do residents perceive and narrate stories about communication challenges in patient encounters? A narrative study." BMJ Open 9, no. 6 (June 2019): e029022. http://dx.doi.org/10.1136/bmjopen-2019-029022.

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ObjectiveThis article investigated residents’ narratives to gain their understandings of which patterns are challenging in doctor–patient conversations.DesignQualitative narratological framework.ParticipantsWe analysed 259 narratives from 138 residents’ oral recounts of communication with patients in which they had felt challenged.ResultsThe analysis identified an ideal narrative for the doctor–patient encounter with the resident as protagonist pursuing the object of helping the patient with his health problem. Disruptions of this ideal narrative were at play when challenges occurred. Regardless of medical setting, challenges were often related to the establishment of a common object, and the communication actants had to go through negotiations, disagreements or even battles when trying to reach a common object. Challenges also occurred when actants which in the ideal narrative should act as helpers become opponents. We find narratives where patients, relatives and colleagues become opponents.ConclusionsOur study showed that communication challenges were the result of disruptions of the perceived ideal narrative. Residents found it especially challenging to establish a common object, and dealing with helpers turned opponents. Patient communication is thus a challenge in the transition phase from student to doctor, and doctor–patient communication is complex in nature and continuously perceived to be so by residents, despite pregraduate training.
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Silistraru, Ioana. "Narrative Medicine – the methodology of doctor-patient communication analysis." Social Change Review 15, no. 1-2 (December 1, 2017): 105–28. http://dx.doi.org/10.1515/scr-2017-0005.

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AbstractThe present paper aims at presenting a non-exhaustive list of methodology instruments for narrative analysis in medical communication. Patient narratives became of more and more importance while evidence-based medicine has created a gap between patients, their illness and their doctors. While being investigated through high-technology instruments used in medicine, the patient vanishes behind the computer screen where his body is analysed based on the biomedical factors. Narrative medicine is defined by one of its founders as the interaction between a health practitioner who doesn’t simply look at diseases, but treats the person who’s suffering from an illness by listening closely to his story (Charon 2001). Therefore, as mentioned by Rita Charon in her works, the doctor-patient interactions are measured considering the effectiveness of medical care. The patient is empowered with medical knowledge related to his illness, transposed into an accessible language. On the other side of the communication spectrum, the doctor reconnects with his patient, manifesting interest on how the patient’s life is affected by illness, not only on how it can be effectively treated. ‘Now, in recent years medical narrative is changing—from the stories about patients and their illnesses, patient narratives and the unfolding and interwoven story between healthcare professionals and patients are both gaining momentum, leading to the creation or defining of narrative-based medicine (NBM).’ (Kalitzkus and Matthiessen 2009). Narrative based medicine is presented to counteract the pitfalls of evidence-based medicine (EBM). NBM can foster a better care while taking into account the patient’s story on the way illness is affecting the quality of his everyday life. The final objective of effective medical care is to alleviate, if not to dismiss completely the illness and the suffering of the patients.
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Vickers, Caroline H., Ryan Goble, and Christopher Lindfelt. "Narrative co-construction in the medical consultation: How agency and control affect the diagnosis." Communication and Medicine 9, no. 2 (May 20, 2013): 159–71. http://dx.doi.org/10.1558/cam.v9i2.159.

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The purpose of this paper is to examine patient-provider narrative co-construction of symptoms, diagnosis and treatment in the medical consultation. Narrative scholarship has demonstrated that conversational narratives, including those that take place in medical consultations, are typically co-constructed by all participants within the conversation. In the context of the medical consultation, this means that patient narratives are co-constructed with providers, and that at times, provider contributions to the patient narrative can hide patient contributions. The inherent power asymmetry that exists between patient and provider facilitates the possibility for provider contributions to obscure those of the patient. Based on audio-recorded data from medical consultations between two different nurse practitioners and one patient, findings from this study demonstrate that such narrative co-construction leads to differential information regarding the patient’s symptoms, diagnosis and treatment. Implications include the need for providers to relinquish control over to the patient to allow the patient to fully articulate narrative accounts of their medical issues.
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Simon, Lisa. "Narrative and patient care." Journal of the American Dental Association 146, no. 9 (September 2015): 654. http://dx.doi.org/10.1016/j.adaj.2015.07.006.

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Kannampallil, Thomas, Steve Jones, and Joanna Abraham. "‘This is our liver patient…’: use of narratives during resident and nurse handoff conversations." BMJ Quality & Safety 29, no. 2 (July 3, 2019): 135–41. http://dx.doi.org/10.1136/bmjqs-2018-009268.

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ObjectiveHandoffs are often framed as the co-construction of a shared understanding relying on narrative storytelling. We investigated how narratives are constructed and used during resident and nurse handoff conversations.MethodWe audio-recorded resident (n=149) and nurse (n=126) handoffs in an inpatient medicine unit. Qualitative analysis using grounded theory was conducted to identify and characterise the structure of resident and nursing handoff narratives.ResultsHandoff conversations among both residents and nurses used three types of narratives: narratives on creating clinical imagery, narratives on coordinating care continuity and narratives on integrating contextual aspects of care. Clinical imagery narratives were common during patient introductions: residents used a top-down approach relying on overarching patient clinical situations (eg, ‘a liver patient’), whereas nurses used a bottom-up approach using patient-specific identifying information. Narratives on the coordination of care continuity for residents focused on managing internal and external coordination activities, whereas nurse narratives focused on internal coordination, emphasising their role as an interface between patients and their physicians. Both resident and nurse narratives on the contextual aspects of care had considerable focus on highlighting ‘heads up’ anticipatory information and personal patient information; such information was often not present in patient charts, but was important for ensuring effective care management.DiscussionThe presence of narrative structures highlights the need for new perspectives for the design of handoff tools that allow for both informational and cognitive support and shared awareness among conversational partners during handoff conversations. We discuss the implications of the use of narratives for patient safety and describe specific design considerations for supporting narrative interactions during handoffs.
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Ramanathan-Abbott, Vai. "Interactional differences in Alzheimer's discourse: An examination of AD speech across two audiences." Language in Society 23, no. 1 (March 1994): 31–58. http://dx.doi.org/10.1017/s0047404500017668.

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ABSTRACTAssessments of the narrative abilities of patients suffering from Alzheimer's disease should consider the interactions that generate the narratives. By analyzing the discourse of an AD patient in interaction with two different interlocutors, namely her husband and the author, this study calls attention to ways in which one interaction facilitates narratives and the other does not. Previous psycholinguistic research, largely focusing on the resultant narrative, has understood the AD patient's deteriorating narrative skills as a result of the progressively debilitating nature of the disease. This is undoubtedly true, but extensive and meaningful talk is nevertheless possible, partially grounded in and constructed through social interaction. (Discourse analysis, Alzheimer's disease, narrative social interaction)
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Martino, Steven C., Dale Shaller, Mark Schlesinger, Andrew M. Parker, Lise Rybowski, Rachel Grob, Jennifer L. Cerully, and Melissa L. Finucane. "CAHPS and Comments." Journal of Patient Experience 4, no. 1 (February 24, 2017): 37–45. http://dx.doi.org/10.1177/2374373516685940.

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Objectives: To investigate whether content from patient narratives explains variation in patients’ primary care provider (PCP) ratings beyond information from the closed-ended questions of the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Clinician and Group Survey and whether the relative placement of closed- and open-ended survey questions affects either the content of narratives or the CAHPS composite scores. Methods: Members of a standing Internet panel (N = 332) were randomly assigned to complete a CAHPS survey that was either preceded or followed by a set of open-ended questions about how well their PCP meets their expectations and how they relate to their PCP. Results: Narrative content from healthier patients explained only an additional 2% beyond the variation in provider ratings explained by CAHPS composite measures. Among sicker patients, narrative content explained an additional 10% of the variation. The relative placement of closed- and open-ended questions had little impact on narratives or CAHPS scores. Conclusion: Incorporating a protocol for eliciting narratives into a patient experience survey results in minimal distortion of patient feedback. Narratives from sicker patients help explain variation in provider ratings.
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Park, Eal Whan. "Patient-Centered Interviewing: Narrative Approach." Korean Journal of Family Medicine 31, no. 1 (2010): 3. http://dx.doi.org/10.4082/kjfm.2010.31.1.3.

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Launer, John. "Patient choice and narrative ethics." Postgraduate Medical Journal 90, no. 1066 (July 17, 2014): 484. http://dx.doi.org/10.1136/postgradmedj-2014-132866.

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11

Yılmaz, Nida Gizem, Julia C. M. Van Weert, Ellen Peters, Birgit I. Lissenberg-Witte, Annemarie Becker, Suresh Senan, Chris Dickhoff, Daniëlle R. M. Timmermans, and Olga C. Damman. "Testing the Effects of Modality and Narration Style on Patients’ Information Use in a Lung Cancer Treatment Decision Aid." Medical Decision Making 40, no. 8 (October 20, 2020): 990–1002. http://dx.doi.org/10.1177/0272989x20960436.

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Background Risk information in patient decision aids (PDAs) is often difficult for older patients to process. Providing audiovisual and narrative information may enhance the understanding and use of health-related information. We studied the effects on patients’ information processing and use of audiovisual and narrative information of an early-stage non–small-cell lung cancer treatment decision aid explaining surgery and stereotactic ablative radiotherapy. We further investigated differences between older and younger patients. Methods We conducted a 2 (modality: textual v. audiovisual) × 2 (narration style: factual v. narrative) online experiment among cancer patients and survivors ( N = 305; Mage = 62.42, SD = 11.68 y). Age was included as a potential modifier: younger (<65 y) versus older (≥65 y) age. We assessed 1) perceived cognitive load, 2) satisfaction with information, 3) comprehension, 4) information recall, and 5) decisional conflict. Analysis of variance was used for data analysis. Results Irrespective of patient age, audiovisual information (compared with textual information) led to lower perceived cognitive load, higher satisfaction with information, and lower decisional conflict (subscale Effective Decision). Narrative information (compared with factual information) led to reduced decisional conflict (subscale Uncertainty) but only in younger patients. Combining audiovisual information with factual information also resulted in lower perceived cognitive load in younger patients as compared with older patients. Limitations Patients who actually face the decision, especially older patients, might be more motivated to process our decision-aid information than the present study participants who responded to a hypothetical situation online. Conclusions Providing participants with audiovisual information, irrespective of their age, improved their processing and use of information in a decision aid. Narratives did not clearly benefit information processing.
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Chatterjee, Pranab. "On Being a Patient." International Journal of User-Driven Healthcare 2, no. 4 (October 2012): 57–59. http://dx.doi.org/10.4018/ijudh.2012100109.

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Published narratives on doctor-as-patient experiences show that physicians become more empathetic once they have gone through the process of being a patient. In this article, in response to a published doctor-as-patient narrative, the author enquires into the possible reason for such empathy-in-hindsight. The objectified and structured medical education system which puts little emphasis on soft skills, a rapidly evolving technological-diagnostic revolution that is distancing the patient from the doctor and lacunae in development of communication skills in doctors come up as probable reasons for this. Narratives of physician-patients provide good learning points, especially with respect to the lacunae in the teaching of empathy, communication and humanities in medicine.
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DeTora, Lisa, and Michael J. Klein. "Invention Questions for Intercultural Understanding: Situating Regulatory Medical Narratives as Narrative Forms." Journal of Technical Writing and Communication 50, no. 2 (March 6, 2020): 167–86. http://dx.doi.org/10.1177/0047281620906134.

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Patient safety narratives are a globally mandated format for representing individual patient experiences, and they include peer-reviewed case reports and narrative medicine. The authors show how the humanistic values described by Carolyn Miller in 1979 could enhance or contribute to international health and medical communication in relation to such narratives. They do so by expanding on twenty-first century work by Bowdon and Scott to provide a framework for considering how narrative competence and narrative humility may allow technical communicators to strengthen their practices within technical communication and the rhetorics of health and science by examining an individual problem within its broader, intercultural contexts.
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Mæhre, Kjersti Sunde. "Fortellingens betydning for å fremme livsmotet i møte med alvorlig sykdom." Nordisk tidsskrift for helseforskning 15, no. 2 (November 14, 2019): 16. http://dx.doi.org/10.7557/14.4605.

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The importance of the story to promote hope and life courage in the face of serious illnessIn connection with my PhD (Mæhre, 2017), I conducted qualitative interviews with five critically ill patients in an enhanced ward of a nursing home, based on the Coordination Reform. The purpose of the interviews was to increase understanding of patient experiences of the ward, and their perceived challenges and needs for assistance. The research method was a hermeneutic-phenomenological approach. The essay is based on one of the patient interviews, which has been rewritten as a narrative. This narrative emphasizes how the patient has fought against her illness, and her need to be seen as herself as a person and not understood in terms of a diagnosis. The illness narrative becomes part of her life story. The article highlights opportunities for narratives in the face of serious illness. The narrative reveals how a changed life situation, despite severe illness, can add courage and joy to life, but also how it can lead to hopelessness, doubt, and uncertainty.
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Clark, Matthew. "The cognitive turn." Narrative Inquiry 22, no. 2 (December 31, 2012): 405–10. http://dx.doi.org/10.1075/ni.22.2.11cla.

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Corresponding to the “narrative turn” in the human and cultural sciences, this paper advocates a “cognitive turn” in the study of literary narratives. The representation of the self in literary narratives, for example, is in some ways similar to the representation of the self represented in philosophic, psychological, and sociological theory, but the narrative models extend and enrich the understanding of the self. The tradition of literary narrative includes the monadic, dyadic, and triadic models of the self, as well as representations of agent, patient, experiencer, witness, instrumental, and locative selves. Narrative is thus a kind of worldmaking, and the making of complex worlds, such as the worlds of the self, lead towards narrative.
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Prescott, Susan, and Alan Logan. "Narrative Medicine Meets Planetary Health: Mindsets Matter in the Anthropocene." Challenges 10, no. 1 (February 20, 2019): 17. http://dx.doi.org/10.3390/challe10010017.

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The emerging concept of planetary health—defined as the interdependent vitality of all natural and anthropogenic ecosystems (social, political, and otherwise)—emphasizes that the health of human civilization is intricately connected to the health of natural systems within the Earth’s biosphere. In the clinical setting, narrative medicine underscores the importance of absorbing, reflecting upon, and responding to the narratives—the stories—conveyed by patients. Education and interventions using the tenets of narrative medicine have demonstrated value to both patient and provider. Given the grand interconnected challenges of our time—compounded by misinformation and quasi-scientific narratives propagated by the ideology of neoliberalism—we argue that the principles and practice of narrative medicine can be applied on a larger scale, one with planetary health in mind. The role of beliefs, expectations, and agency—mindsets—in the link between narrative and planetary health are emphasized. We use a story of our own to demonstrate that the biological buffering capacity in response to a fast-food meal does not sit on a level socioeconomic playing field. Patient, community, and global health narratives are melding with powerful narratives set by commercial entities. The success of planetary health as a new concept will be strengthened by attention to the ways in which storytelling can influence positive change. No less important is an understanding of the ways in which stories contribute to what ails person, place, and planet.
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Cappuccio, Antonietta, Alessandro Sanduzzi Zamparelli, Massimo Verga, Stefano Nardini, Alessandro Policreti, Pasquale Alberto Porpiglia, Silvia Napolitano, and Maria Giulia Marini. "Narrative medicine educational project to improve the care of patients with chronic obstructive pulmonary disease." ERJ Open Research 4, no. 2 (April 2018): 00155–2017. http://dx.doi.org/10.1183/23120541.00155-2017.

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Chronic obstructive pulmonary disease (COPD) is characterised by a progressive loss of pulmonary function. Often patients do not adhere to inhaled therapies and this leads clinicians to switch treatments in order to improve control of the symptoms. Narrative medicine is a useful approach that helps healthcare professionals to think over the doctor–patient relationship and how patients live with their disease. The aim of this training project was to teach pulmonologists the basics of narrative medicine: to carefully listen to patients and to practice reflective writing in their relationship with them.Training on narrative medicine and parallel charts was provided through a webinar and a weekly newsletter.Across 362 narratives, written by 74 Italian pulmonologists, 92% of patients had activity limitations at their first visit. The main factor influencing the effectiveness and adherence to therapy was a positive doctor–patient relationship; indeed, if such relationship is difficult, only 21% of patients are able to resume all their activities.After learning the narrative approach, clinicians became aware of the need to spend more time listening to patients, to reflect through writing and to understand more deeply the motivations that lead people towards adherence to new therapies.
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Kirkegaard Thomsen, Dorthe, and Anders Bonde Jensen. "Memories and narratives about breast cancer." Narrative Inquiry 17, no. 2 (December 31, 2007): 349–70. http://dx.doi.org/10.1075/ni.17.2.10kir.

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Turning points are considered to refer to emotional and important events. The present study compared turning point memories to other memories on several ratings and investigated the association between turning points, distress and meaning. Memories may act as organising units in extended narratives, hence the study also tested whether overlap between memories and extended illness narrative was associated with a more coherent narrative. Fifteen patients with breast cancer were asked to tell a 10-minute narrative about their illness course and describe meaning in their illness. Each patient was asked to recall five memories, to state whether or not the memories were turning points, and to rate memories on both event and phenomenological variables. Lastly, the patients were asked to rate distress. The narratives were scored for coherence and the memories were scored for thematic content as well as thematic overlap with the narratives. The results showed that all participants rated the mammography as a turning point and that turning points were rated higher on both event and phenomenological variables. Patients reporting more turning points also reported more distress and not finding meaning in the illness and treatment. High degree of overlap between memories and narratives showed a trend towards an association with a more coherent narrative. The present article discusses processes, which may be involved in the interaction between memories and narratives.
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Koch, Roland, and Christine Preiser. "Narrative Analyse: Ein Schlüssel zum Verstehen der Patient-Behandler-Beziehung." Balint Journal 19, no. 02 (June 2018): 47–53. http://dx.doi.org/10.1055/s-0044-102162.

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Zusammenfassung Hintergrund Ein wesentlicher Aspekt von Balintarbeit sind Erzählungen über Begegnungen zwischen Patient und Behandler. Der Akt des Erzählens ist sowohl eine bewusste, kohärente Auseinandersetzung mit Erinnerung als auch ein Kommunikationsprozess im sozialen Kontext der Balintgruppe. Methode Mittels narrativer Analysemethoden können Erzählungen auf Selbstdarstellung und Selbstherstellung des Erzählenden untersucht werden. Beispielhaft werden die Methode der Analyse von Handlungskraft und die Methode der sozialen Positionierung aufgeführt. Ergebnisse Zwei verschiedene Erzählungen über Patient-Behandler-Begegnungen werden analysiert. Anhand der Texte wird demonstriert, wie Narrative Analyse von der Auswahl der Texte bis zur Diskussion konkret funktioniert. Dabei spielt die interdisziplinäre Zusammenarbeit zwischen Sozialwissenschaftlern und Medizinern eine tragende Rolle. Diskussion Narrative Analyse ist geeignet, um die Patient-Behandler-Beziehung in Erzählungen zu analysieren. Sie liefert einen Schlüssel sowohl für eine empirische interdisziplinäre Forschungsarbeit als auch für eine durch narrative Denkweise verstärkte Reflektion der Rolle von Erzählungen bei der Balintarbeit.
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Grob, Rachel, Mark Schlesinger, Andrew M. Parker, Dale Shaller, Lacey Rose Barre, Steven C. Martino, Melissa L. Finucane, Lise Rybowski, and Jennifer L. Cerully. "Breaking Narrative Ground: Innovative Methods for Rigorously Eliciting and Assessing Patient Narratives." Health Services Research 51 (April 29, 2016): 1248–72. http://dx.doi.org/10.1111/1475-6773.12503.

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Mitchell, Derick, Clare Hudson, Tomas Carroll, Ava Battles, John Church, Anne Lawlor, Jason Last, et al. "The Patient Narrative Project - Phase One." International Journal of Integrated Care 17, no. 5 (October 17, 2017): 208. http://dx.doi.org/10.5334/ijic.3518.

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Clark, Jeff. "The narrative in patient-centred care." British Journal of General Practice 58, no. 557 (December 1, 2008): 896. http://dx.doi.org/10.3399/bjgp08x376366.

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Trainini, Jorge. "Narrative in the Doctor-Patient Relationship." Revista Argentina de Cardiologia 87, no. 6 (June 2019): 474–76. http://dx.doi.org/10.7775/rac.v87.i6.16685.

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Willis, Kent, and Colleen Marzilli. "Conceptualizing Narrative Health and Medicine to Develop Cultural Competence to Improve Communication During the COVID-19 Pandemic." Advances in Social Sciences Research Journal 8, no. 1 (January 17, 2021): 32–36. http://dx.doi.org/10.14738/assrj.81.9577.

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Narrative health is a technique that healthcare professionals can use to connect with patients. The events of 2020, including the global severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), have identified that patient care is largely dependent upon relationships within the healthcare environment. Relationships in the healthcare environment are established through a trusting exchange between the patient and provider, and one technique to develop this relationship and trust is through narrative health. Narrative health provides the exchange of information between patient and provider in a discussion-like manner, or narrative health. This strategy promotes cultural competence amongst the healthcare professional team and improves communication between the patient and provider. Narrative health is an important concept for healthcare professionals to understand, and narrative health should be a part of any healthcare professional’s toolbox, especially in vulnerable times like the COVID pandemic. The inclusion of narrative health in practice has the potential to improve patient outcomes and empower healthcare professionals and patients.
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McTigue, Kathleen M., David Fear, Ken Hunter, Sri Karanam, James Uhrig, Treva Alston, Stacey Dillon, et al. "The development of a patient and caregiver narrative archive to support patient-centered research." European Journal for Person Centered Healthcare 6, no. 4 (December 4, 2018): 565. http://dx.doi.org/10.5750/ejpch.v6i4.1546.

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Background: Engaging patients and other stakeholders is a key tenet of patient-centered research, but can be challenging to implement. Objectives: To determine the feasibility of using patient narratives for informing comparative effectiveness research and engaging patients in the research process.Research Design: Cross-sectional study.Participants: The first 153 participants to share a story using the MyPaTH Story Booth protocol were, on average, aged 51 (18.8). Most were white (79%) or African American (13%) and well-educated.Measures: Participants self-categorized their narratives according to the sort of health experience(s) described (e.g., diagnosis, doctor/patient communication), the anatomic locations of health problems discussed and the type of disorder or condition addressed. They also reported on whether they were interested in engaging in clinical research as a participant or stakeholder and their satisfaction with the study processes.Results: The archived narratives addressed a wide range of health experiences of relevance to clinical researchers, most often medical treatment (82%), communication with healthcare team members (81%), diagnosis (64%), symptoms (61%), healthcare access (60%) and health decision-making (60%). Health problems related to diverse anatomic locations were addressed. Health conditions such as mental health concerns (35%), infections (23%) and cancers (20%) were often discussed. Among participants, 63% expressed interest in learning of opportunities for stakeholder engagement in research related to their stories. Ninety seven percent were very satisfied or satisfied with the MyPaTH Story Booth process. Conclusions: The narrative archive represents a unique resource for researchers interested in developing and carrying out patient-centered research projects to improve health or healthcare.
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Piana, N. "Narrative Medicine in the treatment of diabetes." Journal of AMD 23, no. 4 (December 2020): 254. http://dx.doi.org/10.36171/jamd20.23.4.2.

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Medicine practiced with narrative competence, called Narrative Medicine, is the ability to acknowledge, absorb, interpret and act on the stories and plights of others and represents a model for humane and effective medical practice. In this perspective, the person’s experience and story become important tools that allow health professional to better understand their patients’ disease and to formulate more appropriate diagnostic and treatment options. Furthermore, the narrating of the patient’s story is a therapeutically central act, because to find the words to contain the disorder and its attendant worries and to develop self-awareness and motivation to self-care. KEY WORDS narrative medicine; therapeutic patient education; storytelling; training for healthcare professionals; personalized medicine
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Bartoszko, Aleksandra. "Patient Is the New Black." Journal of Extreme Anthropology 3, no. 2 (March 6, 2019): 141–49. http://dx.doi.org/10.5617/jea.6722.

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In this essay, I challenge the ways in which global drug policy initiatives call for more humane drug policy and decriminalization. Although these initiatives promote human dignity and agency, they also encourage a particular approach to drug use and addiction. Embracing patientism in their liberating narratives of ‘treatment, not punishment,’ these voices take for granted the advantages of their proposed approach. Drawing on my experiences with Norwegian OST, I illustrate patients’ engagement and resistance towards the politically hyped social categories and ask how we can understand this socio-political desire for a narrative transformation.
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FINS, JOSEPH J. "Two Patients: Professional Formation before “Narrative Medicine”." Cambridge Quarterly of Healthcare Ethics 29, no. 4 (September 7, 2020): 642–50. http://dx.doi.org/10.1017/s0963180120000389.

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AbstractIn this essay, the author reflects on his development as a physician by recounting two patient narratives of patients he cared for as a third year medical student. In the process of telling these stories of sickness, the author also provides a window on medical practice in the 1980’s in an academic medicine center and how practices have changed. Decades before what has been dubbed “narrative medicine,” the author learned the power of words to shape relationships and promote professional formation.
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Ryynänen, Sanna. "Patient Complaints: Patients’ and Physicians’ Interaction in Handling Complex Requests of Care." Journal of Patient Experience 7, no. 4 (August 4, 2019): 464–67. http://dx.doi.org/10.1177/2374373519865132.

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Objective: The study report focuses on the interaction of patients’ complaint cases and their related physicians’ responses in handling patients’ complex requests based on the dynamics of power and ideology. Method: Data consist of 3 selected patients’ complaints and 7 physicians’ responses in a specialized medical care organization in December 2016. Data of the qualitative case study were used in narrative analysis. Results: The study revealed storylines of narratives ending in physicians’ collective ideology of encounters with dissatisfied patients. Conclusion: The interaction between patients’ complaints and physicians’ responses showed emergent patterns of conflicts, which were both constraining and enabling.
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Skelton, John R., Margaret O’Riordan, Anna Berenguera Ossȯ, Jackie Beavan, and Katharine Weetman. "Learning from patients: trainers’ use of narratives for learning and teaching." BJGP Open 1, no. 1 (January 16, 2017): bjgpopen17X100581. http://dx.doi.org/10.3399/bjgpopen17x100581.

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BackgroundThere is a growing interest in how doctors learn from narratives about individual cases, reflected, for example, in the use of e-portfolios.AimThis study aimed to evaluate how GP trainers conceptualised ‘learning from patients’, and what use they currently made of narrative recounts in training.Design & settingThematic analysis (TA) and corpus-linguistic (CL) analysis, with data collected from a convenience sample of trainers in the UK, Ireland, and Spain.MethodGP trainers in the three settings were contacted, and volunteers recruited (22 in UK, 24 in Ireland, and 16 in Spain). Volunteers were interviewed and asked to offer a narrative about ‘a patient you learned from’ and whether they used narratives as a training device.ResultsThere were no differences between settings. Trainers described an engaged and personal relationship with patients. They described learning about themselves, the human condition, and about how to live and die well. Their narratives were structured in various ways. At times, they led to precise conclusions: at times, they were perceived as meaningful, but resisting analysis. As regards teaching through narrative, it was reported as commonly used, but present practice appears ad hoc rather than planned.DiscussionThe lack of difference between settings suggests a degree of commonality about how trainers perceive learning and teaching in the areas explored, but cannot be generalised further. The level of personal engagement was more than anticipated, and suggests the label ‘doctor–patient relationship’, as the term is used, may not be adequate to describe the nature of some interactions.
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Chatterjee, Pranab, Anjan Kumar Das, Carmel Martin, Asok Basu, and Rakesh Biswas. "The Vascular System." International Journal of User-Driven Healthcare 4, no. 2 (April 2014): 34–42. http://dx.doi.org/10.4018/ijudh.2014040104.

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The motivation for this paper is based on the assumption that certain patient and health professional users' experiences can serve as a mirror or a model, whether positive or negative, for other patients and health professional users/learners. This narrative presents a patient's experience of his complicated and ad hoc journey through the diagnoses and treatment of his vascular system disorder. It then tries to connect this with health professional opinions and other patient experiences toward the collective goal of ‘getting a proper diagnosis and management of vascular disease.' Interspersed are professional narratives in the form of clinical evidence and expert comments towards clinical problem solving around vascular system disorders. User-driven health care implies shared decision making based upon collaborative partnerships between patients and health professionals. This narrative indicates that power imbalances in knowledge, particularly when the patient is ill and vulnerable, can lead to inappropriate and even harmful treatments, when profit appears to be the main driver of the medical industrial complex.
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Zolnoori, Maryam, Joyce E. Balls-Berry, Tabetha A. Brockman, Christi A. Patten, Ming Huang, and Lixia Yao. "A Systematic Framework for Analyzing Patient-Generated Narrative Data: Protocol for a Content Analysis." JMIR Research Protocols 8, no. 8 (August 26, 2019): 13914. http://dx.doi.org/10.2196/13914.

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Background Patient narrative data in online health care forums (communities) are receiving increasing attention from the scientific community for implementing patient-centered care. Natural language processing (NLP) methods are gaining more and more attention because of the enormous data volume. However, state-of-the-art NLP still cannot meet the need of high-resolution analysis of patients’ narratives. Manual qualitative analysis still plays a pivotal role in answering complicated research questions from analyzing patient narratives. Objective This study aimed to develop a systematic framework for qualitative analysis of patient-generated narratives in online health care forums. Methods Our systematic framework consists of 4 phases: (1) data collection, (2) data preparation, (3) content analysis, and (4) interpretation of the results. Data collection and data preparation phases are constructed based on text mining methods for identifying appropriate online health forums for data collection, differentiating posts of patients from other stakeholders, protecting patients’ privacy, sampling, and choosing the unit of analysis. Content analysis phase is built on the framework method, which facilitates and accelerates the identification of patterns and themes by an interdisciplinary research team. In the end, the focus of interpretation of the results phase is to measure the data quality and interpret the findings regarding the dimensions and aspects of patients’ experiences and concerns in their original contexts. Results We demonstrated the usability of the proposed systematic framework using 2 case studies: one on determining factors affecting patients’ attitudes toward antidepressants and another on identifying the disease management strategies in patient with diabetes facing financial difficulties. The framework provides a clear step-by-step process for systematic content analysis of patient narratives and produces high-quality structured results that can be used for describing patterns or regularities in patients’ experiences, generating and testing hypotheses, and identifying areas of improvement in the health care systems. Conclusions The systematic framework is a rigorous and standardized method for qualitative analysis of patient narratives. Findings obtained through such a process indicate authentic dimensions and aspects of patient experiences and shed light on patients’ concerns, needs, preferences, and values, which are the core of patient-centered care. International Registered Report Identifier (IRRID) RR1-10.2196/13914
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Fifield, Peter. "Beckett, Cotard's Syndrome and the Narrative Patient." Journal of Beckett Studies 17, no. 1-2 (September 2008): 169–86. http://dx.doi.org/10.3366/e0309520709000120.

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Cheung, Janet M. Y., Delwyn J. Bartlett, Carol L. Armour, and Bandana Saini. "The Insomnia Patient Perspective, A Narrative Review." Behavioral Sleep Medicine 11, no. 5 (November 2013): 369–89. http://dx.doi.org/10.1080/15402002.2012.694382.

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Boyd, J. Wesley. "Narrative aspects of a doctor-patient encounter." Journal of Medical Humanities 17, no. 1 (March 1996): 5–15. http://dx.doi.org/10.1007/bf02276310.

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D, Savitha, Taniya Anto, and Sejil TV. "Introducing reflective narrative for first-year medical students to promote empathy as an integral part of physiology curriculum." Advances in Physiology Education 45, no. 2 (June 1, 2021): 207–16. http://dx.doi.org/10.1152/advan.00206.2020.

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Guided reflective narratives facilitate deeper understanding and learning. The study was aimed at exploring the scope of guided reflective narratives on early clinical exposure, for first-year medical students, in promoting empathy. Strengths and limitations of the process of reflective narratives were also explored. First-year medical students ( n = 150) were exposed to guided reflective narrative writing following each of the three “early clinical exposure” sessions integrated into a physiology curriculum. A feedback on the entire program was obtained through a semistructured questionnaire. The contents of the reflective narratives and feedback on the program were analyzed. Students empathized with the situation and needs of patients and caregivers and could relate to responsibilities and challenges faced by members of health care team. They realized the importance of cooperation from patients and caregivers and work efficiency, communication, behavior, and teamwork from members of healthcare and thereby emerged with the idea of the coordinated effort in patient care. Students opined that reflective narratives made them reflect and empathize with people and situations. Too many narrative writing sessions and hesitation to share their thoughts were some of the suggested limitations. The process led to emergence of a working model for guided reflections to promote empathy. Guided reflective narratives made students reflect and relate to people and situations. While promoting empathy, the reflections also gave them an idea of holistic approach to patient-centered care. Inferences led to a conceptual model for guided reflections to promote empathy among medical students.
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Xia, Jinxu Bridget. "The Obligation of Listening: Caring for Patients With Chronic Dysphagia Through Illness Narratives." Perspectives of the ASHA Special Interest Groups 5, no. 1 (February 21, 2020): 231–35. http://dx.doi.org/10.1044/2019_persp-19-00030.

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Purpose Chronic conditions affect the lives of thousands of people in the United States. Dysphagia is a symptom that co-occurs with many chronic conditions. This presents unique challenges to speech-language pathologists (SLPs) who work with patients that are physically and psychosocially burdened by chronic dysphagia. Clinical decisions in chronic care are characterized by context-dependent complexities. There is a theoretical framework in bioethics called narrative ethics , which suggests that engaging with patients' illness narratives informs patient-centered decision making and that exploring contexts is essential to provision of care. Conclusion Using a narrative approach in decision making in chronic dysphagia helps contextualize the symptoms and supports clinicians to form individualized treatment plans that better suit patients' health care and psychosocial needs.
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Reid, Kate, and Andrew Soundy. "A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer." Behavioral Sciences 9, no. 10 (October 17, 2019): 110. http://dx.doi.org/10.3390/bs9100110.

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Background: There is a need to understand the common plots (master plots) of illness narratives for people who are treated for cancer. Improved insight would enhance therapeutic relationships and help reduce stress for health care professionals (HCPs). Aim: Identify and refine the most supported narrative master plots, which convey meaning for the tellers’ lived experience from diagnosis to a year post-treatment for a group of Head and Neck Cancer (H&NC) patients. Method: A purposive sample of individuals with H&NC using a single qualitative interview was undertaken. A narrative analysis was used. Results: Eighteen people (57.8 years, six female and 12 male) with H&NC participated. The average time since treatment began was 10 months. Five master plots were identified: (1) The responsive and reflective narrative, (2) The frail narrative, (3) The recovery narrative, (4) The survive or die narrative and (5) The personal project narrative. Discussion: The identification of narrative master plots of people with H&NC enables HCPs to understand and prepare for the different stories and reactions presented to them. This is important to prevent people’s reactions being labelled in restrictive ways. The implications of recognising the different experiences are discussed further within the manuscript. Research is needed to build on these findings to promote better patient-centred care in practice.
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Mehl-Madrona, L., and B. Mainguy. "Comparisons of Narrative Psychotherapy to Conventional CBT for the Psychotherapy of Psychosis and Bipolar Disorder." European Psychiatry 41, S1 (April 2017): s779. http://dx.doi.org/10.1016/j.eurpsy.2017.01.1480.

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IntroductionThere is ongoing debate about about both the value of psychotherapy in psychotic disorders and the best type of psychotherapy to use if necessary.MethodsWe conducted narrative psychotherapy with 18 adults, all diagnosed as having bipolar disorder with psychotic features and/or schizo-affective disorder. Outcome data consisted of the Positive and Negative Symptom Scale, the Clinical Global Impressions Scale, the Young Mania Rating Scale, the Hamilton Anxiety and Depression Scales, the My Medical Outcome Profile, Version 2(MYMOP2), and the Outcome Rating Scales of Duncan and Miller. We compare the outcomes of our patients to those of a matched comparison group receiving conventional psycho-education and cognitive behavioural therapy. Patients were seen for a minimum of 16 weeks over an average of 22 weeks. Average age was 31.5 years with a standard deviation of 8.1 years.ResultsThe narrative therapy group showed statistically significant reductions in all outcome measures compared to the conventional treatment group. They continued treatment significantly longer and had fewer re-hospitalizations. They were less distressed by voices.ConclusionsA narrative psychotherapy approach using dialogical theory and therapy ideas is a reasonable approach for the psychotherapy of psychosis. Review of psychotherapy notes showed that narrative approaches allowed the therapist to align with the patient as collaborator in considering the story presented and was therefore less productive of defensiveness and self-criticism than conventional approaches. The therapy included techniques for negotiating changes in illness narratives, identity narratives, and treatment narratives that were more conducive of well-being and recovery.Disclosure of interestThe authors have not supplied their declaration of competing interest.
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Sarto-Jackson, Isabella. "Narratives in Health Care." Balkan Journal of Philosophy 13, no. 1 (2021): 67–76. http://dx.doi.org/10.5840/bjp20211318.

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The role of narratives in clinical practice has long been underappreciated. This disregard is largely due to an overemphasis on reductionist interpretations of disease causes based on the primacy of the medical model of disease. This way of thinking has led to decontextualizing symptoms of disorders from patients’ lives. More recently, however, healthcare professionals have turned towards a biopsychosocial model that reintroduces sociocultural and psychosocial aspects into clinical diagnosis and treatment. To this end, narrative approaches have been increasingly explored as alternative diagnostic and therapeutic tools. Central to the narrative approach is the avoidance of pathologizing language that usually focuses on deficiencies. Instead, patients’ narratives are co-constructed and co-created together with the clinician or therapist to transform them into empowering stories about healing. To make narratives accessible and transformable for the patient, psychoeducational methods can be used to translate scientific and medical knowledge about the disease into stories described in everyday language that resonate with the patient’s own life stories. Consequently, psychoeducational narratives enhance the patient’s competence in coping with a physical or mental illness and re-contextualizing symptoms, and prompt an increased compliance with therapies.
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McCorkell, Lisa, Gina S. Assaf, Hannah E. Davis, Hannah Wei, and Athena Akrami. "Patient-Led Research Collaborative: embedding patients in the Long COVID narrative." PAIN Reports 6, no. 1 (2021): e913. http://dx.doi.org/10.1097/pr9.0000000000000913.

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Metersky, Kateryna, and Jasna K. Schwind. "Interprofessional Care: Patient Experience Stories." International Journal of Person Centered Medicine 5, no. 2 (November 9, 2015): 78–87. http://dx.doi.org/10.5750/ijpcm.v5i2.528.

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Interprofessional care (IPC) has been discussed in the literature as having the ability to lower health care expenditures, decrease wait times, enhance patient health outcomes and increase healthcare provider (HCP) satisfaction with care-delivery. To date, limited research has been conducted on patients’ experiences of receiving IPC. Using Connelly and Clandinin’s Narrative Inquiry qualitative research approach, three participants were invited to engage in a modified version of Schwind’s Narrative Reflective Process, a creative self-expression tool that utilizes storytelling, metaphor selection, drawing, creative writing and reflective dialogue. Participants shared their stories, and selected and drew metaphors that best represent for them their experiences of receiving IPC. They were also asked whether or not they believe person-centered care was delivered to them. Collected stories were analyzed as per the three common places of Narrative Inquiry: temporality, sociality and place, as well as the three levels of justification: personal, practical and social. Told stories were examined through the theoretical lens of the National Canadian Interprofessional Competency Framework. Three narrative threads emerged within this study: communication, interprofessional team composition, and patient within interprofessional team. The findings appear helpful to inform educators, HCP, policy makers, and researchers, as they strive to enhance person-centered interprofessional care practice. For patients, a clear opportunity for their voices to be heard has been outlined.
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King, Ann, and Ruth B. Hoppe. "“Best Practice” for Patient-Centered Communication: A Narrative Review." Journal of Graduate Medical Education 5, no. 3 (September 1, 2013): 385–93. http://dx.doi.org/10.4300/jgme-d-13-00072.1.

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Abstract Background Communicating with patients has long been identified as an important physician competency. More recently, there is a growing consensus regarding the components that define physician-patient communication. There continues to be emphasis on both the need to teach and to assess the communication skills of physicians. Objective This narrative review aims to summarize the work that has been conducted in physician-patient communication that supports the efficacy of good communications skills. This work may also help to define the physician-patient communication skills that need to be taught and assessed. Results A review of the literature shows it contains impressive evidence supporting positive associations between physician communication behaviors and positive patient outcomes, such as patient recall, patient understanding, and patient adherence to therapy. There is a consensus about what constitutes “best practice” for physician communication in medical encounters: (1) fostering the relationship, (2) gathering information, (3) providing information, (4) making decisions, (5) responding to emotions, and (6) enabling disease- and treatment-related behavior. Conclusions Evidence supports the importance of communication skills as a dimension of physician competence. Effort to enhance teaching of communication skills to medical trainees likely will require significant changes in instruction at undergraduate and graduate levels, as well as changes in assessing the developing communication skills of physicians. An added critical dimension is faculty understanding of the importance of communication skills, and their commitment to helping trainees develop those skills.
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Liberati, Elisa Giulia, Mara Gorli, and Giuseppe Scaratti. "Reorganising hospitals to implement a patient-centered model of care." Journal of Health Organization and Management 29, no. 7 (November 16, 2015): 848–73. http://dx.doi.org/10.1108/jhom-07-2014-0129.

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Purpose – The purpose of this paper is to understand how the introduction of a patient-centered model (PCM) in Italian hospitals affects the pre-existent configuration of clinical work and interacts with established intra/inter-professional relationships. Design/methodology/approach – Qualitative multi-phase study based on three main sources: health policy analysis, an exploratory interview study with senior managers of eight Italian hospitals implementing the PCM, and an in-depth case study that involved managerial and clinical staff of one Italian hospital implementing the PCM. Findings – The introduction of the PCM challenges clinical work and professional relationships, but such challenges are interpreted differently by the organisational actors involved, thus giving rise to two different “narratives of change”. The “political narrative” (the views conveyed by formal policies and senior managers) focuses on the power shifts and conflict between nurses and doctors, while the “workplace narrative” (the experiences of frontline clinicians) emphasises the problems linked to the disruption of previous discipline-based inter-professional groups. Practical implications – Medical disciplines, rather than professional groupings, are the main source of identification of doctors and nurses, and represent a crucial aspect of clinicians’ professional identity. Although the need for collaboration among medical disciplines is acknowledged, creating multi-disciplinary groups in practice requires the sustaining of new aggregators and binding forces. Originality/value – This study suggests further acknowledgment of the inherent complexity of the political and workplace narratives of change rather than interpreting them as the signal of irreconcilable perspectives between managers and clinicians. By addressing the specific issues regarding which the political and workplace narratives clash, relationship of trust may be developed through which problems can be identified, mutually acknowledged, articulated, and solved.
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Grimaldi, André. "L’éducation thérapeutique du patient et la médecine narrative." Médecine des Maladies Métaboliques 14, no. 4 (June 2020): 292–93. http://dx.doi.org/10.1016/j.mmm.2020.05.007.

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Janani, Nandhakumar, VR Hemanth Kumar, Maurya Indubala, and Velraj Jaya. "Patient positioning and glottic visualisation: A narrative review." Airway 3, no. 1 (2020): 13. http://dx.doi.org/10.4103/arwy.arwy_3_20.

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Cené, Crystal W., Beverley H. Johnson, Nora Wells, Beverly Baker, Renee Davis, and Renee Turchi. "A Narrative Review of Patient and Family Engagement." Medical Care 54, no. 7 (July 2016): 697–705. http://dx.doi.org/10.1097/mlr.0000000000000548.

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Leeds, Frederic Stuart, Evan M. Sommer, Wyatt J. Andrasik, Kareem M. Atwa, and Timothy N. Crawford. "A Patient-Narrative Video Approach to Teaching Fibromyalgia." Journal of Medical Education and Curricular Development 7 (January 2020): 238212052094706. http://dx.doi.org/10.1177/2382120520947068.

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Introduction: Although fibromyalgia is one of the most common and clinically important rheumatologic entities, physicians frequently report that their training fails to prepare them to manage this disease. Many medical schools devote insufficient time and attention to the subject of fibromyalgia, resulting in training gaps that can manifest as failures of both knowledge and empathy. There is a need for evidence-based, time-efficient methods for teaching this important subject. We have developed a narrative-driven video presentation for clerkship students and sought to evaluate its impact on fibromyalgia-related knowledge and attitudes. Methods: Fibromyalgia: A Patient’s Perspective (FPP), a 13-minute video, was presented to third-year medical students (N = 54). Surveys of knowledge and attitudes were collected before and after the video. Composite scores, as well as Knowledge and Attitudes subscales, were computed, and paired t tests were used to compare pre/post means for these scales, as well as for individual questions. Mann-Whitney U and Kruskal-Wallis tests were used to identify correlations between survey scores and student sex and specialty of interest. Results: Between pre-experience and post-experience surveys, there were statistically significant differences for 11 of 15 questions (73%). The composite score increased from 3.8 (SD = 0.44) to 4.2 (SD = 0.47) ( P < .0001). Knowledge and Attitude subscale scores also increased, from 4.0 (SD = 0.5) to 4.38 (SD = 0.5) ( P < .0001) and 3.6 (SD = 0.5) to 3.93 (SD = 0.5) ( P < .0001), respectively. Students reported favorable impressions of the video, with 87% agreeing that the video was helpful to learners and 79% disagreeing that a lecture would be preferable to the video. No differences in scores by sex or intended specialty were observed. Conclusion: The FPP video demonstrates promise as a tool for enhancing both knowledge of and positive, empathic attitudes toward fibromyalgia in medical learners. It may serve as a useful resource for educators looking to further develop their clinical pain management curricula.
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Foxall, Fiona, Deborah Sundin, Amanda Towell-Barnard, Beverly Ewens, Vivien Kemp, and Davina Porock. "Revealing Meaning From Story: The Application of Narrative Inquiry to Explore the Factors That Influence Decision Making in Relation to the Withdrawal of Life-Sustaining Treatment in The Intensive Care Unit." International Journal of Qualitative Methods 20 (January 1, 2021): 160940692110283. http://dx.doi.org/10.1177/16094069211028345.

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This paper considers the effectiveness of narrative inquiry as a research method in collecting and analyzing stories from a purposive sample of intensive care nurses and doctors, regarding their perceptions of the factors that influence decision-making in relation to the withdrawal of life sustaining treatment. Delaying the withdrawal of treatment when it is clearly indicated, may result in unnecessary patient suffering at the end of life, distress for the family as well as moral distress for staff. In narrative inquiry participants’ first-hand accounts of their experiences are told through story; the focus of analysis is the story, with the story becoming the object of investigation. Initially, participants’ stories were restoried to produce narratives that were co-constructed between researcher and participant. Narrative analysis, employing McCormack’s lenses and the interconnected analytical lenses, facilitated vertical analysis of each narrative. Horizontal analysis through thematic analysis facilitated the derivation of themes that were consistent within or across narratives. We detail here how narrative inquiry methodology was effective in revealing the meaning participants gave to their decision-making experiences through story, offering a broader understanding of the factors that impact on decision-making regarding the withdrawal of life-sustaining treatment. The study’s findings were powerful, derived from narratives rich and thick in description, depicting a multi-dimensional interpretation of the participants’ perceptions of their decision-making experiences. Participants experienced transformative learning through the narrative process, which led to changes in ways of working in the study setting. Recommendations arose to enhance clinical practice and education in this vital area of practice as a result of this study. The application of narrative inquiry enabled the discovery of significant findings as an avenue to challenge legislation and current opinion regarding the autonomy and role of the family in decision-making.
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Nugroho, Soma Setiawan Ponco, and Muhammad Najamuddin Dwi. "DESIGN OF IDENTIFICATION OF SINGLE DEPRESSION DISORDERS USING NATURAL LANGUAGE PROCESSING MODEL IN PATIENT COMPLAINTS." Indonesian Journal of Business Intelligence (IJUBI) 1, no. 2 (March 7, 2019): 54. http://dx.doi.org/10.21927/ijubi.v1i2.882.

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Unconsciously mental disorders often begin with mild symptoms such as anxiety and depression. In cases of depression with long periods of time can result in disruption of a person's mindset and suicidal arising. Based on WHO data in 2010 suicide rates due to depression in Indonesia reached 1.6 to 1.8 per 100,000 people. Unfortunately the symptoms of depressive disorders are often difficult to recognize because a series of patient complaints are in the form of medical narratives or unstructured texts written by doctors. So to get a diagnosis is done by extracting symptoms from complaints data in the form of medical narrative texts. In this study, a design for identifying a single depressive disorder will be built using rule-based reasoning and the Natural Language Processing approach to extract symptoms in a medical narrative or patient complaint text.
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