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Journal articles on the topic 'Patients’ experiences'

Author: Grafiati

Published: 4 June 2021

Last updated: 18 February 2022

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1

Cerruti, Gabriella, Maria Cotto, Margherita Rivetti, Luciana Servetti, Maddalena Baracco, and Renata Ferrero. "Patients’ Group Experiences." Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis 13, no. 2_suppl (1993): 199–201. http://dx.doi.org/10.1177/089686089301302s48.

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In 11 years of experience with dialysis, we have tried to supply a kind of treatment In our center that takes the patient's physical, psychological, and social needs Into account. We have been able to observe how Important It Is to share the common problems connected with a chronic illness in order to make them appear less dramatic. This led to the Idea of organizing a group holiday in which the patients and their families would be able to spend some time together. As a result of this positive experience, we decided to organize group encounters In which all the problems could be freely discuss

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2

Johansson, Lena, and Andrzej Werbart. "Patients' Views of Therapeutic Action in Psychoanalytic Group Psychotherapy." Group Analysis 42, no. 2 (2009): 120–42. http://dx.doi.org/10.1177/0533316409104361.

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Patients' views of curative and hindering factors in psychoanalytic group psychotherapy are explored, starting with semi-structured interviews with 28 young adult patients at therapy termination. Using grounded theory methodology, a theoretical model of therapeutic action is constructed, elucidating the interactions between positive and negative experiences in the group. The focal point appears to be the patient's experience of their own activity within the context of the group as whole, leading to increased self-knowledge and improved handling of emotions. The positively experienced change is

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Wahyuni, Sri Eka, Mahnum Lailan Nst, and Wardiyah Daulay. "The Patient Experiences Hallucinations with Schizophrenia." Open Access Macedonian Journal of Medical Sciences 9, T3 (2021): 112–15. http://dx.doi.org/10.3889/oamjms.2021.6350.

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BACKGROUND: Hallucination is the psychosis symptom which mostly experienced by patients with schizophrenia. It is also the experience of false perception undergone by patients without any stimulus from the environment. That experience of perception is real to the patients but not for others who do not have similar perception of experience with the patients. AIM: This research is phenomenological and aims for describing experiences of patients with schizophrenia who had hallucination. MATERIALS AND METHODS: This research took 15 patients. In this research, approaches and trust-build

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van der Aa, Maartje J., Jennifer R. van den Broeke, Karien Stronks, and Thomas Plochg. "Patients with Multimorbidity and Their Experiences with the Healthcare Process: A Scoping Review." Journal of Comorbidity 7, no. 1 (2017): 11–21. http://dx.doi.org/10.15256/joc.2017.7.97.

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Background The number of patients with multimorbidity (two or more conditions) is increasing. Observational research has shown that having multiple health problems is associated with poorer outcomes in terms of health, quality of care, and costs. Thus, it is imperative to understand how patients with multimorbidity experience their healthcare process. Insight into patient experiences can be used to tailor healthcare provision specifically to the needs of patients with multimorbidity. Objective To synthesize self-reported experiences with the healthcare process of patients with multimorbidity,

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5

Lucas, Shawn. "Assessing Transcendental Experiences vs Mental Illnesses." Journal of Pastoral Care & Counseling: Advancing theory and professional practice through scholarly and reflective publications 71, no. 4 (2017): 267–73. http://dx.doi.org/10.1177/1542305017737780.

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In our experience, being able to differentiate between mental illness and transcendent experiences has led patients to remain engaged in treatment. This is important since those who have experienced religious preoccupation are the least likely to seek out mental health care. We have developed a “Transcendent Assessment Tool” to assist clinicians and clients in discerning whether an experience is a delusion or part of a transcendent experience.

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6

Outlaw, Peter, Shiva Tripathi, and Jacqueline Baldwin. "Using patient experiences to develop services for chronic pain." British Journal of Pain 12, no. 2 (2018): 122–31. http://dx.doi.org/10.1177/2049463718759782.

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Purpose: The aim of this study was to improve the overall experience for patients using chronic pain services at a large teaching hospital in England. Experience-based co-design methodology was used to gain a greater understanding of patients’ experiences and to produce a list of priorities for change when improving the patient experience. Method: A total of seven video-recorded patient interviews were conducted to capture a range of patient experiences of using the chronic pain service. The interviews were analysed to identify ‘touchpoints’ which are areas in which patients experienced a heig

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Örmon, Karin, and Ulrica Hörberg. "The unnecessary suffering and abuse caused by healthcare professionals needs to stop: A study regarding experiences of abuse among female patients in a general psychiatric setting." Clinical Nursing Studies 5, no. 4 (2017): 59. http://dx.doi.org/10.5430/cns.v5n4p59.

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Objective: Healthcare, from a caring science perspective, aims to support the patients’ health processes. All healthcare is, however, not experienced as being caring by the patients. Consequences of abuse in healthcare (AHC) services have effects on the patients’ health and well-being. The aim of this study was to explore experiences of abuse from healthcare professionals among female patients in a general psychiatric clinic.Methods: In the cross-sectional study design, data from female patients receiving outpatient or inpatient care at a general psychiatric clinic about their experiences of a

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8

MACARIE, George, Ruxandra FILIPESCU, and Ana Voichita TEBEANU. "Framing the Cancer Patients Life Experiences and Attitudes: a Psychosomatic Approach." Postmodern Openings 4, no. 1 (2013): 103–16. http://dx.doi.org/10.18662/po/2013.0401.08.

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9

Johansson, Anders, Monica Larsson, and Bodil Ivarsson. "Patients’ Experiences With a Digital Primary Health Care Concept Using Written Dialogues: A Pilot Study." Journal of Primary Care & Community Health 11 (January 2020): 215013272091056. http://dx.doi.org/10.1177/2150132720910564.

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Background: The changing health care environment promotes the adoption of new information technologies to connect patients and health care providers. However, individuals greatly vary in their ability to use new digital systems, and in their feelings regarding integrity and validation. Caregivers in southern Sweden plan to implement a new digital primary health care (DPHC) service, and patients’ experiences must be studied to guide the best possible implementation of this service. Purpose: To examine the patients’ experiences with DPHC using written dialogues. Method: Patients were consecutive

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10

Maguire, N. "Personal experiences of home haemodialysis: patients' and carers' experiences." Clinical Kidney Journal 4, suppl 3 (2011): iii25—iii26. http://dx.doi.org/10.1093/ndtplus/sfr125.

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11

Lawrence, M. "The unconscious experience." American Journal of Critical Care 4, no. 3 (1995): 227–32. http://dx.doi.org/10.4037/ajcc1995.4.3.227.

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BACKGROUND: Although considerable research has been done on pathophysiology, metabolic and physical causes, and prognostic indicators, little is known about unconsciousness or coma from the perspective of the patient. OBJECTIVE: To describe the experiences of patients who were once documented as being unconscious. METHODS: Phenomenologic interviews were conducted with 100 patients whose records indicated that they had been unconscious during hospitalization. Interviews were also attempted with primary family members, significant others, or other external observers. Chart audits documenting the

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12

Kumah, Emmanuel. "Impact of Tracking Trends in Patients’ Hospital Experiences." International Journal of Person Centered Medicine 7, no. 1 (2017): 5–13. http://dx.doi.org/10.5750/ijpcm.v7i1.621.

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Background: Capturing patients’ experiences of care and using the results to improve service quality is one of the key approaches to building person-centered care in healthcare organizations. Studies have suggested that systematic gathering of patients’ feedback through surveys may lead to improvements in care experiences across health systems and within organizations. While trends in patient experience have been considered at the national level, there is little evidence of systematic analyses of long-term trends at the local or organizational level.Objective: The purpose of this study was to

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13

Vatne, May, and Dagfinn Nåden. "Patients’ experiences in the aftermath of suicidal crises." Nursing Ethics 21, no. 2 (2013): 163–75. http://dx.doi.org/10.1177/0969733013493218.

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The aim of this study was to explore the experiences of being suicidal and the encounter with healthcare personnel. The research question was, ‘How did the suicidal patient experience the encounter with healthcare personnel?’ Data were collected, analysed and interpreted using a hermeneutic approach. Qualitative research interviews were used to collect data. Participants included 10 people: 4 women and 6 men aged 21–52 years. With the exception of one person, they had all experienced one or more suicide attempts. The study requires ethical considerations in planning and interviews as well as i

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14

Kim, Hyeon-Young, Ji-Hye Lee, and Eun-Hye Lee. "Virtual Experience of Perioperative Patients: Walking in the Patients’ Shoes Using Virtual Reality and Blended Learning." International Journal of Environmental Research and Public Health 18, no. 12 (2021): 6457. http://dx.doi.org/10.3390/ijerph18126457.

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PURPOSE: This study examined the significance, nature, and structure of the virtual experience of perioperative patients as undergone by nursing students during their practical training through VR and blended learning. METHODS: Data were collected through a focus group interview (FGI) of 21 nursing student participants from November 2019 to December 2019 and analyzed through Colaizzi’s phenomenological method. RESULTS: Seven theme clusters were organized that described nursing students’ experiences. They are “placed in a passive position,” “facing the limits of communication,” “thinking of dev

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15

Shaverdian, Narek, Debra N. Yeboa, Liz Gardner, et al. "Nationwide Survey of Patients’ Perspectives Regarding Their Radiation and Multidisciplinary Cancer Treatment Experiences." Journal of Oncology Practice 15, no. 12 (2019): e1010-e1017. http://dx.doi.org/10.1200/jop.19.00376.

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PURPOSE: The perspectives of patients with cancer about their treatment can inform interventions to improve the approaches of treating oncologists and experiences of future patients. We sought to identify areas where current toxicity management, informed consent processes, and physician-patient communication merit improvement. METHODS: In a Web-based survey administered from March to May 2018 using quota-based sampling to draw a nationwide sample of US patients with cancer treated with radiotherapy within the past 5 years, we evaluated patient perceptions of adequacy of information about adver

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16

Neves, Carina de Morais, Yone de Almeida Nascimento, Mariana Martins Gonzaga do Nascimento, et al. "“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis." Research, Society and Development 10, no. 9 (2021): e0110917071. http://dx.doi.org/10.33448/rsd-v10i9.17071.

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Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of wh

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17

Twiss, James, Stephen P. McKenna, Sigrid Rebecca Crawford, Jeanette N. Wilburn, Kevin Loth, and Ghulam J. Mufti. "Myelodysplasia (MDS) patients' Experiences with Blood Transfusions." Blood 118, no. 21 (2011): 5033. http://dx.doi.org/10.1182/blood.v118.21.5033.5033.

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Abstract Abstract 5033 Introduction: Although the main treatment for MDS is blood transfusions, scarce information is available on patients' experiences of the treatment. Only one relevant study could be identified which reported that patients have a preference for being transfusion independent (Szende et al. Valuation of transfusion-free living in MDS: results of health utility interviews with patients. (2009). Health Qual Life Outcomes, 7:81). As part of a study investigating the effect of MDS and its treatment on quality of life, patients were asked about their experiences with transfusions

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18

Hellewell, Jonathan S. E. "Patients?? Subjective Experiences of Antipsychotics." CNS Drugs 16, no. 7 (2002): 457–71. http://dx.doi.org/10.2165/00023210-200216070-00003.

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19

Alifrangis, C., L. Koizia, A. Rozario, et al. "The experiences of cancer patients." QJM 104, no. 12 (2011): 1075–81. http://dx.doi.org/10.1093/qjmed/hcr129.

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20

Seymour, Jane, Christine Ingleton, Sheila Payne, and Vikki Beddow. "Specialist palliative care: patients’ experiences." Journal of Advanced Nursing 44, no. 1 (2003): 24–33. http://dx.doi.org/10.1046/j.1365-2648.2003.02764.x.

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21

Archibald, Graeme. "Patients’ experiences of hip fracture." Journal of Advanced Nursing 44, no. 4 (2003): 385–92. http://dx.doi.org/10.1046/j.0309-2402.2003.02817.x.

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22

Black, N., and C. Jenkinson. "Measuring patients' experiences and outcomes." BMJ 339, jul02 1 (2009): b2495. http://dx.doi.org/10.1136/bmj.b2495.

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23

Gustavsson, Marie-Louise, Kjell-Arne Ung, Åsa Nilsson, and Eva Jakobsson. "Patients’ experiences of gallstone disease." Gastrointestinal Nursing 9, no. 10 (2011): 23–27. http://dx.doi.org/10.12968/gasn.2011.9.10.23.

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24

Stigsdotter Nyström, Maria E., and Maria Nyström. "PATIENTS' EXPERIENCES OF RECURRENT DEPRESSION." Issues in Mental Health Nursing 28, no. 7 (2007): 673–90. http://dx.doi.org/10.1080/01612840701416064.

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25

Ekedahl, B. E. Anders. "Patients′Experiences of Splitting Tablets." Clinical Medicine Research 2, no. 4 (2013): 58. http://dx.doi.org/10.11648/j.cmr.20130204.14.

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26

Cheung, Janet M. Y., Delwyn J. Bartlett, Carol L. Armour, Nicholas Glozier, and Bandana Saini. "Insomnia Patients' Help-Seeking Experiences." Behavioral Sleep Medicine 12, no. 2 (2013): 106–22. http://dx.doi.org/10.1080/15402002.2013.764529.

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27

Voorhees, Arthur B., and Robert H. E. Elliott. "SURGICAL EXPERIENCES WITH THROMBOCYTOPENIC PATIENTS*." Annals of the New York Academy of Sciences 115, no. 1 (2006): 179–85. http://dx.doi.org/10.1111/j.1749-6632.1964.tb41044.x.

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28

Brod, M., G. A. Mendelsohn, and B. Roberts. "Patients' Experiences of Parkinson's Disease." Journals of Gerontology Series B: Psychological Sciences and Social Sciences 53B, no. 4 (1998): P213—P222. http://dx.doi.org/10.1093/geronb/53b.4.p213.

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29

Yakeley, Jessica, and Heather Wood. "Patients' experiences of forensic psychotherapy." Psychoanalytic Psychotherapy 25, no. 1 (2011): 105–14. http://dx.doi.org/10.1080/02668734.2010.519160.

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30

Ellefsen, Bodil. "Dependency as disadvantage - patients' experiences." Scandinavian Journal of Caring Sciences 16, no. 2 (2002): 157–64. http://dx.doi.org/10.1046/j.1471-6712.2002.00073.x.

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31

Sörensen Duppils, Gill, and Karin Wikblad. "Patients? experiences of being delirious." Journal of Clinical Nursing 16, no. 5 (2007): 810–18. http://dx.doi.org/10.1111/j.1365-2702.2006.01806.x.

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32

Price, Patricia. "Patients’ experiences of leg ulceration." British Journal of Community Nursing 6, Sup2 (2001): 22–26. http://dx.doi.org/10.12968/bjcn.2001.6.sup2.12630.

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33

Jerofke-Owen, Teresa, and Margaret Bull. "Nurses’ Experiences Empowering Hospitalized Patients." Western Journal of Nursing Research 40, no. 7 (2017): 961–75. http://dx.doi.org/10.1177/0193945917701395.

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Four focus groups were conducted to explore acute care nurses’ experiences empowering patients and the facilitators and barriers they encountered during the process. Thirty-four nurses employed at four hospitals in the Midwestern United States participated in the study between February and April 2015. Facilitators of empowerment included establishing a therapeutic relationship, fostering communication, providing education, respecting patient autonomy, engaging support systems, and lifting spirit/giving hope. Barriers included conflicting information about plans of care, lack of time, fear and

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34

Branney, Peter, Karl Witty, and Ian Eardley. "Patients’ Experiences of Penile Cancer." European Urology 59, no. 6 (2011): 959–61. http://dx.doi.org/10.1016/j.eururo.2011.02.009.

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35

Zanarini, Mary C., John G. Gunderson, Margaret F. Marino, Elizabeth O. Schwartz, and Frances R. Frankenburg. "Childhood experiences of borderline patients." Comprehensive Psychiatry 30, no. 1 (1989): 18–25. http://dx.doi.org/10.1016/0010-440x(89)90114-4.

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36

Miller, Peter, Richard Gunderman, Justin Lightburn, and David Miller. "Enhancing Patients' Experiences in Radiology." Academic Radiology 20, no. 6 (2013): 778–81. http://dx.doi.org/10.1016/j.acra.2012.12.015.

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37

Haldar, Shefali, Sonali R. Mishra, Ari H. Pollack, and Wanda Pratt. "Informatics opportunities to involve patients in hospital safety: a conceptual model." Journal of the American Medical Informatics Association 27, no. 2 (2019): 202–11. http://dx.doi.org/10.1093/jamia/ocz167.

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Abstract Objective Inpatients could play an important role in identifying, preventing, and reporting problems in the quality and safety of their care. To support them effectively in that role, informatics solutions must align with their experiences. Thus, we set out to understand how inpatients experience undesirable events (UEs) and to surface opportunities for those informatics solutions. Materials and Methods We conducted a survey with 242 patients and caregivers during their hospital stay, asking open-ended questions about their experiences with UEs. Based on our qualitative analysis, we d

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38

Karhe,, Liisa, and Marja Kaunonen,. "Patients’ Experiences of Loneliness in a Professional Caring Relationship." International Journal of Human Caring 19, no. 1 (2015): 19–26. http://dx.doi.org/10.20467/1091-5710.19.1.19.

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The aim of this qualitative interview study is to describe breast cancer and heart surgery patients’ experiences of loneliness in a professional caring relationship. Martin Buber’s perspective on loneliness provides an ontological basis for the examination of loneliness in the context of a professional caring relationship. Loneliness is a difficult experience for patients in a caring relationship to accept and handle. These experiences followed patients for years. An ontological perspective on loneliness helps to provide a deeper understanding of patients’ experiences in a caring relationship.

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39

Świtaj, P., J. Wciórka, J. Smolarska-Świtaj, and P. Grygiel. "Extent and predictors of stigma experienced by patients with schizophrenia." European Psychiatry 24, no. 8 (2009): 513–20. http://dx.doi.org/10.1016/j.eurpsy.2009.06.003.

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AbstractBackgroundSchizophrenia is regarded as one of the most stigmatized mental illnesses. Relatively few studies have investigated actual stigma experiences among people with schizophrenia and the factors which may contribute to it.AimsThis cross-sectional study assesses the extent of stigma experienced by patients with schizophrenia and attempts to establish its clinical and sociodemographic predictors.MethodsA total of 153 subjects with schizophrenia (62 outpatients and 91 inpatients) were evaluated with the use of the Stigma section of the Consumer Experiences of Stigma Questionnaire (CE

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40

Steinhoff, Bernhard J., Matthias Bacher, Thomas Bast, et al. "First clinical experiences with perampanel-The Kork experience in 74 patients." Epilepsia 55 (January 2014): 16–18. http://dx.doi.org/10.1111/epi.12492.

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41

Berg, Siv Hilde, Kristine Rørtveit, Fredrik A. Walby, and Karina Aase. "Safe clinical practice for patients hospitalised in mental health wards during a suicidal crisis: qualitative study of patient experiences." BMJ Open 10, no. 11 (2020): e040088. http://dx.doi.org/10.1136/bmjopen-2020-040088.

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AimThe aim of this study was to explore suicidal patients’ experiences of safe clinical practice during hospitalisation in mental health wards. The study was guided by the following research question: How do suicidal patients experience safe clinical practice during hospitalisation in mental health wards?Design, setting and participantsA qualitative design with semistructured individual interviews was applied. Eighteen patients hospitalised with suicidal behaviour in specialised mental health wards for adults at a Norwegian hospital participated in the study. Data were analysed thematically an

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42

Carroll, J., S. G. Humiston, C. M. Salamone, P. Jean-Pierre, R. M. Epstein, and K. Fiscella. "Patients’ experiences with navigation for cancer care." Journal of Clinical Oncology 27, no. 15_suppl (2009): e17520-e17520. http://dx.doi.org/10.1200/jco.2009.27.15_suppl.e17520.

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e17520 Background: Patient navigation is a promising strategy for improving cancer care. We examined (1) how navigation influences patients’ perspectives on their cancer care and (2) the most effective (i.e., meaningful or valuable) aspects of navigation from the patient's viewpoint. Methods: We conducted post-study patient interviews from a randomized controlled trial (usual care vs. patient navigation services) from cancer diagnosis through treatment completion. Patients were recruited from 11 primary care, hospital and community oncology practices in Monroe County, NY. We interviewed patien

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43

Kabel, Allison. "The Dying Process: Patients' Experiences of Palliative Care:The Dying Process: Patients' Experiences of Palliative Care." Medical Anthropology Quarterly 18, no. 1 (2004): 117–18. http://dx.doi.org/10.1525/maq.2004.18.1.117.

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44

Butcher, Lesley. "Psychological issues surrounding faecal incontinence: experiences of patients and nurses." British Journal of Community Nursing 25, no. 1 (2020): 34–38. http://dx.doi.org/10.12968/bjcn.2020.25.1.34.

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Continence care breaches social norms about privacy, nakedness and bodily functions. Faecal incontinence (FI) is a condition that is associated with a significant emotional impact, which extends to not only the patient but also the nurse or care worker. Patients can experience feelings of guilt and shame and a sense of ‘incompetence’, which can be connected to childhood experiences. Similarly, nurses and caregivers can encounter feelings of disgust and revulsion, which are often denied, as part of the perceived professional expectation. Nurses can develop self-protective behaviours including e

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Narotam, Heena, and Helen E. Sammons. "Exploring Experiences of Expressive Aphasia in Brain Injury Patients: A Qualitative Study." International Journal of Person Centered Medicine 7, no. 2 (2018): 125–37. http://dx.doi.org/10.5750/ijpcm.v7i2.622.

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Background: Aphasia affects 0.37% of South Africans. Expressive aphasic patients’ ability to react appropriately to the environment contributes to their hospital experience, and ultimately their mental health and recovery. The challenge of communication for these patients makes it important to anticipate their experiences. Objectives: The purpose of the present study was to explore the patterns of patient experiences in relation to expressive aphasia following brain injuries in order to identify helpful recommendations for alternative communication and for promoting mental health and well-bein

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46

Bowman, Amy C., Humam Saltaji, Carlos Flores-Mir, Brian Preston, and Sawsan Tabbaa. "Patient experiences with the Forsus Fatigue Resistant Device." Angle Orthodontist 83, no. 3 (2012): 437–46. http://dx.doi.org/10.2319/081112-647.1.

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ABSTRACT Objective: To investigate patients' experiences with the Forsus Fatigue Resistant Device (FFRD). Methods: This was a survey focused on patient's comprehensive experience with FFRD, both initially and after several months of wear, including the patient's overall impression of the appliance. The survey was administered to 70 patients wearing FFRD in both university and private practice settings. Results: A high percentage (81.5%) reported a neutral to favorable experience with FFRD; 89.8% reported growing accustomed to the appliance within 4 weeks. The majority of those who had previous

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47

Hupcey, JE, and HE Zimmerman. "The need to know: experiences of critically ill patients." American Journal of Critical Care 9, no. 3 (2000): 192–98. http://dx.doi.org/10.4037/ajcc2000.9.3.192.

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BACKGROUND: Critically ill patients vary in their memories of their experience in the intensive care unit. Some have little recall and need to learn about their critical illness. Others have more vivid memories of their experiences, some of which were extremely unpleasant. Patients' not knowing what was happening may have exacerbated the unpleasant experiences. OBJECTIVES: To elicit the experience of knowing for critically ill patients and to explore the differences in perceptions between patients who were intubated and those who were not intubated during the illness. METHODS: Grounded theory

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48

Bianconi, F., M. Bonomo, A. Marconi, et al. "Differences in cannabis-related experiences between patients with a first episode of psychosis and controls." Psychological Medicine 46, no. 5 (2015): 995–1003. http://dx.doi.org/10.1017/s0033291715002494.

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BackgroundMany studies have reported that cannabis use increases the risk of a first episode of psychosis (FEP). However, only a few studies have investigated the nature of cannabis-related experiences in FEP patients, and none has examined whether these experiences are similar in FEP and general populations. The aim of this study was to explore differences in self-reported cannabis experiences between FEP and non-psychotic populations.MethodA total of 252 subjects, who met International Classification of Diseases (ICD)-10 criteria for FEP, and 217 controls who reported cannabis use were selec

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49

Kayastha, Neha, Kathryn I. Pollak, and Thomas William LeBlanc. "Open notes: A qualitative study of oncology patients’ experiences reading their cancer care notes." Journal of Clinical Oncology 35, no. 31_suppl (2017): 33. http://dx.doi.org/10.1200/jco.2017.35.31_suppl.33.

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33 Background: Electronic medical record systems and patient portals increasingly allow patients direct access to their clinicians’ notes.While most believe that open notes benefit patients, some suggest negative consequences. Little is known about cancer patients’ experiences reading their own medical records outside of the primary care setting. We aimed to describe the experiences of patients with advanced cancer who read their own cancer care notes. Methods: We recruited 20 adult patients with metastatic or incurable cancer who were receiving active cancer treatment to participate in semi-s

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50

Al-Zyoud, Eman, Mahmoud Maharmeh, and Muayyad Ahmad. "Family experiences of caregiving to patients with Alzheimer." Working with Older People 25, no. 2 (2021): 115–22. http://dx.doi.org/10.1108/wwop-02-2020-0006.

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Purpose This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being. Design/methodology/approach The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews. Findings Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of fa

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