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1

McNamara, Laura Elizabeth. "Siblings of people with autism : the experiences of the non-autistic sibling." Thesis, University of British Columbia, 2012. http://hdl.handle.net/2429/43432.

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Research shows that the relationships people have with their siblings have significant influence on their lives. This applies to sibling groupings of all sizes and constellations including ones where a sibling has a disability. The focus of this research is on the typically-developing siblings of persons with Autism Spectrum Disorders (ASD). Historically research on the siblings of people with ASD has focused on the impressions and evaluations of parents and teachers or used quantitative approaches to evaluate their experiences. This has left a gap regarding the stories of people with siblings who have ASD. The purpose of this study is to explore the experiences of having a sibling with ASD on a person’s life from a qualitative descriptive approach. Semi-structured interviews with five participants illuminate the experience of growing up with a sibling with ASD. The participants described experiencing relational closeness and contrasting distance, differential treatment, and specific roles like caregiver and teacher. Several themes emerged from participant stories including “a sense of normalcy”, difficulty, and feelings of loneliness, depression, anger, resentment, guilt, and fear.
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2

Roberts, Sara Louise. "Siblings of children and young people with autism : an exploration of typical siblings' constructions, perceptions and coping responses." Thesis, Cardiff University, 2012. http://orca.cf.ac.uk/37780/.

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The inter-sibling relationships of children and young people with autism have generally been overlooked in the literature. Whilst research has increasingly focused on this topic, relatively little is known about the constructions, perceptions and coping responses of typical siblings of children and young people with autism. A child with autism in the family presents a unique challenge and little is known about how this impacts on typical siblings. Typical siblings of children and young people with autism are proposed to be at increased risk for adjustment difficulties, as a result of interactions between complex genetic and environmental variables. Semi-structured, open-ended interviews were conducted with twelve adolescent typical siblings to explore their constructions, perceptions and coping responses. The data was analysed using thematic analysis and nine broad themes emerged: (1) knowledge and understanding of autism; (2) perceptions; (3) the quality of the inter-sibling relationship; (4) the impact of their brothers’ condition; (5) coping strategies; (6) perceptions of others; (7) support; (8) the future; and (9) acceptance and ambivalence. These themes were developed into models and the findings present initial evidence which accounts for some variability in typical siblings’ constructions, perceptions and coping responses. Such factors have important implications for individual adjustment, inter-sibling relationships, intra-familial relationships and global family functioning. These findings may be used to inform future large scale research designs, with a view to developing comprehensive assessment and support services for typical siblings of children and young people with autism. The Educational Psychologist (EP) will be integral in identifying typical siblings who may be at risk for adjustment difficulties. The EP is also well placed to develop interventions and support services for typical siblings of children and young people with autism. Therefore, this research is direct relevance to the EP, as well as those working with children and young people with autism and their families.
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3

D'Urso, Anita. "Post-traumatic stress symptoms in young people with cancer and their siblings." Thesis, University of East Anglia, 2014. https://ueaeprints.uea.ac.uk/50725/.

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Background: Children with cancer and their families are frequently confronted with physical and psychosocial late effects resulting from cancer. In recent years, this has been expanded to include posttraumatic stress symptoms (PTSS). However, to date very little research has been completed in the UK to investigate these symptoms. Furthermore, previous research has been limited by lack of adherence to mainstream theoretical accounts of posttraumatic stress disorder (PTSD). Therefore, the current study examined rates of PTSS in children with cancer and their siblings. Secondly, it investigated whether aspects of the Ehlers and Clark (2000) model of PTSD could provide a useful framework for understanding the phenomenon in this population. Methods: A cross-sectional between-groups design was employed to examine the differences in levels of PTSS between children who had been diagnosed with and/or treated for cancer (n = 34) and siblings (n = 26). Participants were aged between 8-18 years. Self-report measures of PTSS, maladaptive appraisals, traumacentred identity, thought suppression, perceived social support and family functioning were completed. Results: There were no significant differences between children with cancer and siblings on measures of PTSS. In support of the hypotheses, maladaptive appraisals, thought suppression and trauma-centred identity were found to significantly correlate with levels of PTSS for both children with cancer and siblings. Perceived social support was found to be significantly correlated with levels of PTSS for siblings only. Contrary to the hypothesis, family functioning was not related to PTSS for either the patient or sibling group. Conclusions: Results failed to evidence differences in levels of PTSS between children with cancer and their siblings. However, provisional support was found for aspects of the Ehlers and Clark (2000) cognitive model of PTSD in explaining PTSS for the current population.
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4

Davies, Katherine. "'Turning out' : young people, being and becoming." Thesis, University of Manchester, 2012. https://www.research.manchester.ac.uk/portal/en/theses/turning-out-young-people-being-and-becoming(08722bf0-d001-47ac-bd2f-0c769110481a).html.

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This thesis explores young people's experiences of, and orientations towards, being and becoming. Using focus groups and interviews with participants aged between 11 and 15, the research investigates how young people form a sense of who they are and who they can become in terms of character, temperament, talents, intelligence, humour, appearance and so on. Particular attention is paid to the role of relationality, and especially siblingship, in these processes as well as to how young people themselves make sense of and theorise being and becoming. The research shines analytical and methodological 'spotlights' on key contexts, relationships and modes of thinking which highlight processes of being and becoming in new and interesting ways. A spotlight on the context of secondary school indicates how ways of being and becoming can be created and constrained by the particularities of the environment of school. A spotlight on being and becoming in a group of friends indicates young people's reflexivity about the moralities of being different to friends, despite the largely homophilous nature of these relationships, and reveals some of the ways in which young people's friendships can affect who they are and who they see themselves as becoming in the future. A spotlight on young people's sibling relationships fills a gap in existing knowledge about the role of lateral kin in shaping young people's lives and indicates how siblings can be a source of social capital (for good or ill) in school. It is also argued that being one in a series of siblings can 'fix' aspects of being and becoming in several ways, including through the construction of relational identities in families and through normative ideas about how siblings ought to behave. Finally, the thesis shines a spotlight on young people's understandings of modes of transmission and the nature of personhood, indicating how young people can think in nuanced and complex ways about how being and becoming works. Taken together the spotlights of this thesis indicate how young people form a sense of who they are and who they can become whilst embedded in webs of relationships through time. The thesis demonstrates that, despite being relational and contextual, processes of being and becoming can feel as though they become 'fixed' as the potential for how one can 'turn out' is limited. It is argued that the lay concept of 'turning out' evokes the idea that, although always continuing through time, we will one day 'turn out' and be 'finished'. As such, this thesis suggests that the concept of 'turning out' allows sociologists to think about being and becoming simultaneously. 'Turning out' also encourages an understanding of the social world that embraces ideas which can seem 'contradictory' in sociological terms - such as fixity and malleability, individuality and relationality or genetic and social inheritance. Finally, it is argued that 'turning out' denotes a broader understanding of personhood than those evoked in familiar sociological terms - such as the self, identity and habitus - and incorporates aspects of being and becoming that might otherwise appear somewhat beyond the social.
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5

Clark, Julie Margaret. "Wanting to hope : the experience of adult siblings of long-term missing people /." [St. Lucia, Qld.], 2006. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19324.pdf.

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6

Moses, Davina. "Exploring the experiences of siblings of young people diagnosed with an 'eating disorder'." Thesis, University of East London, 2013. http://roar.uel.ac.uk/3446/.

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Background and Aims: Research focused on the families of children and adolescents diagnosed with an ‘eating disorder’ has long suggested an impact on the family and individual family members. It is increasingly acknowledged through research and clinical practice that siblings can play an important part in the support and recovery of young people diagnosed with an ‘eating disorder’. However, less is known about the views of siblings in this context and the ways in which they might experience the situation. The use of the sibling perspective in qualitative psychological research is emerging however, a limited number of studies specific to the field of ‘eating disorders’ have used such methods. The current study therefore aimed to find out what siblings said about the experiences of living with a brother or sister diagnosed with an ‘eating disorder’. The study aimed to hear about their experiences; the ways in which they felt the situation might impact on their lives; and their views about professional support. Method: Semi-structured interviews were carried out with six siblings all aged between 11 and 18 years. All had a sibling diagnosed with an ‘eating disorder’ who had, or was receiving professional support for this. Verbatim interview transcripts were analysed using Thematic Analysis. Results: The analysis produced five main themes. These were: ‘Making sense of it all’; “Home’s not how I remember”; “It impacts me too’; “To talk or not to talk?”; and “Life goes on”. A description of these themes and associated sub-themes is presented. Conclusion: Siblings report experiencing impact in a number of aspects of their lives and within family life. The results of the analysis offer support for previous findings within the sibling literature and further justify the need for on-going, wider research using sibling accounts. Clinical implications and directions for future research are discussed.
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7

Toth, Karen Elizabeth. "Early characteristics of young siblings of children with autism /." Thesis, Connect to this title online; UW restricted, 2007. http://hdl.handle.net/1773/9024.

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8

Cuttill, Casey. "High school siblings of children with disabilities : five case studies /." View online, 2008. http://repository.eiu.edu/theses/docs/32211131414962.pdf.

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9

Suen, Yin-tak Pandora. "An exploratory study of the siblings of severely mentally disabled persons /." Hong Kong : University of Hong Kong, 1994. http://sunzi.lib.hku.hk/hkuto/record.jsp?B13991528.

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10

Simpson, Wendy. "Siblings of people with intellectual disability: Relationships and decision-making across the life span." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2021. https://ro.ecu.edu.au/theses/2417.

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A growing amount of research focuses on siblings of children with disabilities. However, limited evidence exists to provide a solid understanding and depth of knowledge of the issues that affect adult sibling relationships when one has intellectual disability. Since sibling relationships are the longest lasting family relationship, they are becoming more important because people with disability are outliving their parents or main caregivers. The increased longevity of people with disability has a societal and economic impact that has been recognised in the context of the recently introduced National Disability Insurance Scheme (NDIS) in Australia. By exploring the experiences of siblings who have a brother or sister with intellectual disability, this study aimed to understand how family characteristics and childhood experiences influence sibling relationships and decision-making across the life span. Utilising a mixed methods approach—predominantly a qualitative study design—a total of 79 adult siblings of a person with intellectual disability from Perth, Western Australia, completed an online survey and/or participated in an interview. Participants ranged in age from 18 to 70+ years of age. Qualitative data were analysed using a thematic analysis process, guided by Braun and Clarke’s (2006) six-phase framework. Four major themes were constructed that captured the experience of growing up with a sibling with intellectual disability: relationships, knowledge and understanding of disability while growing up, siblings as carers and the consequences for family. The findings revealed that the birth or diagnosis of a child in the family with intellectual disability resulted in a change in the family dynamics, a focus on the child with disability and parental differential treatment. Siblings reported a sense of having missed out while growing up and an ascribed or assumed role of carer. The variables that influence the relationship between siblings when one has intellectual disability were found to be broad, including individual, family and disability characteristics. In addition, this study found evidence to support findings from earlier research that correlates growing up with a sibling with disability and a propensity to follow a career path in a helping or service profession. Limited evidence was found in this study of a mutually beneficial close relationship with a sibling with intellectual disability that did not have elements of care, protection or a sense of responsibility attached. Findings also revealed that in adulthood, siblings often felt ‘disconnected’ from their sibling with intellectual disability when formal support services were in place, sometimes leading to discord between service providers and siblings regarding the nature of support for their sibling with intellectual disability. These findings have implications for policy and practice in disability services because they highlight the importance of holistic family inclusion that includes siblings to enhance natural relationships and supported decision-making with siblings with intellectual disability. Recommendations include the recognition of siblings in policy and legislation, particularly in the NDIS; the inclusion by disability support and early intervention services of siblings in family discussions, planning and decision-making; and making readily available augmentative and alternative methods of communication as an imperative means of promoting sibling connectedness when one has intellectual disability. This study adds to the literature on adult sibling-disability research from an Australian perspective.
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11

Suen, Yin-tak Pandora, and 孫彥德. "An exploratory study of the siblings of severely mentally disabled persons." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1994. http://hub.hku.hk/bib/B31249942.

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12

Sims, Deanna. "Adlerian Personality Priorities of Siblings of Individuals with Tourette Syndrome." Thesis, University of North Texas, 1998. https://digital.library.unt.edu/ark:/67531/metadc278606/.

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This study was designed to examine Adlerian personality priorities of siblings of individuals with Tourette Syndrome (TS). This study aimed to investigate whether a difference exists between TS siblings and siblings of those without disabilities on variables related to personality priorities. It was hypothesized that TS siblings would score significantly higher than the control group on the superiority and pleasing personality priorities and significantly lower on the comfort and control personality priorities. Both of the hypotheses were rejected. First, no significant difference was found between TS siblings and the control group on the superiority and pleasing personality priorities. Second, no significant difference was found between TS siblings and the control group on the comfort personality priority, and TS siblings scored significantly higher than the control group on the control personality priority.
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13

Sabetti, Judith J. "Family environment and reproductive attitudes of young adults with ill or disabled siblings." Thesis, McGill University, 1994. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=68064.

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This study explores how experience with a chronically ill or disabled sibling may affect prospective reproductive attitudes and behavior. Eighty-two young adults were interviewed using a structured, written questionnaire, which included the index of Family Relations (IFR) developed by Hudson (1982). Respondents in the main group (n = 41) had siblings with either a single-gene, hereditary illness or a physical/intellectual handicap. A multiple regression analysis examined how different group and subgroup combinations of the sibling factor might predict reproductive attitudes, controlling for sociodemographic, family, and developmental variables. Contrary to expectation, experience with an affected sibling predicted acceptance of potentially affected offspring. The significance of this finding was marginal for the main group, but more favorable when the sibling was intellectually handicapped. Respondents with siblings in genetic categories felt more obliged than others to test their own genetic risk status, but were least likely to favor abortion for medical indication.
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14

DeLaurentis, Angeline Dijamco. "Emotion processing in typically developing infants and infant siblings of children with autism." Diss., Restricted to subscribing institutions, 2008. http://proquest.umi.com/pqdweb?did=1562130001&sid=1&Fmt=2&clientId=1564&RQT=309&VName=PQD.

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15

Cryan, Ann-Marie. "What helps the siblings of young people with autism spectrum disorder : a theory built on their perspective." Thesis, University of Essex, 2015. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.702479.

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There is a gradually increasing focus on the needs of siblings of young people with Autism Spectrum Disorder. However, much previous research has concentrated on measuring behavioural adjustment within this population and there is limited research available which has captured the sibling's voice or explored their support needs. As a result there is a call at national and local levels for greater understanding of the support needs of siblings of those with Autism Spectrum Disorder (National Institute for Health and Care Excellence, 2013). This study produces an explanatory theory of the mechanisms and contexts that contribute to helpful support for the siblings of young people with ASD. It is hoped that the findings will increase awareness of the support needs of siblings of young people with ASD and will inform best practice among professionals and families. Interviews were carried out with 7 participants from a Greater London borough between the ages of 9 and 16. The transcripts of these interviews were analysed using a critical realist approach to Grounded Theory. The Grounded Theory indicates that the perspectives of the typically developing young people growing up with a sibling with ASD in this research are represented by the core category of 'the dynamics of sibling relationships'. These dynamics within the sibling relationship are represented in the categories of 'Social Resources', 'Understanding the sibling with ASD', 'Interests and Activities', and 'Acceptance, Tolerance of Difference or Desire for Change'. This theory suggests that the factors that contribute to helpful support promote understanding and acceptance in the typically developing sibling and facilitate the siblings' ability to communicate and interact with one another. The implications of the findings for families, schools, local authorities and Educational Psychologists have been discussed in relation to existing literature.
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Rayner, Meredith. "Resilience and vulnerability in siblings of children with chronic illness or disability." Australasian Digital Thesis Program, 2007. http://adt.lib.swin.edu.au/public/adt-VSWT20071009.105131/index.html.

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Thesis (PhD) - Faculty of Life and Social Sciences, Swinburne University of Technology, 2007.<br>Submitted in fulfillment of the requirement for the degree of Doctor of Philosophy, Faculty of Life and Social Sciences, Swinburne University of Technology - 2007. Typescript. Includes bibliographical references (p. 220-242).
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Stribling, Julian. "People whose siblings have had a premature heart attack : their views and experiences in the era of human genomics." Thesis, University of Leicester, 2005. http://hdl.handle.net/2381/30484.

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18

Rozga, Agata. "Early signs of autism and the broader autism phenotype a longitudinal study of infant siblings of children with autism /." Diss., Restricted to subscribing institutions, 2008. http://proquest.umi.com/pqdweb?did=1580795681&sid=1&Fmt=2&clientId=1564&RQT=309&VName=PQD.

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19

Foote, Tamlyn Lou-Ann. "“I won’t say I feel happy or sad”: experiences of siblings of young disabled people in disadvantaged socio-economic circumstances." Thesis, Rhodes University, 2017. http://hdl.handle.net/10962/7774.

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The impact of having a disabled sibling has been well researched in first world countries, revealing complex and varied results. However, in disadvantaged socioeconomic contexts, where disability has been found to be more prevalent, and where arguably, the functioning and quality of life of a disabled person is more likely to be affected by an impairment, very little is known about how siblings of young disabled people are affected. In response, this qualitative study explores the experiences of five, isiXhosa speaking adolescents, living in Joza Township, Grahamstown, who have a brother or sister with an intellectual, physical or developmental impairment. Semi-structured interviews were conducted and an interpretative phenomenological analytic approach was utilized to ascertain how the participants make sense of their worlds in relation to their sibling’s disability. Specifically, this research aimed at developing an understanding of how the participants experienced their family climate, self-concept, interpersonal relations and daily living in relation to their disabled sibling. The results of this study reveal a prevailing sense of incongruity experienced by the participants, although there are variances between their experiences. While family climate was largely experienced as warm, the participants were ambivalent about their relationship with their mothers who are experienced more as providers than nurturers. The participants described oscillating between feelings of protectiveness and alliance, and responsibility and sacrifice toward their sibling. A high incidence of incongruity pertaining to their sense of self was noted; this was described as impacting on their interpersonal relations where an underlying sense of negative public perception in relation to the disability is perceived. Although the participants expressed feeling supported within their homes, it was evident that they experienced little support from peers or the community at large. Four out of the five participants did not report experiencing a sense of deprivation, despite their socio-economic contexts and described a day-to-day existence that allows for their needs to be met. This included adequate time during their day to pursue personal interests as opposed to their time being spent taking care of their disabled sibling or assisting their parents, who may be overburdened due to the added care and responsibilities a disabled child might require. Furthermore, it is suggested that the incongruity experienced by the participants could be the result of various factors including age, gender, birth order and the nature of their sibling’s impairment. On the basis of the findings of this research, it can be concluded that the experiences of siblings of young, disabled people living in disadvantaged socioeconomic contexts cannot necessarily be described as being positive or negative, but are highly nuanced. In addition, the participants to some extent experience disability by association and are lacking in adequate support and opportunities to discuss their unique challenges. These insights serve to better inform disability studies in disadvantaged socio-economic circumstances. These findings are in accordance with earlier research.
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Opolski, Melissa Jo. "Superachieving, withdrawing, acting-out, and parentification : coping styles, stress, and wellbeing in a sample of adolescent siblings of people with down syndrome /." Title page, table of contents and abstract only, 2004. http://web4.library.adelaide.edu.au/theses/09ARPS/09arpso619.pdf.

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21

Dorris, Liam. "Mindreading difficulties in the siblings of people with Asperger syndrome : evidence for a genetic influence in the abnormal development of a specific cognitive domain." Thesis, University of Glasgow, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.324694.

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Pita, Fernanda Carolina Rodrigues. "Responsabilidade legal pela pessoa com deficiência: o papel dos/as irmãos/ãs." Master's thesis, Instituto Superior de Ciências Sociais e Políticas, 2017. http://hdl.handle.net/10400.5/14689.

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Dissertação de Mestrado em Família e Género<br>O objetivo desta pesquisa exploratória foi o de analisar o papel das fratrias na responsabilidade legal pela pessoa com deficiência. Optando por uma metodologia qualitativa, realizámos entrevistas semiestruturadas a 13 irmãos/ãs que desempenhavam o cargo de tutores/as e que pertenciam à Região da Madeira e à Grande Lisboa. Com base nas dimensões estudadas, foi possível compreender o contexto em que a tutela é assumida, destacando as experiências vividas por cada um/a e os significados atribuídos a este papel. De igual forma, identificámos alguns dos aspetos subjacentes à escolha do/a tutor/a e conhecemos o lugar que a pessoa com deficiência ocupa no processo de interdição. Em geral, o cargo do/a tutor/a é visto como a extensão das responsabilidades que são asseguradas enquanto irmãos/as e cuidadores/as. De certa forma, prevalece a perceção de que a sentença de interdição vem oficializar um papel que sempre praticaram e que permite a sua intervenção em certos domínios da vida da pessoa com deficiência nos quais carecem de legitimidade legal.<br>The purpose of this exploratory research was to analyze the role of siblings in the legal responsibility for the person with disability. Choosing a qualitative methodology, we conducted semi-structured interviews with 13 siblings who had full guardianship, living in Madeira Region and Great Lisbon. Based on the dimensions studied, it was possible to understand the context in which the full guardianships is assumed, highlighting the experiences lived by each one and the meanings attributed to this role. Likewise, we have identified some of the aspects underlying the choice of the guardian and it was possible to know the place that the disabled person occupies in the process of interdiction. In general, the role of guardian is seen as the extent of responsibilities that are ensured as siblings and caregivers. In a certain way, prevails the perception that the sentence of interdiction comes to formalize a role that they have always practiced and that allows them to intervene in certain areas of the life of the disabled person in which they lack legal legitimacy.<br>N/A
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Holt-Dehner, Stephanie L. "Evaluating sibling relationships when one sibling has a visual impairment." Virtual Press, 2007. http://liblink.bsu.edu/uhtbin/catkey/1379121.

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In the United States, nearly 30% of children experience a moderate to severe chronic illness or disability, and nearly all of these children live in a household with at least one sibling (Cox, Marshall, Medleco, & Olsen, 2003). Having a child with a disability in the family can create several demanding and permanent changes for each member of the family (Fisman, Wolf, Ellison, & Freeman, 2000). Empirical and theoretical research have revealed that having a child with a disability impacts each member of the family, both in regard to long-term functioning and day-to-day activities (Cox et al., 2003).There are relatively few studies that explore the sibling relationship between a non-disabled child and a child with a disability. Not surprisingly, there are even fewer studies that evaluate the impact of specific types of disabilities, such as visual impairment, on the sibling relationship (Stoneman & Brody, 1993). Because of the uniqueness of each type of disability, more research should focus on specific types of disabilities, such as visual impairments. This study was conducted in an effort to better understand the experiences and opinions of children with a visual impairment and their non-disabled siblings.Utilizing a qualitative approach, ten children with visual impairments and ten sighted siblings were interviewed. Through these interviews, several themes emerged, including the following: closeness, conflict, impact of disability, responsibility/assistance, understanding of disability, and coping strategies. Within each of these themes were related subthemes. From these themes and interrelationships of the themes emerged an integrated theory of sibling relationships when one sibling has a visual impairment, which included the dimensions of the non-disability sibling dyad, the shared disability experience, and coping-related strategies.Based on the reports of children with visual impairments and their sighted siblings, visual impairment can have both positive and negative implications toward the sibling relationship. Children with visual impairments and their siblings have the challenge of managing a "typical", non-disability related, sibling relationship along with their shared disability experience. Implications for professionals include assisting with coping-related strategies, such as increased communication, teaching advocacy, and assisting with education and social support.<br>Department of Counseling Psychology and Guidance Services
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Foster, Claire Louise. "The psychosocial impact of cystic fibrosis on young people and their families." Thesis, University of Exeter, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.286586.

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Smith, Rachel K. "Eating attitudes and behaviours in young people with or without a diabetic sibling." Thesis, University of Edinburgh, 2007. http://hdl.handle.net/1842/2645.

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Objectives: Body image concerns and problematic eating attitudes and behaviours are recognised as an important concern for young people and clinicians. Identification of groups that might be at risk of developing such problems would enable prevention and early implementation strategies to be implemented. The aim of this study was to explore body image concerns and eating attitudes and behaviours in a community sample of young people aged between 12 and 17 years. Design & Method: A cross sectional between groups design was employed. Participants completed self-report assessments measuring attitudes to body shape and weight, eating attitudes, behavioural features of eating disorders and eating disorder psychopathology. Siblings of young people with type 1 diabetes (n=12) were compared to a matched control group (n=12). Comparisons were also made between males and females and between age groups in a community sample (n=75). Results: Compared with females without a diabetic sibling, females with a diabetic sibling reported more concerns about body weight and shape, greater disturbance in eating attitudes, and significantly higher levels of eating disorder psychopathology. Within the community sample, concerns about body shape and weight and disturbed eating attitudes were significantly higher in females than in males. The results highlighted a high prevalence of excessive exercise behaviour in both males and females. Excessive exercise was the only variable to differ significantly between age groups, with the highest prevalence reported in those aged 14 and 15 years. Conclusions: The findings provide tentative support for the hypothesis that siblings of young people with type 1 diabetes are at increased risk of disturbed eating attitudes and behaviours, but require replication in a larger sample. Methodological implications of the study and suggestions for further research are discussed.
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Attfield, Jane. "Sibling obligations : a study of sisters and brothers of people with learning difficulties." Thesis, Lancaster University, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.337434.

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Liang, Luyin, and 梁露尹. "Sibling relationship of adults with intellectual disabilities in China." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2015. http://hdl.handle.net/10722/211109.

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Background: Sibling relationship is oneof the most long-lasting family relationships. For adults with intellectual disabilities (AWID), sibling relationship significantly influences their own well-being and those of their brothers or sisters. The positive participation of siblings of AWID in sibling relationships can help predict their expectations on their future care-giving role. Nevertheless, few studies on sibling relationship of AWID exist, particularly in China. Objectives: This study investigated the sibling relationship experiences of siblings of AWID in China. The study explored how the personal factors of siblings(such as emotional closeness, sense of responsibility, experiences of ID stigma, and expectations of self-reward),familial factors(such as differential treatment of parents),and social–contextual factors(such as availability of support services and policies)determine their two types of motivations, namely, obligatory and discretionary, as well as their contact frequency in their sibling relationships. The study also examined the mediation of the two types of relational motivations of siblings of AWID on the relationship between determinative factors and contact frequency. Method: The study adopted a quantitative research method. A total of 1,298 siblings of AWID from Guangdong province, China were recruited to complete a self-administered questionnaire. Both stratified and purposive sampling methods were employed. Eight scales were used in the measurements, six of which were adopted from existing scales and modified according to the research objectives and two of which were newly developed. A small-sample validation study was performed to test the reliability and validity of the scales prior to conducting the main study. Results: All personal, familial, and social–contextual factors have significant correlations with the two types of motivations of siblings of AWID. With the exception of experiences of ID stigma, the measured factors contributed significantly to the contact frequency of siblings of AWID. In the integrated model, their obligatory motivations were also found to mediate the relationships between the different determinative factors and their contact frequency. Differential treatment of parents was the only factor not mediated by the obligatory motivations of siblings of AWID. Discussion: The findings of this study have enriched knowledge on the antecedents of sibling relationship of AWID in China and have highlighted the mediating roles of obligatory motivations of siblings of AWID in these relationships. The adopted scales have exhibited satisfactory psychometric properties and thus can be used in future studies on sibling relationship and utilized as assessment tools in clinical practices. These findings can also increase understanding of social work practitioners on the needs and strengths of siblings of AWID as well as inspire them to develop effective support systems for these siblings and advocate relevant policy changes.<br>published_or_final_version<br>Social Work and Social Administration<br>Doctoral<br>Doctor of Philosophy
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Ottaway, Heather. "Sibling connections : an exploration of adopted people's birth and adoptive sibling relationships across the life-span." Thesis, University of East Anglia, 2012. https://ueaeprints.uea.ac.uk/39144/.

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Kennedy, Lorraine. "The experience of young people who have a sibling living with congenital heart disease." Thesis, Queen's University Belfast, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.675664.

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Background: Chronic illness has been acknowledged to affect the whole family rather than just the individual living with the condition. CHD is one of the most frequently diagnosed illnesses but much of the research has been carried out with the child or parents with less of a focus on siblings. Methods: This study used interpretative phemonological analysis to explore the lived experience of young people who have a brother or sister living with CHD. Results: Four master themes emerged from the data; A Family Fracture, Defending Against Distress, The Struggle for Balance and Looking Forwards but Thinking Back. A questionnaire focusing on psychopathology identified the functioning of this sample of young people to be within normal ranges and not at risk of psychopathology or functioning problems. The themes suggest a process where the young person encounters both risk and resilience factors and is constantly balancing between the two sides. Conclusions: Adjustment to chronic illness in the family can be seen as an on-going process, present even several years after diagnosis. Young people detailed a number of factors emerging from the interviews which suggest the potential for risk and warrant intervention to minimise this. Theoretical links are made between these findings and existing literature. Clinical implications include the use of narrative techniques in intervention and family based intervention. Limitations and directions for future research are also discussed.
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Parker, Eleanor Susan. "The meaning and significance of sibling and peer relationships for young people looked after on behalf of local authorities." Thesis, University of Warwick, 2010. http://wrap.warwick.ac.uk/3920/.

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This thesis explores the meaning and significance of sibling and peer relationships for young people looked after by local authorities, from their own perspectives. A sociological approach to research with young people is employed, drawing on additional post structural and feminist insights. It is argued that hegemonic ideas concerning the nature of development have resulted in a concentration on adult and adult-child relationships, from adult perspectives. Accordingly, children‟s perspectives on the contribution of their interrelationships to their well-being, support networks, and sense of social inclusion have not been adequately theorised. It is concluded that this has had particular implications for looked after children, as the process of becoming and remaining looked after can result in considerable losses within their sibling and peer relationships. A participatory methodology was developed in order to address issues of power, agency and choice within the research process. Qualitative interviews were undertaken with eighteen young people, aged between twelve and nineteen, who were, or had previously been, looked after. Sibling and peer relationships were found to make significant contributions to the young people‟s emotional and physical well-being, and sense of individual and familial identity, as well as providing emotional and practical support into adulthood. Accordingly, the loss of significant relationships, particularly those with siblings, could affect them deeply. While living in care, the young people were often optimistic about the ease of negotiating relationships with siblings and friends after leaving care. However, in reality, living independently could amplify problems within sibling and peer relationships, placing young people at risk of homelessness, violence, and social isolation. This thesis contributes greater understanding of the importance of a wide variety of sibling and peer relationships to the lives of looked after children, from their own perspectives. It also informs as to the complex challenges they face both during and after leaving care in negotiating their sibling and peer relationships in the interests of their emotional and physical well-being.
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Kennedy, Anne Marie. "Exploratory research into young people's exposure to conflict, aggression and violence and the nature of relationships with parents, siblings and friends." Thesis, University of Manchester, 2008. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.496220.

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This study' is an exploration Into young people's social negative experiences, specifically, exposure to conflict, aggression and violence within the family, school and community. It pursues collective examination of these three arenas occupied by young people while purporting to further this socially Imperative but barely Investigated field of research. The nature of young people's relationships with parents, siblings and friend's was also studied to establish the support networks therein.
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King, Dawn Leona. "How non-disabled children respond to a sibling with disability? the challenges they may or may not haved faced : a project based upon an independent investigation /." Click here for text online. Smith College School for Social Work website, 2007. http://hdl.handle.net/10090/988.

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Thesis (M.S.W.)--Smith College School for Social Work, Northampton, Mass., 2007<br>Thesis submitted in partial fulfillment for the degree of Master of Social Work. Includes bibliographical references (leaves 42-46).
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Chang, Mei-Ling, and 張美玲. "The Interaction Experience between People with Intellectual Disabilities and Their Siblings." Thesis, 2015. http://ndltd.ncl.edu.tw/handle/9xae44.

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碩士<br>東吳大學<br>社會工作學系<br>103<br>For people with intellectual disabilities, the stability of their families is highly related to the sibling relationship. The sibling subsystem is a critical factor influencing the operation of the families of those with intellectual disabilities. Thus, an investigation of sibling relationship is crucial and beneficial to family social work. The objective of this study was to understand the formation of the sibling relationship, the effect of the sibling relationship on the siblings, and the relationship between the sibling subsystem and family function. The research findings can serve as references for professional helpers and people with similar experiences. This study adopted the qualitative research method. For data collection, in-depth interviews were conducted individually on the family members of three families, including those with intellectual disabilities and their mothers and siblings. Thus, a total of nine family members were interviewed. According to the research results, the following five factors contributed to the development of sibling relationship: (1) A harmonious relationship between husband and wife was advantageous to the development of the sibling relationship. (2) When people with intellectual disabilities were treated like normal people by their parents, they would be more accepted by their siblings. (3) When parents adopted the parenting attitude of fairness and impartiality, a harmonious sibling relationship can be facilitated. (4) Good parent-child relationship helped the siblings of people with intellectual disabilities to be active and cooperative. (5) The undesirable behavior and characteristics of those with intellectual disabilities would lead to conflicts between siblings. Finally, according to the research conclusions, recommendations were proposed for the parents and siblings of people with intellectual disabilities, as well as for professional helpers and the government, in an attempt to make contribution to the services provided for the families of people with intellectual disabilities.
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Martins, Megan Patricia. "Siblings of individuals with autism perceptions of the sibling experience, psychological functioning, and the developmental tasks of young adulthood." 2007. http://hdl.rutgers.edu/1782.2/rucore10001600001.ETD.16737.

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Tien, Li-Wei, and 田禮瑋. "Representing the Siblings of People with Major DepressionDisorder in the Family Context." Thesis, 2008. http://ndltd.ncl.edu.tw/handle/62758086553462674160.

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Do, Brianna. "Can biographical information bias decision-making when determining whether two people are siblings?" Thesis, 2018. http://hdl.handle.net/2440/129134.

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This item is only available electronically.<br>Previous literature has demonstrated that it is a difficult task for individuals to use faces to detect relatedness, regardless of whether it is a sibling or familial relationship. To make this task easier for the decision maker, it makes sense to provide them with some supplementary information. However, past studies also suggest that this additional information can bias the decision outcome. Therefore, the current study aimed to determine the impact of providing limited biographical information (such as name and date of birth) on human decision making. Using a within–subjects repeated measures design, participants (N = 49) were required to complete 144 sibling determination trials, where they had to look at two faces and determine whether they were siblings or not. There were three experimental conditions: (1) no biographical information, (2) correct biographical information, and (3) incorrect biographical information. The data were analysed using ANOVA and t-tests. Overall, sibling determinations were typically slowest, and made with less confidence and accuracy when incorrect biographical information was provided. However, when correct biographical information was provided, performance did not always significantly improve when compared with no biographical information given. Consistent with previous literature, the results also suggest that it is harder to declare that two people are siblings than it is to declare they are not. These findings can benefit a range of government agencies that have to make decisions based on facial imagery. Furthermore, with more diverse and publically available databases that are sibling-specific, future research in this field can be enhanced.<br>Thesis (B.PsychSc(Hons)) -- University of Adelaide, School of Psychology, 2018
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Azeez, Cinnamon Christine. "Siblings of people with disabilities: A developmental analysis of the effects, impacts, and patterns of adaptation." 2001. https://scholarworks.umass.edu/dissertations/AAI3027175.

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Throughout their lives, siblings who have a brother or sister with a disability will face many challenges. Much of the research in this area has been quantitative and has resulted in contradictory conclusions. The purpose of this study was to investigate how siblings are affected by an exceptional brother or sister throughout life, how they adapt at different stages through the life span, and how adult siblings re-conceptualize their sibling relationships (retrospection reflection). Specifically, this study explored the developmental considerations when examining relationships with, effects of, and reactions to a sibling with a disability, and to compare and contrast the issues and themes across the life span. Open ended interviews were held with 12 key informants. The key segments of the interviews were transcribed and then analyzed for reoccurring themes at each stage, and changes across the stages. Insights into the sibling experience at different stages of development were offered and helped make sense of much of the previous quantitative research. What was discovered is that of course developmental periods do influence how siblings are affected, impacted, how they relate to their siblings, and how they cope. This research demonstrated that there are many common themes, sub themes, and facets and although the themes remain quite static across the 3 developmental periods, the underlying characteristics of the themes definitely change as siblings develop. However, this developmental investigation is so complex that there are no easy conclusions and findings differ somewhat in each individual sibling.
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Belkin, Teri. "The psychosocial outcomes of adult siblings of adults with autism and Down syndrome." Thesis, 2014. http://hdl.handle.net/1805/4830.

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Indiana University-Purdue University Indianapolis (IUPUI)<br>Little is known regarding the psychosocial outcomes of adult siblings of adults with autism. Accordingly, the current study sought to: (1) illuminate factors that predict health-related quality of life, caregiver burden, and reported benefits in adult siblings of adults with autism, using a stress and coping framework and (2) compare outcomes of siblings of adults with autism (n = 31) to siblings of adults with Down syndrome (DS) (n = 54). For the within subject hypotheses, analyses were repeated within the DS group and an overall Disability group (n = 97). The Disability group consisted of participants in the Autism and Down syndrome groups plus twelve individuals in a mixed group of adult siblings of adults with DS who presented with co-morbid symptoms of autism. Variables were organized using The Adult Sibling Caregiver Conceptual Model (ASCCM) into three categories: antecedents (e.g., sibling relationship quality, problem behaviors of the disabled sibling), mediators (e.g., coping strategies, cognitive appraisal types), and psychosocial outcome variables (i.e., mental and physical health-related quality of life, caregiver burden, and reported benefits). For the within subject primary hypotheses, I posited a series of relationships between the antecedents and outcomes based on prior literature on demographic and individual difference predictors (e.g., siblings of adults with autism with fewer problem behaviors would have increased health-related quality of life [HRQOL], decreased caregiver burden, and increased reported benefits) and on stress and coping factors related to the burden of providing care for an individual with autism (e.g., greater use of avoidant coping strategies would be related to lower HRQOL, increased caregiver burden, and decreased reports of benefits). Exploratory hypotheses also were examined (e.g., being married would be associated with increased HRQOL, decreased burden, and increased reported benefits). The within-subject results indicated support for eight of the ten primary hypotheses and five of the six exploratory hypotheses when examined within at least one of the study groups: Autism, DS, or Disability. Overall, sibling caregivers, regardless of their sibling’s disability, reported more favorable psychosocial outcomes when demands were lower (e.g., less severe levels of problem behaviors, fewer autism symptoms exhibited by their disabled sibling, decreased additional pile-up stress), when resources were available to cope with stress (e.g., social support, respite care), and when healthy responses to stress were reported (e.g., use of emotion focused vs. avoidant coping strategies, use of challenge vs. threat appraisal types). Of note, reported benefits, which have rarely been examined in the autism literature, were strongly related to the quality of a sibling relationship across all study groups, and with the helpfulness of received services and perceived social support within the Autism group. The between subject hypotheses also were largely supported. As expected, compared to siblings of those with Down syndrome, siblings of those with autism demonstrated greater levels of caregiver burden and lower mental HRQOL. Moreover, there was a rank ordering in levels of caregiver burden across disability groups; siblings of adults with DS reported the lowest burden, siblings of adults with DS with symptoms of autism reported significantly higher levels of burden, and siblings of those with autism reported the most burden. The results imply that autism, either alone or co-morbid with another diagnosis, presents an increased risk of stress and caregiver burden, not only in parent caregivers, but also in sibling caregivers. Interestingly, there was also evidence for higher levels of stress related growth within the Autism group compared to the DS group. Future research will be needed to generalize the results of this study to broader samples of adult siblings while taking a life course perspective to assess changes in non-disabled siblings’ outcomes over time.
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Price, Jacqueline. "The phenomenological experience of siblings of traumatic head injury survivors." Thesis, 2012. http://hdl.handle.net/10210/6590.

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M.A.<br>This investigation aims to address and explore the experience of sibling head injury which appears to have been largely neglected in research. It seeks those themes, emotions and thoughts which are central and significant to the sibling's experience. it explores the manner in which the event of sibling head injury is incorporated into the adolescent's emerging identity, sense of self and understanding of the world. Overall, this research aims to provide some understanding of what the experience of living with a head-injured sibling entails and the personal meaning it holds for adolescent siblings. The existential-phenomenological system of inquiry is employed as a mode of research in an effort to study this experience of adolescent siblings of head-injured persons. Siblings are understood as beings-in-the-world who coconstitute their realities and interpret and act upon their own existence. Qualitative access to this subjective realm or individual lifeworld of siblings, is attempted through a qualitative design, where rich data is collected through in-depth, open-ended interviews which facilitate unique and personal descriptions. Eight siblings of an adolescent or young adult age, were sourced through Headway and interviewed for the purpose of this study. The 'Adolescent Coping Scale' was administered to gain further qualitative information which could be incorporated into a greater understanding of sibling coping under such circumstances. Interviews were recorded and transcribed verbatim, providing the database from which intraindividual analyses and discussions were conducted on each participant. Only three of the original eight participants were selected for the purposes of in-depth analysis and final inclusion in the study, for reasons of manageability and research size. These participants were selected on the basis of their rich and varied descriptions. The analyses rendered an understanding of each sibling's perceptions, cognitive conflicts and emotional experience, while an inter-individual analysis of the accounts permitted an exploration of contrasting themes and emerging patterns. An integration of the research data revealed the complexity and ambiguities inherent in the sibling experience of head injury, and the long-term nature of such a phenomenon. This phenomenon was found to be characterised by much change and feelings of loss, by a pervasive sense of helplessness accompanied by anger and depression, by feelings of abandonment and of being alone in their experience. Such themes confirmed many of those explicated in the literature review. However, the research findings also suggest a sense of being overwhelmed by threatening emotions, a strong reliance on avoidance coping, and a specific complexity inherent in the sibling experience, which creates a challenging experience which is long-term and for some, may be perceived as getting worse over time. The value of this research lies primarily in the neuropsychological field of family interventions and rehabilitation. It is hoped that the in-depth description of the experience of ado!escent siblings of head injury, presented here, can promote a greater understanding of this experience, and facilitate the establishment of appropriate interventions which focus on the provision of much-needed education and support. It is also hoped that this understanding can assist in raising awareness of the stressful and long-term nature of such a phenomenon, in schools and universities, among peers, facilitators, counsellors - those who have daily contact with adolescents. It is proposed that future research explores those aspects of the sibling experience which mediate its nature, dynamics and severity. Studies investigating the role played by race, culture and religion, gender and age, as well as those which focus on the long-term consequences of such a phenomenon, are likely to facilitate a deeper and more in-depth understanding of the experience of sibling head injury.
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Van, Vuuren Celeste Janse. "The impact of disability on siblings of children with disabilities." Diss., 2013. http://hdl.handle.net/10500/10496.

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Sibling relationships are dynamic within any family context and disabilities add a different and even more complex dimension to a family context. In addition, inclusion is a relatively new concept in South Africa, especially as an inclusive society. This means that it is challenging for a family that has children with disabilities to live and function in the greater society as children with disabilities have specialised needs and expectations. However, siblings of children with disabilities have their own needs and expectations as participating individuals within a family context and within society; therefore it is of relevance to be fully aware of their personal views, perceptions, understanding and challenges they are confronted with. The primary aim of this study was to gain a rich and in-depth understanding of how the disabilities of a child could impact on a non-disabled sibling. With the above mentioned taken into account, siblings of children with disabilities are faced with an array of unique challenges that may change as the siblings develop, therefore, this study focused on siblings who are in their middle childhood phase (six to twelve years old). Qualitative research methods were applied to gain an in-depth understanding of the children‘s experiences and views. The review of the literature provided the theoretical framework against which the qualitative research was conducted. Semi-structured interviews were constructed from the comprehensive literature review. Observations and documents were also used as research instruments to collect descriptive and supportive data. Interpretations were made from the data collected. The literature review exposed and recognised variances regarding sibling experiences about living with children with disabilities. Five information rich participants were interviewed. The findings of this empirical investigation revealed that not all the siblings identified the same experiences as shared experiences of being siblings to children with disabilities. Therefore, it is recommended that the challenges these siblings are faced with should be taken into account since it has been revealed that there seems to be a need to support these siblings and their families. The whole family is a nested system interacting with each other, within the family system and with other systems beyond the family system, including the wider community and society. Thus, siblings need regular, understandable and updated information as they grow up, regarding the challenges the families are faced with, pertaining to the disabilities experienced, within this nested system.<br>Psychology of Education<br>M. Ed. (Guidance and Counseling)
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(9839195), Davina Taylor. "Family inclusion and people with profound intellectual disabilities: An exploration of policy-practice interface and the experiences of adult siblings." Thesis, 2008. https://figshare.com/articles/thesis/Family_inclusion_and_people_with_profound_intellectual_disabilities_An_exploration_of_policy-practice_interface_and_the_experiences_of_adult_siblings/13436594.

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"Investigates [Queensland] government documents relating to family inclusion and disability service provision using content analysis.... [and] explores the experiences of adult siblings of people with profound disability living in group home supported accommodation"--Abstract.
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Teixeira, Vanessa Rafaela Lopes. "As redes sociais pessoais de crianças e jovens em acolhimento residencial: o papel das fratrias." Master's thesis, 2011. http://hdl.handle.net/1822/18635.

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Dissertação de mestrado integrado em Psicologia (área de especialização em Psicologia da Justiça)<br>Este estudo pretende caracterizar as redes sociais pessoais de jovens em regime de acolhimento institucional. Mais especificamente, procurar-se-á avaliar a amplitude, intensidade, significado e funções desempenhadas pelos diferentes elementos da rede social pessoal de cada jovem institucionalizado, com particular saliência para o papel desempenhado pelas fratrias – um recurso social promovido pelas medidas de colocação – na perspectiva das crianças e dos jovens. Para tal, constitui-se um grupo de estudo de 30 crianças e jovens em acolhimento institucional com idades entre os 10 e os 24 anos e de ambos os sexos, acolhidas em duas instituições distintas. Como instrumentos de recolha de dados, foi elaborada uma entrevista semi-estruturada e aplicados o IARSP – R (adaptado por Alarcão; Abreu e Sousa, 2003) e o Mapa de Rede Social Pessoal (versão adaptada por Alarcão e Sousa, 2007). Os irmãos tendem a representar-se como uma fonte muito importante de apoio para as crianças/jovens em acolhimento institucional. Também, reforçam o papel facilitador que a presença dos irmãos no lar lhes oferece. As suas redes sociais pessoais tendem a ser pequenas, com um reduzido número de elementos significativos.<br>Knowing that institutional polities emphasize the importance of siblings in foster care however this practice isn´t very used, this study pretend to give voice to children and institutionalized young people in relation to this topic. This present study has a point to characterizer the social networks of young people in foster care. More specifically to search to evaluate the amplitude, intensity, meaning and functionalities done by different elements of children and young people’s network, accentuated on sibling’s role – a resource socially promoted by the laws of the placing – in perspective of children and young people. For such, a study group of 30 children and young people was formed between ages of 10 and 24 years old and both sex received in two different institution. As instruments of collected data has been done an interview semi structured and aplicated the IARSP-R (adapted for Alarcão, Abreu e Sousa, 2003) and the Network’s Map (version adapted for Alarcão and Sousa, 2007). In fact, siblings are identified as an important source of support for children and young people in foster care. Also, this children/young people see siblings as facilitators of their presence in home care. Their social networks tend to be small with a reduce number of significant people
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YEH, WEN-HUA, and 葉文虎. "Sibling relationship of people with disabilities." Thesis, 2017. http://ndltd.ncl.edu.tw/handle/bwg85b.

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碩士<br>實踐大學<br>社會工作學系碩士班<br>105<br>The purpose of this research is to understand the sibling relationship and how they think about disability in the process of growing up in a family with special need. There are two objects: 1. The opinions to each other between siblings. 2. The comments toward “disability” from the special-siblings. The data of this research is collected via in-depth interviews. There are 8 interviewees in the research, including 4 disables and 4 special-siblings. We find out that when a disable family member comes into existence, there are three particular time points that the family applies coping strategies at; the main strategy is using resources from the original family and therefore the families remain self-independent, instead of calling help out of outsides . As for the siblings, the way they see and interact with each other shows that the disability can possibly be a bridging character in communications. As for “disability” itself, the process it shows up and the way how the siblings face are discussed in this research. Finally, these findings are discussed and the research provides several suggestions. Keyword: siblings, sibling relationship, disability, special-siblings, disabled siblings, siblings with special needs
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Votrubová, Alena. "Psychosociální aspekty změn hybnosti člověka." Master's thesis, 2011. http://www.nusl.cz/ntk/nusl-313405.

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The diploma thesis - "Psychosocial Aspects of Changes in Human Mobility," focuses on family and siblings of people with physical disabilities, as well as on finding the appropriate support for these families in their specific situation. It particularly deals with people suffering cerebral palsy and spina bifida and possibilities to support the families with disabled individuals in the Czech Republic. The thesis is based on theoretical knowledge gained from publications and laws, hands-on experience acquired in service as a personal care assistant, as well as own research project on siblings of people with physical disabilities. In the first part of the thesis, the author gives basic information about classifications, diagnostics and manifestations of cerebral palsy and spina bifida with major influence of the change in human mobility. In addition, the thesis focuses on the relationship of both parents and siblings, to the handicapped child. The next part is devoted to a research project called "Life with a Sibling with Physical Disability". The research project deals with the direct experience of siblings of people with physical disabilities, critical moments in their lives, resources of coping with this difficult life situation, but also looks at benefits for their personal growth. The aim of...
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Huang, Chiu-Hua, and 黃秋華. "Sibling Relationships in Middle-aged People: the Norm and Interaction." Thesis, 2007. http://ndltd.ncl.edu.tw/handle/89410204728367445442.

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碩士<br>國立臺灣師範大學<br>人類發展與家庭學系<br>95<br>The purpose of this paper is to investigate sibling relationships in middle-aged people in terms of the norm and interaction through a survey of samples aged 40-64. A total of 483 in middle-aged people were recovered through purposive sampling. Findings of the study indicate: 1. In the attitude towards sibling norm, respondents have a high identification of sibling relationships, and the identification of males is significantly higher than that of females, despite the fact that the identification items between genders are different. Males care more about the norms of seniority and asset division; while females concern more about emotional support and mutual assistance. 2. In the condition of sibling interaction, reunions and calling are the most common contacts, and sibling conflicts and competition rarely happen. Moreover, ‘advice and information’ is the rather common form of mutual support. 3. In sibling interactions, contact and support among siblings in females are significantly greater than that of males, suggesting that females play a better role as the ‘liaison’ among siblings in middle-aged people. 4. Among all factors affecting sibling interactions in middle-aged males and females, ‘living distance’ is the major factor affecting the contact and support in female siblings and the potential cause of conflicts and competitions. 5. The attitude towards sibling norm is the major factor attributing to sibling contact and support in middle-aged people. However, the level of identification of sibling norm is also the cause of sibling competition in middle-aged males.
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Ho, Wei-Sheng, and 何偉聖. "The studying of sibling care experience in people with severe mental illness." Thesis, 2014. http://ndltd.ncl.edu.tw/handle/71944889434303170029.

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碩士<br>中山醫學大學<br>醫學社會暨社會工作學系碩士班<br>102<br>Abstract Objectives:The objectives of this study is to understand influencing factors of sibling care attitude in people with severe mental illness (PSMI) and explore the sibling care experience and caregiver’s role, further understand the sibling care needs and care division pattern among the course of taking care of the people with severe mental illness (PSMI) . Lastly, according to the research, to suggest the specific proposal and to enhance the quality of the family services program in order to solve the dilemma of intergenerational care duty transfer in double-aging family. Methods: Depending on the purpose of research, this study uses qualitative research depth interviews, accessing 9 siblings in people with severe mental illness. The following results explored and summarized the experiences of the participants. Results: (1)Four types of sibling care attitude in PSMI: Namely "gladly accepted", "reluctantly accepted", "Resist accepted", "confusion". The more positive care attitude of sibling, the more actively involved in care work, and get greater willingness to undertake the duty of care. (2)Care division mode of "One person-based, supplemented by others.": In addition to the core of the primary caregivers bear most of the care responsibility and work, and other siblings often plays a supporting care role. (3)Two types of sibling care cycle experience: Are "positive care experience" and "negative care experience", these care experiences will generate positive and negative effects of the cycle, and impact the sibling care willingness and quality of care. (4)Four types of sibling care duty perspectives: these are "unshakable responsibility for care duty ", " Feel resistance and struggle for duty ", "Only willing to play a supporting care role " and "Totally rejected responsibility for care duty " . (5)The issues of intergenerational care duty transfer in PMSI families: This study found higher will in women sibling than men sibling have the willingness to come forward to provide PSMI care. The issues of intergenerational care duty transfer that is rarely discussed between parents and offspring. (6)The sibling caregiver’s needs in PSMI: Sibling caregiver in three levels of "emotional needs", "informational needs" and " Substantive servicing needs" with varying degrees of demand. Moreover sibling involved in the process of the treatment and service , which is rarely valued and satisfied. (7)The sibling caregivers in PSMI expect social care and States’ support: Sibling caregiver expect access to social support, Implementation of PSMI case management services, and PSMI have a more stable rehabilitation environment. Conclusion: according to present study results, we proposed the suggestions: (1)Suggestions for policy: Concerning about the issues of intergenerational care duty transfer dilemma in double-aging family, and strengthening the family, the state, society trilateral relations. (2)Suggestions for policy: Strengthening the intergenerational care duty transfer for planning, implementation of case management services, integration of employment services in the health and community resources, and construction to conform the needs of sibling caregivers’ service programs and resources.
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47

Rigney, Sarah M. "Inextricably intertwined an exploration of identity development in adults with a disabled sibling : a project based on an independent investigation /." 2009. http://hdl.handle.net/10090/9831.

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Gousmett, Sharyn Louise. "Families of children with developmental disabilities : family environment, social support and sibling well-being : a thesis submitted in partial fulfillment of the requirements of the degree of Master of Arts in Psychology /." 2006. http://library.canterbury.ac.nz/etd/adt-NZCU20070105.151425.

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Louw, Derine. "Sibbe van kinders met outisme se belewenis van die gesin." Diss., 2006. http://hdl.handle.net/10500/1669.

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The focus of this qualitative study is the way siblings of children with autism experience their nuclear family. Five participants in their middle childhood (6 to 12 years), with a younger sibling with autism, participated in the study. Individual unstructured interviews were conducted with all participants to describe their experience of their family. The interviews were, with the consent of the parents and children, video-recorded and transcribed. Eight recurring themes were identified in the transcriptions and studied relative to the existing literature. True to the qualitative nature of this study, the aim was not to generalize the findings, but to give each of the participants the opportunity to tell his/her story. The result of this study is the detailed description of how siblings of children with autism experience their nuclear family.<br>Social Work<br>M.Diac.(Play Therapy)
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