Dissertations / Theses on the topic 'RELATE questionnaire'
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Parkinson, Lisa Michiko. "Prospective First-Generation College Racial Minority Students: Mediating Factors that Facilitate Positive Educational Characteristics for College Admission." BYU ScholarsArchive, 2015. https://scholarsarchive.byu.edu/etd/6043.
Full textKigin, Melissa Lee. "At-Risk Individuals' Awareness, Motivation, Roadblocks to Participation in Premarital Interventions, and Behaviors Following Completion of the RELATionship Evaluation (RELATE)." Diss., CLICK HERE for online access, 2005. http://contentdm.lib.byu.edu/ETD/image/etd1072.pdf.
Full textSchembre, Susan M. "Development and validation of a weight-related behaviors questionnaire /." View online ; access limited to URI, 2009. http://0-digitalcommons.uri.edu.helin.uri.edu/dissertations/AAI3368004.
Full textBasri, Etidal. "Development of a pediatric oral health-related quality-of-life questionnaire." Thesis, McGill University, 2000. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=30808.
Full textTundia, Namita. "Validation of the Health-Related Productivity Questionnaire and U.S. Population Norms." University of Cincinnati / OhioLINK, 2013. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1378112340.
Full textKelly, Laura. "Measuring the impact of using health-related websites : the eHealth impact questionnaire." Thesis, University of Oxford, 2015. http://ora.ox.ac.uk/objects/uuid:ef7eefdd-d9c6-4d9e-95a6-8452564913de.
Full textCoulthard, Robert James. "Rethinking back-translation for the cross-cultual adaptation of health-related questionnaires." reponame:Repositório Institucional da UFSC, 2013. https://repositorio.ufsc.br/xmlui/handle/123456789/123163.
Full textMade available in DSpace on 2014-08-06T17:53:17Z (GMT). No. of bitstreams: 1 326539.pdf: 1756849 bytes, checksum: 33118f205e3e2913d2192fe4d4eff2f7 (MD5) Previous issue date: 2013
Hawkes, Nicholas C. "Process validity : an empirical and theoretical investigation of anxiety-related cognitive behavioural questionnaires." Thesis, University of East London, 2005. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.532574.
Full textGarai, Cintia Judit. "Personality Structure and Polymorphisms of Personality-Related Genes in Wild Bonobos (Pan paniscus)." 京都大学 (Kyoto University), 2015. http://hdl.handle.net/2433/202667.
Full textDerleth, Ann Marie. "Health related quality of life : a comparison of indices derived from health status questionnaires /." Thesis, Connect to this title online; UW restricted, 2006. http://hdl.handle.net/1773/5410.
Full textVianya-Estopa, Marta, David B. Elliott, and Brendan T. Barrett. "An evaluation of the Amblyopia and Strabismus Questionnaire using Rasch analysis." Association for Research in Vision and Ophthalmology, 2010. http://hdl.handle.net/10454/4730.
Full textPURPOSE. To evaluate whether the Amblyopia and Strabismus Questionnaire (A&SQ) is a suitable instrument for the assessment of vision-related quality-of life (VR-QoL) in individuals with strabismus and/or amblyopia. METHODS. The A&SQ was completed by 102 individuals, all of whom had amblyopia, strabismus, or both. Rasch analysis was used to evaluate the usefulness of individual questionnaire items (i.e., questions); the response-scale performance; how well the items targeted VR-QoL; whether individual items showed response bias, depending on factors such as whether strabismus was present; and dimensionality. RESULTS. Items relating to concerns about the appearance of the eyes were applicable only to those with strabismus, and many items showed large ceiling effects. The response scale showed disordered responses and underused response options, which improved after the number of response options was reduced from five to three. This change improved the discriminative ability of the questionnaire (person separation index increased from 1.98 to 2.11). Significant bias was found between strabismic and nonstrabismic respondents. Separate Rasch analyses conducted for subjects with and without strabismus indicated that all A&SQ items seemed appropriate for individuals with strabismus (Rasch infit values between 0.60 and 1.40), but several items fitted the model poorly in amblyopes without strabismus. The AS&Q was not found to be unidimensional. CONCLUSIONS. The findings highlight the limitations of the A&SQ instrument in the assessment of VR-QoL in subjects with strabismus and especially in those with amblyopia alone. The results suggest that separate instruments are needed to quantify VR-QoL in amblyopes with and without strabismus.
Gahrén, Jason, and Karin Nyström. "The characteristics of HIV/AIDS-related stigma and discrimination among Thai university students : A questionnaire study." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-200318.
Full textIntroduction: Resent reports indicate an increasing incidence rate of HIV in Thailand and it is still one of the main public health problems. The reasons for this development depend on many different factors where HIV/AIDS-related stigma and discrimination acts as one of the major ones. Aim: The aim of this study was to examine the characteristics of HIV/AIDS-related stigma and discrimination among Thai university students and to investigate if there is any difference in the characteristics with regard to gender. Method: A cross-sectional descriptive study was conducted at a university in Prathomthani Province, Thailand. A convenience sample was used. The 150 students, both male and female, participated to answer questions concerning the characteristics of HIV/AIDS-related stigma and discrimination. Results: Fear of transmission and disease was reported rather low level by the majority of the students, though inaccurate knowledge regarding transmission was observed. The level of shame, blame and judgment were low and high, most distinctive concerning women prostitutes and promiscuity. Low levels of personal support of discriminatory actions and policies, and perceived community support of discriminatory actions or policies were reported. Conclusion: The students had a low amount of fear of transmission and of the disease, though they still demonstrated a lack of knowledge regarding transmission. Women prostitutes related to shame blame and judgment were reported high level by the students. The results imply the need for further intervention programs focusing on information.
Bates, Freed Betsy A. "Work Interrupted: A Questionnaire Assessing the Relationship Between Work-Related Distress and Psychological Adjustment to Cancer." Antioch University / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1348249175.
Full textBu, Khamseen Amani. "Academic difficulties related to literacy experienced by university students in Saudi Arabia : developing a screening questionnaire and examining students' experiences." Thesis, University of Exeter, 2016. http://hdl.handle.net/10871/27174.
Full textGrimison, Peter. "Improving decision-making: Deriving patient-valued utilities from a disease-specific quality of life questionnaire for evaluating clinical trials." Medicine, 2009. http://hdl.handle.net/2123/5512.
Full textThe aim of the work reported in this thesis was to develop a scoring algorithm that converts ratings from a validated disease-specific quality of life questionnaire called the Utility-Based Questionnaire-Cancer (UBQ-C) into a utility index that is designed for evaluating clinical trials to inform clinical decisions about cancer treatments. The UBQ-C includes a scale for global health status (1 item); and subscales for physical function (3 items), social/usual activities (4 items), self-care (1 item), and distresses due to physical and psychological symptoms (21 items). Data from three studies was used. A valuation survey consisted of patients with advanced cancer (n=204) who completed the UBQ-C and assigned time-trade-off utilities about their own health state. Clinical trials were of chemotherapy for advanced (n=325) and early (n=126) breast cancer. A scoring algorithm was derived to convert the subscales into a subset index, and combine it with the global scale into an overall quality of life index, which was converted to a utility index with a power transformation. Optimal weights were assigned to the subscales that reflected their correlations with a global scale in each study. The derived utilities were validated by comparison with other patient characteristics. Each trial was evaluated in terms of differences in utility between treatment groups. In the valuation survey, the weights (range 0 to 1) for the subset index were: physical function 0.28, social/usual activities 0.06, self-care 0.01, and distresses 0.64. Weights for the overall quality of life index were health status 0.65 and subset index 0.35. The mean of the utility index scores was similar to the mean of the time trade-off utilities (0.92 vs. 0.91, p=0.6). The weights were adjusted in each clinical trial. The utility index was substantially correlated with other measures of quality of life, discriminated between breast cancer that was advanced rather than early (means 0.88 vs 0.94, p<0.0001), and was responsive to toxic effects of chemotherapy in early breast cancer (mean change 0.07, p<0.0001). There were trends to better mean scores on the utility index for patients allocated to standard-dose versus high-dose chemotherapy in the early cancer trial (p=0.1), and oral versus intravenous chemotherapy in the advanced cancer trial (p=0.2). In conclusion, data from a simple, self-rated, disease-specific questionnaire can be converted into a utility index based on cancer patients’ preferences. The index can be optimised in different clinical contexts to reflect the relative importance of different aspects of quality of life to the patients in a trial. The index can be used to generate utility scores and quality-adjusted life-years in clinical trials. It enables the evaluation of the net effect of treatments on health-related quality of life (accounting for trade-offs between disparate aspects); the evaluation of the net benefit of treatments (accounting for trade-offs between quality of life and survival); and an alternate perspective for comparing the incremental cost-effectiveness of treatments (accounting for trade-offs between net benefit and costs). The practical significance of this work is to facilitate the integration of data about health-related quality of life with traditional trial endpoints such as survival and tumour response. This will better inform clinical decision-making, and provide an alternate viewpoint for economic decision-making. Broadly, it will help patients, clinicians and health funders make better decisions about cancer treatments, by considering potential trade-offs between effects on survival and health-related quality of life.
Li, Shanshan 1979. "Validation of a French language questionnaire to measure oral health related quality of life in young children." Thesis, McGill University, 2006. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=99344.
Full textBrooks, Robert School of Community Medicine UNSW. "Health related quality of life of intensive care patients: Development of the Sydney quality of life questionnaire." Awarded by:University of New South Wales. School of Community Medicine, 1998. http://handle.unsw.edu.au/1959.4/17465.
Full textFerrari, Andrea Lepos. "Adaptação transcultural do questionário \"cultural study of musculo-skeletal and other symptoms and associated disability\" CUPID Questionnaire." Universidade de São Paulo, 2009. http://www.teses.usp.br/teses/disponiveis/7/7131/tde-07072009-094358/.
Full textThe objective of this study was to adapt the Transcultural Questionnaire Cultural Study of Muscular-Skeletal and Other Symptoms and Associated Disability CUPID Questionnaire, to the Portuguese language spoken in Brazil and to validate its contents. This methodological study was performed in accordance with internationally recommended procedures and the specific procedures indicated by the Questionnaires author since it will be applied in a multicenter study coordinated by the author. The transcultural adaptation was performed following the steps of translation, back-translation, evaluation of these versions by a committee of judges and pre-test version of the pre-final. The pre-test was performed in the Nursing Department of University Hospital at the University of Sao Paulo with 40 nursing workers. Adjustments were made after an analysis of the translations by a committee of judges when an index of content validation was less than 80%. The resulting version of the questionnaire was then pre-tested to verify the capacity of comprehension and form completion by the subjects and the possibility of adjustments considering an adjustment indicator when 15% of them presented difficulty related to form completion. The results of this pre-test showed that a significant number of Nursing workers complained of pain in the regions of lumbar, shoulder, elbow, wrist and or hand and knee, symptoms associated with psychosocial and other disabilities. Analysis of the subjects responses to items of the questionnaire revealed no difficulty in the comprehension and total understanding of the items indicating a validity of its contents for the Portuguese language spoken in Brazil. It can be concluded that the Brazilian Version of the CUPID Questionnaire is an adequate instrument for the identification of musculoskeletal symptoms indicated by nursing workers related to occupational activities, psychosocial aspects and other associated incapacities
Wimes, Cassaundra T. "The validation of the caretaker readiness questionnaire factors related to caretaker knowledge and opinions of exceptional student education services /." Tallahassee, Florida : Florida State University, 2009. http://etd.lib.fsu.edu/theses/available/etd-11012009-163549/.
Full textAdvisors: Gary Peterson and James P. Sampson, Florida State University, College of Education, Dept. of Educational Psychology and Learning Systems. Title and description from dissertation home page (viewed on May 7, 2010). Document formatted into pages; contains xii, 103 pages. Includes bibliographical references.
Lau, Wai-ha Abby, and 劉慧霞. "Structural equation modeling of the child perceptions questionnaire measuring oral health-related quality of life of children in HongKong." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2008. http://hub.hku.hk/bib/B40988089.
Full textHogue, Todd Edmund. "The sex offence information questionnaire : the development of a self-report measure of offence related denial in sexual offenders." Thesis, Cardiff University, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.430091.
Full textBroxholme, Sarah L. "Development of a questionnaire on cognitions related to sex offending for use with individuals who have mild learning disabilities." Thesis, University of Edinburgh, 1997. http://hdl.handle.net/1842/26359.
Full textTodorov, Boris K. "Validity and Reliability of the Adolescent Versions of the Migraine Specific Quality of Life Questionnaire and the Headache Disability Inventory." Ohio University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1384531478.
Full textGlas, Bo. "Methodological aspects of unspecific building related symptoms research." Doctoral thesis, Umeå : Institutionen för folkhälsa och klinisk medicin, Umeå universitet, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-30640.
Full textVorkink, Gerilynn Price. "Patterns of Presenting Problems and Symptom Severity Related to Family Trauma in a Robust Sample of College Students." BYU ScholarsArchive, 2010. https://scholarsarchive.byu.edu/etd/2355.
Full textPhillips, Kristina T. "Applying the Relapse Model to Harm Reduction: The Development and Evaluation of the Harm Reduction Self-Efficacy Questionnaire." Connect to this title online, 2005. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=bgsu1131342662.
Full textDaniels, Lori Rae. "Assessment of social support among veterans with military-related post-traumatic stress disorder : a study of the Social Support Questionnaire." Thesis, University of Hawaii at Manoa, 2002. http://hdl.handle.net/10125/3012.
Full textThesis (Ph. D.)--University of Hawaii at Manoa, 2002.
Includes bibliographical references (leaves 112-127).
Mode of access: World Wide Web.
Also available by subscription via World Wide Web
ix, 127 leaves, bound 29 cm
Lau, Wai-ha Abby. "Structural equation modeling of the child perceptions questionnaire measuring oral health-related quality of life of children in Hong Kong." Click to view the E-thesis via HKUTO, 2008. http://sunzi.lib.hku.hk/hkuto/record/B40988089.
Full textWalfridsson, Ulla. "Assessing Symptom Burden and Health-Related Quality of Life in patients living with arrhythmia and ASTA : Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia." Doctoral thesis, Linköpings universitet, Omvårdnad, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-71873.
Full textRibeiro, Mariana Oliveira. "Pediatric Voice Related Quality of Life (pVR- QOL): tradução e adaptação para o português europeu." Bachelor's thesis, [s.n.], 2015. http://hdl.handle.net/10284/4746.
Full textO presente estudo tem como principais objetivos a tradução e adaptação do questionário de autoperceção de qualidade vocal- Pediatric Voice Related Quality of Life (pVR- QOL) para falantes do Português Europeu, assim como a realização de um pré-teste. O referido questionário foi traduzido e adaptado para o Português por especialistas na Língua Inglesa e Portuguesa. Contou ainda com a colaboração de Terapeutas da Fala e profissionais da área da Qualidade de Vida. A versão final deste questionário, intitulada como “Questionário de Qualidade de Vida Relacionada com a Voz Pediátrica (QVRVp)” foi aplicada a 44 pais. Foram formados dois grupos: 37 pais de crianças sem patologia vocal, que frequentam o Colégio de Ermesinde e 7 pais de crianças com patologia vocal diagnosticada, acompanhadas no Centro Hospitalar do Porto- Hospital de Santo António. Como principais resultados obtidos podemos salientar a média de idades de 7,64 anos e que 50% da amostra é do sexo feminino e 50% do masculino. Em relação ao grupo patológico 4 crianças são do sexo feminino e 3 do masculino, enquanto no grupo não patológico 18 crianças são do sexo feminino e 19 do masculino. Verificaram-se diferenças estatisticamente significativas entre os dois grupos. De forma discriminativa, 8 de 10 perguntas permitem identificar o grupo com patologia, em comparação com o grupo sem patologia. Com esta investigação é possível concluir que o questionário em estudo pode ser utilizado como instrumento na avaliação e intervenção de Terapia da Fala, nas perturbações vocais da população pediátrica. Deste modo facilita-se a maior consciencialização para os problemas da voz, cada vez mais frequentes em idades precoces.
The main aims of this study are the translation and adaptation of a vocal quality self-perception questionnaire – Pediatric Voice Related Quality of Life (pVR-QOL) – for European Portuguese speakers, as well as the completion of a pretest. This questionnaire was translated and adapted into Portuguese by specialists in English Language and Portuguese. It also counted with the collaboration of Speech Therapists and experts in the field of Quality of Life. The final version of the questionnaire titled “Questionário de Qualidade de Vida Relacionada com a Voz Pediátrica (QVRVp)” was applied to 44 parents. Two groups were formed: 37 parents of children without vocal pathology, attending the College of Ermesinde and 7 parents of children diagnosed with vocal pathology, who attained the Centro Hospitalar do Porto – Hospital de Santo António. As main results we can point out the average age of 7.64 years and that 50% of the sample was female and 50% male. In terms of disease group, 4 children are female and 3 are males, while in non-pathological group 18 children are female and 19 are male. There were statistically significant differences between the two groups. In a discriminative manner, 8 out of 10 questions identify the disease group compared with the group without pathology. With this research we conclude that the questionnaire used in this study can be a tool in the assessment and speech therapy intervention, in paediatric voice disorders. Thus, it allows greater awareness of voice problems, which are increasing in younger ages.
Rofail, Diana. "Treatment satisfaction and dissatisfaction in patients with chronic low back pain." Thesis, Brunel University, 2010. http://bura.brunel.ac.uk/handle/2438/4616.
Full textJoshi, Hrishikesh Bhaskar. "Assessment of health-related quality of life (HRQoL) in patients with ureteric stents by development and validation of a multidimensional questionnaire." Thesis, University of Bristol, 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.399931.
Full textStrömbäck, Gustav. "Common misconceptions about everyday astronomy-related phenomena among students in the 9th grade." Thesis, Malmö högskola, Lärarutbildningen (LUT), 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-35016.
Full textNcube, Nkosinathi. "Validation of the polycystic ovary syndrome health-related quality of life questionnaire (PCOSQ) in the clinical community in our gynaecological endocrine clinic." Master's thesis, University of Cape Town, 2016. http://hdl.handle.net/11427/23400.
Full textOusmen, Ahmad. "Détermination du sens clinique d'un changement pour les questionnaires de qualité de vie relative à la santé en cancérologie." Thesis, Bourgogne Franche-Comté, 2019. http://www.theses.fr/2019UBFCE001/document.
Full textIn oncology, the health-related quality of life (HRQOL) is generally considered as a second endpoint in the clinical trials. The interpretation of the results of the longitudinal analysis of such data must be made in both statistical and clinical point of view in order to produce meaningful results for both patients and clinicians. The main objective is to assess the impact of the treatment on patient’s HRQOL level over time. The minimal clinically important difference (MCID) was defined as the smallest change between two scores in a treatment outcome that a patient would identify as important. Indeed, the longitudinal analysis of HRQOL remains complex, particularly due to the potential occurrence of a Response Shift effect characterizing the process of adaptation of the patient in relation to the illness and its treatment. Hence, the first objective of this work is a literature review concerning the determination of the MCID by the most commonly used methods: anchor-based and distribution-based methods. Secondly, calculating the MCID using anchor-based and distribution-based methods by applying different distribution criteria and several different anchors. The objective is to compare the results obtained by the different methods and to compare them to others obtained by previous studies. Finally, studying the impact of the Response Shift effect on the determination of MCID for the HRQOL questionnaires in cancer research using several data corresponding to different therapeutic situations and cancer locations
Leander, Mai. "Health-Related Quality of Life in Asthma." Doctoral thesis, Uppsala universitet, Arbets- och miljömedicin, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-129626.
Full textLuehrs, Craig A. "Discriminating dyspnea related to lower extremity and whole body activity in COPD using the University of California San Diego Shortness of Breath Questionnaire." Connect to resource, 2006. http://hdl.handle.net/1811/6612.
Full textTitle from first page of PDF file. Document formatted into pages: contains 30 p. Includes bibliographical references (p. 25-27). Available online via Ohio State University's Knowledge Bank.
Larsson, Christel. "Young vegetarians and omnivores : Dietary habits and other health-related aspects." Doctoral thesis, Umeå universitet, Institutionen för kostvetenskap, 2001. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-5.
Full textPellegrino, Luiz Antonio. "Tradução e adaptação transcultural do "Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire" (CPCHILD©) para a lingua portuguesa do Brasil /." Botucatu, 2013. http://hdl.handle.net/11449/97709.
Full textBanca: Mauro Volpi
Banca: Dionisia Aparecida Cusin Lamônica
Resumo: Paralisia cerebral (PC) descreve um grupo de anormalidades permanentes do desenvolvimento, do movimento e da postura, causando limitação da atividade, que são atribuídas a um distúrbio não progressivo que ocorreu no cérebro em desenvolvimento do feto ou do bebê. As alterações motoras da paralisia cerebral são frequentemente acompanhadas de distúrbios da sensação, percepção, cognição, comunicação, comportamento e por problemas musculoesqueléticos secundários1. A paralisia cerebral está entre as causas mais comuns de incapacidade crônica na infância, com uma incidência entre 2 e 2,5 por 1000 nascidos vivos nos países desenvolvidos 2-4. Embora a lesão cerebral primária seja não-progressiva, a patologia é permanente e muitas das manifestações clínicas, incluindo as consequências musculoesqueléticas, são adquiridas e progressivas com o tempo. Entre 25% e 35% dessas crianças são gravemente comprometidas e apresentam dificuldades com suas atividades da vida diária (AVD), comunicação, mobilidade, e consequentemente com sua saúde, e por isso são dependentes de seus cuidadores para a maioria das suas necessidades. Essas condições têm um impacto significativo durante toda a vida dessas crianças, de seus cuidadores e familiares, e para as instituições responsáveis pelos seus cuidados e bem estar 5-7
Abstract: The consideration of quality of life related to health is crucial for planning and maintaining a system of patient-centered care. Until recently there have been no sutiable instruments to assess health related quality of life (HRQoL) of children and adolescents with severe, non-ambulant cerebral palsy (GMFCS functional levels IV and V). The "Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire" (CPCHILD©) was developed in English specifically for this population, and has been validated in Canada. The aim of this study was to translate and adapt the CPCHILD© Questionnaire into Portuguese of Brazil, allowing researchers in Brazil to have this important tool in measuring health related quality of life in this population, besides the possibility of comparison with other studies that used the same questionnaire in other languages. The cross-cultural adaptation included two forward and back translations by independent translators, an assessment of the two versions by an expert committee, and the development of a pre-final version which was tested on 30 caregivers of children (5 -18) with severe CP (GMFCS IV & V). The caregivers' comments about the pre-final version were assessed by the expert committee and incorporated in the development of the final version. Despite the relative equivalence between the two translations, some items required adaptations for the synthesized version. Certain modifications were necessary in the pre-final version to achieve idiomatic equivalence. The modifications accounted for the socioeconomic and cultural levels of the target population. Following the pre-test, we modified language that was difficult to understand, and certain items were adapted for the final version
Mestre
Pellegrino, Luiz Antonio [UNESP]. "Tradução e adaptação transcultural do Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire (CPCHILD©) para a lingua portuguesa do Brasil." Universidade Estadual Paulista (UNESP), 2013. http://hdl.handle.net/11449/97709.
Full textParalisia cerebral (PC) descreve um grupo de anormalidades permanentes do desenvolvimento, do movimento e da postura, causando limitação da atividade, que são atribuídas a um distúrbio não progressivo que ocorreu no cérebro em desenvolvimento do feto ou do bebê. As alterações motoras da paralisia cerebral são frequentemente acompanhadas de distúrbios da sensação, percepção, cognição, comunicação, comportamento e por problemas musculoesqueléticos secundários1. A paralisia cerebral está entre as causas mais comuns de incapacidade crônica na infância, com uma incidência entre 2 e 2,5 por 1000 nascidos vivos nos países desenvolvidos 2-4. Embora a lesão cerebral primária seja não-progressiva, a patologia é permanente e muitas das manifestações clínicas, incluindo as consequências musculoesqueléticas, são adquiridas e progressivas com o tempo. Entre 25% e 35% dessas crianças são gravemente comprometidas e apresentam dificuldades com suas atividades da vida diária (AVD), comunicação, mobilidade, e consequentemente com sua saúde, e por isso são dependentes de seus cuidadores para a maioria das suas necessidades. Essas condições têm um impacto significativo durante toda a vida dessas crianças, de seus cuidadores e familiares, e para as instituições responsáveis pelos seus cuidados e bem estar 5-7
The consideration of quality of life related to health is crucial for planning and maintaining a system of patient-centered care. Until recently there have been no sutiable instruments to assess health related quality of life (HRQoL) of children and adolescents with severe, non-ambulant cerebral palsy (GMFCS functional levels IV and V). The “Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire” (CPCHILD©) was developed in English specifically for this population, and has been validated in Canada. The aim of this study was to translate and adapt the CPCHILD© Questionnaire into Portuguese of Brazil, allowing researchers in Brazil to have this important tool in measuring health related quality of life in this population, besides the possibility of comparison with other studies that used the same questionnaire in other languages. The cross-cultural adaptation included two forward and back translations by independent translators, an assessment of the two versions by an expert committee, and the development of a pre-final version which was tested on 30 caregivers of children (5 -18) with severe CP (GMFCS IV & V). The caregivers’ comments about the pre-final version were assessed by the expert committee and incorporated in the development of the final version. Despite the relative equivalence between the two translations, some items required adaptations for the synthesized version. Certain modifications were necessary in the pre-final version to achieve idiomatic equivalence. The modifications accounted for the socioeconomic and cultural levels of the target population. Following the pre-test, we modified language that was difficult to understand, and certain items were adapted for the final version
Carlisle, Kathleen Walker. "School Factors Related to the Social and Behavioral Success of Children and Adolescents with Tuberous Sclerosis: Special Education Placement, Services, and Parental Involvement." [Tampa, Fla.] : University of South Florida, 2003. http://purl.fcla.edu/fcla/etd/SFE0000154.
Full textAxelsson, Lars, Ingemar Andersson, Anders Håkansson, and Göran Ejlertsson. "Work ethics and general work attitudes in adolescents are related to quality of life, sense of coherence and subjective health : a Swedish questionnaire study." Högskolan Kristianstad, Institutionen för hälsovetenskaper, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:hkr:diva-897.
Full textMucci, Samantha [UNIFESP]. "Questionário para Avaliação de Qualidade de Vida em Portadores de Doença Hepática Crônica: Tradução e Validação do CLDQ – Chronic Liver Disease Questionnaire." Universidade Federal de São Paulo (UNIFESP), 2009. http://repositorio.unifesp.br/handle/11600/10002.
Full textNesse estudo objetivou-se realizar a tradução para o português e a adaptação cultural do instrumento Chronic Liver Disease Questionnaire (CLDQ) para uso no Brasil. O instrumento foi traduzido da versão original (Inglês) para a língua portuguesa pelos autores e, posteriormente, revisado e avaliado quanto ao grau de dificuldade das traduções e equivalência por tradutores bilíngües. O instrumento foi, então, aplicado em 20 pacientes com hepatopatia crônica selecionados aleatoriamente. Não houve dificuldade na compreensão do instrumento, todas as questões foram consideradas aplicáveis pelos pacientes, e a equivalência cultural do CLDQ foi demonstrada sem que mudanças na tradução original precisassem ser feitas. A tradução e a adaptação cultural do CLDQ para o português, no Brasil, foram realizadas, tendo sido cumprida esta importante etapa para sua validação e utilização em nosso meio.
The aim of this study was to carry out the translation from English into Portuguese and the transcultural adaptation of the Chronic Liver Disease Questionnaire to use in Brazil. The instrument was translated from the original version (English) into Portuguese language by the authors and then, it was revised. The degree of difficulty of the translations and equivalence for bilingual translators were evaluated. The instrument was, then, applied in 20 patients with chronic liver disease randomly selected. It was easy to the patients understand the instrument, all the questions had been considered applicable by the patients, and the cultural equivalence of the CLDQ was demonstrated without changes in the original translation. The translation and the transcultural adaptation of CLDQ into Portuguese, in Brazil, had been carried out, having been fulfilled to this important stage for its validation and use in our way.
TEDE
BV UNIFESP: Teses e dissertações
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