Relevant bibliographies by topics / Parents, quality of life, inflammatory bowel disease

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Academic literature on the topic 'Parents, quality of life, inflammatory bowel disease'

Author: Grafiati
Published: 24 April 2022
Last updated: 30 July 2025

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Journal articles on the topic "Parents, quality of life, inflammatory bowel disease"

1

Cilar, Leona, Špela Polak, and Barbara Kegl. "Parental knowledge of chronic inflammatory bowel diseases in a child." Sestrinski glasnik 26, no. 1 (2021): 30–34. http://dx.doi.org/10.11608/sgnj.26.1.5.

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Introduction: Chronic inflammatory bowel disease is a chronic lifelong disease with various triggers, intermediate longer and shorter remissions. Parents need to know what kind of nutrition the child with chronic inflammatory bowel disease needs because they must be able to make the right decisions regarding the child‘s diet. The right choice of diet gives a child enough energy in their daily and enables the quality life. They must enjoy a healthy balanced diet so that they receive all the nutrients the body needs. In our work, we presented chronic inflammatory bowel disease in children and pa
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De Carlo, Chiara, and Matteo Bramuzzo. "Distress, catastrofismo e qualità di vita dei bambini affetti da malattia infiammatoria cronica intestinale." Medico e Bambino 39, no. 10 (2020): 634–37. http://dx.doi.org/10.53126/meb39634.

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Inflammatory bowel diseases can lead to the development of distress and catastrophic constructs in children and their parents and have an important impact on the patients’ quality of life. This pilot study showed that about half of children and parents report a significant state of distress that is related to a worse quality of life in children. About one fifth of patients also have catastrophising thoughts about their pain despite the remission of the disease, thus also this psychological construct has a strong correlation with the worsening of their quality of life. Psychological management
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Akobeng, Anthony K., Victor Miller, David Firth, Mirajkar V. Suresh-Babu, Pervaiz Mir, and Adrian G. Thomas. "Quality of Life of Parents and Siblings of Children with Inflammatory Bowel Disease." Journal of Pediatric Gastroenterology & Nutrition 28, Supplement (1999): S40—S42. http://dx.doi.org/10.1097/00005176-199904001-00007.

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Cushman, Grace, Sharon Shih, and Bonney Reed. "Parent and Family Functioning in Pediatric Inflammatory Bowel Disease." Children 7, no. 10 (2020): 188. http://dx.doi.org/10.3390/children7100188.

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Although the impact of pediatric inflammatory bowel disease (IBD) extends beyond the patient to their parents and families, the focus of previous literature has largely been on investigating the patient’s medical and psychosocial functioning, with less consideration of the family system. Having a comprehensive understanding of parent and family functioning within the context of pediatric IBD is important given the role parents and family members have in the successful management of the disease and caring of the child. The current review paper aggregates the empirical research regarding parent
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Arakelyan, Anna L., Andrej N. Surkov, Evgenij E. Bessonov, et al. "The Possibilities of Assessing the Quality of Life in Inflammatory Bowel Diseases." Pediatric pharmacology 22, no. 3 (2025): 323–32. https://doi.org/10.15690/pf.v22i3.2905.

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Inflammatory bowel diseases (IBD) in children are chronic immune-mediated conditions that significantly affect the quality of life (QOL). QOL assessment tools designed specifically for children allow us to quantify the degree of the disease’s impact on various aspects of their lives, such as daily activity, emotional state, social interactions, etc. The research results demonstrate that IBD has a negative impact on children’s QOL, leading to lower school performance, limited social activity, and psychological problems such as anxiety and depression. The severity of the disease, the frequency o
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Gallo, Julieta, Amy Grant, Anthony R. Otley, et al. "Do Parents and Children Agree? Quality-of-Life Assessment of Children With Inflammatory Bowel Disease and Their Parents." Journal of Pediatric Gastroenterology and Nutrition 58, no. 4 (2014): 481–85. http://dx.doi.org/10.1097/mpg.0000000000000236.

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Zmeskalova, D., J. Prasko, M. Ociskova, et al. "Parental styles and quality of life in the families with adolescents suffering from inflammatory bowel diseases." European Psychiatry 41, S1 (2017): S317. http://dx.doi.org/10.1016/j.eurpsy.2017.02.232.

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BackgroundInflammatory bowel diseases (IBD) in adolescents are chronic medical conditions with a substantial influence on the well-being of the family members.MethodsTotal of 27 adolescents suffered from IBD, and 39 healthy adolescents completed questionnaires ADOR (parenting styles assessed by teenagers), KidScreen-10 (quality of life), SAD (Scale of Anxiety in Children), and CDI (Children's Depression Inventory). Their parents completed the Beck Anxiety Inventory (BAI), Beck Depression Inventory (BDI-II), and Pediatrics Quality of Life Family Impact Module (PedsQL).ResultsThe parental styles
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Greenley, R. N., and C. Cunningham. "Parent Quality of Life in the Context of Pediatric Inflammatory Bowel Disease." Journal of Pediatric Psychology 34, no. 2 (2008): 129–36. http://dx.doi.org/10.1093/jpepsy/jsn056.

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Kohut, S. Ahola, T. Walters, P. Church, K. Frost, A. Jelen, and J. Stinson. "Parent rumination predicts quality of life in adolescents with inflammatory bowel disease." Journal of Pain 19, no. 3 (2018): S31. http://dx.doi.org/10.1016/j.jpain.2017.12.078.

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Tahirova, А. R., I. V. Sichinava, O. F. Savvateeva, and E. V. Borisova. "Quality of Life of Children with Crohn’s Disease as a Potential Criterion for Monitoring Disease Activity." Doctor.Ru 19, no. 10 (2020): 27–32. http://dx.doi.org/10.31550/1727-2378-2020-19-10-27-32.

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Study Objective: To analyse the activity dynamics of Crohn’s disease (CD) and the quality of life (QoL) of children aged 8–17 years. Study Design: Open prospective non-randomized comparative study. Materials and Methods. The quality of life was assessed in 37 healthy children and 28 children with Crohn's disease (17 boys and 11 girls). Disease activity (Paediatric Crohn’s Disease Activity Index, PCDAI) was determined using PedsQL 4.0 Generic Core Scales questionnaire which comprises assessment of health and activity, child’s attitude, problems with interpersonal relations, and progress at scho
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Dissertations / Theses on the topic "Parents, quality of life, inflammatory bowel disease"

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Pihl, Lesnovska Katarina. "Life situation among persons living with inflammatory bowel disease." Doctoral thesis, Linköpings universitet, Avdelningen för omvårdnad, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-142720.

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to desc
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Ogden, Cassandra Anne. "Quality of life and coping in children and adolescents with inflammatory bowel disease." Thesis, University of Central Lancashire, 2006. http://clok.uclan.ac.uk/19738/.

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Inflammatory Bowel Disease (IBD) is a chronic disease with pehods of remission and relapse, as inflammation occurs in the gastrointestinal tract causing symptoms such as diarrhoea, fatigue, abdominal cramps and loss of appetite. This work aimed to validate an instrument to measure quality of life (aoL) in children with IBD and explore family functioning and coping strategies used by children and their parents. A pilot study was conducted to assess the feasibility of adapting the Dutch children's IBD QoL instrument (IMPACT) for the UK population. The response scale was changed from a visual ana
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Tolkien, Zoe Ann Julia. "Dietary iron intake and quality of life in patients with inflammatory bowel disease." Thesis, University of Cambridge, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.648644.

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Russel, M. G. V. M. "Incidence, risk factors and quality of life in IBD Inflammatory Bowel Disease registry South Limburg /." Maastricht : Maastricht : Universiteit Maastricht ; University Library, Maastricht University [Host], 1997. http://arno.unimaas.nl/show.cgi?fid=5910.

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Oxelmark, Lena. "Quality of life in inflammatory bowel diseases: aspects on interventions and unconventional treatments /." Stockholm, 2006. http://diss.kib.ki.se/2006/91-7140-655-7/.

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Scullion, Fionnuala. "An investigation into factors that predict health-related quality of life in adolescents with inflammatory bowel disease." Thesis, University of Edinburgh, 2009. http://hdl.handle.net/1842/29356.

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Objectives: The main aim of this research was to investigate factors which predict health-related quality of life (HRQOL) in adolescents with inflammatory bowel disease (IBD). A secondary aim was to investigate agreement between parent and adolescent reported HRQOL. A further aim was to investigate gender differences in reported HRQOL. Method: Fifty-seven adolescents attending a Gastroenterology outpatients’ clinic with IBD completed measures of anxiety (Spence children’s Anxiety Scale), depression (Beck Depression Inventory), self esteem (Rosenberg Self Esteem Scale), parental overprotection
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Freitas, Thiago Holanda. "Religious Coping and its influence on Medication Adherence and Quality of Life of Patients with Inflammatory Bowel Disease." Universidade Federal do CearÃ, 2014. http://www.teses.ufc.br/tde_busca/arquivo.php?codArquivo=12695.

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Inflammatory Bowel Disease (IBD) is associated with elevated levels of anxiety and depression, and a reduction in health-related quality of life (HRQoL). Non-adherence to treatment is also frequent in IBD and compromises outcomes. Religious coping plays a role in the adaptation to several chronic diseases. However, the influence of religious coping on IBD-related psychological distress, HRQoL and treatment adherence remains unknown. The aim of this study is to assess the influence of religious coping on psychological distress, adhesion to treatment and quality of life of IBD patients. Method:
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Rhodes, Angel R. "Quality of life issues for people with IBD an exploratory study to investigate the relationship of coping skills, social support and negative social interactions to anxiety and depression for people with IBD /." Columbus, Ohio : Ohio State University, 2006. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1164818638.

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Seaman, Angela. "Risk factors for psychological insult following deployment to Operation Enduring Freedom or Operation Iraqi Freedom among veterans : a systematic review ; A cross-sectional study investigating the impact of disease activity and disease related cognitions on adjustment in Inflammatory Bowel Disease." Thesis, University of Edinburgh, 2017. http://hdl.handle.net/1842/25906.

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Risk factors for psychological insult following deployment to Operation Enduring Freedom or Operation Iraqi Freedom among veterans: A systematic review: The systematic review aimed to establish more clearly the risk factors for mental health problems in the veteran population. Five databases were searched. Included studies (n = 10) required that veterans served in Operation Enduring Freedom (OEF) and/or Operation Iraqi Freedom (OIF) and included risk factors of mental health problems among the veteran population. Data from included studies were extracted and critically appraised based on criti
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Hansen, Linda, and Louise Lindh. "Leva med en kronisk sjukdom : En litteraturöversikt om inflammatorisk tarmsjukdom och hälsorelaterad livskvalitet." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4358.

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Bakgrund: Inflammatorisk tarmsjukdom (IBD) inkluderar ulcerös kolit och Crohns sjukdom. De är kroniska och uppkommer i skov då tarmslemhinnan blir inflammerad och sårig vilket ger en komplex symtombild med akuta diarréer, rektalblödning och buksmärtor. Behandlingen går ut på att minska symtom och förebygga uppkomst av skov. Då dessa sjukdomar påverkar det dagliga livet så påverkas också den individuella hälsorelaterade livskvaliteten, vilket mäter den fysiska, psykiska och sociala aspekten av ett hälsoproblem. Syfte: Syftet var att beskriva upplevelsen av hälsorelaterad livskvalitet hos person
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Books on the topic "Parents, quality of life, inflammatory bowel disease"

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(Foreword), S. M. Goldberg, and Gian G. Delaini (Editor), eds. Inflammatory Bowel Disease and Familial Adenomatous Polyposis: Clinical Management and Patients' Quality of Life. Springer, 2006.

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Delaini, Gian Gaetano, and S. M. Goldberg. Inflammatory Bowel Disease and Familial Adenomatous Polyposis: Clinical Management and Patients' Quality of Life. Springer London, Limited, 2007.

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Delaini, Gian Gaetano, and S. M. Goldberg. Inflammatory Bowel Disease and Familial Adenomatous Polyposis: Clinical Management and Patients' Quality of Life. Springer, 2016.

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Otley, Anthony Roger. Validation of the IMPACT questionnaire for measuring health-related quality of life in paediatric inflammatory bowel disease: Sensibility, validity and reliability testing in a paediatric cohort. 2004.

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Sierpina, Victor, Karen Welch, Dimple Desai, and Anna Rotkiewicz. The Healthy Gut in Older Adults. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190466268.003.0016.

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Gastrointestinal issues are among the most common problems in older adults, who present a unique set of issues related to the aging gut. An integrative physician attends to these issues by avoiding polypharmacy, reducing overuse of invasive procedures and medications, optimizing nutritional recommendations, and supporting quality of life. This chapter describes a variety of approaches that include functional medicine, lifestyle, mind-body, bioenergetics, botanical, herbal, and other measures to improve gut health. Specific topics covered are gastroesophageal reflux disease, gastritis, ulcers,
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Book chapters on the topic "Parents, quality of life, inflammatory bowel disease"

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Grant, Amy, and Anthony Otley. "Measurement of Quality of Life in Pediatric Inflammatory Bowel Disease." In Pediatric Inflammatory Bowel Disease. Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-49215-5_51.

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Grant, Amy, and Anthony Otley. "Measurement of Quality of Life in Pediatric Inflammatory Bowel Disease." In Pediatric Inflammatory Bowel Disease. Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-14744-9_51.

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Otley, Anthony. "Measurement of Quality of Life in Pediatric Inflammatory Bowel Disease." In Pediatric Inflammatory Bowel Disease. Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5061-0_45.

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Irvine, E. Jan. "Measuring quality of life in inflammatory bowel disease." In Inflammatory Bowel Disease: From Bench to Bedside. Springer Netherlands, 2003. http://dx.doi.org/10.1007/978-1-4020-3477-0_24.

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Munkholm, Pia, and Natalia Pedersen. "Evaluation of Quality of Life in Inflammatory Bowel Disease." In Crohn's Disease and Ulcerative Colitis. Springer US, 2011. http://dx.doi.org/10.1007/978-1-4614-0998-4_25.

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Haapamäki, Johanna. "Health-Related Quality of Life and Inflammatory Bowel Disease." In Encyclopedia of Quality of Life and Well-Being Research. Springer Netherlands, 2014. http://dx.doi.org/10.1007/978-94-007-0753-5_3838.

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Haapamäki, Johanna. "Health-Related Quality of Life and Inflammatory Bowel Disease." In Encyclopedia of Quality of Life and Well-Being Research. Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-17299-1_3838.

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Haapamäki, Johanna. "Health-Related Quality of Life and Inflammatory Bowel Disease." In Encyclopedia of Quality of Life and Well-Being Research. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-319-69909-7_3838-2.

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Oxelmark, L. "Quality of Life in Group-Based Intervention Program in Inflammatory Bowel Disease." In Handbook of Disease Burdens and Quality of Life Measures. Springer New York, 2010. http://dx.doi.org/10.1007/978-0-387-78665-0_193.

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Russell, Alexandra. "Integrative Gastroenterology for Children, Adolescents, and Parents." In Integrative Gastroenterology, edited by Gerard E. Mullin, Marvin Singh, Alyssa Parian, and John Clarke. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190933043.003.0006.

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Gastrointestinal complaints are common among pediatric patients. Many of these disorders are chronic and complex, resulting from an interplay of biology, psychopathology, genetics, microbiome disruption, and diet. There is a growing interest among patients, parents, and providers in using an integrative approach for the treatment of these disorders. Mind–body practices, including yoga, hypnotherapy, and cognitive behavioral therapy, can improve quality of life for children with a variety of GI complaints. Iberogast and licorice supplements may benefit those with dyspepsia; enteric-coated peppe
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Conference papers on the topic "Parents, quality of life, inflammatory bowel disease"

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Silonyan, Anna, Andrey Surkov, Vladislav Chernikov, and Elena Kulebina. "P400 Quality of life in children with inflammatory bowel disease." In Faculty of Paediatrics of the Royal College of Physicians of Ireland, 9th Europaediatrics Congress, 13–15 June, Dublin, Ireland 2019. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-epa.746.

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Mardare, R., L. Eskell, J. Machta, JME Fel, and D. Thangarajah. "OC100 Chronic pain is common in paediatric inflammatory bowel disease and impacts quality of life." In Abstracts of the BSPGHAN Annual Meeting 2023. BMJ Publishing Group Ltd, 2023. http://dx.doi.org/10.1136/flgastro-2023-bspghan.99.

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Sivanandan, Ashvni, Sarah O’Neill, Dara Rasasingam, Bianca Petri, Rabia Topan, and Kamal Patel. "P135 The importance of quality-of-life measures in patients with inflammatory bowel disease – a quality improvement project." In BSG LIVE’24, 17-20 June 2024, ICC Birmingham. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2024. http://dx.doi.org/10.1136/gutjnl-2024-bsg.217.

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Subasinghe, Duminda, Nawarathna Mudiyanselage Meththanan Nawarathna, and Dharmabandhu Nandadeva Samarasekera. "P159 Impact of faecal incontinence on health related quality of life in inflammatory bowel disease patients." In Abstracts of the BSG Campus, 21–29 January 2021. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2021. http://dx.doi.org/10.1136/gutjnl-2020-bsgcampus.234.

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Czuber-Dochan, Wladyslawa, Myfanwy Morgan, Miranda Lomer, James Lindsay, Glenn Robert, and Kevin Whelan. "OWE-037 Managing issues with food-related quality of life in inflammatory bowel disease – a qualitative study." In British Society of Gastroenterology, Annual General Meeting, 4–7 June 2018, Abstracts. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2018. http://dx.doi.org/10.1136/gutjnl-2018-bsgabstracts.322.

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Krishnamoorthy, Rajesh, and Yvonne Jeanes. "PWE-115 Dietary patterns in inflammatory bowel disease-intolerances, quality of life and calcium/vitamin D intake." In British Society of Gastroenterology, Annual General Meeting, 4–7 June 2018, Abstracts. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2018. http://dx.doi.org/10.1136/gutjnl-2018-bsgabstracts.349.

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Goodhand, James R., Marian Parkinson, Claire Bewshea, Tariq Ahmad, and Nick Kennedy. "P80 Iron deficiency and quality of life in inflammatory bowel disease: prospective cohort study of ferric derisomaltose." In BSG LIVE’24, 17-20 June 2024, ICC Birmingham. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2024. http://dx.doi.org/10.1136/gutjnl-2024-bsg.162.

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Twomey, Alice, Louisa Belli, Alicia Sandall, Dearbhaile O’Hanlon, and Miranda Lomer. "P290 Using a digital platform to measure food-related quality of life in patients with inflammatory bowel disease receiving dietary counselling." In BSG LIVE’23, 19–22 June, ACC Liverpool. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2023. http://dx.doi.org/10.1136/gutjnl-2023-bsg.356.

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Thiruchelvanathan, Sayeeshan, Shaman Rajindrajith, Wathsala Hathagoda, and Sandeepa Wijerathne. "OC74 Validation of the IMPACT-III quality of life questionnaire in Sinhalese for children with inflammatory bowel disease in Sri Lanka." In Abstracts of the BSPGHAN 38th Annual Meeting, 20–22 March 2024, The Bristol Hotel, Bristol, UK. BMJ Publishing Group Ltd, 2024. http://dx.doi.org/10.1136/flgastro-2024-bspghan.70.

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Cai, Chenwen, Naizhong Hu, Yihong Fan, et al. "IDDF2018-ABS-0223 An eastern chinese multicenter survey on health-related quality of life in inflammatory bowel disease patients and disease-related perception of caregivers." In International Digestive Disease Forum (IDDF) 2018, Hong Kong, 9–10 June 2018. BMJ Publishing Group Ltd and British Society of Gastroenterology, 2018. http://dx.doi.org/10.1136/gutjnl-2018-iddfabstracts.164.

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