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Fernandes, Fernanda de Souza, Fabiane Ferraz, Giovana Ilka Jacinto Salvaro, Amanda Castro, and Jacks Soratto. "Social representations of health professionals about terminally ill children and adolescents." Revista CEFAC 20, no. 6 (December 2018): 742–52. http://dx.doi.org/10.1590/1982-021620182062618.
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ABSTRACT Purpose: to understand the social representations of health professionals about terminally ill children and adolescents in different work settings. Methods: a qualitative, descriptive, exploratory study was conducted with ten health professionals, selected through the technique of network sampling. The instruments for data collection were semi-structured interviews, and free association of words. The analysis of the data followed the steps of content analysis, subsidized by the theory of social representations, with the support of Atlas.ti software. Results: the analysis of the interviews presented 115 excerpts of statements, condensed into 11 codes, which were grouped into three categories: experiences, strategies, and consequences of conviviality with terminality; mission and amorousness in a terminal condition; terminality as the end of life. The free association of words resulted in 52 evocations, with an emphasis on suffering, pain, love, mission, and family. Conclusion: the social representations of health professionals about terminally ill children and adolescents are associated with the situations being experienced, the strategies developed to deal with these moments in the exercise of the profession, and the consequences that this experience causes in the health professionals.
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Miller, Janet. "Social work theory and practice with the terminally ill." Social Science & Medicine 32, no. 12 (January 1991): 1435–36. http://dx.doi.org/10.1016/0277-9536(91)90206-r.
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Tang, Yong. "Challenges, personal growth and social support among family caregivers of terminally ill cancer patients in Southern China." Qualitative Social Work 18, no. 4 (February 2, 2018): 638–54. http://dx.doi.org/10.1177/1473325018755890.
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The purpose of this study was to obtain a deeper understanding of the experiences of family caregivers of terminally ill cancer patients in Shenzhen, Southern China. This study sought to describe how being the main caregiver influences family caregivers’ daily lives. This article reports on the findings from individual interviews with 20 family caregivers of terminally ill cancer patients. The interview transcripts were analyzed using qualitative thematic analysis, which revealed that caring for a cancer patient over the course of his or her illness significantly affected many aspects of family caregivers’ lives. Three major themes were identified in their experiences: (1) challenges, (2) personal growth, and (3) social support. In exploring these themes, this article offers insights into family caregivers’ experiences in Southern China, particularly among family members of terminally ill cancer patients and presents implications for future professional practice, especially oncology social work.
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BREITBART, WILLIAM. "“Unintended consequences”: Can legalizing physician-assisted suicide actually result in improved palliative care practices?" Palliative and Supportive Care 1, no. 3 (September 2003): 213–14. http://dx.doi.org/10.1017/s1478951503030372.
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In this issue of Palliative & Supportive Care, we are pleased to present recent work from Dr. E.R. Goy et al. (“Oregon hospice nurses and social workers' assessment of physician progress in palliative care over the past 5 years”) regarding their observations of the impact of the legalization of physician-assisted suicide in the state of Oregon. In 1977, Oregon enacted the Death with Dignity Act, which legalized physician-assisted suicide for terminally ill patients. In the past 5 years, a relatively small number of terminally ill patients in Oregon have requested assisted suicide and, after evaluation, were provided with physician assistance (Ganzini et al., 2002).
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Herberg, Dorothy Chave. "Book Review: Social Work Practice with the Terminally Ill: The Transcultural Perspective." Journal of Palliative Care 8, no. 2 (June 1992): 58–61. http://dx.doi.org/10.1177/082585979200800219.
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Wallace, Jo-Anne. "Book Review: Social Work Theory and Practice with the Terminally Ill,2nd Ed." American Journal of Hospice and Palliative Medicine® 18, no. 5 (September 2001): 356–57. http://dx.doi.org/10.1177/104990910101800514.
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Smith, Douglas C. "The Terminally Ill Patient's Right to be in Denial." OMEGA - Journal of Death and Dying 27, no. 2 (October 1993): 115–21. http://dx.doi.org/10.2190/xr88-6bdj-fj91-evy2.
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Contrary to much literature on death and dying addressing the necessity for people's openness in facing death, an argument is presented in favor of being supportive of a terminally-ill person's choice to deny death's inevitability. After presenting an illustrative case study on the choice of denial, the author draws upon the supportive work of some of the foremost experts in the field of death and dying. Finally, the author addresses the implications for the dying person's counselor and the consequences for the dying person's social milieu.
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Heras, P., K. Kritikos, A. Georgopoulou, A. Hatzopoulos, and N. Kritikos. "Spirituality and religion in terminally ill patients with cancer." Journal of Clinical Oncology 25, no. 18_suppl (June 20, 2007): 19587. http://dx.doi.org/10.1200/jco.2007.25.18_suppl.19587.
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19587 Background: The importance of spirituality and religion in coping with a terminal illness is becoming increasingly recognised. We aimed to assess the relation between spiritual well-being, religiosity, depression, and end-of-life despair in terminally-ill cancer patients. Methods: One hundred forty three terminally ill cancer patients with a life expectancy of less than 6 months were interviewed with a series of standardised instruments, including the FACIT Spiritual Well-Being Scale, a religiosity index similar to those used in previous research, the Hamilton depression rating scale, the Memorial Symptom Assessment Scale and the Duke-UNC Functional Social Support Questionnaire. Results: A strong negative association was observed between the FACIT Spiritual Well-Being scale and the HDRS, but no such relationship was found for religiosity. Similar patterns were observed for the FACIT subscales, finding a strong negative association between the meaning and peace subscale (which corresponds to the more existential aspects of spirituality) and HDRS scores, whereas a positive, albeit nonsignificant, association was observed for the faith subscale (which corresponds more closely to religiosity). Conclusions: These results suggest that the beneficial aspects of religion may be primarily those that relate to spiritual well-being rather than to religious practices per se. Spiritual well-being offers some protection against end-of-life despair in those for whom death is imminent. The area of spiritual work is fertile ground for further investigation, especially interventions aimed at improving spiritual health and general quality of life among terminally ill patients with cancer. No significant financial relationships to disclose.
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Montero, Darrel. "End-of-Life Issues in the United States after Terri Schiavo: Implications for Social Work Practice." Advances in Social Work 12, no. 2 (September 8, 2011): 164–80. http://dx.doi.org/10.18060/1841.
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The very public death of Terri Schiavo in 2005 alerted Americans to what is a growing ethical, medical, and social crisis: the status of end-of-life issues and decisions in the United States. Currently, Oregon is the only state to give terminally ill patients the right to end their lives, with physicians’ help, if they so choose. Public opinion data from 1977 to the present show that Americans support greater rights for individuals facing end-of-life decisions--up to and including physician-assisted suicide and euthanasia. This paper considers the status of end-of-life issues in the United States after Terri Schiavo’s death and examines the opportunities for advocacy by social workers who serve clients and families encountering this complex and controversial issue.
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Stella, Silvia, Ivan Fossati, Elena Vegni, and Egidio A. Moja. "Storie di pazienti oncologici che muoiono e dei curanti che li accompagnano: uno studio qualitativo sul mondo interno degli psicologi." PSICOLOGIA DELLA SALUTE, no. 1 (June 2009): 57–67. http://dx.doi.org/10.3280/pds2009-001004.
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- Literature regarding the care of terminally ill patients at the end of life underlines the difficult experience of caring both by physicians and nurses. The goal of this study is to investigate the professional experience of psychologists who deal with terminally ill patients. Two narratives about the perception of professional success and insuccess were asked to 40 psychologists who usually work with advanced cancer patients. 37 psychologists accepted to participate, the 42% gave al least one narrative. The 54.8% of the narratives was about professional success, the 45.2% was about insuccess. The narratives were examined using an hermeneutical-interpretative method, according to Grounded Theory. The narratives concerning professional insuccess pointed out feelings of isolation, fear, anxiety and helplessness. Those regarding a professional success focused on a good relationship between the psychologist, the patient and the context. Specific issues emerged from the study: questions arising from the patient's refusal of the psychological treatment, the absence of difficulty in initiating end-of-life discussions, and the lack of requirement for specific training.Key words: psychologist, professional experience, end of life, cancer patients, qualitative research.Parole chiave: psicologo, vissuto professionale, fine vita, pazienti oncologici, ricerca qualitativa.
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Duba, Jill D., and Mary Magenta. "End-of-Life Decision Making: A Preliminary Outline for Preparing Counselors to Work With Terminally Ill Individuals." Family Journal 16, no. 4 (October 2008): 384–90. http://dx.doi.org/10.1177/1066480708323083.
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Harris, Darcy. "Oppression of the Bereaved: A Critical Analysis of Grief in Western Society." OMEGA - Journal of Death and Dying 60, no. 3 (May 2010): 241–53. http://dx.doi.org/10.2190/om.60.3.c.
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Bereaved individuals often experience profound social pressure to conform to societal norms that constrict the experience of grief rather than support it. This article explores grief in Western society1 through an analysis of the underlying structures and values that are a part of this social system, utilizing the lens of critical theory. Critical theory examines social norms and conditions in order to identify and expose oppression in various contexts. This article examines the social rules that govern the expression of grief, the role of attachment, social pain, and shame as potent forces that promote compliance with social rules, and the ways that the underlying assumptions and values in Western society shape how bereaved individuals are expected to react. Implications for clinicians who work with terminally ill or bereaved individuals are then reviewed.
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Drozd, Iryna. "Hospice – A “haven” for terminally ill children. Model premises and practice in Poland and Ukraine ." Praca Socjalna 33, no. 3 (June 30, 2018): 5–21. http://dx.doi.org/10.5604/01.3001.0012.7380.
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A children’s hospice is regarded not only as a specific place but as a multi-faceted program of care for terminally ill children and their families. Hospices take care of people in need, taking into consideration their physical, emotional, social, and also spiritual needs. Hospice workers deal with treating the painful symptoms of the disease, bringing relief and respite to families as well as support during both the time of dying and the period of mourning. The main aim of these institutions is to improve the quality of the last days of patients’ lives by providing not only professional and attentive medical care but also psychological, pastoral, spiritual, and social support. The article presents the premises of hospice work and compares the situation in this respect in Poland and Ukraine.
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Maschi, Tina, Suzanne Marmo, and Junghee Han. "Palliative and end-of-life care in prisons: a content analysis of the literature." International Journal of Prisoner Health 10, no. 3 (September 9, 2014): 172–97. http://dx.doi.org/10.1108/ijph-05-2013-0024.
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Purpose – The growing numbers of terminally ill and dying in prison has high economic and moral costs as global correctional systems and the society at large. However, to date little is known about the extent to which palliative and end-of-life care is infused within global prison health care systems. The purpose of this paper is to fill a gap in the literature by reviewing and critically appraising the methods and major findings of the international peer-reviewed literature on palliative and end-of-life care in prison, identify the common elements of promising palliative and end-of-life services in prison, and what factors facilitate or create barrier to implementation. Design/methodology/approach – A content analysis was conducted of the existing peer-reviewed literature on palliative and end-of-life care in prison. English-language articles were located through a comprehensive search of peer-reviewed journals, such as Academic Search Premier Literature databases using differing combinations of key word search terms, “prison,” “palliative care,” and “end-of-life care.” A total of 49 studies published between 1991 and 2013 met criteria for sample inclusion. Deductive and inductive analysis techniques were used to generate frequency counts and common themes related to the methods and major findings. Findings – The majority (n=39) of studies were published between 2001-2013 in the USA (n=40) and the UK (n=7). Most were about US prison hospice programs (n=16) or barriers to providing palliative and end of life care in prisons (n=10). The results of the inductive analysis identified common elements of promising practices, which included the use of peer volunteers, multi-disciplinary teams, staff training, and partnerships with community hospices. Obstacles identified for infusing palliative and end-of-life care in prison included ethical dilemmas based on custody vs care, mistrust between staff and prisoners, safety concerns, concern over prisoners’ potential misuse of pain medication, and institutional, staff, and public apathy toward terminally ill prisoners and their human rights to health in the form of compassionate and palliative care, including the use of compassionate release laws. Research limitations/implications – Implications for future research that foster human rights and public awareness of the economic and moral costs of housing the sick and dying in prisons. More research is needed to document human rights violations as well as best practices and evidence-based practices in palliative and end-of-life care in prisons. Future studies should incorporate data from the terminally ill in prison, peer supports, and family members. Future studies also should employ more rigorous research designs to evaluate human rights violations, staff and public attitudes, laws and policies, and best practices. Quantitative studies that use experimental designs, longitudinal data, and multiple informants are needed. Qualitative data would allow for thick descriptions of key stakeholders experiences, especially of the facilitators and barriers for implementing policy reform efforts and palliative care in prisons. Practical implications – This review provides a foundation on which to build on about what is known thus far about the human right to health, especially parole policy reform and infusing palliative and end-of-life care for the terminally ill and dying in prisons. This information can be used to develop or improve a new generation research, practice, policy, and advocacy efforts for that target terminally ill and dying in prison and their families and communities. Social implications – There are significant social implications to this review. From a human rights perspective, the right to freedom from torture and cruel and unusual punishment is a fundamental human right along with prisoners’ rights for an appropriate level of health care. These rights should be guaranteed regardless of the nature of their crime or whether they are in a prison placement. The information provided in this review can be used to educate and possible transform individual's and society's views toward the terminally ill and dying who are involved in the criminal justice system. Originality/value – This paper extends the extant literature by using both quantitative and qualitative analysis methods to organize, summarize, and critically analyze the international literature on palliative care and end of life care in prison. This review is designed to increase awareness among the international community of the pain and suffering of the terminally ill in prison and the facilitators and barriers to providing them compassionate care while in custody.
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Walters, Wendy. "Social work theory and practice with the terminally ill (2nd edn). Joan K. Parry. The Haworth Social Work Practice Press, New York, 2001. 122pp. ISBN: 0789010836." Psycho-Oncology 12, no. 7 (2003): 741–42. http://dx.doi.org/10.1002/pon.737.
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May, Carl. "'To call it work somehow demeans it': the social construction of talk in the care of terminally ill patients." Journal of Advanced Nursing 22, no. 3 (September 1995): 556–61. http://dx.doi.org/10.1046/j.1365-2648.1995.22030556.x.
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Pelleg, Gilly, and Ronit D. Leichtentritt. "Spiritual Beliefs among Israeli Nurses and Social Workers: A Comparison Based on Their Involvement with the Dying." OMEGA - Journal of Death and Dying 59, no. 3 (November 2009): 239–52. http://dx.doi.org/10.2190/om.59.3.d.
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The purpose of the study was to compare spiritual beliefs and practices between nurses and health care social workers based on their involvement with dying patients. Exposure to the dying was identified by two indicators: the percentage of terminally ill patients in the provider's care and the work environment. On the basis of the literature, differences were expected between the two types of professionals and the three degrees of involvement with the dying. Nurses were expected to have a higher spiritual perspective than social workers; and health care providers with high involvement in care for the dying were expected to hold the highest levels of spiritual beliefs. Contrary to expectations, no differences in spirituality were found between nurses and social workers; both groups exhibited medium levels of spirituality. Furthermore, health care providers who were highly involved with dying patients had the lowest spiritual perspectives. Tentative explanations of these unexpected results are presented and discussed.
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Surowiecka, Anna, Wojciech Garczynski, Anna Szczepanska, and Walery Zukow. "Nursing care of a patient in terminally ill cancer - case study." Journal of Education, Health and Sport 1, no. 1 (March 3, 2011): 100–115. http://dx.doi.org/10.12775/jehs.2011.01.01.010.
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The aim was to show the nurses and hospice care as a member of the team over the patient in a hospice for terminally ill cancer resident inthe house. Nurse choosing to work with patients who die must know that not only medical knowledge will be needed in carrying out its duties but alsoa lot of love, patience and above all humility toward life and death. Characterized range of palliative care and its residents. The paper presents adescription and policies for hospices and home desktops and volunteers working in them. Material - the subject of research - the case of a patient withpancreatic cancer he cultivated to the last moments of life. Test method - method of individual cases, which applies to nursing, is a qualitativedescription of the passage of reality and its interpretation. Used to collect all kinds of information about the case, in particular about the familysituation, social, environmental, material and existential, psychological, physical or other person examined. This is a descriptive study undertaken bytype of research problem, which requires the use of methods relating to a single case or small their number.Research problems:1. How long the patient has symptoms associated with cancer diagnosed?2. Have there been cases of death from cancer in the family sick?3. Have you previously was treated oncological?4. When the first signs of disease?5. Does the patient know about his condition?6. Are they symptomatic treatment introduced hospice doctor brings relief from symptoms?7. Is recommended to take the product (Megace) improves the appetite, gives the desired effect?8. Is your oxygen therapy brought relief in breathing?9. How effective were notmorphotic painkillers?10.Do you sick of the constant care exercised a family?11. Is the hospice team visits took place at regular intervals or whenever the call of the family?12. Is the patient dying in dignity, surrounded by kin?The goal of the research work presented, a description of the patient (the subject of research), research problems and the method ofresearch, technology and research tools, describes the results of research. Presented in a special way and meaningful roles of a nurse who has thecare of the patient in the terminal stage of cancer, staying at home. The problem of mental, spiritual, and emotional problems of the patient and theenvironment. Based on the literature of the subject and based on scientific study, the following conclusions:1. In view of the cancer patient who is not eligible for treatment at the forefront the problem of cancer pain and other ailments of thedigestive and respiratory systems, and greatly reduced physical fitness.2. The patient was the biggest problem was lack of appetite and emaciation of the body related to it which greatly limited its self-care, andin a later stage, prevented completely.3. Above the patient in the terminal who will remain in the home should be planned nursing care consulting and communicating withmembers of her family, educating them in implementing the active care, care and assist.4. The nurse takes action on dying nursing care aimed at improving the quality of life, eliminating pain, psychological comfort, eliminationof other ailments associated with the disease, assist.
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James, Mary P., and Kate Reid. "Strengths of family carers: Looking after a terminally ill adult under 65 years of age." Aotearoa New Zealand Social Work 34, no. 2 (July 16, 2022): 5–15. http://dx.doi.org/10.11157/anzswj-vol34iss2id879.
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Introduction: To learn of a terminal illness is devastating at any age. How much more so when it occurs in early or mid-adulthood, when people are busy with family and career goals. Those facing death when under 65 years of age are a group whose voice is virtually invisible in the palliative caregiving literature. Yet one in every five people die in New Zealand before 65 years of age. For Māori, almost half will die under the age of 65.Methods: Eight bereaved family carers were interviewed with particular focus on the strengths that underpinned and sustained them through the spouse’s illness and death. The research utilised a social construction methodology and thematic analysis of the narratives was undertaken to identify the key themes.Findings: Following analysis, themes emerged relating to the Medical Circle of Care, the Home Circle of Care, Saying Goodbye, and Picking Up the Threads. Further analysis revealed the strengths of love, hope, family, teamwork and resilience in coping with these experiences.Conclusion: Three key findings for palliative care teams emerge from the research. These are to prioritise support for family carers, to enable access to Social Work, and the provision of targeted support for bereaved family carers.
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Riordan, Richard J., and Sandra K. Saltzer. "Burnout Prevention among Health Care Providers Working with the Terminally Ill: A Literature Review." OMEGA - Journal of Death and Dying 25, no. 1 (August 1992): 17–24. http://dx.doi.org/10.2190/eq6r-gx93-pw34-jtke.
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A review of the literature on burnout and its prevention among caregivers to the dying is presented in this article. The literature shows that health care providers who work with the dying do experience many stressors unique to the specialty, but also many which are common to other health care workers. External and internal stressors common to this specialty field are summarized, and suggestions for reduction or elimination of these stressors are generated from the literature. A self-care wellness program is extracted from the various literature sources and provides what is thought to be an essential foundation to burnout prevention.
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De Montigny, Johanne. "Distress, Stress and Solidarity in Palliative Care." OMEGA - Journal of Death and Dying 27, no. 1 (August 1993): 5–15. http://dx.doi.org/10.2190/18la-ly27-xlec-m4cw.
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What does the stoic, silent expression of the terminal cancer patient signify? Clinical observation suggests that this emotional silence is often a physical energy-saving device, essential for survival to the very last breath. Caregivers and survivors may also experience a variety of contradictory and inexpressible emotions in silence. The role of the psychologist on the palliative care unit is to be there for the terminally-ill, as well as for the family/friends, both during the dying and bereavement, and for the caregiver team. This article focuses on the work of decoding ordinary words which for a good number of patients hide a painful past. It also stresses the necessity to remain open to the unexpected and to allow and trust the other to live what happens since there is a constant and unconscious effort to fill the void.
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Kaplan, Lisa Jill. "Toward a Model of Caregiver Grief: Nurses' Experiences of Treating Dying Children." OMEGA - Journal of Death and Dying 41, no. 3 (November 2000): 187–206. http://dx.doi.org/10.2190/ngg6-ypah-40ab-cnx0.
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This study explored the emotional experiences of fifteen American nurses who work with terminally ill children. Structured interviews were conducted which considered the relationships and the emotional experiences of one who works with dying children. Specific questions that addressed attitudes and reactions to the dying process were asked, and the notion of a grief reaction was explored. Results from this study indicate that participants experience a form of “emotional tension” in their struggle to balance the intense emotional feelings that exist when treating dying children with their desire and need to be competent care providers. Their emotional experiences are influenced by the relationship that is established with their patient and by the child's dying process. It was concluded that when caregivers recognize the need to grieve and express their feelings while acknowledging that this is a natural, normal, and appropriate manner in which to respond to the death of a patient, they then become better able to take care of themselves, and thus their patients. A proposed model of caregivers' grief is presented.
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Belcarz, Maria, and Sylwia Marczewska. "Impact of the COVID-19 pandemic on the mental health and social functioning of healthcare workers." Journal of Education, Health and Sport 13, no. 4 (March 2, 2023): 319–24. http://dx.doi.org/10.12775/jehs.2023.13.04.038.
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Introduction: The work of medical staff (doctors, nurses) is very stressful, especially during a pandemic. They often bear a lot of responsibility, work under time pressure and take care of a terminally ill patient. This unique time affects not only medical workers but also their families. The rules of functioning in a group and society are changing, and the possibility of exposure to infection by colleagues, relatives or friends is a risk factor for mental health problems. The aim of the study: The aim of the study was to analyse the prevalence of mental disorders and changes in the social functioning of medical workers during the Covid-19 pandemic. Materials and methods: Survey search using author-made questionnaire was conducted. The study group consisted of people from 22 to 66 years of age. The survey was anonymous. The study material was analyzed, consisting of 127 correctly completed questionnaires. Collected data was then transformed for statistical purposes and the correlations were examined using Mann-Whitney U test (men vs women). Results: Comparing the situation before the pandemic to the present one statistically significant increase in to experience stress at work for women. Nearly 90% of surveyed individuals are afraid of being infected with SARS-CoV-2 virus by a patient. Medical personnel (nurses, paramedics, doctors) are experiences stress (83%), fear (65%) and anxiety (76%) in the workplace. 10% of respondents took advantage of the psychological support. Conclusions: The mental condition and functioning in the society of medical workers is significantly impaired due to the ongoing Covid-19 pandemic. Medical workers are exposed to constant stress, anxiety, powerlessness and their social activity is disturbed.
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Chrościcka, Alicja, Kamil Gała, Andrzej Czajka, Paweł Lenard, Adam Kucharski, Sara Michalska, Konrad Pilarski, Martyna Dewicka, Alicja Maria Wawrzyniak, and Rafał Makuch. "Rehabilitation as a relevant factor in improvement of the quality of life in palliative patients." Quality in Sport 17 (July 21, 2024): 53021. http://dx.doi.org/10.12775/qs.2024.17.53021.
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Introduction Palliative care is a medical field focused on enhancing the quality of life for terminally ill patients rather than curing their disease. It involves a multidisciplinary team that aims to improve patients' well-being, manage pain, alleviate other physical symptoms, and ease mental suffering. The purpose of this work is to show how much rehabilitation is important for palliative patients and improves the quality of life. State of Knowledge The article contains different types of rehabilitation that seem to be useful in daily challenges of palliative patients. Chosen types of rehabilitation are: physical, pulmonary, speech and language and psychosocial. Material and methodsThe method obtaining the data is based on medical reviews including WHO reports about rehabilitation and palliative care showing what is a relationship between them. Summary All of the studies and reviews showed a strong relationship between each type of rehabilitation and improvement of quality of life of palliative patients. Each type of rehabilitation touches different areas of struggle for palliative patients as mobility, pain, communication with surrounding, anxiety, stress and social exclusion.
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Guo, Yue. "Research on the Intervention of Medical Social Work in End-of-life Care Services for Terminally Ill Cancer Patients: A Perspective Based on Chinese Family Culture." International Journal of Clinical and Experimental Medicine Research 7, no. 4 (November 30, 2023): 677–81. http://dx.doi.org/10.26855/ijcemr.2023.10.029.
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Flanagan-Kaminsky, Donnamarie. "Intentional Anticipatory Mourning, Caregiver and Bereavement Support Program for Terminally Ill Veterans, Their Families & Caregivers in the VA Contract Home Hospice Program." OMEGA - Journal of Death and Dying 67, no. 1-2 (August 2013): 69–77. http://dx.doi.org/10.2190/om.67.1-2.h.
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As a response to the increasing numbers of Veterans utilizing the Veterans Affairs (VA) Contract Home Hospice Program, and with growing awareness of the increased stress at end-of-life, the social work leadership of the Louis Stokes Cleveland VA Medical Center implemented a unique approach to support Veterans and their families. The role of a grief/bereavement counselor was added to enhance the VA Contract Home Hospice Program, to assess the needs of the Veterans and family caregivers, and to create a program in response to these findings. A three-prong module evolved encompassing: Anticipatory Mourning Support for both the Veteran and caregiver/family; Caregiver Support; and Bereavement Support. The components of this module are described along with findings in each module.
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Dierckxsens, Geoffrey. "Enactive Cognition and the Other: Enactivism and Levinas Meet Halfway." Journal of French and Francophone Philosophy 28, no. 1 (June 15, 2020): 100–120. http://dx.doi.org/10.5195/jffp.2020.930.
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This paper makes a comparison between enactivism and Levinas’ philosophy. Enactivism is a recent development in philosophy of mind and cognitive science that generally defines cognition in terms of a subject’s natural interactions with the physical environment. In recent years, enactivists have been focusing on social and ethical relations by introducing the concept of participatory sensemaking, according to which ethical know-how spontaneously emerges out of natural relations of participation and communication, that is, through the exchange of knowledge. This paper will argue first that, although participatory sensemaking is a valuable concept in that it offers a practical and realistic way of understanding ethics, it nevertheless downplays the significance of otherness for understanding ethics. I will argue that Levinas’ work demonstrates in turn that otherness is significant for ethics in that we cannot completely anticipate others through participation or know-how. We cannot live the other’s experiences or suffering, which makes ethical relation so difficult and serious (e.g. care for a terminally ill person always falls short to a certain extent). I will argue next that enactivism and Levinas’ philosophy nevertheless do not exclude each other insofar they share a similar concept of subjectivity as a quality of naturally interacting with the external world to gain knowledge (Levinas speaks of dwelling). Finally, I will argue that enactivism’s notion of participatory sensemaking also offers something which Levinas’ insufficiently defines, namely a concept of social justice, based on equality and participation, that emerges out of natural relations.
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Sigaard, Jarl, and Birthe Dinesen. "Are we using Placebo effects in specialized Palliative Care?" Scandinavian Journal of Pain 16, no. 1 (July 1, 2017): 183. http://dx.doi.org/10.1016/j.sjpain.2017.04.053.
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Abstract Background Placebo effects are positive treatment effects that occur because of the psycho-social context around the therapy. Such effects are well documented in pain treatment, as well as in the treatment of other common symptoms. Specialized Palliative Care focuses on the relief of pain and other symptoms in terminally ill cancer patients. Aims The aim of this study was to explore whether and/or how a Specialized Palliative Care Team might contribute to the creation of placebo effects. Methods The study was conducted as a qualitative study using a phenomenological/hermeneutic approach. A literature review was carried out to identify state-of-the-art knowledge about placebo effects. A triangulation of data collection techniques was used, including participant observations (n = 8.6 h) and a focus group interview with 7 members of the Specialized Palliative Care Team. Observations from six cases were also included. Data was analyzed using NVivo 11.0. Findings This study identified work routines and situation of the Specialized Palliative Care Team that had a potential for eliciting placebo effects. The value of patient collaboration for the creation of placebo effects was identified by members of the Specialized Palliative Care Team. The team’s knowledge and attitudes concerning placebo reflect the confusion that exists in general in this area. Conclusions This study found several work routines, already in use by the Specialized Palliative Care Team, well known for creating placebo effects. Increased knowledge and focus on this phenomenon may benefit patients.
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Patinadan, Paul Victor, Geraldine Tan-Ho, Ping Ying Choo, Casuarine Xinyi Low, and Andy Hau Yan Ho. "‘Food for Life and Palliation (FLiP)’: a qualitative study for understanding and empowering dignity and identity for terminally ill patients in Asia." BMJ Open 11, no. 4 (April 2021): e038914. http://dx.doi.org/10.1136/bmjopen-2020-038914.
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ObjectivesWith ‘eating’ posited as Singapore’s domestic pastime, food experiences for Singaporeans constitute national, social, ethnic and personal identities. However, though they form significant parts of Singaporean existence across the lifespan, studies and observations about food experiences for individuals at the end of life remain noticeably absent. Extant literature continues to focus on nutritional practice during illness and the active dying process, forgoing the rich lived experiences of food in the lives of patients and their families. The current work sought to qualitatively extricate through a constructivist phenomenological approach, the ‘food voices’ of Singaporean palliative care patients and their families. It also simultaneously aimed to assess the role of food in bolstering their subjective feelings of dignity and identity, while also considering resultant clinical implications.SettingHomes of patients within the Singaporean palliative care setting.ParticipantsA subset of qualitative data (n=25) in the form of dyadic interviews with terminally ill patients and a family caregiver was generated from a larger family dignity intervention study that explored the experience of living and dying among Asian palliative care patients and their families.ResultsFramework analysis with both inductive and deductive approaches informed by the a priori domain of food resulted in the generation of four major themes, each with three subthemes. These were organised into the Food for Life and Palliation model. They include: (1) feeding identity and familial bonds, (2) liminal subsistence in illness transition, (3) food becoming lineage, and (4) compassionate nourishment.ConclusionsClinical implications are considered; including food-focused interventions that enhance dignity, promote meaning-making and facilitate legacy construction. Developmental suggestions are also directed at industry partners producing end-of-life nutrition products.
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Oguagha, Ashleigh Chinelo, and Nickesha Joan Lambert. "Evaluating Medicare Performance: Perceptions of Performance Pre- and Post- ACA." World Journal of Social Science 7, no. 2 (April 26, 2020): 28. http://dx.doi.org/10.5430/wjss.v7n2p28.
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Medicare is a national single-payer system that provides health coverage for the elderly, disabled, and terminally ill in the United States. Rising enrollment, costs, and decreases in financing options may affect the way Medicare performs. This study aimed to investigate participants’ perceptions of Medicare performance before and after the Affordable Care Act. A 3-part questionnaire was created and validated for use in this study. Respondents affiliated with several social work agencies were invited via email to participate in this study. 287 out of 519 invited questionnaires were used in data analyses. 27.5% of respondents reported being currently enrolled in Medicare, while 33.2% reported lifetime enrollment. Overall, retired/disabled, elderly and low-income participants reported currently or ever using Medicare. One’s perception of Medicare performance was determined by their status as a Medicare beneficiary. Medicare service efficacy was rated more positively over-time by current and life-time enrollees; additionally, Medicare performance was determined to be better in 2013 than in 2009. Ultimately, this study showed that health service and financial fairness factors are indicative of Medicare performance. Additional research should explore possible implications for the healthcare field as well as formulate a broad range of possible management and/or improvement strategies. Lastly, differences in performance across years can inform decision-makers and bolster the fundamental foundation of health policies at the state and national level.
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Gray-Toft, Pamela A., and James G. Anderson. "Sources of Stress in Nursing Terminal Patients in a Hospice." OMEGA - Journal of Death and Dying 17, no. 1 (August 1987): 27–39. http://dx.doi.org/10.2190/t7f3-07bl-1qnr-8br4.
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A study was undertaken in the hospice unit at a large, midwestern community hospital to investigate the sources of stress experienced by hospice nurses. The case material reported in this article is based on observations, interviews with nurses, written stressful incident reports completed by nurses, and support group discussions. A number of sources of stress experienced by hospice nurses are identified. Physical characteristics of the unit as well as staffing policies designed to improve the quality of care resulted in conflict and feelings of alienation from other hospital personnel. Procedures followed in admitting patients to the hospice created stress when they were not fully supported by hospital administrators and physicians. Other policies related to the preparation of meals and open visitation increased the nurse's work load. At the same time, greater involvement with the patient and family during the dying process resulted in increased emotional demands on the nurse. Nurses experienced a sense of loss when a patient they had grown attached to died or was discharged to another institution. Stress also resulted from the nurse's exclusive involvement with terminally ill patients. Continual involvement with dying patients precipitated anxiety and superstitions concerning the nurse's own vulnerability and was particularly stressful when the nurse had experienced the death of someone close to her outside of the hospital.
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Beltran, Susanny, Norma Conner, Adam Reres, and Morris Beato. "NURSING HOME STAFF’S PERCEPTIONS AND EXPERIENCES COLLABORATING WITH HOSPICE." Innovation in Aging 6, Supplement_1 (November 1, 2022): 677–78. http://dx.doi.org/10.1093/geroni/igac059.2491.
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Abstract Hospice has been associated with improved outcomes for terminally-ill patients and families, including in pain management, care satisfaction, and rates of hospitalizations. In 2016, 1/3 of Medicare hospice beneficiaries died in nursing homes (NH). The responsibilities for meeting the needs of the NH resident receiving hospice are shared by the NH staff and hospice team, making good communication and coordination of services between providers critical to the successful delivery of services. This exploratory study surveyed NH direct care and administrative staff about their perceptions of hospice, and barriers to collaboration. A total of 66 NH staff completed the online survey. The sample was 62.1% direct care staff (e.g., social work, nursing) and 37.8% administrators, predominately female (75%), non-Hispanic-white (43.9%), and employed full-time (87.8%). Over half of the NHs were non-profit organizations (56.1%). Respondents had on average 33.8 hours of hospice education and held positive hospice attitudes, with 76% strongly agreeing that hospice should be an option regardless of setting, and 87.8% believing they could collaborate with hospice toward the goal of a “good death.” Although participants cited barriers to hospice related to COVID-19, this was not associated with overall hospice attitudes. Respondents cited resistance from family as the primary barrier to hospice, indicating lack of knowledge and a need for family education. They also cited concerns surrounding duplication of roles. Family members in previous studies have identified care allocation as a challenge, based on expectations that hospice would bring additional contact/services instead of replacing NH services. Implications will be discussed.
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Butkevičienė, Rūta, Jolanta Kuznecovienė, David Harrison, Eimantas Peičius, Gvidas Urbonas, Kristina Astromskė, and Ramunė Kalėdienė. "Being Heard: A Qualitative Study of Lithuanian Health Care Professionals’ Perceptions of Dignity at the End-of-Life." Medicina 57, no. 12 (December 1, 2021): 1318. http://dx.doi.org/10.3390/medicina57121318.
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Background: The literature on professionals’ perceptions of dignity at the end-of-life (EOL) shows that there is a need for studies set in different cultural contexts. Lithuania represents one of these little-studied contexts. The aim of this study is to understand professionals’ attitudes, experiences, and suggestions concerning EOL dignity to provide knowledge upon which efforts to improve EOL care can be grounded. The research questions are “How do Lithuanian health care professionals understand the essence of dignity at the end-of-life of terminally ill patients?” and “How do they believe that dignity at the EOL can be enhanced?”. Materials and Methods: The study was exploratory and descriptive. It employed an interpretive phenomenological method to understand the essence of the phenomenon. Lightly structured interviews were conducted with professionals who had EOL experience, primarily with elderly and late middle-aged patients. from medicine, nursing, social work, and spiritual services. The interviews were primarily conducted by audiovisual means due to pandemic restrictions. Using a constant comparative method, the research team systematically codified text and developed themes by consensus after numerous analytic data iterations. Results: Four primary themes about EOL dignity were identified: Physical Comfort, Place of Care and Death, Effects of Death as a Taboo Topic, and Social Relations and Communication. A fifth, overarching theme, Being Heard, included elements of the primary themes and was identified as a key component or essence of dignity at the EOL. Conclusions: Patient dignity is both a human right and a constitutional right in Lithuania, but in many settings, it remains an aspiration rather than a reality. Being Heard is embedded in internationally recognized patient-centered models of EOL care. Hearing and acknowledging individuals who are dying is a specific skill, especially with elderly patients. Building the question “Is this patient being heard?” into practice protocols and conventions would be a step toward enhancing dignity at the EOL.
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Winzent-Oonk, Shelby, Chelsea Vallejos, Molly Hemenway, Holly B. Lindsay, and Adam L. Green. "PALC-03. MEDICAL AID IN DYING: EXPERIENCE IN THE CENTER FOR CANCER AND BLOOD DISORDERS AT CHILDREN’S HOSPITAL COLORADO." Neuro-Oncology 26, Supplement_4 (June 18, 2024): 0. http://dx.doi.org/10.1093/neuonc/noae064.703.
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Abstract BACKGROUND Medical Aid in Dying (MAiD) is now legal in 10 US states and Washington, DC, allowing terminally ill patients to self-administer medications to peacefully end their life. There is little published on pediatric hospitals’ approach to young adult patients requesting MAiD. METHODS We review the two patients who have participated in MAiD at the Center for Cancer and Blood Disorders at Children’s Hospital Colorado (CHCO). We also explore publicly available Colorado MAiD statistics. RESULTS Between 2017 and 2022, there have been 1,090 prescriptions written for MAiD medication in Colorado, 5 of which were for patients aged 18-34 (0.5%). Two of these patients were treated at CHCO. Patient A was a 26 year old male with a CNS non-germinomatous germ cell tumor whose treatment was complicated by mucormycosis and severe engraftment syndrome. He relapsed 23 months after completing therapy. He had neurologic decline including ataxia and blindness, at which time he requested MAiD. Patient B was a 24 year old male with multiply recurrent IDH-mutant medullary high grade glioma. With metastatic progression, he had many tumor-related symptoms including dysphagia, dysarthria, and weakness impacting his activities of daily living, so he requested MAiD. Both patients had multidisciplinary care conferences with neuro-oncology, social work, ethics, psychology, and palliative care. After completing psychological evaluation and all steps required by law, they were prescribed DDAMP2 (digoxin 50 mg, diazepam 1 gram, morphine 15 grams, and propranolol 2 grams). Both patients took the medications and died peacefully. Barriers encountered included infrequency of MAiD requests leading to unclear policies and processes. CONCLUSIONS Young adults represent a small but important subset of those seeking MAiD prescriptions. Despite challenges, patients were able to receive MAiD without delay in a compassionate manner. Our experience may be applicable to other pediatric hospitals facing these requests.
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Gauba, Anu. "PSYCHOLOGICAL ISSUES WITH TERMINALLY ILL PATIENTS." International Journal of Advanced Research 11, no. 12 (December 31, 2023): 309–10. http://dx.doi.org/10.21474/ijar01/17988.
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Terminally ill patients may be sophisticated and/or demanding health care consumers they also may be bitter, cynical, and difficult to engage in conversation. Terminally ill patients often are on complicated drug regimens requiring detailed instruction and monitoring. Treat terminally ill patients with respect and work with them to achieve optimal therapeutic efficacy within the complexities of their illnesses and the health care environment. Terminally ill patients may need help dealing withcomplex medication regimens. Terminally ill patients need close monitoring and reassurance about their medication regimens. Some terminally ill patients require large and frequent doses of narcotics work with the patient and the patient’s family to legitimize the use of these medications and minimize the hassles associated with obtaining narcotics.
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Mora, María Carolina Saenz, and María Claudia Vargas Calderón. "Psychotherapeutic intervention in the modality of emotional support network with family members of cancer patients as part of the service of a hospital oncology center." South Florida Journal of Health 2, no. 3 (September 3, 2021): 353–60. http://dx.doi.org/10.46981/sfjhv2n3-005.
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The main objective of this research – intervention is focused on promoting the description and characterization of a network of emotional support as a psychotherapeutic model at a cancer hospital setting, led to the relatives of those who are experiencing the phenomenon of cancer.
To carry out the work, use was made of the constructionist approach systemic - constructivist, which allowed not only the construction of interactional contexts with the people involved, but also the generation of an experiential and symbolic process of research on the phenomenon. From there, they facilitated understanding, hermeneutics from the perspective the way in which people who had experienced the phenomenon of cancer, senses and social meanings built, family and therapeutic about the different actions in the cancer experience.
The research - intervention, took in to consideration the look narrative is based on different epistemological and paradigmatic early systemic perspective. It was conducted at the Hospital of San Ignacio, taking in to account the parameters of research that establishes the Pontificia Universidad Javeriana through the Masters in clinical psychology with systemic approach.
Seven conversational narrative scenarios as a support network in which fourteen people, relatives of terminally ill patients and were related Javeriano Cancer Center participated were conducted.
Qualitative research and study methodology, from which an experiential, subjective and contextual analysis of the experiences of each person is allowed intervention was used,
- to carry out the investigation process. From there, the being able to pick up the different versions of the way in which people lived and meant the phenomenon of cancer, made possible the construction and reconstruction of identity processes of each of the participants, including investigating - intervening in where the therapeutic conversational scenarios, became a process of co-construction of realities and identities.
As results evidenced how different family systems able to configure a world of meanings and directions about faith, spirituality and family unity as resilient resources in building worlds from the experience hopeful about cancer phenomenon, taking in to account the organization and reorganization of family dynamics to face a critical moment of life as is the terminal disease one of its members, resulting in drastic changes of meanings, interactions, feelings and painful feelings in the way of a process Hospital.
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Seetharamu, Nagashree, Hilary Y. Ma, Robert Smeltz, Jessica Schindewolf, Mariam Empalmado, and Susan E. Cohen. "Medical repatriation at end of life: Barriers, facilitation, and fulfillment—A case-series study at a New York public hospital." Journal of Clinical Oncology 32, no. 31_suppl (November 1, 2014): 141. http://dx.doi.org/10.1200/jco.2014.32.31_suppl.141.
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141 Background: Foreign-born cancer patients frequently desire to return to their home country at the end of life. However, many barriers can make this process challenging. We herein present our recent experience with such patients. Methods: We reviewed charts of terminal cancer patients (pts) who traveled to their homeland at the end of life. Pts’ age, diagnoses, co-morbidities, prior cancer-directed treatment, predicted survival, symptoms, code status, admissions within 4 weeks of travel, oxygen need were noted. Interval between decision to travel and travel date, events during travel, and feedback from families, if available were collected. Results: 17 charts (11 female, 6 male) were analyzed. Mean age was 60 years and the most common diagnosis was thoracic malignancy (70%, 12 pts). All pts had disseminated cancer and had received an average of 2 lines of cancer-directed therapy. All had progressive cancers with expected survival <6 months. All were under the care of medical oncologists, palliative care and social work. The mean interval between decision to travel and travel date was 9 days. 8 were hospitalized at least once in the 4 weeks prior to the day of travel and 6 were cared for as inpatients immediately prior to travel. 11 pts were receiving opioids for pain and 3 were oxygen-dependent. 10 had documented discussions regarding resuscitation and 9 were discharged with New York State out-of –hospital DNR forms. All were discharged with medical records, medication supply and provider contact information. Mean travel distance was 4,099 miles. Provider concerns for decompensation during travel included brain herniation (2), spinal cord compression (3), bleeding (1), and sepsis (2). 16 pts successfully completed their journey. 1 pt died en-route prior to boarding the aircraft. 12 pts/families provided positive feedback about the experience. Conclusions: Return to homeland is an important goal for many terminally ill cancer pts and should be a routine part of end-of-life discussions. Medical repatriation can be accomplished when conducted in a planned, well-coordinated manner. Insights from this review can help us create guidelines that can be readily applied to specific scenarios.
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Jansen, Lynn A., Steven Wall, and Franklin G. Miller. "Drawing the line on physician-assisted death." Journal of Medical Ethics 45, no. 3 (November 21, 2018): 190–97. http://dx.doi.org/10.1136/medethics-2018-105003.
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Drawing the line on physician assistance in physician-assisted death (PAD) continues to be a contentious issue in many legal jurisdictions across the USA, Canada and Europe. PAD is a medical practice that occurs when physicians either prescribe or administer lethal medication to their patients. As more legal jurisdictions establish PAD for at least some class of patients, the question of the proper scope of this practice has become pressing. This paper presents an argument for restricting PAD to the terminally ill that can be accepted by defenders as well as critics of PAD for the terminally ill. The argument appeals to fairness-based paternalism and the social meaning of medical practice. These two considerations interact in various ways, as the paper explains. The right way to think about the social meaning of medical practice bears on fair paternalism as it relates to PAD and vice versa. The paper contends that these considerations have substantial force when directed against proposals to extend PAD to non-terminally ill patients, but considerably less force when directed against PAD for the terminally ill. The paper pays special attention to the case of non-terminally ill patients who suffer from treatment-resistant depression, as these patients present a potentially strong case for extending PAD beyond the terminally ill.
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Boycheva, Tsvetka, and Mariya Dimitrova. "PROBLEMS OF FAMILIES WITH TERMINALLY ILL." Knowledge International Journal 28, no. 2 (December 10, 2018): 603–11. http://dx.doi.org/10.35120/kij2802603b.
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In recent decades, there has been a growing public interest in palliative care. This is dictated by the ever increasing number of people who need it. With advances in medical science and the development of new technologies, life expectancy has increased, but at the same time, the number of years spent in illness and suffering has increased. Still, death is not defeated, but pain and suffering can be relieved, and the quality of life of the terminally ill and their families can be improved. Palliative care is overwhelming. They target the patient and his family. They meet the psychic, social, spiritual and cultural needs of the patient, provide training and support to relatives. The family is a social institution that ensures the biological and social continuity of the human race. There is a correlation between it and health. Today it is impossible to function and develop properly without providing optimal health to its members. Diseases of a family member adversely affect his or her functions. Reproductive, economic and psycho-emotional function is impaired. A home is a place where one lives fully and most people prefer their care to be done at home. The needs of patients in need of palliative care are specific. Apart from a health problem, they also have spiritual, social and mental needs. The most frequent care of these patients is taken by a relative or a family member. In most cases, they lack the necessary skills, resources and time. This clearly shows that the quality of life of these patients and their families is not guaranteed. The purpose of this study is to find out what influence has the care of terminally ill on his family. The subject of the study is 602 persons, close to terminally ill in 30 medical institutions in the country. Within a six-month period from 01.11.2017 to 30.04.2018. With the help of a direct individual survey, how the care of the terminally ill is reflected in his family was identified. Statistical methods for data processing and analysis were used. Results: The family is experiencing great stress when there is a severely sick patient in it. The lifestyle of the whole family is changing. Negative emotions accumulate and social contacts are disturbed. Economic and social difficulties, lack of time and lack of knowledge and skills are major problems in families with patients in need of palliative care. Respondents want to participate in training for the care of the sick, need professional help and support to ensure a better quality of life for their close and normal family functioning.
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Lucas, Monica Ann. "Praying with the Terminally Ill." Journal of Health Care Chaplaincy 6, no. 1 (October 31, 1994): 61–71. http://dx.doi.org/10.1300/j080v06n01_06.
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KELLY, B., P. BURNETT, D. PELUSI, S. BADGER, F. VARGHESE, and M. ROBERTSON. "Factors associated with the wish to hasten death: a study of patients with terminal illness." Psychological Medicine 33, no. 1 (December 23, 2002): 75–81. http://dx.doi.org/10.1017/s0033291702006827.
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Background. There is considerable debate regarding the clinical issues surrounding the wish to hasten death (WTHD) in the terminally ill. The clinical factors contributing to the WTHD need further investigation among the terminally ill in order to enhance understanding of the clinical assessment and treatment needs that underlie this problem. A more detailed understanding may assist with the development of appropriate therapeutic interventions.Method. A sample of terminally ill cancer patients (N=256) recruited from an in-patient hospice unit, home palliative care service and a general hospital palliative care consulting service from Brisbane Australia between 1998–2001 completed a questionnaire assessing psychological (depression and anxiety), social (family relationship, social support, level of burden on others) and the impact of physical symptoms. The association between these factors and the WTHD was investigated.Results. A high WTHD was reported by 14% of patients. A discriminant function analysis revealed that the following variables were associated with a high WTHD (P<0·001): higher levels of depressive symptoms, being admitted to an in-patient hospice setting, a greater perception of being a burden on others, lower family cohesion, lower levels of social support, higher levels of anxiety and greater impact of physical symptoms.Conclusions. Psychological and social factors are related to a WTHD among terminally ill cancer patients. Greater attention needs to be paid to the assessment of psychological and social issues in order to provide appropriate therapeutic interventions for terminally ill patients.
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Stephany, Theresa M. "Nutrition for the Terminally Ill." Home Healthcare Nurse: The Journal for the Home Care and Hospice Professional 9, no. 3 (May 1991): 48–49. http://dx.doi.org/10.1097/00004045-199105000-00017.
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Addington, Thomas, and Jeanne Wegescheide-Harris. "Ethics and Communication With the Terminally Ill." Health Communication 7, no. 3 (July 1995): 267–81. http://dx.doi.org/10.1207/s15327027hc0703_5.
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Carranza Jimenez, Xiomara, Jeanette Choque Vargas, Patricia Rafaela Soledad Ortega Medina, and Soledad Maidana Victoria. "Death: between the individual and the social." Community and Interculturality in Dialogue 3 (December 31, 2023): 118. http://dx.doi.org/10.56294/cid2023118.
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This paper discusses the concept of death and its various types, focusing on how death affects terminally ill nurses. The importance of understanding and managing emotions related to death in nursing practice is explored. Types of death such as natural, apparent, sudden, violent, suicide, homicide, accidental death, and assisted suicide are discussed. The paper reflects on the universal fear of death and how this fear can influence the pursuit of achievement to counteract distress, often leading to an anxious race against time without enjoying achievement. The importance of recognizing and addressing death-related fears and emotions in nursing staff to provide high quality care to terminally ill patients and their families is highlighted. It is highlighted that, despite the inevitability of death in nursing practice, nursing professionals are not always emotionally prepared to deal with death. It is mentioned that the dying process not only affects nurses in their professional lives but also impacts their personal lives. The need to provide adequate support and resources to help nurses cope with the complex emotions associated with the death of patients is highlighted. In conclusion, this paper highlights the importance of addressing the issue of death in nursing practice, recognizing the need for emotional support and training for nursing professionals. The need for more compassionate and dignified care in the process of caring for terminally ill patients is emphasized.
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Chung, Jin Young, and Steven Simpson. "Social tourism for families with a terminally ill parent." Annals of Tourism Research 84 (September 2020): 102813. http://dx.doi.org/10.1016/j.annals.2019.102813.
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Бочарникова, Ирина Станиславовна. "EUTHANASIA - A CHOICE BETWEEN DEATH AND DEATH (THE VIEW OF EUROPE AND RUSSIA)." Вестник Адыгейского государственного университета, серия «Регионоведение», no. 3(284) (January 13, 2022): 37–43. http://dx.doi.org/10.53598/2410-3691-2021-3-284-37-43.
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В современном научном дискурсе появляется много интересных тем, рассматривающих самые острые проблемы социума, и одна из них - табуированная тема - эвтаназия. Эта проблема носит междисциплинарный характер. Философы, в рамках биоэтики, осмысливают нравственные аспекты, психологи «решают» дилемму «хорошо/плохо», «убийство/самоубийство/гуманный акт помощи», юристы прорабатывают нормативно-правовые акты по защите, зачастую трудносовместимых, прав пациентов/врачей/выгодополучателей, медики, сталкиваясь с «невыносимой физической и психологической болью» пациентов и близких родственников, предлагают свои варианты решения проблемы, физики, химики, генетики не остаются в стороне, развивая нейротехнологии, регенеративную медицину, фармакологию, био- и генные технологии. Политики, разворачивая широкие дискуссии о морально-этической стороне этого вопроса, российском традиционализме, либеральных ценностях, устраивая политические дебаты, разрабатывают дивиденды. Социологи, рассматривая эту социальную проблему, замеряют «градус общественного мнения». Общество, как живой сложносоставной организм, опираясь на свои ментальные программы, реагирует по-разному: от полного неприятия («человеческая жизнь - божественный дар») до однозначной легализации процедуры «достойной смерти, качественной смерти». Одна из важных проблем медицинского профессионального сообщества - проблема обеспечения «достойной смерти» неизлечимо больных пациентов и связанная с ней проблема эвтаназии. Мнение полярно. На понимание медиками проблем легализации эвтаназии оказывают влияние разновекторные факторы: во-первых, ценностные установки, во-вторых, опыт и место работы (врачи паллиативных отделений, хосписов, онкологи, имеющие большой стаж работы, более склоны к легализации эвтаназии), в-третьих, техническое, технологическое, фармакологическое обеспечение медицинского учреждения, в-четвертых, нормативно-правовая составляющая. Many interesting topics appear in the modern scientific discourse. They consider the most acute problems of society and one of them is a taboo topic - euthanasia. This problem is of an interdisciplinary nature. Philosophers within the framework of bioethics comprehend the moral aspects. Psychologists "solve" the dilemma of "good/bad", "murder/suicide/humane act of assistance". Lawyers are working on regulatory legal acts to protect the rights of patients/doctors/beneficiaries, which are often difficult to replace. Doctors, facing the "unbearable physical and psychological pain" of patients and close relatives, offer their own solutions to the problem, physicists, chemists, geneticists do not stay away, developing neurotechnologies, regenerative medicine, pharmacology, bio and gene technologies. Politicians also do not stand aside, unfolding broad discussions, arranging political debates, developing dividends. Sociologists considering this social problem measure the "degree of public opinion". Society as a living complex organism relying on its mental programs reacts in different ways: from complete rejection to legalization of this procedure. One of the important problems of the medical professional community is the problem of ensuring a “dignified death” of terminally ill patients and the related problem of euthanasia. The opinion of doctors is polar. Doctor`s understanding of the problems of legalizing euthanasia is influenced by various factors: firstly, values, secondly, experience and place of work (doctors of palliative departments, hospices, oncologists with long work experience are more inclined to legalize euthanasia), thirdly, technical, technological, pharmacological support of a medical institution, and fourthly, the regulatory component
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Rosokhata, Anna, Adam Jasnikowski, Yelizaveta Yatskova, Victoriia Kurylo, and Anastasiia Samoilenko. "Problems of Palliative and Hospice Care in Territorial Communities as a Part of Place Branding." Health Economics and Management Review 3, no. 1 (2022): 39–50. http://dx.doi.org/10.21272/hem.2022.1-05.
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In the EU, palliative care is a comprehensive system of patient support: social, psychological, spiritual and, of course, medical care. How it works in other countries and what the experience should be applied so that children in Ukraine can not only adequately anesthetize, but also not violate their rights. These and a number of other issues and challenges today are highlighted in this study. The object of research is palliative and hospice care.The research was preceded by the following questions: to analyze current problems of palliative and hospice care in Ukraine and the world; to analyze the regulatory and legal support for palliative care in Ukraine; to study statistical data on the need for palliative and hospice care in Ukraine and local communities; to conduct a survey of residents of the united territorial communities on their awareness of palliative and hospice care and its needs in communities; develop recommendations for the implementation of modern methods of palliative care for residents of united territorial communities. The analysis examined the experience of European countries in this issue and the challenges facing Ukraine. The legal framework governing the provision of palliative care to terminally ill patients in Ukraine was analyzed. A representative survey was conducted on public awareness of the provision of palliative and hospice care to patients among the population of Sumy region. 150 respondents took part in the survey: 33% of women and 67% of men. According to the results of the research, hypotheses about the problems and needs of hospice and palliative care were confirmed. It has been found that the elderly and people with incurable diseases need it the most, and most agree that such people should be cared for in special institutions that need to be formed at the level of territorial communities. Which in turn has a significant impact on the place brand formation due to the stakeholders involvement. As a result of the study, proposals were presented to address current issues of palliative and hospice care in Ukraine, using the experience of EU countries and the implementation of it through the efforts of local communities, which in turn forms the brand of the place.
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COHEN, S. TZIPORAH, and SUSAN BLOCK. "Issues in psychotherapy with terminally ill patients." Palliative and Supportive Care 2, no. 2 (June 2004): 181–89. http://dx.doi.org/10.1017/s1478951504040246.
Full textAbstract:
Psychotherapy with the terminally ill poses special challenges for clinicians and in return offers unique rewards. As a time limited therapy, acceptance, rather than change is a primary goal; yet, patients can be strongly motivated to change. Patients may need to struggle with how to disengage while also maintaining connection. Unique transference and countertransference issues arise. The psychological tasks of dying include grieving, saying goodbye, constructing a meaningful context to one's life, and letting go. The therapist can serve as a companion and guide to the dying person as she or he negotiates these tasks. Through the use of a case example, these issues are explored from the perspectives of patient and therapist. The therapist must address the following issues: attending to physical suffering, differentiating between grieving and depression, addressing fears, facilitating the life review, and assisting in decision making. A dying patient's need to leave a legacy, complete relationships, grapple with spiritual and religious issues, and attend to his or her family, are often important themes. Therapists must work productively with denial, maintain flexible yet appropriate boundaries, grapple with their own anxiety about death, and grieve the loss of their patients. Psychotherapy with dying patients can help reduce their psychological pain, relieving psychosocial distress and providing opportunities for personal growth in the last stage of life. Such work is often draining yet immensely rewarding for the patient and therapist alike.
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Smith, Douglas C., Wilma Richards, and Michael Forrest Maher. "Metaphoric Language: Palliation for the Terminally Ill." Illness, Crisis & Loss 2, no. 4 (October 1992): 38–44. http://dx.doi.org/10.2190/il2.4.g.
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Stone, P., and C. Phillips. "Nutrition, dehydration and the terminally ill." Journal of Medical Ethics 21, no. 1 (February 1, 1995): 55. http://dx.doi.org/10.1136/jme.21.1.55.
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