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1

Towards the emancipation of patients: Patients' experiences and the patient movement. Policy Press, 2010.

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2

L, Shortridge Dennis, and Watson Phyllis M. 1947-, eds. Patients first: Experiences of a patient-focused pioneer. Health Administration Press, 1996.

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3

Macarthur, Juliet. The patient's experience of surgery. Scottish Office, 1993.

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4

Crespin, Peter. Patient experience survey 2002. Sodexho Ltd, 2002.

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5

Choctaw, William T. Transforming the Patient Experience. Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-16928-6.

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6

Lean healthcare: Improving the patient's experience. Kingsham Press, 2008.

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7

Young-Mason, Jeanine. The patient's voice: Experiences of illness. 2nd ed. F.A. Davis Company, 2016.

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8

Appleton, Jane M. Patient's narrative experiences of palliative care. Oxford Brookes University, 2002.

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9

Burton, S. Acute in-patient mental health care: A qualitative study of the experiences of patients' carers. Oxford Brookes University, 2002.

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10

A, Sklaroff S., and Royal College of Nursing, eds. Acute hospital wards and the disabled patient: A survey of the experience of patients and nurses. Royal College of Nursing of the United Kingdom, 1987.

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11

Buchanan, James H. Patient encounters: The experience of disease. H. Holt, 1991.

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12

Warne, Tony, and Sue McAndrew, eds. Using Patient Experience in Nurse Education. Macmillan Education UK, 2005. http://dx.doi.org/10.1007/978-1-137-20436-3.

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13

Patient encounters: The experience of disease. University Press of Virginia, 1989.

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14

Xafis, Vicki, Amireh Fakhouri, Kathryn Currow, Stephen Brancatisano, and Wendy Bryan-Clothier. Health Inequity Experienced by Australian Paediatric Patients. Springer Singapore, 2021. http://dx.doi.org/10.1007/978-981-16-3338-6.

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15

The dying process: Patients' experience of palliative care. Routledge, 2000.

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16

Overcoming Asperger's: Personal experience & insight. Armstrong Valley Pub. Co., 2002.

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17

Neufeld, Eva. Informal caregivers of Alzheimer's Disease patients: The experience of caregiver burden as defined by relationship to patient. Huntington University College, 2004.

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18

Blough, Kathy. The experience of being diagnosed with cancer: A phenomenological study revealing the lived-life experiences of cancer patients. MindBodyMed Press, 2014.

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19

Makoae, M. G. Life histories of pulmonary TB patients: Patients' experiences and perceptions about the disease. Institute of Southern African Studies, National University of Lesotho, 1999.

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20

Lawton, Julia. The dying process: Patients' experiences of palliative care. Routledge, 2000.

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21

Myself resolved: An artist's experience with lymphoma. Meniscus Health Care Communications, 1994.

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22

Drake, Charles G. Surgery of vertebrobasilar aneurysms: London, Ontario, experience on 1767 patients. Springer, 1996.

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23

Drake, Charles G. Surgery of vertebrobasilar aneurysms: London, Ontario, experience on 1,767 patients. Springer, 1996.

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24

Mrs, Austin, and DCLD, eds. Arthur: Educational experiences of Arthur Austin, Dyslexic. D.C.L.D., 1985.

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25

Neo-natal meningitis baby and my experience. (M. Latif), 1986.

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26

Breast cancer survivors' club: A nurse's experience. Windsor House Pub. Group, 1996.

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27

Copp, Gina. Facing impending death: Experiences of patients and their nurses. Nursing Times Books, 1999.

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28

Asbestos cancer: One man's experience. Christopher Publishing House, 1995.

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29

Sinnott, Patricia A. Pharmacists' illness experience and the pharmacist-patient relationship. National Library of Canada = Bibliothèque nationale du Canada, 1999.

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30

Women's experience of feminist therapy and counselling. Open University Press, 1994.

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31

De La Cruz, Anthony, Richard F. Brown, and Steve Passik. Ambulatory care nurses responding to depression. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198736134.003.0029.

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Depression is a common occurrence among cancer patients; however, it goes undetected by healthcare providers in about 50% of cases. Ambulatory nurses are in a key position to identify and respond to a patient’s emotional distress and aid in the detection of patients at risk for or suffering from depression. Programmes in communication skills training have been shown to help nurses detect and respond to patient depression. A model of core communication components consisting of strategies, skills, and process tasks is presented. This model will enable nurses to gain an understanding of the patie
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32

Payne, Roberta. Translation and Ethics in Psychiatry. Edited by John Z. Sadler, K. W. M. Fulford, and Cornelius Werendly van Staden. Oxford University Press, 2014. http://dx.doi.org/10.1093/oxfordhb/9780198732365.013.8.

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In this article, the author reflects on the importance of translation and ethics in psychiatry based on his personal experience as a patient suffering from paranoid schizophrenia, alcoholism, and cancer. He talks about his sessions with psychiatrists he has met—what he terms their “human translating.” More specifically, he emphasizes the translation activities between patients and psychiatrists that matter to him, mainly because they are not only fraught with ethical dangers but also present an opportunity for both patient and psychiatrist to excel. The author recalls his exchange with a psych
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33

Simpson, Scott A., and Robert E. Feinstein. Crisis Intervention in Integrated Care. Edited by Robert E. Feinstein, Joseph V. Connelly, and Marilyn S. Feinstein. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190276201.003.0026.

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A crisis occurs when a life stressor overwhelms a person’s ability to cope with a problematic life situation. Crises often become evident in the primary care setting. People in crisis feel distressed and alone; they experience a psychological disorganization that affects their mood and functioning. Most patients can benefit from a brief crisis intervention treatment delivered in an integrated care environment. Behavioral health specialists can lead crisis intervention therapy with the support of the primary care provider, nurses, staff, and a consulting psychiatrist. Crisis intervention treatm
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34

Newton, Hannah. ‘O, How Sweet is Ease!’. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198779025.003.0004.

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This is the first of four chapters devoted to the personal experience of recovery. It explores patients’ responses to the abatement of bodily suffering, investigating the transition from ‘feeling ill’ to ‘feeling better’. Focusing on the decline of pain, nausea, and sleeplessness—three of the most ubiquitous forms of suffering in accounts of illness—it is shown that feeling better was a double joy for patients, of their bodies and souls: they found that physical suffering produced distressing emotions, and the eventual ease brought rejoicing. The second half of the chapter turns to the reactio
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35

Mason, Peggy. The Brain in a Physician’s Life. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190237493.003.0028.

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With the knowledge acquired from this book, the brain regions responsible for each of the symptoms suffered by Jean-Dominique Bauby can be identified. It is also possible to understand why thought, language, and memory were unaffected in Bauby. Bauby’s narrative is used to launch a consideration of the role of embodiment in affective experience. The experience of Clive Wearing who, after a bout of encephalitis, was left without the ability to make new declarative memories is introduced to illustrate the highly personal and individual nature of people’s reactions to disease or clinical impairme
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36

Stanghellini, Giovanni. The P.H.D. method. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198792062.003.0033.

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This chapter reports the main principles of the P.H.D. method:Phenomenological unfolding (P): unfolding means to open up and lay bare the pleats of the patient’s experiences. Unfolding enriches understanding by providing further resources in addition to those that are immediately visible. The main aim is to rescue the logos of the phenomena in themselves, the implicit, automatic, forgotten sources that make phenomena appear as they appear to the patient.Hermeneutic analysis of the person’s position-taking towards her experience (H): rescuing from the implicit the active role that the patient h
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37

Stanghellini, Giovanni. Unfolding. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198792062.003.0036.

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This chapter discusses how the world the Other lives in is other with respect to mine. What must be assumed is not analogy, but a ‘different normality’ (i.e. hetero-logy)—a norm that is valid within another framework of experience. Understanding another person requires reconstructing her framework of experience. A fortiori, understanding a patient’s symptom requires reconstructing the framework of experience in which it is embedded. Reconstructing the other’s framework of experience needs a preliminary deconstruction. This deconstruction is made through a phenomenological unfolding of the expe
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38

Phillips, Katharine A., Rachel A. Simmons, and Joseph Donahue. Three Patients with Body Dysmorphic Disorder : Cases and Commentary. Edited by Katharine A. Phillips. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190254131.003.0002.

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This chapter provides three representative case descriptions of individuals with body dysmorphic disorder (BDD). These cases convey BDD’s core, universal features: appearance preoccupations, resulting repetitive behaviors (rituals, compulsions), and resulting distress or impairment in functioning. The cases also convey the broader range of symptoms that patients experience and the different ways in which BDD can manifest in patients’ lives. We additionally illustrate two variants of BDD: muscle dysmorphia and BDD by proxy. We follow each case with a commentary in which we discuss some key aspe
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39

Sullivan, Mark D. Health as the Capacity for Action. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0006.

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Objective definitions of health and disease are favored because they promise a value-free measure of health problems and health care needs. But objective health does not simply cause the subjective experience of health. Self-rated health predicts mortality, disability, and hospitalizations for up to a decade after controlling for objective measures of health. Objective tissue abnormalities cannot be discovered to be pathological without reference to the experiences of patients acting in their natural environment. Patients adapt to chronic illness and its functional deficits over time with real
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40

Martin, Hind, and Bournemouth University. Institute of Health and Community Studies., eds. Patients' experience of cataract surgery. Bournemouth University,Institute of Health & Community Studies, 2001.

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41

Gatkowska, Izabela. Diagnosing Dysarthria in Adults: A New Speech Assessment Method for Polish, English, and Spanish. Æ Academic, 2019. http://dx.doi.org/10.52769/bl3.0019.

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Izabela Gatkowska proposes a new SPEECH ASSESSMENT METHOD (SAM), grounded in her clinical experience with dysarthria, awareness of diagnostically important features, and the practical need to confine logopedic examination to tasks diagnostically most important and maximally tolerable by the patient. When diligently applied, the new SAM allows the diagnostician to identify overlapping dysarthric symptoms in greater detail and, when repeated, analyze their dynamics over time. The point of departure for the current study is an analysis of the speech impairments observed in Polish adult neurologic
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42

Wiggins, Osborne P., and Michael Alan Schwartz. Phenomenology and psychopathology: in search of a method. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199609253.003.0002.

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We outline a phenomenological method for a science of psychopathology. Method is conceived as the mode of experiencing an object which can deliver the best direct evidence of the object available. Hence a main aim of our chapter is to sketch a method for the science of psychopathology that can establish this best evidence for claims about abnormal mental realities. The best source of evidentially grounded claims regarding psychopathological experiences is located in the clinical interview and dialogue. The method of hermeneutics adds needed detail. Our concept of hermeneutics goes back to Dilt
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43

Experiences of Patients and Families. Natl Alliance for the, 1989.

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44

Evans, Charlotte, Anne Creaton, Marcus Kennedy, and Terry Martin, eds. Retrieval coordination. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198722168.003.0003.

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Coordination lies at the heart of retrieval systems. A successful retrieval is a well-planned well-coordinated one. Despite this, very little has been written on the subject. Determining a patient’s clinical needs while simultaneously making complex logistical decisions involving multiple cases takes considerable skill and experience. This chapter covers the essentials of retrieval coordination including providing advice to referrers, case triage, and decisions surrounding crew, platform, and destination choice. The retrieval coordinator can feel lonely and overwhelmed at times and requires st
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45

Ltd, BMRB International, and East Sussex Health Authority, eds. Hospital experience: The patient's perspective : report on a survey among hospital in-patients in East Sussex. BMRB International, 1994.

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46

Lynch, Maureen. Nausea and Vomiting. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190204709.003.0005.

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This chapter provides an overview of the assessment and management of nausea and vomiting and data on their prevalence. Successful management of these complex symptoms requires an ongoing comprehensive assessment to describe the patient’s experience and associated factors, formulate a symptom diagnosis based on an understanding of likely etiologies, and use appropriate nonpharmacologic and pharmacologic management strategies based on best evidence, expert opinion, and patient acceptability. An understanding of the physiological pathways of vomiting and nausea, and common etiologies, including
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47

The patient's voice: Experiences of illness. F.A. Davis, 1997.

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48

The Patient's Voice: Experiences of Illness. F. A. Davis Company, 1997.

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49

Moller, David Wendell. Notes from the Trenches. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780199760145.003.0010.

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Being in the trenches with patients and other caregivers while working collaboratively toward a patient’s goals is a fantastic experience. However, it is equally important to be cognizant of the many difficulties to be encountered while working in the trenches. When caring for patients who are marginalized, the highs and lows of being a medical provider for this population can be extreme because of the circumstances surrounding both their medical and social situations. Practicing principles of collaborative decision-making, along with seeking to understand and empathize with others, serves to
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50

Kidd, Pamela Ann Stinson. TRAUMA PATIENTS PERCEPTION OF THE TRAUMA EXPERIENCE. 1989.

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