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Dissertations / Theses on the topic 'Parents, quality of life, inflammatory bowel disease'

Author: Grafiati

Published: 24 April 2022

Last updated: 30 July 2025

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1

Pihl, Lesnovska Katarina. "Life situation among persons living with inflammatory bowel disease." Doctoral thesis, Linköpings universitet, Avdelningen för omvårdnad, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-142720.

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to desc

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2

Ogden, Cassandra Anne. "Quality of life and coping in children and adolescents with inflammatory bowel disease." Thesis, University of Central Lancashire, 2006. http://clok.uclan.ac.uk/19738/.

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Inflammatory Bowel Disease (IBD) is a chronic disease with pehods of remission and relapse, as inflammation occurs in the gastrointestinal tract causing symptoms such as diarrhoea, fatigue, abdominal cramps and loss of appetite. This work aimed to validate an instrument to measure quality of life (aoL) in children with IBD and explore family functioning and coping strategies used by children and their parents. A pilot study was conducted to assess the feasibility of adapting the Dutch children's IBD QoL instrument (IMPACT) for the UK population. The response scale was changed from a visual ana

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3

Tolkien, Zoe Ann Julia. "Dietary iron intake and quality of life in patients with inflammatory bowel disease." Thesis, University of Cambridge, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.648644.

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4

Russel, M. G. V. M. "Incidence, risk factors and quality of life in IBD Inflammatory Bowel Disease registry South Limburg /." Maastricht : Maastricht : Universiteit Maastricht ; University Library, Maastricht University [Host], 1997. http://arno.unimaas.nl/show.cgi?fid=5910.

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5

Oxelmark, Lena. "Quality of life in inflammatory bowel diseases: aspects on interventions and unconventional treatments /." Stockholm, 2006. http://diss.kib.ki.se/2006/91-7140-655-7/.

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6

Scullion, Fionnuala. "An investigation into factors that predict health-related quality of life in adolescents with inflammatory bowel disease." Thesis, University of Edinburgh, 2009. http://hdl.handle.net/1842/29356.

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Objectives: The main aim of this research was to investigate factors which predict health-related quality of life (HRQOL) in adolescents with inflammatory bowel disease (IBD). A secondary aim was to investigate agreement between parent and adolescent reported HRQOL. A further aim was to investigate gender differences in reported HRQOL. Method: Fifty-seven adolescents attending a Gastroenterology outpatients’ clinic with IBD completed measures of anxiety (Spence children’s Anxiety Scale), depression (Beck Depression Inventory), self esteem (Rosenberg Self Esteem Scale), parental overprotection

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7

Freitas, Thiago Holanda. "Religious Coping and its influence on Medication Adherence and Quality of Life of Patients with Inflammatory Bowel Disease." Universidade Federal do CearÃ, 2014. http://www.teses.ufc.br/tde_busca/arquivo.php?codArquivo=12695.

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Inflammatory Bowel Disease (IBD) is associated with elevated levels of anxiety and depression, and a reduction in health-related quality of life (HRQoL). Non-adherence to treatment is also frequent in IBD and compromises outcomes. Religious coping plays a role in the adaptation to several chronic diseases. However, the influence of religious coping on IBD-related psychological distress, HRQoL and treatment adherence remains unknown. The aim of this study is to assess the influence of religious coping on psychological distress, adhesion to treatment and quality of life of IBD patients. Method:

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8

Rhodes, Angel R. "Quality of life issues for people with IBD an exploratory study to investigate the relationship of coping skills, social support and negative social interactions to anxiety and depression for people with IBD /." Columbus, Ohio : Ohio State University, 2006. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1164818638.

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9

Seaman, Angela. "Risk factors for psychological insult following deployment to Operation Enduring Freedom or Operation Iraqi Freedom among veterans : a systematic review ; A cross-sectional study investigating the impact of disease activity and disease related cognitions on adjustment in Inflammatory Bowel Disease." Thesis, University of Edinburgh, 2017. http://hdl.handle.net/1842/25906.

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Risk factors for psychological insult following deployment to Operation Enduring Freedom or Operation Iraqi Freedom among veterans: A systematic review: The systematic review aimed to establish more clearly the risk factors for mental health problems in the veteran population. Five databases were searched. Included studies (n = 10) required that veterans served in Operation Enduring Freedom (OEF) and/or Operation Iraqi Freedom (OIF) and included risk factors of mental health problems among the veteran population. Data from included studies were extracted and critically appraised based on criti

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10

Hansen, Linda, and Louise Lindh. "Leva med en kronisk sjukdom : En litteraturöversikt om inflammatorisk tarmsjukdom och hälsorelaterad livskvalitet." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4358.

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Bakgrund: Inflammatorisk tarmsjukdom (IBD) inkluderar ulcerös kolit och Crohns sjukdom. De är kroniska och uppkommer i skov då tarmslemhinnan blir inflammerad och sårig vilket ger en komplex symtombild med akuta diarréer, rektalblödning och buksmärtor. Behandlingen går ut på att minska symtom och förebygga uppkomst av skov. Då dessa sjukdomar påverkar det dagliga livet så påverkas också den individuella hälsorelaterade livskvaliteten, vilket mäter den fysiska, psykiska och sociala aspekten av ett hälsoproblem. Syfte: Syftet var att beskriva upplevelsen av hälsorelaterad livskvalitet hos person

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11

Haag, Veronica. "Konsekvenser av att leva med Crohns sjukdom eller ulcerös kolit : En litteraturstudie." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-2577.

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Bakgrund: Crohns sjukdom och ulcerös kolit är två huvudtyper som utmärker inflammatorisk tarmsjukdom. Inflammatorisk tarmsjukdom påverkar mag- och tarmkanalen och har ett oförutsägbart sjukdomsförlopp. Inflammatorisk tarmsjukdom debuterar vanligtvis i åldern 15-30 och kan ge ogynnsamma konsekvenser i personens dagliga aktiviteter eftersom han eller hon är upptagen med att exempelvis studera, skapa karriär eller bilda familj. Sjukdomarna har flera gemensamma särdrag där de förekommer i så kallade skov med perioder med försämring då tarmslemhinnan blir inflammerad och sårig, vilket leder till sy

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12

Nordholme, Maria, and Ingela Persson. "När magen styr livet : personers upplevelser av att leva med kronisk inflammatorisk tarmsjukdom." Thesis, Sophiahemmet Högskola, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2610.

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SAMMANFATTNING Livet förändras både fysiskt och emotionellt när individen får en diagnos med en kronisk sjukdom. Den sjuke tvingas att anpassa och acceptera att livet förändras. Hur livet med sjukdomen upplevs och hur personen anpassar sig, är individuellt. Även anhöriga och vänner runt den sjuke drabbas. Vården kan bli en viktig del i den sjukes livsvärld och det är viktigt att lyfta fram hur den som är sjuk upplever sin sjukdom och sin vardag. Syfte: Syftet var att beskriva personers upplevelser av att leva med kronisk inflammatorisk tarmsjukdom och hur sjukdomen inverkar på deras vardag. Me

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13

Petterqvist, Anders, and Sandra Rosenberg-Persson. "Att leva med inflammatorisk tarmsjukdom (IBD) : En litteraturöversikt om vuxna människors upplevelser i vardagen." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-3910.

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Background: Inflammatory bowel disease (IBD) includes Crohn´s disease (CD) and ulcerative colitis (UK). The diseases are chronic and have a pattern of relapses interspersed with relatively symptom-free periods. Common symptoms during relapse are diarrhea, abdominal pain and weight loss. Since you have IBD for life it is important to find ways to relate to and cope with the disease. In that process a nurse can be of great help. Aim: The purpose of this literature review was to increase the understanding of how adult patients with inflammatory bowel disease experience their daily lives. Method

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14

Frostell, Aleksandra, and Annika Stark. "Att leva med Crohns sjukdom och ulcerös kolit : en litteraturöversikt över patienters upplevelser av det dagliga livet." Thesis, Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-6240.

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Bakgrund: Crohns sjukdom och ulcerös kolit är kroniska, inflammatoriska tarmsjukdomar som under de senaste decennierna har ökat påtagligt. De kan drabba människor i alla åldrar och ha en negativ påverkan på patienternas livskvalitet. Sjuksköterskan har en viktig roll i att se till att patienterna får tillräckligt med information och stöd för att klara av att sköta sin egenvård. Syfte: Syftet var att belysa hur patienter med Crohns sjukdom och ulcerös kolit upplevde symtomens påverkan i det dagliga livet och hur de anpassat sin tillvaro efter sjukdomen. Metod: En litteraturöversikt grundad på e

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15

Dewulf, Nathalie de Lourdes Souza. "Contribuição da atenção farmacêutica ao tratamento de pacientes com doenças inflamatórias intestinais." Universidade de São Paulo, 2010. http://www.teses.usp.br/teses/disponiveis/17/17138/tde-28072011-151805/.

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As doenças inflamatórias intestinais (DII) - doença de Crohn e retocolite ulcerativa, são condições crônicas que, na maioria dos casos, exigem controle com terapia medicamentosa. A atenção farmacêutica (AF), definida como a provisão responsável do tratamento farmacológico, com o propósito de alcançar resultados concretos que melhorem a qualidade de vida do paciente, constitui nova forma de cuidado ao paciente, que necessita ser mais extensivamente avaliada. Este estudo teve o objetivo de avaliar a contribuição da atenção farmacêutica ao tratamento clínico de pacientes com DII em acompanhamento

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16

Bastida, Paz Guillermo. "Historia natural y calidad de vida de los pacientes con enfermedad inflamatoria intestinal tratados con inmunosupresores tiopurínicos." Doctoral thesis, Universitat Autònoma de Barcelona, 2016. http://hdl.handle.net/10803/399568.

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La enfermedad inflamatoria intestinal (EII) es una patología crónica que afecta fundamentalmente el tubo digestivo. Los pacientes con EII, Enfermedad de Crohn (EC) o Colitis Ulcerosa (CU), tienen una percepción alterada de su calidad de vida (CV). La actividad inflamatoria es la variable que más influye en su mala CV. La tiopurinas, azatioprina (AZA) o 6-mercaptopurina (6MP), son utilizadas en múltiples escenarios, sobre todo para mantener al paciente en remisión. El efecto de las tiopurinas sobre la CV ha sido controvertido. El objetivo principal de esta tesis es conocer el impacto del tra

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17

Cabalzar, Andrea Lemos. "Atividade física de vida diária, capacidade de exercício e qualidade de vida de pacientes com doença de Crohn em remissão infliximab-induzida." Universidade Federal de Juiz de Fora (UFJF), 2017. https://repositorio.ufjf.br/jspui/handle/ufjf/5859.

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Submitted by Renata Lopes (renatasil82@gmail.com) on 2017-10-02T18:24:18Z No. of bitstreams: 1 andrealemoscabalzar.pdf: 1656685 bytes, checksum: e9910962b3bc92892b53761e1aa94f40 (MD5)<br>Approved for entry into archive by Adriana Oliveira (adriana.oliveira@ufjf.edu.br) on 2017-10-09T19:56:16Z (GMT) No. of bitstreams: 1 andrealemoscabalzar.pdf: 1656685 bytes, checksum: e9910962b3bc92892b53761e1aa94f40 (MD5)<br>Made available in DSpace on 2017-10-09T19:56:16Z (GMT). No. of bitstreams: 1 andrealemoscabalzar.pdf: 1656685 bytes, checksum: e9910962b3bc92892b53761e1aa94f40 (MD5) Previous issue date

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18

Scamby, Brianna. "Measuring psychological well-being and quality of life in children with inflammatory bowel disease." Thesis, 2020. https://hdl.handle.net/2144/41895.

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BACKGROUND: Inflammatory Bowel Disease (IBD) is a collective term that refers to chronic inflammatory diseases involving the gastrointestinal (GI) tract. The most common forms of IBD include Crohn’s Disease (CD) and ulcerative colitis (UC). GOALS: The goal of this study is to compare baseline and one-year follow-up measures of anxiety, depression, and quality of life in children with newly diagnosed IBD. A secondary goal of this study is to determine if there are parallel changes in the psychologic parameters in the parents of these children over a similar one-year interval. METHODS: Thi

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19

Vaughan-Dark, Chelsea Ann. "Disease-Specific Symptoms and Health-Related Quality of Life in Children and Adolescents with Inflammatory Bowel Disease." Thesis, 2013. http://hdl.handle.net/1969.1/151130.

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This study assesses generic and disease-specific Health-Related Quality of Life (HRQOL) in children and adolescents with Inflammatory Bowel Disease (IBD). More specifically, the purpose of the study is to address the relationship between disease- specific indicators, both on a symptom-by-symptom basis and as a whole, to overall HRQOL. Self- and proxy-report versions of the Pediatric Quality of Life Inventory™ (PedsQL™) Generic Core Scales and the newly developed Pediatric Quality of Life Inventory™ Gastrointestinal Symptoms Module were administered to 187 parent-child dyads at ten study site

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20

Day, Alice Sarah. "Exploring a patient-centred, diet-focused treatment paradigm for Inflammatory Bowel Disease." Thesis, 2021. https://hdl.handle.net/2440/134193.

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Introduction: The relationship between diet and inflammatory bowel disease (IBD) is multi-dimensional and complex. Diet is implicated as an environmental factor in disease pathogenesis, however, the interaction between dietary factors and the induction and/or perpetuation of mucosal inflammation is poorly understood. Many people with IBD believe diet and disease are interrelated and subsequently modify their diets in the absence of defined diet therapy, however, this may not improve clinical, nutritional or quality of life (QoL) outcomes. Diet therapy for ulcerative colitis (UC) is under-resea

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21

PATIERNO, CHIARA. "Predictors of clinical outcomes and quality of life in patients with inflammatory bowel disease: a longitudinal study." Doctoral thesis, 2020. http://hdl.handle.net/11573/1368096.

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Psychosomatic medicine is a wide interdisciplinary field that is concerned with the interaction of biological, psychological, and social factors in regulating the balance between health and disease (Lipowski, 1986). It provides an important conceptual framework for the scientific investigations on the role of psychosocial factors affecting individual vulnerability, course, and outcome of any type of medical disease. Current health care is conceived as acute care, while 80% of health expenses are for chronic diseases. Almost all of health care spending is directed at biomedically oriented care.

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22

Otley, Anthony Roger. "Validation of the IMPACT questionnaire for measuring health-related quality of life in paediatric inflammatory bowel disease : sensibility, validity and reliability testing in a paediatric cohort." 2004. http://link.library.utoronto.ca/eir/EIRdetail.cfm?Resources__ID=81086&T=F.

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23

RENDL, Lukáš. "Kvalita života pacientů s Crohnovou chorobou." Master's thesis, 2013. http://www.nusl.cz/ntk/nusl-156336.

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Theoretical foundation Crohn's disease is a chronical autoimmune disease categorized, together with ulcerative colitis, in the group of idiopatic intestinal inflammations. But in spite of this categorization, Crohn's disease may not be found only in the intestines but anywhere in the gastrointestinal tract. However, the intestinal localization is most frequent and is related with numerous manifestations like stomachake, diarrhoea, bloating, flatulence, belching, loss of weight, etc. The pathogenetic cause of those discomforts consists in disorder of autoimmunity, when the body starts producing

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24

Moura, Luis Manuel Cruz Henriques. "Qualidade de Vida na Doença Inflamatória Intestinal em Idade Pediátrica." Master's thesis, 2019. http://hdl.handle.net/10316/90071.

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Trabalho Final do Mestrado Integrado em Medicina apresentado à Faculdade de Medicina<br>Introdução: A Doença Inflamatória Intestinal (DII) é uma doença crónica do intestino, de etiologia multifatorial, que pode ter um impacto significativo na qualidade de vida dos doentes, sobretudo na idade pediátrica. O objetivo deste estudo foi avaliar a Qualidade de Vida Relacionada com a Saúde (QVRS) em crianças e adolescentes do Hospital Pediátrico do Centro Hospitalar e Universitário de Coimbra (HP-CHUC) com o diagnóstico de DII.Métodos: Trata-se de um estudo descritivo, realizado entre setembro de 2018

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