Relevant bibliographies by topics / Right to Genetic Identity

Contents

  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters
  5. Conference papers
  6. Reports

Academic literature on the topic 'Right to Genetic Identity'

Author: Grafiati
Published: 4 June 2021
Last updated: 4 February 2022

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Journal articles on the topic "Right to Genetic Identity"

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Sabatello, Maya. "The Politics of the Child's Right to Identity in a Disability-Free Society." International Journal of Children's Rights 17, no. 2 (2009): 177–206. http://dx.doi.org/10.1163/157181808x312131.

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AbstractThe essay examines the legal and moral implications of pre-natal genetic selection of disability in the context of children. I build on scholarly literature on the politics of identity and of culture to explore whether scientific developments prompt a child's "right to a sound mind and body." I consider this question in light of international human rights standards, including the recent European Conventions on Human Rights and Biomedicine, and particularly, the child's right to identity. I propose a new dual model to evaluate such biomedical decisions from a child-centred approach. What is the interplay between the parental right to reproductive freedom and the rights of the child? Where are the children themselves configured in these developments? How can such biomedical decisions be translated into the child's voice? And to what extent do such scientific techniques correspond to the recognition of children under the International Convention on the Rights of the Child as social agents in their own right?
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Monducci, Juri. "The protection of genetic information." SALUTE E SOCIETÀ, no. 3 (November 2010): 91–113. http://dx.doi.org/10.3280/ses2010-003007-ing.

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The law pertaining to personal data has developed in Italy over a thirty-year span that took us from recognition of such data in the case law, in 1975, to its statutory protection, in 2003. This evolution would subsequently come to the point of specifically regulating the processing of genetic data as data revealing an individual's genetic makeup, thereby also revealing the biological future of individuals and their offspring: this information describes an individual at a core level where the deepest, most unchangeable traits are found and can therefore nurture what is nowadays referred to as genetic determinism, which reduces the person to a complex of genetic data and so ignores the whole layer of characteristics that make each of us unique. There is, then, a discriminatory risk inherent in the processing of genetic data, and equally clear are the psychological implications of such processing, so much so that the need has arisen to have rules in place aimed at regulating the biotechnologies and genetics in particular. These rules have given birth to the so-called fourthgeneration rights, inclusive of the right to ones genetic identity and the right not to know ones genetics (although this is something that had been discussed earlier, too), and it is to a discussion of these rights that this essay is devoted.
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Mulligan, Andrea. "Protecting Identity In Collaborative Assisted Reproduction: The Right To Know One’s Gestational Surrogate." International Journal of Law, Policy and the Family 34, no. 1 (April 1, 2020): 20–42. http://dx.doi.org/10.1093/lawfam/ebz017.

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Abstract Gestational surrogacy presents a unique form of parenthood: that which is biological but not genetic. This new form of parenthood demands a re-examination of the rights and duties that arise from the parent–child relationship. This article is concerned with the surrogate-born person’s right to know his or her gestational surrogate, an aspect of the right to identity. The springboard for this analysis is draft legislation in Ireland that proposes the creation of a legal right to trace one’s gestational surrogate. The purpose of this article is to interrogate the normative underpinnings of the legal right to know one’s gestational surrogate, exploring whether instrumental or deontological/rights-based justifications provide a better theoretical basis for the creation of a legal right. The article begins by exploring the link between the gestational relationship and identity formation, drawing on current scholarship on the metaphysics and physiology of pregnancy. It goes on to consider instrumental justifications for the creation of a legal right to know one’s surrogate, but argues that deontological or rights-based justifications provide the more compelling basis for creation of the legal right. The article concludes that this applies to all legal regimes that would seek to establish a legal right to know one’s surrogate, and is especially apt in the case of the draft Irish legislation, due to the requirement of mandatory disclosure.
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Burmeister, Stefan. "Does the concept of genetic ancestry reinforce racism?" TATuP - Zeitschrift für Technikfolgenabschätzung in Theorie und Praxis 30, no. 2 (July 26, 2021): 41–46. http://dx.doi.org/10.14512/tatup.30.2.41.

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Genetic ancestry is seen as an alternative to the problematic concept of race and is positioned against abusive racist and nationalist perspectives. The concept of genetic ancestry is nevertheless not free of racial categorizations. Increasingly, it is becoming an integral part of identity politics. Genetic ancestry is promoted as a way to give identity and visibility to marginalized groups but is also rejected as a form of biocolonialism. In xenophobic and racist discourses of right-wing groups, the concept has found fertile ground. The field of genetics is partly to blame for this since it opens the door to problematic identity discourses through a careless use of archaeological, ethnic, and genetic categories.
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Montanari Vergallo, Gianluca, Enrico Marinelli, Natale Mario di Luca, and Simona Zaami. "Gamete Donation: Are Children Entitled to Know Their Genetic Origins? A Comparison of Opposing Views. The Italian State of Affairs." European Journal of Health Law 25, no. 3 (March 13, 2018): 322–37. http://dx.doi.org/10.1163/15718093-12530378.

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Abstract Medically assisted fertilization techniques give rise to a wide array of issues, such as the rights to secrecy, partial anonymity or to the full disclosure of information about the donors’ identities. The authors espouse the right of donor-conceived children to know their biological origins, and delve into opposing views, either in favour of the gamete donors’ right to anonymity or against it. Be that as it may, the right to know one’s biological origins has been gaining a foothold as part of the broader right to personal identity. The latter is in fact codified and upheld in numerous international treaties and conventions as a fundamental human right. The authors expound upon the Italian legislation, which is designed to enforce total donor anonymity. Against that backdrop, the authors weigh the suitability of further regulating access to sensitive, identifying information about the procreation methods involved in each case.
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Ravelingien, An, and Guido Pennings. "The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing." American Journal of Bioethics 13, no. 5 (May 2013): 33–41. http://dx.doi.org/10.1080/15265161.2013.776128.

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Cohen, I. Glenn. "Of Modest Proposals and Non-Identity: A Comment on the Right to Know Your Genetic Parents." American Journal of Bioethics 13, no. 5 (May 2013): 45–47. http://dx.doi.org/10.1080/15265161.2013.776132.

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Bliss, Catherine. "The Marketization of Identity Politics." Sociology 47, no. 5 (October 2013): 1011–25. http://dx.doi.org/10.1177/0038038513495604.

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Sociology has begun to question how new genetic sciences affect older ways of constructing and contesting social identity, including forms of identity politics that have brought women and minorities significant gains. This article presents US debates on genetics, identity politics, and race in order to theorize emergent transformations in light of the genomic revolution. Examining recent developments in the realms of pharmaceuticals and ancestry estimation, I argue that traditional forms of identity politics are still actively at work, though they are being marketized in novel ways. This article combines theories of racialization and medicalization to detail how genomics ushers in a subtle new version of identity politics: a pharmaceuticalized citizenship wherein health rights and political participation are co-envisioned in individualistic molecular terms.
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Brenciani, Andrea, Erika Tiberi, Eleonora Morici, Erman Oryaşın, Eleonora Giovanetti, and Pietro E. Varaldo. "ICESp1116, the Genetic Element Responsible forerm(B)-Mediated, Inducible Resistance to Erythromycin in Streptococcus pyogenes." Antimicrobial Agents and Chemotherapy 56, no. 12 (October 1, 2012): 6425–29. http://dx.doi.org/10.1128/aac.01494-12.

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ABSTRACTICESp1116, responsible forerm(B)-mediated, inducible erythromycin resistance inStreptococcus pyogenes, was comprehensively characterized, and its chromosomal integration site was determined. It displayed a unique mosaic organization consisting of a scaffold, related to TnGallo1 fromStreptococcus gallolyticus, with two inserted fragments separated by IS1216. One fragment, containingerm(B), displayed high-level identity to a portion of theS. pyogenesplasmid pSM19035; the other, containing a truncatedtet(M) gene, displayed high-level identity to the right-hand portion ofClostridium difficileTn5397.
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Montanari Vergallo, Gianluca, and Natale Mario Di Luca. "La spinta verso una legislazione europea comune sul diritto di conoscere le proprie origini genetiche / The push towards common European legislation with respect to the right to know one’s genetic origins." Medicina e Morale 66, no. 6 (January 25, 2018): 747–61. http://dx.doi.org/10.4081/mem.2017.518.

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A venti anni dalla sua approvazione, la Convenzione di Oviedo necessita di un aggiornamento. Infatti, non affronta la questione del diritto dei bambini nati da fecondazione eterologa di conoscere l’identità dei donatori di gameti. La Corte europea dei diritti dell’uomo ha recentemente stabilito che: a) il diritto di conoscere le proprie origini biologiche è tutelato dall’art. 8 della Convenzione dei diritti dell’uomo; b) tale diritto deve essere bilanciato con quello della madre biologica di rimanere anonima (c.d. parto anonimo). Al fine di trovare tale bilanciamento, una possibile soluzione consiste nel richiedere ai giudici di convocare la madre per chiederle se intende revocare l’anonimato. Se la madre ribadisce la propria originaria intenzione di rimanere sconosciuta, il Tribunale non può consentire al figlio di conoscere la sua identità. Gli autori analizzano anche altre due questioni non prese in considerazione dalla Corte europea: a) l’equilibrio tra il diritto di conoscere le proprie origini e quello dei donator di gamete all’anonimato; b) se tale diritto dei bambini nati da fecondazione eterologa vincoli i genitori legali a rivelargli le modalità del concepimento. Tali problemi e l’importanza degli interessi in gioco inducono gli autori a sostenere che la scelta di usare il citato art. 8 come criterio di giudizio non è affatto ottimale. Appare preferibile affrontare queste questioni attraverso un aggiornamento della Convenzione di Oviedo o comunque con modalità tali da arrivare ad una regolamentazione che sia uniforme all’interno dell’Unione europea. ---------- Twenty years since it was opened for signature, the Oviedo Convention needs updating. It does not deal with the issue of the donor-conceived children’s right to know the identity of the gamete donors. The European Court of Human Rights has recently stated that: a) the right to know one’s biological background is protected by article 8 of the Convention on Human Rights; b) such a right must be balanced with the biological mother’s right to anonymity (anonymous birth). In order to find such balancing, a possible solution might be to require judges to summon mothers to ask them whether they would like to reverse their decision to be anonymous. If the mother reaffirms her intention to remain unknown, the court may not allow the child to learn of her identity and contact her. The authors also analyze two other issues not taken into account by the European Court: a) the balancing between the right to know one’s origins and the gamete donors’ right to anonymity; b) whether the donor-conceived children’s right to know would make it mandatory for legal parents to disclose conception procedures. These problems and the importance of the interests at stake induce the authors to argue that the choice to keep using the above mentioned article 8 as yardstick is far from ideal. It appears to be far preferable to deal with these issues while updating the Oviedo Convention or in such a way as to incentivize the enactment of legislation that would be uniform throughout the European Union.
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Dissertations / Theses on the topic "Right to Genetic Identity"

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Postan, Emily Rose. "Defining ourselves : narrative identity and access to personal biological information." Thesis, University of Edinburgh, 2017. http://hdl.handle.net/1842/25733.

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When biological information about an individual is produced in healthcare or research settings, ethical questions may arise about whether the individual herself should be able to access it. This thesis argues that the individual’s identity-related interests warrant serious attention in framing and addressing these questions. Identity interests are largely neglected in bioethical, policy and legal debates about information access – except where information about genetic parentage is concerned. Even there, the relationship between information and identity, and the interests involved, remain unclear. This thesis seeks to fill this conceptual gap and challenge this exceptionalism. It does so by developing a normative account of the roles that a wide range of information about our health, bodies and biological relationships – ‘personal bioinformation’ – can play in the construction of our self-conceptions. This account is developed in two steps. First, building on existing philosophical theories of narrative self-constitution, this thesis proposes that personal bioinformation has a critical role to play in the construction of identity narratives that remain coherent and support us in navigating our embodied experiences. Secondly, drawing on empirical literature reporting individuals’ attitudes to receiving three categories of personal bioinformation (about donor conception, genetic disease susceptibility, and neuroimaging-based psychiatric diagnoses), the thesis seeks to illustrate, demonstrate the plausibility of, and to refine this theoretically-based proposition. From these foundations, it is argued that we can have strong identity-related interests in whether and how we are able to access bioinformation about ourselves. The practical implications of this conclusion are then explored. It is argued that identity interests are not reducible to other interests (for example, in health protection) commonly weighed in information disclosure decisions. They, therefore, warrant attention in their own right. An ethical framework is developed to guide delivery of this. This framework sets out the ethical responsibilities of those who hold bioinformation about us to respond to our identity interests in information disclosure practices and policies. The framework is informed by indications from the illustrative examples that our interests engaged as much by how bioinformation is communicated as whether it is disclosed. Moreover, these interests are not uniformly engaged by all bioinformation in all circumstances and there is potential for identity detriment as well as benefit. The ethical framework highlights the opportunities for and challenges of responding to identity interests and the scope and limits of potential disclosers’ responsibilities to do so. It also makes recommendations as to the principles and characteristics of identity-supporting disclosure practices.
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Apple, Angela L. "Apocalypse how? : a generic criticism of on-line Christian Identity rhetoric as apocalyptic rhetoric." Virtual Press, 1998. http://liblink.bsu.edu/uhtbin/catkey/1100451.

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This study explores the complex relationship between radical right rhetoric and the genre of apocalyptic rhetoric. The radical right consists of the White Nationalist and Patriot movements, two common "hate group" movements in the United States. The Klanwatch (1998d) explains that the number of hate groups in the United States grew by 20 percent in 1997. They attribute much of this growth to the movement's use of the Internet. Although these hate groups are highly diverse, Christian Identity is a common theology to which many members of the radical right adhere.This study analyzes two artifacts representational of Christian Identity rhetoric. These artifacts were found on the Web site of the Northwest Kinsmen, a radical right group from the Pacific Northwest. Christian Identity is a "pseudo-Christian" theology that claims that white Christians are the true Israelites and that Jews are actually "children of Satan." Christian Identity followers believe that there will be a racial war (i.e., racial apocalypse) in which white Christians will triumph over the forces of evil (Abanes, 1996).This study utilizes the rhetorical method of generic criticism to determine that the Christian Identity rhetoric present on the Northwest Kinsmen's Web site is apocalyptic rhetoric. Generic theory, the theoretical foundation of this study, argues that rhetorical genres have common situational, substantive, and stylistic features and a common "organizing principle" that unifies the genre. Therefore, this study compares the key features of apocalyptic rhetoric to the Northwest Kinsmen artifacts. Through this study, a greater understanding of the social reality, beliefs, attitudes, and values of the radical right, Christian Identity rhetors is obtained.This study discovers that the Christian Identity rhetoric found on the Northwest Kinsmen's Web site is apocalyptic rhetoric. This study illustrates that these Christian Identity rhetors believe that they are living in a chaotic world of inexplicable problems. Through apocalyptic rhetoric, the rhetors help explain the "crises" facing the audience and therefore restore order in their lives. Specifically, this study shows how these apocalyptic rhetors utilize conspiracy theories to restore order. Additionally, it illustrates how the rhetorical strategies associated with apocalyptic rhetoric (i.e., typology, transfer, and style and language) are used to enhance the credibility of the rhetor and the legitimacy of even the most racist assertions. Finally, this study provides insight into the use of the Internet by radical right groups.
Department of Speech Communication
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Ferreira, Paula de Carvalho Santos. "O direito à identidade genética em conflito com o anonimato do doador de sêmen: aspectos bioéticos e jurídicos." Universidade Catolica de Salvador, 2016. http://hdl.handle.net/123456730/256.

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O presente trabalho visa discutir o conflito entre o anonimato do doador de sêmen e o direito à identidade genética na técnica de reprodução assistida heteróloga. Aborda-se a busca dos casais inférteis pelo sonho de ter filhos, sendo necessária, algumas vezes, a utilização de material genético alheio aos deles. Discutem-se os princípios da Bioética e do Biodireito que permeiam os avanços da Biotecnologia, no intuito de preservar a humanidade de forma digna. No Brasil, defende-se o anonimato do doador de sêmen, tendo em vista que não há legislação específica, apenas resoluções do Conselho Federal de Medicina, gerando reflexões éticas e jurídicas. Há uma discrepância entre o contrato do doador de sêmen, que deve ser obrigatoriamente gratuito, e o contrato de recepção de sêmen, que é oneroso e lucrativo para as clínicas de reprodução humana assistida, pois prestam serviços médicos utilizando material genético gratuitamente obtido. Outrossim, não se confundem o direito à identidade genética com o direito de reconhecimento de paternidade. O princípio da afetividade norteia o Direito de Família, não sendo o pai biológico, de fato, o pai afetivo do indivíduo. O direito à ascendência genética está atrelado aos direitos de personalidade do ser humano, cuja existência deve ser digna, seja no aspecto físico ou emocional/psíquico. Percebe-se, então, que há uma carência de legislação para garantir o direito apenas à identidade genética, o que não incidiria em obrigações afetivas, alimentares ou/e sucessórias para o doador de sêmen.
This paper discusses the conflict between the anonymity of the sperm donor and the right to genetic identity in heterologous reproductive assisted technology. Deals with the search for the dream of infertile couples to have children, requiring sometimes the use of genetic material foreign to them. The principles of Bioethics and Biolaw discussing that pervade the advances in Biotechnology, in order to preserve humanity dignity. In Brazil, defends anonymity of semen donor, given that there is no specific legislation, only resolutions of the Federal Council of Medicine, generating ethical and legal considerations. There is a discrepancy between the semen donor contract, which must necessarily be free, and semen reception agreement, which is expensive and profitable for the assisted human reproduction clinics, as providing medical services by using genetic material obtained for free. Also, do not confuse the right to genetic identity with the right to paternity recognition. The principle of affectivity guides the Family Law, not being the biological father, in fact, the emotional individual's father. The right to genetic ancestry is linked to the personality rights of the human being, whose existence should be worthy, is the physical aspect or emotional / mental. It is clear, then, that there is a lack of legislation to ensure the right genetic identity, which would focus not on affective bonds, food and / or succession to the semen donor.
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Stroud, Joseph James Iain. "Constructions of identity through music in extreme-right subcultures." Thesis, University of Edinburgh, 2014. http://hdl.handle.net/1842/9575.

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This thesis examines the musical cultures associated with extreme-right politics, considering not only what this music projects about extreme-right ideology, but also the various ways in which music functions as part of a political subculture. This analysis extends beyond the stereotypical extreme-right music associated with the skinhead subculture, often referred to as Oi!, to incorporate extreme-right engagement with genres such as metal, folk, country and classical music. The chapters explore various aspects of identity—including race, sexuality, gender and class—and their significance to and reflection through extreme-right music, as manifested in genre choices, lyrics, album artwork and the features of the music itself. The thesis also considers the way in which less explicit content is produced and the motivation behind this, the importance of myth and fantasy in extreme-right music, and the way that the conspiracist mindset—which is prevalent, albeit not homogeneous, in extreme-right culture—is articulated both in extreme-right music and in the interpretation of mainstream music as antagonistic to extreme-right goals. Music is significant to extreme-right politics for a number of reasons. It is generally understood to be an effective tool in the indoctrination and recruitment of individuals into extreme-right ideology and politics, which is why music is sometimes freely distributed, particularly to youths. The very existence of this music can act to legitimise extreme-right views through the implication that they are shared by its producers and audience. Music also acts as an important tool for the imagining of an extreme-right community through its creation of a space to meet and create networks, a function consolidated by the media surrounding music, particularly websites, forums and magazines. As well as constructing the spaces for extreme-right communities, this music plays an important role in identifying the characteristics of those communities, in articulating what it is to be “us” as contrasted to “them.” Analysis of this music suggests that it has the ability to resolve the ideological contradictions which define the extreme right, even as this analysis reveals such contradictions.
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Lloyd, Stephanie 1975. "Genetic states : collective identity and genetic nationalism in Iceland and Quebec." Thesis, McGill University, 2001. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=32926.

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Population genetics studies, coupling genealogical and genetic information, are being launched in many places around the world. Examples include commercial projects, scientific inquiries into the determinants of disease, efforts to better understand healthcare needs, and attempts to trace the histories of groups. Two such studies have been launched in Iceland and Quebec. One of the motives for the creation of and participation in these projects is a personal interest in learning about one's genetic lineage and a collective pride in a putative national genetic identity. In this thesis I will be examining how new genetic information has been drawn into claims of national identity and how genetic technologies have been used to create imagined genetically homogenous communities.
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Fish, Maryam. "Analysis of genetic variations associated with arrhythmogenic right ventricular cardiomyopathy." Doctoral thesis, University of Cape Town, 2016. http://hdl.handle.net/11427/20350.

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Cardiomyopathy accounts for 20-30% of acute heart failure cases in adult Africans. Several types of cardiomyopathy have been identified; this study focused primarily on the genetic causes of arrhythmogenic right ventricular cardiomyopathy (ARVC). Many genes are implicated in ARVC pathogenesis, but many remain to be identified. We investigated a South African family (ACM2) with autosomal dominant ARVC, for whom the genetic cause of disease was unknown. Extensive genetic analysis was previously performed using genome-wide linkage analysis, but no disease-causing genetic variant was identified. We subsequently performed candidate gene screening of the phospholamban (PLN) gene, genome-wide copy number variant (CNV) analysis and whole exome sequencing to identify the causal genetic variant. The ACM2 family harboured no disease-causing PLN variants. However, on screening all cardiomyopathy cases in our registry (ARVC, dilated cardiomyopathy (DCM), hypertrophic cardiomyopathy and peripartum cardiomyopathy), we identified a known pathogenic PLN variant (c.25C>T; p.R9C) in a DCM family of European descent. This variant was reported in an American DCM family of European descent. Haplotype analysis revealed independent variant origins in these families. CNV analysis revealed no disease-causing variants in the ACM2 family. Whole exome sequencing of two affected ACM2 family members revealed 38 variants shared by these individuals. Variants were verified in family members and population controls by high resolution melt analysis and Sanger sequencing, and by bioinformatics analysis to predict variant pathogenicity. A novel N-cadherin (CDH2) c.686A>C (p.Q229P) variant segregated with ARVC in the ACM2 family and was bioinformatically predicted to be deleterious. An additional pathogenic CDH2 variant (c.1219G>A (p.D407N)) was identified in another individual with ARVC after screening 85 cases. These CDH2 variants were absent in normal population controls. Furthermore, alterations in Cdh2 are known to cause cardiomyopathy in rodent models. Taken together, these findings support the causal role of N-cadherin gene variants in human cardiomyopathy.
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Johansson, Thomas Miegel Fredrik. "Do the right thing : lifestyle and identity in contemporary youth culture /." Stockholm : Almqvist och Wiksell, 1992. http://catalogue.bnf.fr/ark:/12148/cb355880115.

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Klein, Jeff. "Identity Protection: Copyright, Right of Publicity, and the Artist's Negative Voice." Bowling Green State University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1395585265.

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Peplow, Katherine. "Discussions of Personal Identity in Genetic Counseling Supervision." University of Cincinnati / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623165916484682.

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Frasier, Timothy Ray White Bradley Neil. "Integrating genetic and photo-identification data to assess reproductive success in the North Atlantic right whale (Eubalaena glacialis) /." *McMaster only, 2005.

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Books on the topic "Right to Genetic Identity"

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Akrivopoulou, Christina. Protecting the genetic self from biometric threats: Autonomy, identity, and genetic privacy. Hershey PA: Information Science Reference, 2015.

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Legacy: a genetic history of the Jewish people. Oxford: New York : Oxford University Press, 2012.

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Donders, Yvonne. Towards a right to cultural identity? Antwerp: Intersentia, 2002.

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Genetic disorders and Islamic identity among British Bangladeshis. Durham, North Carolina: Carolina Academic Press, 2013.

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Canada. Privacy Commissioner of Canada. Genetic testing and privacy. Ottawa, Ont: Privacy Commissioner of Canada, 1992.

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Patton, Ronald G. Interrupted identity: How to guard against & recover from having your identity stolen. San Jose [Calif.]: Writers Club Press, 2000.

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Nichols, Cindy. Medical identity theft. Chicago, Ill: AHIMA, 2008.

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Annas, George J. The Genetic Privacy Act and commentary. Boston, MA: Health Law Dept., Boston University School of Public Health, 1995.

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Challem, Jack. Feed Your Genes Right. New York: John Wiley & Sons, Ltd., 2005.

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Ordinary genomes: Science, citizenship, and genetic identities. Durham [NC]: Duke University Press, 2009.

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Book chapters on the topic "Right to Genetic Identity"

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Lange, Kenneth. "Genetic Identity Coefficients." In Mathematical and Statistical Methods for Genetic Analysis, 70–84. New York, NY: Springer New York, 1997. http://dx.doi.org/10.1007/978-1-4757-2739-5_5.

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Lange, Kenneth. "Genetic Identity Coefficients." In Mathematical and Statistical Methods for Genetic Analysis, 81–96. New York, NY: Springer New York, 2002. http://dx.doi.org/10.1007/978-0-387-21750-5_5.

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Pinamonti, Bruno, Fulvio Camerini, Enrico Fabris, and Gianfranco Sinagra. "The Role of Clinical Observation: Red Flag 5 — Right Ventricular Involvement, Arrhythmogenic Right Ventricular Cardiomyopathy and Associated Phenotypes." In Genetic Cardiomyopathies, 61–69. Milano: Springer Milan, 2013. http://dx.doi.org/10.1007/978-88-470-2757-2_7.

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Ezra, Ovadia. "The Identity of Right-Holders." In The Withdrawal of Rights, 17–68. Dordrecht: Springer Netherlands, 2002. http://dx.doi.org/10.1007/978-94-017-3500-1_2.

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Jinga, Mariana, Silviu Dumitrescu, Liviu Stan, Ecaterina Bontaş, Tudor Păduraru, Ion C. Ţintoiu, Vasile Murgu, and Rabia Denis El Zoabi. "Essential in Genetic Etiology of Congenital Heart Diseases." In Right Heart Pathology, 257–71. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-73764-5_13.

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Chadwick, Ruth F. "Genetic Interventions and Personal Identity." In Bioethics in a European Perspective, 339–49. Dordrecht: Springer Netherlands, 2001. http://dx.doi.org/10.1007/978-94-015-9706-7_11.

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Marcus, Imogen, and Mel Evans. "“Right trusty and well-beloved”." In Reference and Identity in Public Discourses, 67–96. Amsterdam: John Benjamins Publishing Company, 2019. http://dx.doi.org/10.1075/pbns.306.03mar.

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Smith, John Maynard. "Models of Cultural and Genetic Change." In Did Darwin Get It Right?, 61–80. Boston, MA: Springer US, 1988. http://dx.doi.org/10.1007/978-1-4684-7862-4_8.

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Ward, Deirdre, Srijita Sen-Chowdhry, Maria Teresa Tome Esteban, Giovanni Quarta, and William J. McKenna. "Genetic Origins of Right Ventricular Cardiomyopathies." In Congenital Diseases in the Right Heart, 119–24. London: Springer London, 2009. http://dx.doi.org/10.1007/978-1-84800-378-1_15.

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Lange, Kenneth. "Applications of Identity Coefficients." In Mathematical and Statistical Methods for Genetic Analysis, 85–101. New York, NY: Springer New York, 1997. http://dx.doi.org/10.1007/978-1-4757-2739-5_6.

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Conference papers on the topic "Right to Genetic Identity"

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Gandhiraj, D., G. Kamel, and S. Osmon. "Mistaken Identity - Right Treatment for Wrong Disease." In American Thoracic Society 2019 International Conference, May 17-22, 2019 - Dallas, TX. American Thoracic Society, 2019. http://dx.doi.org/10.1164/ajrccm-conference.2019.199.1_meetingabstracts.a4588.

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Kalyuzhnyi, Aleksandr N. "Right To Freedom Of Movement As Component Of Personal Security In Russia." In International Scientific Forum «National Interest, National Identity and National Security». European Publisher, 2021. http://dx.doi.org/10.15405/epsbs.2021.02.02.55.

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Doerr, Benjamin, Carola Doerr, and Timo Koetzing. "The Right Mutation Strength for Multi-Valued Decision Variables." In GECCO '16: Genetic and Evolutionary Computation Conference. New York, NY, USA: ACM, 2016. http://dx.doi.org/10.1145/2908812.2908891.

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Oliveira, Pedro Felipe A., Rodrigo R. Gomes, and Mark Alan J. Song. "Large scale genetic identity inference using probabilistic model checking." In 2010 IEEE International Conference on Systems, Man and Cybernetics - SMC. IEEE, 2010. http://dx.doi.org/10.1109/icsmc.2010.5642416.

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Czumbil, Levente, Dan D. Micu, Calin Munteanu, and Denisa Stet. "Optimization of pipeline-overhead line right-of-way using genetic algorithms." In 2015 9th International Symposium on Advanced Topics in Electrical Engineering (ATEE). IEEE, 2015. http://dx.doi.org/10.1109/atee.2015.7133865.

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Winkler, Sandra. "THE RIGHT TO A NAME BETWEEN THE PERSONAL IDENTITY AND THE BELONGING TO A FAMILY." In SGEM 2014 Scientific SubConference on POLITICAL SCIENCES, LAW, FINANCE, ECONOMICS AND TOURISM. Stef92 Technology, 2014. http://dx.doi.org/10.5593/sgemsocial2014/b21/s5.117.

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Inkizhekova, M. "On Infringements of Right to Privacy Through Information and Communications Technology: Legal and Identity Aspects." In XVII International Research-to-Practice Conference dedicated to the memory of M.I. Kovalyov (ICK 2020). Paris, France: Atlantis Press, 2020. http://dx.doi.org/10.2991/assehr.k.200321.125.

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Adams, Joshua, Henry Williams, Joi Carter, and Gerry Dozier. "Genetic Heuristic Development: Feature selection for author identification." In 2013 IEEE Symposium on Computational Intelligence in Biometrics and Identity Management (CIBIM). IEEE, 2013. http://dx.doi.org/10.1109/cibim.2013.6607911.

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Mestnikova, E. A. "Right to Identity: Language Rights of Indigenous Peoples and Language Policy of Republic of Sakha (Yakutia)." In Proceedings of the First International Volga Region Conference on Economics, Humanities and Sports (FICEHS 2019). Paris, France: Atlantis Press, 2019. http://dx.doi.org/10.2991/aebmr.k.200114.087.

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Alsulaiman, Fawaz A., Julio J. Valdes, and Abdulmotaleb El Saddik. "Identity verification based on haptic handwritten signatures: Genetic programming with unbalanced data." In 2012 IEEE Symposium on Computational Intelligence for Security and Defense Applications (CISDA). IEEE, 2012. http://dx.doi.org/10.1109/cisda.2012.6291531.

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Reports on the topic "Right to Genetic Identity"

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Ghosh, Arijeet, Madhurima Dhanuka, Sai Bourothu, Fernando Lannes Fernandes, Niyati Singh, and Chenthil Kumar. Lost Identity: Transgender Persons Inside Indian Prisons. Commonwealth Human Rights Initiative, 2020. http://dx.doi.org/10.20933/100001185.

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This report sheds light on challenges faced by Transgender persons in Indian prisons. The report analyses the international and legal frameworks in the country which provide the foundation for policy formulations with regard to confinement of LGBT+ persons, with particular reference to the Transgender community. This report also documents the responses received to right to information requests filed to prison headquarters across the country, which in addition to providing the number of Transgender prisoners in Indian prisons between 1st May 2018 to 30th April 2019, also provides relevant information on compliance within prisons with existing legal frameworks relevant to protecting the rights of Transgender persons in prisons, especially in terms of recognition of a third gender, allocation of wards, search procedures, efforts towards capacity building of prison administrators etc. The finalisation of this report has involved an intense consultative process with individuals and experts, including representatives from the community, community-based organisations as well as researcher and academicians working on this issue. This report aims to enhance the understanding of these issues among stakeholders such as prison administrators, judicial officers, lawyers, legal service providers as well as other non-state actors. It is aimed at better informed policy making, and ensuring that decisions made with respect to LGBTI+ persons in prisons recognize and are sensitive of their rights and special needs.
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Idris, Iffat. LGBT Rights and Inclusion in Small Island Developing States (SIDS). Institute of Development Studies (IDS), February 2021. http://dx.doi.org/10.19088/k4d.2021.067.

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This review looks at the extent to which LGBT rights are provided for under law in a range of Small Island Developing States (SIDS), and the record on implementation/enforcement, as well as approaches to promote LGBT rights and inclusion. SIDS covered are those in the Caribbean, Pacific, and Atlantic-Indian Ocean-South China Sea (AIS) regions. The review draws on a mixture of grey literature (largely from international development agencies/NGOs), academic literature, and media reports. While the information on the legal situation of LGBT people in SIDS was readily available, there was far less evidence on approaches/programmes to promote LGBT rights/inclusion in these countries. However, the review did find a number of reports with recommendations for international development cooperation generally on LGBT issues. Denial of LGBT rights and discrimination against LGBT people is found to varying extents in all parts of the world. It is important that LGBT people have protection in law, in particular the right to have same-sex sexual relations; protection from discrimination on the grounds of sexual orientation; and the right to gender identity/expression. Such rights are also provided for under international human rights conventions such as the Universal Declaration of Human Rights, while the Sustainable Development Goals are based on the principle of ‘leave no one behind'.
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Hellström, Anders. How anti-immigration views were articulated in Sweden during and after 2015. Malmö University, Malmö Institute for Studies of Migration, Diversity and Welfare (MIM), 2021. http://dx.doi.org/10.24834/isbn.9789178771936.

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The development towards the mainstreaming of extremism in European countries in the areas of immigration and integration has taken place both in policy and in discourse. The harsh policy measures that were implemented after the 2015 refugee crisis have led to a discursive shift; what is normal to say and do in the areas of immigration and integration has changed. Anti-immigration claims are today not merely articulated in the fringes of the political spectrum but more widely accepted and also, at least partly, officially sanctioned. This study investigates the anti-immigration claims, seen as (populist) appeals to the people that centre around a particular mythology of the people and that are, as such, deeply ingrained in national identity construction. The two dimensions of the populist divide are of relevance here: The horizontal dimension refers to articulated differences between "the people", who belong here, and the "non-people" (the other), who do not. The vertical dimension refers to articulated differences between the common people and the established elites. Empirically, the analysis shows how anti-immigration views embedded in processes of national myth making during and after 2015 were articulated in the socially conservative online newspaper Samtiden from 2016 to 2019. The results indicate that far-right populist discourse conveys a nostalgia for a golden age and a cohesive and homogenous collective identity, combining ideals of cultural conformism and socioeconomic fairness.
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Idris, Iffat. Increasing Birth Registration for Children of Marginalised Groups in Pakistan. Institute of Development Studies (IDS), July 2021. http://dx.doi.org/10.19088/k4d.2021.102.

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This review looks at approaches to promote birth registration among marginalised groups, in order to inform programming in Pakistan. It draws on a mixture of academic and grey literature, in particular reports by international development organizations. While there is extensive literature on rates of birth registration and the barriers to this, and consensus on approaches to promote registration, the review found less evidence of measures specifically aimed at marginalised groups. Gender issues are addressed to some extent, particularly in understanding barriers to registration, but the literature was largely disability-blind. The literature notes that birth registration is considered as a fundamental human right, allowing access to services such as healthcare and education; it is the basis for obtaining other identity documents, e.g. driving licenses and passports; it protects children, e.g. from child marriage; and it enables production of vital statistics to support government planning and resource allocation. Registration rates are generally lower than average for vulnerable children, e.g. from minority groups, migrants, refugees, children with disabilities. Discriminatory policies against minorities, restrictions on movement, lack of resources, and lack of trust in government are among the ‘additional’ barriers affecting the most marginalised. Women, especially unmarried women, also face greater challenges in getting births registered. General approaches to promoting birth registration include legal and policy reform, awareness-raising activities, capacity building of registration offices, integration of birth registration with health services/education/social safety nets, and the use of digital technology to increase efficiency and accessibility.
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Melnyk, Andriy. «INTELLECTUAL DARK WEB» AND PECULIARITIES OF PUBLIC DEBATE IN THE UNITED STATES. Ivan Franko National University of Lviv, March 2021. http://dx.doi.org/10.30970/vjo.2021.50.11113.

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The article focuses on the «Intellectual Dark Web», an informal group of scholars, publicists, and activists who openly opposed the identity politics, political correctness, and the dominance of leftist ideas in American intellectual life. The author examines the reasons for the emergence of this group, names the main representatives and finds that the existence of «dark intellectuals» is the evidence of important problems in US public discourse. The term «Intellectual Dark Web» was coined by businessman Eric Weinstein to describe those who openly opposed restrictions on freedom of speech by the state or certain groups on the grounds of avoiding discrimination and hate speech. Extensive discussion of the phenomenon of «dark intellectuals» began after the publication of Barry Weiss’s article «Meet the renegades from the «Intellectual Dark Web» in The New York Times in 2018. The author writes of «dark intellectuals» as an informal group of «rebellious thinkers, academic apostates, and media personalities» who felt isolated from traditional channels of communication and therefore built their own alternative platforms to discuss awkward topics that were often taboo in the mainstream media. One of the most prominent members of this group, Canadian clinical psychologist Jordan Peterson, publicly opposed the C-16 Act in September 2016, which the Canadian government aimed to implement initiatives that would prevent discrimination against transgender people. Peterson called it a direct interference with the right to freedom of speech and the introduction of state censorship. Other members of the group had a similar experience that their views were not accepted in the scientific or media sphere. The existence of the «Intellectual Dark Web» indicates the problem of political polarization and the reduction of the ability to find a compromise in the American intellectual sphere and in American society as a whole.
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Brophy, Kenny, and Alison Sheridan, eds. Neolithic Scotland: ScARF Panel Report. Society of Antiquaries of Scotland, June 2012. http://dx.doi.org/10.9750/scarf.06.2012.196.

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The main recommendations of the Panel report can be summarised as follows: The Overall Picture: more needs to be understood about the process of acculturation of indigenous communities; about the Atlantic, Breton strand of Neolithisation; about the ‘how and why’ of the spread of Grooved Ware use and its associated practices and traditions; and about reactions to Continental Beaker novelties which appeared from the 25th century. The Detailed Picture: Our understanding of developments in different parts of Scotland is very uneven, with Shetland and the north-west mainland being in particular need of targeted research. Also, here and elsewhere in Scotland, the chronology of developments needs to be clarified, especially as regards developments in the Hebrides. Lifeways and Lifestyles: Research needs to be directed towards filling the substantial gaps in our understanding of: i) subsistence strategies; ii) landscape use (including issues of population size and distribution); iii) environmental change and its consequences – and in particular issues of sea level rise, peat formation and woodland regeneration; and iv) the nature and organisation of the places where people lived; and to track changes over time in all of these. Material Culture and Use of Resources: In addition to fine-tuning our characterisation of material culture and resource use (and its changes over the course of the Neolithic), we need to apply a wider range of analytical approaches in order to discover more about manufacture and use.Some basic questions still need to be addressed (e.g. the chronology of felsite use in Shetland; what kind of pottery was in use, c 3000–2500, in areas where Grooved Ware was not used, etc.) and are outlined in the relevant section of the document. Our knowledge of organic artefacts is very limited, so research in waterlogged contexts is desirable. Identity, Society, Belief Systems: Basic questions about the organisation of society need to be addressed: are we dealing with communities that started out as egalitarian, but (in some regions) became socially differentiated? Can we identify acculturated indigenous people? How much mobility, and what kind of mobility, was there at different times during the Neolithic? And our chronology of certain monument types and key sites (including the Ring of Brodgar, despite its recent excavation) requires to be clarified, especially since we now know that certain types of monument (including Clava cairns) were not built during the Neolithic. The way in which certain types of site (e.g. large palisaded enclosures) were used remains to be clarified. Research and methodological issues: There is still much ignorance of the results of past and current research, so more effective means of dissemination are required. Basic inventory information (e.g. the Scottish Human Remains Database) needs to be compiled, and Canmore and museum database information needs to be updated and expanded – and, where not already available online, placed online, preferably with a Scottish Neolithic e-hub that directs the enquirer to all the available sources of information. The Historic Scotland on-line radiocarbon date inventory needs to be resurrected and kept up to date. Under-used resources, including the rich aerial photography archive in the NMRS, need to have their potential fully exploited. Multi-disciplinary, collaborative research (and the application of GIS modelling to spatial data in order to process the results) is vital if we are to escape from the current ‘silo’ approach and address key research questions from a range of perspectives; and awareness of relevant research outside Scotland is essential if we are to avoid reinventing the wheel. Our perspective needs to encompass multi-scale approaches, so that ScARF Neolithic Panel Report iv developments within Scotland can be understood at a local, regional and wider level. Most importantly, the right questions need to be framed, and the right research strategies need to be developed, in order to extract the maximum amount of information about the Scottish Neolithic.
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HEFNER, Robert. IHSAN ETHICS AND POLITICAL REVITALIZATION Appreciating Muqtedar Khan’s Islam and Good Governance. IIIT, October 2020. http://dx.doi.org/10.47816/01.001.20.

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Ours is an age of pervasive political turbulence, and the scale of the challenge requires new thinking on politics as well as public ethics for our world. In Western countries, the specter of Islamophobia, alt-right populism, along with racialized violence has shaken public confidence in long-secure assumptions rooted in democracy, diversity, and citizenship. The tragic denouement of so many of the Arab uprisings together with the ascendance of apocalyptic extremists like Daesh and Boko Haram have caused an even greater sense of alarm in large parts of the Muslim-majority world. It is against this backdrop that M.A. Muqtedar Khan has written a book of breathtaking range and ethical beauty. The author explores the history and sociology of the Muslim world, both classic and contemporary. He does so, however, not merely to chronicle the phases of its development, but to explore just why the message of compassion, mercy, and ethical beauty so prominent in the Quran and Sunna of the Prophet came over time to be displaced by a narrow legalism that emphasized jurisprudence, punishment, and social control. In the modern era, Western Orientalists and Islamists alike have pushed the juridification and interpretive reification of Islamic ethical traditions even further. Each group has asserted that the essence of Islam lies in jurisprudence (fiqh), and both have tended to imagine this legal heritage on the model of Western positive law, according to which law is authorized, codified, and enforced by a leviathan state. “Reification of Shariah and equating of Islam and Shariah has a rather emaciating effect on Islam,” Khan rightly argues. It leads its proponents to overlook “the depth and heights of Islamic faith, mysticism, philosophy or even emotions such as divine love (Muhabba)” (13). As the sociologist of Islamic law, Sami Zubaida, has similarly observed, in all these developments one sees evidence, not of a traditionalist reassertion of Muslim values, but a “triumph of Western models” of religion and state (Zubaida 2003:135). To counteract these impoverishing trends, Khan presents a far-reaching analysis that “seeks to move away from the now failed vision of Islamic states without demanding radical secularization” (2). He does so by positioning himself squarely within the ethical and mystical legacy of the Qur’an and traditions of the Prophet. As the book’s title makes clear, the key to this effort of religious recovery is “the cosmology of Ihsan and the worldview of Al-Tasawwuf, the science of Islamic mysticism” (1-2). For Islamist activists whose models of Islam have more to do with contemporary identity politics than a deep reading of Islamic traditions, Khan’s foregrounding of Ihsan may seem unfamiliar or baffling. But one of the many achievements of this book is the skill with which it plumbs the depth of scripture, classical commentaries, and tasawwuf practices to recover and confirm the ethic that lies at their heart. “The Quran promises that God is with those who do beautiful things,” the author reminds us (Khan 2019:1). The concept of Ihsan appears 191 times in 175 verses in the Quran (110). The concept is given its richest elaboration, Khan explains, in the famous hadith of the Angel Gabriel. This tradition recounts that when Gabriel appeared before the Prophet he asked, “What is Ihsan?” Both Gabriel’s question and the Prophet’s response make clear that Ihsan is an ideal at the center of the Qur’an and Sunna of the Prophet, and that it enjoins “perfection, goodness, to better, to do beautiful things and to do righteous deeds” (3). It is this cosmological ethic that Khan argues must be restored and implemented “to develop a political philosophy … that emphasizes love over law” (2). In its expansive exploration of Islamic ethics and civilization, Khan’s Islam and Good Governance will remind some readers of the late Shahab Ahmed’s remarkable book, What is Islam? The Importance of Being Islamic (Ahmed 2016). Both are works of impressive range and spiritual depth. But whereas Ahmed stood in the humanities wing of Islamic studies, Khan is an intellectual polymath who moves easily across the Islamic sciences, social theory, and comparative politics. He brings the full weight of his effort to conclusion with policy recommendations for how “to combine Sufism with political theory” (6), and to do so in a way that recommends specific “Islamic principles that encourage good governance, and politics in pursuit of goodness” (8).
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