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Дисертації з теми "Spina bifida"

Автор: Grafiati

Опубліковано: 4 червня 2021

Оновлено: 25 липня 2025

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1

Stenson, Camilla. "Cognitive deficits in spina bifida." Thesis, Högskolan i Skövde, Institutionen för biovetenskap, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-11500.

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Spina bifida myelomeningocele (SBM) is the most common and severe type of spina bifida which is a neural tube defect (NTD). Additionally to the defect of the spinal cord most cases of SBM develop an Arnold-Chiari-II malformation, which is the main reason behind the common development of hydrocephalus. Children with SBM have a rather different cognitive profile than typically developing children. Hence, this thesis reviews the neurological impact on the cognitive profile and its relation to the social impairments found for this population. The Arnold-Chiari-II malformation is a malformation of

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2

Radke, Roswitha. "Lebensbilder von Menschen mit Spina bifida /." Hamburg : Kovač, 2009. http://d-nb.info/992158591/04.

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3

Hammond, Jacqueline. "Children's understanding and experience of spina bifida." Thesis, University of East London, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.532438.

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This thesis reports a study which explored children's understanding and experience of spina bifida. Semi-structured interviews were conducted with 8 children aged 8-11 years with spina bifida. A grounded theory approach was used to develop 'theories' from the data. Analysis of the data suggest that all participants were aware of 'being different' from their "normal" able-bodied siblings and peers and that many identified themselves in terms of having spina bifida; they spoke about being picked on, teased and about other types of bullying; and all of them disliked their physical appearance. Sev

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4

Gaston, Hannah. "Ophthalmic complications of spina bifida and hydrocephalus." Thesis, University of Southampton, 1986. https://eprints.soton.ac.uk/209759/.

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This thesis represents an attempt to further our knowledge of the ophthalmic complications of spina bifida and hydrocephalus by means of literature review and a long term clinical study, and to determine whether regular ophthalmic supervision can assist in the general management of affected children. The ophthalmic complications of spina bifida have often been reported in the literature and thought to merit regular supervision of affected children, yet few centres currently offer this service. In this study 322 children attending one regional centre were examined repeatedly over a six year per

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5

Smuts, Elaine. "'n Narratiewe lewensgeskiedenis oor die manifestasie van bates by 'n kleuter met spina bifida mielomeningoseel." Pretoria : [s.n.], 2004. http://upetd.up.ac.za/thesis/available/etd-03152005-115827.

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6

Wood, David L., Brandon Rocque, Betsy Hopson, Katherine Barnes, and Kiana Johnson. "Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) Module predicts clinical outcomes among youth and young adults with Spina Bifida." Digital Commons @ East Tennessee State University, 2019. https://doi.org/10.3233/PRM-180595.

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PURPOSE: In order to transition to adulthood and independence, youth with spina bifida must assume significant self-management responsibilities including monitoring for shunt malfunction, maintaining intact skin in areas that are insensate, and maintaining proper bowel and bladder function. Validated measures of specific spina bifida self-management skills are lacking and this hampers the ability of clinical personnel to support successful transition for youth with spina bifida. METHODS: We developed a self-report measure specific to SB self-management skills consistent with the framework of t

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7

Hunt, Gillian Mary. "Forty years of research on open spina bifida." Thesis, University of Cambridge, 2012. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.609968.

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8

Valland, Marianne. "Befragung zur Lebenssituation von Patienten mit Spina bifida /." Köln, 2008. http://opac.nebis.ch/cgi-bin/showAbstract.pl?sys=000253958.

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9

Pearson, Althea Mary. "The self concept of adolescents with spina bifida." Thesis, University College London (University of London), 1985. http://discovery.ucl.ac.uk/10020161/.

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10

Banda, Faith. "Physiotherapy management of spina bifida in Lusaka, Zambia." University of the Western Cape, 2016. http://hdl.handle.net/11394/5073.

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Magister Artium - MA<br>Background: Spina Bifida (SB) is one of the leading causes of disability in children globally. Its management in Sub-Saharan countries is quite challenging and has shown to be an expensive public health problem. A recent study on SB has shown that physiotherapy is poorly utilised in Zambia. Although it is very cardinal in the rehabilitation of children right from birth, very little is known on the role of physiotherapy in the management of children with SB. Aim: To investigate the role of physiotherapy in the management of SB patients both at the University Teaching Hos

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11

VERMOREL, PHILIPPE. "Vivre avec un spina : auto-observation." Lyon 1, 1990. http://www.theses.fr/1990LYO1M351.

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12

Thibadeau, Judy, Matthew R. Reeder, Jennifer Andrews, et al. "Understanding the Natural Progression of Spina Bifida: Prospective Study." JMIR PUBLICATIONS, INC, 2017. http://hdl.handle.net/10150/626441.

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Background: Spina bifida (SB) is monitored through birth defects surveillance across the United States and in most developed countries. Although much is known about the management of SB and its many comorbid conditions in affected individuals, there are few systematic, longitudinal studies on population-based cohorts of children or adults. The natural history of SB across the life course of persons with this condition is not well documented. Earlier identification of comorbidities and secondary conditions could allow for earlier intervention that might enhance the developmental trajectory for

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13

Lemelle, Jean-Louis. "Spina bifida, continence et qualité de vie : étude multicentrique." Nancy 1, 2006. http://www.theses.fr/2006NAN11313.

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14

Paal, Andrea M. "Parents' Informational Needs Following Prenatal Diagnosis of Spina Bifida." University of Cincinnati / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1276976280.

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15

PEACH, ELIZABETH ELAINE. "MATERNAL PSYCHOLOGICAL BENEFIT OF PRENATAL REPAIR FOR SPINA BIFIDA." University of Cincinnati / OhioLINK, 2001. http://rave.ohiolink.edu/etdc/view?acc_num=ucin996076806.

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16

Halliday, Melissa Ann. "Narrative Skills in Children with Spina Bifida and Hydrocephalus." Diss., CLICK HERE for online access, 2007. http://contentdm.lib.byu.edu/ETD/image/etd1943.pdf.

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17

Sullivan, Regina. "The Relationship between Ventriculoperitoneal Shunts and Shunt Revisions versus Visual Complaints among Patients with Spina Bifida in the Arkansas Spina Bifida Research Project." Digital Archive @ GSU, 2012. http://digitalarchive.gsu.edu/iph_theses/231.

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Анотація:

Many patients with Spina Bifida suffer from hydrocephalus as a complication of their developmental disability and surgeons commonly treat this condition with ventriculoperitoneal shunts. Surgeons have speculated for years that these shunts may cause some type of visual disturbance because of their close proximity to the visual pathways in the brain. Little research has been done, however, to support or discourage this commonly held belief. Questions and data from the Arkansas Spina Bifida Research Project were used to examine whether ventriculoperitoneal (VP) shunts and VP shunt revisions incr

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18

Patterson, Victoria Louise. "Characterisation of hitchhiker, a novel mouse mutant with spina bifida." Thesis, University of Oxford, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.560907.

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Neural tube defects are a set of developmental malformations which can be highly debilitating, with limited treatment available. Mouse mutants exhibiting neural tube defects are studied to identify processes promoting proper neural tube closure, and potential points of intervention for future therapies. This thesis characterises the mouse mutant hitchhiker (hhkr), a hypomorphic allele of Tulp3 which presents with neural tube defects and polydactyly. The spina bifida and exencephaly observed in hhkr mutants are demonstrated to be consequences of failure of neural tube closure, and excessive pro

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19

Awwad, Fuad A. A. "External imprecise covariates in an epidemiological study of environmental lead and neural tube defects." Thesis, Lancaster University, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.286981.

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20

BISMUTH, ALINE. "La prise en charge globale du spina bifida : a propos de 20 observations." Aix-Marseille 2, 1988. http://www.theses.fr/1988AIX20083.

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21

Radke, Roswitha. "Lebensbilder von Menschen mit Spina bifida, offenem Rücken "Ich hatte ja bisher kein langweiliges Leben"." Hamburg Kovač, 2008. http://d-nb.info/992158591/04.

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22

Wai, Eugene Kenneth. "The relationship between spinal deformity and physical disability in children with spina bifida and scoliosis." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape8/PQDD_0005/MQ45922.pdf.

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23

Moorcroft, Preston Fenner. "The orthopaedic management of spina bifida cystica : the Cape Town experience." Master's thesis, University of Cape Town, 1985. http://hdl.handle.net/11427/26273.

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24

Bremer, Sophia Alice. "Prävalenz von Gastroschisis, Omphalozele, Spina bifida und orofazialen Spaltbildungen bei Neugeborenen im Zeitraum Januar 2000 bis Dezember 2010 in Leipzig, Sachsen, Sachsen-Anhalt und Deutschland." Doctoral thesis, Universitätsbibliothek Leipzig, 2017. http://nbn-resolving.de/urn:nbn:de:bsz:15-qucosa-219767.

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Hintergrund: Zahlreiche Studien beschreiben weltweit eine Zunahme angeborener Fehlbildungen. Diese sind in Deutschland die häufigste Todesursache im frühen Kindesalter. Die hier vorliegende Studie untersuchte lokale und nationale Trends der Prävalenz von Gastroschisis, Omphalozele, Spina bifida und orofazialen Spaltbildungen von 2000 bis 2010. Methoden: Die Prävalenz der 4 Fehlbildungen wurde im Zeitraum Januar 2000–Dezember 2010 mithilfe von 4 Datenquellen aus Leipzig, Sachsen, Sachsen-Anhalt und Deutschland untersucht. Ergebnisse: Die Prävalenz der Fehlbildungen betrug im Untersuchungszeitra

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25

LEMIERE, CATHERINE. "Sensibilisation au latex et aux myorelaxants : prevalence dans des populations normales et a risque." Aix-Marseille 2, 1994. http://www.theses.fr/1994AIX20805.

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26

Guigou, Anne. "Constipation et incontinence anale chez le spina bifida : a propos de 79 cas." Lyon 1, 1988. http://www.theses.fr/1988LYO1M212.

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27

Burns, Joanna L. (Joanna Lynn Brannan). "The Psychological Effects of a Therapeutic Camping Experience on First Time Campers with Spina Bifida." Thesis, University of North Texas, 1994. https://digital.library.unt.edu/ark:/67531/metadc279081/.

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Camping has been identified as a resource for educational, therapeutic, and recreational growth. The purpose of this study was to determine the psychosocial effects of a therapeutic camping experience with first time campers with spina bifida. In this study with four first time campers with spina bifida, three areas related to the camp experience were observed and measured: recreation participation, fun/pleasure, and self esteem. Both qualitative and quantitative methods were used, including the Coopersmith Self Esteem Inventory, the Recreation Participation and Fun Inventory, participant and

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28

Bowles, Wendy Lyn School of Social Work UNSW. "Quality of life of adults with spina bifida: an issue of equality." Awarded by:University of New South Wales. School of Social Work, 1996. http://handle.unsw.edu.au/1959.4/17619.

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This thesis explores the quality of life of the first generation of people with spina bifida to reach adulthood. The inquiry was conducted from the social/political approach to disability. From this perspective, disability is viewed as a matter of equality because the problems associated with having a disability are caused by barriers within the social environment. This human rights-based approach underlies much current Australian legislation and government disability policy. The research question was: do adults with spina bifida in New South Wales have the same quality of life as other ad

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29

Yang, Xiu-Ming. "Ultrastructure and histology of pre-spina bifida in the splotch-delayed mouse." Thesis, McGill University, 1988. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=61764.

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30

Murray, Rosemary Amanda. "Pregnant women's decisions about prenatal screening for Down's Syndrome and spina bifida." Thesis, University of Sussex, 2002. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.393209.

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31

Peyronnet, Benoit. "Evaluation multimodale du régime de pression vésicale chez les patients spina bifida." Thesis, Rennes 1, 2019. http://www.theses.fr/2019REN1B031.

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Objectifs : Décrire les spécificités des troubles vésico-sphinctériens des patients spina bifida, leur impact sur la mortalité et l’intérêt d’outils diagnostiques alternatifs à l’urodynamique pour l’évaluation du régime de pression vésicale dans cette population. Méthodes : une cohorte prospective a été utilisée pour décrire les troubles vésico-sphinctériens des patients spina bifida et une étude épidémiologique nationale sur la base PMSI a été effectuée pour évaluer l’implication des causes urologiques sur la mortalité de cette population. Une étude prospective a été menée pour évaluer le rôl

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32

Scriven, Elizabeth H. "DISCOVERING THEMES: DISABILITY IDENTITYDEVELOPMENT AS IT PERTAINS TO PEOPLEBORN WITH SPINA BIFIDA." Antioch University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1559730463371335.

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33

DESFONTAINES, GRUJCIC VERONIQUE. "Syndrome de moelle fixee dans le cadre des myelomeningoceles : etude de 9 cas." Lille 2, 1993. http://www.theses.fr/1993LIL2M172.

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34

Brochard, Charlène. "Le Spina Bifida et dysfonction anorectale : de la clinique à la dysfonction neuroépithéliale." Thesis, Rennes 1, 2018. http://www.theses.fr/2018REN1B029.

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Анотація:

Le Spina Bifida est une maladie congénitale rare due à anomalie de fermeture du tube neural ayant des conséquences physiques et fonctionnelles multiples. La prise en charge des séquelles digestives du Spina Bifida ne fait l’objet d’aucun consensus national ou international. Les objectifs de cette thèse translationnelle étaient de caractériser les plaintes anorectales des patients adultes ayant un Spina Bifida, d’en préciser les mécanismes physiopathologiques sous-jacents à partir des données de la manométrie anorectale et du barostat rectal et en étudiant les fonctions de la barrière épithélia

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35

Duffy, Catherine M. "The energy cost of walking in spina bifida : when does it become unacceptable?" Thesis, Queen's University Belfast, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.263320.

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36

Simms, Barbara Ann. "The learner driver with spina bifida and hydrocephalus : can driving ability be predicted?" Thesis, University College London (University of London), 1991. http://discovery.ucl.ac.uk/10018599/.

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The focus of this thesis is on the possible effects of cognitive deficit on the acquisition of driving skills in young people with spina bifida and hydrocephalus (SBH). The specific question addressed is whether success on the standard Driving Test can be predicted from performance on a battery of psychometric tests. A review of the findings from studies on cognitive deficit and driving and the cognitive functioning of groups with SBH identified the areas of visual-perceptual skill, attention and memory as being of possible relevance in the assessment of suitability for driving. The second par

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37

McCabe, Erin. "Influence of Physically Active Leisure Participation on Obesity in Youth with Spina Bifida." Thesis, University of North Texas, 2004. https://digital.library.unt.edu/ark:/67531/metadc4690/.

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Childhood obesity and resulting secondary complications in youth with disabilities are occurring in epidemic proportions, due in part to a trend of physical inactivity. The purpose of this study is to report the prevalence of overweight, the leisure time activity patterns, and the association between frequency of physically active leisure participation and body mass index for age, in a sample of 50 youth with spina bifida, ages 4.5 to 17.9 years. Results indicate that 52% of the sample are classified as at risk of overweight or overweight; 36% were male and 16% were female. The top five leisu

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38

Cappelli, Mario Carleton University Dissertation Psychology. "Marital interaction of couples with children with Spina Bifida : a case-control study." Ottawa, 1990.

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39

Di, Donato Josephine J. "Factors influencing the health-related quality of life of children with spina bifida." Thesis, Queensland University of Technology, 2001. https://eprints.qut.edu.au/36779/1/36779_Digitised%20Thesis.pdf.

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Health-related quality of life is emerging as an important area of health research as disease-oriented descriptions of health give way to positive concepts. The health-related quality of life of children with spina bifida is often described in terms of the nature and severity of their medical condition. In this thesis it was hypothesised that factors other than their medical condition influences health-related outcomes. In fact, the dependency on medical care services to monitor and manage their condition throughout childhood and beyond was identified as a potential determinant of healthrelate

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40

Wai, EK, Nancy Young, BM Feldman, EM Badley, and JG Wright. "The Relationship Between Function, Self-Perception, and Spinal Deformity: Implications for Treatment of Scoliosis in Children With Spina Bifida." Lippincott, Williams & Wilkins, 2005. https://zone.biblio.laurentian.ca/dspace/handle/10219/143.

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The purpose of this study was to determine the relationship of spinal deformity with physical function and self-perception in children with spina bifida. Ninety-eight eligible children with scoliosis and spina bifida were identified; 80 of them (82%) consented to participate. Spinal deformity was measured in many ways, including scoliosis, coronal balance, and pelvic obliquity. Measures of physical function included the Sitting Balance Scale, Jebsen Hand Scale, Hoffer Ambulation Scale, the Spine Bifida Spine Questionnaire, and the Activities Scale for Kids (ASK). Self-perception was determined

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41

Reinhardt, Henriette [Verfasser], Michael [Gutachter] Sailer, and Martina [Gutachter] Messing-Jünger. "Lebensumstände von Erwachsenen mit Spina bifida / Henriette Reinhardt ; Gutachter: Michael Sailer, Martina Messing-Jünger." Magdeburg : Universitätsbibliothek Otto-von-Guericke-Universität, 2019. http://d-nb.info/1220035394/34.

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42

Reinhardt, Henriette Verfasser], Michael [Gutachter] Sailer, and Martina [Gutachter] [Messing-Jünger. "Lebensumstände von Erwachsenen mit Spina bifida / Henriette Reinhardt ; Gutachter: Michael Sailer, Martina Messing-Jünger." Magdeburg : Universitätsbibliothek Otto-von-Guericke-Universität, 2019. http://nbn-resolving.de/urn:nbn:de:gbv:ma9:1-1981185920-141239.

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43

Gallagher, M. "Factors affecting the development of mathematical concepts in children with spina bifida and hydrocephalus." Thesis, Open University, 1985. http://oro.open.ac.uk/54922/.

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44

Kohleis, Katy [Verfasser]. "Seelische Gesundheit von Kindern und Jugendlichen mit infantiler Zerebralparese und Spina bifida / Katy Kohleis." Ulm : Universität Ulm, 2017. http://d-nb.info/1137264683/34.

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45

Johnson, Kiana R., David L. Wood, and Brandon Rocque. "Predictive Validity of The Newly Developed Spina Bifida Transition Readiness Assessment Questionnaire (SB-TRAQ)." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/5197.

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Анотація:

Background: Measuring the acquisition of self-management skills are part of evidence based health care transition practice. Youth with Spina Bifida have significant demands for self-management and high self-care burden. We developed an 11 item Spina-Bifida -TRAQ to assess self-management skills specific for Spina Bifida including urine, stool continence management, and skin and shunt maintenance. A detailed description of the SB-TRAQ, its reliability and criterion validity are presented elsewhere. Objective: To examine the predictive validity of the Spina Bifida-TRAQ among youth with Spina

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46

Eames, Michael H. A. "'Walking the tightrope' : the excursion of the centre of mass in children with spina bifida." Thesis, Queen's University Belfast, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.322646.

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47

Bellin, Melissa Hayden. "Examination of an Ecological Model of Adjustment for Adolescent Siblings of Youth with Spina Bifida." VCU Scholars Compass, 2006. http://scholarscompass.vcu.edu/etd_retro/46.

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While much research has focused on the psychosocial health of youth with spina bifida and their parents, less is known about the sibling experience. This cross-sectional mixed method study tested an ecological model of adjustment for adolescent siblings using self-report surveys. Convenience sampling methods were used to recruit 224 families from the Spina Bifida Association of America and three spina bifida clinic sites. The central hypotheses evaluated whether a set of ecological variables (stress appraisal, satisfaction with family functioning, warmth and conflict in the sibling relation

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48

Johnson, Kiana R., David L. Wood, Brandon Rocque, and Katherine Barnes. "The Reliability and Validity of a Newly Developed Spina Bifida Specific Transition Readiness Assessment Questionnaire." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/5198.

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Background: Measuring the acquisition of self-management and health care utilization skills are part of evidence based health care transition practice. Youth with Spina Bifida (SB) have significant demands for self-management and high self-care burden. To complement HCT skills assessed in the TRAQ, we developed an 11 item SB-TRAQ to assess self-management skills specific to Spina Bifida. Similar to the TRAQ, the SB-TRAQ uses a 5-point Likert responses using Stages of Change. Objective: To develop and assess the reliability and validity of a questionnaire to measure independence and skill ac

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Durrant, Michele. "Raising children who have spina bifida or cerebral palsy, a comparison of mothers' accounts of stigma." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape4/PQDD_0023/MQ50443.pdf.

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Dady, Alwyn. "Ségrégation cellulaire lors de la neurogenèse précose : les cadhérines font Sécession." Paris 6, 2012. http://www.theses.fr/2012PA066377.

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Les transitions de cadhérines sont souvent impliquées dans des phénomènes de ségrégation cellulaire mettant en jeu un phénomène de Transition Epithélium-Mésenchyme (TEM). Cependant, lors de la formation du système nerveux central, la transition E-/N-cadhérine n’entraîne pas de TEM et, contrairement au modèle en vigueur, nos résultats montrent que celle-ci n’est absolument pas un prérequis nécessaire aux mouvements morphogénétiques de la neurulation. Le point important lors de la formation du système nerveux central semble surtout être le contrôle de la cinétique de cette transition E-/N-Cadhér

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