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1

Great Britain. Audit Commission for Local Authorities and the National Health Service in England and Wales. Quality of life: A good practice guide to communicating quality of life indicators. Audit Commission, 2003.

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2

Cragg, Rod. Compass: A multi-perspective evaluation of quality in home life. The Author, 1992.

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3

Walters, Stephen J. Quality of Life Outcomes in Clinical Trials and Health-Care Evaluation. John Wiley & Sons, Ltd, 2009. http://dx.doi.org/10.1002/9780470840481.

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4

Theunissen, Nicolette C. M. Health related quality of life in children. Universiteit Leiden, 1999.

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5

Roberts, Lance W. Measuring the quality of life of university students. University of Manitoba, Centre for Higher Education Research and Development, 1991.

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6

Møller, Valerie. Quality of life in unemployment: A survey evaluation of black township dwellers. HSRC Publishers, 1993.

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7

Prades, José Luis Pinto. Economic evaluation: From theory to practice. Springer, 2001.

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8

Quality of life in retirement: A survey evaluation of return migration to Kwazulu. Centre for Applied Social Sciences, University of Natal, 1985.

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9

Fertman, Carl I. Workplace health promotion programs: Planning, implementation, and evaluation. Jossey-Bass, 2015.

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10

National Cancer Institute (U.S.) and United States. President's Cancer Panel., eds. Cancer care issues in the United States: Quality of care, quality of life. National Cancer Program, National Cancer Institute, 1998.

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11

1944-, Walker Stuart R., and Rosser Rachel, eds. Quality of life, assessment and application: Proceedings of the Centre for Medicines Research Workshop held at the CIBA Foundation, London, March 5th, 1987. MTP Press, 1988.

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12

Gong gong zheng ce dao xiang de sheng huo zhi liang ping jia yan jiu. Shandong da xue chu ban she, 2011.

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13

Pennifer, Erickson, ed. Health status and health policy: Quality of life in health care evaluation and resource allocation. Oxford University Press, 1993.

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14

Zhu guan sheng huo zhi liang: Zhi biao gou jian ji qi ping jia = Subjective quality of life : indicators and evaluation. She hui ke xue chu ban she, 2008.

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15

Ager, Alastair. The BILD life experiences checklist: Instruction manual. 2nd ed. BILD, 1998.

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16

Brückner, Hannah. Surveys don't lie, people do?: An analysis of data quality in a retrospective life course study. Max-Planck-Institut für Bildungsforschung, 1995.

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17

Freeman, Melvyn. Promoting youth well-being: An evaluation of a youth development/life-skills programme. Centre for Health Policy, Dept. of Community Health, University of the Witwatersrand, 1996.

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18

Centre for Bhutan Studies & GNH Research, ed. Provisional findings of 2015 gross national happiness survey. Centre for Bhutan Studies & GNH Research, 2015.

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19

Pellston, Workshop on Re-evaluation of the State of the Science for Water-Quality Criteria Development (1998 Fairmont Hot Springs Mont ). Re-evaluation of the state of the science for water-quality criteria development. SETAC Press, 2003.

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20

Canada. Health Canada. Mental Health Unit. Quality of life measurement among persons with chronic mental illness: A critique of measures and methods. Health Canada., 1996.

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21

Council, Alberta Water. Review of implementation progress of Water for Life, 2005-2006. Alberta Water Council, 2007.

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22

May, Julian. Monitoring the impact of land reform on quality of life: A South African case study. Centre for Social and Development Studies, University of Natal, 2000.

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23

The quality of life: The missing measurement in health care. Souvenir Press, 1990.

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24

Walters, Stephen John. Quality of life outcomes in clinical trials and health-care evaluation: A practical guide to analysis and interpretation. John Wiley & Sons, 2009.

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25

Quality of life outcomes in clinical trials and health-care evaluation: A practical guide to analysis and interpretation. John Wiley & Sons, 2009.

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26

Gordon, Michael Stephen. An evaluation of the relationship between affect and quality of life in people with severe/profound learning difficulties. The Author], 1995.

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27

Walters, Stephen John. Quality of life outcomes in clinical trials and health-care evaluation: A practical guide to analysis and interpretation. John Wiley & Sons, 2009.

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28

Studies, Centre for Bhutan. Gross national happiness survey findings, 2007-2008. The Centre for Bhutan Studies, 2009.

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29

Exchange entitlement mapping: Theory and evidence. Palgrave Macmillan, 2012.

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30

Strategically aligned family research: Supporting soldier and family quality of life research for policy decisionmaking. RAND, ARRYO CENTER, 2013.

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31

Lisbeth, Zibin Sharon, and Canada Health Canada, eds. Quality of life measurement among persons with chronic mental illness: A critique of measures and methods. Health Canada, 1996.

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32

Atkinson, Mark J. Quality of life measurement among persons with chronic mental illness: A critique of measures and methods. The Directorate, 1996.

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33

Boisseau, Christina L., Carly M. Schwartzman, and Steven A. Rasmussen. Quality of Life and Psychosocial Functioning in OCD. Edited by Christopher Pittenger. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190228163.003.0006.

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This chapter examines quality of life (QoL) and psychosocial functioning in obsessive-compulsive disorder (OCD). More specifically, it summarizes recent investigations demonstrating that: (1) OCD negatively impacts multiple areas of life, such as social and family relationships, functioning at work and in the household, and aspects of physical and mental health; (2) the negative relation between OCD and QoL is as great as (or greater than) that observed in other psychiatric disorders and chronic medical conditions; (3) the degree of the QoL impairment is generally proportional to the severity of OCD symptoms; (4) specific OCD symptoms differentially impact aspects of psychosocial functioning; and (5) adequate treatment of OCD is associated with significant improvements in QoL. Finally, the chapter discusses future perspectives involved in the evaluation of QoL in OCD populations and the critical need to address these issues in assessment and treatment of individuals with OCD.
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34

Oladeji, Bibilola D., and Kevin R. Robertson. Neuropsychological Evaluation for Persons with HIV and AIDS. Edited by Mary Ann Cohen, Jack M. Gorman, Jeffrey M. Jacobson, Paul Volberding, and Scott Letendre. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199392742.003.0012.

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With recent developments in the classification and definitions for HIV-associated neurocognitive disorders (HAND), neuropsychological assessments have become central to the diagnostic process. The pattern and manifestation of neurocognitive dysfunction associated with HIV have changed since the introduction of effective antiretroviral medications and their increasingly widespread use. Prior to the introduction of antiretroviral therapy, severe cognitive disorder presenting as HIV-associated dementia (HAD) was a common manifestation of HIV-associated neurocognitive disorders. In more recent times, however, milder forms of neurocognitive impairment have become more common, often being asymptomatic and difficult to recognize without formal neuropsychological testing. Hence, recognizing individuals at most risk for cognitive decline through neuropsychological testing will offer opportunities for developing targeted interventions that could delay disease progression and improve individual functioning and quality of life.
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35

Smets, Tinne, and Luc Deliens. Health services research in palliative care and end-of-life care. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0198.

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Health services research in palliative care and end-of-life care involves the study of palliative care needs, access and quality of palliative care, and the feasibility, effectiveness, and cost of palliative and end-of-life care services and interventions. The evaluation of services and interventions involving patients with advanced illness presents unique challenges, both ethical and methodological. In this chapter, several research designs that are useful for the service evaluation of complex interventions in palliative care and end-of-life care are discussed and examples of studies using these designs are described. The designs that are described include both experimental and non-experimental designs. The problems and challenges that doing research with dying patients presents are subsequently described and possible solutions proposed. The challenges dealt with in this chapter include defining the intervention, determining relevant outcome measures, randomization of patients to intervention and control group, achieving recruitment and minimizing attrition, heterogeneity of the patient group, and obtaining informed consent.
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36

United States. Dept. of the Army, ed. Quality of life program evaluation/minimum standards: Personnel general. Headquarters, Dept. of the Army, 1993.

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37

Alison, Carr, Higginson Irene, and Robinson Peter, eds. Quality of life. BMJ, 2003.

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38

Higginson, Irene, Alison Carr, and Robinson Peter. Quality of Life. Wiley & Sons, Incorporated, John, 2008.

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39

Briggs, Judith A. Sensory evaluation and shelf-life modeling of ground coffee. 1999.

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40

Handbook on Quality of Life for Human Service Practitioners. Amer Assoc on Intellectual & Developmental Di, 2002.

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41

Jennifer, Falotico-Taylor, Mosteller Frederick 1916-2006, and Institute of Medicine (U.S.), eds. Quality of life and technology assessment. National Academy Press, 1989.

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42

J, Muller Michael, and Van Schaik P, eds. Validating an extension to participatory heuristic evaluation: Quality of work and quality of work life. 1998.

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43

Bert, Spilker, ed. Quality of life assessments in clinical trials. Raven Press, 1990.

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44

Calvert Group (Corporate Author, Editor), Hazel Henderson (Editor), Jon Lickerman (Editor), and Patrice Flynn (Editor), eds. Calvert-Henderson Quality of Life Indicators. Calvert Group, 2000.

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45

Abeyasekera, Asha, and Sarah C. White. Wellbeing and Quality of Life Assessment: A Practical Guide. Practical Action Publishing, 2014.

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46

Wellbeing and Quality of Life Assessment: A Practical Guide. Practical Action Publishing, 2014.

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47

1944-, Walker Stuart R., and Rosser Rachel, eds. Quality of life assessment: Key issues in the 1990s. Kluwer Academic Publishers, 1993.

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48

The evaluation of the Work-Life Balance Challenge Fund. Dept. of Trade and Industry, 2004.

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49

Changcheng, Zhou, ed. Zhongguo sheng huo zhi liang: Xian zhuang yu ping jia = Quality of life in China : situation and evaluation. Zhongguo she hui ke xue wen xian chu ban she, 2003.

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50

Great Britain. Social Services Inspectorate., ed. Homes are for living in: A model for evaluating quality of care provided, and quality of life experienced, in residential care homes for elderly people. H.M.S.O., 1989.

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