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1

Zuckerbraun, Sara, Rachael Welsh Allen, and Tim Flanigan. "Paired Interviews to Evaluate Patient and Proxy Responses on Patient Experience of Care Surveys (PECS)." Field Methods 32, no. 1 (December 1, 2019): 105–26. http://dx.doi.org/10.1177/1525822x19888612.

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Paired interviews are used to evaluate whether a questionnaire functions properly for both the target respondent and an alternate respondent (proxy). We developed a new application of this tool to evaluate whether a Patient Experience of Care Survey (PECS) for long-term care hospitals (LTCHs) and inpatient rehabilitation facilities (IRFs) functioned acceptably for patients and their family members. Frequently, patients in LTCHs and IRFs cannot fully recall their care experience and are often unable to complete surveys because of cognitive or physical limitations. For this project, researchers
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Harel, Y., M. D. Overpeck, D. H. Jones, P. C. Scheidt, P. E. Bijur, A. C. Trumble, and G. E. Hendershot. "The quality of proxy-respondent data in NCHS surveys." American Journal of Public Health 85, no. 4 (April 1995): 591–92. http://dx.doi.org/10.2105/ajph.85.4.591.

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DeBell, Matthew, Jon A. Krosnick, Katie Gera, David S. Yeager, and Michael P. McDonald. "The Turnout Gap in Surveys: Explanations and Solutions." Sociological Methods & Research 49, no. 4 (May 6, 2018): 1133–62. http://dx.doi.org/10.1177/0049124118769085.

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Postelection surveys regularly overestimate voter turnout by 10 points or more. This article provides the first comprehensive documentation of the turnout gap in three major ongoing surveys (the General Social Survey, Current Population Survey, and American National Election Studies), evaluates explanations for it, interprets its significance, and suggests means to continue evaluating and improving survey measurements of turnout. Accuracy was greater in face-to-face than telephone interviews, consistent with the notion that the former mode engages more respondent effort with less social desira
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Andridge, Rebecca R., and Roderick J. A. Little. "Proxy Pattern-Mixture Analysis for a Binary Variable Subject to Nonresponse." Journal of Official Statistics 36, no. 3 (September 1, 2020): 703–28. http://dx.doi.org/10.2478/jos-2020-0035.

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AbstractGiven increasing survey nonresponse, good measures of the potential impact of nonresponse on survey estimates are particularly important. Existing measures, such as the R-indicator, make the strong assumption that missingness is missing at random, meaning that it depends only on variables that are observed for respondents and nonrespondents. We consider assessment of the impact of nonresponse for a binary survey variable Y subject to nonresponse when missingness may be not at random, meaning that missingness may depend on Y itself. Our work is motivated by missing categorical income da
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Sheikhzadeh, Khodadad, Mohammad Reza Baneshi, Mahdi Afshari, and Ali Akbar Haghdoost. "Comparing direct, network scale-up, and proxy respondent methods in estimating risky behaviors among collegians." Journal of Substance Use 21, no. 1 (July 30, 2014): 9–13. http://dx.doi.org/10.3109/14659891.2014.942401.

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Hornsby, Benjamin W. Y., Samantha J. Gustafson, Hope Lancaster, Sun-Joo Cho, Stephen Camarata, and Fred H. Bess. "Subjective Fatigue in Children With Hearing Loss Assessed Using Self- and Parent-Proxy Report." American Journal of Audiology 26, no. 3S (October 12, 2017): 393–407. http://dx.doi.org/10.1044/2017_aja-17-0007.

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Purpose The primary purposes of this study were to examine the effects of hearing loss and respondent type (self- vs. parent-proxy report) on subjective fatigue in children. We also examined associations between child-specific factors and fatigue ratings. Method Subjective fatigue was assessed using the Pediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL-MFS; Varni, Burwinkle, Katz, Meeske, & Dickinson, 2002). We compared self- and parent-proxy ratings from 60 children with hearing loss (CHL) and 43 children with normal hearing (CNH). The children ranged in age from
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Macarthur, C., G. Dougherty, and I. B. Pless. "Reliability and Validity of Proxy Respondent Information about Childhood Injury: An Assessment of a Canadian Surveillance System." American Journal of Epidemiology 145, no. 9 (May 1, 1997): 834–41. http://dx.doi.org/10.1093/oxfordjournals.aje.a009177.

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Ali, Akhter, and Dil Bahadur Rahut. "Healthy Foods as Proxy for Functional Foods: Consumers’ Awareness, Perception, and Demand for Natural Functional Foods in Pakistan." International Journal of Food Science 2019 (May 2, 2019): 1–12. http://dx.doi.org/10.1155/2019/6390650.

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Using comprehensive primary dataset collected from 400 respondents from all four major provinces of Pakistan, this study assesses consumers’ knowledge, awareness, and perception regarding the use of functional foods. The empirical findings show that the majority of the consumers do not have information and knowledge about the functional foods in Pakistan. Hence, the frequency of consumption of functional food was low especially in rural areas. The result revealed that consumers with ill health were more eager to consume functional foods compared to healthier people. Besides health, the level o
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Campbell, Peter T., Margaret Sloan, and Nancy Kreiger. "Utility of Proxy versus Index Respondent Information in a Population-Based Case–Control Study of Rapidly Fatal Cancers." Annals of Epidemiology 17, no. 4 (April 2007): 253–57. http://dx.doi.org/10.1016/j.annepidem.2006.07.012.

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Basri, Yesi Mutia. "Analisis Kesiapan Pemerintah Daerah dalam Menerapkan PP Nomor 12 Tahun 2019 Tentang Pengelolaan Keuangan Daerah." Berkala Akuntansi dan Keuangan Indonesia 6, no. 1 (March 30, 2021): 13. http://dx.doi.org/10.20473/baki.v6i1.22020.

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This study aims to analyze the readiness of the Kampar Regency Government in implementing PP No. 12 of 2019. The population in this study is all SKPD in the Kampar district, amounting to 48 SKPD. The sampling technique using saturated sampling method. A total of 112 respondents participated in the research consisting of Budget User Proxy, Technical Implementation Officials of Activities, Head of Finance Subdivision, and Financial Staff Staff. The data collection technique is carried out by using questionnaires which is sent directly to the respondent. The results of the analysis using multiple
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Mirzazadeh, Ali, Mostafa Shokoohi, Soodabeh Navadeh, Ahmad Danesh, Jennifer P. Jain, Abbas Sedaghat, Marziyeh Farnia, and AliAkbar Haghdoost. "Underreporting in HIV-Related High-Risk Behaviors: Comparing the Results of Multiple Data Collection Methods in a Behavioral Survey of Prisoners in Iran." Prison Journal 98, no. 2 (January 24, 2018): 213–28. http://dx.doi.org/10.1177/0032885517753163.

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We explored the potential of using three indirect methods including crosswise, proxy respondent method, and network scale-up (NSU) in comparison with direct questioning in collecting sensitive and socially stigmatized HIV-related risk behavior information from Iranian prisoners. Participants reported more sexual contact in prison for their friends than they did for themselves. In men, NSU provided lower estimates than direct questioning, whereas in women NSU estimates were higher. Different data collection methods provide different estimates and collectively offer a more comprehensive picture
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Yamamoto-Mitani, N., T. Abe, Y. Okita, K. Hayashi, C. Sugishita, and K. Kamata. "The impact of subject/respondent characteristics on a proxy-rated quality of life instrument for the Japanese elderly with dementia." Quality of Life Research 13, no. 4 (May 2004): 845–55. http://dx.doi.org/10.1023/b:qure.0000021691.21667.1f.

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Lansky, Amy, Amy Drake, Cyprian Wejnert, Huong Pham, Melissa Cribbin, and Douglas D. Heckathorn. "Assessing the Assumptions of Respondent-Driven Sampling in the National HIV Behavioral Surveillance System among Injecting Drug Users." Open AIDS Journal 6, no. 1 (September 7, 2012): 77–82. http://dx.doi.org/10.2174/1874613601206010077.

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Several assumptions determine whether respondent-driven sampling (RDS) is an appropriate sampling method to use with a particular group, including the population being recruited must know one another as members of the group (i.e., injection drug users [IDUs] must know each other as IDUs) and be networked and that the sample size is small relative to the overall size of the group. To assess these three assumptions, we analyzed city-specific data collected using RDS through the US National HIV Behavioral Surveillance System among IDUs in 23 cities. Overall, 5% of non-seed participants reported t
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Fujimoto, Kayo, Ming Cao, Lisa M. Kuhns, Dennis Li, and John A. Schneider. "Statistical adjustment of network degree in respondent-driven sampling estimators: Venue attendance as a proxy for network size among young MSM." Social Networks 54 (July 2018): 118–31. http://dx.doi.org/10.1016/j.socnet.2018.01.003.

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Carbone, Jason T., and Stephen Edward McMillin. "Reconsidering Collective Efficacy: The Roles of Perceptions of Community and Strong Social Ties." City & Community 18, no. 3 (September 2019): 1068–85. http://dx.doi.org/10.1111/cico.12413.

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Collective efficacy is an often–studied concept, yet theoretical differences and confusing terminology lead to an inability to translate the concept across disciplines. Utilizing a nationally representative sample, this study employs structural equation modeling combined with a series of hierarchical models to test the hypotheses that the focal independent variables of neighborhood perceptions, strong social ties, and civic engagement as a proxy for weak social ties are each positively associated with collective efficacy while controlling for sociodemographic characteristics. Findings show tha
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Roth, M. Garrett, and Ryan Morris. "Here I come to save the day? Reassessing the efficacy of small business development centers in the Internet Era." Journal of Entrepreneurship and Public Policy 9, no. 3 (July 25, 2020): 319–28. http://dx.doi.org/10.1108/jepp-12-2019-0095.

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PurposeThis paper assesses the efficacy of the 18 small business development centers (SBDCs) located throughout the state of Pennsylvania during 2013–2016 as a proxy for publicly funded, small business consulting services in general.Design/methodology/approachThe paper compares the sales growth of SBDC clients, as reported in postconsultation surveys, to comparable growth measures for the corresponding business population using one- and two-sample t-tests.FindingsThe results show that respondent clients with existing businesses clearly outperform the broader population following consultation,
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Strickland, Ora L. "Using Proxy Respondents." Journal of Nursing Measurement 12, no. 1 (May 2004): 3–5. http://dx.doi.org/10.1891/jnum.12.1.3.66321.

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Larios, Daisy, Thomas M. Brooks, Nicholas B. W. Macfarlane, and Sugoto Roy. "Access to scientific literature by the conservation community." PeerJ 8 (July 9, 2020): e9404. http://dx.doi.org/10.7717/peerj.9404.

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Access to the scientific literature is perceived to be a challenge to the biodiversity conservation community, but actual level of literature access relative to needs has never been assessed globally. We examined this question by surveying the constituency of the International Union for Conservation of Nature (IUCN) as a proxy for the conservation community, generating 2,285 responses. Of these respondents, ∼97% need to use the scientific literature in order to support their IUCN-related conservation work, with ∼50% needing to do so at least once per week. The crux of the survey revolved aroun
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Olsen, Søren Bøye, Jürgen Meyerhoff, Morten Raun Mørkbak, and Ole Bonnichsen. "The influence of time of day on decision fatigue in online food choice experiments." British Food Journal 119, no. 3 (March 6, 2017): 497–510. http://dx.doi.org/10.1108/bfj-05-2016-0227.

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Purpose Fatigue effects related to answering a sequence of choice tasks have received much scrutiny in the stated choice experiments (SCE) literature. However, decision fatigue related to the time of day when respondents answer questionnaires has been largely overlooked in this literature even though time of day related fatigue effects are well known in the psychology literature. The purpose of this paper is to hypothesize that variations in the time of day when respondents answer an online food choice experiment will translate into observable fatigue effects in the food choices. Design/method
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Petrou, Stavros, Kamran Khan, and Colin Kennedy. "Bilateral Permanent Childhood Hearing Loss and Health-Related Quality of Life in Adolescence." Children 8, no. 6 (June 7, 2021): 484. http://dx.doi.org/10.3390/children8060484.

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Little is known about the impact of bilateral permanent childhood hearing loss (PCHL) on health-related quality of life (HRQoL). The objective of this study was to describe preference-based and non-preference based HRQoL outcomes in adolescence, from both self and proxy perspectives, amongst participants of the Hearing Outcomes Project. The Health Utilities Index Marks II (HUI2) and III (HUI3) and the PedsQLTM Version 4.0 Generic Core Scales were used to measure HRQoL based on self and parent proxy reports in 114 adolescents aged 13–19 years, 76 with bilateral PCHL and 38 with normal hearing,
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NELSON, LORENE M., W. T. LONGSTRETH, THOMAS D. KOEPSELL, and GERALD VAN BELLE. "PROXY RESPONDENTS IN EPIDEMIOLOGIC RESEARCH." Epidemiologic Reviews 12, no. 1 (1990): 71–86. http://dx.doi.org/10.1093/oxfordjournals.epirev.a036063.

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Stancliffe, Roger J. "Proxy respondents and quality of life." Evaluation and Program Planning 23, no. 1 (February 2000): 89–93. http://dx.doi.org/10.1016/s0149-7189(99)00042-7.

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Mpundu-Kaambwa, C., G. Chen, E. Huynh, R. Russo, and J. Ratcliffe. "Does The Study Population And The Use Of Proxy Respondent Have An Effect On The Latent Quality Of Life Constructs Measured By The CHU9D And The Pedsqltm 4.0? An Exploratory Factor Analysis." Value in Health 20, no. 9 (October 2017): A503—A504. http://dx.doi.org/10.1016/j.jval.2017.08.595.

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Chen, Xiaoying, Xia Wang, Candice Delcourt, Jingwei Li, Hisatomi Arima, Maree L. Hackett, Thompson Robinson, et al. "Ethnicity and Other Determinants of Quality of Functional Outcome in Acute Ischemic Stroke." Stroke 51, no. 2 (February 2020): 588–93. http://dx.doi.org/10.1161/strokeaha.119.027639.

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Background and Purpose— Patient-centered outcomes are important. We aimed to determine predictors of health-related quality of life (HRQoL) and develop utility-weighted modified Rankin Scale (mRS) scores in thrombolyzed acute ischemic stroke patients from both arms of ENCHANTED (Enhanced Control of Hypertension and Thrombolysis Stroke Study). Methods— ENCHANTED was an international quasi-factorial clinical trial of different doses of intravenous alteplase and intensities of blood pressure control in acute ischemic stroke patients, with outcomes on the 5-Dimensional European Quality of Life Sca
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Iezzoni, Lisa I., Ellen P. McCarthy, Roger B. Davis, and Hiliary Siebens. "Mobility Problems and Perceptions of Disability by Self-Respondents and Proxy Respondents." Medical Care 38, no. 10 (October 2000): 1051–57. http://dx.doi.org/10.1097/00005650-200010000-00009.

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Becker, Todd, John Cagle, and Paul Sacco. "The Prevalence of Prior Mental Health and Substance Use Problems in Older Persons and Their Families." Innovation in Aging 4, Supplement_1 (December 1, 2020): 170–71. http://dx.doi.org/10.1093/geroni/igaa057.552.

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Abstract Although research has shown mental health and substance use problems (MHSUPs) are fairly prevalent in older adults (OAs), less research has considered MHSUPs in hospice beneficiaries and their families. This secondary analysis filled this gap using the Health and Retirement Study’s Core survey wave from 2014 and Exit wave data from 2016. These data are nationally-representative of OAs aged 50+. Each biennial wave introduces an experimental module to a random 10% of Core survey participants. One Core 2014 experimental module included self-report indicators assessing past MHSUPs, like d
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Marioni, Riccardo E., Fiona E. Matthews, and Carol Brayne. "The association between late-life cognitive test scores and retrospective informant interview data." International Psychogeriatrics 23, no. 2 (July 19, 2010): 274–79. http://dx.doi.org/10.1017/s1041610210001201.

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ABSTRACTBackground: Cognitive assessment of older persons, particularly those with impairment, is hampered by measurement error and the ethical issues of testing people with dementia. A potential source of valuable information about end-of-life cognitive status can be gained from those who knew the respondent well – mostly relatives or friends. This study tested the association between last cognitive assessment before death and a retrospective informant assessment of cognition.Methods: Data were analyzed from 248 participants from the Medical Research Council Cognitive Function and Ageing Stud
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Szabo, Shelagh M., Ivana F. Audhya, Daniel C. Malone, David Feeny, and Katherine L. Gooch. "Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review." Quality of Life Research 29, no. 3 (December 6, 2019): 593–605. http://dx.doi.org/10.1007/s11136-019-02355-x.

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Abstract Background Preferences for health states for Duchenne muscular dystrophy (DMD) are necessary to assess costs and benefits of novel therapies. Because DMD progression begins in childhood, the impact of DMD on health-related quality-of-life (HRQoL) affects preferences of both DMD patients and their families. The objective of this review was to synthesize published evidence for health state utility from the DMD patient and caregiver perspectives. Methods A systematic review was performed using MEDLINE and Embase, according to best practices. Data were extracted from studies reporting DMD
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Ismael, Hazem Ramadan, and Hany Kamel. "Internal audit quality and earnings management: evidence from the UK." Managerial Auditing Journal 36, no. 7 (August 5, 2021): 951–78. http://dx.doi.org/10.1108/maj-09-2020-2830.

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Purpose This study aims to examine the association between internal audit quality and the involvement of UK companies in earnings management practices. Design/methodology/approach To measure the internal audit quality, this study uses 115 responses for a postal questionnaire that was addressed to the heads of internal audit departments in a sample of non-financial listed companies in the UK context. The other financial and governance data for the respondent companies were collected from the Datastream and the companies’ annual reports. The present study uses the signed abnormal accruals as a p
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Khoiri, Moh, and Nurul Rahma Oktavia. "PENGARUH KEPEMIMPINAN TERHADAP KINERJA KARYAWAN BADAN PENGAWAS PEMILU KOTA ADMINISTRASI JAKARTA SELATAN." Jurnal Ilmiah Mimbar Demokrasi 19, no. 01 (November 8, 2019): 80–98. http://dx.doi.org/10.21009/jimd.v19i01.12954.

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ABSTRAK Tujuan dari penelitian ini adalah untuk mengetahui bagaimana kepemimpinan dan kinerja karyawan bawaslu kota administrasi jakarta selatan, serta untuk mengetahui apakah terdapat pengaruh kepemimpinan terhadap kinerja karyawan bawaslu kota administrasi jakarta selatan. Metode penelitian yang digunakan dalam penelitian ini adalah Deskriptif Asosiatif dengan pendekatan kuantitatif, yaitu dengan mendeskripsikan keadaan responden serta deskripsi variabel penelitian dalam tabel frekuensi dan presentase dari hasil penyebaran kuesioner tersebut dengan melalui prosedur analisis data. Populasi da
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Iqbal, Md Hafiz. "Valuing ecosystem services of Sundarbans mangrove forest for improved conservation: approach of randomized conjoint experiment." Forestry Economics Review 2, no. 1 (April 20, 2020): 117–32. http://dx.doi.org/10.1108/fer-04-2020-0008.

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PurposeThis study provides empirical evidence of the economic valuation of ecosystem services. It examines the willingness-to-pay (WTP) and compensating surplus (CS) in response to policy change based on focus group discussion (FGD) and survey.Design/methodology/approachA randomized conjoint analysis based experiment was conducted in seven villages of Sundarbans in Bangladesh to elicit stated preference data and measure WTP and CS. Each respondent faced three options in every choice card-two hypothetical alternatives and one status quo scheme. Four alternatives – payment for ecosystem services
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McCarron, Mary, Andrew Allen, Darren McCausland, Margaret Haigh, Retha Luus, Fathima Rosmin Bavussantakath, Fintan Sheerin, et al. "The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey." HRB Open Research 4 (August 26, 2021): 95. http://dx.doi.org/10.12688/hrbopenres.13340.1.

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Background: The COVID-19 pandemic and associated lockdowns have had a dramatic impact on many people, but individuals with an intellectual disability, given the prevalence of congregate living and high levels of co-morbid conditions, may be particularly vulnerable at this time. A prior initial survey of participants of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) found that, despite a majority of participants being tested, only a small proportion had tested positive for COVID-19. Furthermore, despite some reporting positive aspects to the lockdow
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Rajmil, L., E. Fernandez, R. Gispert, M. Rue, J. P. Glutting, A. Plasencia, and A. Segura. "Influence of proxy respondents in children's health interview surveys." Journal of Epidemiology & Community Health 53, no. 1 (January 1, 1999): 38–42. http://dx.doi.org/10.1136/jech.53.1.38.

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Nelson, Lorene M., W. T. Longstreth, Harvey Checkoutay, Gerald van Belle, and Thomas D. Koepsell. "Completeness and Accuracy of Interview Data from Proxy Respondents." Epidemiology 5, no. 2 (March 1994): 204–17. http://dx.doi.org/10.1097/00001648-199403000-00011.

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Pearl, Peggy T. "Identifying and Responding to Munchausen Syndrome by Proxy." Early Child Development and Care 106, no. 1 (January 1995): 177–85. http://dx.doi.org/10.1080/0300443951060114.

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Chen, Xiaoying, Candice Delcourt, Lingli Sun, Zien Zhou, Sohei Yoshimura, Shoujiang You, Alejandra Malavera, et al. "Brain Imaging Signs and Health-Related Quality of Life after Acute Ischemic Stroke: Analysis of ENCHANTED Alteplase Dose Arm." Cerebrovascular Diseases 49, no. 4 (2020): 427–36. http://dx.doi.org/10.1159/000509226.

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Background and Purpose: The influence of specific brain lesions on health-related quality of life (HRQoL) after acute ischemic stroke (AIS) is uncertain. We aimed to identify imaging predictors of poor HRQoL in alteplase-treated participants of the alteplase dose arm of the Enhanced Control of Hypertension and Thrombolysis Stroke Study (ENCHANTED). Methods: ENCHANTED was an international trial of low- versus standard-dose intravenous alteplase in AIS patients, with functional outcome (modified Rankin scale [mRS]) and HRQoL on the 5-dimension European Quality of Life Scale (EQ-5D) assessed at 9
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Wolinsky, Fredric D., Michael P. Jones, and George L. Wehby. "Gathering data from older adults via proxy respondents: research challenges." Journal of Comparative Effectiveness Research 1, no. 6 (November 2012): 467–70. http://dx.doi.org/10.2217/cer.12.54.

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Zsembik, Barbara A. "Ethnic and Sociodemographic Correlates of the Use of Proxy Respondents." Research on Aging 16, no. 4 (December 1994): 401–14. http://dx.doi.org/10.1177/0164027594164004.

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Boyle, Coleen A., and Edward A. Brann. "Proxy Respondents and the Validity of Occupational and Other Exposure Data." American Journal of Epidemiology 136, no. 6 (September 15, 1992): 712–21. http://dx.doi.org/10.1093/oxfordjournals.aje.a116550.

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Dandachi-FitzGerald, Brechje, Harald Merckelbach, Irena Bošković, and Marko Jelicic. "Do You Know People Who Feign? Proxy Respondents About Feigned Symptoms." Psychological Injury and Law 13, no. 3 (August 18, 2020): 225–34. http://dx.doi.org/10.1007/s12207-020-09387-6.

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Oczkowski, Colin, and Martin O'Donnell. "Reliability of Proxy Respondents for Patients With Stroke: A Systematic Review." Journal of Stroke and Cerebrovascular Diseases 19, no. 5 (September 2010): 410–16. http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2009.08.002.

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Johnson, Rebecca A., Jack S. Mandel, Robert W. Gibson, Jeffrey H. Mandel, Alan P. Bender, Paul D. Gunderson, and Colleen M. Renier. "Data on Prior Pesticide Use Collected from Self-and Proxy Respondents." Epidemiology 4, no. 2 (March 1993): 157–64. http://dx.doi.org/10.1097/00001648-199303000-00012.

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Graham, Patrick, and Rodney Jackson. "Primary versus Proxy Respondents: Comparability of Questionnaire Data on Alcohol Consumption." American Journal of Epidemiology 138, no. 6 (September 15, 1993): 443–52. http://dx.doi.org/10.1093/oxfordjournals.aje.a116876.

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WALKER, ALEXANDER M., JOHAN P. VELEMA, and JAMES M. ROBINS. "ANALYSIS OF CASE-CONTROL DATA DERIVED IN PART FROM PROXY RESPONDENTS." American Journal of Epidemiology 127, no. 5 (May 1988): 905–14. http://dx.doi.org/10.1093/oxfordjournals.aje.a114893.

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Jones, P. D., C. Harpham, and B. M. Vinther. "Winter-responding proxy temperature reconstructions and the North Atlantic Oscillation." Journal of Geophysical Research: Atmospheres 119, no. 11 (June 10, 2014): 6497–505. http://dx.doi.org/10.1002/2014jd021561.

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Dubois, Marie-France, Gina Bravo, Janice Graham, Sheila Wildeman, Carole Cohen, Karen Painter, and Suzanne Bellemare. "Comfort with proxy consent to research involving decisionally impaired older adults: do type of proxy and risk-benefit profile matter?" International Psychogeriatrics 23, no. 9 (March 24, 2011): 1479–88. http://dx.doi.org/10.1017/s1041610211000433.

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ABSTRACTBackground: Dementia research often requires the participation of people with dementia. Obtaining informed consent is problematic when potential participants lack the capacity to provide it. We investigated comfort with proxy consent to research involving older adults deemed incapable of this decision, and examined if comfort varies with the type of proxy and the study's risk-benefit profile.Methods: We surveyed random samples of five relevant groups (older adults, informal caregivers, physicians, researchers in aging, and Research Ethics Board members) from four Canadian provinces. Re
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Tepper, Allison, L. Barbara Connally, Patricia Haltmeier, Emily Smith, and Marie H. Sweeney. "Knowledge of medical history information among proxy respondents for deceased study subjects." Journal of Clinical Epidemiology 46, no. 11 (November 1993): 1243–48. http://dx.doi.org/10.1016/0895-4356(93)90088-i.

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A. Blair, B. Kross, P. A. Stewart, L. Ogilivie, R. Falk, W. Popendorf, M. H.Ward, and S. H. Zahm. "Comparability of Information on Pesticide Use Obtained from Farmers and Their Proxy Respondents." Journal of Agricultural Safety and Health 1, no. 3 (1995): 165–76. http://dx.doi.org/10.13031/2013.19461.

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Hatch, Maureen C., Dawn Misra, Geoffrey C. Kabat, and Susan Kartzmer. "Proxy Respondents in Reproductive Research: A Comparison of Self- and Partner-reported Data." American Journal of Epidemiology 133, no. 8 (April 15, 1991): 826–31. http://dx.doi.org/10.1093/oxfordjournals.aje.a115962.

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Stancliffe, R. J. "Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor." Journal of Intellectual Disability Research 43, no. 3 (June 1999): 185–93. http://dx.doi.org/10.1046/j.1365-2788.1999.00194.x.

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