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1

Fawcett, Barbara, Joy Fillingham, Dawn River, Maureen Smojkis, and Nicki Ward. Service User and Carer Involvement in Health and Social Care. Macmillan Education UK, 2018. http://dx.doi.org/10.1057/978-1-137-53771-3.

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2

Lisa, Malihi-Shoja, and Downe Soo, eds. Service user & carer involvement in education for health & social care. Wiley-Blackwell, 2010.

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3

Mo, McPhail, ed. Service user and career involvement: Beyond good intentions. Dunedin Academic, 2008.

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4

Management, Office for Public. Joint reviews of social services departments: A framework for evaluating user and carer involvement. [The Office?], 1994.

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5

Osborn, Averil. Taking part in community care planning: The involvement of user groups, carer groups and voluntary groups. Nuffield Institute, 1991.

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6

Branfield, Fran. Making user involvement work: Supporting service user networking and knowledge. Joseph Rowntree Foundation, 2006.

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7

Barnes, Marian. Developing a strategy for user involvement. Nuffield Institute for Health, Community Care Division, 1995.

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8

1947-, Weinstein Jenny, ed. Service user involvement and recovery in mental health. Jessica Kingsley Publishers, 2010.

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9

Wallcraft, Jan, Beate Schrank, and Michaela Amering, eds. Handbook of Service User Involvement in Mental Health Research. John Wiley & Sons, Ltd, 2009. http://dx.doi.org/10.1002/9780470743157.

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10

Michaela, Amering, Schrank Beate, and Wallcraft Jan, eds. Handbook of service user involvement in mental health research. John Wiley & Sons, 2009.

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11

Morrow, Elizabeth, Annette Boaz, Sally Brearley, and Fiona Ross. Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley-Blackwell, 2011. http://dx.doi.org/10.1002/9781444347050.

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12

Hawcroft, Lynn. Visible voices: Developing deaf service user involvement in local services. British Deaf Association, 1996.

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13

Brafield, Helen. Service user involvement: Reaching the hard to reach in supported housing. Jessica Kingsley Publishers, 2007.

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14

Brafield, Helen. Service user involvement: Reaching the hard to reach in supported housing. Jessica Kingsley Publishers, 2007.

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15

Hazel, Kemshall, and Littlechild Rosemary, eds. User involvement and participation in social care: Research informing practice. Jessica Kingsley, 2000.

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16

Fellowship, National Schizophrenia. How to involve users and carers: Guidelines on involvement in planning, running andmonitoring care services. National Schizophrenia Fellowship, 1992.

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17

Vivien, Lindow, and Joseph Rowntree Foundation, eds. Living with risk: Mental health service user involvement in risk assessment and management. Policy Press, 2004.

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18

Cooke, Jane. Beyond tokenism: Mental health service user involvement in Wales : a Mind Cymru report. [Mind Cymru], 2002.

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19

Philpot, Terry. Managing to listen: A guide to user involvement for mental health service managers : promoting & supporting good practice : manager, staff & user experiences : reading & resources : problem solving. King's Fund Centre, 1994.

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20

Bunting, Valerie Jane. The empowerment of mental health service users in Northern Ireland: The impact of user involvement in the voluntary sector. The author], 2002.

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21

Dick, Sally. Nothing about me, without me: The report of a practice based study of approaches to effective user involvement in individual care in one agency. Consultation and Involvement Trust Scotland, 2000.

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22

McPhail, Mo. Service User and Carer Involvement: Beyond Good Intentions. Dunedin Academic Press, 2007.

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23

Leiba, Tony, Philip Kemp, Liz Green, Aloyse Raptopoulos, and Humphrey Greaves. Mental Health, Service User Involvement and Recovery. Kingsley Publishers, Jessica, 2009.

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24

Service User and Carer Involvement in Health and Social Care: A Retrospective and Prospective Analysis. Red Globe Press, 2017.

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25

Downe, Soo, Lisa Malihi-Shoja, and Michael McKeown. Service User and Carer Involvement in Education for Health and Social Care: Promoting Partnership for Health. Wiley & Sons, Incorporated, John, 2011.

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26

Downe, Soo, Lisa Malihi-Shoja, and Michael McKeown. Service User and Carer Involvement in Education for Health and Social Care: Promoting Partnership for Health. Wiley & Sons, Incorporated, John, 2010.

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27

Downe, Soo, Lisa Malihi-Shoja, and Michael McKeown. Service User and Carer Involvement in Education for Health and Social Care: Promoting Partnership for Health. Wiley & Sons, Incorporated, John, 2011.

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28

Downe, Soo, Lisa Malihi-Shoja, and Michael McKeown. Service User and Carer Involvement in Education for Health and Social Care: Promoting Partnership for Health. Wiley & Sons, Limited, John, 2010.

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29

Service User and Carer Involvement: Beyond Good Intentions (Policy and Practice in Health and Social Care Series). Dunedin Academic Pr Ltd, 2008.

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30

Boaz, Annette, Sally Brearley, Elizabeth Morrow, and Fiona Mary Ross. Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley & Sons, Incorporated, John, 2011.

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31

Boaz, Annette, Sally Brearley, Elizabeth Morrow, and Fiona Mary Ross. Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley & Sons, Incorporated, John, 2011.

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32

Boaz, Annette, Sally Brearley, Elizabeth Morrow, and Fiona Mary Ross. Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley & Sons, Incorporated, John, 2011.

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33

Service User Involvement. Joseph Rowntree Foundation, 1995.

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34

Wallcraft, Jan. Service User Involvement in Research. Edited by John Z. Sadler, K. W. M. Fulford, and Werdie (C W. ). van Staden. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780198732372.013.13.

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This chapter traces the development of service user involvement in research and user-controlled research, from its origins in the early 1990s to the present day where mental health researchers are expected to involve service users. It looks at why service users wanted to be involved in research and their issues of concern, including the effects of treatment, staff attitudes, and human rights. Values in research are linked to the epistemological underpinnings of research, and it is argued that service users’ ways of knowing based on experience are in conflict with mainstream research based on c
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35

Warren, Janet. Service User and Carer Participation in Social Work. SAGE Publications, Limited, 2007.

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36

Barnes, Marian, and Phil Cotterell. Critical Perspectives on User Involvement. Policy Press, 2011.

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37

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2019.

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38

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2019.

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39

McLaughlin, Hugh, Joseph Duffy, Brendan McKeever, and June Sadd, eds. Service User Involvement in Social Work Education. Routledge, 2019. http://dx.doi.org/10.4324/9781351232630.

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40

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2020.

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41

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2018.

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42

Fleming, Jennie, Karen Newbigging, Jason Lim, Philip Cotterell, and Zemikael Habte-Mariam. Social Care, Service Users and User Involvement. Kingsley Publishers, Jessica, 2012.

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43

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2019.

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44

McLaughlin, Hugh, Brendan McKeever, June Sadd, and Joe Duffy. Service User Involvement in Social Work Education. Taylor & Francis Group, 2019.

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45

Social care, service users and user involvement. Jessica Kingsley Publishers, 2012.

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46

ESA and Getting Paid for Service User Involvement. Independently Published, 2020.

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47

Critical Perspectives on User Involvement. Policy Press, 2011.

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48

Critical Perspectives On User Involvement. Policy Press, 2012.

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49

Critical Perspectives on User Involvement. Policy Press, 2011.

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50

Service User And Carer Participation in Social Work (Transforming Social Work Practice). Learning Matters, 2007.

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