Relevant bibliographies by topics / Person centered care

Contents

  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters
  5. Conference papers
  6. Reports

Academic literature on the topic 'Person centered care'

Author: Grafiati
Published: 4 June 2021
Last updated: 1 February 2025

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Journal articles on the topic "Person centered care"

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Talerico, Karen Amann, and Kristen L. Swafford. "Person-Centered Care." Journal of Psychosocial Nursing and Mental Health Services 41, no. 11 (November 1, 2003): 12–16. http://dx.doi.org/10.3928/0279-3695-20031101-10.

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Yahnke, R. E. "Person-Centered Care." Gerontologist 39, no. 2 (April 1, 1999): 249. http://dx.doi.org/10.1093/geront/39.2.249.

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Parse, Rosemarie Rizzo. "Person-Centered Care." Nursing Science Quarterly 17, no. 3 (July 2004): 193. http://dx.doi.org/10.1177/0894318404266314.

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Jones, Carol S. "Person-Centered Care." Journal of Gerontological Nursing 37, no. 6 (March 16, 2011): 18–23. http://dx.doi.org/10.3928/00989134-20110302-04.

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Lines, Lisa M., Michael Lepore, and Joshua M. Wiener. "Patient-centered, Person-centered, and Person-directed Care." Medical Care 53, no. 7 (July 2015): 561–63. http://dx.doi.org/10.1097/mlr.0000000000000387.

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Kaes, Loretta, and Marjorie Risola. "Palliative care, person-centered care." Geriatric Nursing 38, no. 3 (May 2017): 262–63. http://dx.doi.org/10.1016/j.gerinurse.2017.05.010.

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Eisenberg, Jeffrey S. "Advancing Person-Centered Care." Caring for the Ages 25, no. 7 (October 2024): 18. http://dx.doi.org/10.1016/j.carage.2024.08.010.

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de Maagt, Sem, and Ingrid Robeyns. "Can Person-Centered Care Deal With Atypical Persons?" American Journal of Bioethics 13, no. 8 (August 2013): 44–46. http://dx.doi.org/10.1080/15265161.2013.804340.

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Woodhead, Christopher. "Eighth Geneva Conference on Person Centered Medicine, Person Centered Primary Care." International Journal of Person Centered Medicine 4, no. 1 (November 20, 2014): 61. http://dx.doi.org/10.5750/ijpcm.v4i1.469.

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Nichols, Jeffrey. "What is Person-Centered Care?" Caring for the Ages 22, no. 5 (June 2021): 4–5. http://dx.doi.org/10.1016/j.carage.2021.05.010.

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Dissertations / Theses on the topic "Person centered care"

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Cole, Min. "Implementation of Person-Centered Care [PCC]." Thesis, University of North Texas, 2005. https://digital.library.unt.edu/ark:/67531/metadc1505202/.

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To meet the growing demand for community-based adult services (CBAS) adult day health care (ADHC) programs, it is important these programs make the necessary modifications in their systems of care to embrace a person-centered care (PCC) model. This study was designed to create an assessment to determine a community-based CBAS/ADHC program's readiness to meet the new federal standards as determined by the program's current operational evidence and by center participants', their families' as well as staff's perspectives. This was measured by self-report of access to the community, choice of setting, individual rights, autonomy and independence, choice of services and supports, center accessibility as well as their needs and preferences in the practice. Results will assist similar CBAS/ADHCs in identifying the necessary modifications within their own program to continue as a certified licensed entity and remain a viable agency.
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Flesner, Marcia K. "Person centered care : a model for nursing homes /." free to MU Campus, others may purchase, 2003. http://wwwlib.umi.com/cr/mo/fullcit?p3091924.

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Heston, Jennifer L. "The Role of Direct Care Workers in Person-Centered Home Care." Miami University / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=miami1491987309873559.

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Strollo, Jennifer Miranda. "Direct Care Staffs’ Experiences and Perceptions of Person-Centered Care Training." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/7756.

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Many long-term care (LTC) facilities within the United States have replaced the institutional model of care with one that accepts person-centered care (PCC) as the guiding standard of practice. Quality training ensures that direct care staff have the skills and the knowledge in the delivery of quality PCC. However, many nurses and nursing assistants have expressed the desire for further training in PCC practices to effectively deliver quality care. The purpose of this study was to explore the types and length of training and education provided based on the perceptions and experiences of direct care staff related to their implementation of PCC practices. The theoretical framework for this study consisted of Rogers’ PCC approach theory and philosophy. A qualitative interpretative phenomenological design was used to examine the perceptions of training and education of 20 certified nursing assistants using semistructured interviews. Once the interviews were conducted and transcribed, the data were coded into superordinate themes that stemmed from participant responses. Themes of PCC practices, teaching modalities, learner type, length, and introduction of training were identified as a result of the data analysis. The data also revealed that it is important for LTC facilities to be aware of how they are providing PCC education and training to their staff so that they may provide their residents with quality individualized care that emphasizes the whole person. Study findings may inform LTC administrators, leaders, and managers on the deliverance of effective training and educational practices when implementing PCC models within their facilities. The results may also spur national LTC organizations to refocus their core beliefs, values, and culture towards a culture that considers the whole person.
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Ashburner, Charlotte Hill. "Person-centered care : using systemic and psychodynamically informed action research." Thesis, City University London, 2005. http://openaccess.city.ac.uk/8476/.

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This paper describes a three-year action research project, aimed to support staff in recognising and responding to loss of personhood in a continuing care setting. The context of this study was a National Health Service (NHS) nursing home for the long term care of older people. Interventions used to support this development included the collection and sharing of residents' life histories, weekly team supervision meetings for staff, an action learning set for managers, and monthly external supervised meetings for both the action researcher and senior manager. This paper reports on the processes and outcomes of change achieved and the learning gained from working in a collaborative way with staff. Given that current policy indicates the need for person-centred care (Department of Health 2001a), this study provides a possible mechanism for putting it into practice, through a systems and psychodynamically informed approach.
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Cole, Min. "Implementation of Person-Centered Care (PCC): A Descriptive Case Study." Thesis, University of North Texas, 2019. https://digital.library.unt.edu/ark:/67531/metadc1505202/.

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To meet the growing demand for community-based adult services (CBAS) adult day health care (ADHC) programs, it is important these programs make the necessary modifications in their systems of care to embrace a person-centered care (PCC) model. This study was designed to create an assessment to determine a community-based CBAS/ADHC program's readiness to meet the new federal standards as determined by the program's current operational evidence and by center participants', their families' as well as staff's perspectives. This was measured by self-report of access to the community, choice of setting, individual rights, autonomy and independence, choice of services and supports, center accessibility as well as their needs and preferences in the practice. Results will assist similar CBAS/ADHCs in identifying the necessary modifications within their own program to continue as a certified licensed entity and remain a viable agency.
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Ndeutchoua, Laure Bertille. "Facilitating Person-Centered Care for People with Intellectual and Developmental Disabilities." ScholarWorks, 2016. https://scholarworks.waldenu.edu/dissertations/3186.

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The patient centered care (PCC) model is recommended by the Institute of Medicine for individuals with intellectual and developmental disabilities. The problem identified in this quality improvement (QI) project was that PCC practices had not been included in the training curriculum within the organization. Framed within the plan-do-study-act model of QI, the purpose of this project was to develop an educational initiative on PCC that included a curriculum plan, a pretest/posttest, a protocol, a revision of the training policy, and an implementation and evaluation plan. Drawing upon the evidence-based literature and using a team approach, a curriculum plan on PCC practices was developed which included a pretest/posttest to evaluate staff knowledge on the curriculum before and after the training. Three content experts from the committee approved the curriculum and validated the pretest/posttest items. The content validation index was 0.99 showing that each item reflected the content and objectives of the curriculum. As well, a training protocol was developed which identified the steps for provision of the curriculum to maintain consistency for all users. The training policy was revised to set expectations for all staff for the incorporation of the PCC practices into the organization. This initiative will be implemented into the organization using Kurt Lewin’s model of change to guide PCC practices. A recommendation was made to add a small section on “people’s first language” to the training to preserve patients’ dignity and respect during communication. This project contributes to social change by promoting PCC practices among healthcare workers thus limiting healthcare disparities and improving access for persons with intellectual developmental disabilities.
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Hughes, LaTonya Dickerson. "The Nurse and Certified Nursing Assistant Perception of Person-Centered Care." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6585.

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Over the last decade, long-term care facilities have transitioned from institutional care models that focus on person-centered care, in which the resident is the center of the care. The purpose of this study is to explore the nurse and certified nursing assistant perception of the person-centered care services they deliver. Jean Watson's theory of human caring is the theoretical framework that guided this study. The theory focusing on the human caring experiences and person-centered care is being characterized as a caring feeling. The carative factors of Watson's theory, the fundamental concept of caring, has been associated with improved outcomes for the resident and the caregiver. Using a phenomenology research design, 3 focus groups of 15 nurses and 10 certified nursing assistants (CNA), working in a long-term care facility, were asked questions to describe their perception of person-centered care. The responses from the 25 participants were stored and organized using Nvivo. The thematic analysis revealed that the nurses and CNAs perceived person-centered care to include the caring and compassionate approach taken when care is being delivered. The participants also shared that person-centered care included involving the resident in decision making through communicating openly and developing relationships. The discussions revealed that 8 carative factors influenced their understanding, with the main factor being the creative problem-solving method for decision making. The �ndings from this study have the potential to impact positive social change at the organizational level, influencing the delivery of care within long-term care settings.
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Stock, Debbie G. "Exploring Person-Centered Accountability as a Complementary Approach to Regulatory-Centered Accountability| An Action Research Study." Thesis, Northcentral University, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=3728217.

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Accountability in healthcare tends to dominate discussions focused on improving the quality of care, the experience of patients, pay-for-performance, and engaging employees to produce positive performance outcomes. Organizational leaders are held to answer to external regulatory agencies about performance outcomes based on prescribed standards. Frequently, these agencies adopt a punitive approach by imposing rewards and penalties for achieving or failing to meet the performance standards. Furthering the challenges, organizational leaders are expected to model accountability, hold employees accountable, and be a source for inspiration and motivation. The purpose of this qualitative action research study was to examine person-centered accountability (PCA), or the use of positive leadership, positive practices, and positive emotions, as a complementary approach to regulatory-centered accountability (RCA). Six workshops influenced by appreciative inquiry, a practice period, participant journals, interviews and the use of a portable biofeedback device to measure positive emotions were all utilized to develop an understanding of participant’s experiences and perceptions about the value of PCA and RCA. Participants were clinical and non-clinical leaders at a Midwest medical center. Results from this study revealed the participants’ perception about the holistic and interdependent nature of PCA and RCA. Integrating PCA and RCA requires a change in philosophies as well as day-to-day accountability practices. Leaders and employees need to use both PCA and RCA to improve performance outcomes, therefore, it is important to create an organizational reset to change beliefs about accountability, build leadership capacity, and invest in employees. Future research is needed to evaluate the long-term impact of PCA and RCA on performance outcomes in and out of healthcare.

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Louw, Brenda, and Linda Vallino. "Person Centered Cleft Care: Evolutionary Practice by Giving Our Clients a Voice." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/7756.

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Books on the topic "Person centered care"

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Glas, Gerrit. Person-Centered Care in Psychiatry. Abingdon, Oxon ; New York, NY : Routledge, 2019.: Routledge, 2019. http://dx.doi.org/10.4324/9780429242960.

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author, Disch Joanne Marilyn, Walton Mary K. author, and Sigma Theta Tau International, eds. Person- and family-centered care. Indianapolis, IN: Sigma Theta Tau International, Honor Society of Nursing, 2014.

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Sassen, Barbara. Improving Person-Centered Innovation of Nursing Care. Cham: Springer Nature Switzerland, 2023. http://dx.doi.org/10.1007/978-3-031-35048-1.

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author, Manthey Marie, Manthey Marie, and Creative HealthCare Management (Minneapolis, Minn.), eds. Primary nursing: Person-centered care delivery system design. Minneapolis, MN: Creative Health Care Management, 2015.

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Rantz, Marilyn J. Person centered care: A model for nursing homes. Washington, D.C: American Nurses Association, 2003.

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Bower, Anne R. Redefining person-centered care: A roadmap for culture change. [New York City]: Alzheimer's Association, New York City Chapter, 2008.

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C, Gaventa William, and Coulter David L, eds. End-of-life care: Bridging disability and aging with person-centered care. Binghamton, NY: Haworth Pastoral Press, 2005.

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Boggatz, Thomas. Quality of Life and Person-Centered Care for Older People. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-29990-3.

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Salloum, Ihsan M., Juan E. Mezzich, C. Robert Cloninger, George N. Christodoulou, and Michel Botbol. Person Centered Psychiatry. Springer London, Limited, 2016.

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Salloum, Ihsan M., Juan E. Mezzich, C. Robert Cloninger, George N. Christodoulou, and Michel Botbol. Person Centered Psychiatry. Springer, 2018.

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Book chapters on the topic "Person centered care"

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Garcia, Danilo, Kevin M. Cloninger, Kristian Molander-Söderholm, Lil Carleheden Ottosson, Inger Jönsson, Max Rapp Riccciardi, Andrzej Zielinski, et al. "Person-Centered Care." In Encyclopedia of Personality and Individual Differences, 3872–78. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-319-24612-3_2304.

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Garcia, Danilo, Kevin M. Cloninger, Kristian Molander-Söderholm, Lil Carleheden Ottosson, Inger Jönsson, Max Rapp Riccciardi, Andrzej Zielinski, et al. "Person-Centered Care." In Encyclopedia of Personality and Individual Differences, 1–7. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-28099-8_2304-1.

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Davidson, Larry, Janis Tondora, Rebecca Miller, and Maria J. O'Connell. "Person-centered care." In Person-centered care for mental illness: The evolution of adherence and self-determination., 81–102. Washington: American Psychological Association, 2015. http://dx.doi.org/10.1037/14644-005.

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Grassi, Luigi, Michelle Riba, Marijana Bras, and Paul Glare. "Person-Centered Palliative Care." In Person Centered Psychiatry, 487–500. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-39724-5_35.

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Spruijt, Odette, Dante E. Manyari, Rachel Halpin-Evans, and Paul Glare. "Person-Centered Palliative Care." In Person Centered Medicine, 615–35. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-17650-0_37.

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Lincetto, Ornella, Saverio Bellizzi, Silke Mader, Arti Maria, John Cox, and Nathalie Charpak. "Person-centered Neonatal Health Care." In Person Centered Medicine, 367–87. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-17650-0_22.

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Tonelli, Mark R. "Person-Centered Intensive Care Medicine." In Person Centered Medicine, 549–57. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-17650-0_33.

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Ghebrehiwet, Tesfamicael, Maria Ammon, Ilse Burbiel, and Michel Botbol. "Interdisciplinary Team Approach to Clinical Care." In Person Centered Psychiatry, 211–22. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-39724-5_16.

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Cox, John, Alison Gray, Mohammed T. Abou-Saleh, Roy Abraham Kallivayalil, Sam Pfeifer, and Alexander Moreira-Almeida. "Spirituality, Science and Person-Centred Care." In Person Centered Psychiatry, 475–86. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-39724-5_34.

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Salloum, Ihsan M., W. James Appleyard, and Mohammed T. Abou-Saleh. "Individualized Care in Person Centered Medicine." In Person Centered Medicine, 105–22. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-17650-0_6.

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Conference papers on the topic "Person centered care"

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Thomassen, Hanne E., and Babak A. Farshchian. "A technology-enhanced service for person-centered dementia care." In PETRA '16: 9th ACM International Conference on PErvasive Technologies Related to Assistive Environments. New York, NY, USA: ACM, 2016. http://dx.doi.org/10.1145/2910674.2910722.

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González-Pacheco, Himar, Yolanda Ramallo-Fariña, Miguel Ángel García-Bello, Amado Rivero-Santana, and Yolanda Álvarez-Pérez. "091 Person-centered care and shared decision-making in primary care: perspectives of professionals." In 12th International Shared Decision Making Conference. BMJ Publishing Group Ltd, 2024. http://dx.doi.org/10.1136/bmjebm-2024-sdc.90.

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Sant'Anna, Anita. "Activity monitoring as a tool for person-centered care: Preliminary report." In 2014 IEEE International Conference on Bioinformatics and Biomedicine (BIBM). IEEE, 2014. http://dx.doi.org/10.1109/bibm.2014.6999289.

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"Person-Centered Healthcare in Coordinated Care Planning With Video Conference: Nurses’ Perspective." In 20th European Conference on Knowledge Management. ACPI, 2019. http://dx.doi.org/10.34190/km.19.051.

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Anderson, Sharon, Lesley Charles, Sheny Khera, and jasneet parmar. "Co-design and evaluation of health care workforce education to provide Person-Centered care for family caregivers." In NAPCRG 49th Annual Meeting — Abstracts of Completed Research 2021. American Academy of Family Physicians, 2022. http://dx.doi.org/10.1370/afm.20.s1.2756.

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Ihara, Masayuki, Hiroko Tokunaga, Tomomi Nakashima, Shinpei Saruwatari, Hiroki Goto, Yuuki Umezaki, Shinya Hisano, and Masashige Motoe. "User experience and sustainability of person-centered services - A case study on caregiver workshops and services by a bar type of restaurant." In Intelligent Human Systems Integration (IHSI 2024) Integrating People and Intelligent Systems. AHFE International, 2024. http://dx.doi.org/10.54941/ahfe1004533.

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To develop a care service which satisfies each patient’s demands, we should focus on a trade-off between individual cares and work efficiency. Satisfying demands of elderly people has an impact on social significance of empowering them, but it may not be sustainable as a business due to efficiency issues. This paper introduces an analysis on a balance between individual cares and work efficiency towards development of a person-centered care service.Person-centered care is a principle to deeply understand each patient [1]. There is a practical framework of the person-centered care, called DCM, Dementia Care Mapping [2]. However, it is difficult to operate under the framework at care sites due to there being too many operations in the DCM cycle. A development of new care services to replace the framework is expected, but they should be designed based on a person-centered principle.We focus on a methodology to create services based on the person-centered principle. There is a trade-off between individual cares for better user experience and work efficiency for service sustainability. Each patient has their own unique life backgrounds and values thus care services should be designed with consideration of them so that the services can support independent living of each patient. In particular, it is important to satisfy them by individual cares and social connections because elderly people live a lonely life after they have retired from work or have lost family or friends. In this study, to explore a balance between individual cares and work efficiency, we analyzed those two factors in opinions of on-site care workers and managers of nursing facilities.We held a 3-time workshop with care workers and analyzed questionnaire responses of the participants. The first workshop was to investigate their empathy with the care recipients. The second workshop was a free discussion on the issue of recipient’s loneliness. The third workshop was a lecture on the person-centered care followed by participants reflecting on their own care behaviors. We also held a workshop with managers to discuss a gap between ideal of providing person-centered cares and practical issues of business continuity. This workshop consists of three topics: social contribution through person-centered cares, sustainability as a care service provider and a balance between ideal and realty.The workshop with care workers revealed the need for efficiency to solve the busy work situation, and the importance of providing a good experience to care recipients, including the relationship with family and surroundings. In the workshop with managers, problems about cost bearers, understanding from society, and the long-term care insurance system were pointed out. As a result of case study of discussing utilization of artificial intelligence technologies, we confirmed the importance of considering the cost bearer by both benefits such as risk management on the service provider side and benefits by individual cares on the user side. We also obtained an idea of applying the technologies to parts which cannot be supported by the care insurance system.We also conducted a qualitative analysis on a service in a bar-type restaurant used by many solo customers as a model case of individualized customer service and efficient use of limited resources. We abstracted the analysis results and discussed application to nursing care service development. Future work will include detailed analyses on requirements for a concrete care service and development of a methodology of person-centered design.[1] Kitwood, T. and Bredin, K. (1992) Towards a theory of dementia care: Personhood and well-being, Ageing and Society, Vol.12, No.3, pp.269-287.[2] University of Bradford: Dementia Care Mapping, https://www.bradford.ac.uk/dementia/training-consultancy/
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Yamaguchi, Ikuhiro, Yukiko Sugaya, and Mutsumi Ogata. "Measurement of salivary alpha-amylase to support person-centered care for individuals with dementia." In 2019 IEEE 1st Global Conference on Life Sciences and Technologies (LifeTech). IEEE, 2019. http://dx.doi.org/10.1109/lifetech.2019.8883864.

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Bala, V., B. Fridlund, K. Forslind, B. Svensson, and P. Hagell. "SAT0746-HPR Towards measurement of person-centered care outcomes in outpatient nurse-led clinics." In Annual European Congress of Rheumatology, 14–17 June, 2017. BMJ Publishing Group Ltd and European League Against Rheumatism, 2017. http://dx.doi.org/10.1136/annrheumdis-2017-eular.6530.

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Minnock, P., and A. M. Ryan. "FRI0729-HPR Rheumatology advanced nurse practitioners treat to target person centered care: ireland’s policy framework." In Annual European Congress of Rheumatology, EULAR 2018, Amsterdam, 13–16 June 2018. BMJ Publishing Group Ltd and European League Against Rheumatism, 2018. http://dx.doi.org/10.1136/annrheumdis-2018-eular.4010.

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Ihara, Masayuki, Hiroko Tokunaga, Hiroki Murakami, Shinpei Saruwatari, Kazuki Takeshita, Akihiko Koga, Takashi Yukihira, Shinya Hisano, Ryoichi Maeda, and Masashige Motoe. "A data-driven but person-centered assessment framework for sustainable rehabilitation services." In Intelligent Human Systems Integration (IHSI 2023) Integrating People and Intelligent Systems. AHFE International, 2023. http://dx.doi.org/10.54941/ahfe1002860.

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Utilization of data and information technologies is one of the expectations for the future in a health care domain. Although electronic health records are used in decision making for medical prescription in many hospitals, small nursing care providers are not able to effectively utilize data. We aim at development of an online rehabilitation service that utilizes data both for designing a rehabilitation plan for each patient and for a sustainability of the service. This paper presents a framework for the assessment of the rehabilitation that is data-driven but person-centered.According to the International Classification of Functioning, Disability and Health (ICF), in designing a rehabilitation plan, it is important to consider not only the maintenance and improvement of physical functions of a patient's body, but also his/her activities related to tasks and actions in a daily life and the participation or involvement in his/her life situation. Each patient has his/her own background in needs for the rehabilitation thus we focus on the person-centered care approach where a health care should be based on the unique person's needs. The rehabilitation plan should focus on the abilities of the person and encourage activity even though the data is actively used.The proposed assessment framework consists of a part for evaluating the effect of rehabilitation and that for extracting problems in operation of the online rehabilitation service. The part of rehabilitation effect evaluation is based on Japanese version of the Cardiovascular Health Study frailty index: weight loss, slow gait speed, low physical activity, exhaustion, and low grip strength. The part also includes questionnaire-based indices of subjective happiness and willingness for social activities. On the other hand, the part of the problem extraction for a sustainable operation of the service includes an interoperability between the nursing facility site and the patient's home in terms of an online service connecting them for a video-based rehabilitation exercise. The part is based on the questionnaires and interviews for workers at the nursing facility as well as those for the patient and family.In this case study, we introduce an example of the proposed framework at the step of a service design and discuss how to apply it to the service operation step. In a rehabilitation service domain, neither the data distribution platform nor the data bank is currently in operation. However, a rehabilitation assessment system utilized the platform and data bank would be in service in the future. For a sustainability of the service, it is important to successfully integrate data, technologies, and human as a stakeholder. In this paper, we also discuss a person-centered design for the integration with a focus on considering life backgrounds and sense of values of the patient as well as his/her home environment and risk management for the rehabilitation exercise.
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Reports on the topic "Person centered care"

1

Welti, Kate, and Jennifer Manlove. Person-centered Care Elicits More Positive Responses From Family Planning Clients. Child Trends, Inc., September 2024. http://dx.doi.org/10.56417/5821z9314t.

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2

Easter, Rachel, Amy Friedrich-Karnik, and Megan L. Kavanaugh. Any Restrictions on Reproductive Health Care Harm Reproductive Autonomy: Evidence from Four States. Guttmacher Institute, March 2024. http://dx.doi.org/10.1363/2024.300471.

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Key Points Key Points Research in four states—Arizona, Iowa, New Jersey and Wisconsin—that have varying sexual and reproductive health policies illustrates that restrictions appearing to target one type of reproductive health care have ripple effects on all aspects of reproductive care, including abortion and contraception. Research on the Trump administration’s 2019 Title X Final Rule, also known as the “domestic gag rule,” and related state polices provides evidence that policies seemingly aimed only at abortion can negatively impact health care systems and provider delivery of sexual and reproductive health care, as well as patients’ experiences of person-centered care and reproductive autonomy. Living in a state where the policies are generally protective of sexual and reproductive health care does not necessarily insulate individuals from the impact of restrictive federal policies. For example, the number of clinics in the Title X network and the number of people served by those clinics declined in New Jersey after the domestic gag rule took effect, similar to declines seen in states with more restrictive policies, such as Iowa and Wisconsin. The 2019 Title X Final Rule negatively impacted both clinics that chose to stay in and those that left the Title X network, limiting their services and the provision of person-centered care beyond what was dictated by the policy. Policy restrictions trickle down to impact individuals' experiences with care. For example, diminished access to high-quality, more affordable and more comprehensive sexual and reproductive health care resulted in some patients shifting their contraceptive use to a contraceptive method that they preferred less. Policy restrictions on sexual and reproductive health care compound existing inequities. Federal and state policies should fully fund Title X, ensure comprehensive coverage of all contraceptive options, and remove restrictions that silo abortion to promote reproductive autonomy and person-centered care.
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3

Easter, Rachel, Amy Friedrich-Karnik, and Megan L. Kavanaugh. Any Restrictions on Reproductive Health Care Harm Reproductive Autonomy: Evidence from Four States. Guttmacher Institute, March 2024. http://dx.doi.org/10.1363/2024.30047.

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Key Points Research in four states—Arizona, Iowa, New Jersey and Wisconsin—that have varying sexual and reproductive health policies illustrates that restrictions appearing to target one type of reproductive health care have ripple effects on all aspects of reproductive care, including abortion and contraception. Research on the Trump administration’s 2019 Title X Final Rule, also known as the “domestic gag rule,” and related state polices provides evidence that policies seemingly aimed only at abortion can negatively impact health care systems and provider delivery of sexual and reproductive health care, as well as patients’ experiences of person-centered care and reproductive autonomy. Living in a state where the policies are generally protective of sexual and reproductive health care does not necessarily insulate individuals from the impact of restrictive federal policies. For example, the number of clinics in the Title X network and the number of people served by those clinics declined in New Jersey after the domestic gag rule took effect, similar to declines seen in states with more restrictive policies, such as Iowa and Wisconsin. The 2019 Title X Final Rule negatively impacted both clinics that chose to stay in and those that left the Title X network, limiting their services and the provision of person-centered care beyond what was dictated by the policy. Policy restrictions trickle down to impact individuals' experiences with care. For example, diminished access to high-quality, more affordable and more comprehensive sexual and reproductive health care resulted in some patients shifting their contraceptive use to a contraceptive method that they preferred less. Policy restrictions on sexual and reproductive health care compound existing inequities. Federal and state policies should fully fund Title X, ensure comprehensive coverage of all contraceptive options, and remove restrictions that silo abortion to promote reproductive autonomy and person-centered care.
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4

Cothron, Annaliese, Don Clermont, Amber Shaver, Elizabeth Alpert, and Chukwuebuka Ogwo. Improving Knowledge, Comfort, and Attitudes for LGBTQIA+ Clinical Care and Dental Education. American Institute of Dental Public Health, 2023. http://dx.doi.org/10.58677/tvin3595.

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Oral health does not exist in a silo. The mouth-body connection is a biological aspect of physical wellbeing that exists alongside the social and political drivers of whole-person health. Lesbian, gay, bisexual, transgender, queer, intersex, and agender/ asexual people, and people of other marginalized gender or sexual identities (LGBTQIA+), have experienced historical exclusion from healthcare systems perpetuated by chronic stigma. Ongoing discrimination, cultural insensitivity, and blatant homophobia/transphobia among healthcare staff results in poor health outcomes, including oral health. These exchanges either facilitate or inhibit respectful, high-quality, patient-centered care cognizant of intersectionality. In 2022, the American Institute of Dental Public Health (AIDPH) disseminated a mixed-methods survey to just over 200 oral health professionals to assess knowledge, attitudes, and practices regarding LGBTQIA+ oral health.
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5

Hossain, Sharif M. I., Shongkour Roy, Sigma Ainul, Abdullah Al Mahmud Shohag, A. T. M. Rezaul Karim, and Ubaidur Rob. Assessing effectiveness of a person-centered group ANC-PNC model among first-time young mothers and their partners for improving quality and use of MNCH-FP services. Population Council, 2022. http://dx.doi.org/10.31899/sbsr2022.1041.

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This baseline report is part of an operations research project “Healthy Women, Healthy Families (HWHF): Shustha Ma, Shustha Poribar” led by Management Sciences for Health (MSH) in partnership with BRAC, SCOPE, and the Population Council. The project aims to improve quality and increase utilization of maternal, newborn, and child health (MNCH) and family planning (FP) services and information for young mothers-to-be, first-time mothers (FTMs) aged 15-24, and their partners in the urban municipality of Tongi, Gazipur District, Bangladesh, through a group antenatal care ANC-PNC approach. The objectives of this study are to establish baseline values of selected HWHF project result indicators against which the impacts of the project’s intervention can be measured. The target group is young, first-time parents and the study examines the current status of knowledge on MNCH-FP and access to services among FTMs. This quasi-experimental pre-post control group design study employs both quantitative and qualitative data-collection methods. A simple random sampling procedure was employed to select respondents from BRAC FTM lists, while qualitative informants were selected purposively.
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6

Cantor, Amy G., Rebecca M. Jungbauer, Andrea C. Skelly, Erica L. Hart, Katherine Jorda, Cynthia Davis-O'Reilly, Aaron B. Caughey, and Ellen L. Tilden. Respectful Maternity Care: Dissemination and Implementation of Perinatal Safety Culture To Improve Equitable Maternal Healthcare Delivery and Outcomes. Agency for Healthcare Research and Quality (AHRQ), January 2024. http://dx.doi.org/10.23970/ahrqepccer269.

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Objective. To summarize current research defining and measuring respectful maternity care (RMC) and evaluate the effectiveness of RMC and implementation strategies to improve health outcomes, particularly for populations at risk for health disparities. Data sources. Ovid MEDLINE®, Embase®, and Cochrane CENTRAL from inception to November 2022 and SocINDEX to July 2023; manual review of reference lists and responses to a Federal Register Notice. Review methods. Dual review of eligible abstracts and full-text articles using predefined criteria. Data abstraction and quality assessment dual reviewed using established methods. Systematic evaluation of psychometric studies of RMC tools using adapted criteria. Meta-analysis not conducted due to heterogeneity of studies and limited data. Results. Searches identified 4,043 unique records. Thirty-seven studies were included across all questions, including the Contextual Question (CQ). Twenty-four validation studies (3 observational studies, 21 cross-sectional studies) evaluated 12 tools for measuring RMC. One randomized controlled trial (RCT) evaluated RMC effectiveness. There were no effectiveness trials from settings relevant to clinical practice in the United States and no studies evaluating effectiveness of RMC implementation. For the CQ, 12 studies defined 12 RMC frameworks. Two types of frameworks defined RMC: (1) Disrespect and Abuse (D&A) and (2) Rights-Based. Components of D&A frameworks served as indicators for recognizing mistreatment during childbirth, while Rights-Based frameworks incorporated aspects of reproductive justice, human rights, and anti-racism. Overlapping themes from RMC frameworks included: freedom from abuse, consent, privacy, dignity, communication, safety, and justice. Tools that measured RMC performed well based on psychometric measures, but no single tool stood out as the best measure of RMC. The intrapartum version of the Mother’s Autonomy in Decision-Making (MADM), Mothers On Respect index (MORi), and the Childbirth Options, Information, and Person-Centered Explanation (CHOICES) index for measuring RMC demonstrated good overall validity based on analysis of psychometric properties and were applicable to U.S. populations. The Revised Childbirth Experience Questionnaire (CEQ-2) demonstrated good overall validity for measuring childbirth experiences and included RMC components. One fair-quality RCT from Iran demonstrated lower rates of postpartum depression at 6-8 weeks for those who received RMC compared with controls (20% [11/55] vs. 50% [27/54], p=0.001), measured by the Edinburgh Postpartum Depression Scale. No studies evaluated any other health outcomes or measured the effectiveness of RMC implementation strategies. Conclusions. RMC frameworks with overlapping components, themes, and definitions were well described in the literature, but consensus around one operational definition is needed. Validated tools to measure RMC performed well based on psychometric measures but have been subject to limited evaluation. A reliable metric informed by a standard definition could lead to further evaluation and implementation in U.S. settings. Evidence is currently lacking on the effectiveness of strategies to implement RMC to improve any maternal or infant health outcome.
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7

Olson, Hannah, Madeleine Haas, and Megan L. Kavanaugh. State-Level Contraceptive Use and Preferences: Estimates from the US 2022 Behavioral Risk Factor Surveillance System. Guttmacher Institute, March 2024. http://dx.doi.org/10.1363/2024.300488.

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Contraception plays a key role in people’s realization of their sexual and reproductive health and well-being. The factors that shape contraceptive behaviors are complex and dynamic, and there is growing recognition among reproductive health service providers and advocates that contraceptive service delivery must prioritize patients’ values and preferences to help them exercise their reproductive autonomy.1 Similarly, research and public health surveillance systems that measure not only contraceptive use and method selection but also contraceptive preferences are best suited to evaluate service quality and track progress toward meeting the needs of reproductive-aged people. Building on findings from two previous Guttmacher Institute reports describing Behavioral Risk Factor Surveillance System (BRFSS) data on contraceptive use in 20172 and 2019,3 this report uses data from the 2022 BRFSS to provide an expanded set of state-level estimates of contraceptive use and preferences. In 2022, scientists at Guttmacher collaborated with the Centers for Disease Control and Prevention (CDC) to modify existing questions and include additional questions in the BRFSS family planning module. The resulting data set allows analysis not only of people’s primary contraceptive method use but also of multiple method use, overall contraceptive preferences and method-specific contraceptive preferences. Data collection for the 2022 BRFSS occurred during a pivotal time for reproductive health and rights due to the US Supreme Court’s June 2022 ruling in Dobbs v. Jackson Women’s Health Organization, which overturned the federal right to abortion. A wave of restrictive state laws and policies have followed, and as legislation concerning sexual and reproductive health care becomes increasingly politicized, state-level policies are key determinants of the quality and accessibility of contraceptive care.4 In this environment, state-level data, especially on person-centered measures of contraceptive preferences, are of paramount importance in understanding how shifts in reproductive health policy and service delivery are felt in the population. This report finds that contraceptive use is high across all reporting jurisdictions, but there is considerable variation in whether people are realizing preferences for which contraceptives they use or whether to use at all. People who report having used a method that requires some interaction with a provider, for example, are more likely than people using exclusively provider-independent or over-the-counter methods to report their current method as their preferred method of contraception. Throughout this report, we will explore how patterns of contraceptive use and preferences vary by type of method or combination of methods and jurisdiction. Given the elevated barriers to contraception that young people have historically experienced,5,6 we also highlight differences between two age-groups (18–24 and 25–49) where possible.*
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8

Starkey, Sandra, and Jean L. Parsons. Exploring Patient Centered Care Through the Design of Personal Storage for Patients. Ames: Iowa State University, Digital Repository, 2014. http://dx.doi.org/10.31274/itaa_proceedings-180814-914.

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9

Lindberg, Lars. Personalised Support and Services for Persons with Disabilities – mapping of Nordic models. Nordens välfärdscenter, November 2021. http://dx.doi.org/10.52746/nqrb1733.

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In what way and how can models for personalised support such as personal budgeting strengthen the implementation of the UN Convention on the Rights of Persons with Disabilities? Personal budgeting refers to a sum of money that is granted to the individual on the basis of an assessment of the need for service and calculation of a budget for this purpose. The individual can buy the service he needs for his budget. Personal budgeting is in use in social and health care in several countries. In the Nordic region, personal assistance is the main example of such solutions, but other models have also been tried and adopted in social and health care, such as systems of freedom of choice and increased opportunities for users to choose a provider. The report presents a number of personalised systems for support for people with disabilities that have been implemented in the Nordic countries and their experiences. The mapping was carried out jointly by the Nordic Welfare Center and the Finnish Institute for Health and Welfare (THL). The report will be considered when forming a proposal for a future reform of support and services for people with disabilities in Finland.
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10

Del Boca, Daniela. Child Care Arrangements and Labor Supply. Inter-American Development Bank, February 2015. http://dx.doi.org/10.18235/0011675.

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This paper discusses several approaches to examining the relationship between child care and mothers' labor supply. The focus is on child care for children aged 0-3, because this is a critical period for working mothers and their children and because most European and American households with children aged 3-5 already use child care centers. The paper provides data concerning availability of, government spending on, and quantity and quality standards for child care in different countries, then compares different approaches to the determinants of child care demand and labor supply. The paper subsequently reviews and compares empirical results regarding the impact of child care costs, availability and quality. Finally, the paper discusses different impacts across different groups and provides concluding remarks.
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